PATIENTEDUCAT RPATIENTEDUCAT R

Golden Eddy Awards HighlightsThis article contains highlights from the talk given at the 2012 Golden Eddy Award Ceremony by Kirk Hennig, Patient Advisor, who has served 10 years on the Rehab Advisory Council and is the council’s Advisor Co-lead.

It sEEms to mE education is how we can help others by informing them, perhaps giving them some new tools to work with what they are facing. Usually our intent is to make their lives better.

Which leads to how I became involved with patient education at UWMC and why I keep coming back.

I first came to UWMC in 1983 following a severe spinal cord injury. As I arrived on a gurney, the sign at the 8-North reception desk was right at my eye level: “Welcome to Rehabilitation Medicine.”

Rehab means to me to repair, restore, make it new again.Over the months that followed, I learned that the Rehab team’s goals and my

expectations were not the same thing. I expected them to “fix me” and they aimed to help me become the most functional with what I had left. The nurses and my Occupational Therapist taught me how to do the very basics of self-care and activities of daily life. And I learned how to drive again – freedom!

They had much more patience with me than I did with myself or with them. Even in the times when I was frustrated, angry, and probably rude, they continued to teach me. They gave me the tools I needed to take that next step – get back home.

More “Birth Books” on page 2

New Editions of Birth BooksEXCItING NEWs! Updated editions of the birth books are being printed, and will soon be available.

Margaret Bolger, Program Coordinator in the Maternal and Infant Care Center, and Debi Grace, Nurse Manager of the Mother Baby Unit, spearheaded efforts to revise the two books that expectant and new mothers receive at UW Medicine. The first book, Pregnancy and Giving Birth, has 42 chapters that cover a wide range of information expectant mothers want to know, from “Common Tests During Pregnancy,” to how to create a birth plan, to “Nutrition and Food Safety During Pregnancy.” All women who come to UW Medicine for their prenatal care receive this book.

Women who give birth at UWMC receive the 28-chapter book, Caring for Yourself and Your Newborn, while they are still in the hospital. This book continues where the first one leaves off. It contains information about “Newborn Screening,” “Car Seat Safety,” many chapters about breastfeeding, and much more.

PuBlishEd By uWMC PatiENt aNd FaMily EduCatioN sErviCEs WiNtEr 2013

Patient Advisor Kirk Hennig was guest speaker at the 2012 Golden Eddy Awards Ceremony on November 1.

Using Teach Back and Patient and Family Education

Patients who were asked to teach

back also perceived they had sufficient time with their doctor.

When more senses are

involved in learning, more connections are made to the information, facilitating retrieval.

Even educated and assertive

patients have trouble expressing their preferences with health care professionals. We intimidate them.

After saving lives, the most

important service of health care providers is patient and family education.

From blog postings by Fran London, MS, RN, author of the book No Time to Teach: http://notimetoteach.com.

More “Golden Eddys” on page 2

In the end, I was pretty grateful. It was natural to come to the hospital whenever a nurse or therapist called, wondering if I’d meet a current patient or maybe show my car transfer technique. So my start with educating other patients came from wanting to help those who came behind me and to give back.

In late 2002, a new approach known as Patient and Family Centered Care (PFCC) was introduced here at UWMC, and a rehab nurse recommended me to be on the Rehab Advisory Council. The first meeting in January 2003 was exciting, invigorating, and humbling.

Exciting to be one of the first three PFCC councils formed at UWMC. Invigorating because this approach to care embraces the patient and their family

as integral and valued participants along with the care providers. Gone would be the classic model of an authoritarian doctor issuing orders to the various care providers who would in turn carry out those orders for the patient. Our council was encouraged to consider all aspects that would improve the delivery of services to those who matter: patients and their families. Plus, there was “support from the top,” which continues

today to the very top with the support of Stephen Zieniewicz, Executive Director.

And that first meeting was humbling because there were folks with far more challenging conditions than I had. They all wanted to give back, to make it better for others. I went home feeling very thankful for how lucky I was.

So, why am I involved?• Togiveback• Tohelpthosewhofollowanot-so-easy

path to progress more quickly• Becausechangesdogetmadewhenwe

have the support of those above • Itmakesadifferenceforthosewho

count: the patient and their families• Itfeelsreallygoodtomakeapositive

difference to someone elseThank you for your work on patient

education and making a difference.

PatientEducator, WINTER 2013 Page 2

New and experienced mothers alike appreciate leaving the hospital with this helpful “how-to” book that includes phones numbers of who to call when help is needed.

Margaret and Debi called on many clinical experts to review every chapter of these books. These new editions represent the collaboration of a very talented team. Hats off to all contributors for completing extensive revisions in a timely manner!

For a complete list of each book’s chapters, please see the listings on pages 4 and 5 of this newsletter. Note that some chapters appear in both books.

Once the printer delivers the final books, we will post the new chapters on Health Online. Each chapter will be listed as an independent title and will carry the new publication date of 12/2012.

Birth Books Continued from page 1

Golden Eddys Continued from page 1

New Insights about visitors to the hirCEaCh quartEr, the Health Information Resource Center (HIRC) asks its visitors to fill out a short questionnaire. The data we gather allows us to tailor services and resources and provides information about the users – for instance, more outpatients than inpatients used the HIRC this past October.

Providing access to reliable and current health information is one of our primary services. We recently added new survey questions to find out what people are doing with the health information they received.

Most people indicated that the health information they were given at the HIRC answered their questions, and about half of those people said they planned to change their behavior based on what they learned. More than 90% of survey respondents said that the HIRC improved their overall experience at UWMC.

The HIRC is staffed weekdays from 10 a.m. to 4 p.m. to help patients and families find resources and information. It is located in the main hospital lobby next to the gift shop.

For more information, please call the Health Information Resource Center at 598-7960, visit our website at http://depts.washington.edu/healthed, or e-mail us at healthed@uw.edu.

Now You Can Nominate Colleagues for a Golden Eddy Award Year-Round!iN yEars Past, we accepted your nominations for Golden Eddy Awards in late summer, in preparation for the award ceremony in the fall. Starting in 2013, you can nominate your colleagues for the Outstanding Educator award at any time.

The new 2013 Nomination Form is now available online. Go to the PFES Intranet site at https://uwmc.uwmedicine.org/bu/PFES/Pages/default.aspx and click on “Outstanding Educator Nomination Form 2013” at the bottom of the left-hand column.

It’s never too early to nominate!

What’s New on Health online?PFEs staFF – health editor, graphic designer, and proofreader – have spent much of our time these last several months completing revisions to the two birth books featured on the first page of this newsletter – but we have also finalized 48 other patient education documents this past quarter (see the complete list on pages 4 and 5). All titles are available on Health Online: https://healthonline.washington.edu. Here is just a sampling of the completed projects:

Sue Moore, RN2 in the Regional Heart Center, completed revisions to the Heart Transplant Manual last quarter. This manual contains 11 chapters and

an appendix that provide information about many things a recipient of a new heart would want to know, from safely returning to an active lifestyle, to physical therapy after transplant, common infections, nutrition, medications, and much more. See page 4 for a complete list of the contents of this new edition of the manual.

Joni Herrington, Clinical Nurse Specialist at UWMC, and Vicki Johnson, Stroke

Center Manager at HMC, wrote the new handout “Stroke Discharge Education.” This handout is for patients who have had a stroke, a stroke-related condition, or are at risk for stroke. It can help answer some of the most common questions about stroke

diagnosis, personal stroke risk factors, a treatment plan to prevent future strokes, and recommendations for follow-up visits for care and rehabilitation.

Ginna Wall, Lactation Services Coordinator RN3, and Ruth Bay, RN in the NICU, completed the

new handout “Donor Human Milk Program” to coincide with UWMC’s new program to start using donor milk. This handout explains the program, why some mothers use donor milk when their own milk is not available or quantities are not sufficient and supplementation is needed, safety concerns and risks, and where to learn more.

Petra Lamon, Imaging Services Education Coordinator, and Michelle (Missy) Wanner,

Nuclear Medicine/PET Supervisor, completed 14 handouts this past quarter – three new titles and 11 revisions. The new

titles are “Multi-Gated Acquisition (MUGA),” “Thyroid Cancer Dosimetry with I131,” and “Thyroid Cancer Survey Using I123.” These last two, along with the newly revised “I131 Radioactive Iodine to Treat Thyroid Cancer,” replace the longer 2010 handout “Receiving Radioactive Iodine for Thyroid Cancer.”

REVISED

PatientEducator, WINTER 2013 Page 3

REVISED

About RevisionsRemember – when you see that a revised version of a handout you use is available, please recycle any printed copies you have of the old version, discard any old electronic files, and start using the current version. The new version will have not only updated contact information, but also the latest clinical information. It might even have a new title!

PatientEducator, WINTER 2013 Page 4

4th QuARtER 2012New, revised, or translated Patient Education Materials This list is now organized by authoring department. All titles are on Health Online at https://healthonline.washington.edu.

Bone and Joint surgery CenterAfter Your Scaphoid Fractures and

Non-unions Surgery (Rev. 11/2012)American Academy of Orthopaedic

Surgeons Recommendations - RU, SO, SPAntibiotics After Joint Replacmenet - RU,

SO, SPCare After Your Spinal Surgery

(Rev. 08/2012)

Cardiac transplant servicesHeart Transplant Manual (Rev. 10/2012): Accelerated Graft Atherosclerosis Acyclovir Azathioprine Cardiac Rejection Clinic Procedures Cyclosporine General Health Guidelines Immune System Important Phone Numbers Infections Medicines Mycophenolate Nutrition Physical Therapy Prednisone Social Work Services Tacrolimus Valganciclovir When to Call Your Cardiac Transplant Team Your Cardiac Transplant Team Your Notes

digestive disease CenterEndoscopy (Lower) - KO

Food and NutritionFirst 2 Weeks After Gastric Bypass Surgery

(Rev. 10/2012)Nutrition After Your Transplant

(Rev. 10/2012) - CH, KO, SP, VI

imaging servicesCardiac PET Scan for Cardiac Inflammation

- CH, RU, SPChest Port - CH, SP, VIContrast Extravasation - CH, RU, SP, VII123 MIBG Scan (Rev. 09/2012)I131 Radioactive Iodine to Treat Thyroid

Cancer (Rev. 12/2012)Multi-Gated Acquisition (MUGA)PET/CT FDG Brain Scan (Rev. 12/2012)PET/CT FDG Scan (Rev. 12/2012)PET/CT FDG Scan for Patients with Diabetes

(Rev. 12/2012)Radiofrequency Ablation to Treat Solid

Tumors - CH, KO, PU, RU, SP, TA, VIThyroid Cancer Dosimetry with I131Thyroid Cancer Survey Using I123Thyroid Uptake and Scan (Rev. 10/2012)

- KOYttrium-90 Radiotherapy - CH, RU, SP, VI

lactation servicesDonor Human Milk Program

Maternal and infant Care ClinicBirth Book I – Pregnancy and Giving Birth

(Rev. 12/2012): Baby Blues and More Benefits of Breastfeeding Birth and Labor Photos, Videos, and

Audio Recordings Birth Choices Breastfeeding Resources

Breastfeeding Support Car Seat Safety Circumcisions at UW Neighborhood Clinics Comfort Measures During Labor Common Symptoms During Pregnancy Common Terms of Pregnancy and Birth Common Tests During Pregnancy Getting Ready to Give Birth Growing Together: 14 to 16 weeks Growing Together: 18 to 20 weeks Growing Together: 2 months Growing Together: 24 weeks Growing Together: 28 weeks Growing Together: 3 months Growing Together: 30 weeks Growing Together: 32 weeks Growing Together: 34 weeks Growing Together: 36 weeks Growing Together: 38 to 40 weeks Guide to Prenatal Testing Helpful Phone Numbers Infant Safety in the Hospital It’s Time! My Birth Plan Nutrition and Food Safety During

Pregnancy Packing for the Hospital Pain Relief During Labor Planning Ahead Preparing for a Cesarean Birth Stages of Labor and Birth Taking Care of Your Teech and Gums Warning Signs During Pregnancy Welcome Your Family Planning Your Health Care Team Your Personal Safety Your Prenatal Care

More “New, Revised, or Translated” on page 5

Please route this issue of PatientEducator to your staff. Find links to this and previous issues at https://healthonline.washington.edu and the PFES website at https://depts.washington.edu/pfes. Patient and Family Education Committee Members: Susan Barnes, Briana Brewer, Carol Charles, Sherry Dodson, Andrea Dotson, Alison Evert, JoAnn Field, Linda Golley, Leslie Hampton, Debbie Jones, Dori Khakpour, Stacia Lee, Gary Martin, Karen Moe, Debby Nagusky, Maria Ross, Carrel Sheldon, Nancy Colobong Smith, Leah Spacciante, Julie Sprinkle, Nancy Tvedt, Richard Verver, Nancy Whittington, Pam Younghans

PFES Core Purpose:

We’re here to inform patients about their health and empower their decision-making about their health care.

Patient and Family Education Services

Box 3594201959 N.E. Pacific St.

Seattle, Washington 98195

Editor: Carrel Sheldon, 206-598-7498carrels@u.washington.edu

TakingCareofYourselfAfterYourBaby’sBirth WarningsSignsintheMotherAfterGivingBirth Welcome WelcometotheMotherBabyUnit YourFamilyPlanning

Nutrition Clinic1,000 Calorie Diet1,000 Calorie Meal Plan1,200 Calorie Diet1,200 Calorie Meal PlanTaking Vitamins and Minerals After Bariatric

Surgery (Rev. 11/2012)Very Low Calorie Diet (Rev. 11/2012)

OtolaryngologyCochlear Implant - KO, SP, RU, VI

Outpatient Advisory CouncilMaking the Most of Your Clinic Visit

(Rev. 10/2012)

Patient Care ServicesWhile Your Loved One Is Having Surgery - RU, SP,

VI

Physical TherapyCrutch Walking

Prenatal Diagnosis ClinicExpanded Carrier Testing

Regional Heart CenterAfter Your Implantable Cardiac Defibrillator (ICD)

Generator Change (Rev. 10/2012)After Your Pacemaker Generator Change

(Rev. 10/2012)

PatienteducatorWINTER 2013

Your Follow-up Appointments for Your Subcutaneous Implantable Cardiac Defibrillator (ICD) (Rev. 10/2012)

Your Subcutaneous Implantable Cardiac Defibrillator (ICD) (Rev. 10/2012)

Social WorkGuide Through Grief - SPPlanning a Funeral

Stroke ClinicStroke Discharge Education

Surgical Specialties CenterBariatric Medicines

(Rev. 12/2012)Discharge Instructions for

Bariatric Patients (Rev. 12/2012)Your Appointment at the Surgical

Specialties Center

All titles are available in English. Dates indicate revisions of existing handouts. Titles that have revision dates and language listings were both updated and translated this past quarter.Translations key: AR = Arabic, CH = Chinese, FA = Farsi, JA = Japanese, KO = Korean, RU = Russian, SP = Spanish, TA = Tagalog, VI = Vietnamese

Wait One Year Packet Coping with Grief After Losing a Preterm Baby

- SP Coping with Stress After a Preterm Birth - SP Taking Care of Your Teeth and Gums Wait 1 Year - SP Welcome to the Wait One Year Program

Mother Baby UnitBirth Book II – Caring for Yourself and Your

New Baby (Rev. 12/2012): After Your Cesarean Birth After You’ve Had Your Baby Baby Blues and More Before You Leave the Hospital Breastfeeding Resources Car Seat Safety Caring for Your Baby Circumcisions at UW Neighborhood Clinics Comfort Measures for Postpartum

Engorgement of the Breasts Common Concerns About Breastfeeding Constipation Helpful Phone Numbers How Is Breastfeeding Going? Is It Safe to Take This While I’m Breastfeeding? Jaundice and Your Newborn Keeping Your Baby Safe Newborn Screening Newborn Warning Signs Pain Control After a Cesarean Birth Pain Control After a Vaginal Birth Position and Latch for Breastfeeding Pumping and Storing Breast Milk Sore Nipples

New, revised, or translated Continued from page 4