internet resources for neuropsychology

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Internet Resources for NeuropsychologyKimberly A. Kerns , Catherine A. Mateer & Stephane BrousseauPublished online: 09 Aug 2010.

To cite this article: Kimberly A. Kerns , Catherine A. Mateer & Stephane Brousseau (1998) Internet Resources forNeuropsychology, The Clinical Neuropsychologist, 12:2, 217-230

To link to this article: http://dx.doi.org/10.1076/clin.12.2.217.2001

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* The authors would like to acknowledge the assistance and advice of Kathryn Paul, Information Services Librar-ian of the McPherson Library at the University of Victoria.Readers who wish to access the www resource directory provided as part of this paper by e-mail can do so bycontacting the primary author at [email protected]. The document may also be accessed at the University ofVictoria Department of Psychology website at http://web.uvic.ca/psyc.Address correspondence to: Kimberly A. Kerns, Department of Psychology, University of Victoria, P.O. Box3050, Victoria, BC, Canada V8W 3P5. E-mail: [email protected] for publication: October 9, 1997.

The Clinical Neuropsychologist 1385-4046/98/1202-217$12.001998, Vol. 12, No. 2, pp. 217-230 © Swets & Zeitlinger

COMPUTERIZING THE CLINICIAN

Internet Resources for Neuropsychology*

Kimberly A. Kerns, Catherine A. Mateer, and Stephane BrousseauUniversity of Victoria, BC, Canada

ABSTRACT

The Internet has become a widespread and important tool for sharing information throughout the world.Neuropsychologists are now able to communicate with colleagues, conduct literature searches, obtainarticles and locate up-to-date clinical and research findings through this medium. This article providessome basic information about this technology and includes a list of over 150 sites on the World Wide Webof substantial interest to neuropsychologists.

The Internet has revolutionized the computerand communications world like nothing before.It is capable of world-wide broadcasting and is amechanism for information dissemination. It isa medium for collaboration and interaction be-tween individuals and their computers withoutregard to geographic location. The idea of theInternet was conceived in the early 1960s. It wasto be a global network of computers (nodes) thatcommunicated using a common language, withno ‘‘central’’ processor or controller, in whichall nodes could send and receive data and mes-sages. The name ‘‘Internet’’ was first used in1982, the same year that the TCP/IP (transmis-sion control protocol/Internet protocol) was es-tablished. This protocol provided a common ad-dressing and information-exchange language,allowing for services such as e-mail, file trans-fers between computers (called File TransferProtocol or FTP), and the ability to logon to aremote computer (Telnet). Currently many Inter-

net sites store information which can be ac-cessed by all users of the Internet community,and this technology will undoubtedly provide anincreasingly important source of informationand method of communication for all membersof the scientific community, including neuro-psychologists.

The World Wide Web (WWW or ‘‘theweb’’), was released in 1992, as a set of soft-ware protocols which provided a graphical inter-face for transferring information between com-puters connected to the Internet. Information ismade available on ‘‘the web’’ by storing it in astandard format on a computer (web server) thatis running 24 hours a day and connected to theInternet. This becomes a site which ‘‘serves’’information to clients who come to ‘‘browse’’.To view the information stored on web servers,you use a browser program on a computer con-nected to the Internet. The browser connects tothe web server, retrieves the information to your

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218 KIMBERLY A. KERNS ET AL.

local computer, and then releases the connec-tion, so that the server can respond to other re-quests. Some of the more popular WWW brows-ers are Netscape, MS Internet Explorer, Mosaic,and MacWeb.

There are two basic approaches to accessinginformation using the Internet: by having infor-mation sent to an individual directly via e-mail,or by accessing information available on theInternet. Most users have become very familiarwith the use of e-mail and there are a number ofdifferent software programs that support e-mail.Using e-mail, users are able to send and receivemessages from individuals, as well as from agroup of users (as in a listserver), or via on-lineservices such as CarlUncover.

Listservers can be conceptualized as a type ofelectronic bulletin board to which messages canbe sent. After a user ‘‘subscribes’’ to thelistserver, any messages that are sent to the listare e-mailed to all the subscribers on the list. Inthis way, users can quickly share information,debate issues, or ask for expertise from amongthe members of the list. There are currently anumber of listservers to which individuals can‘‘subscribe’’. There are also several sites withindices that give information about currentlistservers of interest. An alphabetical and sub-ject arrangement of Internet listservers is avail-able at http: / /www.t i le.net/ t i le/ l istserv/index.html. In addition, there is an inventory oflistservers for neuropsychology at http://www.permier.net~cogito/neurocen/neuroml/neuroml.html. Finally, neuropsychologists maybe interested in investigating the 11th RevisionDirectory of Scholarly and Professional E-Con-ferences at http://www.n2h2.com/KOVACS.This is a directory of scholarly E-conferencescreens that evaluates and organizes discussionlists, newsgroups, mailing lists, interactive Webchat groups (E-conferences) on topics of interestto scholars and professionals for use in theirprofessional activities.

Another way in which users are able to haveinformation sent directly to them is through theuse of a notification service such as the Un-Cover Reveal service offered by CarlUncover(http://www.carl.org/uncover/unchome.html).This service allows users to specify a ‘‘profile’’

to search current journals and other literature inthe CarlUncover database. Users may list namesof journal titles they are interested in, and whenthe next issue of any of those journals is enteredinto the UnCover database, the system automati-cally sends a copy of the table of contents to theuser. Users may also list keywords or storesearch strategies. These are compared with allnew articles added to the UnCover database ona weekly basis, and the results of these keywordsearches are e-mailed to the user, including arti-cle titles, authors, and the name of the journal inwhich the article was published. The Reveal ser-vice is free in many university settings or has anominal annual fee. In addition, users may orderarticles ‘‘on-line’’ by requesting the articles andproviding credit card information and a faxnumber to which the article can be sent.

There are two ways to find pertinent informa-tion on the Internet. An older system which waswidely used before the introduction of theWWW, was called Gopher. Though this systemis still available, most users now prefer to usethe graphical interface provided on the Web.Finding information on the Web is typicallydone using one of two approaches. First, thereare subject catalogues or indexes with links toinformation organized by broad subject areas.Under each category or subcategory, links toappropriate web pages are listed. These subjectindexes are valuable due to the human effortinvolved in collecting, evaluating, and catego-rizing the Internet resources. They are a usefulstarting point if you want to find information ona broad topic. Popular indexes includeINFOMINE (http://lib-www.uvr.educ/) andWorld Wide Web Virtual Library (http://vlib.standford.edu/Overview.html).

The second approach is to use a search en-gine. Search engines utilize huge indexes or da-tabases that are automatically compiled by com-puter programs called robots or spiders. Individ-uals can connect to a search engine site and en-ter keywords or subject headings to query thedatabase. It is even possible to combinekeywords, search for an exact phrase, a name, orsearch for information in a specific part of theweb document (such as the title). For best re-sults, read the ‘‘help’’ information provided

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INTERNET RESOURCES 219

with the search engine you are using. The ad-vanced searching features will allow you to nar-row your search results to a reasonable number.There are many search engines from which tochoose. Some of the better known and morepopular ones are: Yahoo!, Lycos, Alta Vista,Excite, HotBot, Infoseek, OpenText, andWebCrawler.

Each index and document will often be linkedwith many other sites. As you roam the WWW,the path from site to site can become quitelengthy, and return to a previously visited sitecan be inconvenient, if not impossible. In manybrowsing programs, you can save a permanentlink to an interesting site by creating a ‘‘book-mark’’ which is stored in a file that eventuallybecomes your own personally tailored subjectindex. To use a bookmark file on more than onemachine, it can be saved on a diskette and trans-ferred. Almost any Internet document you canview (including those with figures) can be savedon a hard- or floppy-disk, in eithersource(HTML) or text format. These files can beopened with other programs such as a word pro-cessor. Using older word-processor programs,only the text could be read and no graphics werevisible. Newer word processors allow access toboth images and text. Additionally, printer driv-ers are available to allow you to print HTMLdocuments that include the graphics.

Many academic and professional organiza-tions have made specialized indexes availablethrough the Web; these are usually listed in oneor more of the general indexes. In the appendixaccompanying this brief overview are a largenumber of web sites that are pertinent to thefield of neuropsychology. We selected generalsites in the fields of neuropsychology, neurosci-ence, and medicine, as well as sites particular toa wide range of neurogenic diseases and disor-ders in adults and children. Although all of thesesites could be located through indexes alreadyon the web, it is often time consuming to locatethe ones that are of greatest interest. In addition,there are many sites listed in the indexes thathave limited or redundant information. The sitesincluded in this list were selected on the basis ofthe amount and relevancy of information pro-vided. Almost all of them will provide a myriad

of other related links, but provide a good generalsite from which to start. In addition to the spe-cific address, a general description of what youcan expect to find there is provided. The list isnot meant to be exhaustive and many of thereaders’ favorite sites may not be in the list, buteach site has been checked for accessibility andutility (as of November 1, 1997). Although abroad search was undertaken and quite a fewinternational sites are included, most of the ad-dresses listed are based in North America. TheInternet will certainly continue to grow and ex-pand, offering more and more opportunity forneuropsychologists to share information. Use ofthis exciting new technology will certainly havean impact on how the science of neuropsychol-ogy grows and develops, and on how we carryout both clinical practice and research.

WORLD WIDE WEB ADDRESSES BYTOPIC AREA

Neuropsychology Resources

http://www.med.ohio-state.edu/ins/The International Neuropsychology Society(INS) has 3300 members world wide. Leads tomembership application, meeting schedules andcall for papers, INS journals and committees.

http://nan.drexel.edu/The National Academy of Neuropsychology(NAN). Leads to information about NAN, em-ployment listings, professional issues in neuro-psychology,Archives of Clinical Neuropsychol-ogy, programs in neuropsychology, and more.

http://www.premier.net/~cogito/neuropsy.htmlNeuropsychology Central leads to topics relatedto assessment and treatment, software resources,homepages, newsgroups, on-line forums, orga-nizations, forensic issues, training information,mailgroups, laboratories, publications, and leadsto many other links in neuroscience and medi-cine.

http://www.med.umich.edu/abcn/aacn.htmlThe American Academy of Clinical Neuropsy-

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chology leads to a Directory of Diplomates, theAACN Board of Directors, bylaws and currentnews.

http://www.med.umich.edu/abcn/The American Board of Clinical Neuropsychol-ogy leads to information about the ABPP Di-ploma, a directory of diplomates, the board ofdirectors, application information and currentnews.

http://www.people.memphis.edu/~clong/abpn-hp.htmThe American Board of Professional Neuropsy-chology leads to information about applicationsprocedures, membership and current news.

http://www.swets.nl/sps/journals/tcn.htmlHomepage forThe Clinical Neuropsychologist.Provides the current volume’s table of contentsand abstracts, as well as information on manu-script submission, ordering and document deliv-ery.

http://www.swets.nl/sps/journals/child.htmlHomepage forChild Neuropsychology. Providessimilar information as for the above journalhomepage.

http://www.swets.nl/sps/journals/jcen.htmlHomepage forThe Journal of Clinical and Ex-perimental Neuropsychology. Provides similarinformation as for the above journal homepage.

http://www.swets.nl/sps/journals/a&c.htmlHomepage forAging, Neuropsychology andCognition. Provides similar information as forthe above journal homepage.

http://www.swets.nl/sps/ntp/ntphome.htmlA list of training programs in clinical neuro-psychology maintained for Division 40 of theAPA.

Neuroscience and Medical Resources

http://www.nih.gov/ninds/healinfo/nindspud.htmlNational Institute of Neurological Disorder and

Stroke. Leads to information on a wide varietyof neurological disorders.

http://www.lm.com/~nab/Neurosciences on the Internet contains a search-able index of neuroscience resources availableon the World Wide Web and other parts of theInternet.

http://www.york.ac.uk/inst/ctipsych/neur.htmlThis site, designed as a resource for teachingneuropsychologyandneurobiology,containson-line tutorials, demonstration software, brain at-lases, and neural system simulations.

http://psych.hanover.edu/Krantz/neurotut.htmlBasic neural process tutorials, including a niceglossary of neural definitions from the Psychol-ogy Department at Hanover College.

http://www1.biostr.washington.edu/DigitalAnatomist.htmlThe Digital Anatomist, a program from the De-partment of Biological Structure at the Univer-sity of Washington, contains anInteractiveBrain Atlas with hundreds of central nervoussystem images and on-line quizzes for learningneuroanatomy.

http://www.med.harvard.edu:80/AANLIB/home.htmlThe Whole Brain Atlasshows the normal brainand its functions, plus demonstrations of cere-brovasculardisease,neoplasticdisease,degener-ative disease, inflammatory and infectious dis-eases.

http://ric.uthscsa.edu/services/BrainMap, a database of human functional brainmapping based on positron-emission tomogra-phy (PET) and functional magnetic resonanceimaging (fMRI) studies from the University ofTexas.

http://spike.pet.upmc.edu/indexmain.htmlPET Facility at the University of PittsburghMedical Center. Provides a list of and leads toother PET facilities.

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http://galaxy.tradewave.com/galaxy/Medicine/Health-Occupations/Medicine/Other-Specialties/Nuclear-Medicine.htmlMagnetic Resonance Imaging Page. The pagehas an extensive list of MRI resources includingeducation, MRI imaging WWW sites, gopherMRI sites, available software and periodicals.

http://neuro-www.mgh.harvard.edu/Massachusetts General Hospital Department ofNeurology ‘‘Electronic Gateway to Neurology’’includes current events in neurology, links toother neurology information, NeurosciencePoster Sessions, and more.

http://mcns10.med.nyu.edu/Homepage for the Department of Neurosurgeryat New York University. Contains case presenta-tions, information on treatment for Parkinson’sdisease, brain tumors, etc., and a section on cur-rent research.

http://www.brain-surgery.com/Everything you wanted to know about brain sur-gery. Provides usable, nontechnical informationabout the conditions which require brain sur-gery, including a large glossary of terms.

http://vh.radiology.uiowa.edu/The Virtual Hospital from the University ofIowa. Searchable database for imaging data andresearch about many topics.

http://www.nlm.nih.govNational Library of Medicine’sHyperDoc, con-tains electronic access to all of the library’s on-line database services (some of which you mustregister for), a large image collection (over60,000), and an interactive course on the historyand uses of Internet.

http://www.nlm.nih.gov/research/visible/visible_human.htmlThe Visible Man, a project by the National Li-brary of Medicine (NLM) to create a digital at-las of human anatomy.

http://www.ama-assn.org/Sign on and establish a free account which will

allow entry to the homepage for the AmericanMedical Association at (http://www.ama-assn.org/home/amahome.htm) from which you canaccess a table of contents, search tool, and ab-stracts for the medical journals including theJournal of the American Medical Society, Ar-chives of Neurology, and others.

http://www.oup.co.uk/jnls/listOxford University Press site provides abstractsfrom Brain, Cerebral CortexandNeurocase.

http://www.neuron.org/Neuron, a leading general journal of neurosci-ence, on-line abstracts.

http://www.arcade.uiowa.edu/hardin-www/md.htmlUniversity of Iowa’s Hardin Library is a goodsite to find information about almost any medi-cal issue.

Degenerative Disorders

http://www.alz.uci.edu/dement.htmlInstitute for Brain Aging and Dementia, Univer-sity of California.

http://www.portals.pdx.edu/~isidore/aging.htmlAn extensive listing of links to resources forresearchers and laypersons to find informationabout the aging process.

http://johns.largnet.uwo.caA radiology and nuclear medicine resource ofinterest in dementia research from the Univer-sity of Western Ontario.

http://www.alz.uci.edu/University of California at Irvine’s Brain Agingresearch unit on Alzheimer’s disease and otherdementias.

h t t p : / / w w w - m e d l i b . m e d . u t a h . e d u /WebPath/TUTORIAL/CNS/CNS.htmland http:/ /www-med l i b.med .u tah .edu /WebPa th /CNSHTML/The Internet Pathology Laboratory for MedicalEducationfrom the University of Utah’s Eccles

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Health Sciences Library contains tutorials andimages on the pathology of degenerative CNSDisorders, including Alzheimer’s, Pick’s, Hun-tington’s, Parkinson’s and ALS.

http://www.hookup.net/mall/aging/agesit59.htmlThe web site of the Aging Research Centre.

Alzheimer’s Disease

http://www.cwru.edu/orgs/adsc/intro.htmlCase Western Reserve University: Alzheimer’sdisease resource page. Leads to informationabout the disease, resources for care givers, re-search resources, resources for practitioners andthe University Alzheimer Center.

http://www.alz.org/Alzheimer’s Association leads to research stud-ies, resources, research institutions,conferences,events and links about the disease.

http://highlander.cbnet.ns.ca/cbnet/healthca/asoc/index.htmlAlzheimer Society of Ottawa-Carleton. Leads tomuch information about the disease and pro-vides many links.

http://dsmallpc2.path.unimelb.edu.au/ad.htmlDavid Small’s Alzheimer Web project containsinformation about definition, cause, diagnosis,and treatment of Alzheimer’s disease as well aslinks to international research labs, articles, anda database of papers on Alzheimer’s.

http://www.cais.com/adear/Alzheimer’s Disease Education and ReferralCenter.

http://www.biostat.wustl.edu/alzheimer/Alzheimer’s Disease Research Center.

Huntington’s Disease

http://neuro-www2.mgh.harvard.edu/hdsa/hdsamain.nclkHuntington’s Disease Society of America: leadsto information about the disease, publications

and videotapes, where to find help, genetic test-ing for HD, what is new in HD research,HDSA’s research Grant and Fellowship Pro-gram, and more links.

http://www.kumc.edu/hospital/huntingtons/KU Medical Center. Provides information aboutcurrent research, behavioral issues, communica-tion strategies, disability issues, eating and swal-lowing, home safety, study groups, internationalorganizations, and other related topics and links.

http://www.lm.com/~mccarrenHuntington’s disease information on the Inter-net. Leads to historical information, general sup-port and health resources, and current geneticresearch.

Parkinson’s Disease

h t tp : / /neuro -ch ie f -e.mgh .harva rd .edu /parkinsonsweb/Main/PDmain.htmlThe Parkinson’s Web. Leads to medical advisorboard, a Parkinson’s primer, and has informa-tion on signs & symptoms, support resources,recent research, new publications, bibliography,glossary, medications, surgical procedures andmany other links to the disease.

http://www.parkinson.ca/The Parkinson’s Foundation of Canada leads toParkinson’s network, definition, cause, symp-toms, diagnosis, treatment, rehabilitation, up-coming events, and other internet resources.

http://www.parkinson.org/National Parkinson Foundation (USA) leads tonews, events, Parkinson groups, information ongrants, sponsored programs, research centers.They also have a library of books, articles, andvideos and provide other internet links.

http://www.ccc.nottingham.ac.uk/~mpzjlowe/lewy/pd.htmlLewy net: links to research on Parkinson’s dis-ease.

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http://www.ceri.com/parkpage.htmThe Cognitive Enhancement Research Institute.Literature on the disease. Improved therapy andrecent developments with use of deprenyl.

Pick’s Disease

http://dementia.ion.ucl.ac.uk/The Pick’s Disease Support Group (PDSG). Pro-vides Newsletters which contain information onthe group, meeting reports, carer’s own experi-ences, and articles by professionals caring forindividuals with Pick’s disease.

http://www.med.harvard.edu/BWHRad/BrainSPECT/Picks/Picks2/Picks2_Findings.hmlIn the Atlas of Brain Perfusion SPECT. Pick’sdisease. Also leads to history, images findings,tutorials, random cases, and slide shows aboutthe disease.

http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?172700#TEXTPick’s disease of Brain. Lobar atrophy of brain.Dementia with lobar atrophy and neuronal cyto-plasmic inclusions.

Traumatic Brain Injury

http://www.biausa.orgBrain Injury Association is a broad general re-source for professionals and families with manylinks.

http://www.cais.com/naric/search/National Rehabilitation Information Center’sResources Guidefor people with head injuriesand their families. Has a considerable number oflinks to important resources and a search enginefor disability information.

gopher://gopher.sasquatch.comThis gopher site is dedicated to providing infor-mation on brain injury, as well as strategies forfamilies and caregivers, the NARIC resourceguide for people with TBI and their families,and a variety of pertinent topical archives.

http://www.sped.ukans.edu/spedprojects/tbi/TBIHomePage.htmlHomepage of the Traumatic Brain Injury (TBI)Project, funded by the Kansas State Board ofEducation.

http://www.neuro.pmr.vcu.edu/National Resource Center for Traumatic BrainInjury. Provides links to experts, references,support groups and more.

http://www.neurolaw.com/Neurotrauma Law Nexusprovides informationresources for understanding the legal system’sinvolvement in brain and spinal injury cases. Itdiscusses the role of the attorney, understandingbrain and spinal cord injury, and provides aglossary of terms and local resources and sup-port groups.

Cerebrovascular Disease

http://www.ninds.nih.gov/National Institute of Neurological Disorders andStroke. Information about treatment, warningsigns and risk factors, prevention, research high-lights, clinical trial guide, guide on surgery toprevent stroke, recovery and additional contacts.

http://207.211.141.25/American Heart Association: fighting heart dis-ease and stroke. Leads to considerable informa-tion about stroke.

http://www.stroke.org/National Stroke Association (NSA): provides aconsiderable amount of information on stroke, arisk factors quiz, stroke center network, and re-gional resources in the USA and Canada.

http://neuro-www.mgh.harvard.edu/forum/Massachusetts General Hospital Stroke Forumprovides a cumulative discussion on stroke is-sues with links to many articles.

http://medhlp.netusa.net/Med Help provides information and articlesabout a broad range of health concerns includingstroke and brain tumors.

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http://www.phrma.org/guides/stroke/index.htmlHealth Guide: provided by pharmaceutical com-panies. Includes information on stroke symp-toms, treatable risk factors, factors that increaserisk, promising new treatments, and neuro-protective agents.

http://www.cais.com/naric/search/National Rehabilitation Information Center’sResource Guide for Stroke Survivors and TheirFamilies. Provides access to important abstractson stroke and a document delivery service.

http://text.nlm.nih.gov/Summary of Research on evidence of therapyeffectiveness following stroke from the Agencyfor Health Care Policy and Research. Enter‘‘stroke’’ under HSTAT collections.

http://www.columbia.edu/~mdt1Aneurysm Information Project by David Tilson,M.D. Contains conferences, articles, lectures,and frequently asked questions about aneurysm.

http://is.dal.ca/~mscully/tig.htmlA homepage for the Thrombosis Interest Group,dedicated to furthering education and research inthe prevention and treatment of thrombosis.

Speech and Language Disorders

http://www.aphasia.org/National Aphasia Association. Leads to factsand reading, support groups, research informa-tion, newsletter, and more.

http://www.nih.gov/nidcd/aphasia.htmNational Institute on Deafness and other Com-munication Disorders.

http://www.aphasiahope.org/Leads to a substantial body of information aboutaphasia and related topics.

http://aace.virginia.edu/curry/resources/library/handouts/commdissj.htmlSpeech and communication disorder journals. Alist of the description and content of about 40different journals.

http://fonsg3.let.uva.nl/Speech on the Web. Links to sites related tophonetics and speech sciences. (many links).

http://cnet.shs.arizona.edu/Center for Neurogenic Communication Disor-ders (C-NET) consists of 15 ‘‘departmentals’’headed by experts on specific clinical topicssuch as speech and voice disorders, dementia,closed head injury, aphasia, swallowing disor-ders, and other interest areas such as culturalissues, tests and measurements, treatment effi-cacy, and reimbursement.

gopher://cnet.shs.arizona.eduPath:/Archive for CenterNet listservs. This go-pher is part of the Center for Neurogenic Com-munication Disorders and contains archives ofthe various listservs it supports, including dis-cussions of case studies in speech and hearing.

http://www.mankato.msus.edu/dept/comdis/kuster2/welcome.htmlAn extensive homepage on Communication Dis-orders and Sciences maintained by JudithKuster.

http://www.cc.nih.gov/rm/sp/The Ultrasound Oral Imaging Laboratory is partof the Speech-Language Pathology section inthe Department of Rehabilitation Medicine atthe National Institutes of Health to promote theuse of ultrasound as a diagnostic tool for speechand swallowing disorders (dysphagia).

Visual-perceptual Disorders

http://vision.arc.nasa.gov/VisionScience/Vision-Science.htmlVision Science page serves as a pointer to re-search on vision in human and other organisms.Lists information related to vision including re-search groups, research institutes, universitydepartments, organizations, newsgroups, soft-ware, hardware, journals, tutorials, notes, fre-quently asked questions, test images, and muchmore (all these are links which are very good).

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http://www.socsci.uci.edu/cogsci/vision.htmlVision Research WWW Servers. Another exten-sive list of research center, institute, organiza-tion, and universities doing research in vision.

http://spidernet.nl/~marti jn_dekker/otsp/prosopagnosia.htmlResource page for prosopagnosia with links torecent articles and information on visual pro-cessing.

http://www.slip.net/~lkenney/faceblnd/intro.htmlAn Internet book about face blindness by an in-dividual with prosopagnosia. Includes links tomedical information and social support.

Psychiatric Disorders

http://www.medmatrix.org/SPages/Psychiatry.aspMedical Matrix: Psychiatry. Provides news, ab-stracts from sixmajor psychiatric journals, arti-cles, meeting reports, resources, reference docu-ments and indices, learning modules, practiceguidelines, teaching cases, forums, and more.

http://www.mhsource.com/edu/psytimes/disorder.htmlPsychiatric Times: leads to a broad range of re-sources and information regarding psychiatricdisorders. Includes a search engine for differentdisorders.

http://www.healthguide.com/Health Guide On-Line! Leads to information onbipolardisorder,clinicaldepression,schizophre-nia, ADHD, medical treatments, therapy, mentalhealth and more.

http://www.nami.org/National Alliance for the Mentally Ill. A con-sumer advocacy page leading to informationabout a variety of disorders and illnesses, medi-cations and research.

http://views.vcu.edu/views/psych/resource.htmMental Health Internet Resources from the Vir-ginia Commonwealth University. Provides in-

formation about university resources, organiza-tions, government resources, electronic journalsand Internet CME, research, pharmaceuticalcompanies, electronic journals, and more.

Depression

http://www.psycom.net/depression.central.htmlDr. Ivan’s Depression Central. Contains infor-mation on all types of depressive disorders andon most effective treatments for individuals suf-fering from Major Depression, Bipolar disorder,Cyclothymia, Dysthymia, and other mood disor-ders.

http://www.duke.edu/~ntd/depression.htmlUni/Bipolar Disorder page of Duke University.Leads to many sites pertaining to depression,including articles and newsgroups.

http://members.aol.com/depress/index.htmWings of Madness: A depression guide. Leads toinformation about depression.

http://www.pendulum.org/Pendulum Resources. Contains informationabout bipolar and other mood disorders, medica-tions, articles and other links. Also contains in-formation on fibromyalgia.

http://pages.prodigy.com/bipolarcyclone/Bipolar Disorder resource site: Includes defini-tions, diagnosis and treatment, research, andmore.

Anxiety Disorders

http://www.cyberpsych.org/adaa/index.htmlAnxiety Disorder Association of America,(ADAA). Conference announcements, recom-mended reading list, ADAA reporter (selectedarticles), support groups, and more.

http://www.algy.com/anxiety/index.htmlThe Anxiety-Panic Internet Resources. Containsinformation about anxiety disorders, support,medications, databases, caregivers, and muchmore.

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Obsessive Compulsive Disorder

http://pages.prodigy.com/alwillen/ocf.htmlObsessive Compulsive Foundation, (OCF). Def-initions of OCD, OCD in children, services,book reviews, calendar of events, newsletters,drug treatment of OCD, and more.

http://www.ocdresource.com/index2.htmlThe Obsessive Compulsive Disorder ResourceCenter. Leads to information about OCD,causes, symptoms, treatment, how to help thoseliving with OCD, and OCD resources.

http://www.fairlite.com/ocd/Obsessive Compulsive Disorder (OCD)Homepage. Bulletin board, definitions, ab-stracts, articles, medical resources, medicationindex, and more. Includes a page on trichotillo-mania.

Schizophrenia

http://www.priory.com/journals/schizo.htmSchizophrenia: Dr. B. Green, Consultant Psychi-atrist, UK. Information about clinical features,course of the illness, aetiology, organic evi-dence, treatment, and references.

http://w3socpsy.med.rug.nl/docs/schizx.htmDepartment of Psychiatry, University ofGroningen: Schizophrenia. Leads to general in-formation, cognitive aspects, research, and in-formation about a multicenter study on schizo-phrenia.

http://www.yale.edu/vayale/VA-YALE, Schizophrenia Biological ResearchCenter. Leads to schizophrenia research and re-sources with downloadable information.

http://www-personal.umich.edu/~jimmw/Meador-Woodruff Laboratory. Mental HealthResearch Institute: University of Michigan. De-tailed description of schizophrenia studies, labo-ratory publications, and recent findings.

http://www.sw.org/gme/psych/schiz.htmScott and White Clinic, Texas A&M University

College of Medicine: Aspects of Schizophrenia.Focus: neural basis of mental illness.

http://www.wpic.pitt.edu/research/monograp/3.htmWestern Psychiatric Institute and Clinic. Schizo-phrenia research program at WPIC. Leads toother studies in progress about schizophrenia.

http://www.schizophrenia.com/The Schizophrenia Homepage. Recent news andevents, family resources section, on-line supportgroups about schizophrenia.

http://www.mahesh.net/projects/scarf.htmlSCARF, Schizophrenia Research Foundation.Information about schizophrenia and the activi-ties of the foundation.

http://www.pslgroup.com/SCHIZOPHR.HTMDoctor’s Guide to Schizophrenia: informationand resources. Leads to medical news, drug in-formation, discussion groups and newsgroupsabout schizophrenia.

http://www.tezcat.com/~strange/schizophrenia.htmlSoliloquy or psychosis? A cultural look atschizophrenia.

HIV

http://www.ama-assn.org/special/hiv/hiv-home.htmJournal of the American Medical AssociationHIV/AIDS Information Center.

http://www.smartlink.net/~martinjh/#topAn extensive collection of AIDS informationand links.

http://www.teleport.com/~celinec/aids.shtmlAIDS resource list with many links to AIDS-related resources.

h t tp : / /meds ta t .med .u tah .edu /WebPath /TUTORIAL/AIDS/Internet Pathology Laboratory from the Univer-sity of Utah’s Eccles Health Science Library.

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Contains images on AIDS pathology, a link to ashareware textbook of AIDS Pathology whichcovers a general discussion of HIV infection,descriptions of the opportunistic infection andneoplasms associated with AIDS.

Multiple Sclerosis

http://www.helsinki.fi/~ahalko/ms.htmlMultiple Sclerosis Page. Leads to considerableinformation regarding MS, current research, andinformation on medication.

Epilepsy

http://www.aesnet.org/American Epilepsy Society: Seeks to promoteinterdisciplinary communication, scientific in-vestigation, and exchange of clinical informa-tion about epilepsy. Information about clini-cians, scientists investigating epilepsy, and otherprofessionals interested in seizure disorders.Both pediatric and adult aspects of epilepsy.Also seehttp://www.efa.org/index1.htmthe Epi-lepsy Foundation of America.

http://siumed.edu/neuro/epilepsy.htmlCenter for Epilepsy: Southern UniversitySpringfield, IL. Leads to new investigationaltherapies, epilepsy research, Web clinic (ques-tion and answers about epilepsy), news and in-formation, epilepsy associations and supportgroups.

http://www.epinet.org.au/Epinet: Information for understanding epilepsyincluding diagnosis and treatment, and the rec-ognition of seizure types, first-aid information,and information on living with epilepsy.

ht tp : / /www- le land.s tan ford .edu/group/neurology/scec/Stanford Comprehensive Epilepsy Center. Leadsto information about surgical treatments, ongo-ing drug studies, the ketogenic diet program,research and support groups.

http://www.epilepsy.ca/Epilepsy Canada. What is epilepsy, listing ofepilepsy associations, research programs, andeducational materials. Also seehttp://ontario.epilepsy.org/index.htmlfrom the Epilepsy On-tario Organization.

http://www.neuro.wustl.edu/epilepsy/Washington University: comprehensive epilepsyprogram. Leads to major support groups, organi-zations, centers and programs, discussion groupsand mailing list, journals and publications.

Developmental Disabilities

http://www.aamr.org/AAMR is the oldest and largest interdisciplinaryorganization of professionals and others con-cerned about mental retardation and related dis-abilities. Leads to a wealth of information andlinks on mental handicaps.

http://www.waisman.wisc.edu/mrsites.htmlLinks to web sites related to cognitive and de-velopmental disabilities.

http://www.aacap.org/web/aacap/factsFam/Public information fact sheets to educate parentsand families about psychiatric disorders affect-ing children and adolescents, including autism,conduct disorders, ADHD, learning disabilities,mental retardation, and more.

http://rdz.stjohns.edu/library/support/our-kids/Our-Kids is a support group for parents, care-givers and others who are working with childrenwith physical and/or mental disabilities and de-lays. The list contains information on varyingdiagnoses; spanning from general developmen-tal delays to rare genetic disorders.

http://www.familyvillage.wisc.edu/Family Village: a global community of disabil-ity-related resources.

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http://www.hanen.orgHomepage of The Hanen Center, in Ontario,Canada. Information for helping children andadults with developmental delays communicate,information on supporting and empowering par-ents, early childhood educators, teachers, andother caregivers.

http://www.siu.edu/departments/coe/comdis/cryhome.htmlSouthern Illinois University’s archive to collectinformation and provide samples of cry behaviorin infants and neonates. It is a scientific reposi-tory and a link to cry information.

http://www-ld.ucsf.eduA Dana Consortium (Rutgers, University of Cal-ifornia – San Francisco, Harvard, New YorkUniversity, and Washington University) re-search project seeking new approaches to earlydiagnosis, treatment, and prevention oflanguage-based learning disabilities (l/ld) basedon the theory that l/ld may be caused by diffi-culty with the temporal processing of informa-tion.

Attention Deficit Disorders

http://www.chadd.org/CH.A.D.D. On Line! Children and adults withattention deficit disorders. Leads to much infor-mation about ADD including general info, gov-ernment info, CH.A.D.D. Events, treatmentslegal rights and services for children with ADD,and leads to other resources of information.

http://www.usask.ca/psychiatry/CPADDC.htmlCanadian Professionals ADD Centre. This pageis designed for Canadian teachers, counselors,psychologists, nurses, physicians and others in-terested in ADHD. This page contains much in-formation about ADHD and leads to many otherlinks which are related to ADHD.

http://www.addhelp.com:80/authorparent/chadd.htmlCH.A.D.D. This page contains a parent’s homepage, behavior solutions and homework solu-tions for children with ADD and it also has suc-

cess stories and a table of contents which leadsto more info about ADD.

http://www.realtime.net/cyanosis/add/Attention Deficit Disorder WWW Archive. Avery good list of content relating to ADD. Leadsto considerable amount of information and morelinks.

Autism and Down’s Syndrome

http://web.syr.edu/~jmwobus/autism/Index of on-line information and resources onthe developmental disabilities Autism andAsperger’s Syndrome. This page is an organizedlist of resources about Autism that are availableon the net and includes link to almost any sitewith something to say about Autism.

http://www.nas.com:80/downsyn/The Down’s syndrome homepage compiledfrom the contributions of individuals interestedin Down’s.

http://www.telebyte.com/upside/upside.htmlUPSIDE! is an informal society of individuals,parents, and friends involved with people withDown’s syndrome.

http://www.downsyndrome.com/The Family Empowerment Network homepageabout Down’s syndrome.

Fetal Alcohol and Substance Abuse Condi-tions

http://www.nofas.org/NOFAS a national organization focusing solelyon FAS and dedicated to eliminating birth de-fects caused by alcohol consumption duringpregnancy and improving the quality of life forthose individuals and families affected. Containsa wealth of information and pertinent links.

http://TheArc.org/misc/faslist.htmlFetal Alcohol Syndrome Resource and MaterialsGuide of the Association for Retarded Citizens(ARC). The development of this site was sup-ported by a grant from the CDC Prevention of

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Birth Defects and Developmental Disabilities, ithas considerable information and links to othersites.

http://members.aol.com/jshawdna/fashome.htmMontana Fetal Alcohol Syndrome/Effects Infor-mation homepage. Lots of good information.

Genetic Disorders

http://www3.ncbi.nlm.nih.gov/Omim/On-line Mendelian Inheritance in Man(OMIM)by Dr. Victor McKursik, catalogs of autosomaldominant, autosomal recessive, and X-linkedphenotypes which is updated continuously. Con-tains a wealth of current information on topicssuch as Huntington’s disease, Rett’s syndrome,and Alzheimer’s disease.

http://galaxy.einet.net/galaxy/Medicine/Diseases-and-Disorders/Neonatal-Diseases-and-Abnormalities.htmlGalaxy, a guide to worldwide information andservices, provides links to genetics counselingand neurobiology information.

http://www.kumc.edu/gec/geneinfo.htmlUniversity of Kansas’s Human GeneticsHomepage provides links to valuable geneticsresources.

http://www.hdfoundation.org/The Hereditary Disease Foundation. Containsmany links; a good place to start research onhereditary diseases.

http://www.worx.net/fraxaThe Fraxa Research Foundation supports re-search aimed at treatment and understanding ofFragile-X Syndrome.

http://www.athenet.net/~pwsa_usa/index.htmlPrader-Willi Syndrome Association homepage.

http://www.sos.on.ca/~pmackay/williams.htmlWilliams syndrome homepage facts from theCanadian Association for Williams Syndrome.

http://www.med.jhu.edu/ataxiaInformation regarding Ataxia Telangiectasia(A-T) is a progressive, degenerative disease.A-T children appear normal at birth, and thefirst signs of the disease usually appear duringthe second year during which they developataxia.

General Resources

http://www.apa.orgThe American Psychological Association. Siteprovides links to broad areas of interest to psy-chologists.

http://www.cpa.caThe Canadian Psychological Association. Sitehas a searchable membership database and linksto important sites and information for psycholo-gists in Canada.

http://www-gse.berkeley.edu/program/sp/AssociationsPsychology Associations. This site lists infor-mation regarding the major psychology associa-tions.

http://www.psychcrawler.com/A search engine maintained by APA for accessto psychological research and references.

http://www.beadsland.com/weapas/This web extension to theAPA Style Manualprovides proposed standards for referencing on-line documents in scientific publications.

http://maple.lemoyne.edu/~hevern/psychref3.htmlResources for Students and Faculty Advisors:Contents include resources on research writingand presentation inAPA Style Manual(4th edi-tion). Includes guides for citing references fromthe Internet, undergraduate research conferencelists, graduate school planning, career planningand jobs.

http://www.centerwatch.com/MAIN.HTMCenter Watch: clinical trials listing services.Leads to clinical trials listing, patient notifica-

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tion services, research center profiles, centerwatch publications, and additional resourcesabout clinical research.

gopher://rivendell.org/The Rivendell Resources Information deals withbereavement and information on dealing withmajor losses, both physical and emotional.

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internet resources for neuropsychology

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