Work Incentives

Threatened I Page 4

"Injustice anywhere is a threat to justice everywhere. 7 9

Changes to Vocational Mmin Luther King, Jr. Rehab. Services - p. 2

Access Press lloCume 7, Number 04 SOURCES I I RESOURCES -April 10, 199(

Success At The Capitol PCAITEFRA Bill Passes

by Charlie Smith, Editor

The cuts to the Personal Care then sent to the Senate where were res~onsible for keeping ti end ant ( ~ ~ ~ j p r o g r a r n and TEFRA (the program which provides PCAs and health care to children with disabilities) were restored back to 1994 levels by the House of Repre- sentatives and the Senate on Monday, April 1, 1996. As we go to press, the bill is now

they found some technical problems which were taken care of. It then was passed. Due to the technical prob- lems, the bill had to be sent backtothe House to be passed again, and it did.

With the restoration of these

DHS, thk legislature and the disability community updat- ed on the issues. The group consisted of: Bob Brick of ARC Minnesota, Tom Brick from the State Council on Disabilities, Bill Blom from Freedom Healthcare, Jeff BangsbergofBecklund Home

Anne Henry of MN Disability Law Center addresses a question at thepress conference on impending cuts to the PCA/TEFRA programs held at the State Office Building on March 11th. Supporters packed the room and listened to testimonials of several people wit11 various disabilities and who use PCAs. Speakers slrown lefl to right are: Mory Jean Hoover, Anne Henry, Lolly Lijewski, Krista & Aaron Westendorp.

A Commentary

People And Prof::s How Should We Manage Health Care? by Jeff Nygaard

Our health care system in Minnesota, as in much of the country, is increasingly being organized according to a doc- trine known as'hnanagedcom- petition". In Minnesota, un- like much of the country, all companies involved in this competition (and it is, by all accounts, very fierce) must be "non-profit". This raises an interestingquestion: Ifthey're not competing for profit, then what are they competing for? Curiously enough, the answer seems to be: They're compet- ing for profit.

At least that's what somepeo- ple seem to think; Corporate

for one. In their January 1995 issue, they said, "...Health Partners [Minnesota's 4th largest non-profit health-care corporation] and its major competitors are, in every meaningful sense, businesses slugging it out for profitable accounts." The IRS seems to agree. As the Star Tribune reported in a 9 March 1995 article about IRS audits of Minnesota health care com- panies, "the audits are hap- peningbecausethe IRS recog- nizes that charitable commu- nity hospitals are becoming much more corporate-style competitors these days and it is questioning whether their

"These days" the larger Min- nesota non-profits are hold- ing'as much as a billion dol- ldrs in assets, plus paying sal- aries ofhalfamillion bucks or more. This is not chicken feed. We don't know all the things they plan to do with this money, but some things are clear. They certainly plan to pay their executives large salaries. (See "Health Care In Minnesota: Bigger is Bet- ter? in last month's ACCESS PRESS). Some of the big companies plan to diversify, acquire new businesses, and get larger; those things cost money. How do these "non- profits" get all this money? It

nor has said he will now sign the legislation.

Ori@naAy, the PCAITEFRA programs were included inthe H e l h and Human Services Omnibus bill. This bill was vetoed late in March by the Govemor due to a part of the bill he did not like. It gave control to the counties to start their own HMO coverage in demonstration projects, and delayed expansion of man- aged care to people on AFDC (this was known as P-MAP). The Governor had no obiec-

I tion to the PCAITEFRA ieg- islation and communicated that to the legislators. He in- structed them to separate out the P-MAP legislation and attach the rest of the Health and Human Service Omnibus bill to another bill.

The House Democrats felt the P-Map legislation was impor- tant enough to attempt an over- rideoftheGovernor's vetoon Saturday, March 30th. An- other reason for an over-ride was that when the House first passed the Health and Human Service Omnibus bill, it passed with strong bipartisan support, 110 to 24. It was only afierthe Governor's veto ofthe bill that the Republican House members changed their position to not support the bill. The over-ride failed. Rep. Lee Greenfield then of- fered an amendment to a bill authored by Rep. Phyllis Kahn, which had all of the Health and Human Service Omnibus bill minus the P-

Report Minnesota magazine, tax exemptions are valid." aealih - cant. on 3 MAP language. It passed I unanimous~y. The bill was

are assured of their current quality of life: families can stay together, people can stay in their homes and communi- ties, and people can keeptheir ilidependence.

S U C C M DUE TO YOU!

"Last year the Governor pro- posed major cuts to the PCA program and the elimination ofthe TEFRA program, and it was hard to find people to vote for them" said Mel Duncan, Executive Director of Minnesota Alliance for Progressive Action (MAPA). "This year you've got every- one begging to vote and pass these programs, even the Gov- ernor. That's successful grassroots organizing."

That is what it took! People making those cans and writ- ing those letters to the Gover- nor and legislators telling them how important these pro- grams are to the independence of their lives. You made the difference. Last yearwe start- ed with the massive rally, the biggest the Capitol had seen. It forced legislators to delay the cuts. Then came the Home Care Task Force during the summer and fall. It made the Department of Human Ser- vices (DHS) re-evaluate the numbers and types of people they had counted, and how much money was being spent. Once this was done, DHS had to admit they over-estimated both the numbers andthe~ost, proving we were right; the programs are cost-effective.

A core group of advocates

Cardenas of ACT, Tom Johnson of Alliance for the Mentally 111,Anne Henry from Minnesota Disability Law Center, Mary Jo George and Joel Ulland ofMinnesota MS Society, Cindy Johnson - a TEFRA parent, Beth Knutson-Kolodzne from In- dependence Crossroads, Gene Martinez of ARC Hennepin, and Bob Tracey from Minnesota Aids Project, the regular attendees of the Minnesota Consortium for Citizens with Disabilities (CCD) which met every Fri- day during the session, and the TEFRA parents and chil- dren who were able to show up at the Capitol at the drop of a hat to make their presence known.

These people made it happen with a network of phone calls, action alerts, phone hotlines and faxes. They kept people aware ofwhat wasgoing on at any given time, when it was going on, and who needed educating. It was this con- stant pressure which madethis year successful.

This is proofyou can make a difference when you get in- volved in the political pro- cess. This is an election year. Weneed to make sure all peo- ple running for office under- stand our issues: notjust PCA and TEFRA issues, but also transportation, affordable and accessible housing, and sup- port for the Americans with Disabilities Act (ADA) and Individuals with Disabilities Education Act (IDEA) to list but a few.

2 April 10,1996 Access Press

Charlie Smith Editor

The Legislative session is over and we had some suc- cesses (see page 1) due to your help. The Personal Care Attendant (PCA) and TEFRA programs have been restored, so adults and chil- dren will be able to continue to stay in the community, with their families, and be as

I isdspmd~lt as they can.

, , <

Mobility. Ifhevetoesthetraras- of the legislative session this portat& bill, it willmean high- er rates to mainline riders and reductions of service. For Metro Mobility, the bill con- tains 1.6 million dollars to ' make up a deficit let3 over i from two years ago. Again,

' without this funding Metro , Mobility will have further re-

ductions in service, making a paor service worse, I urge you

With the end of the session to call the Governor's offliceat you w ~ u l d think our work 296-3391, and ask him to sign would b dans, But it isn't. the transportation bill. The Governor is stilI threaten- ing to veto the a m s m n *.* * bill. This bill has monies in it for mainline buses and Metro Althoughsmegwdcmeout

year, there is one item the Sen- ate shouldbe ashamed of. The Remembering with Dignity resolution was sent back to the Rules Committee in the last days ofthe session. That had the effect of ending any chance of passing this year. This was a chance for the State of Min- nesota to recognbx, without bbinganyone;$ratpast treat- ment of people in 'our state institutions was inhumane. When the resolution came up for a vote, a few Republican Senators voiced their objec- tions sayingthey were worried abut being sued and they re-

ally .didn't see the reason for thistypeofapology. Arethese people just cold-hearted orwas Rick Cardenas from Advocat- ing Change Together (ACT) right when he said "Being a Senator means you don't have to say your sorry" ? The reso- lution will be back next year; let's hope they come to their senses ,by then.

Representative Lee Green- fwld Both of them work long and hard for issues im- portant to people with dis- abilities such as the Remem- bering with Dignity resolu- tion and the PCAITEFRA legislation. Thank you both for your commitment to peo- ple with disabilities.

Spring is fmally here! With ACCESS PRESS would like warming temperatures the to give its own "LEGISLA- outdoors is beckoning. Next TORS OF THE Y E A R monthwewillgiveyousome awards. This year they go to ideas on how to enjoy it. Senator Linda Berglund and

Sprinu IS Here! Changes TO Vocational Rehab. Free Garden Seeds Services Planned -. Up to ten packets of free flow- Penn Ave. (North Mpls) er and vegetable seeds will be available at the annual "Min- Doors open at 945 a.m. with TheMinne~otaDe~arhnentof 'prioritized funding for peo- dedicated to people with *drastically reduce the "due neapolis Pride! DayWcelebF- the Master Gardener presen- Economic Security (MDES) ple with severe disabilities, disabilities and use the dif- process"requirementsofcur-

- tion on Saturday, May 4th. tation and Blooming Boule- is planning major changes to ference to serve people in the Also featured on Minneapolis vard award distribution at the way services are provided. *service providers specifical- general population. hide!Daywillbed.letopBloom- 10:30 a.m. Seed Giveaway These changes could have a ly trained to work with peo- For more information on these

U& ing Boulevard award winners begins at 1 1:OO a.m. major impact on people with ple with disabilities. . *eliminate the service priority proposed changes, there will disabilities and their ability to for people with severe beastatewidevideomeeting

This event is co-sponsored by find work opportunities. Cur- *a wide m y of community disabilities. on vocational rehabilitation in the Neighborhood Environ- rently through the Vocational based private-for-profit and Minnesota on April 24th from

Day a& merit Committee of CUE, the Rehabilitation Program ofthe private-non-profit service 'remove the requirement that 9:Ooam - 4:Oopm in St. Paul at 'Self Reliance Center, Garden Rehabilitation Services providing vendors. staff serving people with 'the Department of Economic City Seeds and Community Branch in the MDES you have disabilitiesmusthavespecial Security, 390 N. Robert St.,

Logan Park Broadway and Crime PreventionISAFE. access to: 'quality services consistently background and training. and at the Department of Hu- Monroe (Northeast Mpls) available and delivered on a man Services, 444 Lafayette

*Wittier park -26th street For more information please 'financial resources dedicat- statewide basis. *drastically limit the commu- Road. For outstate locations andGrandAve.(South Mpls) call Kellie Jones at 673-3014. ed to the employment needs nity based vendor pool by a oralternativefo.rmat,call(6 12)

1 thing that I would call a maior azine ~ u t it in their November total health care budget. The ' I - loophole in Minnesota law that

' allows non-profit health-care . corporations in this state to

1 make huge profits.

! Here's an illustration: Blue , Cross/Blue Shield Minnesota I (Blue Cross), is owned by a

company called Aware Inte- l

grated, Inc. The legal loop-

1995 issue, "Blue Cross has been able to operate with min- imal to nonexistent competi- tion andmaintain higher profit margins." Or, as an executive atacompeting health carecom- pany puts it,"Outstatehas been their real cash COW."

In summary, what we appear

w

Minnesota Office of the Leg- islative Auditor (OLA) pub- lished a study last year show- ing the expected changes in administrative costs that would result from six different possi- ble reforms of our health care system.

The possible changes ranged

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According to the theory, these discounts should mean sav- ings for consumers and, to a certain extent, they do. But, in practice, these discounts have

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paniesareincolporatcdnanon- not. For, In an) competit~on, plans. as well as 3 versions of : - profii4. and the) '?\or(! ~ C I ) Ing we $ + i l l hdve \v~nriers and i r e mult~ple-pa>er planr (I~ke our

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This is exactly how the market mote the public health? Even with those "extra" is supposed to work, say pro- 400,000 people in the system, ponents. Ifit actlgallydidwork Let's assume Ehat we can't the reduction inpverheadun- out this way, that might be a spendtoornwhmoreanheztlth der such a plan would be so good thing, but the real world care than w e m a w spend- great that our total spending

argument.) Are there any ma- around $1 5 br'iliaa Bl In terms of numbers of peogle jot costs irl our current system another w&, if every Minhe- enrolled in its managed care that we could cutback on with- sotan chipped in an extra $20 plans, Blue Cross ranks third out compromising the quality peryear, we could havehealth in the Twin Cities metropoli- af care? Well, yes, there are: care for all. tan area,. behind Allina and administrative costs. . Handi Medical Supply HalthParfners. But in the rest It's i m p m a t @ remember . .. 2505 Uniwersity Avenue West of the state, Blue Cross com- Administrative costs in our . rhat tkre are m a y f i k e ; St. Paul, Minnesota 551 14 - - pletely dominates the market, current private system in Min- HeaNk - mnt. on p. 8 - enrolligg63% ofmanaged bare

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4 April 10,1996 ~ c c e s s Press Work Incentives Threatened / Religion & Disabilitv by Toni Zachariae Watt

O n February 28, 1996, the gan approving PASSes out of guarding medical benefits. Opening To The Treasure

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-Access Press April 10,1996 5

Life Goes On I On Mental Illness

A Tribute To Eunice ~ c ~ l u r g I Recovery Through Wi 11 by LeAnne Dahl

Eunice was my collaborator ly as proud ofhergranddaugh- her activities. I by Rita Burwell, Recovery, Inc. in the fust two years of this column. We worked well to- gether. It wasn't our first joint effort. Back in the mid 703, we were in the midst ofwriting a book based on my life. But 1 just couldn't seem to contin- ue the project because it was too painful. She understood, as she always did. Eunice also understood my need to write this column alone. She has remained my fiiend, my teach- er, and my mentor. Her love of teaching and writing was evi- dent in everything she did.

Writing had been her passion ever since she was in the sixth grade. Her biggest writing success was a book on men- tal retardation entitled, Your Downs Syndrome Child. She sold it and it was latertranslat- ed into Japanese and Italian.

Her life was brimful with her family and her work. She was proud of her daughter, Peggy, who now has her own law firm in Monticello. She was equal-

ter, Cindy, who has her own landscaping business. In the early years of her career, Eunice taught school. When I met her in the early 70's, she was the Executive Director of the Anoka ARC where she stayed her retirement in the mid '80's. She was always a strong advocate for people with disabilities.

Eunice really never retired fiom anything. She kept up a vigorous life style until her death on March 22nd. When shemovedto Monticelloafew years ago with her daughter and granddaughter, she began renting space from various antique dealers in orderto sell her antiques. For many years, she taught at Metropolitan U. She had a number of students that took her correspondence course dealing with develop- mental disabilities. Lastspring she taught a course in writing at her local community center. She kept herself so busy that it was hard to keep up with all of

I hadn't seen Eunice since last April. Whenever she visited me, we always ordered a piz- za. That was afavorite ofours. She took me to see her newest antique corner in a different shopthat day. She wassoproud of it. That was my last visit with Eunice. Although I tried toreach hqanumber oftimes, I regret to say we were never in touch again.

I shall miss Eunice for her uniqueness. I learned so much fiom her. She inspired me to keep on with my writing. "Write about what you know best," she told me more than once. I hope to continue tak- ing her advice so that my writ- ing LIF E GOES ON.

Eunice McClurg - Mother, Grandmother, Writer, Teach- er, ~dvocate; but most of all my Friend and Colleague. You will be remembered with love and respect.

The lateneuropsychiatrist, Dr. Low, developed a self-help method of recovery concepts and techniques based on the management of fear, anger and nervous symptoms. Dr. Low maintained that most sustained tenseness, which produces symptoms, is caused by tem- per. He divided temper into anger and fear. Angry temper is judging someone wrong and oneself right. This may take the form of resentment, dis- gust, impatience, indignation, and hatred. Fearful temper is judging oneself wrong; this includes discouragement, self- blame, embarrassment, shame, despair, and hopelessness. To

book Mental Health Throu& Will Training. The heart ofthe training process is making the patientlconsumer realize that helshe is an apprentice. The hardest part of the training is practicing, putting into prac- tice what has been learned, and then endorsing for the ef- fort (self-praise). Improvement proceeds through apprentice- ship and leads to health: men- tal and nervous health.

Recovery, Inc., is a comrnuni- ty mental health organization founded by Dr. Abraham A. Low in 1937 in Chicago, Illi- nois. Fifty-nine years after the founding of Recovery, Inc.,

Dr. Low's concepts are still used by mental health'profes- sionals under the terms cogni- tive therapy and behaviormod- ification.

And, an'added bonus is the price; there is only a free will offering taken for those who are able to contribute.

Recovery, Inc., is having a panel for the Minnesota Bio Brain Association presenting the above view ofrecovery on April 15thfiom 7-9p.m. d the Lutheran Church of the Mm- ter, Edina Contact 922-6916 for more information.

quote Dr. Low, "You can't knock out tem~er with con- I r . SPECXU EDUCATWUWS- 'I I trol, but you can hold it down T d a y , April 30,1996 - t

and create self~respect and $:38 am. to 12:30 pm. self-confidence." This, of Minnesota Law Qnt& course, takes training. I I The HCBA/NLS Awes fm People wab Q s M * , I I Training in the Method means regular weekly attendance at meetings where Dr. Low's concepts and techniques are learned from repetition and application to everyday life, and by reading Dr. Low's

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6 April 10,1996

The Power Of To Access Press .

MALU CompuDrive '96 by Gordon Gillesby

Some people get it; other's don't. It'squite simple whetheryou'retalk- ing cyberspace or poptarts. Those using the tools around them are the ones making a difference to our long- term planetary survival. Everybody else just whines. Those that can, do. hoke who can't, complain about those that do. Meet one of the good guys:

Vince Troy is the President of MALU - that's the Minnesota Association of Life Underwriters to us mortals. It's a professional association of people selling life insurance re- lated products. Vince is one of the good guys (no un-politically correct references intended) because he's challenged the MALU membership into sponsoring CompuDrive '96 - a state-wide used computer collec- tion and re-distribution drive thrdugh DRAGnet. They find the comput- ers; DRAGnet gathers, repairs and replaces them back into local com- munities.

This isn't atoken effort,either. Vince -and, for that matter, all of MALU - really wants to help dis- abled and disadvantaged youth and

families from all over Minnesota. How much help? They've commit- tedthemselves to finding amere 3300 computers by May 17. That'sawhole lot of computers to find in a very short time. When they do it, and they will succeed, DRAGnet will easily get more than 1000 working comput- ers out of that many donations.

Think about it. One thousand indi- viduals - in all likelihood, people with disabilities- who'll have their own computer by the end of 1996. People who couldn't afford one be- fore. People whose lives will be forever changed because they started their own personal technological jour- ney for access to information, educa- tion, employment, recreation - lit- erally, the entire world.

Troy and MALU have more than helping the environment in mind. They're keenly aware that CompuDrive '96 has tremendous tax and public relations benefits for the donors. It directly supports local economical and social development throughout the whole state. Even educationally "at-risk" youth from area schools are involved with

CompuDrive '96: from pick-up to delivery throughout the summer, helping to process donations, load trucks, take computers apai-t, fix them and re-assemble them for communi- ty placement.

MALU CompuDrive '96, like DRAGnet, is really about people - a working demonstration of how people help themselves, others and their community. Computers stay out of landfills. Poisons stay out of the water. Business gets hazardous waste properly handled - even to the point of not being waste at all. People get technology, 'real-world' work, and skills training that im- proves their self-esteem. Many who couldn't afford one before will get a low-cost, reliable personal computer fortheirown education, employment, or independent living needs.

Job-skills, education, and computers for people in disadvantaged situa- tions. All from one (and, I hasten to point out, the ONLY) EPA-licensed non-profit computer recycling oper- ation IN THE COUNTRY. Period. That's why MALU is dealing with DRAGnet and not somebody else.

They ,want as many as possible of those donated computers to be re- stored to working condition with no environmental liabilities forthemem- bership or their clients. Most of all, they want people who need comput- ers to have an opportunity get reli- able, rehrbished ones.

Because of Vince Troy, MALU is the first professional association in Minnesota to take an active role in correcting technology disparity - - the enormous economic empower- ment gap between those who have access to computers and those that don't. I mean, they're actually DO- ING something, not just flapping lips or generating meaningless bits of processed wood pulp enshrouded in bureaucratic self-adhesive cello- phane binding material. It's not just a first in Minnesota - it's a first anywhere. This project can easily be reproduced on almost any scale. It works in Minnesota and it should be taken to a national level!

The MALU CompuDrive '96 began in early March. State-wide equip- ment pickups begin the second week of April and continue through the

end of the year. For information on donations or a schedule of pick-up dates and locations, contact Bill McCarthy at DRAGnet.

One final note: DRAGnet growth continues unabated. During April we're moving (for the third time in two years) to a 10,000 square foot warehouse space (tripling what we had) - a number that will double again by the end of next summer. During this time, there may be brief interruptions to our telephone ser- vice. Wethank you for your patience and apologize in advance for any inconvenience. We appreciate your support!

****** Gordon Gillesby (gille027@tc. umn.edu) is the CEO of DRAGnet - the Disabiliry Resources, Affiates andGroups network (612.338.2535/ voice; 338.2569/fax). The Power of To: is about computers, cyberspace, and conimzrnication for all people. Please share your thoughts, com- nients and ideas about this column with Access Press or log on to DRAGnet lnfor~nation Service with yozrr computer and modem(6 12. 753.1943; 8-n-I; ANSI emulation).

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