social media for social change: challenging the discourse of disability and difference

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Please come in, find a seat, and buckle up! I’m looking forward to starting this journey with you!

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Social Media for Social Change: Challenging the Discourse of Disability and Difference presentation to the annual conference of the College Association for Language and Literacy (CALL) May 25, 2011, Algonquin College, Ottawa, Canada.

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Page 1: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Please come in, find a seat, and buckle up! I’m looking forward to starting this journey with you!

Page 2: Social Media for Social Change: Challenging the Discourse of Disability and Difference

LiveWorkPlay: a happy

accident!

Page 3: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Social Media? Marketing? Me? No no no, I work for a charity!

The work of charities is change. Change is a marketing task!

Page 4: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Helping our community welcome people with intellectual disabilities to live, work, and play as valued citizens.

A community where everyone belongs.

People with intellectual disabilities will progress as self-advocates and contributing citizens […]

A transformative journey…

Page 5: Social Media for Social Change: Challenging the Discourse of Disability and Difference
Page 6: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Found guilty of a crime Against society

Found guilty of

having an intellectual disability

Page 7: Social Media for Social Change: Challenging the Discourse of Disability and Difference
Page 8: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Not about fixing people with intellectual disabilities

Exclusion is everyone’s issue we must all work to change it

Social Services Social Change

Our motivation to transform from social services to social change through citizen engagement, social

capital, and community capacity: putting the social in our services!

(Or, creating developments in developmental services!)

Page 9: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Social Services Social Change

Decisions = Paid Staff and/or Family Education = Day Program/Special Ed Recreation = Segregated Program Employment = Sheltered Workshop Home = Institutional Setting Relationships = Paid Staff and/or Family

Decisions = Self-Directed Education = Learning In Community Recreation = Playing In Community Employment = Authentic Work/Volunteerism Home = House or Apartment Relationships = Family, Friends, Lover, Neighbours Unpaid Support, Paid Support

TRANSFORMATION

A Transformative Journey

- Keenan Wellar

Page 10: Social Media for Social Change: Challenging the Discourse of Disability and Difference

- nickscrusade.com

This is the model that continues to dominate human services despite overwhelming evidence that it is more expensive and less effective…

Page 11: Social Media for Social Change: Challenging the Discourse of Disability and Difference

- nickscrusade.com

Help the person but don’t blame them for barriers they did not create!

Page 12: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Communication is what one does with words and what they do to us. — J. Samuel Bois, The Art of Awareness

Page 13: Social Media for Social Change: Challenging the Discourse of Disability and Difference
Page 14: Social Media for Social Change: Challenging the Discourse of Disability and Difference

When we find our similarities, the differences can be put into place and we can push our relationships to the next level…quite simply similarities can override differences. The Essence of Interdependence Al Condeluci, Ph.D. (1999)

Page 15: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Difference as “Special”

- http://tilltheshortbus.blogspot.com/

Page 16: Social Media for Social Change: Challenging the Discourse of Disability and Difference

80-90% of mothers who receive a pre-natal diagnosis of Down Syndrome children abort them

80% of doctors who have had to communicate a pre-natal diagnosis of Down Syndrome admit to having no training whatsoever as regards people with intellectual disabilities in society

- Canada Down Syndrome Society (CDSS) genocide: the deliberate and systematic extermination of a

national, racial, political, or cultural group

Page 17: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Retreat from the language of justice to the language of caring is perhaps the most worrying sign of the contemporary decadence of the language of citizenship. The practice of citizenship is about ensuring everyone the entitlements necessary to the exercise of their liberty… welfare is about rights, not caring, and the history of citizenship has been the struggle to make freedom real, not to tie us all in the leading strings of therapeutic good intentions. - Ignatieff M (1989) "Citizenship and Moral Narcissism" Political Quarterly

Page 18: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Communication is what one does with words and what they do to us. — J. Samuel Bois, The Art of Awareness

International Union for Conservation of Nature

Page 19: Social Media for Social Change: Challenging the Discourse of Disability and Difference

MORE

Family Friends Colleagues Co-Workers Classmates Neighbours Spouse

AS NEEDED

Workers Staff Doctor Psychologist Psychiatrist Social Worker - Julie Kingstone

Page 20: Social Media for Social Change: Challenging the Discourse of Disability and Difference

We don’t want to be the one star in your sky!

We want you to have a whole universe of stars!

Page 21: Social Media for Social Change: Challenging the Discourse of Disability and Difference

The relationships and friendships that people have in their lives!

Research shows Social Capital is related to:

• Healthfulness • Happiness • Longevity

• People getting jobs • People finding others to live with • People being more tolerant, respectful, kind, helpful • It leads to people resolving problems more easily • It enhances physiological/psychological functioning • That pro-social behaviors increase

What is Social Capital?

Using a simple measurement tool incorporating acquaintanceship, friendship, and covenant relationships, average Social Capital for people with disabilities is about 30 (150 is typical)

- Al Condeluci

Page 22: Social Media for Social Change: Challenging the Discourse of Disability and Difference
Page 23: Social Media for Social Change: Challenging the Discourse of Disability and Difference

He who would be a leader, let him first become a bridge

Social media can build bridges that ignore the limits of time and space…

Done right, it is the Pittsburgh of social capital bridge building!

Page 24: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Website and Partner Websites

Page 25: Social Media for Social Change: Challenging the Discourse of Disability and Difference

715 Views of Moira and Caroline [So Far]: Important Events Analytics

Who Is Watching?

Social media analytics bring surprising levels of understanding and transparency to relationships

Page 26: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Expecting a mob of social media supporters to magically appear?

“Charity begins at home”

Page 27: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Some non-profits may fear that social media resistance is futile…

Those who are in proper mission-oriented focus will understand it as a new universe of opportunities…

Page 28: Social Media for Social Change: Challenging the Discourse of Disability and Difference

The practices and attitudes of the non-profit community often alienate potential recruits

Page 29: Social Media for Social Change: Challenging the Discourse of Disability and Difference
Page 30: Social Media for Social Change: Challenging the Discourse of Disability and Difference

WHAT IF THE SOCIAL CHANGE YOU BELIEVE IN LOSES OUT TO ANOTHER VIEW BECAUSE YOUR VOICE IS NOT IN THE CONVERSATION?

THE NOTION THAT THE NON-PROFIT COMMUNITY IS A NON-COMPETITIVE COMMUNITY IS BOTH DANGEROUS & FOOLISH

Page 31: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Traditional Media:

Not What It Used To Be

Background Research Could Be Wikipedia

The Assignment Editor Is Watching

For Tweets And Facebook Updates

The Reporter Has Only Minutes

For The Story

Your Target Audience Might Not Be Watching

Page 32: Social Media for Social Change: Challenging the Discourse of Disability and Difference
Page 33: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Can I easily generate wide interest in the issues that impact the lives of people with intellectual disabilities and their families?

After 17 years of trying – and watching others try – that’s a NO.

So I find the audience using whatever means necessary.

Social Media has opened and continues to open many doors.

Page 34: Social Media for Social Change: Challenging the Discourse of Disability and Difference

The perfect social media storm…social capital

paying off (in this case, as actual capital)

Page 35: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Andrea and I are interested in training with a team of LiveWorkPlay members to participate in this fun event

either by walking or jogging the 2K, 5K, 10K, or half marathon.

Social Media “Loss Of Control” Can Be A Great Thing!

Page 36: Social Media for Social Change: Challenging the Discourse of Disability and Difference
Page 37: Social Media for Social Change: Challenging the Discourse of Disability and Difference

For some,

social media is understood as a tool, a job, a skill, a choice…

For others,

social media is understood as the most profound confluence of human discourse the world has ever seen… - Keenan Wellar, CALL 2011

When pursuing social change – whether it is a community where everyone belongs, or another desired social transformation – how leaders (both individuals and organizations) choose to understand social media will have profound consequences.

Page 38: Social Media for Social Change: Challenging the Discourse of Disability and Difference

Find out more than you’d ever want to know about me including contact info at http://keenan.wellar.ca

You will also find a link to this presentation!

If you were upset or otherwise unhappy about this presentation, please let me know. If you benefited in some

way, please let the world know!

Twitter: @KeenanWellar Facebook: fb.me/kwellar