the role of patients in defining value: benefits for hta ken bond, director, strategic initiatives
TRANSCRIPT
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The Role of Patients in
Defining Value:
Benefits for HTA
KEN BOND, DIRECTOR, STRATEGIC INITIATIVES
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What does HTA value?
• Clinical, economic, social, ethical, legal, and organizational implications
• Direct and indirect, intended and unintended consequences
• Value for money
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Patients roles in HTA
Source of evidence• current therapy and gaps, impact on
caregivers and family, expectations for new medicines, key outcomes
• Validation • Critical appraisal
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Patient roles in HTA
Expert• Research questions• Protocol, report, recommendations• Ensure voice is heard• Clarification
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Barriers to InputPatient Organizations• Work required to prepare submissions• Expertise required to collect and analyze qualitative and
quantitative information• Technical language of HTA
HTA Agencies• Difficulty understanding and using qualitative information• Volume of information to consider within limited time• Fair processes for all stakeholders
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• Advice from HTA perspective• Includes patient perspective• What does “better” (evaluation, treatment) look like?
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Patient input ensures that assessments and deliberations are based on a well-informed and explicit articulation of what is valued.
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