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1 1 Infant Mortality in the US: Where We Stand CAPT Wanda D. Barfield, MD, MPH, FAAP Director, Division of Reproductive Health National Center for Chronic Disease Prevention and Health Promotion Centers for Disease Control and Prevention 1 Accessible version: https://youtu.be/MM_G0MPdCJM

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Page 1: Infant Mortality in the US: Where We Stand - cdc.gov · 16/10/2012 · Gastritis, duodenitis, and non-infective enteritis and colitis 3.4% 7.9. 11 Contribution of Preterm Birth to

1 1

Infant Mortality in the US: Where We Stand

CAPT Wanda D. Barfield, MD, MPH, FAAP Director, Division of Reproductive Health

National Center for Chronic Disease Prevention and Health Promotion

Centers for Disease Control and Prevention

1

Accessible version: https://youtu.be/MM_G0MPdCJM

Page 2: Infant Mortality in the US: Where We Stand - cdc.gov · 16/10/2012 · Gastritis, duodenitis, and non-infective enteritis and colitis 3.4% 7.9. 11 Contribution of Preterm Birth to

2

1963 2001

2

A Tale of Two Babies

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3 3

What is Infant Mortality?

The death of a live-born infant before his/her first

birthday Neonatal period: 0 - 27 days

Postneonatal period: 28 - 364 days

The largest component of childhood mortality

A major indicator of societal health and well-being

3

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67%

33% Neonatal

Postneonatal

Timing of U.S. Infant Death, 2011

Neonatal (<28 days) Drivers:

Preterm

Birth defects

Maternal health conditions

Lack of access to risk-

appropriate care

Postneonatal (28-364 days) Drivers:

Sudden unexpected infant

death (SUID)/Sudden infant

death syndrome (SIDS)

Injury

Infection

4

National Center for Health Statistics, National Vital Statistics Reports, 2011

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5

0

5

10

15

20

25

30

35

40

45

50

1960 1970 1980 1990 1995 2000 2004 2007 2008 2009 2010 2011

White, Non-Hispanic

Black, Non-Hispanic Total

U.S. Infant Mortality Rates, 1960-2011

Year

Perc

en

t o

f D

eath

s p

er

1,0

00 liv

e b

irth

s

11.42

6.05

5.11

National Center for Health Statistics, National Vital Statistics Reports

5

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Trends: Birth Weight-Specific Neonatal Mortality

0

10

20

30

40

50

60

70

80

90

100

Percent mortality

1950

1985

2008

National Center for Health Statistics

6

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7

Trends: Birth Weight Distribution

0

5

10

15

20

25

30

35

40

45

Percent of live births 1950

1985

2009

National Center for Health Statistics

7

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Infant Mortality Rates, OECD Countries, 2008

6.6 5.9

5.6 5.6

5.1 5.0

4.7 4.1

4.0 4.0

3.8 3.8 3.8 3.8

3.7 3.7

3.5 3.5

3.3 3.3 3.3

2.8 2.7 2.7

2.6 2.6

2.5 2.5

0 1 2 3 4 5 6 7

United StatesSlovak Republic

PolandHungaryCanada

New ZealandUnited Kingdom

AustraliaSwitzerland

DenmarkNetherlands

IsraelIrelandFrance

BelgiumAustria

Republic of KoreaGermany

SpainPortugal

ItalyCzech Republic

NorwayGreeceJapan

FinlandSwedenIceland

Rate per 1,000 live births

Health, United States, 2011

OECD: Organization for Economic Cooperation and Development

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Infant Mortality Rate, 2006-2008

9

National Center for Health Statistics

4.94 – 5.98

5.99 – 6.57

6.58 – 7.65

7.66 – 11.97

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10

Underlying Causes of Infant Death in the US,

2008

*ICD-10 codes grouped by modified Dolfus classification scheme

http://www.cdc.gov/nchs/data/nvsr/nvsr60/nvsr60_06.pdf

NEONATAL

Cause of death

Percentage of total

deaths (in specified

group)

Mortality rate (per

100,000 live births in

specified group)

Disorders related to short

gestation and low birth

weight, not elsewhere

classified 25.4% 109.0

Congenital malformations,

deformations and

chromosomal anomalies 21.7% 93.1

Maternal complications of

pregnancy 9.6% 41.0

Complications of placenta,

cord and membranes 5.9% 25.1

Bacterial sepsis 3.7% 15.9

POSTNEONATAL

Cause of death

Percentage of total

deaths (in specified

group)

Mortality rate (per

100,000 live births

in specified group)

Sudden infant death

syndrome 21.7% 50.4

Congenital

malformations,

deformations and

chromosomal anomalies 15.6% 39.6

Unintentional injuries

12.0% 27.9

Diseases of the

circulatory system 4.9% 11.5

Gastritis, duodenitis, and

non-infective enteritis and

colitis 3.4% 7.9

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11

Contribution of Preterm Birth to

U.S. Infant Mortality

54%

10%

32%

Infant Deaths

<32 32-33 34-36 ≥ 37

9%

87%

Births

<32 32-33 34-36 ≥37

National Center for Health Statistics, linked birth/infant death data set

Percent of Live Births and Infant Deaths by Weeks of Gestation, US, 2007

11

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U.S. Infant Mortality Rates for Selected Causes of Death for

Non-Hispanic Black and Non-Hispanic White Women

599

165

108 61

178

124

58 30

0

100

200

300

400

500

600

Preterm-relatedcauses

Congenitalmalformations

SIDS Unintentionalinjuries

Infa

nt

mo

rtali

ty r

ate

per

100,0

00 l

ive b

irth

s

Non-Hispanic black Non-Hispanic white

CDC/National Center for Health Statistics, linked birth/infant death data set, 2007

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Contribution of Preterm Birth to the U.S. Infant Mortality Rate

The tiniest babies bear the biggest burden More than 50% of infant deaths occur among infants 32 weeks

gestation or younger

Annual societal economic burden $26.2 billion (2005)

Major contributor to poor international rankings US ranks 130 of 184 in preterm births

13

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Maintaining the Gains: Provision of Risk-Appropriate Care

Meta-analysis of 30 years of data on perinatal

regionalization (104, 944 VLBW infants)

Odds of death at non-level III facilities

Infants weighing ≤1500g • OR 1.62 (95% CI 1.44 - 1.83)

Infants weighing ≤1000g • OR 1.64 (95% CI 1.14 - 2.36)

Infants born ≤32 weeks • OR 1.55 (95% CI 1.21 - 1.98)

In the US, many of these infants are not delivered in

level III facilities

Lasswell SM, Barfield WD, Rochat RW. Perinatal regionalization for very low-birthweight and very preterm infants: a meta-analysis.

JAMA 2010 Sept 1;304(9)

VLBW: very low birthweight 14

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Contribution of Cigarette Smoking to

Infant Mortality

Prenatal smoking occurs in 11.5% of all

U.S. live births

Smoking in pregnancy accounts for 5%-8% of preterm deliveries

13%-19% of low birth weight among term infants

23%-34% of deaths due to SIDS

5%-7% of deaths from preterm-related causes

Potentially preventable

Dietz PM, England LJ, Shapiro-Mendoza CK, et al. Infant morbidity and mortality attributable to prenatal smoking in the U.S. Am J Prev

Med 2010 Jul .38(1)

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Prevention of Elective Deliveries < 39 weeks

SIDS/SUID Risk Reduction

Perinatal Regionalization

Smoking Cessation in Pregnancy

Preconception and Interconception Care

Five Current National Strategies for Infant Mortality Reduction

ASTHO President’s Challenge: www.astho.org

ASTHO: Association of State and Territorial Health Officials

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Circle of Influences on

Fetal and Infant Health

fetus mother

family

community

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Pregnancy Risk Assessment Monitoring System

(PRAMS): Using Data to Reduce Infant Deaths

Denise D’Angelo, MPH Health Scientist, Division of Reproductive Health

National Center for Chronic Disease Prevention and Health Promotion

Centers for Disease Control and Prevention

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PRAMS Overview

Population-based surveillance

system

Self-reported maternal

behaviors and experiences

around the time of pregnancy

Supplements birth certificate

information

State and near-national

estimates

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PRAMS Background and Goals

Established in 1987 as part of an Infant Health

Initiative

Congressional funding provided to CDC to

establish state-based programs

Reduce maternal and infant morbidity and

mortality Maternal and infant health programs

Health policies

Maternal behaviors

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Who Participates in the PRAMS Surveys?

Women who recently delivered a live infant

Random sample from birth certificate records

Women are sampled when infants are 2 - 6 months old

State sample ~1500–3000 women per year

40 states and NYC (combined annual sample ~ 77,000)

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Representative Sample

Population Frame Sample Respondents

Response

Weight

Sampling

Weight

Coverage

Weight

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PRAMS Participation, 2012

OK

AK

GA

FL

SC

AL

NC

CO

NM AR

IL

NY

ME

WV

WA

LA

UT OH

NE

HI

VT

MD

NYC

MS

OR MN

MI

TX

RI

NJ

WY WI

PA

TN

MO VA

DE

MA

PRAMS represents approximately 78% of all U.S. live births

IA

CT

NH

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PRAMS Surveys

Data collection

primarily by mailed

paper survey

Survey booklets are 14

pages and around

85 questions in length

Telephone follow-up

Takes 20 - 30 minutes

to complete

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25 25

Selected PRAMS Survey Topics

Breastfeeding

Cigarette smoking and alcohol use

Contraceptive use

HIV counseling and testing

Infant sleep position

Influenza vaccination

Medicaid and WIC participation

Multivitamin use

Physical abuse

Preconception health

Prenatal care

Unintended pregnancy

Infant Sleep Position

Cigarette smoking during pregnancy

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26 26

Smoking During Pregnancy, 26 PRAMS Sites

0

5

10

15

20

25

30

35

Overa

ll

AK

AR

CO

DE

GA HI

ME

MD

MA

MN

MO

NE

NJ

NY

NY

C

OH

OK

OR

PA RI

TX

UT

VT

WA

WV

WY

States

Perc

en

t

Pregnancy Risk Assessment Monitoring System, 2010

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Smoking During Pregnancy, by Race and Age

Other

Hispanic

Black

White

0 5 10 15

Race

≥35

20-34

<=19

0 5 10 15

Age

Pregnancy Risk Assessment Monitoring System, 2010

Percent

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Behind the Numbers

“I smoked a lot while pregnant with my daughter. As a

result, she was born 6 weeks premature and weighed 3 lbs

6 oz. She stayed in the hospital for a month. People really

don’t think smoking effects pregnancy, but it does (in) so

many ways. I wish there was a way to stress to people the

importance of NOT SMOKING!!” » PRAMS respondent

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29 29

Infants Placed to Sleep on Back

0

10

20

30

40

50

60

70

80

90

Perc

en

t

Pregnancy Risk Assessment Monitoring System, 2010

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Back Sleep Position, by Race and Age

Other

Hispanic

Black

White

0 50 100

Race

≥35

20-34

<=19

0 50 100

Age

Pregnancy Risk Assessment Monitoring System, 2010

Percent

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Infant Bed Sharing at 14 Sites

0

10

20

30

40

50

60

States

Perc

en

t

Pregnancy Risk Assessment Monitoring System, 2010

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Infant Bed Sharing, by Race and Age

Other

Hispanic

Black

White

0 20 40 60 80

Race

≥35

20-34

<=19

0 20 40 60

Age

Pregnancy Risk Assessment Monitoring System, 2010

Percent

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Impact of PRAMS Data on

Smoking in West Virginia

“Tobacco Free Pregnancy Initiative” launched in 2009

Initiative officially introduced by governor Community grants available for tobacco cessation services

“Tobacco Free for Baby and Me” program

(Women’s and Children’s Hospital)

“Day One” program offered at delivery hospitals

(Healthcare Education Foundation)

Free tobacco cessation counseling training for healthcare

providers (Marshall University School of Medicine)

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Preliminary Data on WV Tobacco Free Pregnancy

Initiative Campaign Effectiveness

In the first 6 weeks of the media campaign:

2,355 calls were made to the Quitline

500 callers enrolled in a tobacco cessation program

48% of these enrollees had seen media materials from the

Tobacco Free Pregnancy Initiative

20% of these callers were pregnant women and their families

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Impact of PRAMS on Safe Sleep in Michigan

From PRAMS data: Back to sleep position 20% lower among blacks

Younger, less educated women more likely to bed share

In 2004, Tomorrow’s Child and the

Michigan Department of Health launched the

Infant Safe Sleep Campaign Endorsed by the governor

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MI Infant Safe Sleep Campaign:

Recommendations and Policy Actions

Developed unified infant safe sleep recommendations

Integrated Infant Safe Sleep message into existing programs

and services of the state health department

Set standards of care, policies, and procedures for hospitals,

health plans, and state agencies

Required adherence to Safe Sleep recommendations as a

condition of licensure for child care centers

Distributed consumer materials with consistent Safe Sleep

messages

www.michigan.gov/documents/Safe_Sleep_Report_Final_123380_7.pdf

www.michigan.gov/dhs/0,4562,7-124-5453_7124_57836---,00.html

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Data Linkages

Live Birth

Certificates

PRAMS

Infant Deaths

SIDS/SUID

Registry

ART

Indirect linkages

Direct linkages

Live birth certificates – intermediate files

Birth

Defects

Newborn

Screening

Hospital

Discharge

Medicaid WIC

ART: Assisted Reproductive Technology

WIC: Special Supplemental Nutrition Program for Women, Infants and Children

Grigorescu V, Kleyn MJ, Korzeniewski SJ et al. Am J Prev Med 2010;38(4S):S522–S527

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PRAMS Information

www.cdc.gov/prams/

www.cdc.gov/prams/cponder.htm

CPONDER: CDC PRAMS Online Data for Epidemiologic Research

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39 39

Preventing Sudden and Unexpected Infant Death:

From “Back to Sleep” to “Safe to Sleep”

Rachel Y. Moon, MD FAAP American Academy of Pediatrics

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Scope of the Problem

Sudden and unexpected infant death (SUID) Also called sudden and unexpected death in infancy (SUDI)

Accounts for ~4500 U.S. deaths annually

Most occur during sleep (sleep-related deaths) Accidental suffocation and strangulation in bed (ASSB)

Ill-defined

Sudden infant death syndrome (SIDS)

SIDS comprises one-half of SUID deaths No cause found after autopsy, death scene investigation,

review of clinical history

Leading cause of postneonatal mortality (1 month - 1 year)

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Rates of SIDS and SUID

CDC Wonder, 2011

0

20

40

60

80

100

120

Death

s p

er

100,0

00 L

ive B

irth

s

Year

Proportion of Post-neonatal Deaths, US: 1995-2005

ASSB

Ill-defined

SIDS

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Comparison of U.S. Rates of SIDS by

Maternal Race and Ethnic Origin, 1996 and 2006

Pediatrics. 2011;128

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Comparison of U.S. Rates of ASSB Deaths by

Maternal Race and Ethnic Origin, 1996 and 2006

a The figure does not meet standards of reliability or precision on the basis of fewer than 20

deaths in the numerator

Pediatrics. 2011;128

ASSB: accidental strangulation and suffocation in bed

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Comparison of U.S. Rates of Cause Ill-Defined or

Unspecified Death by Maternal Race and Ethnic

Origin, 1996 and 2006

Pediatrics. 2011;128

a The figure does not meet standards of reliability or precision on the basis of fewer than 20

deaths in the numerator

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45 45

Possible Explanations for Racial Disparities in

Sleep-Related Infant Deaths

Biological differences Example: nicotine metabolism

Behavioral differences Sleep position

Bedsharing

Use of soft bedding

Breastfeeding

Smoke exposure

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Prone Sleep Prevalence, by Race and Ethnicity

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

WhiteBlackHispanicAsian

Year

National Infant Sleep Position Survey, 2008

21.9%

38.1%

Perc

en

t

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47 47

Established Risk Factors for Sleep-Related Deaths

Side or prone position (OR 2.3-13.1)

Bedsharing (OR 2.88): risk increases with Smoker parent (OR 2.3-17.7)

Infant <3 months (OR 4.7-10.4), regardless of parental smoking

status

Soft surfaces e.g. couches, armchairs (OR 5.1-66.9)

Soft bedding (OR 2.8-4.1)

Multiple bedsharers (OR 5.4)

Parent consumed alcohol, drugs, or is overtired (OR 1.66)

Soft bedding (OR 5.0; + prone = 21.0)

Smoke exposure (prenatal + postnatal)

Prenatal drug and alcohol use (OR varies, >3.0)

OR: odds ratio

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48 48

Protective Factors for Sleep-Related Deaths

Roomsharing without bedsharing (OR 0.5)

Breastfeeding: ever (OR 0.4), any exclusive (OR 0.27)

Pacifier use (OR 0.39)

Immunizations (OR 0.5)

OR: odds ratio

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Level A AAP Recommendations

for Reducing the Risk of SIDS

Based on good and consistent scientific evidence Back to sleep for every sleep

Use a firm sleep surface

Room-sharing without bed-sharing is recommended

Keep soft objects and loose bedding out of the crib

Pregnant women should receive regular prenatal care

Avoid smoke exposure during pregnancy and after birth

Avoid alcohol and illicit drug use during pregnancy and after birth

Breastfeeding is recommended

Pediatrics. 2011; 128(5)

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Level A AAP Recommendations

for Reducing the Risk of SIDS (continued)

Based on good and consistent scientific evidence Consider offering a pacifier at nap time and bedtime

Avoid overheating

Do not use home cardiorespiratory monitors as a strategy for reducing the risk of SIDS

Expand the national campaign to reduce the risks of SIDS to include a major focus on the safe sleep environment and ways to reduce the risks of all sleep-related infant deaths, including SIDS, suffocation, and other accidental deaths; pediatricians, family physicians, and other primary care providers should actively participate in this campaign

Pediatrics. 2011; 128(5)

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Level B AAP Recommendations

for Reducing the Risk of SIDS

Based on limited or inconsistent scientific evidence Infants should be immunized in accordance with

recommendations of the AAP and Centers for Disease Control

and Prevention

Avoid commercial devices marketed to reduce the risk of SIDS

Supervised, awake tummy time is recommended to facilitate

development and to minimize development of positional

plagiocephaly

Pediatrics. 2011; 128(5)

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Level C AAP Recommendations

for Reducing the Risk of SIDS

Based primarily on consensus and expert opinion Health care professionals, staff in newborn nurseries and NICUs,

and child care providers should endorse the SIDS risk-reduction

recommendations from birth

Media and manufacturers should follow safe-sleep guidelines in

their messaging and advertising

Continue research and surveillance on the risk factors, causes,

and pathophysiological mechanisms of SIDS and other sleep-

related infant deaths, with the ultimate goal of eliminating these

deaths entirely

Pediatrics. 2011; 128(5)

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Relevant National Initiatives

Cribs for Kids

>300 partners nationally

Provide low-cost portable cribs to organizations, who then provide

them free or at cost to parents who cannot afford a crib

ABCs

Alone, on your Back, in a Crib

Baltimore City Health Department and others

Safe to Sleep

NICHD-led public awareness campaign

Expands focus from back sleeping only to ALL of the components of

a safe sleep environment (position, bedding, bedsharing, sleep

surface, etc.)

NICHD: National Institute for Child Health and Development

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Role of Health Professionals

Patient and community education Need to understand what the barriers are (misconceptions,

financial barriers, etc.)

Need to increase parental self-efficacy

Need to explain how recommendations work

Modeling of safe sleep behaviors Doctors and nurses

“Do as I say, not as I do”

Monitoring of media

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Portrayals of Unsafe Sleep Practices

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Toward A National Strategy

on Infant Mortality

Michael C. Lu, MD, MPH

Associate Administrator

Maternal and Child Health Bureau

Health Resources and Services Administration

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And where infant mortality has taken the highest toll in the

US, we’re also partnering with state officials to create

strategies and interventions to begin bringing these rates

down. Our plan is to find out what works and scale up the

best interventions to the national level.

And today I’m pleased to announce my department will be

collaborating in the next year to create our nation’s first

ever national strategy to address infant mortality.

Secretary Kathleen Sebelius Child Survival: Call to Action

June 14, 2012

57

Call to Action

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Major National Initiatives to

Reduce Infant Mortality

58

Lead Organization Initiative

American Congress of Obstetricians and Gynecologists reVITALize Conference

Association of Maternal and Child Health Programs Forging a Comprehensive Initiative to Improve Birth

Outcomes and Reduce Infant Mortality

Association of State and Territorial Health Officials ASTHO Presidential Challenge and Healthy Babies Initiative

Association of Women’s Health, Obstetric and Neonatal Nurses Go for the Full Forty Initiative

Centers for Disease Control and Prevention Preconception Care Workgroup and Select Panel on

Preconception Care

Centers for Medicaid and Medicare Innovation Strong Start Initiative

Centers for Medicaid and Medicare Services CMCS Expert Panel on Improving Maternal and Infant

Outcomes

Health Resources and Services Administration Collaborative Improvement and Innovation Network to

Reduce Infant Mortality

March of Dimes Healthy Babies are Worth the Wait Initiative

National Priorities Partnership- National Quality Forum Maternity Action Team

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Infant Mortality Rate in the US

4.0

4.5

5.0

5.5

6.0

6.5

7.0

7.5

IMR

pe

r 1,0

00 l

ive b

irth

s

Actual IMR Projected IMR based on 2007-2010 average annual trend (-3.1%)

Healthy People 2020 Target

Source: CDC/NCHS Mortality File, 2000-2010

IMR: infant mortality rate

HP: Healthy People

HP 2020

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Secretary’s Advisory Committee

on Infant Mortality (SACIM):

Charge and Purpose

Advises the Secretary on DHHS activities and

programs that are directed at reducing infant

mortality and improving the health status of

pregnant women and infants

Provides guidance and attention on the policies and

resources required to reduce infant mortality

Provides advice on how to coordinate the variety of

federal, state, local and private programs and efforts

that are designed to deal with the health and social

problems impacting on infant mortality

60

DHHS: Department of Health and Human Services

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SACIM Priorities for National Strategy on Infant Mortality

Improve women’s health before pregnancy

Promote quality and safety along the continuum of

perinatal healthcare

Invest in prevention and health promotion

Promote service coordination and systems

integration

Strengthen surveillance and support research

Promote interagency, public-private, and multi-

disciplinary collaboration

61

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Preconception Health and Healthcare

CDC/ATSDR Preconception Care Work Group and

Select Panel on Preconception Care

Office of Minority Health Preconception

Peer Educators

CMS Expert Panel on Interconception Care

Affordable Care Act Clinical preventive services coverage for women outside of

pregnancy, without co-pays (effective August 2012)

Recognition that prenatal care is necessary but not

sufficient for improved pregnancy outcomes

62

CMS: Center for Medicare and Medicaid Services

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SACIM Priorities for National Strategy on Infant Mortality

Improve women’s health before pregnancy

Promote quality and safety along the continuum of

perinatal healthcare

Invest in prevention and health promotion

Promote service coordination and systems

integration

Strengthen surveillance and support research

Promote interagency, public-private, and multi-

disciplinary collaboration

63

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Opportunities for Quality Improvement

Reduce elective delivery < 39 weeks ASTHO/March of Dimes

CMMI

HRSA

National Governors’ Association

National Priorities Partnership

Promote appropriate use of 17 Alpha-

hydroxyprogesterone (17P) to prevent premature

deliveries

Improve screening for asymptomatic bacteriuria and

GBS

Reduce central-line associated bloodstream

infections in newborns

64

GBS: Group B Streptococcus

CMMI: Center for Medicare and Medicaid Innovation

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Ohio Perinatal Quality Collaborative:

Real Decrease in Elective Late Preterm Deliveries

Donovan EF, Lannon C, Bailit J, Rose B, Iams JD, Byczkowski T; Ohio Perinatal Quality Collaborative Writing Committee. A statewide initiative to reduce inappropriate scheduled births at 36(0/7)-38(6/7) weeks' gestation.Am J Obstet Gynecol. 2010 Mar;202(3):243.e1-8.

65

Donovan EF, Lannon C, Bailit J et al. A statewide initiative to reduce inappropriate scheduled births at 36(0/7)-38(6/7)

weeks' gestation. Am J Obstet Gynecol. 2010 Mar;202(3):243.e1-8.

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SACIM Priorities for National Strategy on Infant Mortality

66

Improve women’s health before pregnancy

Promote quality and safety along the continuum of

perinatal healthcare

Invest in prevention and health promotion

Promote service coordination and systems

integration

Strengthen surveillance and support research

Promote interagency, public-private, and multi-

disciplinary collaboration

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Opportunities for Prevention and Promotion

Missed opportunities

Smoking cessation

Safe Sleep

Breastfeeding

Immunization

Family planning

New Workforce

Health educator

Home visiting nurse

Community health worker or doula

New Platform

Group prenatal care

New Technologies

Social media

67

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SACIM Priorities for National Strategy on Infant Mortality

68

Improve women’s health before pregnancy

Promote quality and safety along the continuum of

perinatal healthcare

Invest in prevention and health promotion

Promote service coordination and systems

integration

Strengthen surveillance and support research

Promote interagency, public-private, and multi-

disciplinary collaboration

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Strengthen Systems Integration

Vertical integration Appropriate levels of care

Horizontal integration Service coordination and systems navigation

Longitudinal integration Care continuum across the life course

Examples Perinatal Regionalization; making sure that high-risk babies are

born where they can be best cared for medically

Maternal, Infant, and Early Childhood Home Visiting Program

Maternity Medical Home, Birthing Centers

Navigator, community accountable care systems

69

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SACIM Priorities for National Strategy on Infant Mortality

Improve women’s health before pregnancy

Promote quality and safety along the continuum of

perinatal healthcare

Invest in prevention and health promotion

Promote service coordination and systems

integration

Strengthen surveillance and support research

Promote interagency, public-private, and multi-

disciplinary collaboration

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Surveillance and Research

Strengthen surveillance Standardize vital records

Improve data linkage capacity

Promote quality improvement using real-time data

Support translational disparities research T1 to T2 (basic science to clinic)

T2 to T3 (clinic to community)

T3 to T4 (community to policy)

71

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SACIM Priorities for National Strategy on Infant Mortality

Improve women’s health before pregnancy

Promote quality and safety along the continuum of

perinatal healthcare

Invest in prevention and health promotion

Promote service coordination and systems

integration

Strengthen surveillance and support research

Promote interagency, public-private, and multi-

disciplinary collaboration

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Collaborative Improvement and Innovation

Network (COIN) to Reduce Infant Mortality

Partnership established among HRSA, ASTHO,

AMCHP, CDC, CityMatCH, CMS, March of Dimes,

NGA, NPP, and the states

Began in the 13 southern states in January 2012

States developed their own state plans to

reduce infant mortality

Gloor, PA. Swarm Creativity: Competitive Advantage through Collaborative Innovation Networks, 2006

73

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COIN: Strategies and Structure

5 Strategy Teams

Reducing elective deliveries <39

weeks

Expanding interconception care

in Medicaid

Reducing SIDS/SUID

Increasing smoking cessation

among pregnant women

Enhancing perinatal

regionalization

Teams 2 - 3 Leads (Content Experts)

Method experts

Data experts

Shared workspace

Data dashboard

74

COIN: Collaborative Improvement and Innovation Network

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Regions IV and VI Infant Mortality COIN Aims

By December 2013:

Reduce elective delivery < 39 weeks by 33%

Reduce smoking rate among pregnant women by 3%

Increase safe sleep practices by 5%

Increase mothers delivering at appropriate facilities by 20%

Change Medicaid policy and procedures around interconception care

in at least 5 - 8 states

75

COIN: Collaborative Improvement and Innovation Network

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Health Equity

Overarching goal of the national strategy

Need aspirational goal for the infant mortality gap

Life-Course Perspective as a Guiding Framework

Place-based initiatives working across multiple sectors

Policy changes (e.g. inclusion of anti-poverty programs such as

TANF reauthorization as part of the national strategy to address

infant mortality)

76

TANF: Temporary Assistance to Needy Families

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Health

Development Educational

Development

Community

Development

Economic

Development

Closing

the

Gap

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Infant Mortality in the US: Where We Stand Wanda Barfield, MD, MPH, FAAP, Captain, U.S. Public Health Service,

Director, Division of Reproductive Health,

Centers for Disease Control and Prevention

PRAMS: Using Data to Reduce Infant Deaths Denise D’Angelo, MPH, Health Scientist, Division of Reproductive Health,

Applied Sciences Branch, PRAMS Team

Centers for Disease Control and Prevention

Preventing Sudden and Unexpected Infant Death: From

“Back to Sleep” to “Safe to Sleep” Rachel Moon, MD, FAAP, American Academy of Pediatrics

Toward a National Strategy on Infant Mortality Michael C. Lu, MD, MS, MPH, Associate Administrator,

Maternal and Child Health, Health Resources and Services Administration

Public Health Approaches to Reducing U.S. Infant Mortality