2013-14 annual report

2013–14 ANNUAL REPORT

SAVOUR LIFE

METASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERALRASMUSSEN'S ENCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR MYOPATHY COMPLEX HYPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULMONARY VEIN STENOSIS CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYPE II CHROMOSOME 1P DELETION SYNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DEFECT MULTIPLE CONGENITAL ANOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATHY CP DISSEMINATED ENCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCARCINOMA GLUTARIC ACIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSORY AUTONOMIC NEUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEART INFANTILE FIBROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOME 15 JOUBERT SYNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S DISEASE LENNOX-GASTAUX CP LIMB GIRDLE MUSCULAR DYSTROPHY LIVER FAILURE POSSIBLE NEONATAL HEMOCHROMATOSIS METASTATIC MEDULLOBLASTOMA MITOCHONDRIAL ENCEPHALOPATHY NECROTIZED BOWEL WITH RESECTIONS PLUS CARDIAC ARRHYTHMIA NEURONAL CEROID LIPOFUSCINOSIS OMPHALOCELE PULMONARY HYPERTENSION OSTEOGENIC SARCOMA WITH LUNG METASTASES PALLISTER-KILLIAN SYNDROME PANHYPOPITUITARISM PARTIAL DELETION CHROMOSOME 20 PULMONARY ARTERIAL STENOSIS SEVERE HYPOGLYCEMIA PROPIONIC ACIDEMIAC BERNARD-SOULIER SYNDROME PULMONARY HYPERTENSION RELAPSED METASTATIC GASTRIC SQUAMOUS CELL CARCINOMA SLE ROSAI-DORFMAN DYNDROME END STAGE SMA TYPE 2 STATIC ENCEPHALOPATHY SEIZURE DISORDER SYSTEMIC SCLEROSIS TRISOMY 18 WALKER-WARBURG SYNDROME WILLIAM'S DISEASE ACRANIA MULTIPLE CONGENITAL ANOMALIES AICARDI SYNDROME AICARDI-GOUTIERES SYNDROMEAIDS WITH HIV ENCEPHALOPATHY ALOBAR HOLOPROSENCEPHALY AMINOACID DECARBOXYLASE DEFICIENCY AML AMINOACID DECARBOXYLASE DEFICIENCY ANGIOSARCOMA OF HIP WITH PULMONARY METASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERAL RASMUSSEN'S ENCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR MYOPATHY COMPLEX HYPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULMONARY VEIN STENOSIS CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYPE II CHROMOSOME 1P DELETION SYNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DEFECT MULTIPLE CONGENITAL ANOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATHY CP DISSEMINATED ENCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCARCINOMA GLUTARIC ACIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSORY AUTONOMIC NEUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEART INFANTILE FIBROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOME 15 JOUBERT SYNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S DISEASE

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“As a physician at Canuck Place Children’s Hospice I see just how much

courage it takes our children and families to face each new day. At Canuck

Place we do everything we can to make each day special. My work is very

rewarding. Every day I witness how much families love one another.”

—DR. AMY MABIECanuck Place Children’s Hospice


Family is home. Comfort is found.

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Courage lives here …

At Canuck Place Children’s Hospice (CPCH)

we give children and families the tools

to live in the moment, in the hospice and

in their home communities. We believe

the end of life should be lived as fully as

the beginning.

We are British Columbia’s recognized

pediatric palliative care provider. Over

560 newborns, children and teens with

life-threatening illnesses and their families

receive care from CPCH through outreach

programs and two provincial hospice

locations; Vancouver and Abbotsford.

Services include clinical respite and family

support, pain and symptom management,

24-hour phone consultation support and

in-house clinical care, art and education,

recreation therapy, grief and loss counselling

and end-of-life care.

Through the investment of the community,

our talented team, and over 325 energetic

volunteers, we make a lasting diff erence in

the lives of children and the families who

love them.

Canuck Place Children’s Hospice (CPCH) is making a difference for BC’s children and

families. Canuck Place provides care for children with life-threatening illnesses in

our two provincial hospice locations and in their home communities, empowering

them to celebrate each moment, build precious memories and manage the pain and

symptoms of their illnesses and conditions.

As British Columbia’s recognized pediatric palliative care provider, we play an

important role in the health care system. Not only do we provide end-of-life care,

but we work with families throughout the entire span of a child’s life from the point

of diagnosis through the progression of the illness. Canuck Place provides education,

art, recreation therapy, counselling including music and play therapy, much-needed

family and child respite, and 24-hour clinical care.

The specialized range of services and professional, dedicated staff support the

challenging transition families must make as they face the tragic and unnatural

circumstance of losing their child. Programs extend to the entire family; parents and

siblings receive counselling support.

Our expert clinicians care for over 160 different diseases and conditions and

administer over 150 medications. In 2013-14 we provided specialized care to over

560 children and families from across BC. Our organization faced a challenging

increase of 77% deaths on program and a 31% increase in nursing and physician

consults in patients’ homes, in hospitals and over the phone to parents and caregivers

who needed support from across BC.

How do we meet the growing need? Our goal is to double the amount of provincial

pediatric palliative care beds as we are currently only meeting 20-25% of the

provincial need. We know we can’t do it alone. Canuck Place and the children and

REPORT FROM OUR BOARD CHAIR + CEO2013-14 Annual Report Letter from John Nicola and Margaret McNeil

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families we care for are so thankful for the donors, supporters, partners and friends

who generously have lifted this organization and are committed to our future.

This last year saw us celebrate the Phase Two opening of our Four-Phase plan at

our second provincial pediatric palliative care hospice, Dave Lede House, located

in the Fraser Valley. Our community services

team is providing recreation therapy, grief and

loss counselling and nursing consults in patient

homes, in hospitals and in the community. Our

Fraser Valley development team is hard at work to furnish the Abbotsford location to

move into Phase 3 in 2016 where we will see partial opening of our patient beds and

family suites.

Gratitude is a theme at our organization. We see it every day in the faces of parents,

siblings and children in our care. It inspires the entire staff at Canuck Place. Our

nurses, physicians, counsellors, therapists and support team are grateful to witness

the love of a family and the special moments that emerge through challenging,

life-altering experiences. We are grateful for the incredible donor community that

has allowed CPCH to thrive for almost 20 years and fill a critical role in BC’s care of

children with life-threatening illnesses.

At Canuck Place we believe the end of life should be lived as fully as the beginning.

Especially for BC’s kids with life-threatening illnesses and the families who love them.

With gratitude,

JOHN NICOLA MARGARET McNEIL

Board Chair Chief Executive Officer

The end of life should be lived as fully as the beginning.

THE ROSS FAMILY FINDING HOPE “How do you raise a child you know is

going to die?” asks mother Amy Ross.

“How do you fi nd comfort and meaning

and build a life and a family around

such a reality? Why us? These were the

questions my husband and I pondered

after our little Gabrielle was born in

October 2010 with a terminal genetic

disorder called I-Cell. Canuck Place fi lled

us with so much hope.

“After three years of being with us,

Gabrielle passed away at Canuck Place.

Hope is not a long life. We couldn’t

cure our daughter. All we could do was

love her and be the best parents we

could be. Hope was knowing we had

somewhere amazing to take Gabrielle

for respite and for her fi nal days in

peaceful surroundings with her three

brothers. She taught her three brothers

about empathy and she helped us,

and everyone she met, put things into

perspective. Hope was knowing that my

little angel was having her pain managed

and fi nding peace even when she was

sick. Hope for our family now is receiving

bereavement counselling from Canuck

Place and fi nding meaning and steps to

move forward through incredible loss.”

Grief + Loss Counselling

The Ross Family.

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THE ISMIRNIOGLOU FAMILY FULFILLING A WISH “In December 2009 Joshua was just

11-years old when he was diagnosed

with rhabdomayosarcoma. After a relapse

in 2012, Canuck Place managed Joshua’s

care. Joshua’s pain and symptom care

stays at Canuck Place meant we could all

be together. Our daughter Monica was

able to keep up with her schooling and

spend time with her brother Josh.

“When Joshua’s illness progressed in

2013, he really wanted to be in our home

surroundings. Canuck Place provided

home visits from nurse practitioners to

support the medical care in our home.

CPCH nurse Camara came the day Josh

was having a hard time breathing. She

took over Josh’s medical needs and I was

able to just be his mom and hold him in

my arms until his last breath. This was

the greatest gift I ever received. Canuck

Place allowed Josh to be in his home,

his happiest place, and we were able to

support Joshua in his wish to be where

he was happiest.”

End-of-Life Care

The Ismirnioglou Family.

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THE TRESCHOW FAMILY SURVIVING A CRUSHING LOSS Jill and Michael’s son Sam was diagnosed

with Duchenne Muscular Dystrophy

(DMD) at the age of seven and the family

spent many years receiving respite

and pain and symptom management

through Canuck Place. The family

received devastating news when Sam

was diagnosed as a teen with cancer.

The family, including younger brother

Paul, spent the last weeks of Sam’s life at

Canuck Place.

“I know, deep in my heart, the big role

that Canuck Place plays in the recovery

of parents and families from a terrible

emotional, mental, and physical toll,” says

Michael. “Losing one’s child is a crushing

loss. Watching your child go through

two terminal illnesses is an unspeakable

anguish. The care Canuck Place provided

Sam and our family during his illness and

death still ripples out in our lives. How

sweet for Jill and I to now watch our

other son fi nding his way, becoming ever

more magnifi cent. How much do we

owe Canuck Place for that sight?

It’s incalculable.”

RespiteCare

Sam Treschow and his younger brother, Paul.

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THE HERNANDEZ FAMILY DOING EVERYTHING THEY CANLittle Mason Hernandez was born with

a brain stem abnormality and Moebius

Syndrome, an extremely rare congenital

neurological disorder. He and his parents,

Reynaldo and Melanie along with

younger brother Perry, were referred to

Canuck Place in 2011 for respite and pain

and symptom management.

“Canuck Place guides us through all

of Mason’s care,” Reynaldo explains.

“Everything from care plans to

medication. It gives us a sense of

normality.” Perhaps most importantly,

Canuck Place has allowed this family to

be just that – a family that spends time

together. “Canuck Place has given us the

opportunity to enjoy time with Mason,”

says Reynaldo. “It’s also let Mason just be

a kid, instead of a kid with special needs.

As a father, I often think, ‘Am I doing

everything I can for him?’ Canuck Place

has given me that confi dence. It has

allowed us to be parents and a family.”

Pain + SymptomCare

The Hernandez Family.

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$1.7MILLION

HOCKEY FAN LEAVES A LEGACY FOR CANUCK PLACE Canuck Place Children’s Hospice is

extremely honoured to recognize June

Adeline Butler, who generously left a

legacy of over $1.7 million to benefi t

children with life-threatening illnesses

and their families.

June was born in Ontario and passed

away in February 2011 in Vancouver.

Her passions included reading, giving

books to others (especially children) and

listening to Vancouver Canucks games

broadcast by Jim Robson on the radio.

June’s incredible gift will be used to

support various pediatric palliative care

programs at CPCH such as our resource

library and expressive therapies, and will

ensure that Canuck Place can continue

to provide a vital lifeline to BC’s children

and families in their greatest time of need.

Our heartfelt thanks and utmost

gratitude to June Butler and her family.

If you are interested in leaving a legacy

gift in your will to Canuck Place, please

contact us at 604.731.4847.

Become strong from broken places.

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TEAM CANUCK PLACE – KIDS CARING FOR KIDS Making memories is an important part of

Canuck Place Children’s Hospice and the

spirit and creativity of one 12-year-old

has helped many families do just that.

When Jenna Prem was eight-years-old,

she had an opportunity to give to an

organization of her choice for Christmas.

Jenna carefully selected CPCH and

immediately set to work on a bake

sale. By canvassing her local grocery

stores around Cloverdale for donated

baking supplies, Jenna and her mom

teamed up and, over the course of three

weeks, baked Nanaimo bars, chocolate

haystacks, shortbread and tiger butter.

These home-baked treats were in turn

sold and hand-delivered to friends and

family by donation and hundreds of

dollars were raised.

Jenna however did not stop there.

With the funds raised, she took her

contribution one step further by

purchasing a variety of gift cards for the

movies, restaurants and activities like

Build-A-Bear to provide outings for the

families of CPCH to make memories

together.

This annual tradition, now in its fi fth year,

has garnered her classmates support

and they will all be baking to help have a

larger impact.

“Canuck Place lets families be together,”

said Jenna. And with Jenna’s help,

families on the provincial program can

create new memories together in the

process. Thank you, Jenna, for being a

Change Maker for CPCH.

Canuck Place Recreation Therapist, Amy Wightman and Team Canuck Place’s Jenna Prem.

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COMMITTED TO MAKING ONCE-IN-A-LIFETIME EXPERIENCES POSSIBLEM&P Mercury and the Annual Sea Ray Rendezvous

For the team at M&P Mercury, business

is all about people and giving back to

the community. Partnering with Canuck

Place six years ago, M&P Mercury have

hosted the Annual Sea Ray Rendezvous

for their customers on the Labour Day

weekend. Since 2007 this event has

raised over $70,000 for Canuck Place.

“Once you have visited Canuck Place and

seen the invaluable work that happens

daily to bring families together to cherish

every moment available and then also

to help those left behind to move on

with their lives after great tragedy, what

else can a person do but off er support?”

asks Bob Pappajohn, President of M&P

Mercury. “It is heartbreaking to know that

some children have such short lives and

so little time to experience the world and

be with their family and friends. Canuck

Place fi lls a deep need to make every

moment count for every child they care

for, and this is absolutely worth supporting.”

Creating this event and helping Canuck

Place is all about teamwork for employees

at M&P Mercury. “We work in an industry

that sells experiences and brings people

together” says Pappajohn. “Taking time

to give back to Canuck Place reminds us

that we are working towards a common

purpose of helping people make the most

of all the little moments of their lives.”

Team M&P Mercury.

MONTHLY DONOR PROVES A LITTLE GOES A LONG WAYFor over 17 years Penticton resident

Darlene Edvall has committed funds

each month to Canuck Place. When she

fi rst began giving she was a single mom

with two kids in their early teens. She

didn’t have a lot to give. “Things were

tight,” said Darlene. “I was watching TV

and Trevor Linden made a heartfelt plea

for support. Number 16 was something

of a hero to me, and when he spoke

about the kids and their determination

to fi ght on, to enjoy their lives day by

day, and the courage of both the kids

and their families, I thought about how I

would feel if one of my kids was sick and

was living at the hospice.”

Darlene understood the power of long-

term commitment. “At fi rst, I was just

going to give a single donation, but I

decided to make it monthly, no matter

how little I could aff ord, because the need

would be ongoing. I also thought it would

be easier for Canuck Place as a non-

profi t to plan for the future knowing they

would be receiving a regular donation.”

Darlene started and, with her big heart,

just keeps on giving. She made the

decision to select Canuck Place as a

benefi ciary of her will. “I believe in the

work they do at Canuck Place and how

they help children and their families. I

want to continue to help, even when I

am no longer around to make monthly

donations. As I said, the need will sadly,

always be with us, and Canuck Place

helps ease the pain, fears and makes the

unbearable a little easier to bear. This

is such a worthwhile purpose, I can’t

imagine not wanting to help.”

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Darlene Edvall of Penticton, BC.

Photo Credit: Rachael Ryder

“We can feel so weak and small

and broken, yet sometimes

experience breakthroughs

of insight, light, and wholeness

which seem incongruous

with our loss and grief. One mom said to me, ‘My

life has changed forever — for the good — because

of the suff ering of my daughter,

and I don’t know how to get

other people to understand me. I have felt most

alive in the worst time of all!’’

—ERIC STEPHANSONCPCH Spiritual Care Leader

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SUCCESS IS ABOUT GIVING BACK AT PLENARY GROUPThe corporate culture at Plenary Group

dictates that being successful in today’s

world carries a great responsibility to

provide for others. The Plenary Group

strives to give back to the community in

many ways, fi nancially or through their

employees volunteering their time.

“Supporting Canuck Place is particularly

important to us,” says Paul Dunstan,

President of the North American

operations of Plenary Group. “Facing a

serious illness is the most challenging

issue any person has to handle. When

a child has to go through it, it is both

an honour and an opportunity to

provide support to those children and

their families through a wonderful

organization like Canuck Place.”

Paul’s wife, Kate, has been a volunteer

with the Gift of Time Committee and

at the hospice. “We have four children

of our own,” says Paul. “Canuck Place is

particularly close to our hearts. We went

through a diffi cult period when one of

our children was quite ill. Kate and I were

deeply appreciative of the support we

received from the community and want to

give back in whatever way we can.”

Paul Dunstan, President of Plenary Group NA and his wife and CPCH volunteer, Kate.

PROVINCE OF BRITISH COLUMBIA: IT TAKES A TEAM TO MAKE CARE POSSIBLESince 2000, fi ve years after Canuck Place

opened its doors, the Province of British

Columbia through the Ministry of Health

and other ministries, provided annual

grants to support a portion of the clinical

care programs provided to children and

families across BC.

These funds have fl uctuated between

20% and 35% of Canuck Place’s

overall funding and had a positive impact

on CPCH delivery of services at no cost

to families who are in need of

specialized care.

It takes a team to make pediatric

palliative care a reality in our province.

Through the fundraising eff orts of

our organization and the support of

generous individuals, organizations,

and corporate partners, Canuck Place

delivers exemplary quality care essential

for children with life-threatening

illnesses.

Canuck Place is grateful for the support

of the Province of British Columbia.

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TAKING ON CHALLENGES: CANUCK PLACE PHYSICIANDR. PETER LOUIEPediatric palliative care specialist,

Dr. Peter Louie plays a key role in caring

for patients at Canuck Place and also

coordinates the rotations of fellows,

pediatric residents and medical students.

His smile and genuine care is always felt

inside the hospice.

Dr. Louie was drawn to Canuck Place

because of the multi-disciplinary team

structure and challenges of intricate care.

“I really enjoy the complexity of pediatric

medicine we encounter through the

conditions and diseases presented by the

children on our program. I am so grateful

for the opportunity to get to know the

children and their families through the

months and sometimes years they are on

the Canuck Place program.”

Dr. Louie has been deeply moved by

the commitment and dedication of the

families who care for their children. “The

complexity of care of the children on

our program is daunting even to most

physicians. When the kids are not in our

care they are in their own homes, all

over this province. Parents must provide

care 24/7. I am always aware that as a

physician, my shift ends, but for families

this is not the case. That is why the

Canuck Place program is so important

for these children and their families.

Canuck Place plays an important function

in the health care system through the

care provided to children with life-

threatening illnesses.”

Being a part of the Canuck Place clinical

team has taught Dr. Louie important

skills. “From our nursing and counselling

team I have learned how to better

communicate to families during

challenging situations. I have learned

to be both comforting, to be present

and to provide hope in unimaginable

circumstances.”

WH

O W

E A

RE

VOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERSVOLUNTEERS

A parent is forever.

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GIVING BACK AND SHAPING A FUTURE: CANUCK PLACE VOLUNTEER MATT SMYTHFrom an early age, Matt Smyth knew

he wanted to help others. He patiently

waited to apply and at 16 was on board

with Canuck Place Children’s Hospice.

This is when he discovered his passion

for the organization.

“In my fi rst year, I volunteered once every

other week but I realized early on that

just wasn’t enough,” said Matt. “From that

point forward, we made sure I was here

every week.”

Matt has fi lled his weekly shifts over

the past six years with a variety of roles

including Peer Volunteer, Family Volunteer

and now as a Bereavement Volunteer.

To move into this role, Matt completed

34 hours of additional hospice training –

a signifi cant commitment to CPCH that

also demonstrated his eagerness to learn

and expand his skill set.

Since completing his training, Matt is

regularly involved in the bereavement

groups, assisting in activities that help

get siblings on the program to open up.

For Matt, the biggest reward is watching

them grow throughout their year in the

bereavement program.

“These kids spend 99.9% of their time as

the only kid they know who has had a

brother or sister die. When they enter this

program, instead of being isolated in that

experience, they are in a room full of kids

that are in a similar situation and there is

comfort in that.”

The time Matt has contributed through

his volunteer work has also shaped his

future. This year he will enter the medical

program at UBC. Through his work at

CPCH, Matt realized the importance for

him to enter a profession where he can

have a direct impact on the people he

cares for. “I feel so thankful to volunteer

for Canuck Place. It’s made such an

impact on my own life.”

WH

AT W

E D

O

CANUCK PLACE CHILDREN’S HOSPICE — PHASED PLANDAVE LEDE HOUSE — ABBOTSFORD

2013-14 2014-15 2015-16 2016-17 2017-18

1 2 3 4 1 2 3 4 1 2 3 4 1 2 3 4 1 2 3 4

1 Building Completion/Takeover

2 Community Centred Services

3 Community and Partial In-patient Services

4 Full Operations

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CANUCK PLACE CHILDREN’S HOSPICE — PHASED PLANDAVE LEDE HOUSE — ABBOTSFORD

2013-14 2014-15 2015-16 2016-17 2017-18

1 2 3 4 1 2 3 4 1 2 3 4 1 2 3 4 1 2 3 4

1 Building Completion/Takeover

2 Community Centred Services

3 Community and Partial In-patient Services

4 Full Operations

PHASE 1 BUILDING TAKEOVER January 2014 — COMPLETED

PHASE 2 COMMUNITY CENTRED SERVICES

Phase 2 of Canuck Place Children’s Hospice – Dave Lede House — Abbotsford on the Dave Lede Campus of Care began in spring of 2014.

During Phase 2 the hospice began operating community-centred services. That means consultation visits by physicians, nurses and counsellors in hospitals and homes, individual and group grief and loss support, and recreational therapy for children and families registered in the program.

Children and families will continue to have support from the Vancouver location, including access to hospice admissions, and the 24-hour phone consultation support.

PHASE 3 COMMUNITY AND PARTIAL IN-PATIENT SERVICES 2016

Phase 3 of the Province’s second pediatric palliative hospice in Abbotsford will include the progressive opening of an additional 9 patient beds for children and families in BC. Initially, Canuck Place will operate 4 of these beds.

Children and families will be admitted for stays for respite and family support and pain and symptom management.

PHASE 4 FULL SERVICES 2017

Phase 4 will see full occupancy and operation of all programs at the Abbotsford location. With the second hospice operating full services, Canuck Place will have 18 patient beds and 9 family suites available to care for our Province’s children and families through the two locations.

Finding

pea

ce in

str

ug

gle

. Mem

ories are made.

WH

AT W

E D

O

QUADRANT 1 QUADRANT 2

Life-threatening conditions for which curative treatment may be

feasible but can fail.

Examples:· cancer· irreversible organ failure

Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in

normal activities.

Examples:· cystic fi brosis· HIV/AIDS

QUADRANT 3 QUADRANT 4

Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over

many years.

Examples:· neurodegenerative· metabolic diseases

Irreversible but non-progressive conditions with severe disability susceptible to health complications and premature death.

Examples:· anoxic brain injury· severe cerebral palsy

DISEASE QUADRANT

OUR PROGRAM

Canuck Place Children’s Hospice is British Columbia’s recognized pediatric palliative

care provider. Children who are cared for at Canuck Place have the following

diseases and conditions:

A FAMILY JOURNEY AT CANUCK PLACEFamilies who have a child diagnosed with life-threatening illness have unique

challenges and paths. This illustration depicts a possible family journey and the

programs and care Canuck Place provides.

• Life-threatening diagnosis

• Newborns to 19 years old

• Referral to CPCH

• Eligibility reviewed

• Admission and intake to CPCH

• Child-centred, family-focused — integrated clinical team planning and care

• End-of-life care

• Memory making

THE INVESTMENT

A lifetime of diff erencefor families facing

unimaginable circumstances

• Recreation therapy

• Counselling, play and music therapy

• Education and art

• 24-hour medical consultation phone line

• Mobile clinical care team

1

2

• 24-hour in hospice clinical care

• Pain and symptom management care

• Respite for families in our family suites — care for children on our clinical fl oor

3

4

5

• Bereavement and loss counselling for parents, siblings and families — for as long as support is needed

• CPCH family events

6

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CPCH family events

FRASER HEALTH

VANCOUVER COASTAL HEALTH

INTERIOR HEALTH

VANCOUVER ISLAND

NORTHERN HEALTH

OUT OF PROVINCE+ UNKNOWN ADDRESSES

264

129

76

51

28 19

CHILDREN + FAMILIES ON CPCH PROGRAMBY HEALTH REGION: 2013

FRASER HEALTH

VANCOUVER COASTAL HEALTH

INTERIOR HEALTH

VANCOUVER ISLAND

NORTHERN HEALTH

OUT OF PROVINCE+ UNKNOWN ADDRESSES

264

129

76

51

28 19

CHILDREN + FAMILIES ON CPCH PROGRAMBY HEALTH REGION: 2013

CLIN

ICA

L OU

TCO

ME

S

CHILDREN AND FAMILY ON CPCH PROGRAM BY BC HEALTH REGION: 2013

CNS CONDITION

NEUROMUSCULAR

ONCOLOGY/CANCER

CHROMOSOMAL/MULTI-ORGAN

METABOLIC/BIOCHEMICAL

CARDIOPULMONARY

IMMUNOLOGIC/INFECTIONS

OTHER

27%

17%

17%

16%

11%

8%

2% 2%

DIAGNOSTIC CATEGORIES FOR CHILDRENON CPCH PROGRAM: 2013

CNS CONDITION

NEUROMUSCULAR

ONCOLOGY/CANCER

CHROMOSOMAL/MULTI-ORGAN

METABOLIC/BIOCHEMICAL

CARDIOPULMONARY

IMMUNOLOGIC/INFECTIONS

OTHER

27%

17%

17%

16%

11%

8%

2% 2%

DIAGNOSTIC CATEGORIES FOR CHILDRENON CPCH PROGRAM: 2013

Unco

nditional h

ug

s. Taking

chan

ces.

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DIAGNOSTIC CATEGORIES FOR CHILDREN ON CPCH PROGRAM: 2013

MET

AB

OLI

C/B

IOC

HEM

ICA

L

0

5

10

15

20

25

30

ON

CO

LOG

Y/C

AN

CER

CO

NG

ENIT

AL

SYN

DR

OM

ES

NEU

RO

MU

SCU

LAR

IMM

UN

OLO

GIC

-IN

FEC

TIO

NS

CN

S C

ON

DIT

ION

CH

RO

MO

SOM

AL/

MU

LTI-

OR

GA

N

CA

RD

IOP

ULM

ON

AR

Y

122

7

10

1819

26

TOTAL DEATHS ON PROGRAM BY DIAGNOSTIC GROUP 2013-14

TOTAL DEATHS2013 – 14: 85(Compared to 48in 2012 – 13 FYE)

77%

INCREASEIN DEATHS

CLIN

ICA

L OU

TCO

ME

S

2010

PH

ON

E CO

NSU

LTAT

ION

S

Nu

mb

er of C

on

sultatio

ns

IN-H

OM

E + H

OSP

ITAL

CO

NSU

LTAT

ION

VISIT

S

0

200

400

600

800

1000

1200

1400

2011 2012 2013

CLINICAL PEDIATRIC PALLIATIVE CARE MOBILE CONSULTATIONS: 2010-2013

There were 1,262 consults in-home,

in-hospital, and via phone in 2013 by

CPCH pediatric palliative care physicians

and advanced practice nurses. CPCH

provides care and support for families

all over the province, remote and urban

locations – just where families need

help the most.

Fulln

ess of h

um

anity. Livin

g in

uncertainty.

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inty

ert

yy.

EXPERIENCES TO REMEMBER

718

260

Attendance by bereaved families at CPCH counselling programs in 2013

Attendance at CPCH bereavement support group in 2013 by siblings who had losta brother or a sister

BEREAVED SIBLING SUPPORT GROUP ATTENDANCE

BEREAVED SIBLING AND PARENT GROUP SUPPORT

The work of the counselling team is to

provide support to children and families

through all the diff erent stages of their

personal journey. Using skills from

the disciplines of social work, spiritual

care, expressive therapies (art, play

and music) and recreational therapy,

the counselling team works to come

alongside children and family members

in a way that is supportive of their

relationships and background.

Depending on each family’s unique

circumstances, members of the

counselling team off er many diff erent

forms of support. Many Canuck Place

parents report that participation in the

support groups decreases their feelings

of stress and isolation.

CLIN

ICA

L OU

TCO

ME

S

Canuck Place Children’s Hospice’s recreation therapy Summer in the City, Teen Camp and Family Camp programs provide

opportunities for children with life-threatening illnesses, their siblings and parents to participate as a family in adventure

activities such as waterparks, ziplining, visits to farms and bug zoos and ceramic painting (to name a few). Summer in the

City takes place across BC in the Okanagan, Victoria, Vancouver, Abbotsford, North Vancouver and Chilliwack. Teen Camp

and Fall Family Camp take place in Squamish.

EXPERIENCES TO REMEMBER

2013-14 CHILDREN, FAMILY + SIBLINGS PARTICIPATION IN CAMPS AND SUMMER IN THE CITY PROGRAM

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REPORT FROM THE AUDIT + FINANCE COMMITTEEDuring the fi scal year ended March 31,

2014 we were very close to achieving

our general fundraising targets and

extremely fortunate to have received

a special $2 million grant from the

Province of British Columbia in addition

to ongoing funding from the Ministry

of Health. CPCH is also grateful to

be the benefi ciary of bequests from

the estates of individual supporters.

Receipt of several signifi cant one time

bequests was the primary reason our

total revenue exceeded our budgeted

revenue by $1.5 million for the year.

We have again demonstrated our

ability to keep expenses under tight

control which resulted in our actual

operating expenses coming in $260,000

less than budget. We recognize the

need for substantially higher levels of

revenue generation in the near future

to support the signifi cant increases in

expenditures that will be necessary to

operate our second provincial hospice

in Abbotsford. Achieving this will allow

us to provide our services to a greater

proportion of the children and families

of BC who need them.

Our budgeted surplus for year ending

March 31, 2014 was $298,000. However,

with unexpected one-time bequest

revenue of $1.5 million and expenditure

savings of $260,000, we ended the year

with a surplus of just over $2 million.

Carrying forward this surplus will assist

us in moving forward with our four-

phased plan to make Dave Lede House

in Abbotsford fully operational.

CPCH continues to develop sustainable

fundraising programs using multiple

strategies, events and donor

development. All funds generated are

carefully stewarded and operational

plans and expenditures are controlled to

ensure we operate within the capacity

of our revenue generation.

R. THOMAS BURLEY, FCAChair, Finance and Audit CommitteeTreasurer, CPCH Board of Directors

JOAN HILL, CADirector of Finance, Facilities and IT

Life

is n

ot

mile

sto

nes

— it

is m

om

ents

.

FINA

NC

IALS 2

013

–14

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FINANCIAL HIGHLIGHTSSTATEMENT OF FINANCIAL POSITION 31 MAR 2014 31 MAR 2013

ASSETS Current assets $5,922,347 $6,046,930

Capital assets $15,962,552 $11,763,502

TOTAL ASSETS $21,884,899 $17,810,432

LIABILITIES + NET ASSETS

Current liabilities $2,896,047 $3,660,459

Obligations under capital lease 51,086

Deferred capital contributions 11,532,608 7,015,569

Net assets 7,405,158 7,134,404

TOTAL LIABILITIES + NET ASSETS $21,884,899 $17,810,432

STATEMENT OF OPERATIONS

REVENUE

Donations $7,381,502 $6,874,409

Province of BC 4,081,682 1,996,655

Canuck Place Children's Hospice Foundation 130,000 136,765

Interest and other 112,050 114,912

TOTAL REVENUE 11,705,234 9,122,741

EXPENSES

Staffi ng costs (including physicians, nurses, other) 6,652,755 6,095,520

Direct program expenses 1,913,101 1,880,870

Marketing and promotion 132,297 91,674

Regulatory, administration and other 489,585 426,984

Amortization 446,742 301,534

TOTAL EXPENSES 9,634,480 8,796,582

Contributions to Canuck Place Children's Hospice Foundation 1,800,000 496,306

SURPLUS / (DEFICIENCY) OF REVENUE OVER EXPENSES $270,754 $(170,147)

The complete Canuck Place Children’s Hospice Society fi nancial statements audited by KPMG LLP Chartered Accountants and from which this summary is extracted, are available upon request and on www.canuckplace.org. As all charities are required to do, we report additional fi nancial information to the Canada Revenue Agency in our annual tax return.

CANUCK PLACE CHILDREN’S HOSPICE SOCIETY

FINAN-CIALS

FINA

NC

IALS 2

013

–14

UNAUDITED FINANCIAL HIGHLIGHTSSTATEMENT OF FINANCIAL POSITION 31 MAR 2014 31 MAR 2013

ASSETS Current assets — investments $6,021,990 $4,172,122

TOTAL ASSETS $6,021,990 $4,172,122

Net assets $6,021,990 $4,172,122

TOTAL LIABILITIES + NET ASSETS $6,021,990 $4,172,122

STATEMENT OF OPERATIONS

REVENUE

Donations $150,570 $151,865

Contribution from Canuck Place Children's Hospice Society 1,800,000 496,306

Interest and other 51,277 56,131

TOTAL REVENUE 2,001,847 704,302

Regulatory and administration 21,980 13,973

Contribution to Canuck Place Children’s Hospice Society 130,000 136,765

SURPLUS OF REVENUE OVER EXPENSES $1,849,867 $553,564

CANUCK PLACE CHILDREN’S HOSPICE FOUNDATION

“ Children want to live, to experience new things, to discover friendships which matter; they are best supported through play or schoolwork or outings which give opportunity for relational support and friendship. The most important element of care in a hospice for children is the quality of relationships. This reflects an essential spiritual value of what it is to be human.”

—CPCH COUNSELLOR

SOURCE OF DONATIONS: 2013–14

DONATIONS

PROVINCE OF BC

INTEREST + OTHER

SOURCE OF FUNDING: 2013–14

64%

35%

1%

*CANUCKS FOR KIDS FUND

PROVINCE OF BC

PLANNED GIVING

INDIVIDUAL,CORPORATE

+ COMMUNITY

ANNUAL GIVING

GIFT OF TIME GALA

INTEREST + OTHERCFKF

SOURCE OF DONATIONS: 2013–14

35%

23%

15%

11%

9%

6%

1%*

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CANUCK PLACE CHILDREN’S HOSPICE SOCIETYSOURCE OF FUNDING: 2013–14

FINA

NC

IALS 2

013

–14

CLINICAL CARE NURSING+ PHYSICIANS

FOOD SERVICES + HOUSEKEEPING

FACILITIES + GARDEN

COUNSELLING

VOLUNTEER SERVICESRECREATION THERAPY

69%

10%

8%

7%

3% 3%

Through all stages of a child’s illness,

an individual program is designed to

meet the needs of each family. Services

include 24/7 physician and nursing

support and consultative services,

end-of-life care, pain and symptom

management, respite care, school, music

and play therapy, recreation therapy and

counselling. Use of funds for patient care

costs include the following:

USE OF FUNDS FOR PATIENT CARE: 2013–14

Learn to be comfortable —

being u

ncom

forta

ble.

10%

FOOD SERVICES+ HOUSEKEEPING• Provide nutritional and dietary meals for the

children and families

• Ensure the hygienic needs of the children and families are met

• Provide additional comfort and support to

family members throughout their stay

69%

CLINICAL CARE NURSING+ PHYSICIANS• Clinical care nursing

• Physicians

• Respite

• Pain and symptom management

• Medicine, medical supplies, pediatric medical equipment

• Clinical mobile consultations

• 24-hour BC-wide patient care hotline

8%

FACILITIES + GARDEN• Providing a home-like, comfortable

atmosphere

• Fully wheelchair accessible

• The residence is surrounded by beautiful gardens

3%

VOLUNTEER SERVICESCanuck Place volunteers provide care and support in the following areas:

• Family volunteer

• Peer volunteer

• Reception volunteer

• Kitchen volunteer

• Garden volunteer

• Indoor/Outdoor maintenance volunteer

• Housekeeping volunteer

• Volunteer driver

3%

RECREATIONAL THERAPYRecreational therapy is an immensely important aspect of Canuck Place’s integrated care.

• Full-time recreational therapist

• Exciting and age-appropriate excursions for the children

• Equipped vehicles to transport childrenin wheelchairs

• Excellent on-site play and recreational facilities

• Snoezelen room — a multi-sensory room

7%

COUNSELLINGCounselling services are available to parents, siblings, loved ones and the child, to assist them in fi nding the courage and resources to cope with their challenges both during the child’s illness and after their child dies.

• Counselling and grief support

• Spiritual care

• Social work

• Expressive therapies

• School program

• Art program

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Learn to be comfortable —

being u

ncom

forta

ble.

“The thing I love most about Canuck Place is that the whole family is cared for by the whole staff and the volunteers.”

—CPCH PARENT

THANK YOU

SUP

PO

RT

Canuck Place Children’s Hospice gratefully acknowledges the following organizations and individuals for their generous support of CPCH programs and services in the 2013-14 fi scal year.

*DECEASED

GIFTS FROM ORGANIZATIONS

$1,000,000 +

Dave Lede Family Charitable Foundation

Ledcor Group of Companies

Province of British Columbia

$500,000 – $999,000

Canucks For Kids Fund

$100,000 – $499,999

Brookside-Hershey Canada Inc.

TELUS

Trans-Continental Textile Recycling Ltd.

Under The Same Sun Foundation

Variety — The Children’s Charity

YVR for Kids

$50,000 – $99,999

BC Bakery & Deli Foundation

Goldcorp

H.P. Construction Ltd.

London Drugs Foundation

PricewaterhouseCoopers

RBC

Rempel Bros. Concrete Ltd.

Richmond Auto Mall

Snow Cap Enterprises Ltd.

True Direction Foundation

$25,000 – $49,999

Apex Exteriors Ltd.

Ecotex Healthcare Linen Service Inc.

The Giving Tree Foundationof Canada

HomeLife Benchmark Realty

Lafarge Canada Inc.

May and Stanley Smith Charitable Trust

Nicola Wealth Management Ltd.

Nuheat Industries Limited

Plenary Group

Tamara Foundation

TD Bank Financial Group

The Sutherland Foundation Inc.

The Valley Feed Bag, Inc.

W J Weaver Foundation

Westmont Hospitality Canada Limited

$10,000 – $24,999

Aldergrove Financial Group

ATI Telecom International

BCLC

Bedrock Granite Sales Ltd.

BMO Bank of Montreal

Canadian Direct Insurance

CIBC Children’s Foundation

CIBC

Country 107.1

Empire Masonry Ltd.

Gallagher Bros. Contractors Ltd.

The Howard Foundation

Mardina Construction Ltd.

Musgrave Group

Pan Pacifi c Whistler

Patrick Roberge Productions Inc.

Playtime Gaming Inc.

RBC Foundation

Ritchie Bros. Auctioneers

Robert L. Conconi Foundation

Summit Sheet Metal Ltd.

Super Save Group

The J.W. McConnell Family Foundation

The Radcliff e Foundation

UPS Foundation, Inc.

The Vidalin Family Foundation

Vitalus Nutrition Inc.

Wal-Mart Canada Corp.

$5,000 – $9,999

593123 Alberta Ltd.

Accenture Ltd.

Allmar Social Committee

AMB Holdings Ltd.

The Andrew Mahon Foundation

Aqueduct Foundation — Nighthawk Fund

Canucks Sports & Entertainment

Celtic Cross Charitable Foundation

Clearbrook Iron Works

Costco Wholesale Canada Ltd.

Edgewater Casino Limited Partnership

Electronic Arts (Canada) Inc.

Epic Entertainment Corp.B

ow

be

fore

the

myste

ry that is life. Live in

radical am

azemen

t.

THANK YOU

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Farm Credit Canada

General Glass Industries Ltd.

HAB Family Foundation

Little Hugs Big Hearts Foundation

MacKay CEO Forums

Marshall Aerospace Canada Inc.

Morguard Investments Limited

Naked Eye Enterprises

Provincial Employees Community Services Fund

RBC Dominion Securities Inc.— Abbotsford Branch

Retirement Concepts

The Sook Ching Foundation

The Djavad Mowafaghian Foundation

The R K Grant Family Foundation

Vancouver Minor Hockey Association

Vancouver Sun Children’s Fund

W.D.I. Services Ltd.

Westminster Savings Credit Union

Weyerhaeuser Co. Ltd.

$1,000 – $4,999

98 Corporate Group Resource Ltd.

A. Nurmohamed & Associates Inc.

Adera Foundation Society

Alexander Dubichev Alianz Development

Aquilla Foundation

Army Navy & Air Force Veteransin Canada

Ashcroft Old Timers Hockey Team

BC Hockey Benevolent Foundation

Best Buy Canada Ltd.

BMO Investments Inc.

Bosa Properties (104) Inc.

Bradner Homes Ltd.

British Columbia Institute of Technology

British Columbia Wall & Ceiling Association

Canadian Western Bank

Centaur Products Inc.

Centennial Foodservice

CGI Information Systems & Management Consultants Inc.

Compugen Inc.

Dayhu Investments Ltd.

Deloitte & Touche Foundation Canada

DIGI Canada Inc.

Division 15 Mechanical Ltd.

Double Deck’d Poultry Ltd.

Dynamic Funds

Enterprise Paper

F & E Strumpski Foundation

F. K. Morrow Foundation

Facet Advisors LLP, Chartered Accountants

The Fairmont Chateau Whistler

Fasken Martineau DuMoulin LLP

Fidelity Investments

First West Foundation

FirstService Residential BC Ltd.

Floorindo Inc.

GLI Test Labs Canada ULC

Greygates Foundation

H.Y. Louie Co Ltd.

HealthPlus Pharmacy

Holland America Line

Innovative Fitness Consultants Inc.

Island City Baking Co.

Jason Soprovich Realty Inc.

Jericho Foods

Jones Food Store Equipment Ltd.

K&H Dispatch Co. Ltd.

Ken and Eva Hansom Fund

Kerrisdale Equipment Ltd.

Kintec Footlabs Inc.

Labatt Breweries of Canada

Ledgir House Ltd.

Dr. Dennis Lee Inc.

Leon Judah Blackmore Foundation

M & L Painting Ltd.

Macquarie Group Foundation Limited

Mary Kay Cosmetics Ltd.

McKesson Foundation

MDA Corporation

Meadowlands Horticultural Inc.

Mini-Load Disposal Ltd.

Napaja Enterprises Ltd.

NAV Canada

Noise Digital Inc.

Normandie Poultry Farm Ltd.

North American Telecommunications Group

Olympic Dairy Products Ltd.

One City Window Cleaners

Onni Property Management Services Ltd.

Opus DaytonKnight Consultants Ltd.

Ouest Business Solutions Inc.

Pace Processing

Pemberton Leasing Services Ltd.

Phoenix Structural Design Ltd.

Piteau Associates Engineering Ltd.

Puratos Canada

R.C. Purdy Chocolates Ltd.

RBC Capital Markets

RBC Global Asset Management

ReMax Sabre Realty

RepliCel Life Sciences Inc.

Revera Retirement LP

Rogers Foods Ltd.

Rolfe, Benson LLP

RT Agencies Inc.

Rupert Coast Sort Ltd.

Russell Investments Canada Ltd.

Saputo Dairy Products Canada

Saxbee Insurance

Dr. Jaspreet S. Sidhu Inc.

Signode Canada

Simplifi ed Insurance Solutions

Sirocco Mining Inc.

Spectra Energy

Stanley Security Solutions

Stryker Canada

THANK YOU

TD Waterhouse/Private Client Group

Textile Trimmings

The Children’s Oral Care Centre

The Christina and Hedley G. Ivany Charitable Foundation

The Feldman Agency

The Mahon Rowland Foundation

The Original Cakerie Ltd.

The Sports Exchange

Thomas and Lori Burley Family Fund

True Blue Wire Products Inc.

Truist

Vancity

Vancouver Canucks Limited Partnership

Weissach Performances Ltd.

Western Pacifi c Enterprises GP

Westside Tom Gradecak Realty

White Raven Enterprises Inc.

WoodWorks The Hardwood Floor Company Ltd.

WorksafeBC

WTPM Consulting Services Ltd.

Zinetti Food Products

(1) Anonymous Donor

GIFTS IN KIND

$50,000 – $99,000

The Vancouver Sun

$10,000 – $24,999

Anderson Air

Blackhills Winery

Canterbury Coff ee Food Service Ltd.

Hawksworth Restaurant

North American Telecommunications Group

The Vancouver Courier

The Westin Bayshore

$5,000 – $9,999

Air Canada Foundation

Holland America Line

Lugaro

Miss604

Radiant Communications

Sony of Canada

Vancity Buzz

Westmont Hospitality Canada Limited

Willy van Yperen Jewelers Ltd.

Yaletown Laser

$1,000 – $4,999

All Seasons Mushrooms Inc.

Allstar Holdings Inc.

Atkinson’s

Bacci’s

Blue Shore Credit Union

Boboli

Canadian Closet

Century Plaza Hotel and Spa

Carpetizing

Fairmont Pacifi c Rim

False Creek Healthcare Centre

Fred Welsh Ltd.

Helijet International Inc.

IPAC Chemicals Ltd.

Long Beach Lodge Resort

Millson Technologies

Misch Shop Inc.

Pandora Vancouver

PetroKleen

Photos by Kathryn

Poignant Moments Books— Ernest Poignant

Predator Ridge

Pro Organics

SCA Tissue

Shaw Communications Inc.

Shylee Rose Jewelry

SK Sanitary Specialties Mfg. Ltd.

Something Fishy Aquariums

The Plaza Galleries

The Room at Hudson’s Bay

The Secret Garden of Woodbridge Ponds

TidyTrailers.com

Westjet

Whistler Blackcomb

GIFTS FROM INDIVIDUALS

$100,000 – $499,999

Joan Proudfoot and GSP Enterprises Ltd. in memory of Garry Proudfoot

$50,000 – $99,999

James and Kimberly Allard

The Herberts Family in memory of Dr. Lewis Thorne Herberts

(1) Anonymous Donor

$25,000 – $49,999

Ryan and Cindy Beedie

Carole Clugston

Mr. and Mrs. W.E. Couling

Niki and Chris Cumming

Bjorn and Rochelle Moller

John and Claire Nicola

$10,000 – $24,999

Howard and Gail Addison

David and Susan Ainsworth

Steven and Karen Bruk

Jim and Laurie Case

Amar and Natallie Doman

Neil Duke and Candace Yip

Paul and Kate Dunstan

Bruce and Sandra Gibson

Allan Kiss

Kevin Layden and Kristy Brinkley

Lucy Prentice

John and Susan Rose

Jason and Monica Soprovich

Talal and Christi Yassin

(2) Anonymous Donors

$5,000 – $9,999

Ken Alexander

Deb and Don Breen

Ron and Ann Brinkhurst

Mike Burdick

David and Deborah Cottrell

Raymond C. George

Abdul and Shamim Jamal

Shafi q and Azmina Karmali

Brett Knelson

Wes and Brenda Koop

Stanley Lang

Lyle Langlois

Clive and Susan Lonsdale

Marie MacDonald

Mike and Leah Mansell

Grant and Jane Maxwell

Paul Stevenson

Sylvie Vanderkerkhove

Colin and Jane Warner

Dr. Eric Webber and Dr. Farah Valimohamed


$1,000 – $4,999

Elaine Adair

Sheial Aikey

Bruce and Donna Aitken

Lloyd and Hilda Algar

Dr. Haneef Alibhai and Yasmin Alibhai

James and Jean Allan

THANK YOU

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Dr. Shazhan Amed and Salim Popatia

Neil and Colleen Andersen

Barb Anderson

Chris Archbold

David and Heather Ashley

Margaret Barbeau

Keith Begg

Cameron Belsher and Sarah Lee-Belsher

Dave and Amber Bezahler

Paul Billing

Alessandro and Nicole Bitelli

Carolynn Blair

Joshua Blair and Andrea Martin Blair

Jason and Rebecca Bond

Kristen Boon

Robert and Kathy Brady

Tejinder Brar

Iain and Marni Brinton

Thomas and Lori Burley

Louise Burns

Ronald and Penny Bush

David and Tamara Bustos

Dr. Andrew Campbell

Trevor Carr

Stuart and Christie Case

Juliette Cavazzi

Paul and Ellen Challinor

Jeff and Bettina Charpentier

Derrick and Carolyn Cheyne

Len Chin

Malcolm and Bonnie Christie

Mike Cinnamond and Jan Watson

Gary and Marilyn Corbett

Curtis Cousins

Wes Coutu

Kenneth Cowie

Alex and Jodi Cristall

Greg and Dhana Cruickshank

Janice Dalzell

Frank and Petra Danielson

Martin Davis

Alceo DeAnna

Stanley and Rani Dee

Jasdeep Dhaliwal

Charles Douglas

Russell Scott Dowling

Phil and Sally Dreaver

Beverly Duke

Sylvester and Maria Dye

Helen Edwards

Farrokh Elmieh

Michael and Wendy Epp

Patricia Evans and John Stonier

Earl Everall

Ron and Diane Exley

James and Katherine Fenton

Rob and Melissa Fiorvento

Jan Fisher

Albert Fok

Kate and Nicholas Furber

Dave and Charu Gadhia

Chris Gailus and Jane Corrigan

Dave Gardiner

Michael Geist and Amanda Harradine

Christopher Hyland

Michael Gellard

Richard Genovese

Ross Gibson

Ken Gordon

Robert Gordon

Barbara Grantham and Andrew Wilkinson

Kelly Graves

Kristyna Gustavson

Gurdev Hayre

Richard Hermann

Dr. Mark Hill and Joan Hill

Pascal Hirsig

Bob Hole

Florence Hungerford

Bill and Francine Iles

Kenneth Issel and Elaine Weber

Richard Jaff ray

Curtis Johansson

Family of Ethel Johnson

Brad Johnstone

Hassan Karim

Rahim and Lyle Karim

Andrew and Corri Kaweski

Scott Keast

Charlotte Kelly

Brent and Laura Kennelly-Mohr

Tim and Annalisa King

Daren Kinnaird

Stephen Knight and Jodi Shapray

John and Amanda Kump

Dr. Jonathan Leipsic and Karly Leipsic

Emily and Darren Lazare

David and Teresa LePoidevin

Jeff rey Lim

Annemarie Locher

James and Bev Logan

Franco Lombardo

Dr. Peter Louie

Georgina L. and Andrew B. MacDonald

Iain and Michelle MacDonald

Dr. Jas Madahar and Baksho Madahar

David Marshall

Shirley Marshall

Neil Martens

Margaret McNeil

Dr. Ailve McNestry

Carey Melnichuk

Herbert and Maria Menten

Dr. Andrew B. Merker

Allison Mick

Brad and Marion Miller

Gary and Barbara Miller

Richard and Margaret Moignard

Betty Montpellier

David Mueller

Marianne Muir

Steve Munford

Timothy and Liana Murphy

Rodney Muse

Dr. Stephen Nantel andCatrina Nantel

Kevin and Carla Nash

Murray and Patty Neilson

C M Ng

Dennis and Leanne Ohman

Carole Olsen

Caroline Ong

Baljit and Mady Parmar

Stefano Passaglia

Colleen Patrick

Annabel Perry

Samuel and Margaret Perry

Dr. Gerald Philippson

Christopher and Shelley Philps

Hilda Pipke

David Porte

Ron Potter

Ellen M. Powell

William Greg Pritchard

David and Isobelle Purdy

Courage and resilience. Dream and discovery.

THANK YOU

John and Sylvia Quilty

Jean Rae

Richard C. Raymond

Amy Rempel

Kirsten Ridd

David and Pixie Riddle

Joan Robertson

Ronald and Terry Robinson

Sean Salem and Saeedeh Salem

Ethel Samoleski

Clem Samson

Nick Sandquist

Salim Sayani

Geoff and Cindy Scott

Ken and Ruth Scott

Hussein and Nadia Shivji

Richard Short

Randall Siteman

Leo Smyth

Dr. Casey Souter and Kathy Souter

Alan and Margaret Souther

Michelle Sutter and Robert Ellmore

Dr. Suretha Swart

Christopher Thompson

John Tomlinson

In memory of George Tough and his Grandson Andrew Homeniuk

Howard and Loula Trottier

Peter Tsiandoulas

Ross and Barbara Turnbull

Warren and Twyla Wall

Trent and Emma Walsh

Michael and Monique Watt

Murray West

Edmund and Sieu Lan Wong

Judith Woods

Ruth Wright

Eddie Yen

Maurizio and Natalie Zinetti


GIFTS IN KIND

$10,000–$24,999

Roswitha Byford

Jean Duguay

Richard Genovese

$5,000–$9,999

David Foley

Tanya Slingsby

Michael Tan

$1,000–$4,999

Ronald Cliff

Alex and Jodi Cristall

John Figliola

Bill and Betty Lou Fox

Reynaldo and Melanie Hernandez

Jas Hundal

Susan Kellof

Eugene Kwan

Dr. Christian Len

Harald and Sharlene Ludwig

Dr. Peter Lutsky and Shari Goldman-Lutsky

Cora MacDonald and Lawrence Roulston

Nav Nijjier

Babak Nurbakhsh

Joan Proudfoot

Grant Russell

Talal and Christi Yassin

ESTATES

We are honoured to recognizethe gifts received from the estates of the following individuals:

Fred Joseph Wharton

Bernice Linda Gibbeson

Constance Beatrice Davis

Donna Jean Campbell

Hansi Nissen

Helen Pincombe

Jacqueline Carol Joan Colville

James Lionel Williamson

Joan Ethelwyn Heriot

Josephine Lavina Perkins

June Adeline Butler

Lois Ellen Davis

Margaret Bain Sellars

Nicol Kohut

Verna Leonora Abear

William Alvin Ivey

Yaeko Suzuki

KEY COMMUNITY PARTNERS+ EVENTS

Abbotsford Heat Game Night Fundraiser

ACG & BIV Business Leaders Golf Tournament

Allmar’s Annual Charity Golf Tournament

APEGBC Greater Vancouver Invitational Golf Tournament

Ariel’s Amazing Race

Avid Fitness Centre Blackberry Mile Fundraiser

BC Bakery and Deli Foundation Golf Tournament & Dinner

BC Ferries — Tsawwassen Terminal Employee Fundraiser

BC Ranch Cutting Horse Association Calcutta Bridleless Donation

BC Shopping Centre Association Annual Charity Golf Tournament

Berry Industries Golf Tournament

Boilermakers Lodge 359 Q-Ride

British Columbia Electrical Association Luncheon

Canaccord Capital Corporation Jeans Day

Carter’s Kids Care

CMHDS Charity Classic Golf Tournament

CNR Employees Charity Chest Fundraiser

Crofton House School Holiday Market Fundraiser

Dreams Do Come True

Edith Cavell Elementary School Winter Carnival

Edward Burns Memorial Golf Tournament

Eric Hamber Secondary School Diversity Club

FVREB & REBGV Commercial Golf Tournament

GeneROCKsity Concert for Canuck Place

Harmonies of Hope

Holt Renfrew Shopping Night

HomeLife Charity Golf Classic

Iceman Racing Team and Tim& Nancy Nemeth Fundraiser

Jamie Booth Golf Classic

Jewels & Jacks Fundraiser

Kiwanis Club of Chemainus & Crofton Donation

Kiwanis Club of Vancouver Donation

Ladies Auxiliary Canadian Legion#6 Donation

M&P Mercury Annual Sea Ray Rendezvous

Matthew McNair Senior Secondary School Fundraiser

Maxxam Analytics Employee Fundraiser

MD Cosmetic & Laser Clinic% of Sales Donation

Melissa Santos Haircutting Fundraiser

MHPM Project Managers Trivia Night Fundraiser

THANK YOU

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Mike Gibson Memorial Golf Tournament

Mitzvah of Valuing Philanthropy Program

Miz Mooz Boutique Fundraiser

NAV Canada Golf Tournament

Nelson Hotel’s Uptown Sportsbar 50/50 Draw

Noah Yelizarov Memorial Hockey Tournament

Oakridge Centre Fountain Coins Donation

Outdoor Resorts Indio Owners Sunshine Invitational

ParaEducators’ Network of BC Donation

Parisotto’s Your Independent Grocer “Give a Little, Help a Lot” Fundraiser

PwC & Richmond Auto Mall Annual Charity Golf Tournament

RE/MAX Sabre Realty Annual Charity Golf Tournament

Revera Retirement/Fleetwood Villa Butterfl y Release

Robo Cam Services Canucks Suite Fundraiser

Sahara Sisters Group Fundraising Dinner

Stanley Security Solutions Employee Fundraiser

Strokin’ It Wild Golf Tournament

The Alma Mater Society — UBC Fundraiser

The Giggle Dam Dinner Theatre Fundraiser

The Historic Dewdney Pub Thursday Night Fundraiser

Vancouver Real Estate Forum Speakers Donation

Vista D’oro Farms Langley Winery Fundraiser

WMABC Golf Tournament

THE DONOR BILL OF RIGHTSCANUCK PLACE CHILDREN’S HOSPICE VALUES THE SUPPORT OF DONORS

AND THROUGH OUR ORGANIZATIONAL MEMBERSHIP ASCRIBES TO THE

AFP DONOR BILL OF RIGHTS:

· To be informed of the organization’s mission, of the way the organization intends to use donated resources, and of its capacity to use donations eff ectively for their intended purposes.

· To be informed of the identity of those serving on the organization’s governing board, and to expect the board to exercise prudent judgment in its stewardship responsibilities.

· To have access to the organization’s most recent fi nancial statements.

· To be assured their gifts will be used for the purposes for which they were given.

· To receive appropriate acknowledgement and recognition.

· To be assured that information about their donation is handled with respect and with confi dentiality to the extent provided by law.

· To expect that all relationships with individuals representing organizations of interest to the donor will be professional in nature.

· To be informed whether those seeking donations are volunteers, employees of the organization or hired solicitors.

· To have the opportunity for their names to be deleted from mailing lists that an organization may intend to share.

· To feel free to ask questions when making a donation and to receive prompt, truthful and forthright answers.

REGISTERED CHARITY NUMBERS

CANUCK PLACE CHILDREN’S HOSPICE SOCIETY13386 7523 RR0001

CANUCK PLACE CHILDREN’S HOSPICE FOUNDATION86370 4920 RR0001

Canuck Place is a Registered Canadian Charity with the Canada Revenue Agency(CRA) www.cra.gc.ca and operates as a Society and a Foundation.

As a Registered Charity, Canuck Place is required to fi le an annual information return with the CRA, a portion of which is available to the public, and must meet certain requirements of the Income Tax Act concerning expenditures and activities.

BOARD OF DIRECTORS

2013-14 CPCH SOCIETY

JOHN D. ROSE (CHAIR)

R. THOMAS BURLEY

MICHELLE CYBULIAK

NEIL DUKE

LAURA EDWARDS

KATE FURBER

BARBARA GRANTHAM (RETIRED)

KRISTYNA GUSTAVSON

GORD HUSTON

HELEN H. LOW

DARREN MILLARD

JOHN NICOLA

ANAR POPATIA

PATTI SCHOM-MOFFATT

GAVIN TOY

KEN VOTH

KATHERINE WHITTRED

2013-14 CPCH FOUNDATION

JOHN D. ROSE (CHAIR)

R. THOMAS BURLEY

NEIL DUKE

GORD HUSTON

JOHN NICOLA

PATTI SCHOM-MOFFATT

KATHERINE WHITTRED (RETIRED)

PRIVACY POLICYCanuck Place Children’s Hospice Privacy Policy

Canuck Place Children’s Hospice is

committed to protecting the privacy

of the personal information of its

employees, volunteers, members,

donors and other stakeholders.

Canuck Place values the trust of those

we deal with, and of the public, and

recognize that maintaining this trust

requires that we be transparent and

accountable in how we treat the

information that you choose to share

with us. Canuck Place is committed to

ensuring that all personal information

is properly collected, used only for the

purposes for which it is collected, and is

disposed of in a safe and timely manner

when no longer required.

We care about your privacy

Canuck Place is committed to protecting

the privacy and confi dentiality of your

personal information.

Canuck Place Children’s Hospice does

not sell, rent or trade our mailing lists.

We will use your contact information

to keep you informed of programs,

services, special events and funding needs.

However, if at any time you wish to

be removed from our mailing and/or

e-mail list, please contact us by

phone at 604.731.4847, by e-mail

[email protected] or by mail at

1690 Matthews Avenue, Vancouver, BC

V6J 2T2. Please allow 10 business days

for us to update your records. Charitable

Registration # 13386 7523 RR0001

We respect all donors’ wishes either to

have their name publicly associated with

their donation or to remain anonymous.

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Canuck Place Children’s Hospice accredited with Exemplary Standing by Accreditation Canada

Canuck Place Children’s Hospice was

accredited with Exemplary Standing by

Accreditation Canada; the highest level

of accreditation granted to healthcare

organizations, following an assessment

of the quality of its services with

nationally accepted standards.

Accreditation Canada is an independent,

not-for-profi t organization that sets

standards for quality and safety in

health care and it accredits health

organizations in Canada and around the

world. Organizations that are accredited

by Accreditation Canada undergo a

rigorous evaluation process. Following

a comprehensive self-assessment,

trained surveyors from other accredited

health organizations conduct an on-site

survey to evaluate the organization’s

performance against Accreditation

Canada’s standards of excellence.

Canuck Place programs and services

were assessed during a three day on-

site survey through the following sets

of standards: governance; customized

leadership; infection prevention

and control; hospice, palliative and

end-of-life services; and customized

management of medications. Canuck

Place was assessed against national

standards comprising of almost 400

applicable criteria and met all the

required organizational practices.

The report issued by Accreditation

Canada identifi ed many of CPCH’s

strengths including responsiveness

to change, new challenges and the

inclination toward innovation as

contributing factors to its recognition as

a leader in the fi eld of pediatric palliative

care. Research, best practices and

knowledge exchange were identifi ed

as strategic priorities and there is strong

evidence that focus and eff ort are being

applied to these areas.

BOARD OF DIRECTORS

2014-15 CPCH SOCIETY

JOHN NICOLA (CHAIR)

R. THOMAS BURLEY

MICHELLE CYBULIAK

NEIL DUKE

LAURA EDWARDS

KATE FURBER

KRISTYNA GUSTAVSON

GORD HUSTON

HELEN H. LOW

DARREN MILLARD

MARK MYLES

ANAR POPATIA

JOHN D. ROSE

PATTI SCHOM-MOFFATT

GAVIN TOY

KEN VOTH

KATHERINE WHITTRED

2014-15 CPCH FOUNDATION

JOHN NICOLA (CHAIR)

R. THOMAS BURLEY

NEIL DUKE

GORD HUSTON

PATTI SCHOM-MOFFATT

GAVIN TOY

JOHN D. ROSE (RETIRED)

“There’s two sides to it. You meet a lot of children that are sick, but then

you feel so fortunate that you get to meet all these special kids that

maybe don’t have a long time here. And they are brave. These children are tougher, more resilient, more joyful than any adult I have ever

met. Before we had Charlie Anne this was a world I didn’t want to

know anything about. But now I am here and I see the beauty of it, the

heartache and I am a better human being because of it.”

— CHERIE EHLERTCPCH Parent

“ We never give up on providing comfort for the kids on our program.”

— HAL SIDENCPCH Medical Director

“ I thought I’d never love again after my son died. Canuck Place helped me and I now know I can love a child again.”

— CPCH BEREAVED DAD

“ Accept children for who they are and allow them to teach us about what we do not know. Refrain judgement and be open to what they have to offer.”

– CPCH COUNSELLOR

“ At Canuck Place we see the offering we are bringing as bold. But we also know it must be humble as it is part of a greater journey of the child and family.”

– CPCH NURSE


“What I love about Canuck Place is appreciating every moment. Our families

live with courage every single day. Canuck Place is all about appreciating

every moment that a family has with their child and a child has with their family,

and creating opportunities for that to be the best that it can possibly be.”

—MARGARET McNEILCPCH CEO

CanuckPlaceChildrensHospice @CanuckPlace CanuckPlace @CanuckPlace

www.canuckplace.org

2013-14 annual report

Documents

p deletion syndrome

new day