developing a person-centered model of care for …...y 1 dementia care: person-centered clinical...
TRANSCRIPT
LONDON9 & 10 MAY 2013
DEVELOPING A PERSON-CENTERED MODEL OF CARE FOR THE PATIENT
WITH DEMENTIA
A global project of theInternational Conference and Publication Series
on Person-Centered Healthcarewww.pchealthcare.org.uk
MEDICAL UNIVERSITY OF PLOVDIV
The inaugural international conference on developing a person-centered model of care for
the patient with dementia has been organised by:
Imperial College London
The organisers extend grateful thanks to Clere Ltd (www.clere.uk.com) for their major pro bono contribution to the ICPSPCH Website Development
The 1st International Conference on Developing a Person-Centered Approach to the Management of the Patient with Dementia
Dear colleagues
The dementia conference is the inaugural conference in the International Conference and Publication Series on Person Centered Healthcare, a major initiative of the International College for Person Centered Medicine, a global body of distinguished clinicians and scientists working in collaboration with the World Health Organisation, World Medical Association, World Organization of Family Doctors (Wonca), International Federation for Medical Education, International Council of Nurses, International Alliance of Patients Organizations and a wide variety of other worldwide clinical organisations and patient advocacy associations.
The conference has been designed with reference to WHO imperatives for the development of person and people-centered clinical services worldwide and in accordance with the provisions of the 2012 Geneva Declaration on Person-centered Care for Chronic Diseases (see Appendix). The conference will bring together leading colleagues working in all areas of dementia care internationally to establish a pathway for the construction of dementia care and services by building upon current work by the international community in the dementia field and enhancing this through the direct application of the principles and recently advanced methods of person-centered care.
A key activity as part of the dementia project will be the formal consideration of how a humanistic framework of medical, health and social care can be designed and operationalized which applies both science and humanity in a manner that recognises the patient as a person and which responds as fully to his/her psychological, emotional and spiritual requirements as to his/her physical and organic needs. The conference will have a strong methodological emphasis, with key considerations of service re-configuration/re-design, medical informatics/data capture, clinical education and a range of other central factors of relevance to increasing the person-centeredness of dementia care.
A case-based Masterclass has also been built into the programme to illustrate the practical application of the general principles of person-centered care to individual patients. The conference debates and consensuses and all of the clinical, organisational and policy data will be published as a special Supplement of the International Journal of Person Centered Medicine for direct discussion with and policy action by Member States of WHO and others.
We are indebted to our colleagues and friends who gave of their time, expertise and advice in contribution to the planning of conference content and the nomination of speakers and chairmen. We extend grateful thanks to the international clinical organisations and patient advocacy associations that have supported and continue to support this work in dementia: World Medical Association, Alzheimer’s Disease International, INTERDEM, World Federation for Medical Education, World Federation of Neurology, World Federation for Mental Health, International Council of Nurses, European Psychiatric Association, European Association of Geriatric Psychiatry, International Alliance of Patients Organizations, EUFAMI, IPA and the British Society of Gerontology.
We hope to have the opportunity of meeting you at the conference which, together with the major publication that will derive from it - we advance as an important contribution to the transformation of dementia services in accordance with the person-centered model of care.
Professor Andrew Miles MSc MPhil PhD Professor Jon Snaedal MDDirector, ICPSPCH Chairman, Expert Planning CommitteeImperial College London UK National University Hospital of Iceland([email protected]) ([email protected])
POSTER PRESENTATIONS
PRE-
CO
NFE
REN
CE
REC
EPTI
ON
: 8 M
AY
201
3 at
7.4
5 PM
DA
Y O
NE:
9 M
AY
201
3
PLEN
ARY
1
DEM
ENTI
A C
AR
E: P
ERSO
N-C
ENTE
RED
CLI
NIC
AL
PRA
CTI
CE
AN
D P
EOPL
E –
CEN
TER
ED P
UB
LIC
HEA
LTH
7.15
CO
FFEE
AN
D R
EGIS
TRA
TIO
N
8.25
OPE
NIN
G A
DD
RES
SPr
ofes
sor
Juan
Mez
zich
, Pro
fess
or o
f Ps
ychi
atry
, Mou
nt S
inai
Med
ical
Sch
ool,
New
Yor
k U
nive
rsity
& P
resi
dent
, Int
erna
tiona
l Col
lege
of
Pers
on C
ente
red
Med
icin
e / F
orm
er P
resi
dent
, Wor
ld P
sych
iatr
ic A
ssoc
iatio
n
Ch
airm
an: P
rofe
ssor
Joh
n C
ox, I
mm
edia
te P
ast
Secr
etar
y G
ener
al, W
orld
Psy
chia
tric
Ass
ocia
tion;
For
mer
Pre
side
nt, T
he R
oyal
Col
lege
of
Psyc
hiat
rists
& C
hairm
an, W
PA-W
HO
-UEM
S-A
EP T
ask
Forc
e.
8.30
Scie
nce
an
d h
um
anis
m in
th
e ca
re o
f th
e si
ck: p
erso
n-c
ente
red
clin
ical
pra
ctic
e an
d p
eop
le-c
ente
red
pu
blic
hea
lth
Pr
ofes
sor
And
rew
Mile
s, E
dito
r-in
-Chi
ef, I
nter
natio
nal J
ourn
al o
f Pe
rson
Cen
tere
d M
edic
ine
and
Jour
nal o
f Ev
alua
tion
in C
linic
al P
ract
ice,
Wor
ld H
ealth
Org
anis
atio
n C
olla
bora
ting
Cen
tre
for
Publ
ic H
ealth
Edu
catio
n an
d Tr
aini
ng, F
acul
ty o
f M
edic
ine,
Impe
rial C
olle
ge L
ondo
n
8.50
The
Gen
eva
Dec
lara
tio
n o
n P
erso
n-c
ente
red
car
e o
f C
hro
nic
Dis
ease
: its
rel
evan
ce a
nd
imp
licat
ion
s fo
r d
emen
tia
care
Prof
esso
r Jo
n Sn
aeda
l, M
emor
y C
linic
, Dep
artm
ent
of G
eria
tric
s, N
atio
nal U
nive
rsity
Hos
pita
l of
Icel
and,
Rey
kjav
ik
9.10
Dem
enti
a: a
glo
bal
pu
blic
hea
lth
pri
ori
tyM
r. M
arc
Wor
tman
n, E
xecu
tive
Dire
ctor
, Alz
heim
er’s
Dis
ease
Inte
rnat
iona
l, Lo
ndon
UK
9.30
Pers
on
-cen
tere
d d
emen
tia
care
: wh
at it
is a
nd
wh
at it
isn
’tPr
ofes
sor
Daw
n Br
ooke
r, D
irect
or, A
ssoc
iatio
n fo
r D
emen
tia S
tudi
es, U
nive
rsity
of
Wor
cest
er, U
K
9.50
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
POSTERS PRESENTATIONS
10.1
0BR
EAK
AN
D R
EFRE
SHM
ENTS
POSTER PRESENTATIONS
Para
llel 1
– B
. TH
E PA
TIEN
T JO
UR
NEY
. D
emen
tia
in a
fam
ily c
on
text
Ch
airm
an: M
s. B
arba
ra S
teph
ens,
Dem
entia
UK
10.4
0H
elp
ing
peo
ple
wit
h d
emen
tia
to p
roce
ss t
he
emo
tio
nal
th
reat
s o
f a
dem
enti
a d
iag
no
sis.
Dr.
Rich
ard
Che
ston
, Res
earc
h Fe
llow
, Dep
artm
ent
of P
sych
olog
y, U
nive
rsity
of
Bath
& C
onsu
ltant
Clin
ical
Psy
chol
ogis
t,
Avo
n an
d W
este
rn W
iltsh
ire M
enta
l Hea
lthca
re T
rust
, UK
11.0
0Fa
mily
th
erap
y in
th
e co
nte
xt o
f d
emen
tia
Prof
esso
r Su
san
Benb
ow, C
onsu
ltant
Old
Age
Psy
chia
tris
t an
d Fa
mily
The
rapi
st a
nd P
rofe
ssor
of
Men
tal H
ealth
and
A
gein
g, U
nive
rsity
of
Staf
ford
shire
, UK
11.2
0Fa
mily
rel
atio
nsh
ips
and
dem
enti
a: a
sys
tem
atic
syn
thes
is
Ms.
Jen
ny L
a Fo
ntai
ne, S
enio
r Le
ctur
er a
nd N
urse
Con
sulta
nt, I
nstit
ute
of H
ealth
and
Soc
iety
, Uni
vers
ity o
f W
orce
ster
, U
K
11.4
0Te
n H
ints
fo
r C
arer
s: li
aiso
n p
sych
iatr
y an
d d
emen
tia
Prof
esso
r A
llan
Hou
se, D
irect
or, L
eeds
Inst
itute
of
Hea
lth S
cien
ces,
Sch
ool o
f M
edic
ine,
Uni
vers
ity o
f Le
eds
12.0
0Pa
nel
Dis
cuss
ion
wit
h D
eleg
ate
Part
icip
atio
n
POSTER PRESENTATIONS
Para
llel 1
– A
. TH
E PA
TIEN
T JO
UR
NEY
. T
he
go
od
dia
gn
osi
s
Ch
airm
an: P
rofe
ssor
Jon
Sna
edal
, Mem
ory
Clin
ic, D
epar
tmen
t of
Ger
iatr
ics,
Nat
iona
l Uni
vers
ity H
ospi
tal o
f Ic
elan
d,
Reyk
javi
k
10.4
0Pr
e-d
iag
no
sis
scre
enin
g f
or
mild
co
gn
itiv
e im
pai
rmen
t an
d p
reve
nti
on
of
cog
nit
ive
dec
line
Dr.
Pete
r Jo
hann
sen,
Con
sulta
nt N
euro
logi
st, N
atio
nal D
emen
tia C
entr
e, R
igsh
ospi
tale
t, C
open
hage
n, D
enm
ark
11.0
0Pr
e-d
efin
ed d
iag
no
stic
cat
ego
ries
in d
emen
tia
vers
us
the
Pers
on
-cen
tere
d In
teg
rati
ve D
iag
no
sis
(PID
) M
od
el
Prof
esso
r Ju
an M
ezzi
ch, P
rofe
ssor
of
Psyc
hiat
ry, M
ount
Sin
ai M
edic
al S
choo
l, N
ew Y
ork
Uni
vers
ity &
Pre
side
nt,
Inte
rnat
iona
l Col
lege
of
Pers
on C
ente
red
Med
icin
e / F
orm
er P
resi
dent
, Wor
ld P
sych
iatr
ic A
ssoc
iatio
n
11.2
0A
lzh
eim
er’s
Dis
ease
an
d t
he
con
cep
t o
f a
new
lexi
con
Prof
esso
r Br
uno
Dub
ois,
Pro
fess
or o
f N
euro
logy
, Ins
titut
e of
Neu
rolo
gy, S
alpe
trie
re U
nive
rsity
Hos
pita
l, Pa
ris*
11.4
0C
om
pre
hen
sive
ass
essm
ent
of
the
per
son
wit
h d
emen
tia:
gu
idel
ines
an
d m
eth
od
sD
r. Be
rnar
d C
oope
, Con
sulta
nt O
ld A
ge P
sych
iatr
ist,
Wor
cest
ersh
ire M
enta
l Hea
lth P
artn
ersh
ip N
HS
Trus
t, U
K &
Ms.
Je
nny
La F
onta
ine,
Sen
ior
Lect
urer
and
Nur
se C
onsu
ltant
, Ins
titut
e of
Hea
lth a
nd S
ocie
ty, U
nive
rsity
of
Wor
cest
er, U
K
12.0
0Pa
nel
Dis
cuss
ion
wit
h D
eleg
ate
Part
icip
atio
n
POSTER PRESENTATIONS
12.2
0 L
UN
CH
EON
POSTER PRESENTATIONS
Para
llel 3
– B
. TH
E PA
TIEN
T JO
UR
NEY
. In
terv
enti
on
s th
at h
elp
mai
nta
in t
he
effe
ctiv
enes
s o
f ca
re a
nd
qu
alit
y o
f lif
e -
A
Ch
airm
an: P
rofe
ssor
Esm
e M
oniz
-Coo
k, P
rofe
ssor
of
Clin
ical
Psy
chol
ogy,
Dem
entia
App
lied
Rese
arch
Cen
tre,
Uni
vers
ity
of H
ull,
UK
3.30
Rem
inis
cen
ce t
her
apy:
wh
at a
re t
he
evid
enti
ary
dev
elo
pm
ents
sin
ce t
he
2009
Co
chra
ne
Rev
iew
?To
be
anno
unce
d
3.50
Mu
sic
Ther
apy:
rec
ent
adva
nce
s in
th
e ev
iden
ce b
ase
for
ther
apeu
tic
effe
ct a
nd
clin
ical
use
fuln
ess
Prof
esso
r A
lfred
o Ra
glio
, Mus
ic T
hera
pist
and
Res
earc
her,
Sosp
iro F
ound
atio
n, C
rem
ona,
Ital
y
4.10
Psyc
ho
log
ical
en
han
cem
ent
and
CB
T: a
rev
iew
of
fou
r d
ecad
es o
f g
lob
al r
esea
rch
en
d e
xper
ien
cePr
ofes
sor
Robe
rt W
oods
, Pro
fess
or o
f C
linic
al P
sych
olog
y of
the
Eld
erly,
Sch
ool o
f Ps
ycho
logy
, Ban
gor
Uni
vers
ity, W
ales
, UK
*
4.30
The
Co
chra
ne
Syst
emat
ic R
evie
w o
n F
un
ctio
nal
An
alys
is –
wh
at a
re t
he
clin
ical
rec
om
men
ds
abo
ut
ho
w t
o
add
ress
beh
avio
ura
l pro
ble
ms
in d
emen
tia?
Prof
esso
r Es
me
Mon
iz-C
ook,
Pro
fess
or o
f C
linic
al P
sych
olog
y, D
emen
tia A
pplie
d Re
sear
ch C
entr
e, U
nive
rsity
of
Hul
l, U
K
4.50
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
POSTERPRESENTATIONS
3.00
BREA
K A
ND
REF
RESH
MEN
TS
POSTER PRESENTATIONS
Para
llel 3
– A
. TH
E PA
TIEN
T JO
UR
NEY
. D
iffe
ren
t jo
urn
eys
Ch
airm
an: P
rofe
ssor
Cliv
e Ba
llard
, Pro
fess
or o
f A
ge-r
elat
ed D
isea
ses,
Wol
fson
Cen
tre
for
Age
Rel
ated
Dis
ease
s, S
choo
l of
Bio
med
ical
and
Hea
lth S
cien
ces,
Kin
g’s
Col
lege
Lon
don
UK
3.30
Fro
nta
l lo
be
dem
enti
a: n
euro
log
ical
per
spec
tive
s an
d c
linic
al c
hal
len
ges
D
r. Ja
son
War
ren,
Rea
der
in N
euro
logy
& W
ellc
ome
Trus
t Se
nior
Res
earc
h Fe
llow
in C
linic
al S
cien
ce, D
emen
tia R
esea
rch
Cen
tre,
Inst
itute
of
Neu
rolo
gy, U
nive
rsity
Col
lege
Lon
don
3.50
Man
agin
g d
emen
tia
in t
he
per
son
wit
h in
telle
ctu
al d
isab
ility
Prof
esso
r To
ny H
olla
nd, P
rofe
ssor
of
Lear
ning
Dis
abili
ties,
Uni
vers
ity o
f C
ambr
idge
, UK
*
4.10
Man
agin
g d
emen
tia
in t
he
per
son
wit
h P
arki
nso
n’s
Dis
ease
an
d L
ewy
bo
dy
dem
enti
a
Prof
esso
r C
live
Balla
rd, P
rofe
ssor
of
Age
-rel
ated
Dis
ease
s, W
olfs
on C
entr
e fo
r A
ge R
elat
ed D
isea
ses,
Sch
ool o
f Bi
omed
ical
and
Hea
lth S
cien
ces,
Kin
g’s
Col
lege
Lon
don
UK
4.30
The
com
pre
hen
sive
man
agem
ent
of
mu
ltip
le c
o-m
orb
idit
y in
dem
enti
a Pr
ofes
sor
Ihsa
n Sa
lloum
, Cha
irman
, Sec
tion
on C
lass
ifica
tion,
Wor
ld P
sych
iatr
ic A
ssoc
iatio
n &
Pro
fess
or o
f Ps
ychi
atry
, U
nive
rsity
of
Mia
mi M
iller
Sch
ool o
f M
edic
ine,
Mia
mi,
Flor
ida,
USA
4.50
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
POSTER PRESENTATIONS
Refr
eshm
ents
ava
ilabl
e co
ntin
uous
ly o
utsi
de o
f th
e le
ctur
e th
eatr
es
POSTER PRESENTATIONS
PLEN
ARY
2
INN
OV
ATI
ON
S IN
RES
EAR
CH
AN
D P
OLI
CY
Ch
airm
an: D
r. N
ori G
raha
m, E
mer
itus
Con
sulta
nt in
the
Psy
chia
try
of O
ld A
ge, R
oyal
Fre
e H
ospi
tal,
Lond
on &
Hon
orar
y V
ice
Pres
iden
t A
lzhe
imer
’s D
isea
se In
tern
atio
nal
5.20
The
10/6
6 D
emen
tia
Res
earc
h G
rou
p IN
DEP
Stu
dy
on
th
e ec
on
om
ic a
nd
so
cial
eff
ects
of
care
dep
end
ence
in la
ter
life.
Prof
esso
r M
artin
Prin
ce, P
rofe
ssor
of
Epid
emio
logi
cal P
sych
iatr
y, In
stitu
te o
f Ps
ychi
atry
, Kin
g’s
Col
lege
Lon
don
and
Cen
tre
for
Glo
bal M
enta
l Hea
lth, L
ondo
n Sc
hool
of
Hyg
iene
and
Tro
pica
l Med
icin
e, L
ondo
n U
K
5.40
The
Val
uin
g L
ife
in D
emen
tia
Pro
ject
. Est
ablis
hin
g m
eth
od
s fo
r b
ette
r co
pin
g, r
edu
ced
car
e h
om
e ad
mis
sio
n a
nd
maj
or
imp
rove
men
ts in
dem
enti
a se
rvic
esPr
ofes
sor
Mar
tin O
rrel
l, Pr
ofes
sor
of A
gein
g an
d M
enta
l Hea
lth, U
nive
rsity
Col
lege
Lon
don,
UK
*
6.00
Hea
lth
po
licym
akin
g a
nd
dem
enti
a: In
tern
atio
nal
per
spec
tive
sPr
ofes
sor
Mar
tin P
rince
, Pro
fess
or o
f Ep
idem
iolo
gica
l Psy
chia
try,
Inst
itute
of
Psyc
hiat
ry, K
ing’
s C
olle
ge L
ondo
n an
d C
entr
e fo
r G
loba
l Men
tal H
ealth
, Lon
don
Scho
ol o
f H
ygie
ne a
nd T
ropi
cal M
edic
ine,
Lon
don
UK
6.20
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
6.30
Clo
se o
f D
ay 1
7.45
CO
NFE
REN
CE
DIN
NER
: 9 M
AY
201
3 at
7.4
5 PM
POSTER PRESENTATIONS
Para
llel 2
- B
. TH
E PA
TIEN
T JO
UR
NEY
. Ad
dit
ion
al P
ersp
ecti
ves
Chai
rman
: Pro
fess
or E
sme
Mon
iz-C
ook,
Pro
fess
or o
f Clin
ical
Psy
chol
ogy,
Dem
entia
App
lied
Rese
arch
Cen
tre,
Uni
vers
ity o
f Hul
l, U
K
1.20
The
CH
OIC
E &
PA
NIC
OA
Stu
die
s o
f A
bu
se a
nd
Neg
lect
in C
ares
Ho
mes
D
r. A
nne
Kill
ett,
Lec
ture
r in
Occ
upat
iona
l The
rapy
, Uni
vers
ity E
ast
Ang
lia, E
ngla
nd, U
K
1.40
Imp
lem
enti
ng
occ
up
atio
nal
th
erap
y fo
r p
atie
nts
wit
h d
emen
tia
and
th
eir
care
giv
ers
Dr.
Mau
d G
raff
, Sci
entifi
c Re
sear
cher
in A
llied
Hea
lthca
re R
esea
rch,
Uni
vers
ity M
edic
al C
entr
e, N
ijmeg
en, T
he
Net
herla
nds.
2.00
Clin
ical
ed
uca
tio
n a
nd
tra
inin
g f
or
hea
lth
an
d s
oci
al c
are
pro
fess
ion
als
To b
e an
noun
ced
2.20
The
dif
ficu
ltie
s o
f m
anag
ing
peo
ple
wit
h d
emen
tia
in t
he
com
mu
nit
y an
d h
ow
to
ove
rco
me
them
Prof
esso
r Ja
ne S
alva
ge, C
hair,
Que
ens
Nur
sing
Inst
itute
, Lon
don,
UK
2.40
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
POSTER PRESENTATIONS
Para
llel 2
– A
. TH
E PA
TIEN
T JO
UR
NEY
. Th
erap
euti
c Pe
rsp
ecti
ves
Ch
airm
an: P
rofe
ssor
Jon
Sna
edal
, Mem
ory
Clin
ic, D
epar
tmen
t of
Ger
iatr
ics,
Nat
iona
l Uni
vers
ity H
ospi
tal o
f Ic
elan
d, R
eykj
avik
1.20
Phar
mac
olo
gic
al m
anag
emen
t o
f co
gn
itiv
e an
d b
ehav
iou
ral s
ymp
tom
s: c
urr
ent
per
spec
tive
sPr
ofes
sor
Cliv
e Ba
llard
, Pro
fess
or o
f A
ge-r
elat
ed D
isea
ses,
Wol
fson
Cen
tre
for
Age
Rel
ated
Dis
ease
s, S
choo
l of
Biom
edic
al a
nd H
ealth
Sci
ence
s, K
ing’
s C
olle
ge L
ondo
n U
K
1.50
Cu
rren
t cl
inic
al t
rial
s an
d e
mer
gin
g r
esea
rch
evi
den
ce f
or
dis
ease
mo
difi
cati
on
an
d d
emen
tia
man
agem
ent
Dr.
Rich
ard
Perr
y, C
onsu
ltant
Neu
rolo
gist
/ Se
nior
Lec
ture
r, Im
peria
l Col
lege
Hea
lthca
re N
HS
Trus
t, L
ondo
n U
K
2.20
No
n-p
har
mac
olo
gic
al m
anag
emen
t o
f b
ehav
iou
ral s
ymp
tom
sD
r. Ia
n Ja
mes
, Hea
d, N
ewca
stle
Cha
lleng
ing
Beha
viou
r Te
am &
Con
sulta
nt C
linic
al P
sych
olog
ist,
Cen
tre
for
the
Hea
lth o
f th
e El
derly
, New
cast
le U
K
2.40
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
POSTER PRESENTATIONS
DA
Y 2
: 10
MA
Y 2
013
PLEN
ARY
3
INTE
RN
ATI
ON
AL
PER
SPEC
TIV
ES IN
CA
RE,
PO
LIC
YM
AK
ING
AN
D E
THIC
S
7.15
CO
FFEE
AN
D R
EGIS
TRA
TIO
N
8.30
OPE
NIN
G A
DD
RES
SPr
ofes
sor
Juan
Mez
zich
, Pro
fess
or o
f Ps
ychi
atry
, Mou
nt S
inai
Med
ical
Sch
ool,
New
Yor
k U
nive
rsity
& P
resi
dent
, Int
erna
tiona
l Col
lege
of
Pers
on C
ente
red
Med
icin
e / F
orm
er P
resi
dent
, Wor
ld P
sych
iatr
ic A
ssoc
iatio
n
Ch
airm
an: P
rofe
ssor
And
rew
Mile
s, E
dito
r-in
-Chi
ef, I
nter
natio
nal J
ourn
al o
f Pe
rson
Cen
tere
d M
edic
ine
and
Jour
nal o
f Ev
alua
tion
in C
linic
al P
ract
ice,
Wor
ld H
ealth
Org
anis
atio
n C
olla
bora
ting
Cen
tre
for
Publ
ic H
ealth
Edu
catio
n an
d Tr
aini
ng, F
acul
ty o
f M
edic
ine,
Impe
rial
Col
lege
Lon
don,
UK
, D
irect
or, I
nter
natio
nal C
onfe
renc
e an
d Pu
blic
atio
n Se
ries
on P
erso
n-C
ente
red
Hea
lthca
re; V
isiti
ng P
rofe
ssor
, Uni
vers
ity o
f M
ilan,
Ital
y; M
edic
al U
nive
rsity
of
Plov
div
and
the
Uni
vers
ity o
f So
fia, B
ulga
ria; D
istin
guis
hed
Aca
dem
icia
n, N
atio
nal A
cade
my
of
Scie
nces
and
Art
s of
Bul
garia
& S
enio
r Fe
llow
, New
Yor
k A
cade
my
of M
edic
ine,
USA
8.40
Dev
elo
pin
g a
Man
ifes
to f
or
Val
ues
-Bas
ed P
ract
ice
in D
emen
tia:
co
nce
ptu
al b
asis
an
d o
per
atio
nal
pro
gre
ss
Prof
esso
r Bi
ll (K
W M
) Ful
ford
, Pro
fess
or o
f Ph
iloso
phy
and
Men
tal H
ealth
, Uni
vers
ity o
f W
arw
ick
& D
istin
guis
hed
Rese
arch
Fel
low
, Cen
tre
for
Prac
tical
Eth
ics,
Uni
vers
ity o
f O
xfor
d, U
K, M
r. To
by W
illia
mso
n, M
enta
l Hea
lth F
ound
atio
n, L
ondo
n an
d Pr
ofes
sor
Julia
n H
ughe
s,
Prof
esso
r of
Phi
loso
phy
of A
gein
g, In
stitu
te o
f A
gein
g an
d H
ealth
, Uni
vers
ity o
f N
ewca
stle
, UK
9.20
The
art
and
sci
ence
of
bal
anci
ng
car
e an
d c
om
pas
sio
n in
th
e p
erso
n w
ith
dem
enti
a: a
met
ho
do
log
ical
per
spec
tive
fro
m t
he
Un
ited
Sta
tes
of
Am
eric
a D
r. St
ephe
n G
. Pos
t, P
rofe
ssor
of
Prev
entiv
e M
edic
ine/
Hea
d of
the
Div
isio
n of
Med
icin
e in
Soc
iety
& D
irect
or, C
entr
e fo
r M
edic
al H
uman
ities
, Com
pass
iona
te C
are
and
Bioe
thic
s, S
tony
Bro
ok U
nive
rsity
, New
Yor
k, U
SA
9.50
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
POSTERS PRESENTATIONS
10.1
0BR
EAK
AN
D R
EFRE
SHM
ENTS
POSTER PRESENTATIONS
Para
llel 4
– B
. TH
E PA
TIEN
T JO
UR
NEY
. In
terv
enti
on
s th
at c
an h
elp
mai
nta
in t
he
effe
ctiv
enes
s o
f ca
re a
nd
q
ual
ity
of
life
- B
Ch
airm
an:
Prof
esso
r Ju
an M
ezzi
ch, P
rofe
ssor
of
Psyc
hiat
ry, M
ount
Sin
ai M
edic
al S
choo
l, N
ew Y
ork
Uni
vers
ity &
Pr
esid
ent,
Inte
rnat
iona
l Col
lege
of
Pers
on C
ente
red
Med
icin
e / F
orm
er P
resi
dent
, Wor
ld P
sych
iatr
ic A
ssoc
iatio
n
10.4
0Pr
eser
vati
on
of
per
son
ho
od
an
d id
enti
fy r
ehab
ilita
tio
n in
dem
enti
aD
r. Li
nda
Cla
re, P
rofe
ssor
of
Clin
ical
Neu
rops
ycho
logy
, Uni
vers
ity o
f Ba
ngor
, Wal
es, U
K
11.0
0C
ult
ura
lly-s
ensi
tive
car
e in
th
e m
anag
emen
t o
f th
e p
erso
n w
ith
dem
enti
aM
s. J
enni
fer
Mac
Ken
zie,
Sen
ior
Lect
urer
,Br
adfo
rd D
emen
tia G
roup
, Uni
vers
ity o
f Br
adfo
rd, U
K
11.2
0Sp
irit
ual
an
d r
elig
iou
s ca
re in
th
e m
anag
emen
t o
f th
e p
erso
n w
ith
dem
enti
aPr
ofes
sor
Pete
r C
olem
an, P
rofe
ssor
of
Psyc
hoge
ront
olog
y, U
nive
rsity
of
Sout
ham
pton
, UK
11.4
0M
axim
izin
g t
he
per
son
-cen
tere
dn
ess
of
pal
liati
on
an
d e
nd
of
life
care
Ms.
Kar
en H
arris
on D
enin
g, H
ead
of A
dmira
l Nur
sing
, Adm
iral N
ursi
ng A
cade
my,
Har
ringe
y, U
K
12.0
0Pa
nel
Dis
cuss
ion
wit
h D
eleg
ate
Part
icip
atio
n
POSTER PRESENTATIONS
Para
llel 4
– A
. TH
E PA
TIEN
T JO
UR
NEY
. A
cute
car
e, li
fe n
arra
tive
s, c
are
cham
pio
ns
and
em
oti
on
al
man
agem
ent
Ch
airm
an: D
r. D
ross
i Sto
yano
v, A
ssoc
iate
Pro
fess
or a
nd C
onsu
ltant
Psy
chia
tris
t, F
acul
ty o
f M
edic
ine,
Med
ical
Uni
vers
ity
of P
lovd
iv, B
ulga
ria
10.4
0
The
Old
er P
eop
le in
Acu
te C
are
Co
llab
ora
tive
- u
sin
g t
he
IHI B
reak
thro
ug
h S
erie
s M
eth
od
olo
gy
to im
pro
ve
the
exp
erie
nce
of
old
er p
eop
le w
ith
dem
enti
a an
d t
hei
r ca
rers
wh
ile in
acu
te c
are
Dr.
Ces
ar R
odrig
uez,
Con
sulta
nt in
Old
Age
Psy
chia
try,
Sun
nysi
de R
oyal
Hos
pita
l, M
ontr
ose
& A
D (U
K) C
entr
e of
Ex
celle
nce
for
AD
Res
earc
h, U
nive
rsity
of
Dun
dee,
Sco
tland
and
Ms.
Dia
ne C
ampb
ell,
OA
PC C
olla
bora
tive
Dire
ctor
, Sc
otla
nd U
K
11.0
0
You
r St
ory
Mat
ters
: res
ult
s fr
om
th
e tr
ain
ing
of
500
peo
ple
in L
ife
Sto
ry w
ork
info
rmed
by
a h
um
an r
igh
ts
per
spec
tive
D
r. Po
lly K
aise
r, C
onsu
ltant
Clin
ical
Psy
chol
ogis
t, P
enni
ne C
are
NH
S Tr
ust
& N
atio
nal L
ead
for
Men
tal H
ealth
in L
ater
Li
fe, N
atio
nal M
enta
l Hea
lth D
evel
opm
ent
Uni
t U
K
11.2
0
The
form
atio
n o
f p
erso
n-c
ente
red
dem
enti
a ca
re c
ham
pio
ns
in t
he
role
mo
del
ling
of
op
tim
al p
ract
ice
and
in
chal
len
gin
g q
ual
ity
defi
cits
Ms
Tany
a Li
ttle
, Con
sulta
nt a
nd T
rain
er, D
emen
tia C
are
Prac
tice
Dev
elop
men
t, B
radf
ord
Dem
entia
Gro
up, U
nive
rsity
of
Brad
ford
, UK
11.4
0St
rate
gie
s fo
r th
e p
reve
nti
on
an
d e
arly
det
ecti
on
of
bu
rn-o
ut
as p
art
of
emo
tio
nal
lab
ou
r m
anag
emen
tD
r. D
ross
i Sto
yano
v, A
ssoc
iate
Pro
fess
or a
nd C
onsu
ltant
Psy
chia
tris
t, F
acul
ty o
f M
edic
ine,
Med
ical
Uni
vers
ity o
f Pl
ovdi
v,
Bulg
aria
12.0
0Pa
nel
Dis
cuss
ion
wit
h D
eleg
ate
Part
icip
atio
n
POSTER PRESENTATIONS
12.2
0 L
UN
CH
EON
POSTER PRESENTATIONS
Para
llel 6
– B
. M
AST
ERC
LASS
IN P
ERSO
N-C
ENTE
RED
DEM
ENTI
A C
AR
E: A
pp
lyin
g t
he
pri
nci
ple
s o
f PC
M t
o
ind
ivid
ual
pat
ien
ts: P
art
II
Ch
airm
an o
f th
e Ex
per
t Pa
nel
: Pro
fess
or D
awn
Broo
ker,
Dire
ctor
, Ass
ocia
tion
for
Dem
entia
Stu
dies
, Uni
vers
ity o
f W
orce
ster
, UK
3.30
Clin
ical
Cas
e 6
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
3.50
Clin
ical
Cas
e 7
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
4.10
Clin
ical
Cas
e 8
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
4.30
Clin
ical
Cas
e 9
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
4.50
Clin
ical
Cas
e 10
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
POSTERPRESENTATIONS
3.00
BREA
K A
ND
REF
RESH
MEN
TS
POSTER PRESENTATIONS
Para
llel 6
– A
. TH
E PA
TIEN
T JO
UR
NEY
. Ev
alu
atin
g a
nd
imp
rovi
ng
th
e q
ual
ity
and
per
son
-cen
tere
dn
ess
of
clin
ical
ser
vice
s
Ch
airm
an: P
rofe
ssor
And
rew
Mile
s, E
dito
r- in
-Chi
ef, I
nter
natio
nal J
ourn
al o
f Per
son
Cen
tere
d M
edic
ine
and
Jour
nal o
f Ev
alua
tion
in C
linic
al P
ract
ice,
WH
O C
olla
bora
ting
Cen
tre
for P
ublic
Hea
lth E
duca
tion
& T
rain
ing,
Impe
rial C
olle
ge L
ondo
n, U
K
3.30
Au
dit
ing
th
e q
ual
ity
of
dem
enti
a se
rvic
es
Prof
esso
r Pe
ter
Cro
me,
Pro
fess
or o
f G
eria
tric
Med
icin
e &
Cha
irman
, Nat
iona
l Aud
it of
Dem
entia
Ste
erin
g G
roup
& P
resi
dent
-el
ect,
Brit
ish
Ger
iatr
ics
Soci
ety,
Uni
vers
ity o
f K
eele
, UK
3.50
Mea
suri
ng
th
e q
ual
ity
of
care
of
peo
ple
wit
h d
emen
tia
– W
hic
h in
dic
ato
rs?
Prof
esso
r M
yrra
Ver
nooi
j-Das
sen,
Dire
ctor
, Nijm
egen
Alz
heim
er C
entr
e, N
ethe
rland
s &
Cha
irman
, IN
TERD
EM
4.10
Met
ho
ds
for
colle
ctin
g p
erso
n-r
elat
ed d
ata
in t
he
age
of
the
elec
tro
nic
med
ical
rec
ord
Pr
ofes
sor
Jere
my
Wya
tt, P
rofe
ssor
of
eHea
lth In
nova
tion
& D
irect
or, I
nstit
ute
for
Dig
ital H
ealth
Car
e, U
nive
rsity
of
War
wic
k, U
K
4.30
Imp
rovi
ng
th
e g
ener
al q
ual
ity
of
dem
enti
a se
rvic
es: h
ow
do
we
‘hea
r’ t
he
voic
e o
f th
e p
erso
n w
ith
d
emen
tia
in o
rder
to
imp
rove
wh
at w
e d
o?
Ms.
Nad
a Sa
vitc
h, D
irect
or, I
nnov
atio
ns in
Dem
entia
, Exe
ter,
UK
4.50
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
POSTER PRESENTATIONS
Refr
eshm
ents
ava
ilabl
e co
ntin
uous
ly o
utsi
de o
f th
e le
ctur
e th
eatr
es
POSTER PRESENTATIONS
PLEN
ARY
4
PER
SON
AN
D P
EOPL
E-C
ENTE
RED
DEM
ENTI
A C
AR
E: T
HE
WA
Y F
OR
WA
RD
Ch
airm
an: P
rofe
ssor
Sir
Jona
than
Asb
ridge
, Ina
ugur
al P
resi
dent
of
the
Nur
sing
and
Mid
wife
ry C
ounc
il U
K &
For
mer
Dep
uty
Cha
irman
, Cou
ncil
for
Hea
lthca
re R
egul
ator
y Ex
celle
nce,
Cen
tre
for
Clin
ical
Epi
dem
iolo
gy a
nd S
ocia
l Med
icin
e, L
ondo
n U
K
5.20
The
eco
no
mic
s o
f d
emen
tia:
cu
rren
t es
tim
ates
an
d m
od
elle
d p
roje
ctio
ns
Prof
esso
r A
nder
s W
imo,
Dep
artm
ent
of N
euro
biol
ogy,
Car
e, S
cien
ce a
nd S
ocie
ty, K
arol
insk
a In
stitu
te, S
tock
holm
, Sw
eden
5.40
Five
key
fac
tors
in a
chie
vin
g h
igh
qu
alit
y an
d p
erso
n-c
ente
red
dem
enti
a se
rvic
es f
or
the
futu
re
Prof
esso
r A
lista
ir Bu
rns,
Nat
iona
l Clin
ical
Dire
ctor
for
Dem
entia
, Dep
artm
ent
of H
ealth
, UK
and
Pro
fess
or o
f O
ld A
ge P
sych
iatr
y, U
nive
rsity
of
Man
ches
ter,
UK
6.00
The
Alz
hei
mer
’s C
oo
per
ativ
e V
alu
atio
n in
Eu
rop
e (A
LCO
VE)
: Fac
ilita
tin
g jo
int
acti
on
bet
wee
n E
U M
emb
er S
tate
s an
d t
he
Euro
pea
n C
om
mis
sio
n –
a k
ey t
o in
crea
sin
g t
he
per
son
-cen
tere
dn
ess
of
dem
enti
a ca
reD
r. A
rmel
le L
eper
re-D
espl
anqu
es, A
LCO
VE
Lead
Coo
rdin
ator
, Fre
nch
Nat
iona
l Aut
horit
y fo
r H
ealth
, Par
is, F
ranc
e
6.20
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
6.30
Clo
sin
g A
dd
ress
& S
ynth
esis
. Wh
at h
as t
he
con
fere
nce
an
d d
ebat
e ta
ug
ht
us?
Prof
esso
r A
ndre
w M
iles,
Edi
tor-
in-C
hief
, Int
erna
tiona
l Jou
rnal
of
Pers
on C
ente
red
Med
icin
e an
d Jo
urna
l of
Eval
uatio
n in
Clin
ical
Pra
ctic
e, W
orld
Hea
lth O
rgan
isat
ion
Col
labo
ratin
g C
entr
e fo
r Pu
blic
Hea
lth E
duca
tion
and
Trai
ning
, Fac
ulty
of
Med
icin
e, Im
peria
l Col
lege
Lon
don,
U
K ,
Dire
ctor
, Int
erna
tiona
l Con
fere
nce
and
Publ
icat
ion
Serie
s on
Per
son-
Cen
tere
d H
ealth
care
; Vis
iting
Pro
fess
or, U
nive
rsity
of
Mila
n, It
aly;
Med
ical
Uni
vers
ity o
f Pl
ovdi
v an
d th
e U
nive
rsity
of
Sofia
, Bul
garia
; Dis
tingu
ishe
d A
cade
mic
ian,
Nat
iona
l Aca
dem
y of
Sci
ence
s an
d A
rts
of
Bulg
aria
& N
ew Y
ork
Aca
dem
y of
Med
icin
e, U
SA
POSTER PRESENTATIONS
Para
llel 5
– B
. M
AST
ERC
LASS
IN P
ERSO
N–C
ENTE
RED
DEM
ENTI
A C
AR
E: A
pp
lyin
g t
he
pri
nci
ple
s o
f PC
M t
o
ind
ivid
ual
pat
ien
ts: P
art
I
Ch
airm
an o
f th
e Ex
per
t Pa
nel
: Pro
fess
or J
on S
naed
al, M
emor
y C
linic
, Dep
artm
ent
of G
eria
tric
s, N
atio
nal U
nive
rsity
H
ospi
tal o
f Ic
elan
d, R
eykj
avik
1.20
Clin
ical
Cas
e 1
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
1.40
Clin
ical
Cas
e 2
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
2.00
Clin
ical
Cas
e 3
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
2.20
Clin
ical
Cas
e 4
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
2.40
Clin
ical
Cas
e 5
Pres
enta
tion,
dis
cuss
ion
and
reco
mm
enda
tions
POSTER PRESENTATIONS
Para
llel 5
– A
. TH
E PA
TIEN
T JO
UR
NEY
. M
eth
od
s to
imp
rove
th
e d
om
esti
c, h
osp
ital
an
d c
are
ho
me
en
viro
nm
ent
as f
acto
rs f
or
imp
rovi
ng
th
e ke
y p
erso
n-c
ente
red
nes
s o
f ca
re
Ch
airm
an: M
r. Pe
ter
Mol
yneu
x, C
hairm
an, S
outh
Wes
t Lo
ndon
and
St.
Geo
rge’
s M
enta
l Hea
lth T
rust
, Lon
don
UK
1.20
Pers
on
-cen
tere
d d
emen
tia
care
an
d t
he
imp
ort
ance
of
assi
stiv
e te
chn
olo
gy
in k
eep
ing
th
e p
erso
n w
ith
d
emen
tia
at h
om
ePr
ofes
sor
Alis
on B
owes
, Pro
fess
or o
f So
ciol
ogy
& H
ead
of S
choo
l of
App
lied
Soci
al S
cien
ce, U
nive
rsity
of
Stirl
ing,
Sc
otla
nd
1.40
The
dem
enti
a fr
ien
dly
acu
te h
osp
ital
an
d t
he
per
son
-cen
tere
d D
emen
tia
Car
e B
un
dle
Dr.
Dar
yl L
eung
, Clin
ical
Dire
ctor
, Car
e of
the
Eld
erly
, New
Cro
ss H
ospi
tal,
Wol
verh
ampt
on, E
ngla
nd, U
K
2.00
Stra
teg
ies
to im
pro
ve t
he
per
son
-cen
tere
dn
ess
of
care
peo
ple
wit
h d
emen
tia
in r
esid
enti
al f
acili
ties
Dr.
Mic
hael
Bird
, Sen
ior
Rese
arch
Fel
low
, Dem
entia
Ser
vice
s D
evel
opm
ent
Cen
tre,
Uni
vers
ity o
f Ba
ngor
, UK
2.20
The
virt
ual
dem
enti
a fr
ien
dly
ho
use
: cre
atin
g a
per
son
-cen
tere
d e
nvi
ron
men
t th
at c
om
pen
sate
s fo
r th
e im
pai
rmen
ts o
f d
emen
tia
M
r. Ri
char
d Po
llock
, Fou
ndin
g Pa
rtne
r, Bu
rnet
t Po
llock
Ass
ocia
tes,
Edi
nbur
gh, S
cotla
nd
2.40
Pan
el D
iscu
ssio
n w
ith
Del
egat
e Pa
rtic
ipat
ion
GENERAL INFORMATION
About the International Conference and Publication Series on Person-Centered Healthcare (ICPSPCH)ICPSPCH is a new and major initiative of the International College of Person Centered Medicine (ICPCM), a global body of physicians, nurses, allied health professionals, academics and health scientists supported in its work by the World Health Organisation (WHO), the World Medical Association (WMA), the World Organisation of Family Doctors (WONCA), the World Federation for Medical Education (WFME), the International Council of Nurses (ICN) and the International Alliance of Patients Organisations (IAPO), together with some 30 other international clinical organisations and patient advocacy associations
About the ConferenceThe dementia conference is the first in the new Series and has been designed with reference to WHO imperatives for the development of personalised clinical services worldwide and in accordance with the provisions of the 2012 Geneva Declaration on Person-centered Care for Chronic Diseases. The conference will bring together leading colleagues working in all areas of dementia care internationally to establish a pathway for the construction of dementia care and services by building upon current work by the international community in the dementia field and enhancing this through the direct application of the principles and recently advanced methods of person-centered care. A key activity as part of the dementia conference will be the formal consideration of how a humanistic framework of medical, health and social care can be designed and operationalized which applies both science and humanity in a manner that recognises the patient as a person and which responds as fully to his/her psychological, emotional and spiritual requirements as to his/her physical and organic needs. The conference will have a strong methodological emphasis, with key considerations of service re-configuration/re-design, medical informatics/data capture, clinical education and a range of other central factors of relevance to increasing the person-centeredness of care. A case-based Masterclass has also been built into the programme to illustrate the practical application of the general principles and methods of person-centered care to a wide range of individual patients.
Who should attend?Neurologists, Psychogeriatricians, Geriatricians, Psychiatrists, Family Physicians with a special interest in the care of the person with dementia and Trainees across all of these specialties. Clinical Psychologists, Specialist Nurses, Occupational Therapists, Physiotherapists, Social Workers, Care Home Dementia Directors and associated staff, academic staff and researchers into dementia, health service policymakers, members of Industry and all those colleagues with a responsibility for or interest in the construction and provision of person-centered dementia services.
VenueThe De Vere Venues Canary Wharf, 1 Westferry Circus, Canary Wharf, London E14 4HA
Fee and PaymentThe fee for attendance is shown on the Registration Form. Fees include luncheon, mid-session refreshments and all conference materials. Payment can be made by personal or institutional cheque and sent to the postal address shown at the bottom of the registration form or via the PayPal function of the website www.pchealthcare.org.uk Non-UK payments can also be made via an international bankers draft or a money order in pounds sterling drawn on a UK Bank. To be invoiced for the fee contact [email protected]
EnquiriesAll enquiries in relation to the administrative aspects of this conference should be made to Mr. Francesco Scordamaglia at: [email protected] or telephone +44 (0) 20 7222 2905. Enquiries of an academic or clinical or sponsorship nature may be made to Professor Andrew Miles, Director of the Conference Series, at: [email protected]. The right to make changes in the programme due to operational necessity is reserved.
CancellationsCancellations will only be accepted in writing by e-mail. A refund less an administrative charge of £25 will be given on cancellations made by 29 March 2013. Thereafter, the full fee is payable. Substitutions may be made at any time. No refunds can be given after 29 March 2013 for cancellations arising from industrial action or acts of terrorism.
CPD accreditationCPD accreditation has been applied for and formal Certificates of Attendance will be available.
Data ProtectionYour name, current postal and hospital address (or correspondence address given) will be included in the list of participants which will be issued to delegates and speakers.
AccommodationDetails of a range of good quality London hotels within easy reach of the Conference Venue will be provided to delegates on receipt of successful registration
R E G I S T R A T I O N F O R M
Developing a Person-Centered Model of Care for the Patient with Dementia: [Inaugural project on dementia within the International Conference and Publication Series on Person Centered Healthcare]
London UK: 9 & 10 May 2013
Registration fees:[Fees may be paid by cheque, via PayPal or via an Invoice - see ‘Fee and Payment’ under General Information]
Please select:
Days 1 & 2Medical Staff: £450.Non-medical clinical staff & Academics: £350.Students: £175. Members of Industry: £550.
Day 1Medical Staff: £250.Non-medical clinical staff & Academics: £200.Students: £95. Members of Industry: £350.
Day 2Medical Staff: £250.Non-medical clinical staff & Academics: £200.Students: £95. Members of Industry: £350.
Social eventsPre-conference Reception: £40.Conference Dinner: £75.Pre-conference Reception and Conference Dinner: £100.Total =
Please pay: Person Centered Healthcare LtdTitle (Mr/Mrs/Ms/Dr/Prof/etc) ____________________________________Surname _____________________________________________________Forename(s) __________________________________________________Post _________________________________________________________Department __________________________________________________Hospital ______________________________________________________Address for correspondence _______________________________________________________________________________________________________________________________________________________________Town ________________________________________________________County _______________________________ Postcode _______________Country (if not UK) ____________________________________________Daytime telephone number _____________________________________Daytime fax number ___________________________________________E-mail address ________________________________________________Where did you see this meeting advertised (e.g. society mailing or journal advertisement)? Any special dietary requirements? ________________________________
Please tick this box if you do not want to receive further information about educational events in the International Conference and Publication Series on Person-Centered Healthcare (ICPSPCH)
Please return this form with a cheque made payable to: Person Centered Healthcare Ltd to: Mr Francesco Scordamaglia, ICPSPCHP.O. Box 64457, London SE11 9ANTelephone: +44 (0)20 7222 2905Email: [email protected]
Person Centered Healthcare Ltd, Registered in England No. 05798138
Registered Office: 22 Westminster Mansions, Great Smith Street, London SW1P 3BP
The 21st century is emerging as the century of person-centered care, and this perspective is especially compelling concerning chronic diseases. As the World Health Organization and the United Nations have recently documented and proposed, every government and component of society needs to act now to combat the growing epidemic of chronic and non-communicable diseases that threaten the lives and quality of living for so many people around the world. What we must emphasize now is that a person-centered approach to the promotion and care of health is crucial to counteract this massive epidemic. People with chronic diseases cannot be effectively cared for without fully engaging them in their own health. Consequently, we believe that bold new approaches to health promotion and illness intervention need to be developed and integrated in our health systems. Furthermore, the patient needs to remain at the heart of these approaches. Effective public health, clinical, medicinal and technological procedures must be developed and implemented having the whole person at the core within a broad biological, psychological and socio-cultural framework. Around a third of the world’s population currently suffers from at least one chronic disease. More than 60% of deaths in 2008 resulted from cardiovascular, cancer, diabetes and respiratory illnesses. A quarter of these deaths occurred in people under the age of 60. Other chronic diseases such as mental and musculoskeletal conditions have disproportionally high disease burden. Death and disability have a devastating effect on individuals, their families and the societies they live in, with wide economic consequences. Four essential components of an effective approach to chronic and non-communicable diseases are:
(i) Monitoring both risk and protective factors (intrinsic and extrinsic; biological, psychological and social)
(ii) Monitoring well-being, including outcomes for positive health (vitality and resilience despite exposure and adversity) and illness (morbidity and disease-specific mortality)
(iii) Individual and population-level responses to engagement in health promotion (utilization of resources for health promotion, adherence to prevention programs, level of knowledge of effective health promotion and maintenance practices, as well as obstacles and resources needed for their actual application in life)
(iv) Health system responses to illness (policies and plans, infrastructure, human resources and access to essential healthcare including medicines and other therapies)
It should never be forgotten that people have risk and protective factors; that people experience vitality and resilience, morbidities and disabilities; that people select the goals and lifestyle practices that they value and should be cared for by services responding to their needs, goals and values. Chronic diseases, the services that seek to tackle them and their wider economic impact ultimately involve persons, each with a unique life story and a unique outlook on life. This shapes their lifestyle colored by their experiences and environments, including the course of their diseases and associated risk and protective factors.
Geneva Declaration on
Person-centered Care for Chronic Diseases
Emerging from the Fifth Geneva Conference on Person-centered Medicine and finalized by the Board of the International College of
Person-centered Medicine on 19 May 2012
Effective prevention and treatment of diseases should monitor and promote wellbeing and should not be reduced to symptomatic treatment and prevention of diseases and their risk factors, as recognized by WHO’s definition of health. Attention to health promotion is also important to motivate adherence to treatment. People are more easily convinced to maintain actively their wellbeing than to restrain from unhealthy practices leading to disease onset and chronicity. Such a framework of health promotion and illness intervention should take full account of the patient’s life goals, values, stories and aspirations. The application of the person-centered approach should always be empathetic, respectful and empowering to enhance the person’s functioning, resilience and wellbeing through joint understanding and joint decision-making for clinical care and health-promotion.
Thus, the 5th Geneva Conference on Person-centered Medicine issues the following recommendations:
1. Governments should adopt a comprehensive person- and people-centred approach to integration of health promotion and illness intervention to prevent and control chronic diseases. To achieve this, governments should invest in their health systems recognizing that investment in people's health is investment in social welfare, economic prosperity and security.
2. The health sector has a responsibility to champion this and to ensure that health systems are able to engage and respond to the growing burden of chronic diseases. Health services must also be engaged to prevent, diagnose and treat these diseases through the integration of primary care, multidisciplinary specialist services and public health.
3. Person- and people-centred care should be supported by a close collaboration between clinical care and public health. Each person with a chronic disease should be fully engaged in partnership to achieve joint understanding and joint decision-making to prevent and treat such diseases.
4. Health professional organizations must work with their members to advance person-centered health promotion and care. It should also ensure the integration of health and social services.
5. Person-centered public education, professional training and health research are crucial to support effectively clinical care and public health actions for chronic diseases.
6. Last but not least, civil society in general must be engaged in efforts to tackle chronic diseases, as the effectiveness of these efforts will largely rest on the commitment of every person and component of society involved.
SUPPORTING ORGANISATIONS
World Federation for Medical Education - www.wfme.org
World Medical Association - www.wma.net
World Federation of Neurology - www.wfneurology.org
International Council of Nurses - www.icn.ch
International Psychogeriatric Association - www.ipa-online.org
Alzheimer’s Disease International - www.alz.co.uk
International Alliance of Patients’ Organizations - www.patientsorganizations.org
World Federation for Mental Health - www.wfmh.org
European Association of Geriatric Psychiatry - www.eagp.net
European Psychiatric Association - www.europsy.net
Early detection and timely INTERvention in DEMentia - www.interdem.org
European Federation of Associations of Families of People with Mental Illness - www.eufami.org
Universita’ degli Studi di Milano - www.unimi.it/ENG/
Medical University of Plovdiv - www.meduniversity-plovdiv.bg
British Society of Gerontology - www.britishgerontology.org
International College of Person Centered Medicine - www.personcenteredmedicine.org
WHO Collaborating Centre for Public Health Education and Training, Imperial College London - http://www1.imperial.ac.uk/publichealth/departments/pcph/whocollaboratingcentre/
MEDICAL UNIVERSITY OF PLOVDIV