social media in health & medicine worksop
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For Dr. Kim Voll, IHHS 302TRANSCRIPT
Social media in health & medicine:
A workshop for students in IHHE302 – Dr. Kim Voll
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
PREAMBLE on SOCIAL MEDIA
• How/why use social media?• Health professionals need to know how to navigate the web's
communication and collaboration ecosystems• Changes in use of scholarly texts• Keeping up to medical literature
• What social media do I use in my work in biomedicine? • Why do I need all this media?• Digital reputation / building a digital identity
"We shape our tools...and then our tools shape us”
-- Marshall McLuhan (1965)
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
Video: http://www.youtube.com/watch?v=K8J6uEUXlR0
Introduction
• "What is social media? Is it like/unlike other media?”
• Definitions/ examples of social media usage in health/medicine
• Discuss web 2.0 & social media; what is health 2.o? medicine 2.0?
• Pros/cons of social media in health and medicine• digital communication; power of the network "Metcalfe's law“ • privacy, confidentiality issues, ethical behaviours
• Future
AGENDA
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
“….although troubling to many in public health …web 2.0 is here to stay …and it will almost certainly influence health behaviours in the future. Health is a logical area where people will seek opinions from others and communicate their experience … In the new era of social media, all public health officials will have to learn how to more effectively listen to these messages and, simultaneously, develop more lively and engaging messages to communicate with the public.”
Kumanan Wilson, MD MSC & Jennifer Keelan, PhD Coping with Public Health 2.0,CMAJ http://www.cmaj.ca/cgi/content/full/180/10/1080
CMA Journal quote from 2008:
WHAT IS SOCIAL MEDIA?
“…social media is an term that refers to new social technologies, especially those where multimedia, audio and text are used in combination with interactive elements ... the emphasis is on being social and on using the tools of the Internet to bring people together online to share things…”
HLWIKI Canada – http://hlwiki.ca
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
EARLY USES OF SOCIAL MEDIA IN MEDICINE
• Wikipedia (2001)
• BMJ article: How web 2.0 is changing medicine (2006)
• Clinical Cases and Images blog, Dr. Ves Dimov
• Google Health, patient record system (2006)
• Facebook / Twitter
• YouTube Cleveland Clinic
• Other examples?
Image: http://geekandpoke.typepad.com
I. THINK ON YOUR OWN
Take a few minutes. How do you use social media?
What tools? Which are useful to you? Why?
II. PAIR WITH YOUR NEIGHBOUR
Share your thoughts with your neighbour
Discuss the value of Facebook & Twitter
III. SHARE WITH YOUR CLASS
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
A DISCUSSION ABOUT SOCIAL MEDIA
Trends mentioned by students:
• Social media & the Arab Spring “participatory democracy”• Social media & Stanley Cup riots “crowdsourced policing”• Ubiquity of mobile devices & iPhones• Privacy issues / openness in organizations / personal lives• Using social media to reach disenfranchised
Tools :• Twitter• Google+• Pinterest• Posterous• Facebook• Twitter
TOP SOCIAL MEDIA TRENDS
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
WHAT’S A BLOG?
…a blog is an easy-to-publish free-to-use website where bloggers post information & essays in sequential order; the idea of a blog is to stimulate discussion and debate
A recent (peer-reviewed) article surveying medical bloggers noted that:
“Medical bloggers are highly educated and devoted writers, faithful to their sources and readers. Sharing practical knowledge and skills as well as influencing how people think are major motivators for bloggers. [They] frequently pick up stories from the mainstream media… [and] influence medical and health policy”
Journal of Medical Internet Research, 2008
Image: Blogs
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
WEBMD GROUP BLOGGING
http://exchanges.webmd.com/webmd-exchanges/blogs
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
CONCERNS ABOUT WEB 2.0 IN BIOMEDICINE
• Health professionals do not have time to learn about web 2.0
• Can compromise patient safety, confidentiality – and, is generally intrusive
• Social networks rely on network effects & take time to build (no members…. = no network)
• Scientists are not social as they work; they look for solutions not people
• Social tools must help to solve existing (and pressing) problems; they must fit existing workflows
• Must outperform existing tools; services should have 100% reliability & ROI
• Unless social networks are useful, don't expect people to come to a wasteland; they won’t
• Docs need to communicate with each other face-to-face not online
• Too dependent on mobile devices, iPhone; go to the patient!
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
DR. BERTALAN MESKO – SOCIAL MEDIA EXPERT
Blog: http://scienceroll.com/ Twitter: http://twitter.com/Berci
http://www.youtube.com/watch?v=Qh1mhKBUhfo
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
WHAT’S A SOCIAL NETWORKING SITE?
• How can we define it?• Its main features?• Purpose• Other benefits?
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
USING HEALTH & MEDICINE 2.0
Reading for today’s class:
Vandebelt et al. Definition of health 2.0 and medicine 2.0: a systematic review. J Med Internet Res. 2010 Jun 11;12(2):e18.
http://www.ncbi.nlm.nih.gov/pubmed/20542857
THINK – PAIR – SHARE EXERCISE
• Reactions to the paper• Methods• Definitions• Does a coherent definition emerge?• Discussion
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
ETHICS & SOCIAL MEDIA
Health On The Net: http://www.hon.ch/HONcode/Conduct.html
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
HEALTH CARE & WEB 2.0: A CLASH IN VALUES?
“…web 2.0 facilitates both expert and general public communication of health-related knowledge, which can be particularly problematic for public health authorities. De facto, it juxtaposes vetted scientific opinion against information from critics, crusaders and conspiracy theorists, which undermines the critical foundation of trust between public health officials and the public. This trust is necessary for activities that sometimes require restrictions on individual liberties or impositions on individuals for the benefits of the population.” Kumanan Wilson, MD MSC & Jennifer Keelan, PhD
Coping with Public Health 2.0,CMAJ http://www.cmaj.ca/cgi/content/full/180/10/1080
OTHER DIFFICULTIES WITH WEB 2.0
HEALTHMAP – DISEASE ALERTING
FACEBOOK HEALTH CAMPAIGNS
Increases awareness about the health effects and consequences of eating fast food
SECOND LIFE – HEALTH & NUTRITION 2.0
OVERCOMING DIFFICULTIES
Dean Giustini, UBC biomed librarian IHHS 302 May 2012
• Comply with confidentiality & privacy needs • HIPAA• Should patients be friends on Facebook with their doctors? • Think guidelines, policies & strategies
• Establish authority online• Consult professional organization literature• Scholarly articles• Online certification
• Teach evaluation skills to patients & general public• Current awareness
• Get to know your IT staff & make friends
THE FUTURE IS SOCIAL & MOBILE
• Do health professionals need to be social?
• How big a factor is Facebook, Twitter? Mobile devices?
• Should we be concerned about too much visibility?
• Is it important to use social tools on mobiles, ‘in the cloud’?
• Closing remarks
Dean Giustini, UBC biomed librarian IHHS 302 May 2012