estate and special needs planning. mary e. o’byrne [email protected] ...

147
ESTATE AND SPECIAL NEEDS PLANNING

Upload: amos-andrews

Post on 18-Dec-2015

218 views

Category:

Documents


1 download

TRANSCRIPT

Page 1: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ESTATE AND SPECIAL NEEDS PLANNING

Page 2: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

MARY E. O’[email protected]

www.frankelderlaw.com

• Mary is a Maryland attorney in private practice, concentrating in special needs and estate planning for people with disabilities and their families.

• She is an advocate for the financial security of people with disabilities.

• She currently leads the Special Needs Trust Advocates meeting with the Social Security Administration to improve the treatment of special needs trusts for people on SSI.

• She is a member of the Special Needs Alliance, chair of the National Academy of Elder Law Attorneys (NAELA) Trusts and Special Needs Trust Section, and is a member of the Board of Directors of NAMI-Metropolitan Baltimore.

Page 3: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BRIAN RUBINBUFFALO GROVE, ILLINOIS

• Attorney Brian Rubin is the father of a thirty year old son with Autism, OCD, and Bi Polar Disorder.  Brian’s law practice is LIMITED to appropriate "Special Needs Future Planning" for his fellow Illinois parents and families of children and adults with special needs.

• He is a frequent lecturer to NAMI Chapters in Illinois • 05/21/09 NAMI McHenry County, in

Crystal Lake.• 05/12/09 NAMI Cook County North

Suburban Chapter at New Trier H.S., in Northfield.

• 02/14/04 NAMI, Elgin.• 11/24/03 NAMI Skokie

Page 4: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Member of Special Needs Alliance Family worked three generations in California State HospitalsWorked 17 years as a Psychiatric Technician

45/8/2014The Dale Law Firm, PC - 127 Aspen Dr., Suite 100, Pacheco, CA 94553 (925) 826-5585

STEPHEN W. DALE [email protected]

WWW.ACHIEVINGINDEPENDENCE.COM

Page 5: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT WE WILL COVER

Who is the SNA? Stephen W. Dale

Overview of estate planning Mary O'Byrne

Understanding your goals Mary O'Byrne

Overview of public benefits Stephen W. DaleSelecting and using trusts in planning for your family member with disabilities. Stephen W. DaleOptions for decision making by and for your family member Brian Rubin

Educating the team about your family member Brian Rubin

Revisiting your planning over time Mary O’Byrne

Questions

Page 6: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ABOUT THE SPECIAL NEEDS ALLIANCEWHO ARE WE?

• The Special Needs Alliance is a group of attorneys who focus on estate planning for persons with disabilities.

• We have members in almost every state and metropolitan area of the United States.

• Not just any attorney can join, to be admitted you must show that you are a leader in your community.

• The SNA is a not-for-profit organization and its members provide information about the legal issues of special needs planning to groups of all sizes.

Page 7: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

FIND THE SPECIAL NEEDS ALLIANCE MEMBER IN YOUR COMMUNITY

• Special Needs Alliance attorneys tend to be advocates rather than document sellers

• Most can speak to your group on a variety of subjects

Page 8: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

THE VOICE

Page 9: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

LASTLY

• If you have an attorney in your region that you feel is leader in your community and an advocate for persons with please give us their name and contact information.

• We are always looking for the best to join the Special Needs Alliance team so we can better serve persons with disabilities and their families

Page 10: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ED ROBERTS

Anyone can join our group at any point in life. In this way, the Disability Rights Movement doesn't discriminate.

Page 11: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

OVERVIEW OF ESTATE PLANNING

MARY E. O’BYRNE

Page 12: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ESTATE PLANNING

• A process made up of a series of steps and tasks

taken to manage your assets (income and

property), provide for loved ones and minimize

taxes during your lifetime, in the event of your

incapacity and at your death.

Page 13: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ESTATE PLANNING

• Includes how and to whom assets will be distributed at death, payment of debts and taxes, and provision for charitable giving and much more.

Page 14: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ESTATE PLANNING

• Best done with current and comprehensive information about all assets and liabilities: real and personal property, bank and other financial accounts including tax-deferred and retirement accounts, insurance, sources of income, debts.

Page 15: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ESTATE PLANNING

• Best done with periodic reviews and updates

Page 16: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT’S IMPORTANT IN YOUR ESTATE PLANNING?

• Providing for others, such as a surviving spouse and other family members, as well as those with disabilities, and for charitable giving.

Page 17: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT’S IMPORTANT IN YOUR ESTATE PLANNING?

• Coordination with others who may wish to provide for the person with disabilities, such as former spouses, your parents and other extended family members.

Page 18: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT’S IMPORTANT IN YOUR ESTATE PLANNING?

• Calculating the financial needs for your loved one.

• Financial planning to achieve target funding.

• Tax planning.

Page 19: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT’S IMPORTANT IN YOUR ESTATE PLANNING?

• Selecting fiduciaries.

• In search of :

• Job’s patience• Martha Stewart’s organizational skills • Abe Lincoln’s honesty• Warren Buffet’s investment savvy• Ralph Nader’s advocacy• George Burns’ longevity

Page 20: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT’S IMPORTANT IN YOUR ESTATE PLANNING?

• Understanding probate and non-probate assets.

Page 21: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT IS PROBATE?

• Probate is a court process that validates a Will, and guides the collection of the assets of the deceased, the payment of debts and taxes, and distribution of assets to the right people/entities.

• Not all assets pass through probate.

Page 22: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT DOESN’T GO THROUGH PROBATE?

• Generally,

• Assets that are jointly owned, and titled with a survivorship provision (“joint tenants”, “joint tenants with right of survivorship”, “tenants by the entirety”)

• Assets that have a beneficiary designation: retirement accounts, life insurance policies, annuities, brokerage accounts with a “transfer on death” provision, bank accounts with a “payment on death” provision.

• Assets in a trust.

Page 23: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT’S IMPORTANT IN YOUR ESTATE PLANNING?

• Preparation of the right documents.

Page 24: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT’S A WILL?

• A Will is legal document, executed according to state law, which instructs how an individual’s probate estate is to be managed and distributed after death and appoints the people or entities who will carry out these instructions.

Page 25: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT’S A TRUST?

• A Trust is a legal entity created by a grantor for the benefit of one or more beneficiaries under the laws of the state and a valid trust document which appoints a trustee to manage and administer the trust assets.

• A trust may be established under your Will (testamentary trust) or during your lifetime (inter vivos or living trust.)

• It may be revocable (can be changed) or irrevocable (cannot be changed).

Page 26: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT TYPE OF TRUST DO I NEED?

• There are many types of trusts; what type and what characteristics suit your planning will depend on many factors, such as your financial and tax situation and the needs of your family members for whom you are planning.

Page 27: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

UNDERSTANDING GOALSMARY E. O’BYRNE

Page 28: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT ARE YOUR PLANNING GOALS FOR LOVED ONE WITH MENTAL ILLNESS?

• Meeting basic needs, but what else? • Enjoyment of a personally and emotionally fulfilling life.• Financial security – public benefits, protection of assets.• Education. • A safe and secure place to live. • Opportunity for meaningful work. • Safety net for difficult times.• Someone to keep an eye out for problems. • Advocacy. • And ….

Page 29: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

CONSIDER YOUR GOALS IN DETAIL

• What do you want to provide and what are your values related to this?

• How will you make this plan happen? • What people resources will be needed?

• Trustees, care managers, family, friends, advocacy groups.

• What financial resources will be available? • How much will be needed? • How to fund this plan? • How to supplement public benefits?

• Selecting the right tools and documents to carry out your plan.

Page 30: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

EXAMPLE: YOU WANT YOUR CHILD TO BE ABLE TO LIVE IN YOUR HOME WHEN YOU DIE.

• What are the costs to carry and maintain the property? Are there funds to cover this?

• Can your child live safely alone?• Is your child able to maintain the property and be

a good neighbor? • Is this a good environment for your child?• Is this what your child wants?• What if your child moves out?

Page 31: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• You have a daughter named Kathy who has schizophrenia.

• Kathy is likely to need some level of assistance for the rest of her life.

• You come to the estate planning attorney to provide for her needs in the event of your incapacity or death.

• Kathy is otherwise healthy and is likely to live 70 years or longer.

IMAGINE

Page 32: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Benefit laws may will change Social service systems will

change Her condition may change Her advocacy system may

change Attitudes may change The amount of resources she

needs may change Trustee options will change

THE CHALLENGE

Page 33: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

THE BIG QUESTION

Does my disabled loved one need Special Needs Planning?

• Assistance in managing funds• Build flexibility to deal with

changed circumstances • Focus on advocacy and asset

protection• Could maintaining qualification

for SSI or Medicaid be a tool to assist my disabled loved one?

Page 34: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

THE BIG QUESTION

Think of the special needs trust as a private social system

Page 35: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

35

LET’S BEGIN WITH BASICS

Page 36: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BENEFIT BASICSSTEPHEN W. DALE

Page 37: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

PUBLIC BENEFITS BASICS

Benefits Based on Entitlement (NOT based on need)

• Social Security• Medicare• Special Education

Needs Based Benefits • Supplemental Security

Income (SSI)• Medicaid• Food stamps, legal aid, and

utility payment assistance• Housing subsidies (H.U.D.

or Section 8)• In Home Support Services

Page 38: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BENEFIT BASICS

Supplemental Security Income

Social Security

Medicaid Medicare

Cash Assistance

Medical Assistance

Needs Based BenefitsBenefits based on Entitlement

Page 39: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

SUPPLEMENTAL SECURITY INCOME

Supplemental Security Income

• SSI is a federal program, based on sufficient evidence of disability and financial need

Page 40: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

SUPPLEMENTAL SECURITY INCOME

Supplemental Security Income

SSI is intended to pay for the beneficiary's food and shelter and nothing more.

Page 41: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

SUPPLEMENTAL SECURITY INCOME

Supplemental Security Income

•In 2014, SSI pays $721 (some states add automatic supplement)

Page 42: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Meet disability definitionIncome test determines how

much is received. Resource test

3 Part SSI Test

Page 43: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

TYPES OF SSI INCOME

Unearned Income Earned Income In-Kind Support & Maintenance

Includes gifts, payments from annuities and pensions, alimony & support payments, dividends, interest, rents, awards and payment from other benefit programs.

Consists of wages, royalties, net earnings from self-employment, and any honoraria received for services rendered.

Actual receipt of food, clothing, or shelter, or something that can be used to get one of these.

Reduces benefits dollar for dollar after the first $20

Reduces benefits one dollar for every two dollars after the first $65 earned monthly

Reduces benefits dollar for dollar up to a maximum of $260.34 in 2014

Page 44: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BASICS OF SSI ELIGIBILITY RESOURCES

• Anything that can be converted to cash for support is a resource.

• “Income” isn’t a resource in month received

• If resources exceed $2,000 on the first day of a calendar month, the beneficiary's public benefits will be lost until resources are reduced.

Page 45: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BASICS OF SSI ELIGIBILITYEXEMPT RESOURCES

• A home, if the beneficiary has an ownership interest and it serves as his/her principal residence.

Page 46: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BASICS OF SSI ELIGIBILITYEXEMPT RESOURCES

• Household goods of any value – as of March 2005

Page 47: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BASICS OF SSI ELIGIBILITYEXEMPT RESOURCES

• One automobile of any value (as of March 2005)

Page 48: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BASICS OF SSI ELIGIBILITYEXEMPT RESOURCES

• Items related to the disability

Page 49: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BASICS OF SSI ELIGIBILITYEXEMPT RESOURCES

• Life insurance policies with cash surrender value, if their total face values amount to less than $1,500, and

• All term life insurance. • A burial plot, or other burial

space, worth any amount.• Up to $1,500 set aside for burial

expenses

InsurancePolicy

Page 50: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BASICS OF MEDICAID ELIGIBILITY

• “SSI” states: If an SSI beneficiary receives at least $1 of SSI, the beneficiary then receives full Medicaid automatically• And if beneficiary LOSES SSI, Loses Medicaid

• “209(b)” states: may have other rules – may get Medicaid without SSI, or lose it even if keep SSI

Page 51: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

MEDICAID BENEFIT BASICS

Covered health services include: “medically necessary” durable medical equipment, pharmaceutical goods, medical services and treatments, hospitalization including nursing care and dental care. In addition, there are often attendant care and residential programs that base their funding on Medicaid.

Medicaid

Page 52: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Social Security

CDB Benefit Basics

A disabled child may be eligible for Social Security “Disabled Child” benefit if a parent is eligible and the child's disability began before age 22.

DIFFERENT FROM SSI

Page 53: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Social Security

CDB Benefit Basics

Benefits do not become payable until the eligible parent dies, retires, or becomes disabled.

Page 54: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Social Security

CDB Benefit Basics

Social Security is not affected by the child's assets, but the child's earned income may result in an ineligibility determination

Page 55: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

CDB: HOW MUCH?

• Upon the disability or retirement of the parent, an eligible disabled child will receive an amount equal to 1/2 of the parent’s benefit

• Upon the death of the parent, an eligible disabled child will receive an amount equal to 3/4 what the parent’s SSA benefit.

Page 56: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

CDB EXAMPLE • Example• Helen has been disabled from birth,

and is receiving $721 in SSI monthly• Helen’s father, Earl, retires and

receives $1,400 a month. Helen begins to receive $700 per month in CDB, and $41SSI (includes $20 disregard)

• When Earl Dies, she will get $1,050 CDB and loses SSI, and could affect Medicaid

Page 57: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

CDB AND MEDICAL COVERAGE

• When CDB benefits are awarded, SSI may be discontinued

• Medicare benefits will be available to the beneficiary in the 25th month after being awarded CDB as long as the beneficiary has been entitled as a person with disabilities for at least 24 consecutive calendar months

• Need to keep some kind of health benefits (Medicaid or private coverage through the ACA) until that time

Page 58: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Medicare Benefit Basics• Medicare is a federal health insurance

program for people over 65 and people under 65 who have been receiving Social Security based on disability for two or more years.

• Persons can be eligible for both Medicare and Medicaid

• Medicaid is payor of last resort and covers long term care costs.

Page 59: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BASICS OF SPECIAL NEEDS TRUSTS

STEPHEN W. DALE

Page 60: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHAT IS A TRUST?

A CONTRACT• In which someone (the TRUSTEE)

agrees to hold property (TRUST PROPERTY) for the benefit of someone else (TRUST BENEFICIARY)

• Can be established in the text of a WILL(testamentary trust) or in aSEPARATE DOCUMENT(inter vivos trust)

• There can be a great amount of flexibility with a skilled attorney - think of the trust as a care plan.

Page 61: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

BASIC CONCEPT:SPECIAL NEEDS TRUST

A special needs trust is drafted specifically so trust assets are considered not to be "available resources" in calculating the disabled person's eligibility for needs based benefits.

Trust income also isn’t counted

Page 62: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

SPECIAL NEEDS TRUSTS CAN BE DIVIDED INTO TWO CATEGORIES

• If the source of the fund are from someone other than the benefits recipient, the trust is categorized as a Third Party Special Needs Trust

• If the source of the funds of the Special Needs Trust are from the benefit’s recipient, then the trust is categorized as a self settled or MediCal Payback Trust

Special Needs Trust

3rd party

No recovery upon death of

beneficiary

Special Needs

Trust Self Settled

MediCal Payback

Medicaid Recovery upon Death of

Beneficiary

Page 63: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

THIRD-PARTY TRUSTSOCIAL SECURITY SAYS

SI 01120.200 A 17

• A third-party trust is a trust established by someone other than the beneficiary as grantor. For example, a third-party trust may be established by a grandparent for a grandchild.

Special Needs Trust

No recovery upon death of

beneficiary

Page 64: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

THIRD-PARTY TRUSTSI 01120.200 A 17

• A third-party trust can have great latitude, and upon the death of the beneficiary can be left to anyone you wish except:

• You cannot leave it to the drafting attorney (though you can leave something to NAMI)

Special Needs Trust

No recovery upon death of

beneficiary

Page 65: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

SELF SETTLED SPECIAL NEEDS TRUSTSOR MEDICAID PAYBACK TRUSTS

.

• SI 01120.203 B1 (POMS)• Federal Law Allows A Disabled Individual

to Protect Their Own Assets And Maintain Their SSI AND Medicaid If The Special Needs Trust • Which contains the assets of an

individual under age 65 and who is disabled ; and

• Which is established for the benefit of such individual by a parent, grandparent, legal guardian or a court; and

Self Settled Medicaid Payback

Medicaid Recovery upon

Death of Beneficiary

Page 66: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

SELF SETTLED SPECIAL NEEDS TRUSTSOR MEDICAL PAYBACK TRUSTS

SI 01120.203 B1.

• Federal Law Allows A Disabled Individual to Protect Their Own Assets And Maintain Their SSI AND Medicaid If The Special Needs Trust • Which provides that the State will

receive all amounts remaining in the trust upon the death of the individual up to an amount equal to the total medical assistance paid on behalf of the individual under a State Medicaid plan.

Self Settled MediCal Payback

Medicaid Recovery upon

Death of Beneficiary

Page 67: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

A POOLED TRUST IS A TRUST

SI 01120.203 B2A

• It is sometimes called a “master trust” because it contains the assets of many different individuals, each in separate accounts established by individuals, and each with a beneficiary. • By analogy, the pooled trust is like a

bank that holds the assets of individual accountholders.

Page 68: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

SUPPORTING DECISION MAKING – POWERS OF ATTORNEY, ADVANCE DIRECTIVES,

GUARDIANSHIP AND ALTERNATIVES

BRIAN RUBIN

Page 69: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

The“SITUATION”

Page 70: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• School• Doctors/Hospitals/Insurance

Claims• Signing documents/Contracts• Dealing with SSA /State• Residential/Living

arrangements• Employment/Day Programs,

Agencies• Marriage• Driving• Arrests – DD/ID is NOT

Diplomatic Immunity…

Page 71: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• If that is the situation, then: What do you do WANT

to do?

What CAN you do to help Sam?

Page 72: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

OPTIONS ?

What are the

Page 73: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Before considering“Guardianship”,

ALWAYSfirst consider theALTERNATIVES

Page 74: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

SSA REP. PAYEE for SSI/SSDI JOINT BANK ACCOUNT ACCOUNT SIGNATURE AUTHORITY – FAMILY/FRIENDS STATUTORY SURROGATE LAWS IN MANY STATES

ALTERNATIVES – “maybe”

Page 75: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary
Page 76: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Powers of Attorney

•Financial/Property

•Health Care/Medical/Living Will

•Mental Health Treatment

•Could be – (just like for a Guardianship)

• Temporary

• Limited/Partial

• Full/Complete

ADVANCE DIRECTIVES

Page 77: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

1. State statute? State case law?2. What is Sam’s understanding &

appreciation of the “Role” of an “Agent”.

3. What is Sam’s understanding & appreciation of the powers of the Agent, as well as the limitations on those powers, & his ability to terminate the agency.

Does Sam have “capacity”to sign Powers of

Attorney?

Page 78: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

When someone is an adult, 18 in most

states, that person is presumed fully legally

competent, and only IF a court determines otherwise, is that

person not deemed competent…

Page 79: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

1. Will Sam sign them?2. Who will Sam agree to be his

Agent(s)? Sam’s choice(s)?3. What “powers” will Sam agree

to “give” to the Agent(s)?4. Will Sam allow the Agent(s) to

act, or will Sam terminate the Agency as soon as… when…?

IF Sam does have “capacity”to sign Powers of Attorney

Page 80: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Should the Power(s) of Attorney, be “IMMEDIATE” or “SPRINGING” ?

What powers should be added to statutory versions?

IF Sam does have “capacity” to sign & will sign Powers of Attorney.

Page 81: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Education Government Benefits IRS Residential Hospital Admission Employment matters Funding self settled (d4A/C )

SNTs HIPAA release

Example additional Powers,when appropriate… subject to State’s

statutory forms…

Page 82: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

9 PAGE FORM

Page 83: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

7 PAGE FORM

Page 84: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Page 1 of 5

5 PAGE FORM

Page 85: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary
Page 86: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary
Page 87: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary
Page 88: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

What if Sam refuses to sign? What if Sam does not have the

“capacity”, at this time, to sign? What if Sam just can’t help

getting himself into trouble, maybe legal, maybe criminal, maybe financial, maybe personal, maybe medical/health related?

What if Sam is a danger to himself or others?

Page 89: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Again, when someoneis an adult, 18 in most states, that person is presumed fully legally competent, & only IF

a court determines otherwise, is that person not deemed competent…

Page 90: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

SO… the questions…

• Is Sam able to fully manage his personal, medical, & financial decisions?

• Could Sam be vulnerable to others?

Page 91: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Is Sam in the appropriate“state of mind” to make his own, good, financial, medical/mental health decisions?

Page 92: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• We all value our right to make our own choices & how we have the right to make choices that, may, not always be in our best interest. (i.e. what others my consider poor choices).

1st CONSIDER…

Page 93: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• Some of the activities around which we all desire to make our own choices are our freedoms of:• privacy • with whom we choose to associate

• where and how we travel• how we take care of our bodies.

CONSIDER…

Page 94: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

& consider that within this group of “poor” choices is a subset of decisions, choices &/or behaviors, that might even be considered, by others, maybe by society, to be controversial, &/or risky.

Page 95: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

That to the maximum extent of one’s capabilities, all individuals should be permitted to participate, as fully as possible, in all decisions that will affect that individual.

& CONSIDER…

Page 96: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

•Does Sam demonstrate a capacity to understand the decisions/choices to be made?

• Is Sam thinking rationally?

•Can Sam articulate his decisions/choices ?

So ask yourself…

Page 97: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• Can Sam reach responsible decisions &/or choices?

• Are Sam’s decisions & choices realistic?

• Can they be accomplished or implemented?

• Can they pose a risk to himself or to others ?

Remember, they are Sam’s decisions, Sam’s choices,

and not your decisions, not your choices…

Page 98: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

If Sam can’t, or won’t sign powers of attorneys…

& if you have asked yourself all of these questions…

then maybe… just maybe, “some form” of Guardianship could be appropriate to help, & to protect Sam, from himself, & from others…

Page 99: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

A legal relationship between an individual (the guardian) who has been given the legal authority & duty to make decisions on behalf of another individual (the ward) ,who lacks sufficient capacity to manage his or her own affairs or make & communicate important decisions.

What is a Guardianship?

Page 100: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Guardianship is acquired by demonstrating to a judge that the person lacks the capacity to make decisions, due to a lack of meaningful understanding of the nature of his/her situation, due to mental illness.

Page 101: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Guardianship is acquired so that the individual can be helped to achieve the highest level of functioning possible, despite self-defeating decisions, choices, & behaviors due to the person’s ID/DD.

Page 102: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Guardianship should seek to preserve for the person the opportunity to exercise those rights that are within his/her comprehension & judgment, allowing for the possibility of error to the same degree as is allowed to persons who are not found by a court not to be competent.

What is a Guardianship?

Page 103: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ADULT GUARDIANSHIP& THE ALTERNATIVES…

Power(s) of Attorney

Temporary/Emergency

Limited/PartialGuardianship

Plenary (Full)Guardianship

Health CareSurrogate Act

With DPAsfor other“areas”?

Must be able toestablish the person’s

inability to managetheir person and/or estate

Page 104: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Will Sam agree to theappointment of a Guardian,

or at least not object…?

How will your decision to proceed for Guardianship, or after your appointment, your decisions as Guardian, impact Sam’s “state of mind”… & your relationship with Sam?

Page 105: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• Do you want to be Sam’s Guardian?

• Are you ready for the 24/7/365 job?

• Is Sam a danger to others &/or to property? Could you be “liable”?

• Can you limit any liability by only seeking “emergency/temporary” or “partial/limited” Guardianship?

• Can you hire a “company” or a “person” to act as Guardian?• What if Sam needs a Guardian, but no one steps forward?

Page 106: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

GUARDIANSHIP

Independence vs. Protection? Court… Law Suit… M.D. Report Sheriff Summons

Page 107: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

GUARDIANSHIP

Guardian ad Litem Parents as “Co” Siblings, others, as “Co”

Agencies’ positions Voting… Driving…

Page 108: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

(625 ILCS 5/6-103) (Source: P.A. 92-343, eff. 1 -1-02.)

• Sec. 6-103. The Secretary of State shall not issue, renew, or allow the retention of any driver's license nor issue any permit under this Code:

• …

• 5. To any person, as a driver, who has previously been adjudged to be afflicted with or suffering from any mental or physical disability or disease and who has not at the time of application been restored to competency by the methods provided by law;

• …

• 8. To any person when the Secretary of State has good cause to believe that the person by reason of physical or mental disability would not be able to safely operate a motor vehicle upon the highways, unless the person shall furnish to the Secretary of State a verified written statement, acceptable to the Secretary of State, from a competent medical specialist to the effect that the operation of a motor vehicle by the person would not be inimical to the public safety;

DRIVER’S LICENSE?

Page 109: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

GUARDIANSHIP When can do it ? Person vs. Estate ? Residential Placement ? Annual Reports ?

• Medical• Education

• Residential• State/Professional Services• No involuntary admission

without court order… ???

(A guardian appointed solely for the purpose of

performing duties related to the care, comfort, and

maintenance of the ward.)

• Financial/Contracts• Estate/Tax matters

• Filing Law Suits• Government Benefits (DUTY)

A guardian appointed solely for the purpose of managing the ward’s property, estate and business affairs. (“Conservator”) in some states)

Even if no assets…• What about SSI/SSDI?• Consider Guardian or

Conservator of the Estate even if no assets, so that contracts can be voided? (Bonds? Reporting?)

Page 110: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

GUARDIANSHIP Move out of State

Move out of County?

Why some parents/siblings decline?

Then what?

Page 111: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Going on vacation?

Page 112: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ShortTermGuardianDeclaration

Page 113: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Disabled yourself

Page 114: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Stand ByGuardianDeclaration

Page 115: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

The Guardian’s “tool box” includes:

• “paper” handcuffs

• rewards to increase the occurrence of desired

behavior

Page 116: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• “leverage”, the use of any legal, appropriate, and ethical strategies, authority, limit setting, rules, and guidelines to increase desired behaviors.

Page 117: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

But remember, “don’t feed the bears”.

• There are behavioral consequences.

• Unearned rewards undermines the use of rewards as leverage.

Page 118: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• Rescuing behavior is codependence… preventing from experiencing the powerful behavioral conditioning provided by natural consequences…

Page 119: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

EDUCATING THE TRUSTEE AND OTHERS ON THE TEAM

BRIAN RUBIN

Page 120: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WRITE IT DOWN!

Providing information,guidance & instructions…

ExtendedFamily

FutureCareProviders

FutureGuardians

FutureTrustees

Page 121: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

ABOUT

MITCH

RUBIN

You need to write it ALL down!

Guidance&InstructionsForFutureGuardians,Trustees,&Care Providers.

Page 122: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary
Page 123: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

123

Sam should be a partner, should be a

particpant in the preparation of this…

Page 124: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

• Family information

& history (relationships), including family

medical history…

WRITE IT DOWN!

Page 125: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

History of:

• diagnoses

• hosptalizations

• medications

• doctors

• other professionals…

• PAST & PRESENT!

WRITE IT DOWN!

Page 126: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Habits & Routines…

WRITE IT DOWN!

Page 127: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Stress relieving techniques

WRITE IT DOWN!

Page 128: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Support system, resources, people & organizations

WRITE IT DOWN!

Page 129: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Behavior… “Dos” & the “Do Nots”, Techniques, “Buzz” Words or Phrases…

WRITE IT DOWN!

Page 130: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

School… Education, Concerns, Suggestions…

WRITE IT DOWN!

Page 131: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Employment? Day Program or activities? Preferred living situation?

WRITE IT DOWN!

Page 132: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Government Benefit

Information

WRITE IT DOWN!

Page 133: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Emergency Information, including DPAs, Short Term & Stand By Guardian Declarations…

WRITE IT DOWN!

Page 134: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Wills, Trusts, Life Insurance, Powers of Attorney, SNT, funeral desires & related info…

WRITE IT DOWN!

Page 135: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WRITE IT DOWN!

Executive

Summary

How to get

through

the next

24 hours

with Mitch…

One to twopages…BULLETPOINTS!

Page 136: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

REVISITING THE PLAN PERIODICALLY

MARY E. O’BYRNE

Page 137: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

•“They always say time changes things, but you actually have to change them yourself”

Andy Warhol   

Page 138: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

•When to review your plan, goals and documents?

Page 139: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHEN TO REVISIT YOUR PLANNING?  

When something important changes, e.g.,

Your loved one’s condition changes.

Page 140: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHEN TO REVISIT YOUR PLANNING?

•When your relationship with and confidence in those you have given important roles (e.g., trustees, agents under power of attorney, advocates) changes due to personal issues, death, loss of trust, credit problems, etc.

Page 141: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

•When your financial situation changes significantly due to such events as retirement, disability, divorce, remarriage, receipt of large inheritance, bankruptcy.

WHEN TO REVISIT YOUR PLANNING?

Page 142: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

•When your or your spouse’s health changes significantly due to a major illness, or accident, diagnosis of a chronic or progressive disease.

WHEN TO REVISIT YOUR PLANNING?

Page 143: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHEN TO REVISIT YOUR PLANNING?

•When changes occur in state or federal laws relating to tax, benefits, the treatment of trusts by benefits programs.

Page 144: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

WHEN TO REVISIT YOUR PLANNING?

•When you or your loved one move to another state.

Page 145: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

•At least every three-five years if none of the above have occurred.

WHEN TO REVISIT YOUR PLANNING?

Page 146: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Questions and

Answers146

Page 147: ESTATE AND SPECIAL NEEDS PLANNING. MARY E. O’BYRNE mobyrne@frankelderlaw.com  mobyrne@frankelderlaw.com  Mary

Thank You !

147