winter 2020 · brett brian brianna brittany bruce bryan cara carmen carole casey cassandra cecil...
TRANSCRIPT
-
WINTER 2020
2 Overcoming Challenges
to Save Lives
4 Honoring Our Heroes' Legacies
6 Our 2020 Heroes
8 Helping LifeShare Save Lives
10 FightingtoLive
12 LifeShare Proud
www.LifeShareCarolinas.org | 800.932.GIVE
-
149ORGAN
DONORS
416LIVES
SAVED
316TISSUE
DONORS251
EYE DONORS
5PEDIATRIC DONORS*age 17 and under
There are few things more powerful than a conn
ection between a donor family and the recipien
t of
their loved one’s gifts. These beautiful meetings
often provide healing for both sides. Donor fam
ilies
get to know someone who was saved by their lo
ved one. Recipients get to express their deep
gratitude to the family of their hero.
During the most recent meeting, Thomas Smoo
t’s mom, stepdad, brothers, and grandparents
met Jodi, who received cells from Thomas’s pan
creas. The meeting happened virtually to mainta
in
COVID safe practices. 18-year-old Thomas was
the oldest of three boys. His mom says he had
a
big imagination and dreamed of being a directo
r/screen writer. He loved watching football with
his
family, especially the Panthers. Those who knew
him said he had a big, kind heart and always let
people know how much he loved them.
44-year-old Jodi has battled type 1 diabetes sin
ce childhood. She feared she wouldn’t live to
see her daughters walk down the aisle or watch
her son grow up and achieve his dreams. Eager
to
regain her life, she joined a research study aime
d at finding a cure for diabetes. She received he
r islet
cell transplant July 7, 2019. She has since been
living her life without the need for insulin and fe
eling
amazing. Jodi no longer feels sick or like she’s b
attling her body to stay alive. She enjoys the
freedom of being able to eat foods she never co
uld before – like pizza and chocolate donuts.
She’s even become a Panthers fan, just like the y
oung man who saved her life. Jodi says "I
have a lot of wishes for the family. For mom and
dad, Stephanie
and Aaron, I wish for peace. I hope they see Tho
mas's smile in
the sunrise and hear his infectious laughter the
wind. I also
wish for them to meet more recipients. They des
erve
to see how many lives that Thomas has saved. F
or
Thomas’s brothers, I wish for them to remembe
r
how much Thomas loved them. I wish for them
to
wear ugly Christmas sweaters, like Thomas and
continue making movies in Thomas’s honor."
The meeting happened on what would have
been Thomas’s 20th birthday. Jodi made a ch
ocolate
pie in honor of the occasion. She says she will
forever be grateful to Thomas and his family and
will
celebrate him every chance she gets.
This was the third online meeting hosted by LifeSh
are. Donor
families interested in communicating with their lov
ed one’s recipients
can learn more at LifeShareCarolinas.org/Donor-Fa
milies.
connectingDURING COVID
2020 was a difficult year for everyone, in m
any ways. As we battled a global pandemic,
LifeShare Carolinas remained committed to
giving hope, life, and healing. When the CO
VID-19
virus began to spread, we found ways to ad
apt to keep our donors, donor families, hosp
ital
partners, community, and teammates safe.
Despite the challenges, the LifeShare Caroli
nas team worked hard every day to save the
lives
of those waiting for a lifesaving transplant,
setting a record for the number of lives save
d. 416
people are alive today thanks to 149 heroic
organ donors in 2020. That is an increase o
f 13%
in the number of lives saved from 2019. Tho
usands more lives were saved thanks to 316
tissue
donors and 251 eye donors. Our tissue team
also set a new record, recovering the most
types
of tissue in LifeShare history. That means m
ore tissue grafts can be made and more live
s will be
saved. Despite a 10-week shutdown due to
COVID, our eye bank persevered and transp
lanted
more eye tissue than last year.
The entire LifeShare team wants to express
our sincere gratitude to our donors and the
ir
families. We know this can be a difficult dec
ision, especially during an already difficult y
ear.
We hope each donor family finds healing kn
owing their loved one lives on.
OVERCOMING CHALLENGES
TO SAVE LIVES LIFESH
AR
E L
INK
3
-
This year, six of our youngest donor heroes were honored with a brick in Eli’s Garden at Our Children’s
Memorial Walkway in Charlotte. Since we weren’t able to dedicate the bricks in person, we turned to social
media to spread the word about these young heroes. We give our respect and honor to these young donors
and their parents for the monumental decision they made in order to spare another family from the same pain
of losing a loved one.
Our annual Donor Remembrance Celebration – a time for family members to reflect, share memories, and honor their loves ones – was held on Zoom. Guests heard from the McLanes, whose son Connor was an organ donor at age 19. They also heard from a number of transplant recipients who expressed their gratitude for their second chances at life.
Each family was given the chance to share the quilt square they made for the Quilt of Life and light a candle for our Light of Life ceremony honoring our donors.
THE HOLIDAY SEASON CAN BE DIFFICULT FOR THOSE MISSING A LOVED ONE. While many are smiling and laughing, donor families may be grieving. As part of our
continued commitment to helping families heal, we hosted
our annual Hope for the Holidays event online.
Families were sent a box of materials to create a special
keepsake in honor of their loved ones. They were able to fill
their keepsake with various colored ribbons, each representing
a different emotion often felt during the grief process.
REMEMBERING
& HONORING
our heroesLifeShare
Carolinas has the ho
nor of hosting
events throughout t
he year that pay trib
ute
to our heroic donor
s. Just like everythin
g
else in 2020, these
events looked a
little different this y
ear.
DONOR REMEMBRANCE
GARDEN OF LIFEAnthony L. Frazier . 14 years old . Organ Donor Avayah Ross . 16 months old . Heart Valve Donor Griffin “Finn” Ciullo . 9 weeks old . Heart Valve Donor Laila Short . 11 years old . Heart Valve & Cornea Donor Thaddeus Graves . 20 months old . Donor in Spirit Brooke Haire . 7 years old . Organ Donor
celebration
LIF
ES
HA
RE
LIN
K
5
-
The people listed here were donors between November 1, 2019 and December 31, 2020.
Aaron
Abigail
Adrienne
Afton
Agustin
Aidan
Alan
Albert
Alejandra
Alex
Alexis
Alfred
Alice
Alisa
Amanda
Amari
Amber
Ampelio
Amy
Andrea
Angel
Angela
Angelia
Anner
Anthony
April
Ashley
Austin
Autumn
Aviana
Barbara
Belinda
Betty
Beverly
Billie
Billy
Bishop
Bobbie
Bobby
Bonnie
Brandon
Brayan
Brett
Brian
Brianna
Brittany
Bruce
Bryan
Cara
Carmen
Carole
Casey
Cassandra
Cecil
Chad
Chance
Charity
Charles
Chastity
Cheri
Chevon
Chris
Chrissy
Christian
Christopher
Cindi
Cindy
Clive
Clyde
Cody
Connie
Cordero
Crecenciano
Crystal
Cynthia
Dairyon
Dakota
Dangelo
Dani
Daniel
Danny
Darrel
Darrell
Darrius
Darryl
Daryl
David
Deborah
Debra
Decari
Dena
Derek
Derrin
Destry
Dewayne
Dewey
Dianne
Dileon
Donald
Donna
Doris
Douglas
Earle
Edgar
Edwin
Elaine
Elishia
Elizabeth
Emanuele
Emetrise
Ernest
Eugene
Exenia
Farrell
Faye
Fernando
Floyd
Forest
Franklin
Freddie
Garry
Gary
Gene
George
Gerald
Gerry
Glenn
Gloria
Golda
Gregory
Guillermo
Guy
Harold
Harry
Hattie
Hayden
Henry
Herldon
Hubert
Ignatius
Isabel
Jabe
Jack
Jackie
Jacob
Jacqueline
Jacquelyn
Jakailah
James
Jamie
Janet
Janice
Jaquis
Jason
Jaterio
Jayden
Jeffery
Jennifer
Jereme
Jerome
Jerry
Jess
Jessica
Joe
John
Johnnie
Jonathan
Jordan
Jose
Joseph
Joshua
Judy
Julia
Kamiree
Kara
Karen
Karl
Karmel
Katherine
Kathleen
Kathy
Keeari
Kelly
Kelvin
Kenneth
Kentner
Kevin
Keyla
Kim
Kimberly
Kristina
Lambert
Larene
Larry
Latoya
Laura
Layla
Leanna
Lela
Leslie
Liam
Linda
Lisa
Lloyd
Loretta
Lori
Lorine
Louis
Lynn
Macie
Madison
Malonda
Marcia
Maria
Marilynn
Marion
Maritza
Mark
Martin
Mary
Matthew
Melanie
Melissa
Melvin
Mercedes
Michael
Michelle
Miguel
Montayvia
Morris
Mychal
Nancy
Nathan
Nicholas
Nikki
Nina
Norman
Novon
Olivia
Omri
Pamela
Parks
Patience
Patricia
Patrick
Paul
Peggy
Peter
Phyllis
Porsha
Randolph
Randy
Randy Lynn
Raphael
Rasheed
Ray
Raymond
Rebecca
Reginald
Reid
Renico
Reyna
Rhonda
Richard
Ricky
Riscardo
Robert
Roberta
Rodney
Roger
Roland
Ronald
Rosalind
Rose
Russell
Rusty
Ryan
Rye
Sammy
Samuel
Santiago
Sarah
Scott
Sean
Sergio
Shannon
Sharon
Shawn
Shayolyn
Sheila
Sheldon
Sherry
Shirley
Spencer
Stanley
Stephanie
Stephen
Steve
Steven
Suoiman
Susan
Sydney
Sylvia
Tabitha
Tamara
Tamysen
Tanya
Tara
Tasha
Taylor
Teddy
Terence
Teresa
Teri
Terrence
Terri
Terry
Theodore
Thomas
Tiffany
Timothy
Tito
Todd
Tommy
Toni
Tony
Tracy
Trevor
Tyrell
Tyrone
Ulysses
Urvashi
Valerie
Vicki
Victoria
Vincent
Walter
Wayne
William
Willie
Young
Yueh
Zachary
Zerina
Donors makegiftsoflifeandhealingin2020life possible
Remembering those who gave the
LIF
ES
HA
RE
LIN
K
7
-
oftheHERO week
This past September would have been the 3rd
Ronald Blake Hughes
Memorial Ride. The event had to be cancelled d
ue to COVID. But that
didn’t stop Blake’s dad, James, from doing his p
art to keep his son’s
memory alive.
Donation was a choice Blake made for himself and one that has given his dad James some comfort. Through his advocacy, James Hughes has raised awareness for donation and inspired others to register as donors. He’s also become dedicated to raising funds to help LifeShare with outreach. This year since he couldn’t host the event, James decided to host his annual fundraiser online. From Blake’s birthday in August through the date of his death in September, James raised money in his son’s honor. All contributions went directly to LifeShare Carolinas, to help us continue spreading the word about the importance of organ, eye, and tissue donation. We want to express our sincere thanks to James for his commitment to honoring Blake’s legacy by being such a wonderful advocate for donation.
If you are interested in hosting a personal fundraiser to contribute to the LifeShare Carolinas Fund, please email [email protected].
calling ALL donation champions
Are you a recipient, donor family member or liv
ing donor? Maybe you’re just very passionate
about organ,
eye, and tissue donation? Then we would love
to have you join our volunteer program, NC Ch
ampions for
Life! To learn more about our volunteer progra
m, visit LifeShareCarolinas.org/Volunteer.
CONNECT
LifeShareCarolinas
Show your Donate Life pride on social media using #DonateLifeMonth
LifeShareNC
BLAKE'S LEGACYHONORINGHELP LIFESHARE
SAVE LIVES This November, LifeShare Carolinas launched a new social media series aimed at honoring our donors. Each week, we will
feature a donor as part of our Hero of the Week series.
To learn more about this opportunity or to nominate a donor
for a Hero of the Week feature, visit LifeShareCarolinas.org/Donor-Families and click the Honoring Our Donors button.
Your generous donation can help LifeShare save lives. A financial contribution supports our work recovering and distributing lifesaving organs, eyes, and tissue. Donations allow for critical capital needs, public education on the importance of transplantation, and support our Bridge to Healing program for grieving donor families. Ways to contribute include:
• Designate LifeShare to receive memorial contributions in lieu of flowers; or
• Donate to LifeShare in honor of a transplant recipient, donor, or other loved one
When a financial donation is made in honor of a friend or loved one, the person honored, or the donor’s family is notified of the gift. All contributions are tax-deductible and are used to support LifeShare’s work in fulfilling our mission of giving hope, life, and healing.
Donations can be made online at: LifeShareCarolinas.org/Contribute, or you can a check payable to LifeShare Carolinas and mail to: LifeShare Carolinas, PO Box 32861, Charlotte, NC 28262.
LIF
ES
HA
RE
LIN
K
9
-
HOSPITALS SPREADING
HOPELifeShare Carolinas would like to extend a special thank you and
congratulations to our hospital partners who worked so hard in
2019 and early 2020 to promote organ, eye, and tissue donation
as part of the HRSA Workplace Partnership for Life program. We
appreciate all you do to save lives!
*Due to COVID-19 restrictions, all participating hospitals were
recognized at the Platinum level since they weren’t able to complete
events planned during March and April.
Atrium Health CabarrusAtrium Health PinevilleAtrium Health’s Carolinas Medical CenterHaywood Regional Medical CenterMission HealthNovant Health Matthews Medical CenterNovant Health Presbyterian Medical Center
Sarah’s struggle started in 2013, when she was in a car accident. While being examined, doctors discovered something much worse than expected – they found a tumor in her thyroid. She was diagnosed with thyroid cancer and went through treatment. During a follow up scan, doctors found a growth on her gallbladder and recommend having the organ removed. Over the next several years, Sarah was in and out of doctor’sofficesandhospitalswithdiagnosisafterdiagnosis–stomachfailure,intestinalfailure, sepsis, blood clots, and feeding tube failures. Running outofoptions,herdoctorfinallysuggested a transplant. She was hesitantatfirst,butthedoctorwarned her a transplant was her best hope for survival.
In early 2020, Sarah went to University of Miami to be evaluated for what she thought was a small bowel transplant. But she says the surgeon had other
plans, “He said ‘Oh yeah, we’re actually going to be replacing 4 or 5 organs.’ We said, ‘Oh no, no, hold on! What did you just say? Is that a thing?’” Shocked and scared, Sarah leaned on her faith and realized if there was anyone who could save her, it was this surgeon and his team. She now calls this group calls her “Dream Team.”
As soon as she came to terms with her new reality, Sarah was dealt another blow. Her insurance was going to deny the costly surgery because she wasn’t in end-stage liver failure. Her doctors got involved and warned if she made it to that point, she would be too sick for the transplant and couldn’t survive. She dug deep and brought outherfightingspiritonceagain,taking to social media to launch a public appeal. For six months, she fought.Finally,inJuly,aresolutioncame. The decision had been overturned. Sarah was overcome withemotion.Ittookhertwohours to gain her composure and
One look at Sarah Granados and what you see is a beautiful,
infectious smile. What you can’t see is the physical and emotional
pain she’s been battling for the past seven years. Sarah is deep
in a fight for her life, waiting for a multi-organ transplant. If
her miracle doesn’t come soon, the 35-year-old mom of three
fears she may not live to see her teenage children grow up.
be able to call her family, and, even then, she could barely get the words out.
While she waits for her second chance, Sarah is home with her family, soaking up every moment. She can’t do all the things most moms do – like go swimming with them or go out to eat – but, she’s present in every moment, making memories that will last a lifetime.Withoutherhusbandandher kids, she doesn’t know if she could survive this journey, “You know, they are everything to me and if it was not for them, I don't know how I would even have the strength. Even last week I just kept saying, ‘How do I do that? How? How do I do this?”
It has now been more than 100 dayssinceshewasofficiallylistedas“statusone”onthewaitinglist.But, the wait hasn’t come without complications.SarahhasbattledmoreinfectionsandiscurrentlyfightingMRSA.Asshecontinuestofightforherlife,sheoftenlooks
downatatattooonherrightarm,Revelation21:4.TheBibleverse reminds her that there will be a day with no tears and no pain. She prays for that day, not just for herself, but for her loving familywhohasfoughtthisbattle
along with her for so many years. Our hope for Sarah is that next October, when she celebrates her 36th birthday, she will have no pain and only tears of joy as she reflectsonthehard-foughtbattleto regain her life.
LIF
ES
HA
RE
LIN
K
11
-
5000-D Airport Center ParkwayCharlotte, NC 28208
In 2004, I remember waking up to our phone ringing and hearing my father say, “We will be right there.” It is one of those dreadful moments that will forever stay in your mind. One of my cousins had been in a tragic car accident at age 19. I remember arriving at the hospital and learning the tragic news that he was brain dead. After a few hours, my uncle told us he had decided to help others through organ donation and that my cousin was going to save others. My cousin helped saved eight lives!
As a united family, we moved on with our grief and always felt proud of my uncle’s decision, knowing my cousin lived in others. Many years later, I attended a Diversity and Inclusion conference, and sitting beside me was a teammate from LifeShare. We started
chatting and by the end of the day, she told me I would be a great addition to the LifeShare team.A few days, later I went for an interview at LifeShare. The family support manager asked if I was familiar with organ donation.
I mentioned my cousin and how he was able to save eight lives through organ donation. As I talked about my experience, I vividly remember my interviewer looking at me speechless. When I was done speaking, she took a deep breath and told me she was the one who spoke with my uncle about my cousin’s option to become an organ, eye, and tissue donor in 2004.
It is so ironic how the world’s population is over seven billion, yet I was meeting the person who provided support and education for my family during our tragic loss. Ironic, because I was interviewing for that same position seven years later.
I began working for LifeShare in March 2011. I was trained by a heart recipient who was very passionate about LifeShare and its mission: to give hope, life, and healing. I can say I learned from the best of the best and my passion was cultivated instantaneously. As a family support specialist, I provide support to family members going through the painful journey of losing a loved one. I also have the opportunity to educate these families about the potential their loved can have in helping others through organ, eye, and tissue donation.
I know from first-hand experience what it is like to hear those awful and dreadful words that your loved one is not going to recover or that your loved one has died. In those heartbreaking moments, it is an honor and a privilege to be able to care for them, to provide support, and offer them the opportunity for their loved one to continue living their legacy in others by organ, eye, and tissue donation.
I am beyond blessed to be a part of the LifeShare team and I am beyond blessed to be someone who makes a difference daily. I am very much, LifeShare proud!
LIFESHARE PROUDby Maribel Lopez