patient empowerment through mobile health: case study with...

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LONG PAPERS Patient empowerment through mobile health: Case study with a Brazilian application for pregnancy support Gustavo V. Delgado 1 | Rodrigo B. de Carvalho 1 | Chun W. Choo 2 | Ramon S. Leite 1 | José M. de Castro 1 1 Pontifical Catholic University of Minas Gerais PUCMinas, Belo Horizonte, Brazil 2 Faculty of Information University of Toronto, Toronto, Canada Correspondence Gustavo V. Delgado, Pontifical Catholic University of Minas Gerais PUCMinas, Belo Horizonte, Brazil. Email: [email protected] Abstract This paper analyzes how mobile health applications contribute to the empower- ment of health service users. The theoretical foundation includes m-health, user empowerment, and value co-creation. Quantitative and qualitative methods were used to investigate the Kangaroo application (Canguru, in Portuguese), which targets Brazilian pregnant women and seeks to make women empowered for a healthy pregnancy. The free app is a healthcare social network designed by a health-tech startup and a reference Brazilian hospital. It has already supported 350,000 pregnant women, and more than 200 health professionals. The data col- lection effort comprised application log analysis of 6 months of records of 99,709 users, mobile-based survey with 429 women and 16 interviews. The results showed that the functionalities of the personal and social dimensions mapped in the application explain 85.5% of the user empowerment. The app social fea- tures impacted 2.4 more than the personal functionalities. The quantitative anal- ysis concluded that there was no moderating effect of styles of value co-creation practices on the relationship between empowerment and its dimensions. The theoretical contribution is associated with the discussion of the influence of per- sonal and social dimensions of m-health to the user empowerment. KEYWORDS health informatics, mobile health, user empowerment, value co-creation 1 | INTRODUCTION The health market is characterized by its complexity since new technologies, medicines, diseases and treat- ments may appear in a dynamic pace. Furthermore, health institutions usually face a triple aim challenge: (a) improving the individual experience of care; (b) improving the health of populations; (c) reducing the per capita costs of care for population (Berwick, Nolan & Whittington, 2008). The combination resulting from the evident pressure of rising costs, the epidemiological profile change and the necessary reorganization of health services has attracted the attention of healthcare solution providers in order to broaden access and reduce costs (Lee & Han, 2015). This context has also stimulated service innovation, allowing not only quality improvement, but also breakthroughs in greater efficiency and cost reduction (Thakur, Hsu & Fontenot, 2012). Nonetheless, physician-centered systems have achieved limited impacts on health outcomes DOI: 10.1002/pra2.221 83rd Annual Meeting of the Association for Information Science & Technology October 25-29, 2020. Author(s) retain copyright, but ASIS&T receives an exclusive publication license Proc Assoc Inf Sci Technol. 2020;57:e221. wileyonlinelibrary.com/journal/pra2 1 of 14 https://doi.org/10.1002/pra2.221

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Page 1: Patient Empowerment through Mobile Health: Case Study with ...choo.ischool.utoronto.ca/FIS/respub/ASIST2020.pdf · designed by a health-tech startup and a reference Brazilian hospital

L ONG PA P E R S

Patient empowerment through mobile health: Case studywith a Brazilian application for pregnancy support

Gustavo V. Delgado1 | Rodrigo B. de Carvalho1 | Chun W. Choo2 |

Ramon S. Leite1 | José M. de Castro1

1Pontifical Catholic University of MinasGerais – PUCMinas, Belo Horizonte,Brazil2Faculty of Information – University ofToronto, Toronto, Canada

CorrespondenceGustavo V. Delgado, Pontifical CatholicUniversity of Minas Gerais – PUCMinas,Belo Horizonte, Brazil.Email: [email protected]

Abstract

This paper analyzes how mobile health applications contribute to the empower-

ment of health service users. The theoretical foundation includes m-health, user

empowerment, and value co-creation. Quantitative and qualitative methods

were used to investigate the Kangaroo application (Canguru, in Portuguese),

which targets Brazilian pregnant women and seeks to make women empowered

for a healthy pregnancy. The free app is a healthcare social network designed by

a health-tech startup and a reference Brazilian hospital. It has already supported

350,000 pregnant women, and more than 200 health professionals. The data col-

lection effort comprised application log analysis of 6 months of records of 99,709

users, mobile-based survey with 429 women and 16 interviews. The results

showed that the functionalities of the personal and social dimensions mapped

in the application explain 85.5% of the user empowerment. The app social fea-

tures impacted 2.4 more than the personal functionalities. The quantitative anal-

ysis concluded that there was no moderating effect of styles of value co-creation

practices on the relationship between empowerment and its dimensions. The

theoretical contribution is associated with the discussion of the influence of per-

sonal and social dimensions of m-health to the user empowerment.

KEYWORD S

health informatics, mobile health, user empowerment, value co-creation

1 | INTRODUCTION

The health market is characterized by its complexitysince new technologies, medicines, diseases and treat-ments may appear in a dynamic pace. Furthermore,health institutions usually face a triple aim challenge:(a) improving the individual experience of care;(b) improving the health of populations; (c) reducing theper capita costs of care for population (Berwick, Nolan &Whittington, 2008).

The combination resulting from the evident pressureof rising costs, the epidemiological profile change and thenecessary reorganization of health services has attractedthe attention of healthcare solution providers in order tobroaden access and reduce costs (Lee & Han, 2015). Thiscontext has also stimulated service innovation, allowingnot only quality improvement, but also breakthroughs ingreater efficiency and cost reduction (Thakur, Hsu &Fontenot, 2012). Nonetheless, physician-centered systemshave achieved limited impacts on health outcomes

DOI: 10.1002/pra2.221

83rd Annual Meeting of the Association for Information Science & Technology October 25-29, 2020.

Author(s) retain copyright, but ASIS&T receives an exclusive publication license

Proc Assoc Inf Sci Technol. 2020;57:e221. wileyonlinelibrary.com/journal/pra2 1 of 14

https://doi.org/10.1002/pra2.221

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(Berwick et al., 2008), pushing the mainstream towardspatient-centered approach.

The ubiquity of Internet as an information source forhealthcare is a phenomenon that directly influenceshealth services (Lee, Hoti, Hughes & Emmerton, 2014),because the easiness of access and vastness of informa-tion affect the relationship between patients and healthprofessionals, making the role of health service usersmore relevant (Lee, Hoti, Hughes & Emmerton, 2015).Due to the omnipresence of smartphone access, mobiletechnologies and applications are exponentially affectingthe user experience with health services, deriving a sub-field called as mobile health, or simply m-health (Sweilehet al., 2017). One of the main advantages of the use ofmobile applications is due to the fact that they are per-sonal, smart and connected (Fiordelli, Diviani &Schulz, 2013).

The “Doctor Google” expression (Lee et al., 2015)refers to the popularity of Web-based health searches,which are usually associated to unguided access, infor-mation quality issues and even self-medication. In a qual-itative study about health information access throughGoogle, Lee et al. (2014) concluded that users wanthealth professionals to play a guiding role, helping themin finding reliable and relevant information. Newholm,Laing, and Hogg (2006) state that the unregulated natureof the Internet would be a contributing factor to patientempowerment.

Despite the large volume of publications on m-health,the scientific literature that considers the empowermentperspective of health service users is still restricted.Almunawar, Anshari, and Younis (2015) incorporated theempowerment concept into to m-health, presenting a theo-retical framework that comprises three dimensions:(a) medical empowerment; (b) personal empowerment;(c) social empowerment. Nevertheless, empirical evidenceis still lacking to support this theoretical proposition. Inorder to bridge this gap, this paper analyzes the extent towhich m-health applications empower health service users.The case of Kangaroo (in Portuguese, Canguru), a Brazilianfree mobile application for pregnancy support, was ana-lyzed through quantitative and qualitative methods.According to the app support website (Canguru.life, 2020),the app has already supported 350,000 pregnant women,more than 200 health professionals, 3,246 hospitals from1,224 cities all across Brazil. The app consists of ahealthcare network support by the Albert Einstein Israelitehospital, which is one of the reference private hospitals inBrazil.

Beyond this introduction, this paper has been struc-tured as follows: section 2 comprises the theoretical back-ground with the topics of healthcare user empowerment,m-health, service innovation with focus on co-creation

value and also presents the research model and itshypotheses; section 3 provides details about the methodo-logical approach, the empirical analysis units, as well asthe strategies for data collection and analysis; section 4 isfor the description and analysis of the data. Finally, thelast session brings the discussions about the theoreticaland empirical contributions. This study was approved bythe Brazilian Research Ethics Committee, since itinvolved interview with pregnant women and access tohealth data.

2 | THEORETICAL BACKGROUND

The background considers the following themes to sup-port the research model: (a) customer empowerment,where the “customer” is the patient or healthcare user;(b) m-health, pointing out the attributes that contributeto the empowerment of health service users and(c) service innovation, focusing on co-creation value. Aresearch model is proposed with hypotheses for theinvestigation concerning the user empowerment in them-health context.

2.1 | Healthcare user empowerment

Healthcare users are usually seen as passive receivers inthe more traditional studies of health services (Aujoulat,D'hoore & Deccache, 2007). On the other hand, thehealth user empowerment perspective assigns them amore active role (Almunawar et al., 2015) in their rela-tionship with service providers, encouraging them to takeresponsibility for their own health, culminating, also, indecision-making and consequences monitoring. Nonethe-less, there is a significant concern about the qualitativeconsequence of such empowerment due to a possiblenon-adherence to health treatments as a consequence ofa shared decision, such as recent digitally mobilized par-ent groups against mandatory vaccination campaigns(Camacho, De Jong & Stremersch, 2014).

Empowerment is a concept widely used in the SocialSciences and can be understood as a process, as a resultor as a process and a result (Pires, Stanton & Rita, 2006).Empowerment may be considered as a process, since itcontributes to critical thinking and autonomous action,but also as an outcome, when the result of this processtranslates an improvement feeling in personal effective-ness (Anderson & Funnell, 2010).

Empowerment was addressed by several studies in theliterature (Almunawar et al., 2015; Anshari, Almunawar,Low, Wint & Younis, 2013; Aujoulat et al., 2007), butempowerment measurement needs further studies,

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because universal instruments could be insufficient, sincethey may not consider variables related to the local cul-tures and contexts (Wallerstein, 2006). Gagnon and Ren-nick (2009) proposed to review and identify questionnairesthat measure empowerment and demonstrate better evi-dence of reliability and validity, recognizing empowermentas a multidimensional construct applicable to both individ-uals and organizations. In their studies, the authorsobserved that there was a significant diversity of theoreti-cal basis for the measurement of the empowermentconstruct.

Barr et al. (2015) conducted a new systematic reviewon patient empowerment assessment. The authors statedemphatically that there is no consensus on the best wayto effectively demonstrate patient empowerment,endorsing the absence of a common instrument for mea-suring empowerment between different health services.Limited comparative capacity between empowermentassessment instruments is still remarkable (Gagnon &Rennick, 2009). The particularities associated with thecontext, the health conditions or the treatments areelements that directly interfere in the elaborationof questionnaires aimed at measuring the patient'sempowerment.

2.2 | Mobile health (m-Health)

Mobile health can be situated as a subdomain of abroader field of study called Consumer Health Informa-tion (CHI). In a systematic review of this construct,Flaherty, Hoffman-Goetz, and Arocha (2015) stated thatCHI is an emerging field that uses technology to providehealth information in order to improve the decision-making process about healthcare by the population, butthey also concluded that there is no uniform and widelyaccepted definition of this research field.

According to the view of Faiola and Holden (2017),CHI comprises the study of the patient informationneeds and the healthcare technologies, as well as theimplementation of methods to make this informationaccessible to consumers. This subject is also studiedfrom the Health Informatics perspective, where m-health is related to the usage of mobile communications,such as smartphones, for health and information ser-vices (Akter, D'Ambr & Ray, 2013).

The application domain deserves special attention inthe m-health subfield. Faiola and Holden (2017)highlighted the relevant number of apps available fordownload from the main platforms with purposes vary-ing from chronic illnesses to well-being. Ali, Chew, andYap (2016) stated that applications have been rep-resenting the most used way of intervention in m-health

since 2012. Despite technological developments, the par-adigm shift from physician-centered perspective towardspatient-centered applications is far from trivial,resulting in many unsuccessful m-health projects (Lee &Han, 2015).

In the m-health domain, the prevalence of academicworks from the perspective of health professionals, espe-cially physicians, is well known and the most frequent sub-jects are professional education, diagnostic assistance,monitoring and remote action (Boulos, Brewer, Karimkhani,Buller & Dellavalle, 2014). Studies that focus on the perspec-tive of the healthcare user are gaining relevance as patientsbecome increasingly active, without time or spatial restric-tions, in their relationships with the healthcare providers(Calvillo, Román & Roa, 2015). Considering the peculiaritiesof m-health, Akter et al. (2013) summarized its core attri-butes (Table 1).

TABLE 1 m-Health attributes

Attributes Implication Support References

Accessibility m-Health providesuniversalaccessibilityanywhere, anytime

Bauer, Reichardt,Barnes, andNeumann (2005);Kahn, Yang, andKahn (2010);Varshney (2005)

Personalizedsolutions

m-Health providesindividualizedsolutions addressedto specific needs forthe customer profile

Barnes (2003); BarnesandScornavacca (2004)

Immediacy Right-time services,focusing on relevant,specific and timelyinformation

Barnes andScornavacca (2004);Kahn et al. (2010);Pousttchi andWiedemann (2009)

Location-basedinformation

m-Health providesinformation basedon local context,with geolocationsupport

Barnes (2003);Varshney (2005);Kahn et al. (2010);

Interactivity m-Health providesvalue co-creationthrough intense,reciprocal, long-terminteraction

Barnes (2003); Kahnet al. (2010);

Mobility m-Health meetstemporal, spatialand contextualmobility needs

Chatterjee,Chakraborty, Sarker,Sarker, andLau (2009);Kakihara andSørensen (2001)

Source: Akter et al. (2013, p.182).

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2.3 | Empowerment applied to mobilehealth

The combination of the empowerment and m-health con-structs seems to be a natural trend, considering the expo-nential growth of health mobile applications. Appropriatingthe concept of empowerment to m-health context on anempirical study, Almunawar et al. (2015) developed a con-ceptual model composed of the three following dimensions:personal, medical and social.

The personal perspective (mPersonal) of empowermentconsiders the individual improvement of basic habits, physi-cal exercise and emotional factors (Almunawar et al., 2015).The empowerment in this dimension can be accomplishedby the promotion and enhancement of the user's skills toidentify his/her own needs and issues, as well as finding thenecessary resources to control better his/her own life.

The medical perspective (mMedical) is about the inte-gration between the user and the health provider and theresulting decision-making (Almunawar et al., 2015). Inthe Brazilian context, there are clear regulatory barriersfor the use of technologies or any mass media at a dis-tance for consulting, diagnosing and prescription, limit-ing the use of such media solely for the purposes ofenlightenment and education of society. Some of thesebarriers were recently reviewed and relaxed due to thecurrent Covid-19 scenario.

The social perspective (mSocial) includes the sharingof stories and experiences among users, and also net-working between patients and health providers(Almunawar et al., 2015). The users were benefited fromthe collective knowledge shared through this technology,

obtaining support and feedback that encourage more reli-able decisions upon their health.

2.4 | Service innovation and valueco-creation

According to Barrett, Davidson, Prabhu, and Vargo (2015),there is a new conceptualization of service as value co-creation through exchanges between the actors involvedin the dominant logic of service. Thus, the service and notmore the product becomes the common denominator ofthe economy. The service is part of a process of joiningand reciprocal co-creation of value between providers,beneficiaries and other actors. The benefit provided by theservices would be, therefore, the value that emerges fromthe resource interaction between the involved actors(Barrett et al., 2015; Vargo & Lusch, 2004).

Value co-creation is usually defined as the benefitobtained from the integration of resources through activi-ties and interactions with employees in the customer'sservice network (McColl-Kennedy, Vargo, Dagger,Sweeney & Kasteren, 2012). The practice of value co-creation applied to healthcare domain can be groupedinto certain styles (McColl-Kennedy et al., 2012). Basedupon studies about the dominant logic of service, theoriesof social practices and consumer culture, a typology madeup of five groups of Customer Value Co-creation PracticeStyles (CVCPS) was proposed from the combination ofactivity levels (from low to high) and the number of inter-actions (from low to high) between different individuals(McColl-Kennedy et al., 2012), as shown in Figure 1.

FIGURE 1 Customer Value Co-creation

Practice Styles (CVCPS). Source: McColl-

Kennedy et al. (2012)

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Interactions are associated with the engagement ways ofan individual with other actors in his/her service net-work, whereas activity levels are linked to co-creationattitudes such as information gathering and sharing,cooperative actions and collective learning.

The Team Management style is defined as an user whohas a high level of activities and interactions with the ser-vice provider, other users, family members, also promotesself-managed activities (McColl-Kennedy et al., 2012). Atthe opposite extreme, interactions for the Passive Compli-ance style are primarily proposed by the health profes-sional, responsible for command and guidance. In turn,the Insular Controlling style tends to have superficial inter-actions, although being self-focused. The Partnership styleis characterized by demonstrating a medium level both ininteractions with other individuals and in the activitylevel. The Pragmatic Adaptation style is related to a lowlevel of activities, contrasted by a high level of interactionswith other individuals, private sources and self-generatedactivities (McColl-Kennedy et al., 2012).

2.5 | Research model

The research model (Figure 2) was designed from theintegration of empowerment dimensions applied to m-Health proposed (Almunawar et al., 2015) with the co-creation styles (CVCPS) (McColl-Kennedy et al., 2012).

The research model has one dependent variable(empowerment) and two independent variables,corresponding to the functionalities of the mPersonal andmSocial dimensions of empowerment (Almunawaret al., 2015). The independent variables are not directlymeasured, but they are measured from each mapped

features in the m-health application (Kangaroo) and cate-gorized in each of the dimensions of the model byAlmunawar et al. (2015). The research model did notcomprise the features related to the medical dimension ofempowerment applied to m-health (mMedical), due tothe limitation concerning regulatory boundaries existingin the Brazilian context.

Within the research model, the functionalities of theempowerment dimensions (Almunawar et al., 2015) aretreated as independent variables. Such proposition is jus-tified by the fact that the authors have not investigatedhow much the empowerment dimensions applied to m-health explain the empowerment itself, which is consid-ered a dependent variable in this model. The impact ofthe app features linked to personal and social empower-ment dimensions is crucial to understand how the m-health applications contribute to the empowerment ofhealth service users. Thus, the following theoreticalresearch hypotheses are formulated:

Hypotheses 1 (H1): Personal functionalities in m-healthapplications are positively associated with the empow-erment of health users. (Almunawar et al., 2015)

Hypotheses 2 (H2): Social functionalities in m-healthapplications are positively associated with the empow-erment of health users. (Almunawar et al., 2015)

The research model has also a moderating variable(CVCPS) that considers the relationship between theindependent variables and the dependent variable. Thetypology suggested by McColl-Kennedy et al. (2012) con-sider that there are different styles of value co-creationpractices, which differ according to the intensity (higher

FIGURE 2 Research Model. Source: developed by the authors

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or lower) of activities and interactions. The authorssuggested that this classification is applicable to otherhealth services. Taking in account the typology ofMcColl-Kennedy et al. (2012), there is the hypothesis thatstyles associated with greater participation in activitiesand interactions are positively associated with emp-owered users, while styles with lower participation inactivities and interactions are negatively associated withempowered health service users.

Hypotheses 3 (H3): Customer Value Co-creation PracticeStyles (CVCPS) moderate the relationship between theSocial Dimension and Empowerment. (McColl-Kennedy et al., 2012)

Hypotheses 4 (H4): Customer Value Co-creation PracticeStyles (CVCPS) moderate the relationship betweenPersonal Dimension and Empowerment. (McColl-Kennedy et al., 2012)

3 | RESEARCH METHODOLOGY

Both qualitative and quantitative research strategies(mixed approach) were chosen to develop a case study ofholistic nature and longitudinal cut (Yin, 2010). The caserefers to a m-health application called Kangaroo(Canguru, in Portuguese) that has Brazilian pregnantwomen as its user community. The app was developed bya health-tech startup called Qeepme, which was foundedin 2015 in Belo Horizonte (state of Minas Gerais) andwas supported by the incubation process of the innova-tion agency of the Israelite Albert Einstein hospital in thestate of Sao Paulo. This agency is called Eretz.bio and it isalso sponsored by Pfizer, GlaxoSmithKline (GSK),Novartis and Johnson & Johnson. The application posi-tions itself as a solution that makes women empoweredfor a healthy pregnancy, as it offers professional counsel-ing, prenatal organization, social network for pregnantwomen, risk identification and access to information ontopics related to pregnancy. The app is available in themain mobile platforms (Android & iOS) and a number of99,709 app entries of female users were registeredbetween November, 2017 and April, 2018.

In order to obtain a more comprehensive and contex-tual representation of the unit under investigation, the fol-lowing types of data were used: (a) file logs; (b) structuredquestionnaire and (c) individual interviews. Regarding thefile logs, the health-tech startupQeepme (developer andowner of the Kangaroo app) was visited twice, for under-standing and collecting database records of the case studyapplication. For this research, the 4.3.5 version features ofthe application were mapped, which records are stored in

a structured database and available in Google Play appstore, since August, 2017.

For data extraction, a script in MySQL language wasdeveloped and applied to theapplication database records.A clipping of the registries of users who accessed theKangaroo application from November, 2017 to April,2018 was chosen, resulting in a large data frame of sixcomplete months of records in the application database,totaling 99,709 users.

The structured questionnaire was based on the empow-erment dimensions (Almunawar et al., 2015). The Kanga-roo app's features were mapped and linked to eachdimension proposed by the Almunawar et al. (2015). Thequestionnaire comprised nine statements from the sampleusers in a degree of compliance in 11-point Likert-typescale. The questionnaire was submitted to the women whoregistered in the application between November, 2017 andApril, 2018, the same database corresponding to the ana-lyzed logs. Since it was the same database, it was possible toidentify the respondents profile with the co-creation styles(McColl-Kennedy et al., 2012). In order to determine thesample size (Chin, 2010) in Structural Equation Modeling(SEM) and observe an arbitrarily margin of error of 5% andan arbitrary 95% confidence interval (Lopes, 2016), the cal-culated minimum sample size was 383. It was possible toobtain 429 users complete answers to the survey.

Later, individual interviews (Merton, Fiske &Kendall, 1990) were conducted in a more spontaneousway and with an informal nature, since the intervieweeswere pregnant or recent mothers, but a semi structuredscript (Yin, 2010) based on the research model wasapplied. Sixteen interviews were conducted and recorded,resulting in an average time of 3402900 minutes and334 pages of audio transcript. The quantity of individualinterviews was enough to achieve the saturation criterion(Eisenhardt, 1989). The selection of respondents wasintentional and the chosen women were the users withmost intensity of use of the application and consequentlymore able to contribute with the study. The interviewswere held in person with pregnant women in BeloHorizonte, Brazil and with the support of the Skype soft-ware for interviewing women in other regions. The inter-views happened from June to July, 2018.

Regarding the data analysis strategy, the source con-tent of the gathered qualitative evidences was analyzed(Bardin, 2011). The simple count of registry occurrencein database log for each mapped variable was considered,allowing the identification of the usage (yes or no) as wellas the frequency of the use of certain feature (featureusage index).

Using the CVCPS typology (McColl-Kennedy et al.,2012),the app users were categorized according to the intensity(higher or lower) of activities and interaction in the

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application. Such classification enabled the analysis ofCVCPS as a moderating variable of the relationship betweenthe functionalities of the empowerment dimension (indepen-dent variables) and the empowerment itself (dependent vari-able). The individual interviews were transcribed andorganized with the support of NVivo 12 software. The con-tent analysis of the interviews was made with the support ofa previously prepared data categorization.

To identify the attributes of the application thatcontribute to the empowerment of its users, eachexcerpt attached to a feature was categorized under anattribute to m-health (Akter et al., 2013). Regardingthe database analysis strategy referred to the struc-tured questionnaire, a descriptive analysis of the vari-ables was made, observing its relative and absolutefrequencies, while in the description of the items, mea-sures of central tendency, position and dispersion wereused. Besides that, the method of Bootstrap (Efron &Tibshirani, 1994) was used to calculate the confidenceintervals of averages.

SEM was used to evaluate the relationship betweensocial and personal empowerment functionalities withthe empowerment itself, applying the approach of PartialLeast Square – PLS (Tenenhaus, Amato & EspositoVinzi, 2004). The Bootstrap method was used to calculatethe confidence intervals for the factor loadings of mea-surement and for the betas of the structural models.Dimensionality, confidentiality and convergent valida-tion were evaluated, so the validation of the

measurement model could be verified. As for the conver-gent validity, the criteria suggested by Fornell andLarcker (1981) was used once again. The Cronbach Alfa(CA) and the Compound Reliability (CC) were used tomeasure the reliability of the empowerment dimensionstaken in account in this research model. R-square (R2)and Goodness of Fit (GoF) were used for the adjustmentquality verification. R2 represents, on a scale from 0 to100, how much the independent variables explain thedependent variables, and the closer to 100 the better. TheGoF also ranges from 0% to 100%, and again the closer to100%, the better is the adjustment (Hair, Black, Babin,Anderson & Tatham, 2009).

In order to check the moderating effect of CVCPS onthe relationship between empowerment and its personaland social functionalities (mPersonal and mSocial), themodels were adjusted according to the results obtainedand gathered from the structured questionnaire versusthe previously identified styles for the Kangaroo users. Itshould be highlighted that the moderating variable isonly taken in account in the structural model. The modelwas adapted to each style individually, comparingthe models by the multivariate data analysis (Hairet al., 2009). For the formal tests of comparison of facto-rial loads and the coefficient between styles, the Paramet-ric Approach, with the T-test with a multi-groupstandard deviation (Keil et al., 2000), was applied since itwas a considerably large sample size. The software usedin the analysis was the R, in its 3.4.4 version.

FIGURE 3 Features of Kangaroo Application applied to Empowerment Model (Almunawar et al., 2015). Source: Adapted from

Almunawar et al. (2015)

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When the pre-analysis stage was over, the explorationand codification of the content was done, according tothe empowerment dimension of m-Health (Almunawaret al., 2015). Finally, it was time for data interpretationunder the existing theories, observing the iteration of thisprocess, so the generalizations were consistent enough toconfront the adopted theoretical hypotheses.

4 | DESCRIPTION AND DATAANALYSIS

After downloading the application in the mobile phoneand subscribing with personal information, it is given tothe Kangaroo user the choice of using its features. Eachapp feature was classified according to the empowermentdimension (Almunawar et al., 2015) (Figure 3). Table 2summarizes the main features of the Kangoroo m-healthapplication.

From the analysis of the registries in the Kangaroodatabase and by matching the app features with theempowerment dimensions (Almunawar et al., 2015), amapping of the application users (Figure 4) was made fora temporal cut of the research applying the matrix modelin the CVCPS typology (McColl-Kennedy et al., 2012).Hyper users were considered those who had at least oneoccurrence registered in the database in all the mobileapp features. At the opposite extreme, users who did nothave any occurrences registered in any feature were clas-sified as Hypo users. The users considered as personalusers were those who had an occurrence registered in thedatabase in at least three of the four features classified asmPersonal and, in contrast, an occurrence in at most oneof the four features classified as mSocial. On the oppositeside, the Social users were those with registers in thedatabase in at least three of the four individual activityfeatures classified as mSocial and, on the other hand, anoccurrence in at most one of the four features classifiedas mPersonal. Finally, Hybrid was the classification forusers with some occurrence registered in the database,but not enough to be classified in the criteria of the stylespreviously described.

The structured questionnaire originated the creationof a database formed by ten variables. The characteriza-tion variable (co-creation styles) is a variable referring tothe empowerment construct and eight variables relatedto personal and social functionalities (mPersonal andmSocial) of empowerment applied to m-health, as sum-marized by Table 3.

An analysis of the outliers was made. There was novalue outside the range interval of the respective variable,not evidencing, therefore, the kind of outlier related to anerror in data entry (Hair et al., 2009). The univariate

outliers were diagnosed through the result standardiza-tion, so that the average variable would be 0 and thedeviation standard would be 1. Observations with

TABLE 2 Brief description of Kangoroo features

App feature

EmpowermentDimensionAlmunawaret al. (2015) Brief description

Calendar mPersonal Users can recordexpectedappointments duringa pregnancy

Childbirthplan

mPersonal Users can indicate theirbirth plan using astructured digitalform

Clinicalcondition

mPersonal Users can registerchanges in theirclinical conditionfrom pre-establishedsuggestions

Symptomguide

mPersonal Users can registersymptoms theypresent duringpregnancy from aself-assessment

Posts mSocial Users can registerposts, interactingwith other pregnantwomen

Comments mSocial Users can commentposts recorded onKangaroo, interactingwith other pregnantwomen andKangaroo healthprofessionals

Likes mSocial Users can react withlikes on posts andcomments registeredin the application orany post linked to theapp's thematiccommunicationchannels

Maternityassessment

mSocial Users can evaluatematernity hospitalsand record their levelof satisfaction withthe deliveryexperience in thematernities registeredby the application

Source: Developed by the authors.

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standardized scores outside the range of |3.29| were con-sidered outliers (Hair et al., 2009). Based on thesecriteria, 77 (2.25%) observations considered atypical inunivaried shapes were found. The multivaried outlierswere diagnosed based on D2 measure of Mahalanobis.According to Hair et al. (2009), this measure verifies theposition of each observation compared to the center ofall observations with a set of variables, with a chi-squaretest being applied at the end. The individuals that pre-sent a significance of the inferior measure to 0.001 wereconsidered multivaried outliers. According to these

criteria, 12 (2.80%) atypical individuals of multivariedshape were found. It was chosen not to exclude any ofthe cases, considering that the observations representvalid cases of the population of Kangaroo users whoanswered to the structured questionnaires and that couldlimit the generality of the multivaried analysis, even ifthey were not taken in account.

The distribution of users in the adapted CVCPS(McColl-Kennedy et al., 2012) shows a prevalence of the“partnership” style, that is, a characteristic of hybrid useof the application, containing record of use in the

FIGURE 4 Index Usage of

Kangaroo Application. Source: Adapted

from McColl-Kennedy et al. (2012)

TABLE 3 Acronyms related to the structured questionnaire

Empowerment Dimension (Almunawaret al., (2015) Acronym App feature Related question

Personal Dimension Functionalities PF1 Calendar I feel empowered for being able to register mypregnancy appointments in the Kangaroocalendar.

PF2 Childbirth plan I feel empowered for being able to create mybirth plan in Kangaroo.

PF3 Clinical condition I feel empowered for being able to register myClinical condition in Kangaroo.

PF4 Symptom I feel empowered for being able to registersymptoms from my pregnancy in Kangaroo.

Social Dimension Functionalities SF1 Posts I feel empowered for being able to post messagesin Kangaroo, and interact with other pregnantwomen.

SF2 Comments I feel empowered for being able to registermessages in Kangaroo, and interact with otherpregnant women.

SF3 Likes I feel empowered for being able to react to likesabout posts and comments in Kangaroo.

SF4 MaternityEvaluation

I feel empowered for being able to evaluatematernity hospitals through Kangaroo.

Empowerment - - I feel empowered for being able to use Kangarooto manage my pregnancy.

Source: Developed by the authors.

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features bounded to both social and personal dimensionsof empowerment. These are users with a wider and morehorizontal use and view of the application, representingthe kind of behavior that Kangaroo creators expect.

It can be emphasized that the items presented facto-rial loads greater than 0.50. The measures of validity,quality and factorial loads were also verified. Empower-ment dimensions applied to m-health presented CA orCC greater than 0.60, attending the required levels of reli-ability, being one-dimensional (Kaiser, 1958) and pre-senting a convergent validation (AVE > 0.40). Thediscriminant validation was achieved as well (Barclay,Higgins & Thompson, 1995).

The age groups interval of the interviewed womenvaried from 16 to 40 years old, being the majority of preg-nant women (8 in total, or 50% of the interviewed users)between 21 and 25 years old. They come from eight statesin Brazil, from four different regions (only the Southregion was not part of the sample). Most of the pregnantwho were interviewed live in the southeast region (sevenpregnant or 43.7% of them) or in the northeast of Brazil(6 pregnant or 37.5% of the interviewed women). Con-cerning education, most of them state having finishedcollege education or being currently in college (10 preg-nant or 62.5%).

The evaluation average in the Likert-type scale (from0 to 10) for the app features were slightly lower to theusers classified as hyperactive users of Kangaroo. Thisaspect shows that pregnant women with a more intenseand frequent use of the application tend to be more criti-cal in their opinions and evaluations. However, the spo-radic use of Kangaroo does not result in a lowerperception of empowerment by users, since the

evaluation average of the application features are com-patible to the users classified in other profiles, exceptingthe users rated as hyperactive users who have a morecritical behavior.

Among the main objectives and contributions of Kan-garoo for the empowerment of pregnant women, theapplication is pointed as a safe reference of informationfor answering questions during pregnancy, as said byinterviewee E02: “my goal is to have my questionsanswered, so many questions. I think it is helping me a lot,because, as soon as I post a question, many people answer,I even get answers from a nurse, who always answers me”.It is expected that the application contributes with quali-fied information, which can be given by health profes-sionals as well as by other more experienced pregnantwomen, because they have been pregnant longer or haveprevious experience in motherhood.

The interaction with other pregnant women and alsowith health professional had a relevant occurrence in thecontextualization of the app use, as reported by the E14interviewee: “when I got pregnant, I downloaded the app,so that I could chat to other girls, also to know exactly inwhich week of the pregnancy I was, and ask questions tothe nurses in the group”.

Besides the search for reliable information, the usagecontext of Kangaroo has specific motivations. It is thecase of interviewee E01, who found out about the appli-cation while searching for maternity hospitals, and so shedownloaded Kangaroo because of its feature that bringsevaluations of different maternity hospitals. Overall,there were 70 extracts from the recordings of interviewswhich mentioned the social functionalities of Kangaroo.The quantitative result in social features occurrences is of

TABLE 4 Comparative analysis of the m-Health attributes applied to Kangaroo features

m-Health Attribute(Akter et al., 2013)

Features of personal dimension of empowermentapplied to m-health (adapted from Almunawaret al., 2015)

Features of the social dimension ofempowerment applied to m-health (adaptedfrom Almunawar et al., 2015)

Calendar SymptomsBirthPlan

ClinicalCondition Posts Answers Likes

Maternity HospitalEvaluation

Accessibility 2 5 5 1 4 0 0 0

Immediacy 9 2 1 0 2 1 1 0

Local-basedinformation

0 0 0 0 0 0 0 11

Interactivity 0 0 0 0 18 18 5 3

Mobility 5 5 1 4 4 1 0 0

Personalizedsolutions

6 5 1 0 0 2 0 0

22 17 8 5 28 22 6 14

Source – Developed by the authors.

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34.6% greater than the occurrences of personal featuresin the application. The high quantity of spontaneouscomments on the application social features is compati-ble with the results of its extracts of the interviews, alsohigher than the extracts about personal features of theapplication.

The attributes of Kangaroo that contribute to theusers' empowerment were grouped according to the con-cept summarized by Akter et al. (2013). The result showsa relevant prevalence of the interactivity attribute,corresponding to 35.2% of all the occurrences. The otherattributes demonstrate a balance in their distribution,floating between 9% to 16% of the total of occurrences.After analyzing how each feature of the Kangaroo appli-cation contributes to the empowerment of pregnantwomen in the opinion of the 16 interviewed women, itwas possible to compile the distribution of the occur-rences of key-attributes in a system with their respectivefeatures of social and personal dimensions (Table 4). Thedistribution shows that interactivity and local-based infor-mation are the predominant attributes for the socialdimension of empowerment.

The content analysis applied to styles indicates thatthere were nuances in the usage style of Kangaroounveiled by the individual interviews, as in the case ofthe users originally classified as hyperactive, who are,actually, “hidden readers” of the content (passive compli-ance attitude) generated by the application, which seemsenough for a high perception of empowerment.

Regarding the quantitative results, it can be noticedthat there was significant (Value-p = .000) and positiveinfluence (β = 0.287 [0.21; 0.39]) of the features linked topersonal dimension about empowerment. Thus, it can beunraveled that the greater the personal features, thegreater the health service user empowerment tends tobe. In addition, it can be seen that there was significant(Value-p = .000) and positive influence (β = 0.676 [0.55;0.77]) of the features linked to social dimension about theempowerment. Therefore, the greater the social features,the greater the health service user empowermenttends to be.

It is worth highlighting that the impact of the socialfeatures about empowerment was about 2.4 times biggerthan the personal features, corroborating to the qualita-tive analysis of the individual interviews. Together, thesocial and personal features of empowerment applied tom-health explained the 85.5% of variability of the empow-erment. The model presented GoF of 84%. The reliabilityintervals via Bootstrap are in accordance to the resultsobtained via p-value, indicating higher validity of theresults.

As for the moderating effect of the adapted CVCPS(McColl-Kennedy et al., 2012) on the relationship of the

empowerment and its social and personal dimensions, itis possible to conclude that the interactions were not sig-nificant (p-value > .050). The model was adjusted foreach one of the styles adapted by McColl-Kennedyet al. (2012). There was no significant difference of thefactorial loads between styles, which indicates that therespondents of every style noticed the items in a similarway. Table 5 sums up the measurement of researchhypotheses.

5 | DISCUSSION ANDCONCLUSIONS

This paper analyzed how m-health applications contributeto the empowerment of health service users. The research

TABLE 5 Summary of the measurement of research

hypotheses

Hypotheses Result Summary

H1: Personalfunctionalities inmobile healthapplications arepositivelyassociated with theempowerment ofhealth users.

Confirmedhypotheses.

Significant Influence(Value-p = 0,000)and positiveinfluence (β = 0,287[0,21; 0,39])

H2: Socialfunctionalities inmobile healthapplications arepositivelyassociated with theempowerment ofhealth users.

Confirmedhypotheses.

Significant Influence(Value-p = 0,000)and positiveinfluence (β = 0,676[0,55; 0,77]) offeatures linked tosocial dimensionabout empowerment

H3: Customer ValueCo-creationPractice Styles(CVCPS)

moderate therelationshipbetween the SocialDimension andEmpowerment

Hypotheses notconfirmed.

There was nosignificant difference(p-value>)Respondents of allstyles noticed theitems in a similarway.

H4: Customer ValueCo-creationPractice Styles(CVCPS) moderatethe relationshipbetween PersonalDimension andEmpowerment

Hypotheses notconfirmed.

There was nosignificant difference(p-value>)Respondents of allstyles noticed theitems in a similarway.

Source: developed by the authors.

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model was based on the proposal of Almunawaret al. (2015), which lacked empirical work. The features ofthe Kangaroo application were classified in two of threedimensions of the model of Almunawar et al. (2015).

Overall, within the scope of the studied case, it can bestated that the health application Kangaroo empowers itsusers since it offers features related to personal and socialdimensions of empowerment applied to m-health(Almunawar et al., 2015), with emphasis to the impact ofthe functionalities of social dimension of empowerment,which obtained 2.4 times more impact than compared tothe personal dimension features. Indeed, most of the userempowerment perception comes from the networkingapplication features. Together, the functionalities linkedto the personal and social dimensions of empowermentapplied to m-health explained 85.5% of the empowermentvariability.

This pronounced impact of the social functionalitiesrather than the personal ones is due to the networkformed by the pregnant users of Kangaroo. It is a special-ized network that feeds and renews itself with the experi-ence reports and situations that might occur duringpregnancy. The pregnant women network grew in astructured environment, which has the mediation of spe-cialized professionals and the support of other features,bringing information security and reliability, which arecritical aspects when one searches for information onhealth through the Internet. The participation of special-ized professionals, who moderate and interact with theapp community, is valued by the users and mentioned asa differential among other health information sourcesavailable on the Web.

Through this interaction, health application userswere able to self-evaluate - compared to users in a similarhealth situation, they have access to professional andhealth providers' evaluations from the experience reportsof other users, they also interact with health professionalsas far as questions and concerns about their health condi-tions arise. Hence, health applications may fill a gapwithin the break between consults and health proce-dures. The few minutes in the physician's office may becomplemented with a relevant interaction mediated bymobile technologies, as is the case of Kangaroo.

This study started from the hypotheses of a characteri-zation variable, which would ponder the relationshipbetween independent variables (the empowerment dimen-sion of Almunawar et al. (2015)) and the dependent vari-able (the empowerment itself). The quantitative analysesconcluded that there was no moderating effect of the valueco-creation styles about the relationship between empow-erment and its dimensions. The model was adjusted foreach styles adapted of McColl-Kennedy et al. (2012),which allowed to verify that there was no significant

difference of the factorial loads between styles, indicatingthat the respondents of all styles notices the items in a sim-ilar way. The individual interviews corroborated with littlesignificant CVCPS moderation as a moderating variable.This result contrasts the findings of McColl-Kennedyet al. (2012), who suggested that the CVCPS classificationsare applicable to other health services.

This research results suggest that the perception ofempowerment are not greater for the active users of theapplication. Hence, empowerment of health service usersis not related to “doing”, but rather to “being able to do”.The faculty of “being able to do” and the consciousnessof what one can do with the health application influencesthe users' perception of empowerment more than the“doing” itself. Consequently, the application presents acommunity, which is partially formed by “hiddenreaders”, who follow passively the publications on Kan-garoo. Despite the absence of detailed tracks of this userprofile in the application log, the empowerment percep-tion was similar to the users of other profiles.

In the verified dichotomy for the understanding ofempowerment as a process, as an outcome, or even as aprocess and outcome, this investigation has provided anunderstanding of empowerment as a process, in whichhealth applications contribute through features related toempowerment dimensions applied to m-health in a waythat each individual is able to exercise control overdecision-making. It can be inferred that the outcomeexpected by the app users was not related to the empow-erment itself. The pregnant women, who are Kangaroousers, expected health pregnancy, that is, they expect ges-tational outcome according to birth planning.

However, some limitations must be highlighted. Theapplication case study does not have features that couldbe addressed to the empowerment of medical dimensionapplied to m-health (Almunawar et al., 2015). The discus-sion among health service users' empowerment throughmobile technologies is limited by the regulatory barriersof the Brazilian context, which prevent the use of tech-nologies or any means of mass communication at dis-tance for consult, diagnosis or prescription.

It is also important to mention that the particularityof the context and its own condition or health treatmentare elements that interfere directly to the elaboration ofquestionnaires that intend to measure the patient'sempowerment. Even though it is a representative case,the application has a very specific target audience. Conse-quently, the impact of the features linked to social andpersonal dimensions of empowerment might have differ-ent results if addressed to different health service usersfrom the target audience of Kangaroo. Furthermore, thisresearch did not comprise a control group of pregnantwomen who did not use the application.

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The thematic of empowerment through mobile tech-nologies was treated in this work under the perspectiveof the user only. The medical professionals (nurses anddoctors who moderated or used Kangaroo) were not con-templated in this research, neither was contemplated theentrepreneur responsible for the creation and develop-ment of this application. Future researches are suggestedso that other stakeholders can be covered, building ananalysis of this construct under a holistic and comple-mentary vision. Another suggestion for further study isthe impact of applications such as Kangaroo in the bal-ance of costs related to the health system. The resultssuggest that applications such as Kangaroo encourage nocost waste with unnecessary exams and procedures for itstarget audience.

Empowerment through m-health is a complex andappealing topic. The technological solutions that promotethe empowerment of health service users through m-health constitute an effort of great responsibility, whichinvolves a truly qualified staff who is able to play newroles, as a mediator, a guide and a partner of a moreactive, interested and critical health service user.

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How to cite this article: Delgado GV, deCarvalho RB, Choo CW, Leite RS, de Castro JM.Patient empowerment through mobile health: Casestudy with a Brazilian application for pregnancysupport. Proc Assoc Inf Sci Technol. 2020;57:e221.https://doi.org/10.1002/pra2.221

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