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03/02/22 1 Person Centered Planning…. Bonnie Jean Smith

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Page 1: Person Centered Planning march

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Person Centered Planning….

Bonnie Jean Smith

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Introduction

Person Centered Planning, “The Early Years”

Where is it today? How is it working ?

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Who am I?

UBUNTU in the Xhosa Culture means: “ I am because we are”

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Person Centered Planning the Early Years

Where did this tool/process originate?

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Person Centered Planning the Early YearsDuring the late 1960s and 1970s we learned about two social revolutionary items

Normalization and

Social Role Valorization (SRV)

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Bengt Neirje 1924-2006

The Father of Normalization

Bengt Nirje, Secretary General of the Swedish National Association for Mentally Retarded – [Intellectually Disabled], as saying:

"The key is trying to achieve the same good standard of life for people with developmental disabilities as we want for people who live in the general society. Our aim is to create the conditions of life as similar or the same as for the rest of the population. You have to do it for human dignity and human decency."

Bengt gave a simple solution to finding out what the young adults with developmental disabilities wanted in life……………..“Ask Them!”

http://www.mnddc.org/parallels2/one/018.htm

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Normalization

“The normalization principle means making available to all people with disabilities people patterns of life and conditions of everyday living which are as close as possible to the regular circumstances and ways of life or society.”[1]

( The Principle of Normalization: www.mnddc.org}

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“…including the normal rhythm of a day, a week, a year, and the life-cycle itself. It involves the normal conditions of life – housing, schooling, employment, exercise, recreation and freedom of choice. This includes “the dignity of risk”, rather than an emphasis on “protection”.[2]

Normalization, Social Role Valorization (SRV) and the approach of Person Centered Planning (PCP)

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Bengt Nirje, Robert Perske, Wolf Wolfensberger, G. Allan Roehrer

Photos courtesy William Bronston, M.D. President's Committee on Mental Retardation –

[Intellectual Disabilities] (PCMR)), recognized that the Principle of Normalization emerged in the 1960s as the most important concept shaping the future of residential services. At the time, is was defined as "making available to the Mentally Retarded – [Intellectually Disabled] patterns and conditions of everyday life which are as close as possible to the norms and patterns of the mainstream of society… it essentially refers to approaching the retarded as much as possible as if they were normal." (ILSMH, 1969).

[http://www.mnddc.org/parallels2/one/010.htm]

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1970’S ENCOR -The Eastern Nebraska Community Office of Retardation and Developmental Disabilities.

Every person owns a heart, a soul, and the right to be treated with respect.

ENCORCourtesy of Ed Skarnulis

http://www.encor-dd.org/

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1970’S ENCOR

According to Ed Skarnulis, ENCOR's claim to fame included the following "firsts":

The first truly comprehensive community based program in the United States, probably even the world.

This program was designed to provide the full range of services – from cradle to grave since this predated P.L. 94-142, the first federal law regarding special education – that would be needed by all residents, regardless of the severity of their disabilities, and their families in the five county area.

The first program to commit to bringing all residents home from the institutions.

The first program to base all of its service delivery on the over-arching "Principle of Normalization" which had never before been attempted. This concept had its genesis in Denmark but had never been applied to an entire service delivery system.

ENCOR offers a variety of services to support individuals with developmental disabilities and their families. We provide a living and working environment where socialization, self-esteem and personal fulfillment are a way of life.

. http://www.encor-dd.org/

* Gov. Quie* Hubert Humphrey

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1970’S ENCOR.

CORE VALUES Encourage informed choices which afford people

opportunities to enhance their quality of life. Normalizing safe environments where each person has

dignity and respect. Community participation and social inclusion for each

person. Offer individualized services and supports to achieve

desired outcomes. Responsive professionals who continuously strive to

meet high standards of performance and accountability

http://www.encor-dd.org/

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The Community Imperative (1979)

A Refutation of All Arguments in Support of Institutionalizing Anybody Because of Mental Retardation -Intellectual Disabilities

In the Domain of Human Rights:   • All people have fundamental moral and constitutional rights;  • These rights must not be abrogated merely because a person has a …..mental  or physical disability.  • Among these fundamental rights is the right to community living.

In the Domain of Educational Programming and Human Services:  • All people, as human beings, are inherently valuable;  • All people can grow and develop;  • All people are entitled to conditions which foster their development;  • Such conditions are optimally provided in community settings.

Therefore:In fulfillment of fundamental human rights and in securing optimum developmental opportunities, all people, regardless of the severity of their disabilities, are entitled to community living.

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PERSON-CENTERED PLANNING AND COMMUNITY ACTION APPROACHES FOR TRANSITION TO EMPLOYMENT CONCEPT

PAPER AND PROPOSALS FOR POSSIBLE PILOT PROJECTS May 31, 1995

C. Pursue Rule Variances to Promote Person-Centered Planning 29

Prepared for the Minnesota Governor's Council on Developmental Disabilities by: Human Services Research & Development Center 1195 Juno Ave. St. Paul, MN 55116 (612-696-0012) EXECUTIVE SUMMARY

http://www.mnddc.org/learning/TEXT/GT130.TXT

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Misconceptions

Of Normalization Social Role Valorization (SRV) and the approach of Person Centered Planning (PCP)

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Misconceptions

a) Normalization means making people “normal” – forcing them to conform to societal norms.

b) Of Normalization, Social Role Valorization (SRV) and the approach of Person Centered Planning (PCP) means planning for an individual based on your own life experiences and desires.

~~~remember~~~"The founding of the institutions was accompanied

by a pride, hope, and euphoria we can scarcely comprehend."– Wolf Wolfensberger [http://www.mnddc.org/parallels/four/4b/1.html 2013]

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Misconceptions

a) Normalization supports “dumping” people into the community or into schools without supports .

b) Person Centered Planning means making the person choose what you think is a “realistic" life outcome for them.

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Misconceptions

There has been a general belief that 'special' people are best served if society keeps them apart, puts them together with 'their own kind”, and keep them occupied.

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The principle of normalization

is intended to refute the idea, of segregation rather than to deal with subtlety around the question of 'what is normal?'

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Social Role Valorization (SRV) and the approach

of Person Centered Planning (PCP)

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Social Role Valorization (SRV) “is a set of approaches designed to enable

devalued people in society to experience the Good Life. Social Role Valorization

Social Role Valorization and its framework of how to assist people to break out of devaluation and oppression, and move towards the “good life” are a major focus of education and leadership development.

Its concepts have impassioned and informed a generation of change agents, and supported much of the best work that has been done in social change over the years.

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Social Role Valorization (SRV) and the approach

of Person Centered Planning (PCP)

These approaches are best used by persons who clearly believe that devaluation of a person is wrong, and who are prepared to work to overcome this.

meet people where they are at .”[http://www.socialrolevalorization.com/ -Wolf

Wolfensburger”]

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Social Role Valorization (SRV) and the approach

of Person Centered Planning (PCP)

SRV's many strategies, derived from practical experience and from what research has revealed, is to help devalued people achieve valued social roles.

It finds that this is the most powerful way to work against devaluation and its negative effects, and provides a wide variety of techniques and approaches for doing so

.”[http://www.socialrolevalorization.com/ -Wolf Wolfensburger”]

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Social Role Valorization (SRV) and the approach

of Person Centered Planning (PCP)

Both SRV and PCP approach ask each of us to make sure:

We are not placing our life experiences and expectations in the place of the people we are helping to facilitate Person Centered Planning.

We use person centered thinking as we facilitate.

Each person going through these process’ are: Valued in every aspect of their life planning

process.

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Person Centered Planning Approach Person Centered Planning is a solution-

seeking planning process that brings people together around a person, family, team or issue to help create a vision of a desirable day and future, and develop concrete steps to move closer to that vision while building connections within their community.

Person Centered Planning works on the premise that people can and should state the direction of their own lives.

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Person Centered Planning Approach

Person Centered Planning is a major focus area to offer education, facilitation and leadership development. This tool/approach is used to teach highly individualized, engaging and respectful processes of how to assist people to craft a vision of a positive future and plan for how to make that vision a reality. 

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Person Centered Planning Approach “Disabled people in the UK and USA

developed the Social model of disability, arguing for a shift in the balance of power between people and the services on which they rely. Person centered planning is based in the social model of disability because it places the emphasis on transforming the options available to the person, rather than on 'fixing' or changing the person.”

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Person Centered Planning ….approach When using any tool/approach for

person centered planning it is imperative that facilitator use person centered thinking.

What is the desire of the person?

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PERSON CENTERED THINKING………..

http://www.supportplanning.org/Support_Planning_Downloads/SP44_person%20centred%20thinking%20minibook.pdf

PERSON CENTERED THINKING………..

PERSON CENTERED THINKING………..

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Person Centered Planning Approach:

Where are we at today?

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Person Centered Planning ….approach…….NOT!!

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What we should be continually striving for when using the Person Centered Planning approach is:

IPSII Independence Productivity Self-Determination Integration and Inclusion

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Person Centered Planning Approach

Start with Person Centered Thinking:

•Mary and the radio•John and Elvis

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Person Centered Planning Approach Today…

Looks different for each individual Is being implemented in Public

Schools during the Junior High school years to help with transitioning into adulthood.

This process can be used at any age depending on the future life desires of the individual.

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One plan..only an example…..

remember each plan looks different!

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Miles -13 yrs old

Person Centered PlanOctober 19 , 2012

Transition planning

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Mile's –Gathering the baseline information for his person centered plan!

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Circle of Family Supports

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Mile's Identified Strengths

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Identified Opportunities For Improvement [ofi’s] or Identified Needs

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Identified Opportunities For Improvement [ofi’s] or Identified Needs

Depression- suicidal Repeating aggressive bulling acts that

were perpetrated towards him.

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Citizenship a tool/approach

A way of focusing on citizenship as a basis for action

planning.

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Citizenship a tool/approach

How this tool helps: Identifies what is working against

or getting in the way of the individual’s citizenship.

Identifies what is working for or supporting the individual’s citizenship

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Break Time

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MILE’S CIRCLE OF FAMILY & FRIENDS -Relationship circle

Who is important to the person?

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Road to Miles Future – from presence to contribution

Opportunity to : connect

contribute

participate

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A Health Passport was also needed….

OFI’S identified:Depression- suicidal Repeating aggressive bulling acts that were perpetrated towards him

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RED ALERT - Things you must know about me

My name:……………………………………………………………………………………………..

Telephone number:………………………………………….

Date of Birth:……………………….. NHS number:…….……………………

My religion:……………………………………………………………………

Name of Doctor: Dr……………………………… Practice:……………………………..

Contact number:……………………………………………

Health Passport

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RED ALERT - Things you must know about me

If you need to contact someone who knows me really well please

contact:

Name: …………………………………………….. Relationship: …………………………………

Contact Number: ………………………………………………

Health Passport

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RED ALERT - Things you must know about me

Heart (heart problems):

Breathing (respiratory problems):

Choking:

Allergies:

Current Medication:

Brief Medical History:

Health Passport

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RED ALERT - Things you must know about me

Level of communication/comprehension:

Medical Interventions – how totake my blood, give injections,medication, BP etc.

Health Passport

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Amber : things that are really important to me…

Communication/Information Sharing

How to communicate with me, how to help me understand things Seeing/HearingHow to communicate with me, how to help me understand things Taking MedicationCrushed tablets, injections, syrup PainHow you know I am in pain

Not feeling myselfIf I am bored, upset, worried,

lonely or need some attention

Personal careDressing, washing, dentures,glasses,

hearing aid etc. Level of Support Who needs to stay and how often

Health Passport

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GREEN - Things I would like to happen Likes and Dislikes

THINGS I LIKE

Please do this

THINGS I DONOT LIKE

Don’t do this

Think about - what upsets you, what makes you happy, things you like to do; i.e. watch TV, reading, listening to music. How you want people to talk to you (don’t shout). Food likes and dislikes. Physical touch, restraint, special needs, routines and things that keep you safe

Health Passport

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1. Check the progress of all parties who have an Action part of this Person Centered Plan …in 7 days,14 days and 21 days. Via email/phone one of the agreed upon check in tools.

2. * Remember it is not a problem if you need HELP with a step you have to fulfill, after all, there is only one Miles and we did not get a manual that goes along with him, right?

Check in Plan

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How is it Working???

There are cohorts all over the world using the approach of Person Centered Planning it is working well in the UK

There many professionals that are charging money to train people to use the person centered approached and person centered thinking.

I you are a people person you have the person centered thinking part.

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What This Means There are many tools or processes

like Person Centered Processes Do not get locked into one process

every persons needs are different, hence the processes are just as different!

* Look at what the person desires and pick the tool accordingly.

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