npsdd and the measure of activity and participation (map): employment data sarah craig and anne...
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NPSDD and the measure of activity and participation (MAP): employment data
Sarah Craig and Anne Doyle, Health Research Board.
Structure of presentation Introduction to the National Physical and
Sensory Disability Database (NPSDD) Outline of information collected Overview of the Measure of Activity and
Participation (MAP) Benefits of MAP Data on employment and participation Future developments
The NPSDD
Established in 2002 as a service planning tool
Managed by HRB for the DOHCaptures information on current
and future need for specialist disability services
Circa 25,000 people
Purpose of NPSDDImprove accuracy of planning dataGuide future service development
Registration Criteria:Have a persistent physical and/or sensory or
speech/language disabilityLess than 66 years of ageReceiving or requiring specialised health
and personal social servicesHave consented to being on the database
What is collected? Service user details Therapeutic/rehabilitation services Personal assistance and support Technical aids and appliances Type of disability (physical, visual, hearing,
speech and language) Diagnosis Measure of activity and participation
(added in 2004) >16 years only 12,444 respondents (2010 data)
Measure of Activity and Participation (MAP) Three broad areas based on WHO’s ICF:
Barriers & challenges
ParticipationExtent of restriction
WHODAS IIDifficulties experienced in day to day living
Barriers and challenges
Physical environmentServices, support and informationPeople’s attitudesTransportLaws and entitlementsIncomeClimate/weather
Participation restrictionEducation and trainingEmploymentCommunity/family lifeShoppingLeisure/sportsServices
WHODAS II
WHO Disability Assessment Schedule IIConcentratingLearning a new taskStanding/walking/washing/getting dressedDay to day work/schoolCommunity life/dealing with peopleEmotional impact of disability
% who experienced difficulty WHODAS II, 2010
37.6 38.5
71.3 69.8
37.8 38.1
29.825.7
59.654.6 56.5
73.1
0.0
10.0
20.0
30.0
40.0
50.0
60.0
70.0
80.0
%
%
WHODAS II - Day to day work or school
n %None 3967 15.7Mild 1199 4.8Moderate 1281 5.1Severe 955 3.8Extreme 1340 5.3Not applicable 3468 13.8Refused 234 0.9Total 12444 49.4
Benefits of MAP
Distinguishes different levels of functioning which may be better indicator of health care needs than diagnosis
Holistic view of disability – ICFCould assist with move to
individualised budgets
Benefits of MAP ctd.
Move away from impairment-based interventions
Determines impact of service on functioning/participation
Facilitates communication across disciplines (e.g therapists)
MAP and comprehensive employment strategy Remove disincentives and benefit traps, and
make work pay Ensure that people with disabilities are
equipped to compete for today’s and tomorrow’s jobs
Improve retention in employment Ensure that programmes of education, training
and employment meet the needs of all people with disabilities
Numbers on NPSDD in employment 2010
N% of all on NPSDD
(25191)
Sheltered employment 85 0.3Sheltered work 133 0.5Supported employment 143 0.6Part-time open employment
1134 4.5
Full-time open employment
1774 7.0
Total 3269 13.0
Participation restriction in employment or job seeking (of those in employment)
n % of3269
Mildly 234 7.2
Moderately 277 8.5
Severely 239 7.3
Completely 78 2.4
Total 828 25.3
Participation restriction - education & training (of those in employment)
n % of 3269
Mildly 125 3.8Moderately 171 5.2Severely 122 3.7Completely 47 1.4Total 465 14.2
Restriction in employment/job seeking
N %
Reported restriction in employment/job-seeking
5285 42.5
Total respondents 12444 100.0
Restriction in employment/job seeking (out of potential 12,444)Type of disability n %Physical disability 3508 66.4Hearing loss/deafness
263 5.0
Visual disability 305 5.8Speech/language disability
17 0.3
Multiple disabilities 1192 22.6Total 5285 100.0
Linking MAP data to service interventionsMAP provides scope to monitor
impact of services on participation in employment
Possibility to track over timeGreater focus on outcome of the
interventions
Participation restriction by PA use/need, 2010
0.0 10.0 20.0 30.0 40.0 50.0 60.0 70.0 80.0
Education & training
Employment or job seeking
Community life
Family life
Socialising
Shopping
Living with dignity
Leisure/cultural activities
Sports or physical recreation
Religion
Hospital services
Mental health services
Community based health services
Currently using PA service Requiring PA service
The future?
Capture of data for those <16 years
Work to ensure that all cases on the NPSDD are up-to-date
Mainstream use of MAP (e.g. HSE Service Plan)