nvivo, ethics and irbs
TRANSCRIPT
Meet NVivo:
Nvivo, Ethics and IRBs
www.queri.com
Kristi Jackson, MEd PhD
303-832-9502
� Session 1◦ NVivo and successfully defended dissertations
� Session 2◦ NVivo and the dissertation literature review
� Session 3◦ NVivo, ethics and IRBs
� Session 4◦ NVivo and your dissertation defense
� Large group
� Small group
� One-on-one
� Independent work
Stay a 4th day at no extra cost
www.Queri.com
1. History 2. The Belmont Report3. Informed Consent4. Data security and audit trails5. Confidentiality as an event6. Confidentiality as a process7. Conclusion/recommendations
� 1932-1972 Tuskegee Study◦ United States Public Health Services◦ Tuskegee as a partner (traditionally black college)◦ Study of natural progression of untreated syphilis◦ Rural, black men in Alabama◦ Information withheld regarding their diagnosis◦ Deceived into thinking they were receiving treatment
� 1960’s Milgram Study◦ Willingness of participants to obey authority figure� Authority figure (instruct the subject to deliver shock)� Actor in adjacent room (pretend to receive the shock)� Subject (thinks he or she is delivering the shock) ◦ Repeated around the world◦ Article 1963; Book 1974
� National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research ◦ Respect for Persons
� Individual autonomy
� Protection of individuals with reduced autonomy
◦ Beneficence
� Maximize benefits
� Minimize harm
◦ Justice
� Equitable distribution of research costs and benefits
� Consent form: An event◦ Research purpose, duration, procedures◦ Risks/benefits◦ Confidentiality◦ Right to refuse or withdraw◦ Contact information
� Informed consent: A process◦ Full disclosure of the nature of the research and
participation is only a starting point◦ Participants may have evolving ideas as they: � Comprehend the process over time
� Voluntarily choose to participate at each step
Microsoft Word files
NVivo makes copies and stores them internally
File � Options
File � Info � Project Properties
File � Info � Open Project Event Log
File � Info � Project Properties � Passwords
� Text
� Audio
� Video
� Photographs
� Tweets
� Prepare for this in your IRB submission
� Check your IRB
Howe, K., Dougherty, K. (1993). Ethics, IRB's, and the changing face of educational research. Educational Researcher, 22(9), 16-21.
Howe, K., Moses, M. (1999). Ethics in educational research. In A. Iran-Nejad & P. D. Pearson Eds., the Review of Research in Education, vol. 24, pp. 21-60. Washington, D.C.: American Educational Research Association.
Event
A
Event
B
Event
C
Event
D
Event
F
So, it's definitely a major dance. I mean, . . . in the past, research has . . . been somewhat hurtful to many of these communities. I don't know that I'm saying this correctly, but it's an EXTREMELY IMPORTANT responsibility to be transparent but also be THOUGHTFUL about how you're impacting communities and entire CULTURES of people when reporting your view of what you've learned
I’m thankful that I’m not the only student who noticed that the ethical handling of data is a dance.
I’ve been so concerned with the protection of the individuals in this study, it never occurred to me that part of the principle of beneficence might pertain to groups or cultures that have been misrepresented or disenfranchised. I would have completely missed this in my own study.
memo/journal interview transcript
� Session 1◦ NVivo and successfully defended dissertations
� Session 2◦ NVivo and the dissertation literature review
� Session 3◦ NVivo, ethics and IRBs
� Session 4◦ NVivo and your dissertation defense
� Large group
� Small group
� One-on-one
� Independent work
Stay a 4th day at no extra cost
www.Queri.com
Meet NVivo:
Nvivo, Ethics and IRBs
www.queri.com
Kristi Jackson, MEd PhD
303-832-9502