edmonton and area fetal alcohol network society...network!vision!!...

Business Plan 2014 -‐ 2015

Business

Plan Edmonton and area Fetal Alcohol Network Society

Table of Content

Network Information 3 Network Vision 4 Service Delivery Priorities and Strategies 9 Environmental Scan 11 Community Needs Assessment 12 SWOT Analysis 15 Service Delivery Strategies 17 Network Operational Strategies 28 Priorities for Additional Funding 30 Fund Breakdown 30


Network Information

Edmonton and area Fetal Alcohol Network Society Network Co-‐Chairs:

Denise Plesuk [email protected] Tammy Woroschuk [email protected]

Network Leadership Team:

Denise Plesuk Tammy Woroschuk Lisa Rogozinsky Ashley Baxter Fayanne Perry Jean Anderson Toni Sinclair Kathy McKinnon Kelsey Bradburn Laurel Fitzsimonds Laurie Escott Lisa Watters Lori Reiter Miranda Zetsen Rory LaRocque-‐Walker Sandra Kirkoff Paul Pringle

Fiscal Year (Upcoming)

April 1, 2014 – March 31, 2015

Business Plan Submission Date:

October 31, 2013

Network Vision

The Edmonton and area Fetal Alcohol Network Society (EFAN) exists to enhance the capacity of our community to prevent Fetal Alcohol Spectrum Disorders (FASDs) and support those impacted by an FASD through coordinated planning, collaboration, education, service delivery and advocacy. The strategic direction and goals over the coming fiscal year and subsequent years are influenced by the Network’s core operating values, which we hold ourselves accountable for and guided by.

In alignment with and support to the Government of Alberta’s FASD 10-‐Year Strategic Plan, FASD Service Network Program Guidelines and Outcomes Based Management Plan, the Network has developed a strategic and operational blueprint of projects and activities for the upcoming and future years that fit within each of the FASD Strategic Pillars and work towards achieving through measurable outcomes the FASD Goals of the Alberta Government, the Network and community. The FASD Strategic Pillars prioritized within this ground plan include: 1. Awareness 2. Prevention 3. Assessment and Diagnosis 4. Support for Individuals and Caregivers 5. Learning Organization The infrastructure of the Network continues to develop and promote collective considerations and organizational learnings that allow for continuous monitoring and assessment, the Network to make informed decisions, take appropriate action with respect to programming and operations and provide effective and relevant reporting to the Network Stakeholders. The Network continues to endorse through specific funding measures current FASD program initiatives. Fundamental to the success of the Network and Service Network agenda is the continued capacity building around services available to those individuals impacted by an FASD. This important component requires advocating for existing and new funding to grow the FASD programs in size and type in order to better provide a well-‐rounded approach. The Network provides model, life long, culturally sensitive, seamless service delivery and supports either directly through fund allocations and partnerships and/or indirectly through referrals to other service providers. Changing community needs and capacity are identified bi-‐annually via strategic documents (SWOT Analysis, Environmental Scan, and Community Needs Assessment), thus evaluating the effectiveness and outcomes of the service programs and highlighting any needed shifts in service delivery. New and existing programs are evaluated through the Network Contract Manager bi-‐annually to ensure that they are compliant with their Service Level Agreements and that their activities and deliverables continue to meet the needs of the community, those impacted by FASD, the Alberta FASD Service Network Program and the Network. The Network has prioritized the following FASD Goals:

The Network operates according to the following values: COLLABORATION: The Network provides a forum for agencies and members to work together in an intersection of

common objectives as defined by the membership. The collaborative relationships between Network members allow for the accomplishment of the goals, objectives and mission stated in the Terms of Reference.

RESPONSIVENESS: The Network membership, inspired by the unique needs within the community, aims to provide

lifelong, strength-‐based supports and services to individuals and families impacted by FASD. DIVERSITY: The Network promotes culturally sensitive services. ACCOUNTABILITY: The Network operates with a maximum level of responsibility and transparency for its actions,

decisions, and policies that include administration, governance and the implementation of service delivery.


1. Albertans who may be affected by an FASD have access to timely and affordable assessment and diagnostic

services.

The Network has and will continue to increase the capacity of FASD Clinics to provide affordable and timely access to multidisciplinary diagnoses and assessments across the lifespan to individuals suspected of having a Fetal Alcohol Spectrum Disorder. With direction and assistance through the clinic process, implementation of clinic recommendations and in partnership with Network member agencies, individuals and their families will have an understanding of how FASD impacts them and the services available in the catchment area.

2. Individuals suspected or with a Fetal Alcohol Spectrum Disorder and their families have coordinated access to supports and services based on their needs. The Network will provide a variety of support services that include but are not limited to mentorship, support groups, advocacy, crisis management, respite, education and resources to individuals and families impacted by an FASD based upon each varied disability and need. Organized access through Network member agencies to services that meet the needs of the community serve to reduce the impact and presence of secondary disabilities associated with an FASD, increase client and family knowledge and understanding of the disorder and ensure lifelong seamless service provision.

3. Alcohol use during pregnancy is eliminated, preventing the profound personal and societal cost of an FASD.

The Network will be actively participating in Level 2 Prevention strategies with its work through the FASD Prevention Conversation: A Shared Responsibility. With the efforts of the Prevention Conversation Facilitator, health and social service workers will be provided the tools to screen and intervene for alcohol use in pregnancy appropriately and effectively. Resource and knowledge dissemination will ensure that women of child-‐bearing age, their partners and community are aware of the effects of drinking alcohol during pregnancy and the community resources available for those who may be concerned about alcohol consumption during pregnancy.

The Network will sustain Level 3 and 4 Prevention efforts through funding Parent-‐Child Assistance Programs within the catchment area. Culturally sensitive support services for women with alcohol problems and related issues and care for women to develop or maintain healthy changes pre and post pregnancies will support women to have alcohol free pregnancies thus reducing the births of children at risk of having a Fetal Alcohol Spectrum Disorder.

4. The community understands that alcohol use during pregnancy can cause a Fetal Alcohol Spectrum Disorder, which can be prevented through abstinence and has an understanding of Fetal Alcohol Spectrum Disorders and the associated issues. Through social media enhancements, website design, resource development, public awareness initiatives and marketing the Network will increase the understanding, knowledge and capacity of agencies, caregivers and individuals to support persons suspected or with a Fetal Alcohol Spectrum Disorder while systematically promoting attitudes of acceptance and understanding. The Network through active participation with the ‘FASD, The Prevention Conversation, A Shared Responsibility’, will increase the knowledge and capacity of service providers to support women and their families to make healthy choices in their pregnancies while methodically increasing community awareness of the effects of alcohol consumption during pregnancy.

5. Stakeholders collaborate to develop and mobilize knowledge based on research and best practice to continuously transform Alberta’s FASD system to achieve outcomes and goals.

Sustaining the FASD Service Network Program remains a critical issue for the Network. Maintaining and enhancing the initiative and Society over time requires a combination of non-‐financial resources from the initiative and broader community. Required internal resources include leadership from the Network, access to technical expertise and the existence of strong administrative and financial management systems. Building strong internal structures such as fiscal management, bylaws, and governance processes to ensure the Network demonstrates soundness to the FASD Service Network Program and the community requires personnel such as a Network Coordinator, Contract Manager and Banker. A strong infrastructure within the Network and community has allowed the Network to learn from past and present experiences and adapt to the ever changing circumstances and environment.

To build upon the existing capacity of the Network to address identified gaps and needs within the community it is essential to expand the visibility of the Network within the broader scope of non-‐profit and human services agencies with the intention of recruiting new and diverse talent. The engagement of new membership at both the sub-‐committee and larger Network levels benefits the Network as a whole by developing and strengthening new and existing partnerships and collaborations. A natural outgrowth of the work is the building and supporting of a myriad of different leaders and experts with diverse demographic backgrounds within the field of FASD. Membership of the Network determines the shared goals and priorities and implementation strategies to achieve them while the strategic focus also determines the partners. This interrelationship continues to assemble effective and cooperative associations.

Over the upcoming and next several years’ future development of the Network includes:

Timeline Plan January 2014 2015 2016

Strategic Planning Session: -‐ Identify future members. -‐ Determine prioritized goals and

outcomes of the Network, action plans and methods to access outcomes.

-‐ Determine funding priority areas for the succeeding years funding proposal.

-‐ Review and determine the activities required to produce the Service Network Program deliverables, including content and timing of the activities.

-‐ Review ‘Policies and Procedures’, ‘Terms of Reference’, ‘Bylaws’ and any other Network documents and adjust as needed.

-‐ Reflect of the Networks past year recognizing strengths and weaknesses.

-‐ Review and evaluate progress mid-‐year.

February 2014 2015 2016

Sub-‐Committee Strategic Planning Session: -‐ Determine prioritized community based

goals for each of the Sub-‐Committees, action plans to achieve the goals and methods to access outcomes.

-‐ Review and evaluate progress mid-‐year.

January/August 2014 2015 2016

SWOT Analysis, Needs Assessment, Partnership Survey:

-‐ The Network will complete an analysis of its strengths, weaknesses, opportunities and threats experienced during the past year.

-‐ The Network will perform a needs assessment on services currently being offered and identify service related gaps within the region.

-‐ The Network will conduct the Partnership Survey with the membership in order to learn about the strengths and weaknesses within the Network and identify the steps that can be taken in order to improve the collaboration process.

September

2014 2015

Information Management: -‐ The Network will utilize and review its

process for information management in


2016 both data collection, monitoring services and information dissemination. Reporting mechanisms, report content, and information flows will be examined to ensure the communication of program requirements.

-‐ Review and revise Network communication plan as required.

-‐ Develop and maintain a Network file management system through standardizing changes to improve and modernize current file management systems.

April 2014 2015 2016

Services, Supports, Operations: -‐ Fund previously contracted FASD

programs that have fulfilled service level outcomes specified within their Service Level Agreements.

-‐ Review and revise funding priorities on an annual basis to be used when additional sources of funding are received.

-‐ Review Network strategic documents and adjust funding based on community needs and requirements.

-‐ Complete bi-‐annually the Service Quality and Compliance Review on each funded program to ensure direct service deliverables are met.

-‐ Complete yearly the Service Quality Review on Network operational positions (Network Banker and Network Contract Manager) to ensure operational directives are met.

-‐ Develop and maintain a succession-‐planning program to prepare the Network for the future through the development of members for key leadership positions when a vacancy occurs.

June 2014 2015 2016

Annual General Meeting -‐ Receive and consider minutes of the

preceding General Meetings. -‐ Receive and consider the audited

financial statement signed by the Network accounting administrator of the preceding fiscal year.

-‐ Receive and consider reports of the Board and of any committee of the Board.

-‐ Elect Officers to the Executive Board. -‐ Transact other business under the

Edmonton and area Fetal Alcohol Network Society Bylaws and Societies Act.

-‐ Make return to the Registrar containing: Society address, full name/addresses/occupation of each officer and director of the Society and audited financial report.

Monthly 2014 2015 2016

General Meetings

In order to safeguard the work of the Network and ensure continued momentum and commitment from the Network membership, monthly General Meetings, the first Tuesday of each month are scheduled. The Standing Monthly Network Agenda includes:

Call to order, roll call

Approval of last meeting minutes

FASD-‐CMC Update

FASD-‐CMC Councils Update

Supports and Services Update

Financial Update

Membership Review

Agency/External Committee Update

Sub-‐Committee Break-‐out Session

Sub-‐Committee Updates

Monthly 2014 2015 2016

Supports and Services Meetings:

All Network funded service providers are required to attend the monthly Supports and Services Team Meetings, the first Tuesday of each month. The meetings serve to assure that the supports and services provided meet the Service Level Agreements of each agency but more importantly provide opportunities to support, encourage and collaborate with one another. The Standing Agenda includes:

Call to order, roll call

Approval of last meeting minutes

FASD-‐CMC Update

Network Operation Review

Reporting Review

Financial Update

Funded Services Update


Service Delivery Priorities and Strategies

Business Priority Rationale

The Network will provide timely and coordinated supports and services based on an integrated lifespan approach which will result in:

• Individuals suspected or with an FASD experience improvement in their wellbeing.

• Caregivers of individuals with an FASD experience improvement in their wellbeing.

• Individuals and caregivers receiving support report satisfaction with the services received.

1. Girls Empowered and Strong (Elizabeth Fry Society) 2. McDaniel Youth Program (Catholic Social Services) 3. Fetal Alcohol Spectrum of Services (Bissell Centre) 4. Open Arms (Bosco Homes) 5. FASD Resource Worker (Metis Nation of Alberta) 6. Bridges Program (Leduc County) 7. FASD Respite Program (Kids Kottage/Elves) 8. FAS TRACS (CASA) 11. 3% Wage Enhancement

Families have historically been the central source of emotional, financial and social support for at-‐risk children, youth and adults. The rapidly changing role of families combined with external factors such as time constraints and financial pressures have often resulted in severed community and family ties for those impacted by an FASD, as highlighted within the Network Environmental Scan. Due to this trend the Network has prioritized mentorship programs as a means to reconnect those impacted by an FASD with their communities and families while supporting the accomplishment of self-‐determined goals through hands on assistance. The process of mentorship as defined by a sustained, close developmental relationship between a mentor who is more experienced and mentee promotes a strength based approach that supports the mentee to concentrate on positive aspects of their life rather than negative influences. Through continued strategic planning the Network has identified mentorship programs as an essential service required for all individuals impacted by an FASD throughout their lifespan. The necessity of culturally sensitive FASD mentorship services, within the rural catchment area and Edmonton urban center has been highlighted within the Network Needs Assessment. Current programs continue to struggle with the demand for mentorship services as indicated by program specific wait-‐lists and referrals. The Network Needs Assessment continues to identify a shortage of services for families that address the various needs of children impacted by an FASD. Due to the complex developmental/behavioral conditions associated with children impacted by an FASD families often experience elevated levels of stress and parental burnout. In order to maintain and enhance the stability of the family unit there is a primary need to provide an ongoing network of supports, education and resources. This support results in a better understanding of the child’s functioning, strategies for behaviours and adapting home and school environments while simultaneously connecting with parents to other families living through similar experiences.

Prevention initiatives are developed and delivered using a collaborative and cooperative approach that result in the following system and client outcomes:

• PCAP program are available across Alberta and meet the community needs.

The Network Needs Assessment identifies the continued need for culturally sensitive targeted and indicated prevention services within the catchment area. Current P-‐CAP model programs are able to meet the demand from the community for intensive supports that address the needs and

• Participants know that FASD is caused by alcohol use during pregnancy.

• Participants develop the intention to eliminate alcohol use during current and future pregnancies.

• Secondary disabilities experienced by individuals with an FASD are reduced.

• Subsequent births of children with prenatal exposure to alcohol by women who have used substances while pregnant are reduced.

• Program participants experience improvement in their wellbeing.

• Children of program participants experience improvement in their wellbeing.

Program participants report satisfaction with the program and complete the three-‐year term.

9. First Steps (Catholic Social Services)

issues facing women who are pregnant (or up to six months post partum) and who are using drugs and alcohol.

Albertans have access to timely and affordable multidisciplinary assessment and diagnostic services across the lifespan that result in clients and/or caregivers having an increased understanding of how FASD affects them, the supports and services available to them in the community and are referred to post assessment supports that meet their needs.

10. FASD Clinical Services (Glenrose Rehabilitation

Hospital)

There continues to be very few centers and teams providing multi-‐disciplinary FASD assessments for children. Current clinical services for individuals under the age of 18 are unable to accommodate the increasing wait-‐list demands (currently 112 children are on the wait-‐list) and are inadequate for smaller municipalities and rural areas as the services are located in the urban center of Edmonton. The Network will continue to fund additional assessment services through the Glenrose Pediatrics FASD Clinic and strengthen collaborations/partnerships with clinic staff to assist and ease the diagnostic process where possible.

The Network will plan FASD programs and services based on a collaborative approach with mechanisms in place to facilitate stakeholder engagement and information sharing. Access to training, resources and evaluation results will inform Network activities, supports and services and strategic planning. 12. Network Coordinator (Catholic Social Services)

Network Contract Manager (Contract position) Network Banker (Bissell Centre)

In response to understanding what the community and Network members most value about the Edmonton and area Fetal Alcohol Network Society and current opportunities and challenges for offering a high quality system of supports and services, the essential role of organizational support positions have been highlighted. To ensure compliance with the FASD Service Network Program Guidelines the Network will continue to employ a Network Coordinator, Network Contract Manager and Network Banker. Collectively these positions will ensure community needs are assessed, supports and services are deepened and expanded, visibility and leadership of and within the Network continues to grow and fiscal responsibility.


Environmental SCAN (August 2013)

The following is a brief baseline summary of the economic, provincial, cultural, demographic and technological factors that influence the functioning of the Edmonton and area Fetal Alcohol Network Society.

INFLUENCE FACTORS

Economic Influences - Economic downturn. - Unemployment doubled between beginning of 2008 – 2009 (3.5% -‐ 7.3%) - Reduced job opportunities but increase in population growth continues. - Agencies experiencing difficulty retaining staff due to lack of funding for

salary increases and less competitive compensation. - Rising income inequality. - Money for hiring but lack of qualified applicants. - Increased competition between agencies to hire qualified staff.

Provincial Influences - Lack of sustainable, multiyear funding agreements with the province.

- Developing social policy. - Lack of increase in provincial grants funds. - Increased complexity in contractual obligations with the province (Service

Network Program).

Cultural Influences - Edmonton urban centre experiencing an increase in cultural diversity. - Edmonton attracts a larger share of newcomers relative to other

metropolitan centers. - More than 60 ethnic and cultural groups represented in population. - Distribution of population by ethnicity: European (31%), British Isles

(28%), North American (11%), East/Southeast Asian (10%). - Aboriginal people account for 5.6% of the population in the City of

Edmonton, representing a 25.7% population increase from the previous census cycle.

- Edmonton has the second largest number of Aboriginal people of major cities, after Winnipeg.

- Over half of Edmonton’s Aboriginal population identified as Métis. - Aboriginal population is younger than non-‐Aboriginal population (median

age of 25 years versus 37 years). - Aboriginal youth are less likely to attend school than non-‐Aboriginal

youth, 51% attendance versus 61%. - Aboriginal men and women are less likely to complete post-‐secondary

education than non-‐Aboriginal men and women. - In Edmonton, 32% of Aboriginal people live below the Low Income Cut-‐Off

rate. - Higher representation of Aboriginal families with Child and Youth Services

involvement. - Low knowledge of ethnic groups and their relationship with FASD.

Demographic Influences - Rapid population expansion and urban development.

- Population growth strongly favored new neighborhoods and suburbs. - 94% of catchment area population lives in the urban areas of Edmonton,

Sherwood Park and St Albert. - 18% increase of homeless within Edmonton since 2006. - 69% homeless males, 23% female - 87% increase in absolute homeless families in Edmonton since 2006. - Increase seen in homeless youth. - Decrease in availability of affordable housing and supportive housing in

both urban and rural communities. - Increase in greater metropolitan catchment area population. - Approximately 27.8% of all children live in families with incomes below

the Low Income Cut-‐Off (LICO) rates. - Females head 79.9% of lone parent families. - 63.3% of children in lone parent families and family incomes below the

LICO rate.

- Income disparity between non-‐Aboriginal and Aboriginal populations. - Increase demand for urban services creates difficulty for expansion within

rural areas. - Intergenerational baby boomer are retiring; Gen X and Gen Y moving in

and up.

Technological Influences - Increased use of Internet and social marketing technologies. - Increased technology investments. - Increase training opportunities for all staffs required. - Costs of technology assets are prohibitive. - Decrease in personal communications. - Need to balance face-‐to-‐face and electronic communications.

Community Needs Assessment (August 2013) The Community Needs Assessment contains information on the current supports and services available in the catchment area and gaps within services as identified through the Network strategic planning, monthly General Meetings and informal consultations. TARGETED AND INDICATED SERVICES

6 – 18 Years 18 + Years Catholic Social Services: First Steps Program

- Offers mentorship to women who are pregnant or who have recently given birth and have used drugs or alcohol during the pregnancy

Bissell Centre: Fetal Alcohol Spectrum of Services

- Parent-‐Child Advocates provide one to one, long-‐term support to pregnant women (16+years) and women who have recently given birth and who have struggled with alcohol and drug use.

Alberta Health Services: Enhanced Services For Women

- Provides an enhanced level of addictions services to women with substance use problems who are pregnant or may become pregnant. There are outreach capabilities.

Service Related Gaps:

- Lack of specialized addiction treatment options for the target population. - Financial barriers to transportation, housing and addiction treatment. - Lack of mental health services for target population. - Lack of support for partners of target population. - Lack of funding for adequate supervision for new staff as well as new programs.


ASSESSMENT AND DIAGNOSIS SERVICES

0 – 18 Years 18 + Years Glenrose FASD Clinical Services

- Multidisciplinary assessment and diagnosis for children and families affected by prenatal exposure to alcohol (7 to 17 years and 11 months of age).

- The team links with community partners who provide intervention and support services.

Centerpoint Young Offender Program - Assessment services for youth ages 12 – 17, who have

come into conflict with the law and are mandated for, or are thought to require assessment/treatment for mental health or behavior problems (Edmonton).

Glenrose Adult FASD Clinical Services (Pilot Project)

- Multidisciplinary assessment and diagnosis for adults affected by prenatal exposure to alcohol.

- The team works in collaboration with formal and informal support systems to come up with a management plan.

- The Team works with the individual to put a mentor in place if there isn’t already a relationship.

Service Related Gaps: - Lack of long term funding for Adult Clinic. - Lack of court ordered FASD specific assessments. - Long wait periods to acquire records. - Records being destroyed creating problems with getting a proper assessment. - Current services cannot meet the demand (large wait-‐lists). - Services are located mostly in Edmonton, inadequate services for smaller municipalities and rural communities. - Children under the age of 7 are not currently assessed. - Lack of re-‐assessment services: No capacity to reassess teens that are seen as young children. - Highly suspected individuals without alcohol consumption confirmation lose services.

SUPPORTS FOR INDIVIDUALS AND CAREGIVERS

0 – 18 Years 18 + Years

Elizabeth Fry Society: Girls Empowered and Strong - Provides support and mentorship to girls 13 – 17

affected by FASD through support groups. - Focus sessions include: life skills training, sexual

education and self esteem building.

Catholic Social Services: McDaniel Youth Program - Provides support and mentorship to youth ages

14 – 19 affected by an FASD through the development of personalized goals and increased access to groups, recreational activities and other life skills programs.

- Provides support to youth who are currently involved with the youth correctional system.

Catholic Social Services: McDaniel Youth Solicitor General Program

- Provides support and mentorship to youth ages 14 – 19 affected (or suspected to be) by an FASD through the development of personalized goals and increased access to groups, recreational activities and other life skills programs.

- Provides support to youth who are currently

Bissell Centre: Fetal Alcohol Spectrum of Services - Community Advocates provide one to one, long-‐

term support to men/woman who have or are strongly suspected of having an FASD or to partners of PCAP program participants.

- FASD Educators provide FASD training, information and resources to the community, clients and service agencies.

Catholic Social Services: Coaching Families

- Provides intensive supports for 6 – 18 months to families with children affected by an FASD.

- The program will help caregivers access diagnostic services and provide appropriate tools and strategies for adjustment in living with children who have an FASD, advocate with educational, recreational, and social institutions in the community, and make referrals to counseling services and parenting supports.

Catholic Social Services: Step-‐By-‐Step

- Provides long-‐term supports through coaching and mentorship to parents who have been

involved with the youth correctional system. - Provides supports to youth who are currently

incarcerated. Wellness, Resiliency and Partnership (WRaP) Projects

- Provides support to junior and senior high students with an FASD in fourteen school sites.

- On-‐site coaches provide services to students, families and school staff.

Support Project for Youth Fetal Alcohol Spectrum Disorder – Youth Justice Community Collaboration

- Conference – based project, which strives to: - Develop achievable plans for youth with an FASD

and their families. - Identify gaps in service and advocate for

additional resources. - Identify supports needed. - Collaborate with relevant service providers to

identify appropriate resources that may allow the youth to function more appropriately in custody and/or in the community.

- Document case plans.

diagnosed with an FASD and are parenting children, who may or may not have an FASD.

Catholic Social Services: Provisional Psychologist

- Provides additional mental health supports to the clients and staff within the FASD programs. This psychologist will assist in the administration, scoring and interpretation of assessment tools while also providing counseling to clients within the FASD programs.

- Psychologist will consult with staff in regards to working with clients.

Bosco Homes: Open Arms

- ‘A Women’s Path’ advocates provide culturally sensitive interventions and supports to women with FASD who may or may not be parenting children, who may or may not have an FASD.

- ‘A Men’s Journey’ advocates provide culturally sensitive mentorship support to males 18 + affected by an FASD.

- Adult Clinic Advocates provide mentorships supports to adults currently accessing the Adult FASD Clinic at the Glenrose Rehabilitation Hospital who currently do not have advocate support.

Leduc County: Bridges Program

- Provides long-‐term support to women and men residing in Leduc County affected by FASD through coaching, mentorship and advocacy.

Elves Special Needs Society and Kids Kottage Foundation: FASD Respite Program

- Site based respite for families with children affected by FASD between the ages 3 and 8 years of age during the school year in combination to a parent support group.

Métis Nation of Alberta

- Resource worker provides support services to Métis youth and adults with FASD and their families by utilizing culturally sensitive supports in order to enhance quality of life and productivity.

CASA: FAS TRACS

- Provides specialized mental health services for children and families affected by an FASD. The service includes treatment, resources, and community supports.

- Provides schools consultations as well as in home consultations to parents with children who have FASD and a mental health disorder.

- The program aims to increase caregiver knowledge and ability to integrate sensory processing with behavior management strategies.

Service Related Gaps:

- Current services cannot meet the demand for service. - Supports and services for caregivers of adults affected by FASD. - Services for adult males and females impacted by FASD cannot meet community demand. - Education for employers and employment services for individuals affected by FASD. - Specific supports for Aboriginal and rural populations. - FASD ‘friendly’ therapists, lack of mental health support for adults impacted by FASD. - Support for Grandparents raising children affected by FASD.


- Lack of youth programs that serve outside of the city of Edmonton. - Lack of transitional and/or supported housing. - Lack of Métis specific educational information. - Lack of services for 17 year olds who are in between adult and youth services. - Lack of Kinship supports. - Lack of respite services for older children. - Lack of support for individuals impacted by FASD who currently are not experiencing secondary disabilities.

SWOT: Strengths, Weaknesses, Opportunities and Threats Analysis

(August 2013)

The following is a brief summary of the internal characteristics, qualities and capacities of the Network that are executed well, also noting those that require improvement and external activities and trends that provide enhanced opportunities to the Network and those factors that threaten the success of operations.

STRENGTHS: • Annual evaluation and updating of the governance model and Policies and Procedures that reflect the flexibility,

adaptability and needs of the Network. • Experienced, resourceful and dedicated Network members. • Commitment to the conceptual long-‐term perspective for the Network versus individual gain. • Ownership of the Network belongs to the members. • Effective and productive collaborations and partnerships between Network members. • Ability to make collective, community based funding decisions. • Network provides a forum for coordinating information and services. • Capacity and depth of experienced FASD service provision to respond to new opportunities and community needs. • Ability of Network agencies to provide high quality, necessary services that meet the needs within the community. • Linkages between service provision and theory. • Increased cultural relevance within service provision. • Open communication pathways within and between the Network, stakeholders and the community. • Clear roles and responsibilities for operational positions within the Network. • Clear organizational structure for coordinating within the Network and Sub-‐Committees. • Clear succession plan for Network and Working Group Co-‐chairs. • Consistent administrative and clerical support. • Ability to balance FASD Service Network Program goals with the Network’s mission and goals. • Community level planning. • Ability to utilize technology innovation and adapt to technological changes. • Information sharing capacity. • Responsiveness to diverse population needs. • FASD within the Provincial agenda.

WEAKNESSES:

• Insufficient aboriginal, visible minority, and multi-‐cultural agencies within the Network. • Inability to expand existing services and develop new services due to lack of funding increases. • Many services are unavailable in rural communities. • Improved coordination of public education and awareness activities required. • Long program wait-‐lists. • Lack of long-‐range, sustainable funding agreements to provide multi year service delivery approach. • Require a comprehensive approach to technology management but not all agencies support enhancement to

current technologies. • Lack of services in rural areas.

OPPORTUNITIES:

• New partnerships/approaches. • Evaluate planning, programs and policies. • Well positioned to take advantage of growth to coordinate and plan. • Recently received Incorporated Society Status as the Edmonton and area Fetal Alcohol Network Society. • Advanced information technology available to foster more effective information transfer and human resource

activities. • Availability of information about best practices and leadership training.

• Joint staff training and development. • Public education. • Provincial wide planning. • Increased visibility of the Network within the community. • Leadership training. • Recruiting to fill gaps in EFAN membership.

THREATS:

• Weak provincial economy that limits potential for service growth. • Increasing cost in providing supports and services. • No budget increases. • Restrictive funding directives. • Inconsistent FASD-‐CMC reporting requirements. • Delayed fund release timelines. • Agency capacity to deal with change e.g. provincial agenda, Network and community expectations and FASD

Service Network Program Guidelines. • Lack of long range planning ability. • Questionable sustainability past the 10 year plan. • Inconsistencies between funders within the same program.


Service Delivery Strategies

Strategy #1: Elizabeth Fry Society, Girls Empowered and Strong Program (1.0 FTE)

A/D Supports X PCAP Network Op

Year 1 Year 2 Year 3

System and Client Outcomes: Business Priority


• Individuals suspected or with an FASD experience improvement in their wellbeing. • Caregivers of individuals with an FASD experience improvement in their wellbeing. • Individuals and caregivers receiving support report satisfaction with the services

received. FASD Goal: Rationale

Albertans with an FASD and their caregivers receive coordinated access to the supports and services they need, when they need it.

Strategy Description

The Girls Empowered and Strong program is a support for teenage girls impacted by an FASD who want to address the many issues facing them and become empowered to make strong and positive choices for their futures. The goal of this program is to provide teen girls, ages 13 to 17, with the skills and knowledge they need in order to make healthy life choices, thereby preventing future involvement in the criminal legal system. The program will address the realities that teen girls face in their daily lives.

Workshops are available that address topics such as healthy relationships, addictions, peer pressure, healthy sexuality, bullying, dating violence, shoplifting, and other important issues. Each session includes creative activities to aid teen girls to understand the emotions they are facing as they journey into adulthood.

Related Pillar Supports for Individuals and Caregivers

Key Activities

• Provide weekly support group workshops to program participants in a school based setting.

• Provide an after-‐school drop in program once a week. • Provide one-‐to-‐one mentorship support to program participants. • Provide referrals to community agencies and resources. • Collect data according to requirements of ORS, FASD Service Network Program

and the Network. • Actively participate on the Edmonton and area Fetal Alcohol Network Society and

Supports and Services Team. Responsible Parties

The Elizabeth Fry Society of Edmonton is contracted to provide the support services in partnership with the Network.

Status Enhancement Sustaining a program that existed prior to Network funding. Number of clients to be served

Baseline: 40 Baseline: 40 Baseline: 40

Target: 40 Target: 40 Target: 40

Budget Allocation $35,000.00 $35,000.00 $35,000.00

Strategy #2: Catholic Social Services, McDaniel Youth Program (4.0 FTE)









Provides one-‐to-‐one mentorship supports to youth aged 14 to 19 years who have an FASD to help them access community supports and make a successful transition into adulthood. Mentors work with youth for a period of up to 3 years.


Key Activities

• Connect program participants to and advocate for access to community resources. • Provide one-‐to-‐one mentorship to ensure basic needs of program participants are

met. • Provide social and recreational opportunities to promote healthy social

interactions. • Advocate for and find suitable housing and employment options for program

participants. • Collect data according to requirements of ORS, FASD Service Network Program



Catholic Social Services is contracted to provide the support services in partnership with the Network.

Status New Program Sustaining a new program/service. Number of clients to be served



Budget Allocation $284, 000.00 $284,000.00 $284,000.00


Strategy #3: Bissell Centre, Fetal Alcohol Spectrum of Services (1.0 FTE)





• Individuals suspected or with an FASD experience improvement in their wellbeing. • Caregivers of individuals with an FASD experience improvement in their wellbeing. • Individuals and caregivers receiving support report satisfaction with the services received.

FASD Goal: Rationale



The Adult Advocate provides one-‐on-‐one long-‐term support to adults who are affected by FASD and partners of PCAP participants impacted by FASD. One-‐to-‐one mentorship supports adults to access community supports and address secondary disabilities associated with FASD, such as employment and housing issues. The mentor works with program participants for a period of up to 5 years.


Key Activities

• Connect program participants to and advocate for access to community resources. • Provide one-‐to-‐one mentorship to ensure basic needs of program participants are met. • Case consult with involved PCAP program to develop family plan. • Advocate for and find suitable housing and employment options for program

participants. • Collect data according to requirements of ORS, FASD Service Network Program and the

Network. • Actively participate on the Edmonton and area Fetal Alcohol Network Society and

Supports and Services Team. Responsible Parties Bissell Centre is contracted to provide the support services in partnership with the Network.





Strategy #4: Bosco Homes, Open Arms Program (3.7 FTE)









Open Arms mentors provide specific and culturally sensitive support to women who have a Fetal Alcohol Spectrum Disorder (FASD) and may or may not be parenting children. The program is designed to deal with the everyday problems and system barriers real that individuals with an FASD face and provides hands on assistance to access services and supports.


Key Activities


met. • Advocate for and find suitable housing and employment options for program

participants. • Collect data according to requirements of ORS, FASD Service Network Program and

the Network. • Actively participate on the Edmonton and area Fetal Alcohol Network Society and

Supports and Services Team. Responsible Parties Bosco Homes is contracted to provide the support services in partnership with the Network.

Status New Program Sustaining a program that did not exist prior to Network funding. Number of clients to be served





Strategy #4a: Bosco Homes, Open Arms Program (2.0 FTE) PDSI Grant









Open Arms mentors provide specific and culturally sensitive support to men who have a Fetal Alcohol Spectrum Disorder (FASD) and may or may not be parenting children. The program is designed to deal with the everyday problems and system barriers real that individuals with an FASD face and provides hands on assistance to access services and supports.


Key Activities


met. • Advocate for and find suitable housing and employment options for program

participants. • Collect data according to requirements of ORS, FASD Service Network Program and


Supports and Services Team. Responsible Parties Bosco Homes is contracted to provide the support services in partnership with the Network.




Budget Allocation $229, 756.00 $229, 756.00 $229, 756.00

Strategy #5: Metis Nation of Alberta, FASD Resource Worker (1.0 FTE)









The Mentorship Program supports and encourages the healthy development of children and families impacted by an FASD through culturally sensitive one-‐to-‐one mentorship supports.


Key Activities

• Connect program participants to and advocate for access to community resources. • Provide one-‐to-‐one culturally sensitive support to children and their support

networks to ensure basic needs of program participants are met. • Assist CFSA workers to develop cultural and concurrent plans for program

participants and ensure the issues associated with an FASD are taken into consideration.

• Advocate for and provide referrals to an FASD assessments and diagnostic services. • Collect data according to requirements of ORS, FASD Service Network Program and



Metis Nation of Alberta is contracted to provide the support services in partnership with the Network.






Strategy #6: Leduc County, Bridges Program (2.3 FTE)









Bridges FASD Mentor program is a support program for women and men (18 years or older) who have either strong indicators, or a diagnosis of a Fetal Alcohol Spectrum Disorder. It provides support for three years to help stabilize the lives of affected persons and their children and aims to teach and model appropriate daily life management and skills. The program is designed to stabilize the clients' lives, reduce the number and severity of the secondary disabilities that often accompany an FASD and to work with community partners and regional community resources to develop and implement services. Clients may stay involved with Bridges for three full years.


Key Activities

• Connect program participants to and advocate for access to community resources including but not limited to AISH, housing stable income.

• Provide one-‐to-‐one support to ensure basic needs of program participants are met. • Assist program participants to address addictions and parenting issues. • Collect data according to requirements of ORS, FASD Service Network Program and


Supports and Services Team. Responsible Parties Leduc County is contracted to provide the support services in partnership with the Network.





Strategy #7: Kids Kottage/Elves Special Needs Society, FASD Respite Program









Elves Special Needs Society and the Kids Kottage Foundation has formed a cooperative association to provide an FASD Respite Care Program to support families with children affected with an FASD. Offering a variety of educational and recreational activities, children are cared for in a safe, supported and structured environment. Activities include:

• Arts/crafts, gym/sensory activities, computer time, games, free play, swimming, snack time The program will provide site-‐based respite for families with children between the ages of three and eight years old, and will run from September to June. There is a maximum of six hours of respite per week for each child, and a maximum of 20 participants in attendance per session.


Key Activities

• Advocate for and provide referrals to diagnostic and assessment clinics. • Provide parenting skills and development enhancement through Stepping Stones

Triple P programs and parent support group workshops. • Provide a structured environment and consistent routines to program

participants that encourage the learning of coping strategies and social skills. • Collect data according to requirements of ORS, FASD Service Network Program



Kids Kottage in partnership with Elves Special Needs Society is contracted to provide the support services in partnership with the Network.






Strategy #8: CASA, FAS TRACS









The FAS TRACS program provides short term mental health services for children (aged 3 – 18 years) who have a diagnosis of (or query of) fetal alcohol spectrum disorder along with emotional, psychological and/or behavioral problems. This group program is designed to promote mental well being and to enhance functioning through the development and implementation of practical strategies that can be adapted to the home, school and/or community settings.


Key Activities

• Prepare sensory profiles on children impacted by an FASD. • Educate the caregivers and children impacted by an FASD of sensory needs. • Recommend strategies and activities for optimal functioning and support the

implementation of strategies within the home. • Collect data according to requirements of ORS, FASD Service Network Program and


Supports and Services Team. Responsible Parties CASA is contracted to provide the support services in partnership with the Network.

Status New Program Sustaining a new program that did not exists prior to Network funding. Number of clients to be served




Strategy #9: Catholic Social Services, First Steps Program (2.4 FTE)

A/D Supports PCAP X Network Op



Prevention initiatives are developed and delivered using a collaborative and cooperative approach that result in the following system and client outcomes:

• PCAP program are available across Alberta and meet the community needs. • Participants know that FASD is caused by alcohol use during pregnancy. • Participants develop the intention to eliminate alcohol use during current and

future pregnancies. • Secondary disabilities experienced by individuals with an FASD are reduced. • Subsequent births of children with prenatal exposure to alcohol by women who

have used substances while pregnant are reduced. • Program participants experience improvement in their wellbeing. • Children of program participants experience improvement in their wellbeing. • Program participants report satisfaction with the program and complete the

three-‐year term. FASD Goal Rational

Albertans are aware that alcohol use during pregnancy can lead to an FASD, that an FASD can be prevented and that FASD prevention is a shared responsibility.


The First Steps Program offers mentorship to women who are at high risk of giving birth to a child with an FASD (Fetal Alcohol Spectrum Disorder). This includes women who are pregnant or who have recently given birth and have used drugs or alcohol during the pregnancy. Mentors work with women for 3 years.

Related Pillar Prevention (Level 3 and Level 4)

Key Activities

• Provide one-‐to-‐one support to ensure basic needs of program participants are met.

• Through mentorship address addictions issues. • Connect program participants to and advocate for access to community resources. • Collect data according to requirements of ORS, FASD Service Network Program



Catholic Social Services is contracted to provide the support services in partnership with the Network.






Strategy #10: Glenrose Rehabilitation Hospital, Children’s FASD Clinic

A/D X Supports PCAP Network Op

Year 1 Year 2 Year 3 System and Client Outcomes: Business Priority

Albertans have access to timely and affordable multidisciplinary assessment and diagnostic services across the lifespan that result in clients and/or caregivers having an increased understanding of how FASD affects them, the supports and services available to them in the community and are referred to post assessment supports that meet their needs.


Albertans who may be affected by an FASD have access to timely and affordable assessments resulting in recommendations for interventions based on their needs and strengths.


FASD Clinical Services through the Glenrose Rehabilitation Hospital will provide additional assessments to children suspected of having an FASD and who are under the age of 18.

Related Pillar Assessment and Diagnosis

Key Activities

• Complete multidisciplinary assessment and diagnostic services for children and families.

• Provide results and recommendations to families. • Link families with community partners who provide interventions and support

services. • Act as a resource to the community and families regarding FASD. • Collect data according to requirements of ORS, FASD Service Network Program



Alberta Health Services through the Glenrose Rehabilitation Hospital is contracted to provide the assessment services in partnership with the Network.





Strategy #11: 3% Wage enhancement.

A/D X Supports X PCAP X Network Op

Year 1 Year 2 Year 3 Business Priority Ensure short and long term Network goals and FASD system outcomes are achieved.

Rationale

Current Network funded supports and services are facing staffing issues in regards to staff retention and recruitment due in part to the wage disparity between non-‐profit agency wage scales and public/private industries. To address these concerns the Network will provide wage increases to begin bridging the ever increasing gap.


The Network through funding received from the Ministry of Human Services will enhance the recruitment and retention capabilities of the Network funded supports and services, within the scope of their current Service Level Agreements. The Network will provide financial assistance in the form of agency wage increases. This allocation reflects a 3% increase to the principle.

Related Priority

Improve Network governance and operations to achieve FASD Service Network Program goals and requirements.

Key Activities

• Ensure signed Service Level Agreements are in place for all agencies receiving the wage increase.

• Inform all agencies of the amount of increase they are to receive and provide payment criteria for agency wage payments.

• Prepare and distribute wage increase cheques. Status New Program/Service, sustained from 2013-‐2014 Responsible Parties

• Network Banker • Network funded agencies


Network Operational Priorities and Strategies

Strategy #12: Network Coordinator, Network Banker and Network Contract Manager positions

A/D Supports PCAP Network Op

X


The Network will plan FASD programs and services based on a collaborative approach with mechanisms in place to facilitate stakeholder engagement and information sharing. Access to training, resources and evaluation results will inform Network activities, supports and services and strategic planning.


Stakeholders collaborate to develop and mobilize knowledge to continuously transform Alberta’s FASD system to achieve outcomes and goals.


To ensure compliance with the FASD Service Network Program Guidelines and to meet all reporting requirements the Network will hire (via an agency) and contract the following support staff positions:

• Network Coordinator (Catholic Social Services) • Network Contract Manager (Contracted position)


• Network Banker (Bissell Centre) Related Pillar Organizational Learning

Key Activities

• Coordinate Network operations and fulfill Service Network Program requirements. • Participate on Committees and Councils at the provincial, regional and local levels. • Plan and host monthly Network meetings. • Develop and revise Network community documents: SWOT, Needs Assessment and

Environmental Scan. • Develop and moderate all social media Network sites. • Disseminate training and education materials to the community. • Coordinate Network service management and service quality and compliance

review. • Monitor program expenditures and fiscal responsibility

Responsible Parties

• Catholic Social Services is contracted to house the Network Coordinator position. • The Network contracts Bissell Centre to provide Network banking services. • The Network contracts an independent consultant to provide contract management

services.

Budget Allocation

Coor: $98, 000.00 Banker: $56, 000.00 Contract: $5, 000.00

Coor: $98,000.00 Banker: $56, 000.00 Contract: $5, 000.00

Coor: $98,000.00 Banker: $56, 000.00 Contract: $5, 000.00

Strategy #13: Network Development

A/D Supports PCAP Network Op

X


The Network will plan FASD programs and services based on a collaborative approach with mechanisms in place to facilitate stakeholder engagement and information sharing. Access to training, resources and evaluation results will inform Network activities, supports and services and strategic planning.


Stakeholders collaborate to develop and mobilize knowledge to continuously transform Alberta’s FASD system to achieve outcomes and goals.


In order to ensure the Network and its operations continue to function at an optimal level, which includes governance, membership, communication and leadership, the Network has prioritized building on the infrastructure of the Network with standardizing it policies and procedures in conjunction with the new bylaws and amending and enhancing the communication and reporting strategies (both internal and external).To ensure compliance with the FASD Service Network Program Guidelines and to meet all reporting requirements the Network aims to:

• Enhance the policies and procedures to align with bylaws. • Amend the Network Communication Plan. • Develop a review process for the Network Banker and Network Contract Manager as

it relates to their roles and responsibilities. Related Pillar Organizational Learning

Key Activities

• Contract a consultant to review current policies and procedures to assess effectiveness and alignment with bylaws.

• Review and amend Communication Plan (includes enhancing current internet sites). • Develop and implement file management systems. • Establish process or mechanism for reviewing and meeting the requirements of

incorporated society status with corporate registries. Responsible Parties • The Network membership

Budget Allocation $10, 000.00 $10, 000.00 $10, 000.00

Priorities for Additional Funding

The Edmonton and area Fetal Alcohol Network Society makes considerations for additional funding opportunities on an annual basis at the Network Annual Strategic Planning Day. Through community supports and services audits, which include Network Needs Assessment, monthly community consultations at Network meetings (which provide an opportunity for stakeholders and partners to address the gaps in service) and participatory appraisals from service providers the Network has developed the following funding priorities:

• Enhancement of currently funded programs and services to ensure quality of life increments are guaranteed to Service Network Program funded agencies.

• Enhancement of mentorship programs serving all individuals (regardless of age) who are impacted by a Fetal Alcohol Spectrum Disorder. Current FASD programs cannot meet the demand from the community for one-‐to-‐one support services. Programs currently have long wait lists and while agencies are examining ways to triage clients who are in need there remains great demand for all FASD mentor services especially long-‐term care.

• Enhancement and program development of services for caregivers whose children (whether under 18 years of age or over) are impacted by an FASD. There has been a substantial increase in service/resource inquiries over the past year from parents and caregivers. Currently there are minimal FASD specific supports for this targeted group in the Edmonton and area.

Service Network Program Fund Breakdown 2014 – 2015

Agency/Strategy TOTAL 1. Elizabeth Fry Society: Girls Empowered and Strong

Payable to: Elizabeth Fry Society of Edmonton 10523 100 ave Edmonton AB T5J0A8

$35, 000.00

2. CSS: McDaniel Youth Program Attn: Francine Hajmrle Payable to: Catholic Social Services 8815 99 Street Edmonton, AB T6E 3V3

$284, 000.00

3. FASS: Bissell Centre $57, 000.00 4. Bosco Homes: Open Arms Program

Attn: Darcy Petrovik Payable to Bosco Homes 6770 129 Ave Edmonton, AB T5C 1V7

$305,000.00

5. Metis Nation of Alberta Attn: James Leschuk Payable to: Metis Nation of Alberta #100-‐11738 Kingsway Ave Edmonton, Alberta T5G-‐0X5

$59, 000.00

6. Leduc County: Bridges Program Attn: Laurel Fitzsimongs Payable to: Leduc County, FCSS 101, 1101-‐5th Street Nisku, AB. T9E 2X3

$206, 000.00

7. Kids Kottage: FASD Respite Program Attn: Lori Reitter Payable to: Kids Kottage Foundation 13308 101 St NW Edmonton, AB

$105, 000.00


T5E4G3 8. CASA: Family Reno’s Program

Attn: David Copus Payable to: CASA Child, Adolescent and Family Mental Health Suite 406, 10011 109 ST Edmonton, AB T5J3S8

$48, 590.60

9. CSS: First Steps Attn: Francine Hajmrle Payable to: Catholic Social Services 8815 99 Street Edmonton, AB T6E 3V3

$189, 847.40

10. Glenrose ATTN: Tammy Woroschuk Payable to: Alberta Health Services Room 137 GE 10230 111 Avenue Edmonton, AB T5G 0B7

$82, 000.00

11. 3% Wage Increase Grant $47, 884.65 12. Julie Mann (Contract Manager)

Payable to: Julie Mann 9 Dunewood Place, St. Albert, AB T8N 4V7 Bissell Centre (Banker) Network Coordinator Attn: Francine Hajmrle Payable to: Catholic Social Services 8815 99 Street Edmonton, AB T6E 3V3

$5, 000.00 $56, 000.00 $98, 000.00

13. Network Development $10, 000.00 TOTAL $1, 588, 322.65

edmonton and area fetal alcohol network society...network!vision!!...

Documents