survey!for!caregivers!&! special needs mom's … · 12/2015!! for sale: commercial van...
TRANSCRIPT
Proudly serving over 8,500+ families Since June 2010!!-- NOW Across all of Nebraska!!!
June is Father's Day
What's Where???
Important Tidbits for Families pages 2 - 6State-Wide page 6
Bellevue, Cedar Bluff & Columbus page 7Fremont & Grand Island page 8
Gretna & Hastings page 9Lincoln pages 10 - 15
Norfolk pages 15 - 16North Platte page 16
Omaha pages 16 - 24Resources for Families pages x
Classifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!! 402-327-2500
8055 O Street, Suite S110Lincoln, NE 68510
www.heartlandspeech.com
Find us on FACEBOOK too!
Check out any event
changes, after publication additions & MORE
at our blog:
www.ohanakidsnews.
blogspot.com
For more information, or advertising rates
please contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Edition #72 May 2016 ONE Nebraska Edition
Turn to page 3, to find our where
things are located in OKN!
!
A"Special"Sitter"was""inspired"by"our"ongoing"journey"of"parenting"our"
family,"which"includes"2"kids"with"special"needs,"&"we"
believe"that"our"experiences"can"help"you"experience"the"fullness"of"blessings"we"have"received"as"we"have"raised"our"
family."!
Services(Offered:(
Companionship(Services(
Personal(Care(Services(
Home(Helper(Services(!
For(More(Information(
Contact(Richard(Troia(
402@697@8400(x201(
(
See(“Our(Story”(on(Page(8(
!!
WE ARE HERE FOR YOU!
Call 402-915-0846 Or go online at
www.pedschiroomaha.com
To schedule your COMPLIMENTARY 15-minute Consultation, to see how we can help you!
!
Founded in 2014 to give every kid
the chance to reach their God given potential.
We specialize in
children with developmental, behavioral, & neurological struggles.
!
!
!outcomesMadonna’s Alexis Verzal Children’s Rehabilitation Hospital; the only hospital in the Midwest specializing solely in children’s inpatient and outpatient rehabilitation.
we put the most advanced technology, research and expert care behind one single mission: rebuilding lives.
402.413.3900 | madonna.org
SURVEY FOR CAREGIVERS & RESPITE CARE PROVDERS!!
If you are a Family Caregiver or a Respite Care Provider please type in the survey link below into your web browser and take part in our survey.
The University of Nebraska Medical Center-‐Munroe Meyer Institute in conjunction with the DHHS are conducting an evaluation of the Nebraska Lifespan Respite Care system. We anticipate that an evaluation will provide
information and insights into the system and help address possible challenges. We are looking at multiple factors including the need for respite services, access to services, family caregivers satisfaction and barriers.
Once you complete the survey, there is an option to fill out your personal information. This information will be used only as part of a raffle for the opportunity to win a $25 gift card. Your participation in the survey is
completely voluntary and all information provided will be kept confidential. If you have any questions please contact, Jolene Johnson at
[email protected] or Jennifer Harmon at [email protected]
Survey for Caregivers: https://www.surveymonkey.com/r/EnglishFamCaregiver
Survey for Respite Providers:
https://www.surveymonkey.com/r/EnglishRespiteProvider
C l a s s i f i e d s B u y , S e l l , T r a d e , G i v e A w a y o r N e e d & J o b s
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
DISCLOSURE: With ANY equipment specific to your child, O’Hana Kids News requests that you PLEASE have your PT/OT involved to ensure that it is a
To join our mailing list or just to contact us, check out our website at www.ohanakidsnews.com or email us as [email protected]
Used AFO’s and braces of any kind
Does your child have outgrown shoes, afo’s, braces, etc and they are sitting just
taking up space, then please email heather at [email protected] ,
or you can take them to Madonna, in Lincoln, to the Hangar Orthotics office,
and Jamie is the person they go to. The used equipment will be collected and distributed overseas via a local orthopedic
specialist who travels and fits children with this special equipment that is not
available to them. 12/2015
FOR SALE: Commercial Van
Wheelchair Lift
Purchased a van from local ESU, but do not need the lift out of it. Lift was only used a handful of times. Have pictures, and all the books that go with the lift. Lift was
$6500.00 new, selling for $1500.00 or best offer.
If interested please call 402-750-5098, and we can get pictures and more information to you if needed.
THIS SPACE
AVAILABLE
HELP WANTED:
Take A Break (TAB) is a respite and child abuse prevention program that meets the
first 2 Friday evenings of each month. TAB serves families in situations by providing relief from the ongoing
responsibilities of caring for loved ones with behavioral, medical or physical
challenges. The program meets at Grace Lutheran Church, 2225 Washington,
Lincoln, NE. To apply, please contact TAB Coordinator Mary Shada at 402-434-3494
or [email protected] 12/2015
RESPITE PROVIDERS NEEDED: Do you have the gift of service? Do you
want to help families in need? The Nebraska Respite Network is a statewide program funded through the Department of Health and Human Services. We are seeking Respite Providers who can help families take a break from caregiving.
There are volunteer and paid opportunities available. Free training can also be
provided. This is a STATEWIDE OPPORTUNITY!! For more information
contact Southeast Nebraska Coordinator Mary Shada at 402-434-3494 or [email protected] 12/2015
Easter Seals Nebraska is hiring
camp nurses and camp counselors for Summer 2016. Nurses can bring their family to stay with them at camp and participate in all camp
activities! Weeks of commitment for nurses are negotiable.
For more information contact Jami at 402-‐930-‐4053 or
[email protected] to apply visit
thevnacares.org/careers
INFANT STANDER NEEDED:
Looking for an infant stander, preferably with big wheels so the child can wheel
themselves around. Insurance not cooperating J Small or extra small size.
Thanks. 402-646-5357
FOR SALE:
6 cans of EleCare Infant formula, $175
contact us at [email protected] or 402-239-2522, can call or text 12/2015
NEEDED:
Looking for an adult scooter/wheelchair like the kind they have in Walmart (sort
of), if you have one or know of one PLEASE LET US KNOW!!
Camp Abilities Nebraska is a residential sports camp for youth ages 9 – 19 who are blind, visually impaired, or deaf-‐blind.
Applicants with experience in the areas of Adaptive Physical Education and Special
Education, or other relevant disciplines, are needed; staff orientation is July 16 & 17, Counselors are needed for July 16 – 22, 2016. Positions may fill up quickly, please apply as soon as possible, preferably by
March 15. A $150 stipend is offered for the week of camp. For more information, contact Vision Program Coordinator Kristal Platt at (402)498-‐6365,
[email protected] or visit http://www.boystownhospital.org/hearingservices/EducationalOutreach/Pages/Camp-‐Abilities-‐Nebraska.aspx Camp Abilities Nebraska is co-‐sponsored by Boys Town National Research Hospital & Outlook
Nebraska, Inc.
Looking for FREE
Adaptive/Medical Equipment? Check out Chrissy’s Closet on
Facebook!! For Families in the Lincoln Area, This is just an extension of an actual Equipment Closet at Handprints & Footsteps J
Where things are Located in OKN!
Classifieds page 2 Church Information page 3 – 6
Special Needs Trust Article page 7 Statewide pages 8 – 13
Swimming Lesson Information page 14 Camp Information page 15 - 17
Respite Information page 18 - 19 NFAPA Support Groups page 20
Church Information – LINCOLN
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Sheridan Lutheran Church, ELCA
6955 Old Cheney Road, LINCOLN 402.423.4769
www.sheridanlutheran.org
Sunday Service 9:45 am Worship Service*
*Interpreted for those who are Deaf or Hard of Hearing
Candlewood Church, LINCOLN Grace Methodist Church Building
2640 R Street, LINCOLN Corner of 27th & R
www.candlewoodchurch.org
Every Sunday Service 9:30 am Fellowship & Coffee Served
10:00 am Worship Service
All of these churches are Handicapped Accessible & are would love to have your
family included in their services!
Spring of Life Deaf Church 3336 N. 14th St, LINCOLN
[email protected] Find us on Facebook too
Every Sunday 9:00 am Sunday Service 10:15 am Sunday School
Ted E. Bear Hollow & Webinars page 21 Bellevue & Grand Island page 22
Hastings & Kearney page 23 Lincoln pages 23 – 32 Nebraska City page 32
Norfolk & North Platte page 33 Omaha pages 34 - 46
Papillion pages 47 - 48 Sioux City page 48
Faith Bible Church
6201 S. 84th St, LINCOLN
402.484.6020
www.faithbiblelincoln.org
Sunday Services 9:00 am Worship Service
10:30 am Worship Service * *Interpreted for those who are Deaf or Hard of Hearing
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Lincoln Berean 6400 South 70th Street, LINCOLN
402.483.6512 www.lincolnberean.org
Every Saturday Service 7:00 pm Worship Service
Every Sunday Service 9:00 am Worship Service*
*Interpreted for those who are Deaf or Hard of Hearing 10:45 am Worship Service
They also offer a one-‐on-‐one service for those families who
have children with special needs. You just need to call and talk with the church beforehand to ensure they have an appropriate person lined up to stay with your child at the service you would
like to attend. This is for Sunday AM Services only.
All of these churches are Handicapped Accessible
Church Information - Lincoln, Omaha, Neb. City
First Free Church
3300 S. 84th, St., LINCOLN
402-‐483-‐7635 www.firstfreelincoln.org
Sunday Services
9:15 am Worship Service 9:15 am Canopy Room
9:15 am Hand in Hand Sunday School 11:00 am Worship Service 11:00 am Canopy Room
First Free Church welcomes kids of any age with special needs. We provide Buddies for children who need more support in the Sunday School Classroom as well as Canopy Room for kids, PreK to 5th grade, who need less sensory stimulation.
We provide programming for children in both hours of our services. Hand in Hand is a Sunday School Class that meets for adults with intellectual
disabilities.
We also offer a free respite program for parents, called Masterpiece Respite R&R, that is offered bi-‐monthly.
Look under Lincoln Events for the next respite night. Upcoming is going to be in April!
QUESTIONS: Masterpiece Director, Danelle Mills at [email protected] or 402-‐261-‐8304
Church Information – Omaha, Nebraska City
What We Believe!
These churches all believe that Jesus Christ is the Son of God, who was sent to humanity to be the sacrificial lamb for all our wrongdoings, allowing for us to spend eternity with Him in Heaven.
The only thing that we as sinful humans need to do in order to be saved and spend eternity in
Heaven, is Repent of our sins, Acknowledge that Jesus Christ is our only way to Heaven, and ask
for His forgiveness.
That’s all you need to do, and each of these churches can help you with any questions you
may have about Salvation & the Gift of it through
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
This edition is FREE!!! Pass it along!! Join our mailing list, contact us at www.ohanakidsnews.com TODAY!!
Candlewood Church, OMAHA
Westside High School 8701 Pacific Street, OMAHA
www.candlewoodchurch.org
Sunday Service 9:30 am Fellowship & Coffee 10:00 am Worship Service
Calvary Community Church 273 S 63rd Rd., NEBRASKA CITY
402.873.7205 www.calvarycomunityonline.com
Every Sunday 9:00 am Sunday School 10:30 am Church Service
Westside Church – Dodge Rd. Campus
15050 W Dodge Rd, OMAHA 402.496.7833 or [email protected]
www.wchurch.tv
Every Sunday 8:00 am Worship Service 9:30 am Worship Service **
**Interpreted for those who are Deaf or Hard of Hearing 11:11 am Worship Service
Westside Church – ELKHORN Campus
Sempeck’s Bowling & Entertainment, 20902 Cumberland Dr., ELKHORN
402.496.7833 or [email protected] or online at wchurch.tv
Every Sunday 9:30 am Worship Service
Countryside Community Church
8787 Pacific Street, OMAHA 402.391.0350
www.countrysideucc.org
Sunday Service 9:00 am Classical Service 11:00 am Jazz Service
King of Kings Church
11615 I St, OMAHA 402-‐333-‐6464
www.kingofkingsomaha.org
Sunday Service 8:00 am Traditional Worship Service
9:15 am Contemporary Worship Service & Bible Studies 11:00 am Contemporary Worship Service
Crossroads Bible Church 17304 Hwy 1 -‐ MANLEY
Pastor Gary Wissel 402.499.4307 www.crossroadsbible.net
Every Sunday 9:30 am Worship
10:45 am Sunday School
1st Sunday of Every Month, Join us for a PotLuck meal after Sunday School!!
We also offer a FREE clothing outlet the last Saturday of each month. Just go to the website for more information, or call our Pastor. We
collect, good, used clothes, and put it out for families to just come get. It is absolutely FREE!
Church Information – CASS COUNTY
Faith Missionary Church 306 S. East St., WEEPING WATER Pastor Adam DeMike 402.267.7375 www.faithmissionarychurch.org
Sunday Service 9:30 am Sunday School
10:45 am Worship Service
What We Believe!
These churches all believe that Jesus Christ is the Son of God, who was sent to humanity to be the sacrificial lamb for all our wrongdoings, allowing for us to
spend eternity with Him in Heaven.
The only thing that we as sinful humans need to do in order to be saved and spend eternity in
Heaven, is Repent of our sins, Acknowledge that Jesus Christ is our only way to Heaven, and ask
for His forgiveness.
That’s all you need to do, and each of these churches can help you with any questions you
may have about Salvation & the Gift of it through Jesus Christ our Lord.
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April VernonChurch Information – Western Nebraska
This edition is FREE!!! Pass it along!! Join our mailing list, contact us at www.ohanakidsnews.com TODAY!!
Evangelical Free – Grand Island
2609 S. Blaine, Grand Island (308)382-‐1292 or [email protected]
www.gief.org
Every Sunday 8:15 am Worship Service 11:00 am Worship Service
Westside Church – Fremont
Midland University, Eppley Auditorium, 8th St. & Irving Ave, FREMONT
402.496.7833 or [email protected] www.wchurch.tv
Every Sunday 10:10 am Worship Service
Evangelical Free – Kearney 4010 7th Avenue, Kearney
(308)237-‐5968 or [email protected] www.kearneyfree.com
Every Sunday 9:15 am Worship Service 11:00 am Worship Service
Peace Lutheran, Columbus 2720 28th Street, Columbus
402.564.8311 or [email protected] www.aliveinpeace.org
Every Sunday 8:00 am Worship Service 10:30 am Worship Service
Saturdays 6:00 pm Worship Service
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
SPECIAL NEEDS TRUST INFORMATION
A “TRUE” SPECIAL NEEDS TRUST
A previous article discussed issues involved when a person wants to gift or bequeath assets to a person with
special needs. This article discusses an option available when a special needs person has his or her own assets that must be spent before he or she can become eligible for needs-‐based government benefits, such as Supplemental Security Income and state Medicaid.
A person with special needs may acquire assets from several different sources. As examples, he or she may have
accumulated wealth prior to developing a disability, received an inheritance from a family member, or received a sizable settlement or verdict as the result of a personal injury lawsuit.
Regardless of the source, a special needs person generally must spend his or her assets before becoming eligible
for needs-‐based government benefits. These assets may be spent for payment of medical and health care, personal enjoyment (e.g taking vacations), paying debts, or upgrading personal effects such as buying new furniture or an automobile more suitable for travel. However, a special needs person generally should not gift assets to other people or organizations because that will likely jeopardize eligibility for needs-‐based government benefits.
One exception to the general rule stated above is that a special needs person can transfer his or her assets to a
“Special Needs Trust.” As long as the Trust meets specific legal requirements, government agencies should not consider such a transfer to be improper and the special needs person should soon afterwards become eligible for needs-‐based government benefits (assuming the other eligibility criteria are met).
The biggest advantage to using a Special Needs Trust is
that the Trust’s assets could be used to “supplement” the lifestyle of the special needs person while still allowing him or her to be eligible for government benefits. For example, the Trust assets could be used to pay for companionship services, vacations, local travel expenses, job or vocational training, attendance at sporting events, upgraded living arrangements, new furniture and appliances, and medical items typically not covered by government benefits. On the downside, assets remaining in the Trust when the special needs person dies must be used to reimburse the state for Medicaid funds paid for the benefit of this person during his or her lifetime. Also, the Trust generally cannot give cash directly to the special needs person or, with several exceptions, pay for his or her food and housing.
A Special Needs Trust can significantly improve the life of
a special needs person by permitting his or her assets to supplement his or her lifestyle, even while maintaining eligibility for needs-‐based government benefits. There are many technical requirements and nuances that must be considered in establishing such a Trust. Be sure to visit with a competent estate planning attorney if a Special Needs Trust may be a helpful option for someone in your life.
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Page 8
v Sure Steps SMO Orthotics Sure Steps makes tennis shoes that are made to fit SMO’s. Contact them at www.suresteps.net for more information.
v Advocacy Page for Parent’s of Children with Disabilities Now parents are invited to check out a page on Mosaic’s website www.mosaicinfo.org/services/research/CollaborativeCorner.html make sure you check out this new resource available to all our families
v Apps for kids on the Autism Spectrum http://www.educatorstechnology.com/2013/07/a-‐wonderful-‐wheel-‐featuring-‐ipad-‐apps.html
v Community Support List http://65.166.193.134/IFTWSQL4/uwml/public.aspx this is a VERY old list of community supports through Nebraska 2-1-1. It has everything you may want for support. You do need to contact them to find out if those contacts are still a provider for community help.
v Website Listing Accessible Playgrounds This is something all us families who have children, in a wheelchair, with braces, with a walker, you name it, we need this to make our lives easier. Well here it is THANK YOU to a mom out there for sharing! http://apps.npr.org/playgrounds/ Oh and the best part? This is nationwide, not a Nebraska thing, so wherever you are, you can look it up!
v The F.I.L.M. Project: Family Images for Lasting Memories Family Images for Lasting Memories is comprised of professional photographers worldwide who gift portraits of families facing a life limiting illness. Families can request their FREE professional portrait session by visiting the website and selecting the “Request a Session” tab. Let us give you the gift of family images for your memories. The F.I.L.M. Project believes that in sharing our gifts we can inspire healing, faith, and hope to families during their most fragile times through providing professional family portraits to those who may have a limited time left with their loved ones due to cancer or another life limiting illness. Go to www.TheFILMProject.net or call us at 1-800-643-0353
v Webinar Training through Omni Behavior Heath Training with Dr. Pomeranz, heard good things about it. www.omnibehavioralhealth.com/training
v Wheels for the World (A project of the organization Joni & Friends) Do you have a used wheelchair, folding walker or crutches that you want to get out of your closet? How about just wheelchair parts, or cushions? Call us because we can find a good home for them, for persons with disabilities in other countries! Wheel for the World collects used manual wheelchairs, walkers, crutches, and wheelchair parts. After being collected, the items go to a prison, where they are refurbished and fixed. The wheelchairs, walkers & crutches are then delivered to children and adults in developing countries around the world. For more information, or to donate, contact Michelle Wiggins at 402-420-0587 or email at [email protected] v Specialized Training Of Military Parents (S.T.O.M.P.): Survey for Military Families regarding disabilities TO PARTICIPATE: Go http://surveymonkey.com/s/stompmedicaid DECRIPTION: S.T.O.M.P. is involved in a very important survey. We need your help to disseminate it. What is the survey, and why is it important? Military families face many challenges as part of their desire to assist others and defend our freedoms. It is complicated further when there is a family member with more significant needs. Needs that can’t always be met by the military. One such challenge is accessing Medicaid. Since there are many ways Medicaid can support an individual with disabilities it is one resource military families try hard to access. However, because of wait lists and other complications, these families can face barriers to access. STOMP has been asked to help identify some of the potential barriers as well as some possible solutions to this challenge. The Monkey Survey Link here will provide us with information to help in this process. We recognize it will take Legislative change both at the local and National level and this survey will help mold the language that will be put forth on this issue. We are not in this alone. We have the support of many from the Department of Defense and Military Caucus who are willing to move this forward. However, the voice of Families is essential and you have the ability to assure it is heard. Please disseminate this survey to all military families you know. They can either be active duty or retired. Share the link and ask them to do so as well. Take the survey yourself and know that your voice is part of this great effort. Find us on FACEBOOK at STOMP – Specialized Training of Military Parents (11/2014 valid)
v “Our Story” The Beginning of A Special Sitter As parents of four children, two with special needs, we understand your challenges in raising special needs children. As parents, our God given responsibility is to train our children for life. As a parent, you experience highs & lows as your children grown through the seasons of life. We learned early, that these highs & lows are amplified when you are caring for a child with special needs. You want to attend your children’s sporting events, teacher conferences, & musical performances. You want to continue to date your spouse, because a strong marriage creates a strong family. Like us, you probably have asked yourselves, “How do we create & maintain this balance when most of our time & energy is devoted to caring for our child with special needs?” Our desire is to help you answer that question so your family can experience the fullness of blessings available to your family because of your child with special needs. A Special Sitter was inspired by our ongoing journey of parenting our family & we believe our experiences can help you experience the fullness of blessings we have received as we raise our family. – Kimberly & Richard Troia, Co-Founders of A Special Sitter. Call 402-697-8400 x201 or [email protected]
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Statewide Information
www.p t cne .o rg
Occupational Therapy
Physical Therapy
Speech Therapy
Aquatic Therapy
• Feeding Difficulties
• Torticollis
• Autism
• Sensory Processing
• Speech Delays
• Apraxia
• CP
• Down Syndrome
• Chromosomal
Disorders
Specializing in the treatment of:
Open 6 Days a Week • No Long Wait Lists!
10601 S. 72nd Street, Suite 103Papillion, NE 68046
(402) 932-2782
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
The Nebraska Respite Network
Do you know about the Lifespan Respite Subsidy Program? This program pays for respite services (someone to come into the home to care for a person with special needs, to give the primary caregiver a temporary break). The program serves people of all ages. It is for people who are NOT receiving the services from another government program.
Who Needs This Program? Caregivers who need a temporary break from providing care to persons of any age, with special needs. Examples of special needs are developmental & physical limitations, emotional or behavioral disorders, chronic illness. Alzheimer’s disease & related health concerns, or persons at risk of abuse & neglect. Eligibility is based on income guidelines. HOWEVER, if you have expenses directly related to the disability, these can usually be subtracted
from the counted income. The person applying must have a caregiver. The program will provide up to $125 per client per month!!
How do I become a Respite Provider? How do I get qualified for the Lifespan Respite Subsidy Program?
What if I need help finding a respite provider, so I as a Caregiver, can have a break? Contact the Nebraska Respite Network by contacting a Respite Network Coordinator in your area (see below) or call 1-‐866-‐RESPITE
Eastern Service Area Serving Douglas & Sarpy
Coordinator Ellen Bennett (402)996-‐8444
Southeast Service Area Serving Thayer, Jefferson, Gage, Otoe, Cass, Pawnee, Richardson, Johnson, Nemaha,
Lancaster, Saline, Fillmore, York, Seward, Polk, Butler & Saunders
Coordinator Mary Shada (402)434-‐3494 ext. 103 [email protected]
Central Service Area Serving Harlan, Franklin, Webster, Clay, Nuckolls, Phelps, Kearney, Adams, Buffalo, Hall, Hamilton, Merrick, Howard, Sherman, Custer, Valley, Greeley, Blaine, Loup, Garfield,
Wheeler Northern Service Area
Serving Washington, Dodge, Colfax, Platte, Nance, Boone, Antelope, Holt, Rock, Brown, Cherry, Keya Paha, Boyd, Knox, Cedar, Burt, Dixon, Dakota, Thurston, Cuming, Stanton,
Madison, Pierce & Wayne
Coordinator Lydia Hovi, For BOTH Service Areas (308)745-‐0780 ext. 145 [email protected]
Southwest Service Area Serving Dundy, Hitchcock, Red Willow, Furnas, Gosper, Dawson, Lincoln, Logan, Thomas,
Grant, Hooker, Arthur, Keith, Perkins, Chase, Hayes, & Frontier
Coordinator Helena Janousek (308)345-‐4223 (308)345-‐4990
Western Service Area Serving Sheridan, Garden, Deuel, Sioux, Cheyenne, Morrill, Box Butte, Dawes,
Scottsbluff, Banner & Kimball
Coordinator Sherri Blome (308)432-‐8190
Statewide Information
v Telehealth for Pediatric Epilepsy Clinic MORE INFORMATION: 308-865-7742 for information & appointments DECRIPTION: Tele-health offers a chance to participate in an exciting and growing part of this nation’s health care. It reduces travel hours and away time from work; and brings individuals together in order to provide healthcare services and educational opportunities that might otherwise be inaccessible. Through technology, individuals are able to see and talk to one another from sites across Nebraska. Currently, all pediatric Neurologists and Epileptologists in Nebraska are located in the urban areas at the far eastern edge of the state. Through telemedicine connections, patients can go to their nearest Tele-health site and be linked directly with a board certified pediatric neurologist in Omaha. Travel time is greatly reduced and access is easier for both the patients and the healthcare provider.
v Study Participants NEEDED: Recruiting teachers & related service professionals MORE INFORMATION: Richard Simpson at 785-864-0507 or [email protected] or Stephen Crutchfield at [email protected] DECRIPTION: Teachers and related service professionals needed to participate in a study on intervention methods and teaching strategies used with students with autism spectrum disorders (ASD). Interested participants should contacts us. We will contact respondents to give details about the study and to make sure they qualify to participate. The questionnaire will ask about use of various interventions designed for use with children with ASD. It will take about 10 – 15 minutes to complete the questionnaire. Participants names, names of school districts, or other specific identifying information will not be disclosed in any way through this study (we are only interested in group data). Study Participants MUST: Hold state approved provisional or full licensure or endorsement in special education or a related service area such as occupational therapy; Have a minimum of one year teaching experience with at least one student with ASD; Have current contact with at least one elementary age student with ASD
v Heart Heroes Capes for kids with CHD, a Nebraska Non-Profit Every year, approximately 40,000 infants are born in the US with Congenital Heart Defects (CHD). CHD is the most frequently occurring birth defect & the leading cause of birth-related deaths. More than 50% of children with CHD will require at least 1 invasive surgery in their lifetime. In the US, twice as many children die from CHD each year, than all forms of childhood cancers, combined! Needless to say, the survivors of CHD wear their scars, like badges of honor. They are our “Heart Heroes”. Heart Heroes, Inc., is a non-profit organization that originated by a few Nebraska moms, who had children with CHD. After trying to coax their children through cardiology appointments & heart surgeries, they took comfort in the wondrous powers of “super hero” capes to comfort their children, & Heart Heroes was founded! Now hundreds of Heart Hero capes have been draped around the little shoulders of CHD children everywhere. Consider donating a Heart Hero Cape to a child with CHD by going to www.heartherocapes.com to donate a cape. There is a perpetual wait list of children who need their capes to conquer their fears & give them courage. You can also join our Heart Heroes Facebook Group to see pictures of many of the cape recipients & hear their stories. Contact the Co-Founders of Heart Heroes at [email protected]. “Children hold our hands for a moment, but our hearts forever.” ~Anonymous
Page 10
v Wonderful Encouraging Blog for Parents who have kids with Special Needs Notaloneparents.wordpress.com
v Hearing Care Helpers www.Accessibility.net purchased the rights to use Hearing Care Helpers as the name of its new division and I wanted to introduce you to its new website. The web site is fully dedicated to AfterShokz right now but have secured distributorships for the leading products to offer powerful amplified telephones, Bluetooth headsets, amplified neckloops, mobile accessories and listening systems for people with hearing loss and those looking for a remarkable listening experience. We are here to help the blind and visually impaired and deaf and hard of hearing communities www.HearingCareHelpers.com
v Introducing Nebraska- LowVision.com http://www.nebraska-lowvision.com
v Learn to Adapt Toys to Use with a Switch/Button/BigMac This workshop is for anyone! You will learn how to easily &cost effectively turn the toys that your child already has, & isn’t using due to physical limitations, into toys that are adapted to your child! You will learn how to install a jack into a single function toy & convert into a toy that is operated with a switch. You will learn how to assemble a switch. You will make a detachable cord that runs from the toy to the switch, and best of all your child’s toy will look professionally adapted, by YOU!! You have seen that the switch operated toys are sometimes as much as 8x as much to order, than if you could buy the toy & parts & put together yourself. This class is FREE, however donations of any kind are appreciated. Contact Aaron today at [email protected] for more information!!
v Parent Group – Kids with combined hearing & vision loss The Nebraska Technical Assistance Project on Deaf-Blindness has conducted training this year specific to parents of children who have a combined hearing & vision loss. The training has been in partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total of 6 parents have participated in a series of training activities from May 2011 through October 2011. They are now working on their leadership goals. They are called the Nebraska DB Parent Leadership Team, & have provided lots of support to the state Deaf-Blind project. It is the intent of this team to provide one-on-one interaction either via phones, technology or face-to-face with other parents in the state who have a child birth to age 21, with a combined hearing & vision loss. If you want to be connected to one of the parents, please contact Teresa Coonts at 402-595-1810 or [email protected] This is an exciting group of parents working & learning together for the purpose of supporting other families in the future.
v ABC Signing Kids Teaching Beginning Sign Language to Kids of All Abilit ies in South East Nebraska. Why Learn Sign Language? In addition to the fun you will have discovering a new and enriching language together, there are many benefits of signing with your child. Enhances Communication Skills in Babies and Toddlers. Even young children can learn basic ASL vocabulary quickly & easily with Signing Time Academy Classes & products. “Terrible Two’s” aren’t so terrible when your toddler can communicate what he wants. Improves Reading Skills. Studies indicate that children who sign have an increased interest in reading & may even read early. Benefits Children with Special Needs. Many children with special needs have difficulty with communication & speech. Sign Language encourages connection, reinforces positive self-image & fosters inclusion & acceptance. Sign Language is an effective tool for all types of learning styles: auditory, visual & kinesthetic/Tactile. For more information Call Angie Willey, Certified Instructor at 402-499-4022 or [email protected] You can also go to www.abcsigningkids.weebly.com
v Special Needs toys at Toys R US Toys R Us is partnered with Special Olympics USA, and have been for many years. You can go to the website www.toysrus.com, scroll down to the bottom of the screen and click on the Special Olympics logo. After you have clicked on it, you will need to click on the button on the red banner that says “Supporting the Special Needs Community”, it is located all the way to the right. On this page they are talking about the history Toys R Us has with the special needs community. The middle paragraph talks about a Toy Guide for Differently-Abled Kids, click on the “here” to see that guide. It is the only way I was able to see it!
v Golden Halo Foundation The Golden Halo Foundation provides financial assistance, in way of grants, to help those children, and their families, with long-term disabilities. The financial assistance is to help seek medical treatment, diagnostic evaluations, durable medical equipment and expenses related to securing medical care. The Foundation currently serves families in Colorado, Nebraska, Iowa, South Dakota, and Wyoming. The Golden Halo Foundation also educates these communities about the effects these diseases have on the patient and their families, as well as the 7advances in research in the area of long-term disabilities. Check out our website for more information at http://goldenhalo.wix.com/foundation
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Statewide Information !
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!
!
!
600 N. 93 rd Street, Suite 100
Omaha, NE 68114
402-391-2001
www.stonesworthstepping .com
OT/PT/ST
Special ized therapies include :
Sensory Integration
Therapeutic Listening Programs
Craniosacral Therapy
Orthotics & Bracing
Baby signs
Social Groups
Feeding Therapy
To join our mailing list or just to contact us, check out our website at www.ohanakidsnews.com
or email us as [email protected]
Page 11
v Parent 2 Parent Mentor’s Wanted!!! Nationally over 80% of parents of children with disabilities, who were mentored by an experienced parent, reported it to be the most helpful source of information o coping with the challenges of raising a child with special needs. Mentored parents report that the support of a fellow parent was so unique & personalized that it could not have come from any other source! As the mother or father of a child with developmental disabilities, you have unique parenting experiences. Through time, training, & trial & error, you have gained valuable skills. Use your knowledge to help another parent on the journey by becoming a mentor. Parent to Parent (P2P) programs link parents of children, adolescents & adults with developmental disabilities together with experienced & informed veteran parents who understand the day-to-day experiences of raising a child with special needs. Parent to Parent Omaha is offered by Ollie Webb Center, Inc., a local non-profit agency. We are seeking parent mentors who are coping well with their child’s situation & view him or her as a valuable & developing person. Consider becoming a mentor if you’d like to help parents cope with the joys & challenges of having a child (of any age) with special needs. The time commitment involves contacting another parent (in person, by mail, e-mail or telephone) once every 2 weeks within the first 8 weeks, & as mutually agreed thereafter. You have the knowledge & experience. We provide the training as a framework to share your wisdom. The next training will be held soon & will include: Guidelines for Helping Families; Creative Coping Skills & Resiliency; Survival Tactics for Parents of Children with Special Needs; What Helps Families in High Stress Situations & Crisis; Tips for Extended Family & Siblings; Tips for Locating Community Services; Information on Parent to Parent USA; Cultural Competence & Family Centered Care; & Principles of Family-Professional Collaboration. (12/2012) To talk to someone about becoming a mentor, please contact Annie Anderson at 402-346-5220, ext 23 or [email protected] or you can mail your name, address, phone number & e-mail to: Ollie Webb Center, Inc., 1941 South 42nd Street, Suite 122, Omaha, NE 68105
v HIPP Program through the State of Nebraska Do you know that you can then add your child, to your private health insurance (non-medicaid), and then you can get those premiums paid for through the HIPP program? As long as your child is on Medicaid, and if the child is on your family health insurance policy, they will cover the entire premium for your family!!! If your child isn’t on this, I would contact your DHHS coordinator to find out if this is an option for your child. I know that if your child is fed via g-button, j-button more than I think 50% of their daily intake, or have a catheter, these are both automatic qualifiers for kids. If you want more information I would contact your Services Coordinator, if you need help getting answers let me know and we can work through it together! Let’s get the word out about this program!! Contact me at [email protected] for more information.
v Respite Care Available for Air Force Families * FREE to them * U.S. Air Force (USAF) Exceptional Family Member Program (EFMP) families stationed throughout the country have children who require unique child care considerations due to the child’s special needs. Finding & paying for quality child care for children with special needs can also present significant challenges for military families. The U.S. Air Force EFMP program has established a quality respite program for families with children having special needs & who are enrolled in the USAF EFMP. USAF EFMP Respite Care is specifically designed for Air Force families who have children diagnosed with moderate or severe special needs under EFMP. This includes exceptional family member children whose medical conditions require assignment near major medical facilities in the continental United States, or whose needs are complex and require specialized community of care. What is included in the USAF EFMP Respite Care? Respite care hours vary between 8 – 20 hours per month based on the Airman’s status and EFM’s condition (moderate or severe). Your choice of an approved in-child’s home or licensed Family Child Care or Child Care Center. (Approved providers are background screened and have the following pre-service training: CPR, First Aid, Medication Dispensation, & Child Abuse Recognition & Prevention as well as subject matter training in the care of children with special needs. To begin the application process, call Child Care Aware toll-free at 1-800-424-2246 or email [email protected] for a Respite Care Step by Step instruction form. Or call the EFMP Office at 402-294-4329 for more info!
v Tech Tots & Tech Tools Programs Sponsored by UCP The Tech Tots Lending Libraries provide developmental toys, adapted toys and devices to children with developmental and physical disabilities, at no cost to families. UCP of Nebraska offers over 700 adapted toys & technologies for children and teens through 4 locations (listed below). The toys are housed in libraries located in respite or rehab services environments. Primary use of the program is through families that use services at the center, and is also available to the general public. The toys are available to be taken home to reinforce learning. We have heard from families that have participated in this program consistently and the value it has brought to them. After one family in particular, has been using the program by taking 3-4 items home for their child with Cerebral Palsy. After a month of using these items, they return the items and “refresh” them with something new and interesting. It has helped increase the exposure and learning for that child by continually offering new tools. These same adapted toys are cost-prohibitive to many families, as they typically cost more than 5 times the base cost of the toy without adaptation. UCP has partnered with AT4ALL to make the entire inventory visible online. AT4ALL is offered by the Assistive Technology Partnership. A family can view the items, request them for loan, and then simply pick them up at the location. Simply go to www.AT4ALL.com, click on “Children’s Equipment” in the category. All items available for checkout from UCP of Nebraska Tech Tots Partners (& a few other agency programs) will come up. You can refine the search by location by selecting one of the UCP of Nebraska sites. Under Programs, scroll down to find the UCP Tech Tools locations. Children’s adapted items available through other agencies can also be found on this website! Locations for Tech Tots and Tech Tools: (All these are listed in Resources on our website) Children’s Respite Care Center NW, 2010 N. 88th Street, OMAHA 402-496-1000 ask for Sarah Tselentis
Children’s Respite Care Center SW, 13336 Industrial Rd, Ste 101, OMAHA 402-895-4000 ask for Sarah Tselentis
Madonna Rehabilitation Hospital, 5401 S. Street, LINCOLN 402-486-8617 ask for Michelle Wiggins
Children’s Rehab Center, 3004 W. Faidley Avenue, GRAND ISLAND 308-398-5170 ask for Carole Ostdiek
Faith Regional Health Services Rehab Services, 1500 Koenigstein, NORFOLK 402-644-7348 ext. 7396 Ask for Nikki Fischer
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Statewide Information
!
We!are!a!law!firm!founded!by!the!parent!of!children!with!special!needs,!to!serve!parents!&!caregivers.!!We!provide!affordable,!caring!legal!representation!for!caregivers!throughout!Nebraska.!!!Contact'us'today'for'a'FREE'initial'consultation'with'question'about:'
• Special(Education(• Guardianship(• Special(Needs(Trusts(• SSI(or(SSDI(• Elder(Law(• Medicaid/HHS(• Transition(to(Adult(
Services(Or(Any(other(legal(concern(
402D650D5993((
www.SeamusKellyLaw.com((
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
v Radio Show by Adult with Asperger Syndrome “Parents Corner” is a radio show, co-hosted by Brian King, LCSW. Brian is an adult with Asperger Syndrome, who also has 3 boys on the ASD spectrum. Brian will be sharing his parenting strategies and discussing them with a panel of parents. Here is a link with all the details you’ll need to tune in & call in if you’d like. http: tinyurl.com/3gm58h7 His address is: PO Box 994, Chicago, IL 60186 if you’d like to write to him.
v Webinars about Apps Are you interested in more information about Apps? Autism Speaks holds weekly webinars covering the technology of apps and how they can work for children with Autism. You say, but my child doesn’t have Autism! Log on anyway! Though the focus may be for children with Autism, much of what is offered can easily be adapted for children with similar or different needs. Discoveries for one area do increase the knowledge for all. http://autismspeaks.org/family-services/technology#webinars
v Handmade Gowns, IV Covers, G-button covers & more!!! Check this out!! If you have a child who is routinely in the hospital for various things (like mine is J) then you need to check this lady out!! Go to www.tubiewhoobies.com or you can visit them on Facebook at www.facebook.com/tubiewhoobies
v Gluten Free/Casein Free Diet Website Just received this information that a parent went through and put their information into a website of all the diet information they have for gluten free/casein free. I haven’t checked it out, but take a look. It is http://www.lincolntent.com/GFCF.html
v Financial Resource for Families – FirstHand Foundation This is a resource for families with uncovered medical needs for their children. Families can apply for individual financial assistance if they meet the Foundation’s eligibility criteria. Check it out at www.firsthandfoundation.org
v “Love That Goes the Distance” Providing for special needs now & into the future!
Planning for the long-term care of a loved one with special needs requires thought and preparation. The fact is, when it comes to the future needs of a family member with a disability, the possibility that they nay outlive you is something that must be considered, especially when the individual is a minor or adult child. Preparations include estimating possible future care-giving costs, as well as making sure all assets are managed properly to best benefit your loved one. Special protection when you need it most! Sometimes families neglect inheritance issues for special needs family members because they assume siblings or related caregivers will simply step in and take over the care giving duties should the need arise. Even if families have reached an agreement on care giving responsibilities, it is still important to address the management and division of assets and to have your preferences clearly and legally defined. You also want to be sure you understand all of the legal guidelines so that your loved one with special needs does not lose benefits from government sources. For instance, many people are not aware of that with Supplemental Security Income (SSI), a single, disabled person cannot own more than $2,000 in assets. One component you might want to consider when setting up your long-term financial plan is the establishment of a “Special Needs Trust” funded with a form of life insurance. A “Special Needs Trust” is established to ensure that the disabled individual’s inheritance will supplement, not replace, any government assistance programs they may be eligible for. Aspects of a “Special Needs Trust” include: Appointing someone to take care of your loved one’s property and money, Designating a guardian for children less than 18 years of age, Integrating the wishes spelled out in the trust with the remainder of the parent’s estate plan. Get the help you need now for future peace of mind. A “Special Needs Trust” is just one tool that can help you address financial issues making life much easier for your loved one and their future caregivers. With proper planning, your love, and your money, will be set to go the distance. For additional information on “Special Needs Trusts” it is important to consult with an attorney in your state of residence who specializes in special needs estate planning. For more information on preparing for your loved one with special needs’ future, you can contact Cecilia Losee, Prudential at (402)861-3676.
v Boys Town National Research Hospital Research Study for kids with ADHD Boys Town National Research Hospital is seeking children and adolescents with ADHD to participate in research studies. Your child may quality for participation if: He or she is medically healthy; Age 10 – 18; Has ADHD (attention impulsivity and/or hyperactivity). Participation may include behavioral observation, brain imaging, and psychological interviews. These outpatient studies take place at Boys Town National Research Hospital, 139th & Pacific Streets, on Boys Town campus, in Omaha. What is involved in the study? We may invite your child to participate in simple computer games that measure his or her behavior. We may also invite your child to have an MRI brain scan during which we will measure brain activity while he or she plays simple computer games. Will your son or daughter benefit? Other than compensation for his or her time, your child will not receive any direct benefits from participation. Your child will not receive any medicine or therapy. However, he or she will receive a formal mental health screening by a Boys Town psychologist. You will be informed of any diagnoses that result. We can also refer your child to a local psychiatrist or psychologist if you do not already have one. If your child receives an MRS brain scan, a doctor will review the scan and you will be informed if anything serious is found. Are there risks involved? This study is low-risk. This means that the risks are thought to be no greater than risks from other everyday activities like going to school or to the doctor’s office. The MRI bran scan uses magnets, not x-rays or radiation. How much time to these studies take? Your child may be invited to come to the Boys Town National Research Hospital two or three times to complete the study, and a parent or legal guardian will need to come with him or her each time. Visits vary in length, but are usually two to three hours long. We will try to schedule the visits at the times that are most convenient for you. Each visit is voluntary. You are free to stop participating in the study at any time you wish. Your child will never do anything he or she doesn’t want to do. Please call 402-498-1220 for more information about participating in this study or visit our webpage at www.boystownhospital.org/research
Statewide Information
!
To join our mailing list or just to contact us, check out our website at www.ohanakidsnews.com or email us as [email protected]
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Page 13
v Camp Quality USA Camp Quality USA, Inc., provides year-round support programs for children with cancer and their families. Programs include our signature week-long camp and other year-round programs such as reunions and ski camps. Each camp is volunteer run and community funded. Camp Quality gives families a much needed rest, knowing that the highest quality program has been selected for their child – a companion will be assigned to ensure the child’s safety and the finest medical supervisors are provided at each camp to administer medications and on-site care. Campers at Camp Quality range from 4 years of age through 17 and vary in stages of their treatment or remission. They are children who smile, laugh, play and have dreams for a bright future. The Companions are the lifeblood of the camp. They are the around-the-clock caretaker for the campers and ensure the most enjoyable, safe, relaxing, and restoring experience possible for each child. Each companion, at least 18 years of age, is interviewed, background checked, and trained BEFORE camp!! Camp Quality provides all the year-round programs at NO COST to families. The camp is run 100% on donations, supplies and volunteer hours. Would you like to volunteer? Or know more about Camp Quality or even Register for an upcoming Camp? Contact Caleb Rogers at 712-310-8177 or via email [email protected]
v Exceptional Advocate Newsletter Mainly for Military families, there is information in this resource for families who have kids with special needs. Check it out. There are tips on preparing for the new school year, information on immunization requirements for military family members, and resources for ensuring emergency preparedness for your whole family, including a Special Needs Parent Tool Kit and more (see page 4). Read it at http://apps.militaryonesource.mil/efmp/book/2013/August/
v True Buddy Farms – Home of Luv A Lamb We provide day camps, individual therapy sessions, & veterinary clinics at the farm. We were established in 2009. Our mission is to encourage & teach life skills to youth & adults through animal therapy & recreational farm work. Our focus is to enhance therapies for youth & adults with special needs & to build relationships among youth in our community. We work closely with Sarpy/Douglas 4-H, and several other community programs. Our main program is the 4 week summer camp session which concludes at the Sarpy County Fair with our True Buddy Sheep Show. True Buddy-Luv-A-Lamb pairs special needs or medically challenged children & adults with a youth volunteer & a sheep. This gives volunteer youth the opportunity to work with special needs individuals & to participate in community service projects. In turn, it is providing occupational & physical therapy to children & adults with special needs or medical challenges through the interactions with our sheep. Physical therapy, communication, & response come naturally when our True Buddies walk a sheep. Contact Donna at [email protected] for more information or to be added to the mailing list!
v Dr. Michels in Omaha Offers Orthopedic Screenings for Shriners Hospital Dr. Michels at Omaha Orthopedic Clinic in Omaha, NE is opening some time in his schedule to work in Shriners Hospitals for Children – Twin Cities Screenings. Any child that may have an orthopedic condition is welcome to make an appointment & see Dr. Michels for a referral to Shriners Hospital free of charge. The Shriners in Nebraska are available to assist with transportation for any child that is referred to the hospital in the Twin Cities. Those arrangements can be made at the time their first visit is scheduled with Shriners Hospitals for Children –Twin Cities. You can read more about Shriners Hospitals at www.shrinershospitalsforchildren.org/twincities For more information about Dr. Michels & his office for scheduling call 402-691-0500. His office is located at 11704 W. Center Frontage Rd. N, OMAHA, NE 68144 He is offering complimentary screening appointments for children with any bone, muscle, or joint conditions. Please say you are calling for a Shriners Hospitals for Children Screening when you make your appointment.
v Shriners Hospitals for Children – Twin Cities Shriners Hospitals for Children – Twin Cities is a non-profit healthcare organization that has been specializing in pediatric orthopedics for over 91 years. Our mission is to provide the highest quality care for all children, regardless of a family’s ability to pay. We focus on providing patients with an exceptional depth of expertise, and are proud members of the Mayo Clinic Care Network which provides our patients direct access to Mayo Clinic resources. Our family centered approach to care means your child will have the opportunity to develop a close relationship with each member of the care team. Our patients and families appreciate us. In satisfaction surveys, we rank among the top 10% of hospitals nationwide. If your child has a condition of the bones, joints, or muscles; make an appointment by calling us at (612)596-6105. Transportation services can be provided as needed. You can also check out this link, www.shrinershospitalsforchildren.org/locations/twincities
v New Federal Guidelines to Make Air Travel Easier for Individuals with Disabilities
The U.S. Department of Transportation teamed up with The Arc and the Autistic Self Advocacy Network to create a list of guidelines for air carriers to follow when assisting travelers with developmental disabilities. The rules are not an addendum to the Air Carrier Access Act; rather, they seek to provide clarification about the existing regulations for both airlines and travelers. The guide addresses topics like what to do/know before flying; what airlines are required to provide people with disabilities; information on service dogs; and how to file a disability-related complaint, etc. The Department of Transportation said in a statement to Disability Scoop, “Recent incidents highlight the need for a guidance document focusing on developmental disabilities, to assist individuals on the autism spectrum and individuals with other developmental disabilities know their rights.” Read the full set of federal guidelines: https://www.transportation.gov/sites/dot.gov/files/docs/ This article was borrowed from The Mighty, in Ollie Webb Center, Inc. monthly newsletter.
Statewide Information
!
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Page 14
SWIMMING Lessons
Swimtastic Swim School 7911 Pioneers Blvd, LINCOLN
(402)489-‐SWIM (7946)
Many of our instructors are qualified AND comfortable working with children who have special needs! We have an open schedule, to
fit YOUR needs! Many lesson options available, including Group Lessons & a 4:1 ratio of kids to teacher, Semi-‐Private Lessons of 2:1 kids to teacher & Private Lessons of 1 on 1. We work to individualize the teaching
to the needs of the child & the family!
Swimtastic Swim School 2920 N 118th Street, OMAHA (402)496-‐SWIM (7946)
2 Locations!
www.swimtastic.com
SWIMMING LESSONS! Lincoln Park and Recreation is willing to work with any family to find a swim lesson program for children with special needs. We have mainstream, inclusive, adaptive,
& private lessons available. Partial scholarships are available for all aquatics
programs.
Saturdays, July 11 – August 8 there is an Introduction to Adaptive Swim Team program for youth who can swim independently or with floatation that runs from
10:30 am to 11:30 am at Highlands Pool, LINCOLN. Cost is $20.
We have added adaptive swim lessons at Star City Shores
& Highlands Pool, both of Lincoln. Cost is $32 for 8 lessons
Go Online to enroll at www.parks.lincoln.ne.gov
Or Questions can be sent to [email protected]
Learning to Swim With Autism: By Swimtastic Corporation
According to a recent study, 1% of all American children have autism. Parents looking for activities with their children who have special needs may be pleasantly surprised to learn that swimming is a great choice. Swim lessons for children (or adults) with autism are approached from a different angle than typical lessons by using the following methods: Individualism: Each child is different. They have different interests and respond in their own way to different approaches. Swim lessons can be tailored so that the right approach is used for the right child. Private lessons are ideal for children with special needs because they allow the instructor to work on specific goals for each particular swimmer. Routine consistency: If you have a child with autism, you are well aware that sudden changes may lead to a higher level of unwanted stress. Trained instructors are well aware of this fact and work to develop a routine for each swim lesson that meets the need of the student. Visualization: Many children with autism are visual learners. Thus, visuals are often incorporated into the lesson, which aids to increase both their comfort level and their learning curve. Not only is it possible for children with autism to learn to swim, but it can be incredibly beneficial to them. Besides the obvious benefits that apply to all swimmers, children with autism can also benefit in a number of other ways. Some of those benefits include: Building self-‐esteem: Learning a new skill, like swimming, will provide a sense of accomplishment for the student. Preventing accidents: Drowning is one of the leading causes of death for a child with autism. A child who have been properly trained how to swim will be safer around water. Exercising safely: The pool is a safe way to exercise. Swimming is a low impact sport, and one of the few activities that use the majority of your muscles. Swimming can relieve muscle stiffness, enhance muscle relaxation, and build muscle strength. Relaxation: Many special needs children find the pool to be relaxing. Underwater submersion provider immense amounts of comfort as the sounds of the busy world are cancelled out when underwater.
Lincoln YMCA are offering adaptive swim lessons called “Turtle” www.ymcalincoln.org
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
CAMP INFORMATION
Camp High Hopes Year-round Camps Located in Sioux City, IOWA
Providing fun, safe & adaptive recreational experiences for children, teens, & adults with disabilities!
Sleep Away Camp $598 Day Camps $208
Visit our Camp Sessions section online at www.camphighhopes.com for further details, session dates & more information!
(712) 224-CAMP (2267) Camp High Hopes offers a fun, safe, & adaptive recreational environment to waiver & non-waiver campers with disabilities. Each day is
designed to offer a fun, safe, & adaptive recreational environment for people with disabilities, their friends, & families. Our high quality programs include experiences in archery, canoeing, & outdoor education, amongst others, for individuals & groups with disabilities.
Coming from Iowa, Nebraska, & South Dakota, campers arrive with anticipation & excitement, leaving with smiles, new friends, & fond memories for years to come!
Camp Abilities Nebraska July 17 – 22, 2016
Camp Abilities Nebraska is a week-‐long residential sports camp for youth who are blind, visually impaired or deaf-‐blind. Youth explore sports and recreational activities in a safe environment with instructors who have experience in adaptive techniques.
The cost is $300; scholarships are available and Nebraska residency is not required. Camp registration opens March 1 and is limited to 20 campers so prompt enrollment is suggested.
For more information or to make a donation to Camp Abilities Nebraska, contact Kristal Platt, Vision Program
Coordinator, at 402-‐498-‐6365, [email protected] or visit www.BoysTownHospital.org/HearingServices/EducationalOutreach
2016 Junior Wheelchair Sports & Recreation Camp Iowa School for the Deaf, Lied Multipurpose Complex,
3501 Harry Langdon Blvd., Council Bluffs, IA
Our Mission Statement: Junior Wheelchair Sports and Recreation Camp is dedicated to providing opportunities for both new & experienced wheelchair athletes to attain excellence & an enthusiasm for a rich & fulfilling life through a program of diverse sports & recreational activities.
COST: FREE due to the support of generous sponsors and many donations, however the number of campers is limited to RSVP EARLY!
We provide, Transportation available in the Omaha/Council Bluffs metro areas, & a designated site in Lincoln; Admission and transportation to all field trips; Daily lunches and snacks; Nursing assistance; and a camp t-shirt. Volunteers are available to assist campers with personal help skills, lunches, day-to-day
operation and all activities. Our instructors have achieved national or international recognition in wheelchair sports competition.
Camper/staff ratio is 4:1. This camp is not suitable for campers requiring 1:1 ratio.
Registration Forms can be downloaded at: www.CHIhealth.com/rehab www.cbparksandrec.org/youth www.enwaa.org
www.cityofomaha.org/parks
or for more information contact Camp Director, Jena Munson at 402-572-2276 or email at [email protected]
Page 15
Lincoln Park & Recreation Summer Camps
For More Information contact Sherry at 402-‐441-‐7948 Must Register for these camps! Forms to register will be available March 2016
Art Extravaganza Camp for ages 13 & Up
Starts June 6 – Runs Monday through Friday from 1:15 – 4:15 pm COST: $70.00 per person
**Door to door transportation is available within Lincoln for $22.50 for the week, must register LOCATED AT: Easterday Recreation Center, 6130 Adams St, LINCOLN
Drama Camp for ages 13 & Up
Starts July 25 – Runs Monday through Friday from 9:30 am to 3:00 pm COST: $113.00 per person
**Door to door transportation is available within Lincoln for $22.50 for the week, must register LOCATED AT: Auld Pavilion, 1650 Memorial Dr., Antelope Park, LINCOLN
Adaptive Recreation SumFun Day Camp for ages 5 to 21
Start Dates are: June 20, June 27, July 11 and July 18 , Runs Monday through Friday each week is a different session From 9:00 am to 2:30 pm
COST: $89.00 per person per session **Door to door transportation is available within Lincoln for $22.50 per week, must register
LOCATED AT: Auld Pavilion, 1650 Memorial Dr., Antelope Park, LINCOLN SumFun is a camp designed to meet the needs of youth with intellectual and physical disabilities. The program offers a wide range of recreation
activities which provides opportunities for social interaction and aid in the development of physical and social skills. SumFun is designed to provide a paid staff to participant ratio of 1:5. Activities will include arts and crafts, games, music, sports, swimming, and field trips. Participants will be
assigned to camp groups according to their age. Enrollment is limited. Registrations are taken on a first come first served basis.
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
CAMP INFORMATION
THERAPLAYCE 4930 L Street, OMAHA
TIMES: 9:00 am to 3:00 pm or Noon to 6:00 pm
Come join us to fill your summer with excitement, learning, and fun! Meet new friends, experience new activities, and learn life skills! Camp activities include: Arts & Crafts, Water Play, Self Help Skills, Climbing and Swinging, Motor Activities, Team Sports, and Much, Much More!
Week 1 June 13 – 17 Week 2 June 20 – 24 Week 3 June 27 – July 1 Week 4 June 11 – 15 Week 5 June 18 – 22 Week 6 July 25 -‐ 29
Full week, full day, or half day options are available. Please call for more information or to register!
See the website for more details and registration form! www.theraplayce.com
Call 402-‐301-‐6829 or 402-‐731-‐8888
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
CAMP INFORMATION
Creighton Pediatric Therapy OMAHA
SUMMER CAMPS!
Picnic and Play Tuesdays and Thursdays, June 7 – 23
10:30 am to 12:00 pm For children between the ages of 3 & 7 with feeding, communication, and gross motor
development needs.
Movin; & Groovin’ the WRITE Way Mondays & Wednesdays, June 6 -‐ 22
8:30 – 10:00 am For grade school children to incorporate simple yoga poses and breathing techniques into practice to improve handwriting skills.
Making Waves
Fridays, June 3, 10, & 17, July 1, 8, 22 10:30 am to 12:00 pm
For preschool through early grade-‐school children to work on motor skills & pre-‐swim
activities at the Armbrust YMCA, our community partner site.
Call 402-‐280-‐2000 www.Pediatrictherapy.creighton.edu
Easter Seals Nebraska Camp Registration is OPEN!!!
Easter Seals Nebraska camp is an overnight camp for campers of any age, who have any disability. We maintain a 1:1 to 1:3 counselor to camper ratio as well as have a nurse on site 24 hours.
Summer camps are 6 days, 5 nights and take place at Boy Scout Camp Eagle near Fremont, NE.
Cost is $1,100 and can be paid for with respite waivers or Lifespan subsidies. Scholarships are available.
To learn more, and to register, visit www.easterseals.com/ne or contact Jami
at [email protected] or call 402-‐930-‐4053
The Arc of Platte County’s Summer Friends
Special Needs Camp
June 20 – 23 Emerson Elementary,
2410 20th Street, COLUMBUS, NE CAMP TIME: 9:00 am to Noon
Talent Show/Family Night on June 23 at 6:30 pm
COST: $30 for Arc Members; $45 for Non-‐Arc Members
Summer Friends, Special Needs Camp, is a summer camp
for children ages 5 – 21 who have developmental disabilities. There will be many fun indoor and outdoor activities planned for camp! Volunteers will be paired up
with the campers to provide one on one support!
Register early as there is a limit of 24 campers! Deadline to register is May 27!
Contact The Arc of Platte County for registration
& questions 402-‐563-‐1699 or
Volunteers are NEEDED!
We encourage middle & high school kids to come & be FRIENDS to our campers!!
Respite INFORMATION
v Respite Care Available for Air Force Families * FREE to them * U.S. Air Force (USAF) Exceptional Family Member Program (EFMP) families stationed throughout the country have children who require unique child care considerations due to the child’s special needs. Finding & paying for quality child care for children with special needs can also present significant challenges for military families. The U.S. Air Force EFMP program has established a quality respite program for families with children having special needs & who are enrolled in the USAF EFMP. USAF EFMP Respite Care is specifically designed for Air Force families who have children diagnosed with moderate or severe special needs under EFMP. This includes exceptional family member children whose medical conditions require assignment near major medical facilities in the continental United States, or whose needs are complex and require specialized community of care. What is included in the USAF EFMP Respite Care? Twelve (12) respite care hours per month regardless of condition severity. Your choice of an approved in-child’s home or licensed Family Child Care or Child Care Center. Approved providers are background screened and have the following pre-service training: CPR, First Aid, Medication Dispensation, & Child Abuse Recognition & Prevention as well as subject matter training in the care of children with special needs. To begin the application process, call Child Care Aware toll-free at 1-800-424-2246 or email [email protected] for a Respite Care Step by Step instruction form. Or call the EFMP Office at 402-294-4329 for more info! (5/16)
v Youth Care & Beyond They provide a caring and supportive environment for teen clients in three group homes. However, they are currently in the process of readying themselves to provide in-home respite. They can provide services for kids ages 10 – 19. If you are interested in respite or the group home setting please call them at 402-991-9709 you can also check out their website at www.YCBinc.org
v “Our Story” The Beginning of A Special Sitter As parents of four children, two with special needs, we understand your challenges in raising special needs children. As parents, our God given responsibility is to train our children for life. As a parent, you experience highs & lows as your children grown through the seasons of life. We learned early, that these highs & lows are amplified when you are caring for a child with special needs. You want to attend your children’s sporting events, teacher conferences, & musical performances. You want to continue to date your spouse, because a strong marriage creates a strong family. Like us, you probably have asked yourselves, “How do we create & maintain this balance when most of our time & energy is devoted to caring for our child with special needs?” Our desire is to help you answer that question so your family can experience the fullness of blessings available to your family because of your child with special needs. A Special Sitter was inspired by our ongoing journey of parenting our family & we believe our experiences can help you experience the fullness of blessings we have received as we raise our family. – Kimberly & Richard Troia, Co-Founders of A Special Sitter. Call 402-697-8400 x201 or [email protected] (5/16)
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
The Nebraska Respite Network
Do you know about the Lifespan Respite Subsidy Program? This program pays for respite services (someone to come into the home to care for a person with special needs, to give the primary caregiver a temporary break). The program serves people of all ages. It is for people who are NOT receiving the services from another government program.
Who Needs This Program? Caregivers who need a temporary break from providing care to persons of any age, with special needs. Examples of special needs are developmental & physical limitations, emotional or behavioral disorders, chronic illness. Alzheimer’s disease & related health concerns, or persons at risk of abuse & neglect. Eligibility is based on income guidelines. HOWEVER, if you have expenses directly related to the disability, these can usually be subtracted
from the counted income. The person applying must have a caregiver. The program will provide up to $125 per client per month!!
How do I become a Respite Provider? How do I get qualified for the Lifespan Respite Subsidy Program?
What if I need help finding a respite provider, so I as a Caregiver, can have a break? Contact the Nebraska Respite Network by contacting a Respite Network Coordinator in your area (see below) or call 1-‐866-‐RESPITE
Eastern Service Area Serving Douglas & Sarpy
Coordinator Ellen Bennett (402)996-‐8444
Southeast Service Area Serving Thayer, Jefferson, Gage, Otoe, Cass, Pawnee, Richardson, Johnson, Nemaha,
Lancaster, Saline, Fillmore, York, Seward, Polk, Butler & Saunders
Coordinator Mary Shada (402)434-‐3494 ext. 103 [email protected]
Central Service Area Serving Harlan, Franklin, Webster, Clay, Nuckolls, Phelps, Kearney, Adams, Buffalo, Hall, Hamilton, Merrick, Howard, Sherman, Custer, Valley, Greeley, Blaine, Loup, Garfield,
Wheeler Northern Service Area
Serving Washington, Dodge, Colfax, Platte, Nance, Boone, Antelope, Holt, Rock, Brown, Cherry, Keya Paha, Boyd, Knox, Cedar, Burt, Dixon, Dakota, Thurston, Cuming, Stanton,
Madison, Pierce & Wayne
Coordinator Lydia Hovi, For BOTH Service Areas (308)745-‐0780 ext. 145 [email protected]
Western Service Area Serving Sheridan, Garden, Deuel, Sioux, Cheyenne, Morrill, Box Butte, Dawes,
Scottsbluff, Banner & Kimball
Coordinator Sherri Blome (308)432-‐8190
Southwest Service Area Serving Dundy, Hitchcock, Red Willow, Furnas, Gosper, Dawson, Lincoln, Logan, Thomas,
Grant, Hooker, Arthur, Keith, Perkins, Chase, Hayes, & Frontier
Coordinator Helena Janousek (308)345-‐4223 (308)345-‐4990
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Respite INFORMATION
!
A"Special"Sitter"was""inspired"by"our"ongoing"journey"of"parenting"our"
family,"which"includes"2"kids"with"special"needs,"&"we"
believe"that"our"experiences"can"help"you"experience"the"fullness"of"blessings"we"have"received"as"we"have"raised"our"
family."!
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May 6 & 13 Take A Break – RESPITE for Families Childcare for kids ages 6 weeks to 10 years of age LOCATION: Grace Lutheran Church, 2225 Washington, LINCOLN TIME: 6:30 – 8:30 pm COST: Payment due based on a sliding scale for private pay, or we can bill DCP or Respite Subsidy MORE INFO: Mary at YWCA Lincoln at 402-434-3494 ext. 103 or [email protected] UPCOMING DATES: June 10, July 1 & 8, August 5 & 12, September 2 & 9, October 7 & 14, November 4 & 11, December 2 & 9
July 29
Masterpiece Respite Night! Super Hero Theme! Free Respite for families who have children with special needs LOCATION: First Free Church, 3300 S. 84th St., LINCOLN TIME: 6:00 – 9:00 pm MORE INFORMATION & to RESERVE YOUR CHILD’s SPOT: Contact Masterpiece Director, Danelle Mills, at [email protected] or 402-261-8304 DESCRIPTION: This is an opportunity for parents to enjoy an evening of rest & renewal while their kids experience a variety of activities such as sensory & gross motor play, arts & crafts, carnival games, & movies. Pizza and snacks are provided. We offer an evening of fun for kids of any age, with special needs AS WELL AS their siblings ages birth to 13. Every child is paired with a volunteer on a one-on-one basis. If your child needs more volunteers, we can do that too! We specialize each child’s respite stay with us, to them & your family’s needs. Every volunteer is background-checked, and trained. There are volunteer nurses on-site to oversee any medical needs your child may have. We ask that each family completes a registration packet, in advance so a coordinator can pair your child with the appropriate volunteer(s) and plan accordingly. If this is your first time to bless us with watching your child(ren), we give you a $25 gift card to go do something, and spend how you want. While Respite is only every other month, for one Friday evening, we are able to watch your children on Sunday mornings during church also, Just ask so we are prepared when you come! We LOVE having your children! NOTE: This is Heather from OKN J , and we take our son who has many special needs, they are always great with him, and I never have felt I can’t leave him. They go above and beyond to prepare for the kids! I highly recommend it!!!
Respite MAY Events
Respite UPCOMING Events
SURVEY FOR CAREGIVERS & RESPITE CARE PROVDERS!!
If you are a Family Caregiver or a Respite Care Provider please type in the survey link below into your web browser and take part in our survey.
The University of Nebraska Medical Center-‐Munroe Meyer Institute in conjunction with the DHHS are conducting an evaluation of the Nebraska Lifespan
Respite Care system. We anticipate that an evaluation will provide information and insights
into the system and help address possible challenges. We are looking at multiple factors including the need for respite services, access to
services, family caregivers satisfaction and barriers.
Once you complete the survey, there is an option to fill out your personal information.
This information will be used only as part of a raffle for the opportunity to win a $25 gift card.
Your participation in the survey is completely voluntary and all information provided
will be kept confidential. If you have any questions please contact,
Jolene Johnson at [email protected] or Jennifer Harmon at [email protected]
Survey for Caregivers: https://www.surveymonkey.com/r/EnglishFam
Caregiver
Survey for Respite Providers: https://www.surveymonkey.com/r/EnglishRes
piteProvider
v The Eastern Service Area for the Nebraska Respite Network, HAS MOVED!
As of April 1, 2016, we will no longer be known as Partnerships in Caregiving, but will continue to be a part of the Nebraska Statewide Respite Network. We will be moving the Respite program to the Munroe-Meyer Institute on UNMC Campus. Janet Miller and Ellen Bennett will be continuing to assist family caregivers of those with special needs or disabilities in locating Respite providers. We are always seeking ways to inform families of our service and always recruiting Respite providers, and those services will not change!! At this point continue to email us at Janet at [email protected] and Ellen at [email protected] We will share the new email address’ and our phone number as soon as we get it. For Respite needs please continue to call 1-866-737-7483 or if you are online go to https://nrrs.ne.gov/respitesearch Thank you and we look forward to continue working with you!!!
Edition #24 May 2012
Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!
May is Better Speech & Hearing MonthMay 9 is National School Nurse Day
May 13 is Mother's Day
What's Where???
Important Tidbits for Families pages 2 - 6
State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7
Fremont & Grand Island page 8Gretna & Hastings page 9
Lincoln pages 10 - 15Norfolk pages 15 - 16
North Platte page 16Omaha pages 16 - 24
Resources for Families pages xClassifieds page 29
Help us Expand our Reach, Pass us along to families you know who could use this information!!!
Check out any event changes, after publication
additions & MOREat our blog:
www.ohanakidsnews.blogspot.com
For more information,
or advertising ratesplease contact us at:
FACEBOOK too!!
Thanks for Reading OKN!!
Special Needs Mom's
You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!
We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.
For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.
Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!
We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.
-- April Vernon
Page 20 ALLIANCE: June 9
Nebraska Foster & Adoptive Parent Association Support Group Meets the 3rd Thursday of every month Including Foster & Adoptive Parents who have kids with special needs LOCATION: Box Butte Community Hospital, Meet in Alliance Room, ALLIANCE TIME: 6:00 – 7:30 pm MORE INFORMATION & to RSVP: www.nfapa.org or Jolie 308-672-3658
COLUMBUS: May 10, June 14 Nebraska Foster & Adoptive Parent Association Support Group Meets the 2nd Tuesday of the month (Except December) LOCATION: Peace Lutheran Church, 2720 28th ST., COLUMBUS TIME: 7:00 – 8:30 pm MORE INFORMATION: Contact Tammy Welker at [email protected] or www.nfapa.org DESCRIPTION: Childcare is provided! Thanks you Building Blocks and Behavioral Health Specialists for providing childcare!
GOTHENBURG: May 19, June 16 Nebraska Foster & Adoptive Parent Association Support Group Meets the 3rd Thursday of the month LOCATION: American Lutheran Church, 1512 Ave G, GOTHENBURG TIME: 6:00 – 8:00 pm MORE INFORMATION: Contact 308-537-3433 or www.nfapa.org
KIMBALL: May 23, June 6 Nebraska Foster & Adoptive Parent Association Support Group Meets the 4th Monday of every month Including Foster & Adoptive Parents who have kids with special needs LOCATION: Kimball Baptist Fellowship Church, 507 Oak Street, KIMBALL TIME: 6:00 – 7:30 pm
MORE INFORMATION & to RSVP: www.nfapa.org or Jolie 308-672-3658 LEXINGTON: July 26
Nebraska Foster & Adoptive Parent Association Support Group Meets Quarterly Including Foster & Adoptive Parents who have kids with special needs LOCATION: Parkview Baptist Church, 803 West 18th Street, LEXINGTON TIME: 6:00 – 8:00 pm MORE INFORMATION: www.nfapa.org or 308-324-4410 UPCOMING DATES: October 25
NORTH PLATTE: June 2
Nebraska Foster & Adoptive Parent Association Support Group Meets Every other month, on a Thursday evening Including Foster & Adoptive Parents who have kids with special needs LOCATION: Mid Plains Center, 1101 Halligan Drive, NORTH PLATTE TIME: 1:30 – 3:30 pm MORE INFORMATION: www.nfapa.org or 402-460-7296 UPCOMING DATES: August 4, and December 1
SCOTTSBLUFF: May 10, June 7
Nebraska Foster & Adoptive Parent Association Support Group Usually Meets the 2nd Tuesday of every month Including Foster & Adoptive Parents who have kids with special needs LOCATION: RWMC south plaza room 1204, SCOTTSBLUFF TIME: 6:00 – 7:30 pm MORE INFORMATION: www.nfapa.org or RSVP to Jolie at [email protected]
Nebraska Foster & Adoptive Parent Association UPCOMING Support Group Information
STATE-WIDE/ONLINE: May 3, 10, 17, 24, & 31
Nebraska Foster & Adoptive Parent Association FACES – Online Support Group Weekly chats, every Tuesday – MUST ASK TO JOIN!!! SEE CONTACT INFO!!! Including Foster & Adoptive Parents who have kids with special needs LOCATION: Online TIME: starting at 9:00 pm Central Time MORE INFORMATION: www.nfapa.org or Terry at [email protected] DESCRIPTION: Whether you are a foster parent, an adoptive parent, have guardianship, or are kinship/family caregiver, this group is designed to give support, information, resources, and encouragement. Foster Parents are vital to keeping children safe and helping them heal from the trauma of abuse, neglect, abandonment, or removal from their family home. This support group can help by: Working together to improve the lives of children not living with their birth parents; Through mutual support foster families are strengthened and placement stability is improved for the children in care; Foster Parenting is a journey, Foster Parents must strive to keep up on educational opportunities to be better equipped to protect the health and safety of the children placed in our care. Staying informed and up to date on issues affecting the child welfare system are also important. Each week we will have a topic of discussion, and during this time anything and everything related to the topic will be discussed. Just like an in person support group, this will be a closed forum and issued discussed should remain confidential. If there is a topic you’d like to suggest, let Terry know.
A comprehensive pediatric therapy gym with private treatment rooms &
a customized climbing structure.
• Physical Therapy • Occupational Therapy • Speech & Language Therapy • Feeding/Swallowing Therapy • AAC Evaluations
5321 South 138th Street, Omaha, NE 68137
NOW OPEN SATURDAYS! For more information or to request
an evaluation please,
Call 402.895.4000. !
!!