drifocus newsletter winter 2014

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Celebrating its 15th Anniversary, Fall Into Fashion featured a runway show by Donna Karan New York of Americana Manhasset. > Article on page 19 Two remarkable families join forces for one goal – to find a cure for their sons. The Heat’s Ray Allen, his wife, Shannon, and family team up with the Holtz family to host two amazing events in January. > Article on page 16 At the 40th Anniversary Love and Hope Ball, we will honor Life Chairman Sonja Zuckerman and Dr. Camillo Ricordi, plus enjoy an exclu- sive concert by Barry Gibb. > Article on page 16 The NY Real Estate Division celebrated 30 years at the Empire Ball, honoring Jay Badame, Andrew Cooke and Joseph “Dee”Dussich. > Photos on page 6-7 Celebrating Extraordinary Leaders and Milestone Events DRI focus Join us on social media! Diabetes Research Institute Foundation Winter 2014 / Volume 41 / Issue 1 Leading with vision and passionate commitment, Camillo Ricordi, M.D., director of the Diabetes Research Institute, has devoted his life’s work toward finding a cure for diabetes. Acknowl- edged by his peers as one of the world's top scientists in cure-focused diabetes research and cell transplantation, Dr. Ricordi is well- known for inventing the machine that makes islet transplantation possible. Today, Dr. Ricordi and his team at the DRI, together with partners around the world that are part of the DRI Federation, are combining a multi- disciplinary approach to create a DRI BioHub, an integrated mini organ that mimics the native pancreas and restores natural insulin production in diabetes patients. Dr. Ricordi anticipates some pilot clinical trials to begin in 2014 and states, “We are putting the pieces of the puzzle together to replace the pancreas.” Throughout his tenure, he has personally contributed more than $1 million to support the DRI’s research program and just recently pledged another $500,000 as a result of becoming the newly-appointed president of the Ri.MED Fondazione in Palermo, Italy. “After attending the presidential installation board meeting for the Ri.MED Foundation, I am happy to report that I will be donating my compensation as president to the DRI Foun- dation,” said Dr. Ricordi, whose gift is the total of the honorarium he will receive for serving in this position over the next five years (read Ri.MED article pg 11). Dr. Camillo Ricordi, who was recently appointed president of the Ri.MED Fondzione, made a tremendous financial contribution to support the research. SUPPORT FOR THE DRI BIOHUB SWELLS WITH RECENT GIFTS TOTALING MORE THAN $4 MILLION DRI FOUNDATION APPOINTS JOSHUA REDNIK PRESIDENT AND CEO Effective January 6, 2014, Joshua Rednik has been appointed president and CEO of the Diabetes Research Institute Foundation. Josh brings to the organization 17 years of experience in the non-profit sector managing organizations and developing and executing multi-million dollar fundraising campaigns. Cover Story Continued on Page 9 Continued on Page 2

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Page 1: DRIfocus Newsletter Winter 2014

Celebrating its 15th Anniversary, Fall IntoFashion featured a runway show by DonnaKaran New York of Americana Manhasset.

> Article on page 19

Two remarkable families join forces for onegoal – to find a cure for their sons. The Heat’sRay Allen, his wife, Shannon, and family teamup with the Holtz family to host two amazingevents in January.

> Article on page 16

At the 40th AnniversaryLove and Hope Ball, we willhonor Life Chairman SonjaZuckerman and Dr. CamilloRicordi, plus enjoy an exclu-sive concert by Barry Gibb.

> Article on page 16

The NY Real Estate Division celebrated 30years at the Empire Ball,honoring Jay Badame, Andrew Cooke and Joseph“Dee”Dussich.

> Photos on page 6-7

Celebrating Extraordinary Leaders and Milestone Events

DRIfocusJoin us on social media!

Diabetes Research Institute Foundation Winter 2014 / Volume 41 / Issue 1

Leading with vision and passionate commitment,Camillo Ricordi, M.D., director of the DiabetesResearch Institute, has devoted his life’s worktoward finding a cure for diabetes. Acknowl-edged by his peers as one of the world's topscientists in cure-focused diabetes researchand cell transplantation, Dr. Ricordi is well-known for inventing the machine that makesislet transplantation possible.

Today, Dr. Ricordi and his team at the DRI, togetherwith partners around the world that are partof the DRI Federation, are combining a multi-disciplinary approach to create a DRI BioHub,an integrated mini organ that mimics the native pancreas and restores natural insulinproduction in diabetes patients. Dr. Ricordi anticipates some pilot clinical trials to beginin 2014 and states, “We are putting the piecesof the puzzle together to replace the pancreas.”

Throughout his tenure, he has personally contributed more than $1 million to supportthe DRI’s research program and just recentlypledged another $500,000 as a result of

becoming the newly-appointed president ofthe Ri.MED Fondazione in Palermo, Italy.

“After attending the presidential installationboard meeting for the Ri.MED Foundation, Iam happy to report that I will be donating mycompensation as president to the DRI Foun-dation,” said Dr. Ricordi, whose gift is the totalof the honorarium he will receive for servingin this position over the next five years(read Ri.MED article pg 11).

Dr. Camillo Ricordi, who was recently appointed president of the Ri.MED Fondzione, made a tremendousfinancial contribution to support the research.

SUPPORT FOR THE DRI BIOHUB SWELLSWITH RECENT GIFTS TOTALING MORETHAN $4 MILLION

DRI FOUNDATION APPOINTS JOSHUA REDNIK PRESIDENT AND CEOEffective January 6, 2014, Joshua Rednik has been appointed presidentand CEO of the Diabetes Research Institute Foundation. Josh brings tothe organization 17 years of experience in the non-profit sector managingorganizations and developing and executing multi-million dollarfundraising campaigns.

Cover Story Continued on Page 9

Continued on Page 2

Page 2: DRIfocus Newsletter Winter 2014

Dear Friends,

One of the truly remarkable aspects of the Diabetes Research Instituteand Foundation is the unequalled passion to cure diabetes that is palpablethroughout every level of the organization. As the chairman of the DRIF anda father of a son with type 1 diabetes, I’m humbled by the extraordinarydedication to this mission on the part of our scientists, staff and lay leadership, whose history of commitment continues to fuel our progress.

Throughout this past year, we shared our excitement about developingthe DRI BioHub. Those of us who have the opportunity to see the theprogress firsthand have never witnessed such promise. So with anticipationand opportunity knocking at our door, we knew that now was the timeto increase the investment in the science and give our researchers every-thing they need to move this initiative along quickly.

But that’s what leaders do; they set the example for others to follow. Inour world, that means giving of our time and financial resources to helpus reach our goal of a cure for our loved on es and yours.

As you read in the cover story, the Foundation’s leadership has answeredthe call and the response has been nothing short of exceptional with re-cent gifts totaling almost $4.0 million. The level of support from them andmany other generous contributors will help keep our cure-focused researchon track and moving forward without delay. I want to personally thankthese donors who joined with my wife, Kelly, and me to support the DRI’sprogram: the Inserra Family, Joan and Bill Fishlinger, Paola and Piero Gandini, Gisela and Glenn Kleiman, Dr. Camillo Ricordi, and theStacy Joy Goodman Memorial Foundation.

I hope that these actions will inspire others to follow with gifts bothlarge and small, as well as with voluntary service that can help raise thelevel of funding needed to reach our final goal.

Another person who I know is going to help us get there is Joshua Rednik.He has been appointed as our new president and CEO and is truly animpressive individual. Josh has a strong background in fundraising andorganizational management, and we are excited for him to join us atsuch a promising time.

From the major donors receiving Cycle of Discovery awards, to the thousands of men and women of the Building Trades, to our spirited Diabetes Diplomats undertaking myriad projects and to the countlessindividuals and companies coordinating and supporting our events,many are stepping to the plate to help the DRI and you have our deepest gratitude.

We look forward to sharing more news of progress in the year to come.As we enter 2014, we will continue to count on all of you as we work together to ensure a future free from diabetes for every child and adultliving with this disease.

Josh recently served for nearly six years as executive director of The Jewish Community Foundation (JCF) of Greater MetroWest in Whippany,NJ. During his tenure, he and his team created and implemented theJCF’s $100 million “MetroWest Tomorrow” endowment campaign, whichexceeded its goal less than two years after its public launch. Josh’s leadership of the organization also resulted in increased funding overgoal for its most recent fiscal year, enhanced lay leadership and donor engagement, and decreased expenses.

In his new role with the DRIF, Josh will focus on cultivating major corpo-rations, foundations and affluent individuals with the goal of raising thesignificant funds needed to fulfill its mission to cure diabetes. Joshcomes to the DRIF almost a year after the public launch of the DRI BioHub mini organ and the fundraising campaign that seeks to raisemore than $94 million for this initiative over five years.

“What the DRI and the DRI Foundation have achieved thus far is bothcompelling and inspiring. Having said that, I recognize that there is

important work still to be done before we find a cure for diabetes. I look forward to building upon that progress by helping to fund the researchrequired to cure diabetes now, and I am honored to be joining such aspecial organization,” said Josh.

Prior to becoming executive director of the JCF in 2008, Josh, 40, heldsenior leadership roles of increasing responsibility within the plannedgiving and endowment divisions of UJA-Federation of New York and The Jewish Federation of Greater Washington (Rockville, MD), where hebegan his career as Campaign Associate.

Josh graduated from Washington University in St. Louis with a bachelor’sdegree in psychology and pursued his master’s degree in social service at Bryn Mawr College, Bryn Mawr, PA. He received an executive certificatein financial planning from Georgetown University in Washington, D.C.,and is a Certified Financial Planner™ professional. He resides in South Orange, NJ, with his wife and two children.

A Messagefrom the Chairman

DRI FOUNDATION APPOINTS JOSHUA REDNIK PRESIDENT AND CEO

Sincerely,

Harold G. Doran, Jr.Chairman of the Board

Page 3: DRIfocus Newsletter Winter 2014

The Diabetes Research Institute Foundation is pleased to announce the appointment of three new officers to its National and Northeast Boards,plus an exciting video debut, featuring the important work of the DRI and Foundation, and starring one of our own.

National Board member Bonnie Inserranow serves in the position of secretary.She is the executive director and bene-factor of the Inserra Family Foundation.She serves on the boards of the Hackensack University Medical CenterFoundation and Tomorrow’s Children,as well as on the Advisory Board of Columbia Presbyterian Babies Hospitalfor Hope and Heroes. She has receivednumerous honors for her tireless supportof several worthy organizations. A resident of Mahwah, NJ, Bonnie isactively involved in many of the DRIF’s events from New York to Floridaand serves as a co-chair for NYC’s D.R.E.a.M.S. in the city fundraiser.

A staunch advocate for medical research, Bonnie is especially knowl-edgeable of diabetes and cancer. Her son, Lawrence, is a 20-year cancersurvivor. Her daughter, Lindsey, was diagnosed with a difficult-to-manageform of type 1 diabetes at age 11 and was the first child in the world touse the Mini Med Intra-Peritoneal Implanted Pump. Just recently, Bonnie experienced one her proudest moments as she watched herdaughter walk down the aisle for her wedding.

As appointed by National Board Chairman Harold Doran, Co-chairs MarcS. Goldfarb and Bruce A. Siegel are leading the newly-consolidatedNortheast Region, which is focused on raising the funds necessary to move the DRI BioHub forward. These gentlemen are passionatelycommitted to the cause and will stop at nothing to find a cure for theirdaughters, Brooke Goldfarband Sara Siegel, who both have type 1 diabetes.

Marc currently serves as senior legal advisor to Kid Brands, Inc. (f/k/aRuss Berrie & Company), a NYSE-listed manufacturer of infant and juvenile products. He formerly served as its senior vice president, generalcounsel and corporate secretary. Prior to that, he was vice president,general counsel and corporate secretary of Journal Register Company, a NYSE-listed newspaper publishing company, managing director and general counsel of The Vertical Group, an international private equity firm, and a partner with a New York City law firm. A graduate of Cornell University, Marc also received a J.D. degree from theUniversity of Pennsylvania Law School. 

Marc has served on the DRIF’s Northeast Region Board of Directors since2006 and as a member of its Executive Committee since 2012.  He hasalso served as co-chair and a member of the event committee for the organization’s Carnival for a Cure event since 2006 and the 2008 North-east Research Update.

Bruce is executive vice president and general counsel for First Long Island Investors, LLC (FLI), which is celebrating its 30th anniversary as awealth management company in Jericho, NY. He also serves as a member of FLI’s Investment Committee and has worked for thecompany since 1989. His responsibilities include wealth management,

estate planning, insurance evaluation and acquisition, and real estateadvisory services. He began his career as an attorney with the U.S. Securities and Exchange Commission. He worked in private practicewith a New York City law firm, was assistant general counsel for a publiccompany, and managed the Partnership Review Group for Merrill LynchPierce Fenner and Smith. Bruce was a senior vice president of W.P. StewartAsset Management (N.A.) from 1998 to 2003.

Bruce previously served on the Foundation’s Long Island Region Boardand as a member of its Executive Committee, as well as a member ofthe organization’s National Planned Giving Committee. Prior to that,he served as a volunteer for more than 20 years for JDRF. He graduatedfrom Cornell University in 1970 and received a J.D. degree from New YorkUniversity Law School in 1974. He was admitted to the New York StateBar in 1975.

Special thanks are extended to William J. Fishlingerand Marc S. Goodmanfor co-chairing the Northeast Region during the consolidation.

In other exciting news, National Board member Glenn Kleiman is thespokesperson for a recently-released video highlighting our singularmission of finding a cure. The DRI Foundation was selected to participatein the Giving Library, an online tool created by Laura and John Arnoldthat highlights charitable organizations through a collection of videos.Glenn delivers powerful and heartfelt narration in concert with footagefrom the labs and photos of people with diabetes, including his daughter,Alison and his brother, Gary. Once you watch it, we hope you’ll share it!View it here: DiabetesResearch.org/Giving-Library

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NEW OFFICERS AND OTHER NEWS ON THE BOARD OF DIRECTORS

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1. Bonnie Inserra, 2. Marc S. Goldfarb, 3. Bruce A. Siegel, 4. Glenn Kleiman

Page 4: DRIfocus Newsletter Winter 2014

Mark Hariton was aware of the Diabetes Research Institute andFoundation, having been on themailing list and receiving the DRIFocus newsletter, for over 10 yearsbefore taking action. But when thetime came to plan his estate, Markknew he wanted to include theDRI. He established a bequest tobenefit the Diabetes Research Institute Foundation in his trust.Mark said, “Of all the diabetes organizations, I chose the DiabetesResearch Institute because mostof the funds go toward what thegift is intended for—a cure.”

Mark is eager for a cure for diabetes because so many in his familyhave suffered from it. Mark was diagnosed with type 2 diabetes 40 years ago, just one day before he planned to leave to Mexico forvacation. Mark felt awful that morning and decided to get himselfchecked out. To his surprise, the doctor reported that his blood sugarlevel was over 400 and that he need to take action immediately. Alover of travel, Mark decided to go ahead with his trip and take hisdoctor’s nutrition booklet and a food scale along with him.

Mark says, “I wouldn’t want diabetes if I had the choice, but I’ve madeit a positive part of my life. Wit h diabetes, I am forced to recognizethat my health is determined by me.”

Mark lost over 60 pounds after his diagnosis and has kept the weightoff ever since with a vegetarian diet, occasionally including fish. Healso controls his diabetes with medication and exercise. Mark is verydiligent about managing his diabetes. His wife, Maria Teresa, a retirednurse, is exceptionally proactive about living a healthy lifestyle andhelps him stay on track.

Mark and Maria recently took a tour of the Diabetes Research Institute.“What we enjoyed most was seeing how dedicated everyone is tofinding a cure,” Mark said. “The researchers’ attitudes were wonderful,and the tour was very informative.” Having worked as a registerednurse in Colombia, Maria was especially intrigued by all aspects ofthe research.

Mark and Maria now live on the beach in Fort Lauderdale with theirdachshund, Rudy. Mark still travels, and he enjoys reading and investing.What he is most proud of is the time he spends with the children he mentors. A graduate of Columbia University’s Teachers College, Mark taught social studies for nine years before developing a successfuladdressing system business. In his retirement, he has returned to schoolto mentor two children at Bennett Elementary and two children at Tropical Elementary through the Mental Health Association of Southeast Florida. Mark is also involved with Big Brothers Big Sisters,where he serves as a Big Brother to a young boy named Trevyon, andhe loves every minute of it. Mark has incorporated healthy eating tipsinto his mentoring to steer the children away from developing type 2diabetes in the future.

Mark’s retirement has allowed him to think about what life is all about.Now 72 years old, he hopes to live the rest of his life fully by stayinghealthy and giving back. Mark sees giving as an embodiment of living,and one of his favorite lines is, “Worse than dying is dying withoutever having lived.”

Having included the Diabetes Research Institute in his estate plans,Mark has been recognized along with others who have made similarcommitments as a member of the DRI Heritage Society. The DRI Foundation is deeply grateful to Mark for his generous support.

For more information on including the Diabetes Research Institute inyour will or trust, or becoming a member of the DRI Heritage Society,please contact Jill Shapiro Miller at (800) 321-3437 or [email protected].

Because of its ease and convenience, a bequest is the most prevalentway donors include the DRI Foundation in their estate plans. You canspecify a dollar amount or a percentage of your estate as a bequest, oryou may direct assets remaining after your loved ones have been providedfor to the DRI Foundation. Tangible property such as a home or jewelrycan also be gifted through a bequest.

If you decide to provide for the DRI Foundation in your will or throughanother planned giving vehicle, we would like to recognize your generosity. Upon notification of your intention to the Foundation,

you will be named as a member of the Diabetes Research InstituteHeritage Society—a growing group of caring individuals with theforesight and vision to provide for generations to come. Heritage Society members are permanently recognized on a designated wall of honor at the DRI and are presented with a special award.

Remember, the future of those you care about most is a reflection of the plans you make today. We hope you will consider making the Diabetes Research Institute Foundation part of those plans.

THE SIMPLEST WAY TO GIVE

HERITAGE SOCIETY MEMBER MARK HARITONLEAVES A LEGACY WITH A BEQUEST

Mark Hariton, who established a bequest to benefit the DRI, lives bythe mantra, “Worse than dying isdying without ever having lived.”

Page 5: DRIfocus Newsletter Winter 2014

BE THE HERO AT ANY STAGE OF LIFE!

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Diabetes Diplomats are a league of students, teachers, parents, grandparents and other family members and friends who are taking the searchfor a cure into their own hands. They come from all over the world and serve as advocates, educators and event fundraisers in their schools,neighborhoods and online. Some have diabetes. Some don’t. But they have all decided to “Be the Hero” by helping to find a cure for this diseasethat affects nearly 26 million children and adults in the U.S. alone.

Ethan and Olivia have witnessed philanthropic passion in action for all oftheir lives. Ever since their father, Ben Hatz, was diagnosed with type 1 diabetesin 1985, their grandparents, Jon and Barbara Hatz, have been raising fundsand awareness for a cure, and Barbara serves on the NE Region Board, as well as the Executive Committee. This summer the youngsters decided to join theranks of Diabetes Diplomats – or heroes, as we like to call them! They madeRainbow Loom bracelets and sold them, along with lemonade, with the help of family in front of their home in Jericho, NY. Great job, Ethan and Olivia!

A college student with type 1 diabetes,Jordan Finn, founder and CEO of InFinnityPromotions, teamed up with a colleague,Lance Sanders of Full Circle, to organize acompetition showcase for hip-hop artists.Approximately 100 people attended theunique fundraiser, which was held atTipsy Teapot in Greenville, NC. The winner? Sunny Da Man..and the DRI!

When Sandy Shapin learned that her grandson, Declan, was diagnosed with type 1 diabetes, she vowed to do something about it. A resident of a South Florida retirementcommunity, she took a tour of the DRI and decided to hold a fundraiser in her friend's hometo support its cure-focused work. Sandy’s son, Kevin, and his family traveled from Chicago,IL, to Boynton Beach, FL, to attend the event, which featured food, drinks, raffles, casinogames and a silent auction. The nearly 200 guests in attendance made donations as didothers who could not be present. In total, Grandma Sandy raised more than $6,000!

Rebecca Madan Kollaras is a PR professional who personally blogs as Uncommom. She has lived with type 1 diabetes for 38 years and eagerly continues to find ways to support the DRI in hopes of eliminating the disease not only for herself, but also for the son of one of her closest friends. Beforeher birthday came this year, she created a fundraising page at DiabetesResearch.org/Diabetes-Diplomats and asked her friends and family members to make a donation to the DRI in lieu of gifts. She smashed her goal of raising $1,500 by surpassing the $2,000 mark.

It’s plain to see that whether you are a child, a college student, a professional or a retiree, when youcreate a fundraiser for the Diabetes Research Institute, you will Be the Hero to everyone who is hopingfor a cure. Please don’t hesitate. Email Tom Karlya at [email protected] today to get started! You’renever too old or too young to join the Diabetes Diplomats!

1) Olivia, Ben, Jen and Ethan Hatz, 2) Jordan Finn and Lance Sanders,3) On a tour of the DRI, Ethan, Sandy (in the background), Declan and

Kevin learn from a DRI researcher (not pictured Leah and Jerry), 4) Rebecca and Zoe Kollaras

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FOUNDATION DONORS RECOGNIZEDAwards from the DRI Foundation’s Cycle of Discovery series were presented to donors who recently made majorgifts. The award program corresponds with the Foundation’s cumulative giving designations. Awards were presented individually, at Foundation events and at the Empire Ball Kickoff held at The Durst Organization in New York City.

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Visionaries $10,000,000+ InnovationChairman’s Council $5,000,000+ ValidationLeadership Council $1,000,000+ PerpetuationGovernors’ Society $500,000+ TranslationDistinguished

Humanitarians $250,000+ RealizationGrand Founders $100,000+ ExplorationFounders $50,000+ HypothesisBenefactors $25,000+ Query

DONOR LEVEL AWARD

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EXPLORATION AWARD: George Lewis of Collins Building Services with Joseph “Dee” Dussich, an honoree of the Empire Ball (1), Scott Corneby of Structure Tone (2), MichaelStrauss (l) and Richard Laskowski of Vanguard Construction and Development Co., Inc. (3),Mark Varian of John Gallin and Son (4)

HYPOTHESIS AWARD: Empire Ball honoree Jay Badame (l) and Frank DeGennaro of Tishman Construction, an AECOM Company accepting two awards (5), Anthony and RoseVederame of ESS & VEE Acoustical Contractors, Inc./SBA Plumbing Corp. accepting twoawards (6).

QUERY AWARD: Tom Amberger (l) and Frank Salerno of Unity International Group (7),Robert and Carrie Baram of Armstrong World Industries (8), Jonathan Bennis of Icon Interiors (9), Leslie Hsu Besner and Willa Besner of Willa’s Wish Foundation with Deborah L. Chodrow DRIF’s chief operating officer (10), Gerry Compton and Scott Stewart ofWare Industries (11), Rick Froio of Atlas-Acon Electric Service Corporation (12), Joseph Nastri of Capital One Commercial Banking Long Island (13),The Spodek Family (Julie,Richard, Jason and Bonnie) of City Lumber with Empire Ball Chairman Peter L. DiCapua (l) andDRIF’s Vice Chairman Charlie Rizzo (r) (14), Brad Vrana of ClarkDietrich Building System (15).

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Page 8: DRIfocus Newsletter Winter 2014

“I’m hoping that others may possibly match this gift in support of theDRI BioHub,” Dr. Ricordi stated in an email that he sent to National BoardChairman Harold Doran, among others. Without hesitation, Harold andhis wife, Kelly, soon after announced that they would gladly match Dr.Ricordi’s contribution.

“When I received Dr. Ricordi’s email indicating that he was going to do-nate money to further the collaborative research that is being done atthe DRI, I was excited and humbled. Excited that since he was willing tomake such a financial commitment at this time, the research must beready to make a quantum leap—which I think it is.” Harold continued,“And humbled that he chose to endow this organization to such a degree financially, when he has already invested 20 years of his timeand talent in it. He is not only a world class scientist; he’s a world class guy.”

From there, the wave of good news continued to swell. National Boardmember Bonnie Inserra and Larry Inserra of Inserra Supermarkets, Inc.and their family announced an extraordinary gift of $2 million.

“In an effort to honor the DRI's accomplishments and their unwaveringcommitment to a biological cure, our family has followed the generousinitiative of Dr. Camillo Ricordi. We will continue to support the DRI'sincomparable work to create the DRI BioHub,” stated Bonnie, who servesas secretary of the National Board.

“Each and every time I go into the labs, I learn more about the scientists’skills, their innovative projects and unique approach to accelerating cure-focused research. I leave there more energized with renewed hope andfaith, knowing that these brilliant scientists are working for that cure,”said Bonnie, who is often at the Institute accompanying new supporters.For the Inserra family, their commitment to a cure is deeply personal.

“When our daughter, Lindsey, was diagnosed with type 1 diabetes 18years ago, our family decided we needed to start searching for a cure.We looked the world over for the best researchers we could find whowanted to CURE this insidious, merciless disease.” She continued, “Whenwe discovered the DRI, we realized that we had found what we werelooking for and even more than we had dared to hope. The passion, col-laboration and devotion of every one of the people we met at the DRIwere apparent. Nothing was going to stop them from finding a cure.”

Another National Board member, William J. Fishlinger, treasurer, echoedBonnie’s sentiments.

“We’ve been supporting the DRI for a long time. Our daughter, Alexandra,was diagnosed at age 6, 20 years ago,” said Bill, who is the chairmanand CEO of Wright Risk Management Company, Inc. and WRM Holdings,as well as senior and controlling partner of a New York law firm. Alongwith his wife, Joan, the couple contributed an additional $250,000 tosupport this exciting initiative. “In my mind, the DRI BioHub presentsthe best opportunity for a cure for type 1 diabetes. And as part of theleadership of the DRI Foundation, I think it’s important to show ourcommitment to the mission.”

Other members of the National Board have increased their support forresearch, as well.

“My family and I are fully committed to helping the DRI because weknow it is the best place to support if you want to find a cure,” statedPiero Gandini of Bovezzo, Italy, who serves as president and CEO of FLOS,an international lighting company known for changing the concept ofillumination. He is also the deputy chairman of Sostegno 70, a nonprofitorganization headquartered in Milan that provides aid to children andfamilies at the onset of the disease. The Gandinis made a $250,000 giftto fund additional research. “The news about the BioHub is very exciting. It was a natural reaction to make a contribution at this timeto support it.”

The father of Chiara, who was diagnosed at 1 and is now 15, Piero explained that families affected by diabetes are very anxious to see anend to this disease, particularly when they feel they have been waitingfor a cure for so long. He continued, “All of sudden, something thatseemed to be in the clouds before is now something we can really feelon the ground. DRI scientists have one goal—to find a cure for diabetes.I know when I speak to them that they are committed to that goal… it’s in their eyes and in their voices.”

National Board members Esther and Marc S. Goodman and Ken Shewer,along with his wife Susan Winberg, established the Stacy Joy GoodmanMemorial Foundation in 1994 after Marc’s daughter lost her battle withtype 1 diabetes at the age of 17. Its mandate is to raise funds to help finda cure, and the DRI is the primary recipient of its funding. Ken, Esther,and Marc have served on the National Board since 1999, and Marc waschairman from 2003-2007. They have been closely watching over thescientific advancements made at the DRI and are more enthusiasticthan ever before.

COVER STORY CONTINUES21

Page 9: DRIfocus Newsletter Winter 2014

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1) Kelly and Harold Doran, National Board chairman (center), generously matched Dr. Ricordi’s gift, 2) The Inserra Family madea $2 million contribution to support the DRI BioHub. Pictured are Bonnie Inserra with her children, Lindsey Inserra-Hughes,John Hughes and Lawrence Inserra, 3) William and Joan Fishlinger, with their children Alexandra Calame and Matthew Fishlinger,are longtime supporters of the DRI, 4) Piero and Paola Gandini of Bovezzo, Italy, want nothing more than a cure for their youngestdaughter, Chiara (left), pictured with sisters Elena (center) and Giulia (right), 5) Partners and good friends, Marc and Esther Goodman and Ken Shewer and Susan Winberg created the Stacy Joy Goodman Memorial Foundation, which supports the cure-focused research of the DRI, 6) Glenn Kleiman, whose family has been involved with the DRI since the beginning, continues to support the research, along with his wife, Gisela, and their daughters, Marley and Alison.

Many young people affected by diabetes aspire to make a difference in the lives of others living with it. Some aim to be endocrinologists, diabeteseducators and therapists. Others are interested in pursuing cure-focused research to eradicate diabetes forever. To fuel the interest of the lattergroup, the DRI hosted several young people this past summer who were able to get a firsthand view of the research process in action.

Twin brothers from the Northeast area, Jake and Mike Carrion shadowed Dr. Midhat Abdulreda in the islet physiology program, while RobertDesmond of South Florida observed Dr. Chris Fraker in the bioengineering lab. Charlie Symonds from London learned about biliary tree stem cellsfollowing Dr. Giacomo Lanzoni. Side-by-side with the scientists who are actively working toward a cure, the students had eye-opening experiencesthat will provide an amazing foundation as they move forward with their studies. Pictured (l-r): Charlie, Dr. Luca Inverardi, Jake, John and DebraCarrion, Jenny Symonds, Mike, Dr. Fraker and Robert.

“The science has progressed to a place we only dreamed about yearsago,” said Marc, speaking on behalf of the Stacy Joy Goodman Memorial Foundation, which recently made a $250,000 contribution toward the DRI BioHub. “We've always been behind the work of the Diabetes Research Institute, but now more than ever, we truly believethe approach and the groundbreaking strategy behind the BioHubcould be the answer we’ve all been waiting for.”

With the leadership of this organization putting their financial supportbehind this platform, Harold articulated his optimism and thanks. “I hope their generosity will induce other stakeholders to join us in thiscampaign as we move to shorten the timeline for the cure. These giftsrepresent the faith that our board members, who have the vantagepoint of hearing directly from the scientists, have in the exciting and

promising science that is going on now at the DRI,” he said.

In response to Harold’s call to action, another National Board member,Glenn Kleiman, made a generous donation to support the researchmost recently. Along with his wife, Gisela, they will stop at nothing untilthe DRI finds a cure for their daughter, Alison, as well as Glenn’s brother,Gary Kleiman, DRI’s senior director of medical development.

Glenn summed it up best, “I've never been more optimistic about theDRI's research. Several elements of the BioHub are nearing clinical trials. I'm proud and excited to be a part of this.”

As the momentum continues, hope for a cure is quickly feeling morereal than ever before. Join the effort! Learn more at: DiabetesResearch.org/BioHub

YOUNG LAB OBSERVERS

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Page 10: DRIfocus Newsletter Winter 2014

The immune system serves as our built-in“radar,” continuously scanning the body to determine what is “self” and what is “foreign”and needs to be eliminated. This process ofchecks and balances is not perfect, and despitemany mechanisms of control and regulation,the immune system can make mistakes.Such mistakes can result in autoimmunediseases in which, like “friendly fire,” our immune system accidentally destroys itsown tissues or cells.

To better understand autoimmunity, theprocess that causes type 1 diabetes, picture a seesaw that you’d find in a playground. Onone end is a group of immune system cells,called effector cells, that are responsible fortargeting and destroying what is seen as“foreign.” On the other end are regulatory T cells,or T-regs, which control the effector cells andprevent them from attacking the body’s owncells, or “self.” When the two sides are balanced, the immune system works properly.

When there are not enough T-regs, however, a dangerous imbalance occurs. The effectorcells, having more “weight,” can take controland mistakenly destroy “self” cells, like the insulin-producing beta cells in the pancreas.

Restoring this balance is key to reversing autoimmunity and it’s the focus of Dr. AlbertoPugliese, head of the DRI’s ImmunogeneticsProgram. For the past several years, he and theDRI’s Dr. Thomas Malek have been studying therole of IL-2 (interleukin 2), a natural substancereleased by certain types of immune cells. IL-2 plays a critical role in the function of botheffector cells and T-regs. High dose IL-2 has beenused in cancer patients as a way to stimulatethe effector cells to eliminate the cancer. Dr.Malek’s landmark studies in experimentalmice showed that IL-2 also plays a key role in maintaining proper T-reg function, thuspreventing autoimmunity.

This past year, Drs. Pugliese and Malek showedthat human T-regs are highly sensitive to IL-2and respond to much lower doses comparedto effector and memory immune cells, whichneed much higher levels of IL-2 to initiate a response. Other researchers also showed thatlow-dose IL-2 improved T-reg function andwas able to reverse autoimmune diabetes inexperimental models. These important findings

point to the use of IL-2 itself, at low dose, as a potential therapy for the control of autoimmunity by restoring this critical immunological balance.

Low-dose IL-2 may also play an important role in re-activating a large percentage of betacells that Dr. Pugliese believes haven’t beendestroyed at all, but are just non-functioning.He further explains this area of research,which is generously funded by the PeacockFoundation and the DRI Foundation, in thefollowing interview.

Q. What is the difference between effectorcells and T-reg cells?

A. Effector cells are immune cells that mediatethe immune response, often killing or promotingthe killing of targeted cells. T-reg cells regulatethe function of the immune system and caninhibit the effector cells. They are critical toregulate the immune system and to preventexcessive or unwanted immune responses,such as the ones that can cause an autoimmunedisease like type 1 diabetes.

Q. What is IL-2 and how has it been used forother diseases?

A. IL-2 is a natural substance that supportsthe function of the immune system, promotingthe development, survival and function of immune cells, in particular of those calledlymphocytes. These include both the effectorcells and the Treg cells.

IL-2 has been primarily used in clinical trials inconditions such as cancer and AIDS to boost theimmune response against cancer cells or theHIV virus. In that setting it is given at high dosesbut unfortunately efficacy has been limited.

Q. How will low doses of IL-2 help to rebalancethe immune system?

A. We are learning that T-reg cells are very sensitive to IL-2 and can respond to it very effectively even at very low doses. At thoselow doses, stimulation of effector cells wouldbe minimal, if any. Thus, low dose IL-2 could rebalance the immune system towards a moreregulated state, with increased T-reg functionand better control of unwanted responses.

Q. Low dose IL-2 has recently been used inclinical trials for type 1 diabetes. What werethe results of those studies?

A. Results from the first low dose IL-2 trial conducted in France by Dr. David Klatzmannand his team have been recently reported.Three different low doses of IL-2 have beengiven for a short period of time to patientswith newly-diagnosed type 1 diabetes, to assess safety and whether IL-2 increased T-regcells. Overall, there was no evidence of diabetesworsening and at these doses IL-2 was safewith rare side effects, which were never serious.There was also evidence the T-reg cells increased in several patients. In some, therewas evidence that the effector immune responses associated with type 1 diabeteswere being inhibited. These results are verypromising and we are directly collaboratingwith Dr. Klatzmann on the study of patients inthe trials. For example, together with Dr. TomMalek, a leading IL-2 expert that co-leads thisDRI project, we will examine samples frompatients from this first trial to understandbetter the cellular and molecular changes induced by the treatment, also in relation tohow well a patient responded to the therapy.This will also help identify which patients aremore likely to benefit from low dose IL-2 therapy.

Q. How does this research fit into our BioHubapproach?

A. The BioHub includes local delivery ofmedications that can support the function ofinsulin-producing cells and control the immunesystem. Low dose IL-2 could be given in thiscontext and, by promoting immune regulation,improve the function, survival of insulin-pro-ducing cells in the BioHub. It would also helpreduce side effects if it could replace immuno-suppressive drugs or reduce their dosage.Based on current knowledge, IL-2 might be effective without using immunosuppressivedrugs, but this remains to be tested.

Q. In a recent Insulin Nation interview, youcommented that beta cells are not being en-tirely destroyed, but rather “switched off.” Canyou further explain why you believe this to bethe case and why this therapy might be the key?

A. I think that evidence is building up thatsupports this contention. We have been studyingtransplant recipients who, after years of normaltransplant function, developed diabetesonce again because the autoimmune processhas been reactivated and now attacks the

WITH ALBERTO PUGLIESE, M.D.

Page 11: DRIfocus Newsletter Winter 2014

AROUND

THE DRIRICORDI APPOINTED PRESIDENT OFITALIAN BIOTECH RESEARCH FOUNDATIONDRI Director Camillo Ricordi, M.D., has been appointed president of the Ri.MED Fondazione(Ricerca Mediterranea) in Palermo, Italy. Ri.MED is dedicated to the development of newmedical therapies and the rapid translation of innovative results into clinical practice for patients worldwide.

With this prestigious appointment, Dr. Ricordi and the DRI will be able to generate evengreater opportunities in the field of cell repair, replacement, regeneration and reprogramming,which are critical to our work in developing a biological cure for diabetes.

The Ri.MED Fondazione was established in 2006 by thePresidency of the Italian Council of Ministers. This international effort is funded by the Italian government,which is one of several partners that also include thePresidency of the Region of Sicily, the Italian NationalResearch Council, the University of Pittsburgh and theUniversity of Pittsburgh Medical Center.

“It is an honor for me to serve as president of Ri.MEDFoundation. This will be an important pillar forregenerative medicine and biomedical research ingeneral in Europe and will provide more opportunitiesfor collaboration that will allow us to accelerate research toward a cure for diabetes,” said Dr. Ricordi.

CARMEN FOTINO, PH.D.,AWARDED SCHOLARSHIP TO ADVANCE IMMUNOLOGY RESEARCH

Since arriving at the DRI in 2009 from the University of Pisa inItaly, Dr. Carmen Fotino has focused her research on preserving thefunction of beta cells after islet transplantation and ways to teachthe immune system to accept these cells long term. A member of theDRI’s Preclinical Cell Processing and Translational Models laboratoryheaded by Dr. Antonello Pileggi, her goal is to ensure that promisingfindings can be translated to patients living with diabetes.

Dr. Fotino will have an opportunity to build on that work as the recipient of a scholarship to the 2014 Advanced Course in Basicand Clinical Immunology offered by FOCIS (Federation of Clinical

Immunology Societies) in February. She is one of only two researchers from the University of Miami Miller School of Medicine chosen to attend the program after a competitive selection process.

“The FOCIS Advanced Course will give me the opportunity to understand more in-depth theimmune pathways relevant to autoimmune diabetes and cellular transplantation. Furthermore,the clinical immunology component will provide valuable insight to strengthen the translationalfocus of my research,” said Dr. Fotino, who was selected for her commitment to immunologicresearch. She will be among only 25 researchers from around the country awarded scholarshipsto attend the course.

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transplanted pancreas, but there is no rejection [Of note: Since these patients are treated withimmunosuppressive drugs to prevent rejection,this suggests that anti-rejection drugs do notalways prevent or control autoimmunity.]

When we examine the transplanted pancreas,we find that only about 30 percent of thepancreatic islets, the structures that containthe insulin-producing cells, appear affected.Thus, a large proportion of insulin producingcells are still there and apparently intact.However, even after specific metabolic teststhat stimulate insulin secretion, we observeno or minimal secretory response from thesepatients. In other words, there are plenty ofinsulin-producing cells, but they are not functioning.

Moreover, as co-director of the JDRF nPOD(Network for the Pancreatic Organ Donorswith Diabetes, JDRFnPOD.org), I am involvedin ongoing studies of the pancreas fromorgan donors with type 1 diabetes. In many ofthose donors, we are observing the presenceof significant numbers of insulin producingcells even many years after disease diagnosis.

Lastly, recent studies have reported that in-sulin secretion persists in many patients foryears after diagnosis. All of the above andother studies not mentioned here point tothe chronic nature of the disease process, the potential ability of insulin-producing cells to survive and/or regenerate, both of whichsuggest a wider therapeutic window for patients with type 1 diabetes.

Typically, most trials have been conductedwithin 3 months of diagnosis, but based onthe above, I suspect that patients may betreated and perhaps recover, at least partially,even years after diagnosis. At the same time,a dysfunctional state may exist, especially at the time of diagnosis that may contribute significantly to the diabetes symptoms be-sides the actual loss of insulin-producing cells.

Thus, improved regulation of the immunesystem and therapies that improve the function of insulin-producing cells may besynergistic and afford benefit to patientswith type 1 diabetes, hopefully even at laterdisease stages than previously thought.

Page 12: DRIfocus Newsletter Winter 2014

A doctor, an actor, an advocate, an editor – these are just some ofthe dreams shared by the group of young people featured in ourrecent Future Free from T1D campaign. Ten voices of the millionsliving with diabetes expressed their hopes and dreams, but alsotheir concerns for the future.

“If I’m not healthy now, how will it affect my future,” questionedone. “We have to use needles and insulin just to keep ourselvesalive,” said another. And another proclaimed, “No kid should haveto deal with this!” Don’t you agree?

Then, they asked you to step to the plate and help find a cure –for them and millions of others – by supporting the DRI. And so many of you did! We want to thank you so much for your generosity and for helping us move our promising research on the DRI BioHub forward.

We also want to thank the families who participated in this campaign. We love featuring those living with diabetes. Send us a photo of your childand tell us what “a future free from T1D” would mean to your family, and you just might get published! Email us at [email protected]

YOUNGSTERS SHARED THEIR HOPES ANDDREAMS FOR A FUTURE FREE FROM T1D

WE LOVE OUR KIDS!

Page 13: DRIfocus Newsletter Winter 2014

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Parents of the PEP Squad are on Facebook at all hours of the day andnight empowering each other with experience, wisdom, guidanceand comfort. One concerned mom posted this question recently:

There is an underlying theme of anger/frustration regarding havingT1D that comes out of my son more than once in a while. I feel it is notfar from his thoughts all the time. It might just take a BG check or aPOD change or counting carbs to ignite the fire and he'll start expressinghis disdain. So...how do we get him past the point of anger/frustrationto acceptance?

Dozens of responses instantly populated the News Feed. Since itseems to be a hot topic that most families affected by diabetes comeup against at some point, we asked Dr. Wendy Satin Rapaport, theclinical psychologist who mentors the group, to provide some professional advice.

According to Dr. Rapaport:Anger is both necessary and important; it’s how we move forward. Itis part of the grieving process of the diabetes diagnosis. But it alsorears its head during different milestones in growing up and in ourdaily lives when we place too much emphasis on outcome instead ofeffort. For example, a parent’s response of, “How on earth did you getthat number,” is quite different than, “So glad you tested."

I believe parents have more skills than they even realize. Think abouthow you might teach a child who is angry to move forward...if theydidn't have diabetes. The most important words we might use withour children who are angry are, “Tell me more.” It takes courage tohear it and to say it because all of us are wrapped up with emotionalresponses to diabetes. As a parent, you’re grieving and dealing withanger, as well.

That’s why I like to think in terms of prevention, prevention, prevention.Your diabetes healthcare team should include someone who is skilledin health psychology. This field includes: the recognition of grief asresponse to the diagnosis—expanding coping mechanisms such asself-awareness, honoring and accepting your feelings, positive “self-talk;” expression through conversation, counseling, writing, musicand sports; social competence skills—dealing with nagging, criticism,questions or what feels like insults. We need a village of support.

Sometimes it takes retraining and the understanding of letting go of perfection. Adolescence, particularly during puberty, has manychanges because of growth and hormones that may impact the out-come of blood sugars. Simply doing what you did before no longerguarantees a predictable number. For instance, when reacting to ablood sugar of 300, the young person and the parents must learn to say, “It’s information, not an indictment or judgment. I will takecharge and get the blood sugar down. Later when I'm feeling better, I will think about whether there was anything I might have done differently. I'm a good person who has a 300 blood sugar.”

And finally, let me recommend self-compassion, where we are:human not perfect, kind to ourselves, and mindful not reactive (according to psychologist Kristen Neff ). It’s the best medicine for all of us.

Don't be afraid of anger. “Tell me more.” Don't shut down anger. “Tell me more.” Feel glad (that's a paradox!) that your child feels safe toexpress it. It can be much more of a danger when it goes undergroundand is not dealt with. Let the answers come from your child. It isyour job to listen, and if they allow, hug! So, tell me more.

Join the conversation at: Facebook.com/groups/PEPsquadDRI

When your child articulates anger about diabetes, a good response might be,“Tell me more.” Be thankful that he/she is able to express that emotion toyou, rather than bottle it up inside.

ANGRY ABOUT DIABETES? “Tell Me More”

Page 14: DRIfocus Newsletter Winter 2014

Youthtopia™ Beverages,with its breakthroughhydrating sports bever-age Alley Oop™, hasteamed up with the Diabetes Research Institute Foundation to increase informationand education about diabetes and promoteawareness of healthierbeverage choices whileraising funds for cure-

focused diabetes research. A portion of sales is donated to the DRIF in support of a future free from diabetes.

“We are incredibly proud to be partnering with such a prestigious andglobally-respected diabetes organization,” said Dr. Brenda Faye Jones,creator and founder of Youthtopia Beverages™. “I have seen too manyyoung people with diabetes, and with our DRIF partner, we can bothhelp young people learn more about what they can do to makesmarter choices and provide critical resources to find a cure for thisdreaded disease.”

Aside from being a DRIF generous partner, Youthtopia truly offers agreat product. Alley Oop™ is a better-for-you isotonic/hydration drinkthat is:

• Low calorie• Low sugar• Low carbohydrate• Caffeine free• Gluten free• Vitamin enhanced• Formulated to hydrate naturally and replenish electrolytes

during regular and aggressive activities

Designed specifically for active youth, teens and young adults, each 16oz. bottle of Alley Oop™ sells for $1.99 at select retailers and can alsobe purchased at YouthtopiaBevs.com. Its first-available, all-natural flavor is Citrus Grind, with Fruit Punch and Strawberry Mango comingout soon. The DRIF logo will appear on all Alley Oop™ product packaging.Reflective of its commitment to today’s youth culture, the company alsohosts Alley Oop™ radio at YouthtopiaBevs.com, Live365.com and itsmobile App, Roku, Tivo and coming soon to iTunes and Pandora.

“We’re happy to partner with Youthtopia Beverages, which is a company dedicated to supporting health organizations and all healthand wellness issues facing today’s youth, including type 1 diabetes,”said Tom Karlya, vice president of the DRI Foundation. “We lookforward to sampling opportunities at some of our upcoming events.”

YOUTHTOPIA BEVERAGES® OFFERS HEALTHIER HYDRATION, SUPPORTS DRI

That’s Commitment

Niki Nick LongZach Treese

Lindsey Inserra-Hughes John Hughes

Alley Oop™ tastes great and has only 40 caloriesand 10 grams of sugar per bottle

LET ME COUNT THE WAYS TO GIVE

Page 15: DRIfocus Newsletter Winter 2014

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Send an eCard

Visit: DiabetesResearch.org/eCards

Show your DRI Spirit

CafePress.com/DRIMerchan-dise

DiabetesResearch.org/keep-calm-and-cure-diabetes

As much as Father’s Day is a custom, so is D.A.D.’s Day, thanks to the Building and ConstructionTrades Department (BCTD), AFL-CIO, led by President Sean McGarvey, who is also a member of theDRIF's National Board. The Dollars Against Diabetes campaign has become a union tradition in which scores of local and state councils participate annually to raise funds for the DRI.

“Personally, I have been associated with this program for the past 27 years in one form or anotherand have seen firsthand the direct impact that our collective efforts are having towards findinga cure for diabetes,” said McGarvey.

What started with a few bucket collections has grown into full scale events, such as motorcyclerallies, walkathons, golf tournaments, softball tournaments and more, held across America.

One of the most successful D.A.D.’s Day efforts in the country is organized by Dan Baumann, Edward Christensen, John NcNerney, and John Valone of the International Union of Elevator Constructors Local 2 in Chicago, IL. They are motivated by tradition, but their work is heartfeltsince the family of Tim Nix, a retired member of the union, is affected by diabetes. This year thegroup held a Dad’s Day Boat Ride on Lake Michigan on September, 19, which featured an eveningon the decks of the Anita Dee with dinner and dancing to the sounds of Frank Sinatra. On September 21, hundreds more gathered at Glen Eagles Country Club in Lemont, IL, to enjoya gorgeous fall day on the course. Special guests Shaun Gayle, defensive back for the 1985 SuperBowl Chicago Bears, and Bob Love, the beloved Chicago Bulls All-Star, were on hand to play golfand sign autographs as well.

Two thousand miles away, the 13th Annual Washington CLUB Charity Golf Classic took place at the beautiful Gold Mountain Golf Club in Bermerton,WA. On June 12 the Pre CLUB featured a 4 person best ball format with options to partake in a “Honey Pot” and “The Cut Line” games. The followingday, the Main CLUB began with breakfast, followed a four person scramble format. Many contests and activities were offered on the course, including a new addition this year – the Rainier Investment $1,000,000 Shootout! Organizer Jon Betterdorf was pleased to welcome supporters to the awards banquet, giving special mention to Title Sponsors including Sue & Mike Raney, Washington State Building & ConstructionTrades, Washington Capital Management, Inc., IBEW Local 46 of Seattle, and National Electrical Contractors Association.

We’re thankful for the longtime support of these councils and so many more that make it possible for DRI researchers to take consecutive stepscloser to a cure. Over the years, these men and women have so generously given of their time and efforts that total contributions to the DRI havesurpassed $45 million, historically making the BCTD the largest single contributor to our mission.

D.A.D.’S DAY, A UNION TRADITION

1) Ed Christensen and Tim Nix of the InternationalUnion of Elevator Constructors Local 2 in Chicago,2) Pat Towner, retired member of IUOE Local 612,and John Stockman of Washington State Council ofFirefighters, both committee members of the BCTDD.A.D’s Day Washington C.L.U.B. event

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Page 16: DRIfocus Newsletter Winter 2014

NBA All-Star Ray Allen and his wife, Shannon, haveteamed up with longtime DRIsupporters Andria and JavierHoltz to hold the Ray AllenGolf Classic and Ray of HopeLuncheon, presented by

Hublot, on Monday, January 27. Formerly known as the DRI Golf and Tennis Classic and Friends Celebrating Friends Luncheon, both eventswill occur at La Gorce Country Club on Miami Beach, FL. Registration for144 golfers will begin at 10am, followed by brunch and a shotgun start.At 5 p.m. a cocktail reception and awards dinner will commence at theprivate club. Beginning at 11 a.m., the luncheon will feature a deliciousmeal and fashionable surprises, plus a silent auction including the popular vintage handbag corner. Andrew Holtz, now 19, was diagnosedjust after his 7th birthday. With their previously held events, the Holtzfamily has raised nearly $2 million for the DRI. Andrew’s older siblings,Matthew and Nicole, have always been very involved. Walker Allen wasdiagnosed with type 1 diabetes at 17 months old. The families arethrilled to be combining efforts in their shared quest to a cure. Sponsor-ship opportunities are available at DiabetesResearch.org/Ray-Allen-Golf-Classic and DiabetesResearch.org/Ray-of-Hope-Luncheon.

On Saturday, February 15, music legend Barry Gibb will return oncemore to the Love and Hope Ball to help commemorate the 40th anniversary of this black-tie affair by giving an exclusive concert. He and his wife, Linda, serve as Love and Hope International Chairmen,as well as honorary members of the DRI Foundation’s board of directors. The milestone event will be held in honor of Life ChairmanSonja Zuckerman and DRI Director Dr. Camillo Ricordi. According to

Executive Chairman SandraLevy, an extra element of funhas been added to the event,an after-party featuring a pop-ular deejay and a Viennesedessert table that will followdinner and the concert. Scheduled to take place atthe Westin Diplomat Resortand Spa in Hollywood, FL.The Ball will also recognize:Shirley Harris, Janie andRonald Kupferman, Barbaraand Norman Shapiro, Mercedes and David Carlson,Sandy and Senator PaulSteinberg and Sheila Wohl.For more information, visit

DiabetesResearch.org/Love-and-Hope-Ball.

Thousands will participate in The DRI Walk for Diabetes & Family FunDay Presented by Walgreens at the home of the Miami Dolphins, SunLife Stadium, in Miami Gardens, FL. Once again, a second Walk will takeplace concurrently on Saturday, March 8, in Tradition Square of Port St.Lucie, FL. Always at the corner of happy and healthy, Walgreens employees invite customers, community members, families andfriends to join them at this fourth annual event, which is expected tobe the biggest and best yet! Whether they choose to walk as individualsor with a team, everyone involved will be taking steps alongside the DRI toward a cure for diabetes. They’ll enjoy family friendly entertainment, plus music, free giveaways, refreshments, health boothsand much more. Watch a video from the 2013 event and learn all youneed to know at WalgreensWalk-DRI.org. You can also join the conversation on Facebook atw w w . F a c e b o o k . c o m /WalgreensWalkDRI.

This year, New York City’s Carnival for a Cure and Long Island’s KidsParty for a Cure are merging intoone stupendous event renamedKids’ Carnival for a Cure! Led byFrankie Lam, Sheri Donaldson,Susan Rubinstein and Lauren andSteven Field, the committee invitesfamilies throughout New York tojoin them on Sunday, March 16, atDave and Buster’s at the Mall atThe Source in Westbury. Playingtheir way through the day, children(and adults!) of all ages will spend 1-4 p.m. in revelry, while bondingwith other families affected by type 1 diabetes. Attendees will play theirfavorite video and arcade games and try out those newly released,bounce on inflatables, play pool and more. When in need of recharging,they will enjoy a wide selection of food and beverages sure to please allpalates. Thanks to a silent auction, sweepstakes and goody bags, allwill depart with something fun in-hand and the spirit of philanthropyin-heart. Sponsorship opportunities and online registration will soonbe available at DiabetesResearch.org/Kids-Carnival-for-a-Cure.

Check the back cover to see more events scheduled for the of 2014!

FOR THESE AWESOME UPCOMING EVENTS

Featuring celebrity support, family fun, golf, galas, milestones and much more, the 2014 DRI Foundationevents schedule is packed and primed to impress! Here’s the scoop on a few of the fundraisers thatwill start the New Year off right for the DRI.

CARNIVAL

benefiting

Page 17: DRIfocus Newsletter Winter 2014

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Organized by Scot Stodart, Fishing for a Cure was held on August 3 at Kent Lake in the Kensington Metropark of Milford, MI. Winners of the tournament, Scott Tyrell and Jason Wilbur, are pictured with Stodart’sdaughter, Abbi, who has type 1 diabetes. This year the event incorporated awasher and dryer sweepstakes into the mix. Proceeds from the day cameclose to $5,500!

Fishing for a Cure

EVENTS

Despite frigid weather, more than 600 community members showed up for the Fifth Annual Thanksgiving Day Chatham Turkey Trot held in the scenic Highlands section ofChatham Township, NJ. Attendees had the option of participating in a One Mile FamilyFun Run or a 5K Race. According to event organizer Curt Ritter (pictured), the event raisedmore than $15,000 for the DRI and the local volunteer fire department. Ritter's 9-year-olddaughter, Mollie, was diagnosed with type 1 diabetes five years ago.

Chatham Turkey Trot

A sold out crowd joined New York Rangers legend Rod Gilbert (center) at the beautiful Pine Hollow Country Club inEast Norwich, NY, on Monday, August 12. Held in memory of Anthony John Vitale and Helaine Shari White, the RodGilbert DRI Golf Classic raised $182,000 this year, thanks to Tournament Directors Eric Reeps and Bob Zuckerman andtheir committee. After a day of birdies and boagies, golfers enjoyed a delicous dinner, a fabulous array of desserts,and an incredible live auction. Gilbert, who served as Honorary Chairman, is pictured with Jerry Weinbrom (left), an executive director, and Adam Weinbrom (right), a tournament chairperson.

Rod Gilbert DRI Golf Classic

Buy In for a Cure

Novices and experienced poker players alike enjoyed the Buy In for a Cure Texas Hold’emTournament at The Garden City Hotel on Long Island, NY, Thursday, June 20. Participantstried their luck and skill at becoming the tournament champion while enjoying fabulousfood, cigars, fine wines and spirits. This year’s honoree was Anthony Vitale, a longtimesupporter of the DRI and a member of the Rod Gilbert DRI Golf Classic committee. He ispictured (center) with the chairman of the Buy In for a Cure committee, Allan L. Pashcow(left), and Bob Zuckerman, Buy In committee member and tournament chairman forthe Rod Gilbert DRI Golf Classic.

Page 18: DRIfocus Newsletter Winter 2014

EVENTS

Phil Peterson’s Key West Poker Run

More than 10,000 motorcycle enthusiasts rumbled across the Seven Mile Bridge and onto Duval Street September 19-22 for the biker-style merrymaking that annually accompanies PhilPeterson’s Key West Poker Run. As it has been for 41 years, the festivity in Key West, FL, is also afundraiser. In the past two decades alone, Phil Peterson and his family have raised more than$500,000 for DRI. Despite the event’s undeniable popularity, organizers Drew Peterson (right) andDirk Peterson (left), Phil’s sons, ushered in exciting new elements this year, including more opportunities to win prizes! They are pictured with the victor of the Texas Hold ‘Em game, ChuckHeck, who became the proud owner of a new 883 Sportster Iron.

Cocktails for a Cure

For the second year in a row, Willa’s Wish Foundation donated $30,000 to the DRI after sponsoring Cocktailsfor a Cure, which was held at Hudson Terrace in New York, NY, on Saturday, September 21. The Foundation wascreated by Leslie Hsu Besner and Greg Besner after their daughter, Willa, was diagnosed with type 1 diabetesat the young age of 4. Now the whole family, including Willa's little sister, Lana, is involved in trying to makeher wish for a cure come true. Special thanks are extended to everyone who helped make the event such a success!

Pig Roast for a Cure

The Otten family from East Islip, NY, has been organizing a traditional backyardbarbeque in support of the DRI since 2005. Each fall, hundreds gather to enjoyfood, fun and philanthropy. Shown with Tony Childs are Gigi (left), Michael (2ndfrom right) and Nicholas Otten (right), who has type 1 diabetes. This labor oflove has raised more than $150,000.

Gold Coast Concours/Bimmerstock

The sudden roar of engines broke the tranquility of Glen Cove, NY, on Sunday, September 8, when more than 600 exotic cars lined the streets downtown for the5th Annual Gold Coast Concours/Bimmerstock. Presented by Martino Auto Conceptsand Exotics4Life.com, the automobile show has become one of the largest on theeastern seaboard, attracting thousands. According to Chairman Joe LaPadula(center), the event raised $80,000. Also pictured are: (l-r) DRI Foundation NortheastRegional Director Tony Childs, Nassau County Legislator and DRIF board memberDelia DeRiggi-Whitton, Tom Suozzi and Jon Holzer.

Page 19: DRIfocus Newsletter Winter 2014

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On October 17, the New York Real Estate Division of the Diabetes Research Institute, which is led by Chairman Peter L. DiCapua (pictured), held an intimate reception at The Durst Organization’s NYC headquarters, commencingthe celebration of 30 years of support for diabetes research. Longstanding and generous donors received crystalCycle of Discovery awards in recognition of their dedication to the cause. Committee members and past honoreeshad an opportunity to meet this year’s Empire Ball honorees (see photo on cover): Jay Badame, President and COOof NY/NJ/PA of Tishman Construction, an AECOM Company; Andrew Cooke, Vice President Property Management ofHines as agent for Morgan Stanley; and Joseph "Dee" Dussich, CEO and President of JAD Corporation of America. The30th anniversary gala was held on December 11 at the Grand Hyatt in NYC. See photos in the next issue.

Empire Ball Kick Off

The sixth annual All in for a Cure Texas Hold ‘em poker event took place on Tuesday, November 5 at The Grand Havana Room in New York City. More than 200 guests enjoyed fine wines, spirits and cigars, while taking in breathtaking views of Manhattan andplaying lively hands of poker. The evening was a great success, raising more than $300,000.In its six-year history, the event has grossed well over $1 million. Pictured are event co-chairs(l-r) Samantha Shanken Baker, Isaac Khafif, Ricardo Salmon, Jordan Dickstein, Greg Rosenberg, and Troy Gregory. Congratulations are extended to this year's first-place finisherRichard Chamberlain, Jr. and second-place contender Josh Simons.

All in for a Cure

The 15th Annual Fall into Fashion event featured a fabulous runway show by Donna Karan New York at Americana Manhasset, a fantastic luncheon, sweepstakes and a silent auction full of fabulous items.InStyle Editor-at-Large Hal Rubenstein served as Master of Ceremonies at the event, which was held atThe Garden City Hotel in Garden City, NY, on November 7. Raising $180,000 this year, Fall into Fashion hasraised $3 million cumulatively. During the program, Doreen Peykarwas recognized with the DistinguishedService Award. It was a fabulous affair, thanks to Co-chairs Fran Helfant, Korey Liebmanand Eileen Zinn,and Honorary Chair Barbara Hatz (photo on cover) and a hardworking committee.

Fall into Fashion

The Donaldson Organization Golf Outing

On September 30, the famed Winged Foot Golf Club in Mamaroneck, NY, played host to theThird Annual Donaldson Organization Golf Outing. Nearly 300 golfers played on two coursesthroughout the day, and 100 more guests joined them for dinner. Thanks to lead sponsor BobDonaldson and the hard work and generosity of many others, the event made a record-breaking$700,000. Honorees included Scott Corneby, senior vice president and director of operationsat Structure Tone, and Ark M. Latt, Vice President, Construction - U.S. Operations with Brookfield Office Properties. Pictured with Bob (left) are his grandson, Matthew Donaldson, whohas type 1 diabetes, and his son, Doug Donaldson, who spoke emotionally about how much heis looking forward to the day a cure is found.

In celebration of its 40th anniversary, Love and Hope kicked off its fundraising season with the Preview Party,which honored Life Chairman Sonja Zuckerman, who has been at the helm of this volunteer group for all fourdecades (pictured with Neiman Marcus Bal Harbour Vice President and General Manager Frances Esquenazi).Underwritten once again by Isabel May, the event was held at a new venue, the incomparable St. Regis BalHarbour Resort, on November 23. According to Executive Chairman Sandra Levy, the event raised nearly$500,000. During the dinner program, honorees for February’s Love and Hope Ball were announced: Honorary Chairman Shirley Harris, Anniversary Honorees Janie and Ronald Kupferman, Love Honorees Barbara and Norman Shapiro, Hope Honorees Mercedes and David Carlson, Ruby Stars Sandy and SenatorPaul Steinberg and Silver Star Sheila Wohl.

Love and Hope Preview Party

Page 20: DRIfocus Newsletter Winter 2014

CALENDAR Ray Allen Golf Classic Ray of Hope LuncheonJanuary 27, 2014 / FLORIDA(See pg 16)

A Gift of Love, A Gift of HopeFebruary 10, 2014 / FLORIDATo be held at The Polo Club in Boca Raton,the 15th annual event, organized by the Palm Beach Auxiliary, will feature a delightful lunch, a unique boutiquefilled with fashionable items, a raffleand an afternoon of card-playing.

Love and Hope BallFebruary 15, 2014 / FLORIDA(See pg 16)

The DRI Walk Presented by Walgreens March 8, 2014 / FLORIDA(See pg 16)

Out of the Kitchen March 13, 2014 / FLORIDAThis spectacular four-course dinner,prepared by up to 20 chefs cooking tableside, will be paired with specially-selected wines for each course. To be heldat the St. Regis Bal Harbour, the night will also feature live and silent auctions, a wine bar, and much more.

Kids' Carnival for a Cure March 16, 2014 / LONG ISLAND(See pg 16)

Shell Key West Challenge April 24-27, 2014 / FLORIDAHeld in the waters surrounding KeyWest, this “scavenger hunt” of fishingtournaments will benefit the DRI. By invitation only.

Vince Wilfork Draft DayMay 2014 / FLORIDANew England Patriots' Superstar VinceWilfork and his wife, Bianca, will playhost once again to an annual draft dayfundraiser in Boston.

Brenda Novak Online Auction for Diabetes ResearchMay 1-31, 2014 / ONLINENY Times bestselling author BrendaNovak will host her 10th annual online auction at BrendaNovak.com.

Crystal Ball May 3, 2014 / LONG ISLANDThis annual black-tie gala alwayssparkles with a fabulous cocktailreception, gourmet dinner, auctions,dancing and more at the beautiful Garden City Hotel.

D.R.E.a.M.S. in the cityMay 2014 / NEW YORKHosted at the Pierre Hotel by AlanKalter of the Late Show with David Letterman, this ninth annual event willfeature specialty cocktails, a seated dinner and dancing, a silent auctionand mission-based live auction.

Don Strock Diabetes ClassicMay 2014 / FLORIDABilled as the area’s longest-runningcelebrity/amateur charity golf tournament, the 31st annual eventwill once again be supported by thelocal produce industry.

Haute Tea May 22, 2014 / FLORIDAThe Young Society of Love and Hopewill host the third annual event, featuring lunch, champagne, silentauction and prizes for the finest hats.

For information on the events or to make reservations, visitDiabetesResearch.org or call one of the DRI Foundation officeslisted below.

Diabetes Research Institute Foundation National Office200 South Park RoadSuite 100Hollywood, FL 33021

address service requested

Non-Profit Org.US Postage

PAIDDiabetes ResearchInstitute Foundation

DRIfocus

DRIfocus

The Diabetes Research Institute Foundation supports the Diabetes Research Institute at the University of Miami Leonard M. MillerSchool of Medicine, whose mission is to develop and rapidly apply the most promising research to treat and cure those now livingwith diabetes. To obtain additional information or request copies of DRIfocus, please call (800) 321-3437 or e-mail [email protected], or visit DiabetesResearch.org.

Marketing & Communications Dept.Lori Weintraub, APRLauren SchreierNatasha NorrisLaurie Cummings

ContributorsGary KleimanGlenn Kleiman Melissa PeñaJill SalterWendy Satin RapaportAimee Siegel-HarrisMitra Zehtab, M.D.

is a publication of the Diabe tes Research Institute Foundation.Winter 2014 / Volume 41 / Issue 1

DIABETES RESEARCH INSTITUTE FOUNDATION

PhotographyDRI / DRIF staff and volunteersVanessa M. Lam / LAM Studios LLCMarc S. Levine PhotographyAndrew Milne PhotographyDonna VictorFrancisco GonzalezClaude Zick

DesignFranz Franc Design Group Inc.

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