How to Build a Thriving Community on Your Website

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<ul><li><p>Sara LathamCommunications Director</p><p>Vincent MalangaCIO</p></li><li><p>AGENDA</p><p> COPD Foundation background and context</p><p> Evolution of Foundation and changing needs of people we serve</p><p> Genesis of COPD360social</p><p> Timeline</p><p> Technology considerations</p><p> Planning and recruitment </p><p> Questions and feedback</p></li><li><p>The COPD Foundations mission is to prevent and cure chronic obstructive pulmonary disease </p><p>(COPD) and to improve the lives of all people affected by COPD.</p></li><li><p>COPD360socialCOPD360research</p><p>Patient-Powered Research Network - integrated registry </p><p>and research platform</p><p>Online social engagement, education and collaboration</p><p>EVOLUTION</p></li><li><p>CHANGING FACE OF OUR COMMUNITY</p><p> COPD no longer a disease of </p><p>the elderly</p><p> COPD affects more women </p><p>than men</p><p> Most of our community uses </p><p>some form of social media on </p><p>a daily basis with Facebook</p><p>being the modality most </p><p>commonly used</p><p> Individuals wanted a place </p><p>where they could go and </p><p>connect with others that went </p><p>beyond traditional listserves</p></li><li><p>SOCIAL MEDIA ENGAGEMENT SURVEY</p><p> Conducted April 2014</p><p> 137 respondents</p><p> 72.3% patients</p><p> 17.5% caregivers</p><p> 10.2% know someone with COPD</p><p> Much more engaged with social media than we had thought</p><p> Read blogs on health a few times a week for information</p><p> 86% were extremely or somewhat likely to join an online community</p></li><li><p>CHANGING FACE OF OUR COMMUNITY</p></li><li><p>CHANGING FACE OF OUR COMMUNITY</p></li><li><p>CHANGING FACE OF OUR COMMUNITY</p></li><li><p>CHANGING FACE OF OUR COMMUNITY</p></li><li><p>COPD360social</p></li><li><p>GOALS OF COPD360SOCIAL</p><p> Provide an interactive community </p><p>platform for patients, family members, </p><p>caregivers and medical professionals </p><p> Build a community of empowered and </p><p>engaged patient advocates </p><p> Add a social and dynamic element to </p><p> </p><p> Increase SEO through frequent </p><p>crowdsourced updates</p><p> Support recruitment of </p><p>COPD360research </p><p> Contribute to our understanding of COPD</p></li><li><p>TIMELINE</p><p> Spring 2014 discussion internally about how best to engage </p><p>our community and tie together research and social platform</p><p> June 2014 environmental scan of community and due </p><p>diligence</p><p> July October 2014 customization of COPD360social</p><p> August and September 2014 development of guidelines, </p><p>seeded content, Q&amp;A, recruitment and promotional materials, </p><p>graphic identity</p><p> October 2014 webinars to partners, dissemination of social </p><p>media toolkit to partners, population of site with content</p><p> November 19, 2015 Launch on World COPD Day, press </p><p>release via BusinessWire</p></li><li><p>TECH/POLICY CONSIDERATIONS</p><p> Determination of which community features to include</p><p> Dont want to overwhelm members with too much functionality</p><p> Keep conversations in a single location</p><p> Identification of a community manager</p><p> Relates well to others, is one of them</p><p> Knowledgeable on subject matter</p><p> Willing to consistently review analytics to improve content moving forward</p><p> Development of guidelines, privacy policy and rights and responsibilities</p></li><li><p>RECRUITMENT </p><p> Identification of key influencers</p><p> Key to ask early for support and early participation to spark conversation</p><p> Conduct training webinars to introduce influencers to site in advance of launch</p><p> Creation of seeded content</p><p> Three months of seeded content developed</p><p> Site was populated with robust content in advance of launch</p><p> COPDF staff given concrete instructions and deliverables</p></li><li><p>PROMOTION</p><p> Launched during World COPD </p><p>Day</p><p> BusinessWire press release</p><p> E-blasts to community through </p><p>newsletter </p><p>(approximately 50,000)</p><p> Articles in COPD Digest and </p><p>Lung Health Professional</p><p> Banners on COPDF website</p><p> 3 month social media editorial </p><p>calendar</p></li><li><p>WHAT DOES COPD360SOCIAL LOOK LIKE NOW?</p><p> As of September 14, 2015: 7,385 registrants</p><p> 20% caregivers, family members or friends</p><p> 35% healthcare providers or medical affiliates</p><p> 45% COPD patients</p><p> Continually adding new members</p><p> Enhancements planned for 2016</p><p> Paid advertising to launch in Q3/Q4</p></li><li><p>CONTACT INFO</p><p> Questions about strategy, marketing or recruitment Sara Latham </p><p>(</p><p> Questions regarding technology, enhancements or integration Vinny Malanga </p><p>(</p><p>COPD Foundation website: </p><p></p><p>mailto:slatham@copdfoundation.orgmailto:vmalanga@copdfoundation.org</p></li><li><p>Visit the DNN website for further information</p><p>COPD Foundations website is powered by:</p><p></p></li></ul>