North Thames TYA Cancer Staff Survey

Open: 25 Feb – 1 April 2013

Responses received: 60

Wendy King Macmillan Paediatric Oncology Nurse Consultant

July 2013

0

2

4

6

8

10

12

14

16

Where do you currently work?

In which capacity do you work with TYA patients?

Majority of responders were nurses

Activity coordinator

Administrative ward staff

Consultant

Dietician

Nurse

Physiotherapist

Psychologist

Social worker

Occupational Therapist

Nursing Assistant

Senior Manager

less than 10between 10-25more than 25

On average, how many TYA patients with cancer do you manage per year?

Only ULCH and RFH indicated that they see more than 25 patients per year. 60% see less than 10 patients per year

Where do you currently work?

Answer Options

Basildon and

Thurrock

Barking, Havering, Redbridge

Barts Health

Chelsea & Westminster

Colchester Hospital

E&N Herts +MVCC

Imperial College

Healthcare

Mid Essex Hospitals

Royal Free NHS Trust

Southend

University College Hospital

Whittington

Health

less than 10

3 2 4 1 4 5 0 3 0 2 1 10

between 10-25

0 1 5 0 0 2 1 0 0 0 1 1

more than 25

0 0 0 0 0 0 0 0 1 0 14 0

12

33

Yes No

0

5

10

15

20

25

30

35

Have you previously attended any study

days focusing on TYA cancer topics?

Yes

No

74

76

78

80

82

84

86

88

Clinical information on TYAspecific cancers

Communicating with TYApatients

Psychological issuesaffecting TYA patients

If yes, please indicate what topics were discussed on these study days (tick all that

apply).

72% have not attended a study day with TYA topics

All responders felt that further TYA-specific education was necessary, Strong preference for both, TYA study day and e-learning modules

0 10 20 30 40 50 60

Conference/study day

Online modules (e-learning)

Both, conference and e-learning

How would you like further training courses to be conducted?

Yes

No

0 10 20 30 40 50 60 70

Would you find a workbook useful?

Format of a study day - Full day - Central London location - Paid for by Trusts

0 5 10 15 20 25 30

Yes

No

I do not know

Do you or your Trust have financial resources for staff training?

0 5 10 15 20 25 30

Whole day course

Half-day course

Would you like for this to be a whole day or a half day course?

0 20 40 60

Yes, if necessary Iwould fund the costs…

Only if my Trust fundsthe costs

Would you be prepared to pay to attend a study day/complete an

online module?

0 5 10 15 20 25 30

central London

Essex

Mount Vernon

anywhere in England

How far would you be prepared to travel to attend a study day? (Please

tick all that apply)

What are the main challenges you find when supporting a young person with cancer?

Theme Specifics Clinical practice central lines, protocols, information on TYA specific cancers

Working with TYA patients psychological, behaviour

Communication with TYA patients, parents, their families and between the

services

End of live palliative care services

Service Provision inappropriate environment, lack of resources in facilities,

signposting, transition, what TYA services available

Can you identify any current barriers within your TYA service?

Theme Specifics

Staff education staff are unfamiliar with requirements of TYA care, guidelines and referral procedures, and extended TYA service

Trust management/ education

lack of understanding/appreciation of what a good TYA service should look like and lack of financial investment. Inappropriate environment

Staffing constraints job planning (short-staffed, time constraints); lack of social worker

Please share with us any ideas/suggestions you may have for improving patient information and the care experience for TYA patients and their families

Support for patients

Support for patients, partners and families

TYA-specific patient information

Support groups

Financial/social/education assistance

Age appropriate environment

Please share with us any ideas/suggestions you may have for improving patient information and the care experience for TYA patients and their families

Support for staff

Education, research, managerial education

TYA services available

contact details of TYA staff

age-specific training for staff

boosting TYA profile

support from PTC to help developing TYA DH units

better communication between professionals (handover, protocols, MDT handover form)

Action Plan

• Develop a foundation level education programme

• Resourced

• Defined person to lead

• Overwhelming response from nurses but need to consider other staff groups

• Produce resources and information

• Support for Trusts to develop very small services

• Education at Trust Board Level and engagement

• Advertise, Advertise, Advertise!

TYA Age specific education

• Foundation Study Day 29th October 2013

• Online Post Graduate Certificate in Cancer Care for Teenagers and Young Adults starts 30th September 2013

• Teenage & Young Adult Cancer Blended Learning Modules – 4 days (+ some hours online)