notes - explore integrative medicineexploreim.ucla.edu/wp-content/uploads/ana7-2014-2.pdf ·...

Editor’s note: This article contains asummary of a presentation given atthe ANA’s National Symposium inLos Angeles, CA in August 2013.

BY MALCOLM B. TAW, MD, FACP

What is integrative medicine?Integrative medicine, as defined

by the Consortium of AcademicHealth Centers for Integrative Medi-cine which consists of 57 academicmedical centers and affiliated institu-tions, is “the practice of medicinethat reaffirms the importance of therelationship between practitionerand patient, focuses on the wholeperson, is informed by evidence, andmakes use of all appropriate thera-peutic approaches, healthcare profes-sionals and disciplines to achieve op-timal health and healing.” 1

Interestingly, during the height ofthe healthcare reform debate, a sum-mit was convened in 2009 at the In-stitute of Medicine on “IntegrativeMedicine and the Health of the Pub-lic” examining different topics, in-cluding the science, evidence base, re-search and models of care involved.2

A subsequent statement entitled“Integrative Medicine: A Vital Part of the New Health Care System” wasissued by the late Senator Edward“Ted” Kennedy, who was chair of

the Senate Health, Education, Laborand Pensions (HELP) Committee at the time, with a specific focusupon prevention and wellness as fundamental components of integra-tive medicine.3

The statement also emphasizedthe promotion of health as definedby the World Health Organization,which is “a state of complete physi-cal, mental and social well-beingand not merely the absence of dis-ease or infirmity.” 4

What is integrative East-West medicine?

Integrative East-West medicine isa healthcare paradigm that embodiesthis description of integrative medi-cine through bringing together thebest diagnostic and therapeuticmodalities of modern Western andtraditional Chinese medicine for thecare of patients. Through the individ-ual strengths of each, both Westernand Chinese medicine can addressthe entire spectrum of healthcare.

Some of the salient differencesbetween Western and Chinese medi-cine include a disparate philosophi-cal construct (e.g. reductionism ver-sus holism, respectively) and aparallel ontological perspectiveabout the mind and body (e.g. di-chotomous versus unified). The di-vision of the mind and body is gen-erally attributed to the Frenchphilosopher, René Descartes, andhence the phrase ‘Cartesian dualism’is often used.5

Founded in 1981

The Potential Benefits ofIntegrative East-West Medicine

MEDICAL REPORT

Issue 131, September 2014

Notes

See Medical, page 8

Malcolm B. Taw,MD, FACP, is anAssistant ClinicalProfessor at theUCLA Center forEast-West Medi-cine, Departmentof Medicine, DavidGeffen School ofMedicine at UCLA.He received his B.S.and M.D. from theJoint BiomedicalSciences programat the University ofCalifornia, River-side and the UCLASchool of Medi-cine. He is board-certified by theAmerican Board ofInternal Medicineand by the Nation-al CertificationCommission forAcupuncture andOriental Medicine(NCCAOM) in Ori-ental Medicine,Acupuncture andChinese Herbology.

INSIDEFrom the Board .........2

Local Support Group SpotlightAlbany, NY ..............3

Voyages Gamma Knife Was Right Choice for Me ....4

Why Local SupportGroups AreImportant...............5

ANA News.................6

Fall Webinar Calendar.................6

New Medical AdvisoryBoard Members ......7

ANA Contributors ...11

Membership/Donation Form.......12

“ANA recommends treatment froma medical team with substantialacoustic neuroma experience.”

This statement was adopted by the Acoustic Neuroma AssociationBoard of Directors in October 2001and demonstrates its belief thattreatment of acoustic neuroma by amedical team with extensive experi-ence is critical to your best chancefor a successful outcome.

Criteria to be used in the selection of medical professionalscan be found in the Medical Resources link on our website at www.ANAUSA.org.

The physicians and organizationslisted have self-reported data tomeet criteria established by ANA forhaving substantial experience intreating acoustic neuromas. The list-ings should NOT in any way be con-strued as an endorsement or recom-mendation by ANA. The ANA doesNOT make any independent deter-minations concerning the qualifica-tions of any listed physician or organization. It is every individual’sresponsibility to verify the qualifica -tions, education and experience ofany healthcare professional.

ANA MISSION: The mission ofANA is to inform, educate and provide national and local sup-port networks for those affectedby acoustic neuromas, and to bean essential resource for healthcare professionals who treatacoustic neuroma patients.

We cannot recommend doctors,medical centers or specific medicalprocedures and always suggest thatone consult with a physician beforemaking any medical decisions.

Your comments, ideas, suggestionsand financial support are neededand welcome. ANA is a 501(c)(3)non-profit organization.

Published by the Acoustic NeuromaAssociation, located in metropolitanAtlanta, four times a year (March,June, September, December).

Acoustic Neuroma Association600 Peachtree Parkway,

Suite #108Cumming, GA 30041Phone 770-205-8211 Fax 770-205-0239Toll-Free Phone 877-200-8211 Toll-Free Fax 877-202-0239Web www.ANAUSA.orgE-mail [email protected]

Chief Executive OfficerJudy B. Vitucci

BOARD OF DIRECTORS OFFICERS

2 ANA Notes | September 2014

© September 2014Acoustic Neuroma Association

FROM THE BOARD

President Alan GoldbergNew York, NY

Vice PresidentKarla M. JacobusCary, NC

MEMBERS AT LARGEMarla Bronstein, Bellingham, WARoberta C. Hutchings,

Westminster, COLeah Keith, Los Angeles, CAChad Nye, Lakeland, FLJoel Perrell, Jr., Baltimore, MDTom Sattler, MD,

San Francisco, CAKristine Siwek, Oconomowoc, WIDeborah R. Walls, MSW, LCSW,

CDVC, Whiteland, IN

Immediate Past PresidentJeffrey D. Barr,West Palm Beach, FL

Founder/President EmeritusVirginia Fickel Ehr, Brevard, NC

TreasurerJohn Gigliello,Niskayuna, NY

SecretaryDavid Puzzo, St. Petersburg, FL

BY ALAN GOLDBERG

ANA Board President

The relationship between you and your acous ticneuroma often begins with a feeling. Whether itgets hard to hear others, you notice that yourbalance is slightly off, you have a strange sensa-tion on your tongue or you feel fullness in yourear, that is where the journey begins. You visityour ENT, have an MRI and your diagnosis letsyou enter the Acoustic Neuroma family.

Those in the AN family include friends,spouses, those who are watch and wait and oth-ers who have had one or more procedures.However you are related, you have now joinedone of the warmest, most supportive families —one that understands you and welcomes you.

I became a member of the Acoustic Neuromafamily in 2009 when my soon-to-be wife com-plained about a burning sensation on her tongue.Her ENT tried a number of approaches beforesending her for an MRI. A 2.5 cm tumor was dis-covered and choosing a surgical team began.

We were impressed at how the AN familyprovided support throughout the entireprocess. We had never heard of an acoustic neu-roma (most of us had not), but we learnedquickly that there were many “relatives” — alarge network of people who were available toanswer questions, provide support, give encour-agement and even make us smile.

Lauren and I married four months after sur-gery and though she lost her hearing on her leftside, had some balance issues and some postsurgical challenges, she was the same person Ifell in love with two years earlier. Since her sur-gery, Lauren has completed her degree as an RNand now co-chairs the New York City AcousticNeuroma Local Support Group. We were alwaystaught that family comes first, and the AN fami-ly has accepted us with open arms.

Each of us has our own story as to how wejoined the family. We have each read them onthe Acoustic Neuroma Association’s Facebookpage and on the ANA Discussion Forum. Mostimportantly, those who choose to share make asignificant difference in the lives of those whoare recently diagnosed.

As president, I, along with the entire Boardof Directors and staff are committed to provid-ing our family the best support, information

and resources available as you begin or contin-ue on your AN journey.

We cannot do it alone; we need your help —(it’s all right to ask for help from family)

■ Provide your experience, knowledge and com-passion in talking to those newly diagnosed orthose challenged by the changesan AN brings about. Con tinue toattend Local Support Groups, par-ticipate on the Forum and on ourFacebook page.

■ Check out the newly designedwebsite www.ANAUSA.org tofind out more about the workANA is doing in research andadvocacy. We provide the mostcomprehensive information for “family members.”

■ Listen in on our monthly webinar series(more information at www.ANAUSA.org) presenting some of the best medical profession-als talking about the most pressing issues facingour family. The webinar series is free to ANAmembers.

■ Join or renew your membership in theAcoustic Neuroma Association. Your member-ship helps us keep you informed about AN research and activities and allows us to helpthousands of recently diagnosed patients to getthe information they need.

■ Become part of our research efforts by par-ticipating in the Yale University Acoustic Neu-roma Research study or advocating for govern-ment support of AN patients and research.

■ Make a donation to the Acoustic NeuromaAssociation. Your donations continue to help usto expand the breadth of services we can offer.

Alan GoldbergANA BoardPresident

We Are Family

Regional ConferenceANA / New JerseyMini-Conference

Sunday, October 26, 20149:00 am–3:30 pmSummit Medical Group

Conference Center, LawrencePavilion, Berkeley Heights, NJ

For registration informationPlease contactJane Huck, [email protected] or908-725-0233 or www.ananj.org

See From the Board, page 6

MEDICAL ADVISORY BOARDCo-Chairmen

Rick Friedman, MD, PhDNeurotology/RadiosurgeryLos Angeles, CA

Michael J. Link, MD Neurosurgery/Radiosurgery Rochester, MN

MembersDavid W. Andrews, MDNeurosurgery/RadiosurgeryPhiladelphia, PA

Patrick J. Antonelli, MD Neurotology Gainesville, FL

Babak Azizzadeh, MD, FACSFacial/Nasal Plastic Surgery Beverly Hills, CA

Fred Barker, MD Neurosurgery Boston, MA

Derald E. Brackmann, MDNeurotology Los Angeles, CA

Steven D. Chang, MDNeurosurgery/RadiosurgeryStanford, CA

Elizabeth B. Claus, PhD, MD Epidemiology/NeurosurgeryBoston, MA

H. Jacqueline Diels, OTFacial Retraining SpecialistMcFarland, WI

Aaron Fay, MDOphthalmic Plastic Surgery Boston, MA

Douglas Kondziolka, MDNeurosurgery/Radiosurgery New York, NY

Robert E. Levine, MD Ophthalmology/

Ophthalmic Plastic Surgery Los Angeles, CA

John K. Niparko, MD Otolaryngology Los Angeles, CA

Andrew T. Parsa, MD, PhD Neurosurgery Chicago, IL

J. Thomas Roland, Jr., MDNeurotologyy New York, NY

Marc Schwartz, MD Neurosurgery Los Angeles, CA

Patrick Shumrick, BS, MHS, DPT Physical Therapist Cincinnati, OH

Rafael J. Tamargo, MD Neurosurgery Baltimore, MD

Fred F. Telischi, MD, FACS NeurotologyMiami, FL

John M. Tew, Jr., MDNeurosurgeryCincinnati, OH

Philip V. Theodosopoulos, MD Neurosurgery San Francisco, CA

Richard Wiet, MD Otology/Neurotology/Radiosurgery Chicago, IL

Chairman EmeritusAlbert L. Rhoton, Jr., MD

Gainesville, FL

September 2014 | ANA Notes 3

BY JOHN GIGLIELLO

Group Leader/FacilitatorANA Board Director

AND TRACEY COLLINS

Group Co-Leader/Facilitator

Our support group meetings have been mostrewarding and we feel very good about thework that we are doing. Our meetings havetouched dozens of AN patients in the CapitalDistrict and Mid-Hudson valley.

One experience in particular was when Johnwas able to help facilitate a patient phone callwith Dr. John Tew, Jr., in Cincinnati, OH. As aBoard member, John has been fortunate enoughto meet some of the most talented neurosurgeonsin the country, and group members are encour-aged to take advantage of these relationships.Through this contact, Dr. Tew established a panelto discuss this particular individual’s case over thephone, which was really quite remarkable.

We usually have a speaker or presentationand then allow time for sharing among thegroup. We have had presentations on issuessuch as new technologies for hearing, radiationtherapy and surgery. We typically have a coregroup of people who attend, and a few new-comers each time. The people who attend are at various stages of diagnosis and treatment. Itspeaks volumes to how beneficial these meet-ings can be for a wide cross-section of patientsand caregivers. We all have our own story, butwe all also share a common experience.

At the time of John’s surgery in December2001, the Albany area was without a local sup-port group. He didn’t even know about the ANAat the time and quite ho nestly, hewas frightened and felt alone.

After the removal of a 3.5cmtumor, John felt further with-drawn because of facial paralysisissues and endured several emo-tional years in deal ing with hisnew normal. It wasn’t until somesix years later in 2007 that he de-cided to do something about that.

The first meeting took place inJohn’s house and had one attendee. But eventhough there was only one person, there was a

great connection, with each person realizingthat they were not alone. Slowly the meetingsbecame more organized and we reached out toprofessionals in our area.

Over the last several years, we’ve had neuro-surgeons, otolaryngologists and hearing-aidrepresentatives speak at our meetings. We planto invite yoga instructors, psychologists and insurance experts for future meetings.

John had been running the group for quitesome time by himself and thought it would begood to enlist assistance. Tracey was a logical fit for support group co-leader. Tracey attendedher first meeting as a pre-op patient and hasbeen regular ever since. John and Tracey con-nected right away and both her pre- and post-op conditions were similar to John’s. Since thattime, Tracey has continued attending the localsupport group meetings, and she has been aconstant source of strength and support.

Tracey was diagnosed with a 2.5 cm acousticneuroma in October of 2009 and had her sur-gery in December. Like so many AN patients,she too had read lots of things on the internetabout this kind of tumor. The upside, it is be-nign. The downside, it can cause many very serious complications. She was initially shockedand confused.

Tracey believes that having the opportunityto meet and speak with people who were facingthe same diagnosis, or who had already beenthrough treatment, was invaluable.

Even the most experienced doctor cannottell you what it truly feels like to have a braintumor or to go through treatment. That is abond and comradery that can only be shared bythose who have actually experienced the samething. It is important to be able to share yourown story and to be a listener and soundingboard for other people.

LOCAL SUPPORT GROUP SPOTLIGHT: Albany, NY

Individual Experiences with Common Bonds

Since its founding, the Albany Support Group has grown in numbers and in depth of informationand sharing.


ANA INTERNATIONAL CONTACTS

AustraliaQueensland Acoustic Neuroma

AssociationP.O. Box 254Stones Corner, Queensland [email protected]

Acoustic Neuroma Associationof Australia (ANAA)

c/o Better Hearing Australia5 High StreetPrahran, Victoria [email protected]

CanadaAcoustic Neuroma Association

of Canada (ANAC)Theresa Forson,

National CoordinatorP.O. Box 193Buckhorn, ON, K0L [email protected]

DenmarkDanish Acoustic Neuroma

AssociationUlla Rasmussen, ChairmanDalso Park 403500 VaerloseDenmarkwww.acusticusneurinom.dkdansk@acusticusneurinom.dk

GermanyAcoustic Neuroma Association

— GermanyDr. Emmerich Sackers,

ChairmanFeldberg Address 179279 VorstettenGermanywww.akustikus.de

Great BritainBritish Acoustic Neuroma

Association (BANA)Oak House B,

Ransom Wood Business Park Southwell Road WestMansfield, Nottinghamshire

NG21 [email protected]

New ZealandAcoustic Neuroma Association

of New Zealand Inc.Heather Deadman, President13 Akatarawa RoadReikorangi, WaikanaeNew [email protected]

VOYAGES

Gamma Knife Was Right Choice for MeBY CINDY JARRETT

Roanoke, Virginia

My AN journey began in August 2012 at theage of 50 after being told by my ENT that I didindeed have a benign acoustic neuroma. Mytumor was 1.9 cm x 1.7 cm x 1.3 cm, located in the cerebellopontine angle. The only symp-toms I had were tinnitus and high pitch hear-ing loss in my left ear. My word recognitionwas at 92%.

I was completely shocked and terrified bythe diagnosis. Telling my children and my par-ents was probably one of hardestthings I have ever done.

I came home and my husband,children and I began researchingwhat an AN was and what to doabout it. The ANA website was soinformative and allowed me toreach out to others.

My first appointment was inVirginia to review the treatmentoptions. The doctor was very thor-ough and explained I could havesurgery or Gamma Knife. Thechoice was totally up to me. Hefelt I could wait and watch, but the tumor wasalready near 2 cm.

Once my husband and I spoke with thedoc tor, I felt a sense of peace and knew thateven though the journey may be long, I wouldsurvive.

Next my husband and I visited a hospital in Minnesota, and the doctors there also feltthat I was an excellent candidate for surgery orGamma Knife. I asked them if I were a relativewhat would they advise, and they said it wasmy decision.

They did, however, feel with my age andhearing ability that Gamma Knife would be agood choice.

I still had the ability to talk on the phonewith my left ear and did not want to lose myhearing with surgery. I also was worried aboutmy facial nerve and the chance of damage dur-ing surgery. I felt surgery seemed to be muchmore complicated with a greater risk of poten-tial problems.

After a lot of prayer, my husband and I feltthe best course of action for me was Gamma

Knife in Virginia, which also would be close to home.

At 6 am I had GK on October 12, 2012. Iwent in feeling a little anxious, but it allseemed to go pretty fast. I was concernedabout the head frame but found after being sedated, it was put on quickly. I never felt athing. I had an MRI with the frame on and was then sent to the GK suite to wait while the doctors planned my treatment.

Actual time in the GK Perfexion was 38minutes, which I spent in prayer. Afterwards Ihad the head frame removed and felt perfectly

fine. I was then sent to the recoverysuite where I was given lunch.About 12:30 pm, I was released andwent home. I do remember whenwe got to the parking garage that Ibroke down and cried.

The very next day I attended thefirst ANA group meeting in Roan -oke, and I felt like my old self again.

Things were really good untilabout four months later. I woke upwith what I thought was an earacheand sharp shooting pains in myface. I waited about a week before

calling the GK Center. They explained that Iwas having effects from the treatment. I was puton a steroid, but it did not alleviate the pain.

I was then put on a second steroid and almost immediately the pain subsided. I hadan MRI, and it showed slight swelling of thetumor.

I then got another MRI three months laterto check on the tumor, and this MRI showedthe tumor to be stable.

“The only thing you need to realize about Gamma Knife is that the resultsare not immediate.”

In December 2013 I received some surpris-ing news. This MRI showed that the tumorhad shrunk to 1.4 cm x 1.5 cm x 1 cm. Therealso was a sliver of space between the tumorand my brainstem. Finally after 14 months, Ihad great news. I had never really thoughtabout the tumor shrinking and was alwayshappy with the news that it was stable.

Cindy, her husband andgranddaughter enjoy aday out, post-treatment

See Voyages, page 5


VOYAGES

Local Support Groups are a vital exten-sion of the support network for acousticneuroma patients. For many the localgroup is the only place where they canmake personal contact with other acousticneuroma patients who have gone througha similar experience.

Acoustic neuromas are relatively rare,and most newly diagnosed patients feelvery much alone. Providing contact withother patients provides education, supportand is very comforting. The local supportgroups provide a chance for networkingon all issues relevant to AN patients.

The groups assist with social and per-sonal support for all acoustic neuroma patients, including newly diagnosed,watch and wait and previously treatedacoustic neuroma patients and their family.

They provide the opportunity for per-sonal connection and encouragement andare helpful for individuals facing the chal-lenges of an acoustic neuroma givingthem an opportunity to learn new ways tohandle challenges and cope with changes.

A small tip goes a long way to make apatient feel normal again.

Additionally, support groups providethe opportunity for education on pre-and post-treatment issues affectingacoustic neuroma patients with guestspeakers from the health care profession.

Benefits of CommunicationAcoustic neuroma patients and family

members can communicate with eachother in a nurturing, non-judgmental environment with others who have shared

a common acoustic neuroma experience. The open format allows participants to

feel some degree of anonymity and toparticipate as they are comfortable.

For some people, simply attendingmeetings and listening to the experiencesof others can be helpful.

Sharing InformationFor those who have experienced an

acoustic neuroma, the value of sharingtips about everything from hearing, bal-ance, tinnitus, headache, facial and eye issues is invaluable.

The sharing of information includeshow to deal with specific problems, over-coming disabilities and transitioning to anew normal. The participants have an un-derstanding incomparable to anyone else.

EducationGuest speakers from the health care

profession are often a part of the localsupport group meetings.

These medical professionals present detailed information about various aspectsof AN treatment and issues and addressquestions in a personal environment.

Guest speakers cover subjects such astreatment options, hearing devices, balancerehabilitation, tinnitus and facial issues.

Emotional SupportSince the AN patients at the meeting

have “walked in their shoes,” they canprovide the important emotional supportso necessary for some AN patients. Familymembers sometimes cannot fully under-stand the burden that AN patients mustlive with every day.

The group helps patients develop real-istic expectations and adjust to changinglife situations, reassuring others that bet-

ter times lie ahead. The healing power ofgroups is well documented.

Group DynamicsAll groups are unique, yet ultimately

behave similarly. Group leaders rememberthat everyone shares a commonality andcan learn from each other and try hardnot to focus on negativity at meetings.

Occasionally it is important to recog-nize that difficulties may be caused byfear. Information, support, networkingwith others and reassurance can help toalleviate this fear, as well as emphasizingthe positive.

Groups help AN patients develop real-istic expectations, with an understandingthat sometimes things won’t be exactly asthey used to be.

Why LocalSupport GroupsAre Important

Recently in June 2014, I just went foranother MRI. This MRI showed shrink-age of 1 mm to 2 mm again. I am due togo back in one year.

I feel that GK was the best decision forme. I knew from the beginning that sur-gery scared me, but if the doctors had feltthat was my best option, I would havechosen it.

The only thing you need to realize

about Gamma Knife is that the results are not immediate. Also going every sixmonths for an MRI makes you have to remember that you have an AN. I stillhave slight tinnitus, and my last audio-gram showed I now have 84% wordrecognition. I feel fantastic, walk threemiles most days, do aerobics, teach pre-school and play a lot with my one-yearold grandbaby.

God has a plan for each one of us and

a reason for everything that happens. Itmay not be the plan we thought it wouldbe, but through my journey I have metincredible people. I have realized howmany people are willing to help and trulydo care. I hope that I have been able tohelp others, too.

From the beginning I kept recitingProverbs 3:5: Trust in The Lord with allyour heart and lean not on your own understanding.

Volunteers NeededANA is recruiting volunteers to serveas local support group leaders.

ANA’s Local Support Group Pro-gram works with dedicated volunteerswho lend their time to coordinate,schedule and facilitate local supportgroup meetings in their community.

If you are interested in becomingan ANA Local Support Group Leader,we currently have opportunities avail-able in the following areas: Charlotte,NC; Columbus, OH; Grand Rapids,MI; Jacksonville, FL; Long Beach, CA;Nashville, TN; Phoe nix, AZ; Portland,OR; Sarasota/Tampa, FL; Springfield,MA; W. Bloom field/Detroit, MI.

Please contact the National Officeat 1-877-200-8211 for additional information.

Continued from page 4


ANA NEWS

New ANA WebsiteANA is pleased to announce a new

website (photo of home page below). Thewebsite has been redesigned with a morecurrent and vibrant design, with the in-formation laid out for ease of use for bothpre- and post-treatment AN patients.

This new look will make it easier tonavigate the site to learn more aboutacoustic neuroma education and localsupport opportunities in your area.

Features■ Sliding photos on the homepage to

highlight our newest programs and events■ Ease of use with better navigation■ Mobile tech accessibility for smart

phone and tabletCheck it out www.ANAUSA.org.

Fall Webinar CalendarIn 2013, we launched a new webinar

program for acoustic neuroma patients,medical professionals, friends and family— a new ANA member benefit. These educational webinars cover key areas ofinterest relevant to AN patients withplenty of time for questions and answers.They are presented by leading acousticneuroma medical professionals and ANpatients who are ANA Board Directors.

To date we have presented seven webi-nars, and they are archived on our websitein the Member section.

■ Dealing with the New Normal

September 9, 2014 at 1 pm ETAN patients sharing their experiences

with the post-treatment changes in theirlives.

Presenters: Board Directors — MarlaBronstein, Karla Jacobus, Kris Siwek

■ Balance Issues Pre- and Post-OpOctober 14, 2014 at 1 pm ETPresenter: Patrick Shumrick,

BS, MHS, DPT, The Center for Balance,Cincinnati, OH

■ Quality of Life Issues with an Acoustic Neuroma

November 13, 2014 at 1 pm ETPresenter: Michael J. Link, MDMayo Clinic, Rochester, MN

AN Patient SurveyPatient surveys are an ongoing pro-

gram of ANA providing valuable infor-mation to current and future acousticneuroma patients in the areas of symp-toms, treatments, post-treatment andquality of life issues.

This information makes it possible tocontinue to advance our understanding of acoustic neuromas.

We invite you to provide your experi-ences in the survey. If you have not beeninvited by email to participate in the sur-vey, please do so now.

The survey is located on our website inthe Resources section on the home pagemenu bar. Click on 2014 Patient Survey.

The last published 2012 patient surveyresults can be viewed on our website inthe Resources section on the home pagemenu bar.

■ Leave your legacy, by rememberingANA in your will. Your future gift willmake a difference so we can continue todo more as we know more about acousticneuromas.

The goal of our Board of Directorsduring the next two years includes work-ing with the ANA Medical AdvisoryBoard to expand communication betweenthe medical and patient community (ourextended family); to continue to provideup to date, unbiased information ontreatment and post-treatment options;and to be a voice for you and those yet tobe diagnosed.

I welcome your comments and sugges-tions by contacting our national office orme directly at [email protected].

We know you never expected to be a part of our family. But we welcome you and ask you to join us at our familyreunions — held at Local Support Groupmeetings and by webinars throughout the year.

We want you to be part of the AcousticNeuroma Association. We welcome you as family.

From the BoardContinued from page 2


ANA NEWS

Note: Many Local Support Group Meet-ings will provide the opportunity for thegroup to work together to take the sur-vey and sample collection. Also there is a new Visitor option on the survey for those who want to review the surveyin advance.

What is the goal of the study?Little is known about risk factors for

acoustic neuroma. The purpose of thisstudy is to discover why some people develop acoustic neuroma while otherpeople do not.

Who is organizing the study?The study is organized by Dr. Eliza-

beth B. Claus from Yale University.

Who can enter the study?Any person over the age of 20 years

with a diagnosis of acoustic neuroma.

What are study participants asked to do?

There are two parts to being a studyparticipant: 1) an online interview withquestions on medical and family history,and 2) a saliva sample that will permit usto look at changes in DNA. If you allowus, we will also review your tissue speci-mens and MRI scans of your acousticneuroma. You may access the question-naire and consents at the Yale AcousticNeuroma Survey.

Please go to our website to partici-pate in the survey at ww.ANAUSA.org.

For questions and more information,email [email protected] or call203-764-8422.

The Yale University Acoustic Neuroma Study

Don’t miss this opportunity to participate in the first AN causation research study.

ANA has awarded a grant to the YaleUniversity to assist in the funding forthis first phase of the data collection.

New Medical AdvisoryBoard MembersNew members were elected to the ANA Medical AdvisoryBoard at the annual spring ANA Board of Directors meeting.

Babak Azizzadeh, MD, FACS, is a facial plasticand reconstructive surgeon in Los Angeles, CA. Heis the Director of the Facial Paralysis Institute andthe founder of The Facial Paralysis & Bell's PalsyFoundation. Dr. Azizzadeh is an expert in facialnerve disorders and the co-editor of the recentlypublished medical textbook The Facial Nerve.

Aaron Fay, MD, is an Ophthalmic Plastic Sur-geon in the Department of Ophthalmology at Har-vard Medical School and a member of the FacialNerve Center at Massachusetts Eye and Ear inBoston, MA. Dr. Fay has an office in New York Cityat the New York Head and Neck Institute at LenoxHill Hospital.

J. Thomas Roland, MD, is Mendik FoundationProfessor and Chairman of Otolaryngology, NYULangone Medical Center, New York, NY. He is also a Professor of Neurosurgery. Dr. Roland hasbeen involved in the management of patients withacoustic neuromas for 26 years and is also Co-Director of the NYU NF2 Center which offers comprehensive

multidisciplinary care that includes surgery, cochlear implants,auditory brainstem implants and medical therapy to patients.His surgical interests include the management of acoustic neu-romas and other skull base lesions, facial nerve problems, hear-ing issues and other ear diseases.

Rafael J. Tamargo, MD, is the Walter E. DandyProfessor of Neurosurgery and Professor of Oto-laryngology at the Johns Hopkins UniversitySchool of Medicine in Baltimore, MD. He is theDirector of the Division of Cerebrovascular Neu-rosurgery, Vice-Chairman of the Department ofNeurosurgery, and Neurosurgery Co-Director of the Neuro-sciences Intensive Care Unit. He has been at the Johns HopkinsHospital for 29 years. He specializes in the treatment of skullbase tumors, particularly vestibular schwannomas and cere-brovascular lesions of the brain and spinal cord.

AnnouncementDr. Michael J. Link will now co-chair the MAB along with

Dr. Rick Friedman. Dr. John Tew, Jr. MD, has stepped downfrom the Co-Chair position, but will remain on the MAB.

Dr. Tew was appointed to Executive Position at UC Healthand UC College of Medicine, directing the community out-reach and philanthropic efforts of the integrative medicineprogram. He will also continue to serve as tenured Professor of Neurosurgery with the College of Medicine.

Note: Important: If you have start-ed the survey, please make sure thatyou provide all the necessary com-ponents of the survey noted below:

■ Online questionnaire

■ Send to Yale

■ Saliva specimen

■ Signed Consent Form to obtain a saliva specimen

■ Pathology or MRI Report to confirm eligibility

■ Signed Consent Form to obtain medical records


As an illustration, I often like to usethe analogy of a camera, whereby reduc-tionism is much like a ‘telephoto lens’ thatprecisely hones in on the specific patho-physiologic mediators involved, such asvarious neurotransmitters and hormones,while holism is similar to a ‘wide-anglelens’ that provides a broad, panoramicview of multiple interactive physiologiccascades.

Through this analogy, it should be-come apparent that the models of reduc-tionism and holism are not mutually exclusive, but rather provide ‘differentperspectives’ along the continuum ofhealth and disease.

A recent shift, however, in the modernWestern healthcare paradigm from reduc-tionism to holism has been describedwhereby the latter incorporates the dy-namic, integrative systems of the humanbody and its complex biochemical, physi-ological and environmental interactions,with a key tenet being “cura personalis”— that is care for the whole person.6

This holistic paradigm can be seen invarious emerging fields, such as systemsmedicine, systems biology, complexitytheory and nonlinear dynamics.7, 8

What is acupuncture and how does it work?

Acupuncture, a therapeutic modalitythat involves insertion and manipulationof thin needles in the body, has been reported as early as the 5th century B.C.for treatment of various disorders involv-ing the head and neck.9

Its therapeutic effects primarily derivefrom re-regulation of multiple physiolog-ical cascades within the internal milieu ofthe body, whether through modulation of the autonomic nervous system, neu-roendocrine axis, inflammatory response,immune system, limbic system or painpathway.10–15

The therapeutic effects of acupuncturecan be achieved not only through the use of needles, but via any modality thatcan stimulate acupoints, such as acupres-sure, transcutaneous electrical nervestimulation (TENS) and trigger point injections.

MedicalContinued from page 1 Some Acupuncture/Acupressure Points

That May Be HelpfulLI-4 (Hegu)

Location. Found at the highestspot of the muscle when the thumband index fingers are brought together

Indications. Stress, headaches,neck pain, facial pain, sinus conges-tion, toothache

Caution. Can induce labor inpregnant women

Note. Acupuncture of this pointhas been shown to modulate thelimbic system and subcortical graystructures of the brain on function-al MRI.22

P-6 (Neiguan)Location. Three finger breadths

proximal to the wrist crease, in be-tween the two tendons

Indications. Nausea, motion sick-ness, vertigo/dizziness, anxiety,carpal tunnel syndrome, upsetstomach

Note. In a randomized con-trolled trial, acupressure of thisacupoint has been demonstrated to be effective in the treatment of vertigo.23

ST Acupuncture Meridian ST 8. Migraine/tension

headaches, facial motor tics, dizziness

ST 7. Facial pain, temporo-mandibular joint disorder, ear pain,tinnitus

ST 4/5/6. Bell’s palsy, lockjaw/trismus

ST 3. Maxillary sinus congestion

See Medical, page 9

LI-4(Hegu)

P-6 (Neiguan)

ST 8

ST 7

ST 4

ST 5

ST 3ST 2

ST 6

ST 1


What are myofascial pain andtrigger point injections?

Myofascial pain (syndrome) is a condi-tion that affects the muscles and sur-rounding fascia/soft tissue within whichcan be found trigger points — discrete,highly sensitive and taut nodules of mus-cle fiber that can produce pain locally andin a referred pattern.

While always tender to palpation, trigger points can be ‘active’ or ‘latent’depend ing upon the presence of sponta-neous pain at rest.

Trigger points can be caused by anumber of factors and are commonly amanifestation of a pain condition, butmay often times be associated with a vari-ety of non-pain disorders.

Trigger point injections, usually ad-ministered using an anesthetic solutionsuch as lidocaine, can effectively inacti-vate trigger points and provide sympto-matic relief.

As an interesting historical fact, Presi-dent John F. Kennedy had received triggerpoint injections by White House physi-cian, Janet Travell, M.D., for treatment ofhis back pain. Dr. Travell, along withDavid Simons, M.D., wrote a two volumeset about myofascial pain and triggerpoints that is considered to be the author-itative source on the topic. 16

It is also notable that correlation between acupuncture points and triggerpoints, while not entirely equivalent, hasbeen described.17

What conditions can be treated?The therapies that we offer are prima-

rily adjunctive to standard Western med-ical care with the goals of treatment being to:

1) reduce symptoms, 2) improve quality of life, 3) minimize adverse effects of

conventional care and 4) enhance wellness.Acupuncture and trigger point injec-

tions can be therapeutic for various mus-culoskeletal pain disorders, includingthose conditions most relevant to patientswith acoustic neuroma—notablyheadache, neck/facial pain and post-operative pain.

A consensus conference at the Nation-al Institutes of Health concluded thatacupuncture was shown to be effective forthe treatment of post-operative pain,dental pain and chemotherapy-relatednausea/vomiting and was recommendedas an adjunct treatment for headaches, fibromyalgia, myofascial pain, osteoar -thritis, low back pain, carpal tunnel syn-drome, tennis elbow and menstrualcramps.18

Non-pain conditions such as dizzi-ness/vertigo, tinnitus, insomnia, anxietyand stress may also be amenable to treat-ment and may perhaps be mediatedthrough modulation of the somatosenso-ry system.19–21

References1) http://www.imconsortium.org2) Institute of Medicine. Summit on Integrative

Medicine and the Health of the Public: ASummary. February 2009.

3) Statement of Senator Edward M. Kennedy. Integrative Medicine: A Vital Part of the NewHealth Care System. February 2009.

4) Preamble to the Constitution of the WorldHealth Organization as adopted by the Inter-national Health Conference, New York, 19–22June, 1946; signed on 22 July 1946 by the rep-resentatives of 61 States (Official Records ofthe World Health Organization, no. 2, p. 100)

5) Murray GB: Limbic music. T.A. Stern G.L.Fricchione N.H. Cassem et al. MassachusettsGeneral Hospital handbook of general hospi-tal psychiatry. ed 6, 2010. Saunders Philadel-phia, p 45–52.

6) Federoff HJ, Gostin LO. Evolving from reduc-tionism to holism: is there a future for systemsmedicine? JAMA 2009;302(9):994–6.

7) Weston AD, Hood L. Systems biology, pro-teomics, and the future of health care: towardpredictive, preventative, and personalizedmedicine. J Proteome Res 2004;3(2):179–96.

8) Goldberger AL, Peng CK, Lipsitz LA. What isphysiologic complexity and how does itchange with aging and disease? Neurobiol Aging 2002; 23(1):23–6.

9) Yap L, Pothula VB, Warner J, et al. The rootand deveopment of otorhinolaryngology in traditional Chinese medicine. Eur ArchOtorhinolaryngol (2009).

10) Carpenter RJ, Dillard J, Zion AS, et al. Theacute effects of acupuncture upon autonomicbalance in healthy subjects. Am J Chin Med.2010; 38(5):839–47.

11) Zhou W, Longhurst JC. Neuroendocrinemechanisms of acupuncture in the treatmentof hypertension. Evid Based Complement Alternat Med. 2012.

12) Zijlstra FJ, van den Berg-de Lange I, HuygenFJ, Klein J. Anti-inflammatory actions ofacupuncture. Mediators Inflamm 2003Apr;12(2):59–69.

13) Cabio lu MT, Cetin BE. Acupuncture and immunomodulation. Am J Chin Med2008;36(1):25–36.

14) Hui KK, Marina O, Liu J, et al. Acupuncture,the limbic system, and the anticorrelated net-works of the brain. Auton Neurosci. 2010 Oct28;157(1–2):81–90.

15) Zhao ZQ. Neural mechanism underlyingacupuncture analgesia. Prog Neurobiol. 2008Aug;85(4):355–7.

16) Simons DG, Travell JG. Myofascial Pain and Dysfunction: The Trigger Point Manual,Volumes 1 & 2. Williams and Wilkins,Philadelphia.

17) Dorsher PT. Can classical acupuncture pointsand trigger points be compared in the treat-ment of pain disorders? Birch’s analysis revisit-ed. J Altern Complement Med. 2008May;14(4):353–9.

18) NIH Consensus Conference. Acupuncture.JAMA. 1998 Nov 4; 280 (17): 1518–24.

19) Nguyen CT, Taw MB, Wang MB. Comple-mentary and integrative treatments: balancedisorders. Otolaryngol Clin North Am. 2013Jun;46(3):409–22.

20) Baron EP, Cherian N, Tepper SJ. Role ofGreater Occipital Nerve Blocks and TriggerPoint Injections for Patients with Dizzinessand Headache. The Neurologist. 2011;Nov;17(6):312–7

21) Levine RA, Nam EC, Oron Y, Melcher JR. Evidence for a tinnitus subgroup responsive tosomatosensory based treatment modalities.Prog Brain Res. 2876 2007;166:195–207.

22) Hui KK, Liu J, Makris N, et al. Acupuncturemodulates the limbic system and subcorticalgray structures of the human brain: evidencefrom MRI studies in normal subjects. HumBrain Mapping. 2000:9(1):13–25.

23) Alessandrini M, Napolitano B, Micarelli A, et al. P6 acupressure effectiveness on acute ver-tiginous patients: a double blind randomizedstudy. J Altern Complement Med. 2012Dec;18(12):1121–6.

Editor’s Note: The complete PowerPointpresentation from the Symposium can be viewed on our website in theMember Section.

MedicalContinued from page 8


Local Fundraiser Thank YousTeam Vargo Run Raises Dollars for ANA

Joe Vargo set a goal to complete thePittsburgh Marathon on May 4, 2014, thetwo year anniversary of his middle fossasurgery. “Team Vargo” includes Joe Vargo— AN Warrior and running enthusiast,Barbara Vargo — wife, Crew Chief andOfficial Stuff Holder, family and friends.

Joe completed the marathon and justcompleted another run with a fellowANer.

He continues to inspire others to runand create awareness of AN. Team Vargoraised over $800 for ANA, through theirCrowdRise site. Congratulations Joe!

Former ANA Board DirectorCompletes IRONMAN

Deciding to attack life and all it has tooffer after his 2005 AN diagnosis, Scott

Van Ells made a goal to finish his firstever half IRONMAN on June 14, 2014.

Almost nine years to the day of hisGamma Knife treatment he completed a 70.3 mile Half IRONMAN Triathlon in just over 6.5 hours! That is a 13.1 milerun, 56 mile bike ride and a 1.2 mileswim.

Scott raised $500 for ANA through hisCrowdRise campaign. CongratulationsScott and thank you for raising awarenessand funds for ANA!

If you have a personal challenge or passion that you would like to utilize as a fundraiser for ANA, please contact Kristen Hamel at [email protected] for a Fundraising guide that will help you start your own CrowdRise page for ANA.

AcousticNeuroma LegacySocietyThe Acoustic Neuroma AssociationLegacy Society was introduced in 2013 asa way to recognize donors who have madea bequest to ANA.

Members of the Legacy Society havenamed ANA in their estate plans, ensur-ing support will be here for AN patientswell into the future.

Previous bequests have allowed us to introduce new programs such as our webinar series and social media sites. Estate gifts have also allowed us to devel-op and maintain one of the most compre-hensive AN websites in the world.

ANA is grateful to all members of theLegacy Society for their generous gift.Our hope is that others will follow in thefootsteps of these generous donors andleave their own legacy with ANA.

A bequest assists ANA in meeting ourfuture goals, without affecting your assetstoday. This kind of estate gift can have asignificant impact on ANA’s mission foryears to come.

A bequest may be made through a will,revocable trust, life insurance or retire-ment account policy. As a benefit, yourassets remain fully in your control during

your lifetime and can always be amendedas necessary.

You can specify either a fixed amountor a percentage of your estate to go toANA and remember, you can alwaysmodify this amount or designationshould your circumstances change.

In many cases, you can also direct your bequest to be used for a particularpurpose. In this instance, be sure to checkwith ANA to ensure your intentions canbe fulfilled by the organization. There is no upper limit on the estate tax deduc-tions that can be taken for charitable bequests.

Here is sample bequest language youcan take to your attorney:

I, (name), of (city, state, ZIP), give, devise and bequeath to the Acoustic Neu-roma Association, Federal IdentificationNumber 23-2170836, a 501(c)(3) tax-exempt organization, whose national office address is at 600 Peachtree Parkway,Suite 108, Cumming, GA 30041, the sumof $_____, or percentage of (writtenamount or percentage of the estate or description of property) for its unrestrict-ed use and purpose.

The founding members of ANA’s Legacy Society

■ Jeffrey D. Barr■ Virginia Ehr■ Jill R. Frederick■ Alan & Lauren Goldberg■ Freida Kletnick■ Miriam B. &

Joseph B. Klein■ Wanda D. Price■ Marilyn Rose■ Kimberly J. &

Wayne A. Simington■ Scott Van Ells■ John L. Zipprich II

2014 ANAwareness Sponsors

■ The Meehan Family Gift Fund

■ Jackie Diels Facial Retraining

■ Steven & Jennifer Korman

■ Miles & Stockbridge Foundation, Inc.

■ Accuray CyberKnife


Grand Benefactors($1,000–$2,499):Rene JohnsonVirginia ChapanKurt von Plonski

ANA Benefactors($500–$999):Laura BarbaroJonathan & Sara

BonesteelDeborah A. BrickerPamela KentHilda Sorensen

ANA Patrons($250–$499):Jeffrey D. BarrDerald

Brackmann, MDJohn & Peggy

BrynerJudy CoxKenneth DietterichEric FalkJohan FornaeusAlexander &

Martha HubertsRoger JesterPhilip Klauder, IIILinda McDanielRobert OlausenCraig OttonThomas

Sattler, MDMarc

Schwartz, MDLynda ScottSeagraves

Foundation/Helen McHargue

Rafael Tamargo, MD

Gregory WallenJune Wong

ANA Donors($100–$249):Angel AndersonJohnny Arruda, MDDouglas

Backous, MDVirginia Barnes

RickettsJohn BaroneLorraine BeamanJeanne BeckmanRita BeckmanHoward Berg, MDMandy Jo

Binning, MDMichael BlumJoyce BorisyDavid BrossardBettina BurnsHelen CarpenterDouglas Chen, MDAnthony CiccarelliSusan ClarkFrank

Culicchia, MDSara CurtisRichard Davis

Lori De SayeDorothy DoyleRhana DymeLinda EidsonDavid EpnerLaura FedakMarianne FerlandMelvin Field, MDMichael H.

Fritsch, MDJanice GagelRichard GassJohn GiglielloAlan & Lauren

GoldbergJohn GoodmanIwona GrabowskiLes GreenbergJoan

Hansberry-GrantNanci HeinmillerBarbara HelsingTodd A.

Hillman, MDPhyllis HoffmanMartin Horwich Tony HowellGina IngRoger IsaacsonGale JacksonCarol JohnsonDoris JohnsonJoan Jeffri KellerDorothy KemperBess Ann KennedyChew-Mee KirtlandCheryl KramerDonald KurtzJohn Lasak, MDCharme LeeMayer LevyKenneth

Liebman, MDGeorgia LoweDarleen LundeJames MackElizabeth MateraJudy & Roger

MarshallJane MauldinMoira McGraneHelen McHargueAlan McHughRobin Data MedinaJohn MisiekPam MixRichard MizickoRichard NanbergGeorgina NapolesWilliam OrrMichelle Passage/

C. R. BardFoundation

Phyllis Pearl-BaxterJane PeganoffMyles Pensak, MDMichael PollardRoy PoageLinda PopeRobert

Rosenwasser, MDGuy RoyRobert Russell

Lois RyeTeri SandlerConnie SchmidtJody SeiboldMichael ShankerBonnie SimonJanette J. SmutsPhilip

Stieg, PhD, MDSteve SweetRobert TaylorJohn TyworthDeb VellinesErol

Veznedaroglu,MD

Robert ViveritoTiffany WangRoger

Warren, VMDSandra WhitePatricia WilliamsIsaac Yang, MD

ANA Friends($50–$99):Jodi BarthRob BertrandLori BorkowskyCyndi BourneBeverly BrossMary Jo BucceriJoyce BulifantElizabeth CapelleJim CawoodTheone CoteJoe CoveJill CraftMichael CurridenPatricia

DelCogliano

Jeanne EdwardsBrian ElderLauren FondaNeil FrankKristen FreelandBarbara FullerAnne GillamMarie GilliesTim GrayMichael GreenFerd HeebBarbara HoldenLinda HuyetJudy JarvisArtis KalivasSusan Kester

Millie KnucklesMarjorie KobeKaren LaageBarbara LeharBarbara LestonJudy LindstromJames LockleyAlfredo Lopez, Jr.Terry ManikowskiWayne MarshSue MautheCeci McCurdyRuth McGortyJames & Susan

MesrobianGloria MichelNancy C. MillerMichael

Norman, MDElizabeth ParksMaria PerezNancy PohllDeborah PolsonDushica ProticMaureen Rapozo

Brandi Ricciardone, BS

Linda RundelJohn RuskinDennis SchmittDonna SchomakerLisa Kamieniak

ShapiroEdward SilveriDar StaufferInger StephensGincy StezarDoug StricklingEd StuebingAaron TatmanJeff TitteringtonPhyllis TrulockDonna VangennepRomani & Romani

Attorneys for “Team Joe Vargo”

Richard WarrenMark Weymouth Lisa WilderJudith WoerzRichard WondraBill WoodStephanie

Woodfork

In Honor Of:Kailash Chander

GuptaBy Bettina Burns

Joe LewisBy MichellePassage/C. R.Bard Foundation

Teri Sandler’sBirthdayBy Lori, Jamie,Carrie

Lisa KamieniakShapiroBy Eva Cassetta

Joe VargoBy Romani & Romani Attorneys

In Memory Of:Yolly Vizcarra

AcostaBy LaurenGoldberg

Jane BuddBy Sara CurtisBy Richard GassBy Rene JohnsonBy Judy & RogerMarshallBy NancySeegmiller

Charlene CarpenterBy Ruth MarshallBy Clyde & JaneTipton

Irene GiglielloBy Alan Goldberg

Ed HunkemoellerBy JudyHunkemoeller

Gift Memberships:Rhoda Dweck

By MirandaSacharin

Matched Gifts: Amerisure

Matching GiftsProgramFor Sandra White

AZPAC – MatchingProgramFor Susan Clark

Give with Liberty,Liberty MutualInsuranceMatchingFor Jim Cawood

Kimberly ClarkMatchingFor Sue Mauthe

Pepsico FoundationMatchingFor DonnaVangennep

PG & ECorporationMatchingFoundationFor Susan Kester

VMware EmployeeMatch ProgramFor June Wong

Network for GoodthroughCrowdRise:

J. Allen Brack’s 30Runs in 30 DaysChallenge!

Jason ArnoldChristopher BaileyCassie BlodgettAndrew BoydJudy Boudreaux

BrackChris CarringtonVan ChiuJulia ChungChris ClarkShane DabiriJoel DeagueroDaniel DenningFrederic DescampsHeather DodsonAmy EckhoutJulie FarbaniecSusan FayBernadette

GrosjeanIon HazzikostasTomas HernandezChristine KenneyLance KimberlinMarco KoeglerStephanie KrutsickPaul KubitOwen LandgrenAudrey LarkinMichael MakhinsonCatherine MaoRainer Mayer

CandaceMcDermott

Chan McDermottShirelle McFaddenSteve McGarrityMickey MoladAmy MorhaimeMatt NuttSunshine OkanoLeo OlebeMarcy OngertTrenton OngertFrank PearceMarnie RosenbergEvan RothMichael RyderStephanie SamiaDaniel ScauzilloMichelle SeedKim SellentinElle ShelleySaralyn SmithElizabeth SullivanMartin TegnerBrandy Woodier

“Team Vargo” takes on the 2014 PittsburghMarathon — Joe Vargo

Robert AloisiTerri AstValerie BorlieCorey HudsonAdrian LaneCarroll MoonVictoria NelsonCarl NichollsMichele NiggJanet RodakowskiDonna SchomakerEd TimmJoseph TroianiJoe Vargo

The Quest for 70.3 AN AcousticNeuroma Story —Scott Van Ells

Robert AloisiAlan GoldbergJohn IannitelloJennifer SchneiderChristine ScifertAndrew ShepherdKristine Siwek

ANA Hazel Berman Marilane

McCartneyStan Pluta

Every effort has beenmade to ensure theaccuracy of the ANAcontributors’ listing.Please forgive anyerrors or omissions,and let us know so we can adjust ourrecords.

ANA Contributors: April–June 2014. Thank You!

� Quarterly newsletter� Patient information booklets � Webinars � Local support group network� Website Member Section� Website with Discussion Forum at

www.ANAUSA.org

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Are You a Federal Employee?Is Someone You Know a Federal Employee?

Federal employees can donate toANA through payroll deduction andthe Combined Federal Campaign(CFC).

By merely checking off a box on yourCFC Payroll Deduction AuthorizationForm, you can help ANA continue itswork providing patients with informa-tion and support.

ANA’s agency code is 10001.For more information, refer to the

CFC listing when you receive your form,or call the ANA office.


MEMBERSHIP/DONATION FORM 9/14

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