home alone alliance overview - aarp

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To learn more, email: [email protected] Offers Guidance and Tools For family caregivers We create how-to videos and resource guides in multiple languages. Visit aarp.org/nolongeralone. For health care professionals We increase knowledge about how to better engage and instruct family caregivers. The care they provide can be time-consuming, intense and complex They are stressed and worried about making a mistake AARP Public Policy Institute convened the Home Alone Alliance SM (HAA) to drive change among health care professionals, delivery systems, policy makers and the public at large. 20 million family caregivers perform complex medical/nursing tasks—with very little guidance. * Caring for wounds and ostomies to enhance healing and prevent infection Inserting catheters to manage incontinence Operating specialized medical equipment Managing prolonged or intense pain Administering and managing medications, including pills, eye drops, suppositories, and injections Assisting with mobility challenges Preparing special diets with strict requirements and new foods They oſten teach other family members how to perform medical/nursing tasks They cope with changing roles, responsibilities, and dynamics within the family

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To learn more, email: [email protected]

Offers Guidance and Tools

For family caregivers We create how-to videos and resource guides in multiple languages. Visitaarp.org/nolongeralone.

For health care professionals We increase knowledge about how to better engage and instruct family caregivers.

▸ The care they provide can be time-consuming, intense and complex

▸ They are stressed and worried about making a mistake

AARP Public Policy Institute convened the Home Alone AllianceSM (HAA) to drive change among health care professionals, delivery systems, policy makers and the public at large.

20 million family caregivers perform complex medical/nursing tasks—with very little guidance.*

▴ Caring for wounds and ostomies to enhance healing and prevent infection ▴ Inserting catheters to manage incontinence ▴ Operating specialized medical equipment ▴ Managing prolonged or intense pain

▴ Administering and managing medications, including pills, eye drops, suppositories, and injections ▴ Assisting with mobility challenges ▴ Preparing special diets with strict requirements and new foods

▸ They often teach other family members how to perform medical/nursing tasks

▸ They cope with changing roles, responsibilities, and dynamics within the family

RESEARCH AND ANALYSIS

CONVENINGSOUTREACH

RESOURCE DEVELOPMENT

© AARP PUBLIC POLICY INSTITUTE601 E Street, NW

Washington DC 20049

Follow us on Twitter @AARPpolicy On facebook.com/AARPpolicy www.aarp.org/nolongeralone

*Susan C. Reinhard et al., Home Alone Revisited: Family Caregivers Providing Complex Care (Washington, DC): Home Alone Alliance, 2019, https://aarp.org/homealone.

FOUNDERS AARP Betty Irene Moore School of Nursing, University of California Davis

United Hospital Fund Family Caregiver Alliance

FUNDERSThe John A. Hartford Foundation Ralph C. Wilson, Jr. Foundation

CENTENE Charitable Foundation Retirement Research Foundation

MEMBERSAfrican American Alzheimer’s and Wellness Association American Journal of Nursing

Atlas of Caregiving Center to Advance Palliative Care Coalition to Transform Advanced CareElevatingHOME/Visiting Nurses Association of America EMD Serono, Inc.

Hartford Institute for Geriatric Nursing Home Instead Senior Care, Inc.The Lindsay Institute on Caregiving/Virginia Navigator National Alliance for Caregiving

New York University Rory Meyers College of Nursing Nurses Improving Care for Healthsystem Elders (NICHE) Rosalyn Carter Institute for Caregiving US Department of Veterans Affairs

Members