at the heart of the dialogue improving the patient - professional interaction in decision making...
TRANSCRIPT
At the heart of the dialogue
Improving the patient - professional interaction in decision making
Janneke Elberse Msc, [email protected]
Athena InstituteVrije Universiteit Amsterdam
Introduction
Current situation in the Netherlands
– Bottom up– Individual projects– Slowly more involvement government
Patient participation project
Different initiatives have taken place • Diabetes Foundation• Burn Foundation• Asthma Foundation
Identify and prioritize research topics
Partnership is created between different stakeholders
Special attention for care user group
Dialogue meeting
Project Heart Foundation
Partnership Shared research agenda Short time span
Project Heart Foundation
1. Preparation-Initiation
phase
Desk study
Formation “Partnership”
2. Consultation phase
3 focus groups33 parents
3 group interviews7 youngsters
18 interviewsChild cardiologists
5 group interviews21 adolescences
Fee
dbac
k P
artn
ersh
ip
3. Integration-prioritizing
phase
Dialogue Meeting
9 patients18 relatives
13 child cardiologists
4. Analysisphase
Results analyses
Evaluationparticipants
1. Preparation-Initiation
phase
Desk study
Formation “Partnership”
2. Consultation phase
3 focus groups33 parents
3 group interviews7 youngsters
18 interviewsChild cardiologists
5 group interviews21 adolescences
Fee
dbac
k P
artn
ersh
ip
3. Integration-prioritizing
phase
Dialogue Meeting
9 patients18 relatives
13 child cardiologists
4. Analysisphase
Results analyses
Evaluationparticipants
Dialogue meeting
Presentation Care users’
perspectives
Reflection presentation
by PO
Work sessionProblem→
Research topic
Plenary feedback
Work session
Dialogue research topic list
Prioritizing and mutual
understanding
Reflection presentation
by expert
Presentation experts’
perspectives
Dialogue meeting
Dialogue meeting Asymmetrical relation between care users and researchers Inclusion strategies applied
Project Heart Foundation
Project Heart Foundation
Outcomes Clear research topics Participants very enthusiastic Mutual respect created
but Researcher based research topics Inclusion /exclusion care users’ perspectives
Behaviour Verbal interaction
Identified obstacles
Asymmetrical relation between stakeholder groups leads to exclusion
Lack of sense of urgency
Care users not empowered enough to speak up
Recommendations
How to improve the dialogue between care users and researchers?• Decrease asymmetry • Increase visibility• Empower care users• Select care users/ researchers• Increase coherency
Conclusion
Dialogue was a first step in the right direction!
but
Improvement is needed!
