thomas lynch & theodora peters
DESCRIPTION
UNITED in Faith, Health and Strength: A Faith and Community Based Education Program on Advanced Care Planning and End of Life Care. Thomas Lynch & Theodora Peters Nuts and Bolts of Community Based Participatory Research Knowledge Put into Action Breakout Session. April 2014. - PowerPoint PPT PresentationTRANSCRIPT
UNITED in Faith, Health and Strength: A Faith and
Community Based Education Program on Advanced Care Planning and End of Life
Care.
Thomas Lynch & Theodora Peters
Nuts and Bolts of Community Based Participatory
Research Knowledge Put into Action Breakout Session.
April 2014
Theodora Peters, MHS
Hopkins ElderPlus, Outreach Coordinator
New Shiloh Baptist Church, Deacon
UNITED – Lead Parishioner Advocate
Thomas Lynch, PhD
Johns Hopkins Research Coordinator
Palliative Care Researcher
Roman Catholic Parishioner
Introduction• Researchers at Johns Hopkins University
have applied for funding to develop a faith-
centered, community-based educational
program on Advanced Care Planning and
End of Life Care.
• If funded, the project will be a joint
partnership between parishioners and
leaders at two local African-American
churches, doctors, nurses, and public
health researchers.
Who is UNITED?
Today’s Aim
Gain a better understanding of
community member & parishioner
knowledge and perception of
Advanced Care Planning and End of
Life Care
Advance Care Planning
• Discussing medical options in the event
that the patient becomes too sick to
speak for him or herself
“Who do you want to speak for you when
you can’t speak for yourself?”
End of Life Care
• High quality end of life care involves
symptom management, psychosocial
support of patients and their families, and
provision of care consistent with their goals.
“What do you want the last days of your life to
be like?”
“Do you want to be at home? Do you want to
be in a hospital?”
Faith and Illness
• Religion, faith, and spirituality
fundamentally impact how a person
perceives life, illness, and death.
“When I’m called home, it is a reward…I
celebrate crossing over.”
“A Homegoing Service is a celebration of
life.”
The UNITED Project
• The partnership goals are:
• To encourage parishioners to talk to each
other and their loved ones about advance
care planning and end-of-life care that are in
alignment with their faith and priorities.
• To empower parishioners to specify who
makes end-of-life care decisions for them,
should they be too sick to speak for
themselves.
First Baptist Church of Highland Park
New Shiloh Baptist Church
History
• New Shiloh Baptist Church is celebrating its 112th year
• Church began in 1902 with 3 people in a prayer meeting
• Parishioners are predominantly African American
Pastors
• Dr. Whit W. Allen 1902-1942
• Rev. Timothy Boddie 1964- 1963
• Rev. Harold A. Carter 1964-2013
• Rev. Harold Carter Jr. 1996 to present
Rev. Harold Carter, Jr.
Growth
• The church grew under the first three pastors and continues to grow– National and international leadership
–Multi-million dollar complex in the inner city, which includes the evolving New Shiloh Village Community
• New Shiloh has licensed over 150 ministers
Services & Ministries
• Open 7 days a week, 365 days at 6:00am for prayer ministry
• Offers 3 different Sunday worship services
• Has over 35 ministries to address the needs of the congregation and community
Schools
• Saturday Church School celebrates 40 years of ministry and replaces the traditional Sunday school classes
• New Shiloh is the parent body for 2 schools:– The Nathan Carter School of Music
– The Determined Biblical and Theological Institute of Baltimore, MD
Nurses Ministry• Registered Nurses, Licensed Practical
Nurses, Certified Nursing Assistants & Technicians:
– Help people with disabilities or those who become ill during services
– Check vital signs or blood glucose
– Assist at an annual health fair at the church
– Provide CPR training
– Comfort bereaved family members at home
New Shiloh and UNITED
• New Shiloh is a good place for UNITED
• This is a good time for UNITED at New Shiloh
Proposed components of UNITED
• A faith-embracing video that, amongst
other things, will educate about Advanced
Care Planning and End of Life Care
• Trained parishioner lay health educators
who can counsel co-parishioners regarding
Advanced Care Planning and End of Life
Care.
Reason for Breakout Session
In the next 12 months, UNITED leaders will
engage faith and community groups to
explore parishioner and church leader current
knowledge and perceptions regarding
Advanced Care Planning and End of Life Care.
Reason for Breakout Session
Your participation today will help the UNITED team
develop a plan to identify and reach out to
parishioner and community stakeholders.
Please also help us identify potential questions and
concerns that parishioners and community
members may have about Advanced Care
Planning, End of Life Care, and the proposed
UNITED project.
Discussion questions
• How can we best explore community views on
Advanced Care Planning and End of Life Care?
• Who are other potential partners that could
contribute to this project?
• What concerns may parishioners have about
Advanced Care Planning and/or End of Life
Care?
• How should these concerns be addressed?
Scope of the problem
• Multiple studies show that African
Americans may receive poorer end of life
care.
• African Americans may be more likely to
receive care inconsistent with their
preferences with further disparities related
to transitions of care (such as appropriate
use of hospice).
Scope of the problem• Smith, et al., J Gen Intern Med. (2007) examined
satisfaction with health provider communication - African
Americans were less satisfied than White populations ;
• Mack, et al., Arch Intern Med. (2010) examined racial
disparities on end-of-life-care communication - African
American care provision was found to be inconsistent
with their preferences ;
• Lepore, et al., Gerontologist (2011) examined rates of
hospice use - there are lower rates of hospice use
amongst African Americans as compared to White
populations .