collaborate. advocate. innovate. · innovate.” that is both a tribute and acknowledgement to our...

COLLABORATE. ADVOCATE. INNOVATE.2011 ANCOR National Advocacy Campaign Report

2 C O L L A B O R A T E . A D V O C A T E . I N N O V A T E .

ANCOR’s National Advocacy Campaign (NAC)

made great strides within the last decade as

an effective voice in Washington, D.C. building

relationships with Congressional champions, the

Administration, and other organizations in the

national disability community. With these partners,

the NAC added to the professional career path for

DSPs, championed wage legislation in Congress,

advocated for additional federal Medicaid funding,

achieved the declaration of an entire week devoted

to recognizing DSPs, and continued to educate

elected officials and the public on DSP workforce

issues.

As the NAC enters its second decade,

opportunities and challenges drive ANCOR and

the NAC leadership to evaluate and reposition the

campaign to insure its ability to advance the NAC’s

mission and objectives. After all, the demand for

a well-trained workforce increases with each

passing year, while recruiting and retaining DSPs

remains a challenge for many providers, even with

unemployment at an all-time high.

This year’s annual report highlights not only

2010, but the NAC’s plans for 2011 and beyond,

as support grows for community services and the

DSPs who are integral to full community inclusion.

Join us as we Collaborate. Advocate. Innovate.

FOREWORD

2011 National Advocacy Campaign Mission and ObjectivesMissionTo enhance the lives of all people with disabilities who rely on long term supports and services by obtaining the resources to recruit, train and retain a highly qualified and sustainable workforce.

Objectives ! Implement a national policy and solutions to address the workforce shortage and financing

issues through the engagement of community service providers, members of the direct support workforce, policy makers at the state and federal level, and other stakeholders.

! Obtain adequate public funding to provide competitive wages, benefits, training and career development for the long-term supports and services workforce.

! Advance and promote technologies and other innovations that maximize human resources, assuage workforce demands, and allow for efficiencies, enhancements, and flexibility in the delivery of supports and services.

2 0 1 1 A N C O R N a t i o n a l A d v o c a c y C a m p a i g n R e p o r t 3

Dear Friends:

We are once again pleased to present the ANCOR NAC An-nual Report for 2011 with the theme “Collaborate. Advocate. Innovate.” that is both a tribute and acknowledgement to our past, present and future endeavors.

Thomas Friedman, the New York Times Columnist and Pulitzer Prize winning author, remarked recently, “Political leadership for the past 60 years, on balance, was about giving things away. We are now entering an era of taking things away and we don’t yet know what that will look like.” For the past several years, the NAC has not only worked to raise the awareness of the critical importance of our direct support professionals, but we have also sought to increase the wages, benefits and career options for our DSPs. In short, we have consistently asked our elected officials and policy-makers for more money!

With the recent enormous shift in our social, political and economic climate we now face unprecedented challenges.

We cannot continue to simply ask for more resources, we must fly a new and different banner. We need to become part of the solution! Everyone realizes that our country is plagued with “a jobs problem, a money shortage, and a caregiver crisis.” How do we take these seemingly contradictory factors and forge a pro-active strategy going forward for the NAC? To paraphrase Friedman, we don’t yet know what it will look like, but we are certainly working on creating our solutions.

I once again thank each of you for your continued support of the ANCOR NAC.

Ken LovanChairmanNational Advocacy Campaign Workforce Advisory Council

LETTER FROM ANCOR NAC CHAIRMAN KEN LOVAN, RESCARE, INC.

ANCOR members reaped 30 gubernatorial proclaimations declaring the week beginning September 12, 2010 as Direct Support Professional Recognition Week.


For the third consecutive year, the U.S. Senate unanimously approved a resolution designating the week beginning September 12, 2010 as “National Direct Support Professional Recognition Week.” Sponsored by Senator Ben Nelson (D-NE), Senate Resolution 558 recognized DSPs for their commitment to supporting individuals and promoting community-inclusion for individuals with disabilities of all ages. Senators Kerry (D-MA), Brownback (R-KS), Dodd (D-CT), Bingaman (D-NM), Johanns (R-NE), Collins (R-ME), Bunning (R-KY), Carper (D-DE), Brown (D-OH) and Udall (D-CO) joined Senator Nelson as co-sponsors of the bill.

Tremendous grassroots advocacy by ANCOR members reaped a record number of 30 gubernatorial proclamations declaring the week beginning September 12, 2010 as

Direct Support Professional Recognition Week, a dramatic increase over the 13 received in 2009. The roll call of states: Arizona, Arkansas, Colorado, Connecticut, Illinois, Indiana, Iowa, Kansas, Kentucky, Louisiana, Maine, Maryland, Mississippi, Missouri, Montana, Nebraska, New Jersey, New Mexico, New York, North Carolina, North Dakota, Ohio, Oklahoma, Pennsylvania, Rhode Island, South Dakota, Utah, Virginia, West Virginia, and Wisconsin.

ANCOR members wholeheartedly embraced National Direct Support Professional Recognition Week using the occasion to celebrate and thank their dedicated support teams. Media coverage was logged in more than 130 markets for events that ranged from barbecues, luncheons, dinners and receptions to yellow flags flying across the grounds of state capitols.

A historic first for DSP Week, a joint

statement was issued by Labor Secretary Solis and HHS Secretary Sebelius on the S. Res. 558 designation for National Direct Support Professional Recognition Week. “The U.S. Departments of Health and Human Services and Labor are proud that the United States Senate has bestowed this recognition honoring direct support professionals and the tremendous impact they make everyday in communities across the country. Their service and dedication is exemplary and their role in enhancing the lives of individuals with disabilities of all ages is vital. We are grateful that direct support professionals are always there on the front lines when we need them.

The 20th Anniversary of the Americans with Disabilities Act, celebrated earlier this year, provides another reason to celebrate the contributions of direct support professionals.

Direct Support Professional Recognition Week

continued on page 6


Dear Friends:

Whether or not direct support professionals are paid by a provider, self-directed services or volunteering their time it is critical that their significant contribution to our society is recognized and valued for the magnificent difference they make in the lives of millions of people every day, in every community across the USA.

It took the nursing industry more than 50 years to garner support in recognition of their profession; we do not have the luxury of 50 years. We are all too aware that once through this recession we will be again facing the reality of an acute DSP shortage that will be compounded by increasing de-mand for DSPs to meet the personal care needs of our aging baby boomers. Who will be there for us as we age? Who will be there for our children with disabilities? Who will be there to ensure that our loved ones can remain in their homes and in their communities? Who will keep them safe?

It is through the valued work of ANCOR members and

through your financial contributions to the ANCOR National Advocacy Campaign that we move closer to achieving our legislative goals and the ultimate recognition, education and compensation of DSPs as a profession. This NAC Annual Report for 2011 contains valuable information on the signifi-cant accomplishments that have been made over the past 12 months. It also highlights our goals for the future. None would have been achieved if not for your contributions.

On behalf of ANCOR and the NAC Workforce Advisory Council, I sincerely thank you for your support.

Wendy SokolPresidentANCOR

LETTER FROM ANCOR PRESIDENT WENDY SOKOL, SOREO IN HOME SUPPORT SERVICES, LLC

Utah Governor Gary Herbert signs a state proclamation declaring Direct Support Professional Recognition Week, September 8–12, 2010


Without the services and supports provided by these professionals, it would be far more difficult to realize the important contributions made by people with disabilities in our society today.”

DSPs to DC

One hundred thirty Direct Support Professionals from around the U.S. assembled in Washington, DC during National Direct Support Professional Recognition Week to attend advocacy workshops and urge members of Congress to put an end to a workforce crisis that is threatening the quality of life for people with disabilities.

ANCOR’s national DSP of the Year and 24 of the 40 state winners were recognized in Washington, D.C. at the DSPs to DC event. These DSPs were joined by another 105 DSPs from around the country who visited with their members of Congress about increasing funding for wages connected to Medicaid services for people with disabilities. These DSPs were advocating for H.R. 868—the Direct Support Professionals Fairness and Security Act—a bill that would provide funds to states thus enabling providers to raise DSP wages.

To kick off the event, DSPs and providers

gathered in the Rayburn House Office Building for a Capitol Hill Briefing where they heard from staffers of H.R. 868 co-sponsors Representative Lois Capps and Representative Lee Terry. Tina Fagan, a newly designated Certified Direct Support Professional from the National Alliance for Direct Support Professionals, offered moving and passionate remarks. Attendees also heard from Joe MacBeth of the New York State Association of Community and Residential Agencies and watched a video about DSPs. Following the briefing, DSPs attended training sessions on

2001 August! ANCOR convened CEOs to discuss actions to be

taken regarding workforce crisis. The NAC concept was born: A three-pronged approach including lobbying; research and public relations adopted

! Fundraising began with approaches made to “founding” agencies

! Prestigious lobbying firm of Barbour Griffith and Rogers retained

September! 9/11 Terrorists attack New York City & Pentagon,

Arlington, VA. NAC adopts “Quiet Heroes” theme! Campaign launched at ANCOR’s Governmental

Activities Seminar

October! Task forces were formed for three strategy focus

areas

! Collateral materials developed, including logo, theme: “Make a Difference;” fundraising brochure

! Plans set in place to develop a video and website and comprehensive campaign kit for ANCOR members

November! NAC secures allied support: American Association

on Intellectual and Developmental Disabilities (AAIDD) • Arc of the United States • CARF-The Rehabilitation Accreditation Commission • The Council on Quality and Leadership • National Alliance of Direct Support Professionals • National Association of State Directors of Developmental Disabilities Services • United Cerebral Palsy

2002 March! Campaign video, exhibit booth and member

campaign kits presented at Management Practices Conference

May! First CEO Summit to discuss workforce wage issue

September! Labor Secretary Chao, Gov. Haley Barbour and Joe

Lubarsky speak at Governmental Activities Seminar ! Commence ongoing meetings with U.S.

Department of Labor and CMS


topics such as What Makes a Professional, The NADSP Code of Ethics: Live in High Definition Full Color, Community Supports and Skills Standards, and the National Apprenticeship Program. The next day, ANCOR staff trained DSPs on how to reach members of Congress with H.R. 868 and offered insider tips for speaking with members of Congress.

H.R. 868: the Direct Support

Professionals Fairness and

Security Act

ANCOR staff and member volunteers worked hand in hand to educate members of Congress about the conditions affecting supports for individuals with disabilities and the immediate need to provide wage relief to hundreds of thousands of DSPs. They worked diligently to encourage sponsorship of this landmark legislation to raise DSP wages—wages necessary to recruit and retain of these professionals so

individuals with disabilities of all ages can lead dignified and fulfilling lives in their communities well into the future.

Members worked to increase the number of sponsors, yet the 111th Congress concluded with 70 co-sponsors, including our primary sponsors: Representatives Lois Capps (D-CA) and Lee Terry (R-NE). The workforce crisis was overshadowed as Congress tackled jobs, the extension of a temporary increase in Medicaid funds, and the Affordable Care Act (ACA). While ANCOR was unable to include our workforce in ACA provisions that examined the overall health care workforce crisis, ANCOR and NAC advocates answered the call to push for an extension of the temporary Federal Medical Assistance Percentage (FMAP) until July 1, 2011. These efforts to pass this extension were deemed critical by the NAC Steering Committee for providers to continue community supports and services in the face of unprecedented state

budget cuts. Thankfully, the many calls, letters, and visits to Congressional offices resulted in the inclusion of this extension in the Education, Jobs, and Medicaid Assistance Act (HR 1586).

After a tumultuous year, the NAC Steering Committee, now Workforce Advisory Council, assessed the focus of the NAC’s legislative efforts. It was determined that the wage legislation that so effectively served as a rallying point, would not be successful in the 112th Congress. The 2010 election cycle changed the landscape of the House and Senate. This combined with the slow economic recovery created a political environment in which members of Congress are unlikely to consider legislation with a price tag.

Our bill co-sponsors, Representatives Terry and Capps remain champions of the workforce issue and are eager to work with ANCOR on other legislative initiatives that advance this critical effort in the future. In 2011,

! U. S. Representatives Pete Sessions and Lois Capps sponsored H. Con. Res.94 calling for recognition of direct support professionals.

! Senators Jim Bunning and Blanche Lincoln sponsor a similar measure in the Senate (S. Con. Res. 21)

2003 February! Television PSA (Make a Difference) and radio

PSA (Make a Difference) spots developed and distributed

! Members urged to obtain State Resolutions: 26 eventually introduced; 13 passed

March! First NAC Annual Report! NAC PR Council formed

April! www.supportnac.org launched

September! NAC Petition launched (about 50,000 signatures

collected)! Samantha Blanchard “Music of Our Lives” CD

released as fundraising tool ! Distribution of first BDO Seidman Report validating

DSP workforce crisis to Governors and state officials

! CD distributed to all members with BDO Seidman report; PSAs; resolutions; sample letter to congressional representatives and general NAC background information

! U.S. Dept. of Labor/Health & Human Services (HHS)/Education appropriations bill contains report language that recognizes and requests DoL and HHS to work together to study the issue and make recommendations

! Grassroots expert Peter Gottlieb speaks at Governmental Activities Seminar

! Second CEO summit features HHS Deputy Secretary Claude Allen

October! The Edith L. Trees Charitable Trust grant received! Grant proposal submitted to U.S. Dept. of Labor

(DoL) for state pilot programs with One Stop Centers

! “Make a Difference” wristbands introduced as fundraising tool

2004 April! DoL pilot DSP placement programs inaugurated in

four states

July ! Print Ad “It’s Time to Even the Tables” introduced

to members ! Radio Spots “Imagine”and “Poverty Wages”! www.supportnac.org redesigned as public site with

media page! Second Grassroots Public Relations kit created and

distributed to membership

August! Maryland Governor Erlich tapes Message to

Governors and TV PSA “Priorities”

September ! HR 5197 Direct Support Professionals Fairness &

Security Act introduced into U.S. House by Sens. Lois Capps (D.CA) and Lee Terry (R.NE)


October! U.S. Dept. of Health & Human Services Highest

Recognition Award bestowed on ANCOR CEO Dr. Renee Pietrangelo

! The Edith L. Trees Charitable Trust grant received

December! First exhibit at National Conference of State

Legislators! ANCOR invited to participate in U.S. Office on

Disabilities summit

2005 March! Bipartisan Direct Support Professionals Fairness

and Security Act (HR 1264) introduced in U.S. House of Representatives

April ! West Coast Premiere of “Riding the Bus With My

Sister,” Hallmark Hall of Fame’s gala to preview its newest made for TV-movie

! ANCOR co-sponsors East Coast Premiere of “Riding the Bus With My Sister” at National Press Club

May! National airing of “Riding the Bus With My Sister”

and Phantom Phundraiser Event

June! CEO Summit ! Tapping into the Public Workforce whitepaper

published (model practices from pilot project)

the focus of our efforts will be on expanding and strengthening the coalition that supports community living and the workforce that makes it possible. This is a necessary step in our continuing effort to resolve the workforce crisis. The wage bill served well as a rallying point that garnered widespread bipartisan support and established concrete awareness among legislators of the pivotal function of the direct support workforce in the lives of millions of Americans with disabilities. For the next two years, the NAC will focus on shining a light on the work of DSPs and their role in the lives of

individuals with disabilities and how the need for a qualified workforce is increasing as our population ages and the demand for community supports and services rises. (See Looking Ahead, page 11.)

Direct Support Professional

Recognition Award

This prestigious award was started by ANCOR in 2007 to acknowledge the professionalism, commitment and courage of the DSPs who work to ensure community inclusion and full participa-tion for hundreds of thousands of Americans with

intellectual, developmental and other disabilities. Among other criteria, nominees are judged on their effectiveness in building social networks that support meaningful and productive par-ticipation in the community for the people they serve and their success in advocating or effecting change on behalf of people with disabilities.

The 2010 awards ceremony took place in April in New Orleans during ANCOR’s Management Practices Conference where Maria Cordova of Adelante Services in Albuquerque, NM was named the national winner among 231 nominations submitted for the competition. Forty


additional DSPs received awards as best of the best in their respective states and the District of Columbia.

Undaunted by an unstable economy and record high unemployment, particularly for those with disabilities, Ms. Cordova assisted individuals supported by Adelante in obtaining 115 competi-tively paid, integrated jobs. A decidedly effective advocate, Maria established positive relation-ships with 57 new employers and single-handed-ly coordinated a job fair. Additionally, she made sure her job candidates looked the part by creating the Clothing Closet and acquiring donations of professional attire for client job interviews.

State Direct Support Professional of the Year winners from 39 states and the District of Columbia are:Arizona: Sarah Joswick, RISE Services, Inc.,

MesaArkansas: Jessica Dunnick, Arkansas

Enterprises for the Developmentally Disabled, Inc., Little Rock

California: Mallika Zavalza, Dungarvin California, LLC, Santa Rosa

Colorado: Rita Hirsch, Community Advantage, Greeley

Connecticut: Susan Hancock, Ability Beyond Disability, Bethel

District of Columbia: Rachael Houston, St. John’s Community Services

Delaware: Rebecca Loller, ResCare/VOCA DE, Newark

Florida: Lucinda McGruder, United Cerebral Palsy of Northwest Florida, Pensacola

Georgia: Willie Grove, EnAble of Georgia, RoswellIllinois: Maria Rivera, Misericordia, ChicagoIndiana: Cathy Peters, Dungarvin Indiana, LLC,

PortageIowa: Barb Edsill, Exceptional Persons, Inc., WaterlooKansas: Eric Hammond, Rosewood Services,

Inc., Great Bend

Kentucky: Deborah Robertson, Community Alternatives Symsonia, Benton

Louisiana: Linda Grant, Evergreen Presbyterian Ministries, Pineville

Maine: Dawn Doak, Goodwill Industries of Northern New England, Portland

Maryland: Sheila Washington, Chimes Maryland Vocational Services, Baltimore

Massachusetts: Karen Dooley, WCI (Work, Community, Independence), Waltham

Minnesota: Kim Sirek, Mount Olivet Rolling Acres, Victoria

Missouri: Ola Pennington, St. Louis Arc, St. LouisMontana: Nate Byrne, Family Outreach, Inc.,

BozemanNebraska: Kathie Chisholm, Community

Alternatives Nebraska, LincolnNevada: Ann Stirling, Dungarvin Nevada, LLC,

Carson CityNew Hampshire: Dambar Kadariya, Moore

Center Services, Inc., Manchester

July! ANCOR invited by DoL Business Relations Group

to participate in Workforce Innovations Conference main platform panel

August! NAC exhibits at National Conference of State

Legislators! Alliance for Full Participation Summit

September! ANCOR and UCP collaborate to form the “Who Will

Care?” initiative; 28,000 letters generated to all 435 members of the U.S. House of Representatives through www.WhoWillCare.org

October! Release of 2005 Update of the Briefing Report and

Chartbook on Wage and Benefits Trends Affecting the Growing Crisis in Recruiting and Retaining the Direct Support Workforce By BDO Seidman, LLC

! The Edith L. Trees Charitable Trust grant received

November! First in series of Hill visits by ANCOR members

from TX, IN, FL, and OH to promote HR 1264

December! Member Capitol Hill visits with U.S.

Representatives from NY, OH! Wall Street Journal front page article by Clare

Ansberry on aging parents with adult children with ID/DD

! Wall Street Journal publishes ANCOR Letter to Editor praising Ansberry article

! Meeting with CMS regarding quality initiative! Developed DSP career video with Univ. of

Minnesota and placed on DoL Career Voyages website

! Year-end media highlights: Lipoh, Frontline, ARCLink, Arc’s Insight and MDA

2006 June! With ANCOR’s input the Office of the Assistant

Secretary for Planning and Evaluation (ASPE) of the U.S. Department of Health and Human Services issues report to Congress, “The Supply of Direct Support Professionals Serving Individuals with Intellectual Disabilities and Other Developmental Disabilities”

! Third CEO Summit on workforce issues

July! Hill visits by providers from GA, PA and NJ to

garner co-sponsorship for HR 1264! Capitol Hill breakfast briefing on HR 1264 attended

by more than 60 healthcare staffers and bill supporters

! E-advocacy: American Worker (American Idol parody) cartoon garners 50,000 Web views through ANCOR partnership with UCP on www.whowillcare.net; netted 6500 letters to Congress

! ANCOR invited to present at DoL Job Corps conference

August! Third NCSL exhibit

September! NAC Website redesign: www.YouNeedtoKnowMe.

org launched ! You Need to Know Me theme set for campaign! “Higher Ground” Hurricane Katrina video co-

sponsored by ANCOR and Volunteers of America


New Jersey: Marie Quilter, Neighbours, Inc., Princeton

New Mexico: Stacy Roanhorse, Dungarvin New Mexico, LLC, Albuquerque

New York: Gavriel Sienov, HASC Center, Brooklyn

North Carolina: Felicia Haywood, Easter Seals UCP NC, Charlotte

Ohio: Addie Moore, Outlook of America, OttawaOklahoma: Karen Clark, Dungarvin Oklahoma,

LLC, NormanOregon: Sekou Dolley, Dungarvin Oregon, LLC,

Portland

Pennsylvania: Barb Sanders, Erie Homes for Children & Adults, Inc., Erie

South Dakota: Twila Baade, Oahe, Inc., PierreTennessee: Jermaine Favors, Open Arms Care

Corporation, OoltewahTexas: Velma Winston, ResCare, Inc., HoustonVermont: Lynn Brooks, Families First, BrattleboroVirginia: Justin Orndorff, Community

Alternatives Virginia, GoreWashington: Carla Stevens, ResCare, Inc. dba

Creative Living Services, Seattle West Virginia: Donna Keister, Potomac Center,

Inc., Romney

Wisconsin: Jennifer Sabally, Dungarvin Wisconsin, LLC, Milwaukee

DSP Workforce Development

Central to the NAC mission and objectives is training and career development for the professionalization of the workforce through DSPs. In 2010 ANCOR, in collaboration with the National Alliance for Direct Support Professionals (NADSP) and the U.S. Department of Labor Employment and Training Administration’s (DOLETA) Office of Apprenticeship, launched the Direct Support

December! Media Highlights: Quest, Impact and Exceptional

Parent

2007 January! Introduction of DSP Recognition Award as You

Need to Know Me event

March! First DSP of the Year Award presented at

Management Practices Conference: Larry Skinner, KETCH, Wichita, KS

August! National Conference of State Legislators exhibit! Third BDO Seidman report on workforce crisis

released

September! First DSPs to DC educational event and Capitol Hill

rally in conjunction with Governmental Activities Seminar

! You Need To Know Me video produced! NAC Research Committee formed

October! The Edith L. Trees Charitable Trust grant received

2008 January! DSP TV On-line video contest launched in

partnership with Therap Services

March! 2nd DSP of the Year Award presented: Mike Garcia,

Catholic Community Services/Community Living, Tucson, AZ

! Special Unsung Hero Award presented to Deborah Anderson, Volunteers of America Community

Living Services, Metairie, LA ! National Alliance of Direct Support Professionals

joins! 2008 Direct Support Professional Wage Study

released


Professional Registered Apprenticeship Program.

The Registered Apprenticeship program requires training for DSPs that focuses on supporting people to live healthy and active lives in their communities. The program is based upon NADSP’s Competencies and Code of Ethics and aligns with the nationwide voluntary NADSP credentialing program. DSP apprentices engage in on-the-job and classroom learning to develop skills in assisting people to realize their personal potential and enabling them to participate fully in social and civic life.

ANCOR also partnered with the Employment and Training Administration (ETA) to develop a comprehensive competency model for the “Long-term Care, Supports, and Services Industry.” With ANCOR’s input as a subject matter expert, a model was designed as a resource that outlines the knowledge and skills needed by workers who provide long term supports and services, such

as DSPs. ANCOR also successfully collaborated with the College of Direct Support to develop and online curriculum for DSPs who provide employment supports.

All of these initiatives, and the work of our partners in DSP workforce development, move the NAC toward its goal of building a professional career path for DSPs within the public workforce system and raises national awareness of the vital work DSPs perform in our country.

Wage Research

Once again, the joint research undertaken by ANCOR and the Mosaic Collaborative for Disabilities Public Policy and Practice demonstrates that a clear disparity exists in wages and retention rates between privately-operate and state-operated providers of Medicaid funded support services for people with disabilities. Released in 2010, the 2009 Direct Support Professionals Wage Study also shows

the negative effect of these wage and retention gaps on the private provider direct support workforce.

The survey results compared wages among DSPs employed by private providers with those who work for state-operated programs. The average 2009 wage for Direct Support Professionals working in private community-based agencies is $10.14/hour compared to $15.53/hour in state operated facilities—a 51% disparity. The net effect of this disparity is a 38.2% higher turnover rate for community DSPs (compared to 15% for State DSPs) and the resulting deleterious emotional and psychic affects on people with disabilities.

Looking Ahead

While the NAC has adjusted its Mission and Objectives in 2011, the focus remains on the DSP workforce and increasing their ability to enhance the lives of individuals with disabilities of all

July! ANCOR Board declares week of September 8th as

National Direct Support Professional Week

August! Inspired by ANCOR U.S. Senate declares week

of September 8 (S. Res. 613) as National Direct Support Professional Week

September! Wall Street Journal reporter Clare Ansberry

keynotes GAS conference and discusses her interest in disabilities issues

! 2nd DSPs to DC event and rally celebrating first National Direct Support Professional Recognition Week

! ANCOR/Therap DSP TV On-line video contest winners honored

! Media highlights: C-Span, Congressional Quarterly Health, Bureau of National Affairs, Roll Call and Pacifica Radio online


December! Fact of the Month introduced for membership and

media ! HR 1279 garners total of 131 co-sponsors

2009 January! Parade Magazine article features HR 1279 sponsor

Rep. Lois Capps

February ! Direct Support Professional Fairness and Security

Act reintroduced into 111th Congress (HR 868)

March! DSP of the Year Winner: Darlene Ricco, Dungarvin

Nevada, Carson City, NV honored at Management Practices Conference

! Posthumous Award of Honor: Pansy Wilson, Salem Villages MRDD, Gainesville, FL

! ANCOR Advocacy Award presented to Direct Support Professionals Alliance of New York State

July! ANCOR Board declares week of September 14 as

National Direct Support Professional Recognition Week

August ! U.S. Senate declares week of September 14 as

National Direct Support Professional Recognition Week (S. Res. 228)

! First Advocacy training webinar! In-District advocacy becomes major thrust! NAC Capital Challenge introduced to generate

Congressional contacts


ages. The DSP workforce continues to be the lynchpin for individuals with disabilities to enjoy life as part of their communities, not merely in their communities. As state-operated institutions become a relic of the past, the NAC must work to ensure the availability of community supports and services and the DSPs who every day enhance the lives of individuals with disabilities.

Collaborate.

Along with reinvestment and renewed commit-ment in the campaign by long-time partners, the NAC is focused on broadening its partners

to encompass all groups that need DSPs to be a part of their communities. This includes aging Americans; disability specific groups, such as Autism; other health care professionals; media and corporate partners; international liaisons; and research entities. By involving other stake-holders, organizations, and constituencies, the campaign will grow in size and influence.

The NAC is looking to build a broader coalition of partners who are also committed to address-ing the workforce crisis, increasing awareness of community providers and their DSPs and stimu-lating local outreach and advocacy with media

and municipal, state and federal decision mak-ers. Partners in the NAC include United Cerebral Palsy, Lutheran Services of America, the ARC of the US, Direct Care Alliance, National Alliance of Direct Support Professionals, Council on Quality and Leadership, American Assn. on Intellectual and Developmental Disabilities, and the National Assn. of State Directors of Developmental Dis-abilities Services.

Advocate.

There is renewed attention to advancements in community living options for peoples with dis-

September! Governmental Activities Seminar celebrates

National Direct Support Professional Week ! 11 State Proclamations declare week of September

14 as Direct Support Professional Week


2010 January! NAC Steering Committee Retreat explores new

economic/political environment and revises and renews NAC mission and campaign objectives

February! Capital Challenge winner announced: YAI named

ANCOR Advocacy Award Winner! NAC named to Associations Advance America

Honor Roll 2010

April! DSP of the Year Winner:

Maria Cordova, Adelante, Albuquerque, NM honored at Management Practices Conference

July! ANCOR Board declares week of September 12 as

National Direct Support Professional Recognition Week.

! U.S. Senate declares week of September 12 as National Direct Support Professional Recognition Week (S. res. 558)

September! Governmental Activities Seminar celebrates

National Direct Support Professional Week! 30 State Proclamations declare week of September

12 as Direct Support Professional Week! DSP to DC event celebrates state DSP of Year

winners and visits to Capitol Hill

October! ANCOR, the National Alliance for Direct Support

Professionals and the U.S. Department of Labor Employment and Training Administration’s Office of Apprenticeship launched the DSP Registered Apprenticeship Program

! The Edith L. Trees Charitable Trust grant received! First ANCOR Technology Leadership Summit

2011 January! NAC Steering Committee reorganizes as NAC

Workforce Advisory Council

February! NAC Workforce Advisory Council amends NAC

Mission & Objectives


abilities. This is evident by the growing demand for community supports in the face of recent federal investigations and rulings directing states to adopt policies that allow supports to be pro-vided in community-based settings rather than in institutions. By shifting to a broader focus on community living choice, the NAC is emphasizing the solution to the challenge of complying with the principles espoused in the Olmstead decision and Americans with Disabilities Act.

Advancements in community-based supports and choice for consumers are rallying points that accelerate the NAC’s ability to involve other stakeholders and organizations to engage and advocate on behalf of the direct support workforce and those they support.

The NAC is also a tool to boost morale among the workforce by seeking opportunities to enhance professionalism and career development capabili-ties by way of regulating agencies and possible legislative action.

The NAC is once again privileged to associate with nationally renowned author Rachel Simon to reach a wider audience through the May 2011 release of The Story of Beautiful Girl.

Best-known for her earlier memoir Riding the Bus with My Sister, Rachel’s latest work is a heartwarming tale that illustrates the importance of respecting the choices of people with disabilities, and the value of the individuals and organizations that support those choices. In her appearances at events across the country, Rachel will be discussing her book and issues of importance to individuals with disabilities.

Innovate.

Access to technology is gaining momentum in the disability community and ANCOR is prepared to lead the way by providing dynamic forums for generating new ideas, exchanging model practices, and assuring the establishment of public policy that supports technology application.

Moving forward, the NAC will continue to use a variety of tools, particularly social media, to build its base of support. In particular Facebook will be used as a means of reaching out to a broad range of stakeholders and potential NAC supporters. The ANCOR Connected Community will be expanded to help DSPs collaborate, share ideas and support each other in their work. The NAC’s online presence will be redesigned to build public awareness and support for community living options and the issues facing the disability community. Find us on Facebook at www.facebook.com/DirectSupportPros and online at www.youneedtoknowme.org.

2011 Budget: $199,165

Fundraising 0%Education 4%

General Administration 4%Total National Advocacy Campaign 100%

Legislation &GrassrootsAdvocacy 59%

Public Relations 33%

In the NewsArticles that appear in national newspapers offer an opportunity to respond via a letter-to-the editor to complement the journalist’s information with another viewpoint. Two important pieces appeared in the last year providing opportunities for further input from ANCOR on the value of private sector providers, their DSPs and support services.

• The Wall Street Journal, May 20, 2010: Disabled Face Hard Choices as States Slash Medicaid by Clare Ansberry

• The New York Times, March 12, 2011: At State-Run Homes, Abuse and Impunity by Danny Hakim


Agency NAC ContributorsAAPPDAbility Beyond DisabilityAbility Building Services, Inc.ABRIO Family Services and SupportsAccess ServicesAcosta Adult HomesAcumen, Inc.ADDCPADDPAdelante Development CenterAditus, Inc.Affiliated ServicesAIM Services, Inc.AIRES, Inc.American Habilitation ServicesAnn Storck Center, Inc.Anne Grady CorporationARC Group Homes, Inc.ARC of the Bluegrass, Inc.ARCAARF of Indiana, Inc.Ark Regional ServicesARRMASKAN CorporationAssociation for the Help of Retarded ChildrenAutism Services Center, Inc.Avenues to IndependenceAXIS, Inc.Babcock Center, Inc.Bell-Carman Family FoundationBenedictine School for Exceptional Children, Inc.Big Lakes Developmental Center, Inc.Bios CorporationBlack Hills Workshop and Training CenterBohling, Inc.Bost Human Development Services, Inc.Brian’s House, Inc.California Association of Health FacilitiesCamp Horizons, Inc.CAPOW, Inc.CARC, Inc.Cardinal Center, Inc.CareCo Homes, Inc.CARFCarmel Community Living Corp.Casa, Inc.Catholic Community ServicesCCLS, Inc.CCRICDC ResourcesCedar Lake Foundation, Inc.Center for CommunityCenter for IndependenceCentral Aroostook ARCCerebral Palsy of Colorado, Inc.Champaign Residential Charitable Trust Education Research GrantCHESCO Services (formerly Chesterfield County

BDSN)Christian Care CommunitiesChristian Care’s Pathways of Central KYChristian Concern, Inc.Christian Opportunity CenterChristole, Inc.Clarke County ARC, Inc.Class, Ltd.CMR Leadership InstituteCOF Training Services, Inc.Colorado Association of Community Centered Boards

CommonWorks dba Gateway Youth & Family ServicesCommunicare Day ServicesCommunity Access UnlimitedCommunity Access, Inc.Community Alliance of Providers of WisconsinCommunity and Residential Services AssociationCommunity Connections, Inc.Community Links, Inc.Community Living AssociationCommunity Living Concepts, Inc.Community Living of Rhode IslandCommunity Living OpportunitiesCommunity Living ServicesCommunity Living, Inc.Community Partners, Inc.Community Providers Association of OregonCommunity Psychology & Education ServicesCommunity Residential Services AssociationCommunity Support Services, Inc.Connections/ResCareCornerstone Associates, LLCCottonwood, Inc.Creative Care for Reaching IndependenceCreative Networks, LLCCrystal Run Village, Inc. DakotabilitiesDanville ServicesDDMS, LLCDelaware County ARCDelta Projects, Inc.Desert Area Resources & TrainingDevelopmental Disabilities Resource CenterDevelopmental Services NetworkDevelopmental Services of Northwest KansasDisability Supports of the Great Plains, Inc.Disabled Citizens FoundationDiscovery Living, Inc.Downeast Horizons, Inc.Dungarvin, Inc.Eastern Christian Children’s RetreatEvant, Inc.Evergreen Presbyterian Ministries, Inc.Exceptional Persons, Inc.Fairbanks Resource AgencyFaith, Hope & Charity, Inc.Families Plus, Inc.Federated Human Service CooperativeFEGSFidura & AssociatesFlorida Association of Rehabilitation FacilitiesFoundation for Development of the RetardedFriendship CommunityFriendship Community CareFutures Unlimited, Inc.Garden Center ServicesGood Shepherd CommunitiesGreater Kansas City Foundation Facilitative ServicesHabilitative ServicesHammer ResidencesHarry Meyering Center, Inc.Heartland Homes, Inc.Heartstrings Community FoundationHerkimer County Chapter A.R.C.Hiawatha Homes, Inc.Hills and Dales Child Development CenterHome of HopeHope Haven (GA)Hope Haven Area Development CenterHope Haven, Inc.

Hope Residence, Inc.Howell’s Child Care Center, Inc.Human Service Connections, LLCImagine the PossibilitiesImagine!Independence Association, Inc.Independence Residences, Inc.Independent Living Services, Inc.Independent OpportunitiesIndependent Options, Inc.Individual ContributionsINSIGHT, Inc.InterHabIntermountain Centers for Human DevelopmentIrwin Siegel Agency, Inc.Job Connection, Inc.John F. Murphy Homes, Inc.Judevine CenterJustice Resource InstituteKansas Elks Training Center for the Handicapped, Inc.Kent County Chapter RIARCKentucky OpportunitiesKeystone Service SystemsKoinonia Homes, Inc.LEAP, IncLegacy Endeavors, Inc.LibertyLIFE, Inc.Life’s WorcLifeSkills, Inc.Lincoln Self Reliance, Inc.Live, Inc.Living Independence LivingLinksLooking UpwardsLynch Community Homes, Inc.Lynch Management ServicesMagdala FoundationMaine Association for Community Service ProvidersMains’l Services, Inc.Mainstream Living, Inc.MARC CenterMaryland Association of Community ServicesMaryland Neighborly Networks, Inc.McGuire MemorialMedsource Community Services, Inc.MelwoodMercer Human Resource ConsultingMiami Cerebral Palsy Residential Services, Inc.Michigan Assisted Living AssociationMidstream, Inc.Mission Mountain Enterprises, Inc.Mission Road Developmental CenterMitchell Area Adjustment Training CenterMontana Assn of Independent Disabilities ServicesMosaicMosaic–Garden CityMount Olivet Rolling Acres, Inc.Nebraska Association of Private ResourcesNemaha County Training CenterNetwork Corp.New Avenues to IndependenceNew Dawn, Inc.New Hope Community, Inc.New Hope VillageNLCDDNorth Central Human ServicesNorthern Hills Training CenterNorthview Developmental Services, Inc.

Northwest Missouri Learning Center, Inc.NYSACRANYSARC, Inc.–Suffolk ChapterOAHE, Inc.Oakridge Homes, Inc.OHIOhio Provider Resource AssociationOmega HomeOnondaga County Chapter NYSARC, Inc.Opportunity LivingOpportunity Resources, Inc.Opportunity VillageOrion Corporation of MNPAKS Developmental ServicesPARPARCPella Rolscreen FoundationPeopleCarePhoenix Residential Centers, Inc.Phoenix Residential Services, Inc.Pine River Group Home, Inc.Polk County Association for Handicapped CitizensPort ResourcesPortable Practical Education Preparation, Inc.Potomac Center, Inc.Prairie ViewPressley RidgePutnam County Comprehensive ServicesQuality Life Concepts, Inc.Rainbow of Challenges dba School of HopeRamirez Communications, LLCRCM of WashingtonReach For Your Potential, Inc.Reach, Inc.Region IV Family Outreach, Inc.Rehabilitation Enterprises of WashingtonREM Wisconsin, Inc.REM, Inc.ResCare Edgewood CenterResCare Gallipolis OHResCare of Western OhioResCare, Inc.Research & Training Center on Community LivingResident Home Association for MR of Greater DaytonResidential C.R.F., Inc.Residential Management Systems, Inc.Residential Support Rhode IslandRichmond Residential Services, Inc.Rimland Services, NFPRise, Inc.Riverbrook Residence, Inc.Riverside Resources, Inc.Rose-Mary CenterS. L. Start & Associates, Inc.Santa Maria El MiradorScioto Properties, LLCShenandoah Valley Community Residence, Inc.Sioux Vocational ServicesSoreo in Home Support Services, LLCSouth Central Behavioral ServicesSouth Dakota Association of Community Based

ServicesSoutheastern Development ServicesSouthwind Residential ServicesSPARCSpecial People in Northeast, Inc.Specialized Services, LLCSpruce Villa, Inc.

St. Dominic’s HomeSt. Giles Living Centers, Inc.St. John Valley Associates, Inc.St. John’s Community ServicesSt. John’s VillaSt. Joseph’s CenterSt. Michaels Association for Special EducationStarkey, Inc.STEPStone Belt Arc, Inc.Sunny OaksSunrise Community, Inc.Sunshine, Inc. of Northwest OhioSupport Solutions, Inc.Support, Inc.T.E.R.I., Inc.Tennessee Network of Community OrganizationsTexas Sunrise Services, Inc.The Adirondack ARCThe Arc of Delaware CountyThe Arc Northern Chesapeake RegionThe Arc of Iroquois CountyThe Arc of Schuyler CountyThe Arc of the OzarksThe Association for Community Living, Inc.The Centers for HabilitationThe Charles Lea Center, Inc.The Chimes, Inc.The Coastal WorkshopThe Colonial Insurance Agency, LLCThe Connecticut Institute for the BlindThe Edith L. Trees Charitable Trust The Institute of Professional Practice, Inc.The Mentor NetworkThe Resource CenterThe Verland FoundationTherap Services, Inc.Threshold Rehabilitation Services, Inc.Tobosa Developmental ServicesTotal Living ConceptsTransitional Services, Inc.Trevecca Nazarene University School of EducationTri-Cities Residential ServicesTri-Valley Developmental Services, Inc.Trinity ServicesUCP of Los Angeles and United Cerebral Palsy of New York City, Inc.University of MinnesotaUtah Association of Community ServicesVentura CountiesVerland Vermont Council DMHSVolunteers of America of Oklahoma, Inc.Volunteers of America, Inc.Waves, Inc.WCIWelcome HouseWest Fork Services, Inc.Willows Way, Inc.Whole Live, Inc.Woodfords Family ServicesWork Training Programs, Inc.Young Adult Institute, Inc.Zachary House, Inc.

Kelley AbellSharon AllenMarylyn AlthoffGregory Anderson


Ray AndersonJoe AnielloKaye AschingerKimberly AustinZhanetta BaileyEllen BallSheila BarkerCraig BarnumTammy BeachGerald BeaglesDiane BeastromDan BerkowiczPeter BinaDebbie BircherCharles BogaardJan BolinEleanor BootRon BrackerWilla BranderhorstRod BraunLinda BrochinMorgan BrochinAmy BrooksBonnie-Jean BrooksStacey BrownKathi Bruendl-HarthLisa BurckLora ButlerSharon ByersLeslie CalabreseFrank CaponeJoanna CardinalRebecca CarlsonSteve and Shelly CarvelPaul CesanaBeverly Christensen

Christian Opportunity Center—staffCeleste CiproGillis ChapelaTrish ClaryRob ClaxtonArlene ConnorsDebra CookMaureen CorcoranSheila CordockMichael CruzJoseph CurllTom DanielsAdelaide DaskamLinda DaughtersTheresa DavisAndrea DixonYoucef DjedidMichael DodgeMarcia DollerschellRick DorianMary Jo DoughertyBarb DriscollPeg DuBordArt DykstraAndrea EastenLinda EdlerMickey EdwardsTena EekhoffSteve EidelmanElaine EhlersEmily EnnisRichard FarnsworthLori FeldkampJennifer FiduraBarbara Fisher

Jackie FlissAlissa ForleoPenny FreemanMargaret Peggy FrerichsJoanne FritzKimberly GaddieGayle GauvreauLaura GleskGeorge Gordon, Jr.Michael GradyDonna GrayLeslie GreenJane GreeneCatherine GuyerMandy HackettDeb HainesLance and Ellen HainesPenny HanceAnn HardimanNancy Silver HargreavesSheri HarperJames HarrisWayne HarveyTerry and Gayle HaughCatherine Hayes Sam HedrickCynthia HendersonFrank HermsenCarolyn Risley HillJulie HindersElizabeth HollandLynette HollowayJohn and Kathleen HolstRobert HookRoxanne HugleyBonni Humes

Karen HurstAdrienne HurtKen HyndmanDiane IagulliBarbara JacksonDee JacksonSamuel JenkinsJeffery JensenElbert Johns, Jr.Roberta JohnsonThan JohnsonBeverly and Douglas JonesKent C. JonesJeff JowdyJudith KatzDeena KeysJanis KingMike KivitzJohn Paul KlynKim KoellnerAaron KoskampAmy KovalcikAmy KovaleskyPeter KowolskiKelley KrinkeAlice LackeyTom LaingStacy LamontagneEd LampichShirley LapourKaren Lou LasleyEric LathamLinda LaulMeghan LauniusCarolyn James LawlerKaren Lawrence

Karly LePageClark and Estelle LeslieTammy LiefTom LewinsDee LindDenise LittrellKenneth LovanScott LivengoodDavid LosinnoJennifer LoweHenry H. LynchKaren MacDonaldCindy MahanPatti ManusDaniel MarcumDonna MaravichSandi MarisdotterMary MasonP. Dennis MattsonLauren MayThomas McAlvanahMelia McBurneyJerri McCandlessDiane McCombCrys McCuinJames McGuireBrian McDermottMargaret McHenryMark McMainsCharles McMillianBrandi McNealMary MeindersCarmen MelingJune MelodiaJim MesnarDavid Meyer

Pat MezykBrenda MiedemaNancy MiringoffCarol MitchellJudy MitchellSue Henning-MitchellGraydon MollAlicia MontesB.J. MorganKaren MorganDale A. MorrisseyJohn MorrisSilvia MoscanielloJulie MoultonLynn MurrellJoan NagyChristy NelsonDevin NelsonJason NelsonDoris NibbelinkBrenda NiessMario ObertisKimberly O’ConnorPennie O’ConnorDonna OhlingEdith OlsenJoseph OnyejoseJudith OppewallOpportunity Village StaffPAR (various individuals)Marsha PatrickDenise Patton-PaceGloria PearsonLaurel PeckenpaughTerry Allen PerlChristina Peters

Jim PierceSusan PiersonRenee PietrangeloThais PietrangeloBarbara PilarcikJ. Christopher PilleyLinda PolakovicNancy PotterJayne PressCarlissa PuckettCynthia Allen de RamosLaura RedmanTeresa RensStephen D. RichardRobert RichardsCheri RickabaughEkaterina RiggCarolyn Risely HillAngela RogersTerry J. RogersFred RomkemaSharon RookNancy RoseJeff RutledgeBarbara RothenbergBrenda SchillingFred SchillingTom SchmuraSteve SchoenerTempest Teri SchoenfelderLinda SchroederRelna SchroederBetty SchutteSusan ScottTamara ShafferDaniel Shaw

Victoria ShawDeana SkardaBelinda SmithLarry and Sue SnyderWendy SokolChris SparksTamara SparksCarla SpringerAndrea StanleyDannie StockmanNicole StoutGeorge SuessTimothy G. SullivanNancy SummersTheresa SumrellDavid SvedmanKathy SwedishJanette SwindellPatrick TateLisa TennysonJune ThompsonLinda TimmonsDave ToeniskoetterBruce TorgersonGreg TorresJodi TukkerDiane TurnerRoberta Van ArkelJohn Van DonselaarBrenda Van HalBeth Van MaanenRalph Van RheenenJennifer Van WykBetty Van ZeeNancy Van ZeeDorothy Vande Kieft

Judith Veale

Debra Veenstra

Eleanor Veldhuizen

Sharon Ver Meer

Connie Voegeli

Brenda Vos

David Waller

Carol Walsh

Andrea Wallwork

Anne Walp

Dawn Ward

Nina Watkins

Cindy Wiemold

Mark Wiesel

Mathew Wetzel

Victoria Whitehead

Ruth Whitworth

Lori Wiele

Debbie Wiese

Kati Willey

Beatrice Williams

Sherry Williams

Terri Williams

Karla Winegar

Susan Witchery

Mercedes Witowsky

Nancy Young

Janet Zimmedy

Linda Zimmer

Robyn Zippilli

Individual NAC Contributors

COLLABORATE. ADVOCATE. INNOVATE.2011 ANCOR National Advocacy Campaign Report

Chairman: Ken Lovan, ResCare, Inc.Lynn Berman, YAIMike Decker, LibertyDaryn Demeritt, ResCare, Inc.Ann Hardiman, New York State Assn. of

Community & Residential Agencies (NYSACRA)

Sandra Hedrick, RHA/Howell Care Centers, Inc.

Than Johnson, Champaign Residential Services, Inc.

Peter Kowalski, John F. Murphy Homes, Inc.

Martin Lampner, The ChimesSarah Magazine, The MENTOR NetworkMonalisa McGee, MosaicJoe McRae, HeartShare Human Services

of New YorkBarbara Merrill, The MENTOR NetworkKimberly Opsahl, Indiana Assn. of

Rehabilitation FacilitiesJoshua Rubin, YAI

Jeremy Schupbach, Alliance ColoradoWendy Sokol, Soreo in Home Support

Services, LLC Anne Starr, Mosaic Karin Stockwell, Dungarvin

Minnesota, LLCDave Toeniskoetter, Dungarvin, Inc.James Weeks, Sunrise Community, Inc.

ANCOR StaffRenee Pietrangelo, CEO; Alexandra

Bradley; Jocelyn Breeland; Suellen Galbraith; Mary Pauline Jones; Marsha Patrick; Jessica Sadowsky

ConsultantsJeff Britt, McGuire Woods Consulting, LLCDiane McComb, State Provider

Association LiaisonDenise Patton-Pace, Patton-Pace

Communications

Workforce Advisory Council

www.youneedtoknowme.org

collaborate. advocate. innovate. · innovate.” that is both a tribute and acknowledgement to our...

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