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Information for carers
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Are you a carer?
A carer is someone who looks after a family
member, a friend or partner.
For example if they:
• are ill
• are disabled
• have mental health difficulties
• have problems with drugs or alcohol.
Young carers
Young carers are children and young people
under 18 who look after a family member
in a way that affects their daily life and how
they are growing up.
Carer’s Needs Assessment
If you are a carer or a young carer you can
have a Carer’s Needs Assessment from
Social Care services.
The assessment is to work out what help
and support you might need.
You can have this assessment even if the
person you care for does not want help.
If the person you care for is having an
assessment, your needs will be part of their
assessment too.
I need support with..
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Caring for a disabled child
If you are caring for a disabled child we will
do an assessment for you, your child and
the whole family.
There is a range of support services which
can help.
Contact Children’s Disability Service at
Seaside View Child Development Centre
Tel 01273 265825
Breaks and services for carers of adults
We can help you to take a break from
caring.
You could take a break with the person you
care for or on your own.
Some services we offer are:
• Short term residential or nursing care
• A sitting service at the persons home.
Other things we can help with are:
• Equipment
• Transport costs
• Employment, education or leisure.
If you are a young carer we can help you
join in with activities like:
• school trips
• playschemes
• sport and leisure activities.
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• Have a Carers Needs Assessment
If you would like an assessment of your
needs you can call Access Point
Tel 01273 295550
• Tell your GP you are a carer
Tell your GP that you are a carer as soon as
you can.
Your GP can give you support, advice and
information.
If they know you are a carer they will find it
easier to offer the advice and support you
need.
It might help them to treat you if you get ill
in the future.
If you are caring for someone who is very ill
or frail you might be able to have a free flu
jab.
How can you get help?
I need
support with..
I can help.
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If the person you care for does not have
any services they can have their own
assessment from Adult Social Care.
The assessment will be to work out what
support they need and what services might
help.
Do we have to pay for services?
There is a charge for some of our services.
If the cared for person’s assessment says
they need services then they will also have
a financial assessment.
This is to work out if the cared for person
needs to pay for some of their care. This is
called a contribution.
Self directed support
If the financial assessment says you need
funding from the council you can have a
personal budget.
This is money that the council pays to you
so you can decide how to support your
needs and the needs of the person you
care for.
You can get help with planning support and
using your personal budget.
If your assessment says you need pay for
your services yourself you can still have
help and advice with planning support.
How can you get help for the person
you care for?
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• Access Point
You can call Access Point for information
and advice about all social care services.
Access Point can also carry out a simple
assessment of your needs.
You can also call Access Point for out of
hours social care emergencies.
Minicom 01273 296388
• Comments and Complaints
Adult Social Care
Freephone 0800 0729960
• Children and Young People’s Trust
Freephone 0500291229
Who can you contact? Advice and infomation
Tel 01273 295555
Email [email protected]
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• Emergency back up scheme for carers
This service can help arrange care in the
home if something happens and you
cannot be there.
Tel Access Point on 01273 295555
(see page 6 for more Access Point contact
details)
• Information prescriptions
This is a website for people with long term
health problems or social care needs and
their carers.
There is information about:
• Asthma and diabetes or other health
problems
• Health and social care services
• Financial and housing advice support
groups
• Information for carers
• Education and training opportunities
• Employment and leisure activities
Website www.iph.or.uk
If you need support to access the website
ask at Brighton and Hove library or call
Tel 0800 013 0251.
Specialist Carers organisations
Advice and infomation
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• Daily Living Centre Back Care Service
This service gives advice, support and
equipment (if possible) for carers of adults
and children to help you move and handle
the person you care for safely.
• Alzheimer’s Society
This is a service for people with dementia,
people affected by dementia and their
carers.
The service offers:
• Home visits to give carers a break
• Information and support work
• Carers support groups
• Drop in sessions and clinics
See the local information section on the
website for services in Brighton and Hove.
The helpline is open 9am to 5pm everyday.
Tel 01273 726266
Website www.alzheimers.org.uk
Tel 01273 296132
Email [email protected]
Website
www.brighton-hove.gov.uk/dailylivingcentre
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• Amaze
This service supports parents and carers of
children with special needs with things like:
� Education
� Disability living allowance
� Social care and health services
Amaze also works with parents of
teenagers moving from childrens to adults
services:
� Telephone helpline for information and
advice
� Compass leisure card (for cheaper
leisure services)
� Workshops and training
Amaze provides free handbooks:
� Through the Maze
A handbook about services available
for children with special needs and
how to access them.
� Through the next Maze
A handbook about services for parents
of teenagers with special needs.
Amaze also supports the Parent Carers
Council (PaCC):
This is a group of parent carers who work
together to influence services for children
with special needs.
For all Amaze services contact:
Tel 01273 772289
Website ww.amazebrighton.org.uk
Advice and infomation
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• Carers Centre
The carers centre works with adult carers
and young carers and provides:
� Emotional support to help you cope
with and make choices about caring
� Advocacy to make sure you get the
benefits and services you need
� Support groups and activities
� Training courses and events
� Carers forums 4 times a year
� Carers voice - this is about supporting
carer representatives to raise
awareness and improving services for
carers
� Care passports - a communication
tool for when the person your care
for is in hospital or residential care
� Carers link worker scheme - support
to carers at some GP practices
� Factsheets about bereavement
services, help in the home, respite
care services, transport, community
care, holidays and returning to work
� Carers news - a newsletter published
4 time a year
Tel 01273 746222
Textphone 07704 409155
Email [email protected]
Website www.thecarercentre.org
Advice
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• Crossroads
This is a service to help give carers a break.
Crossroads can help with:
� Regular home visits including evenings
and weekends
� Overnight stays
� Cover for hospital appointments and
special occasions for example
� Cover for emergencies
• Patched
Support and services for families, friends and
carers of substance misusers or anyone in
the local community affected by drug or
alcohol problems.
Patched also does carers needs assessments.
Confidential advice 10am - 10pm everyday
Freephone 0800 085 4450
• Carers Class
Drop in group for carers to try out activities
like yoga, relaxation and meditation and
meet other carers.
Thursdays 2pm - 3:30pm
Address Brighton Buddhist Centre
17 Tichbourne Street
Brighton, BN1 1UR
Tel 01273 772090
Tel 01273 234021
Email b&[email protected]
Advice and infomation
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• Carers Direct Helpline
Information for carers and the person that
they care for.
Open Monday to Friday 8am - 9pm
Saturday and Sunday 11am - 4 pm
Tel 0808 802 0202
• Courses for carers
Free courses to help carers manage their
own health and the physical and emotional
demands of being a carer.
Contact the Expert Patients Programme for
more information.
Tel 01273 296590
Email [email protected]
• Sussex Partnership NHS Foundation
Trust Patient Advice and Liaison Service
(PALS)
If you have problems with your GP, hospital
or another health service you can contact
PALS.
Free confidential help, information and
support to patients, carers and anyone who
uses local health services.
Freephone 0800 013 0251
Email [email protected]
Advice and infomation
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• The Fed Centre for Independent Living
Website www.bhfederation.org.uk
Direct Payments Support Service
Support with planning and buying services
for people who have Direct Payments.
Disability Advice Centre
Advice and information service for disabled
people. A welfare benefits advisor is
available by appointment.
Tel 01273 203016
Textphone 01273 203016
Email [email protected]
Counselling
A low cost, independent, accessible
counselling service for disabled people,
their families, friends and carers.
Tel 01273 208 934
Address 3 Rutland Gardens, Hove, BN3 5PA
Tel 01273 296747
Email [email protected]
Advice and infomation
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• Welfare Rights Advice Line
Call or email for advice on all social security
payments.
Open every Wednesday 10am-1pm
Tel 01273 291116
Email [email protected]
• Benefit Advice
(Department for Work and Pensions)
For new claims contact Job Centre Plus
Tel 0845 600 4254
• Carers Allowance
(Department for Work and Pensions)
Call for advice about benefits for people
who look after someone who is disabled.
Helpline 0845 608 4321
Textphone 0845 604 5312
• Work and caring
(Department for Work and Pensions)
Help and advice with combining paid work
with caring. For example adviser support,
training, replacement care costs and
benefits advice.
Tel 0845 604 3719
Textphone 01273 647555
Website www.direct.gov.uk/en/caringforsomeone
Advice and infomation
Website www.direct.gov.uk/en/caringforsomeone
Advice and infomation
Advice and infomation
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• Carers UK
Carer led organisation offering advice and
support for all carers.
Helpline open
Weds - Thurs 10am-12pm and 2pm - 4pm
Carers Line 0808 8087777
Email [email protected]
Website www.carersuk.org
• NHS 111
24 hour service for non-urgent medical advice.
Advice and
infomation
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• Remember you’re a carer!
Recognising yourself as a carer is the first step to
getting the help and support you need.
• Include your family and friends
They can support you and help you take a break.
Trying to cope on your own can make you ill.
• Tell your GP
Make sure you tell your GP that you are a carer,
and ask them to put it in your notes.
• Tell Social Services
It is important that they know about the person
you care for. They can do a carers assessment
which will help you get support for you and the
person you care for.
• Tell people at work
Your caring role is likely to mean you need support
at work for example time out for appointments.
Your employer must consider a carer’s request for
flexible working.
• Claim your entitlements.
There are benefits that you can get to help you in
your caring role. Find information in this booklet.
Other things you can do
I can help.
We can help.
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• Get advice
Contact one of the local carers organisations in this
booklet. They can give you information, advice
and support.
• Join the Emergency Back-Up Scheme (see page 7)
• Look after yourself.
Caring can be exhausting and it is important to look
after your health and to make time for yourself.
• Complete a Care Passport.
This helps to share information about the person
you care for if they go to hospital.
• Think about the future.
You may not always be a carer. It is important that
you keep as much of your own life going as you can
- work, friends, hobbies and interests.