revised final
TRANSCRIPT
Consumer ConsiderationAides Control of Future
of Medicalization
Breanna Block
A44498484Undergraduate Student
Interdisciplinary Studies Michigan State University
Abstract
The purpose of this literature review is to expose the issueof mass distribution of cognitive enhancing drugs despite a lack in knowledge about these medications and to expose the negligence of the co-construction (Taylor 1995) that exists between society and industry. Current research does not acknowledge the effect of consumer involvement on the medicalization process; thus, I suggest that in the future social scientists should consider the relationship that might exist within the process of medicalization. I use thehistory of medicalization and of the doctor-patient relationship as well as the revolution leading to societies redefinition of health in order to explain the evolution of medicalization. I follow with a discussion of the implications of the interactions and exchanges associated with these processes and consider suggestions from secondaryliterature for future action in the biomedical field. I argue that current literature primarily focuses on
industries role in all of these exchanges, and that equal consideration should be given to the role that consumers hold. I contest suggestions from sociologists calling on government action and instead suggest that in order control the direction of pharmaceuticalization and the future of medicalization, focus needs to be directed on harnessing thepower that consumers possess in medicalization and pharmaceuticalization. I conclude that proactive consumers have the ability to construct markets that benefit society, as well as maximizing profits of industry.
Keywords:
Medicalization, Cognitive Enhancing Drugs,Pharmaceuticalization, Consumer Empowerment, Pharmaceutical
IndustryIntroduction
Industry has completely revolutionized the way society views
consumerism in order to rack in as much profit as possible.
They encouraged a system where people buy as much and as
often as possible. The implications of this system have had
serious consequences and caused a state of panic because of
a nearly uncontrollable problem that can only be fixed by
revolutionizing society once again. Many things are being
done to fix this problem. Among these is an outcry to
consumers to reconsider their spending habits, expressing
that without the consumer changes in this system are much
less likely.
Ignoring the power of the consumer, is neglecting part of
the problem itself. In the end society is the one enabling
corporations to continue this way. Limiting corporations is
only half of the battle. I argue that by empowering
consumers and creating effective citizen groups, instead of
limiting industry you are changing the market by which
industry lives by. In this review I hope to provoke
awareness of an incredibly similar issue, with the hope that
something can be done to keep another industry from running
its course on society.
The purpose of this literature survey review is to explore
the negligence of the co-construction (Taylor 1995) that
exists between society and industry, indicating a gap in
available literature from social scientists. Though a more
accurate definition is presented later, for the purposes of
this paper, the definition of co construction will consider
the potential combined efforts causing mass changes in the
way society views health. In addition, I use the following
terms throughout this paper interchangeably: consumers and
society and industry and suppliers of cognitive enhancing
medications.
I hope to stress importance of the issue that these drugs
continue to be rapidly diffused into society are being
adopted into the American way of life, even though access to
knowledge on the long term effects of medicalization and
cognitive enhancing drugs is limited. I begin by looking at
the history of medicalization in order to provide a better
idea of the interactions that have led to our current
status, examining the doctor patient relationship before and
after the legalization of direct to consumer advertising. I
then discuss literature that looks at the pharmaceutical
field and cognitive enhancing drugs in order to explain
societies redefinition of health and the reason behind an
increasing market for these medications. I discuss
implications of the wide spread distribution of cognitive
enhancing drugs and also provide current literature from
social scientists in order to identify a gap in knowledge.
I argue that society and industry are co-constructed,
however current literature is primarily focused on the
pharmaceutical industry’s effects on society. I use a
redefined health model to argue that although the literature
provides a great basis of the causation of increased demands
for cognitive enhancing drugs, it neglects to give
appropriate attention to a crucial piece of the puzzle,
which is that of the “consumer” in every exchange. I explain
that industry is strongly dependent on demands for their
products and without it, they are unable to survive.
Therefore, I argue that consumers are one of the largest
stake-holders and that they have the potential to
revolutionize medicalization by redefining the demand that
pharmaceutical industry survives by. Lastly, I suggest that
further research should consider the potential power
consumers have in medicalization and look at ways of
harnessing this power in order to make positive changes for
society.
Background
Before the eighties, perceived level of personal health was
based off of the assumption one was healthy until they felt
physically sick. If a patient experienced symptoms that
effected their perception of wellbeing and reached a level
of concern, they sought out their medical provider for an
explanation. Their provider would assess their symptoms,
apply knowledge and suggest a form of treatment. The
patients adopted the treatment until their symptoms
decreased and they returned to their original state of
perceived healthiness (Dumit, 2012).
Sociologists have been studying medicalization since the
sixties (Conrad, 2014). Most had came to the agreement that
medicalization had evolved into a complex network of social
forces. Conrad summarizes the work of most social
scientists, suggesting three main factors attributing to
medicalization, the expansion of medical jurisdiction, the
power of social movements and interest groups, and directed
organizational professional activities (creation of new
medical careers that had no reason to exist before) (Conrad,
3-4).
The doctor patient relationship was strongly dominated by
medical professionals. These entities often served as a
patients only link to knowledge about the status of their
health and therefore held a position of high authority in
society. There was a large disconnect between events and
actions occurring within pharmaceutical industry and the
events and actions occurring within society. The only link
between producer, or for the purpose of this paper,
pharmaceutical industry and patients, the consumers of
cognitive enhancing pharmaceutical products, was through
medical professionals. These entities stood as the deciding
factor for dictating what information reached its patients
and therefore had most of the control over what direction
health and treatment were going to head in. Another
conductor that existed in the process of medicalization
during this time were advocacy/patient groups who would work
to gain awareness of a human problem and could sometimes
gain recognition of that problem as a medical condition,
however these groups were not always successful (Hackett, E.
J. et al., Epstein, Steven. 1995).
Physicians decided whether or not a human problem was
considered a disease, and which of those problems deserved
medication as treatment. In addition, they decided which
method of treatment to use. If a treatment was found to
cure, decrease symptoms or improve health, industry first
had to convince doctors of the efficacy of a treatment. If
there was more than one treatment for a problem, industry
had to convince doctors that their treatment was better than
another. This power held by medical professionals existed on
both sides of the consumer supplier relationship, further
contributing to their power. Demands for assisted medical
care can be seen through the creation of many new medical
professional careers, which further strengthened their
autonomy as conductors in the process of medicalization
(Conrad, 2005).
Some felt that this system gave doctors too much control
over the medical health of their patients, movements started
popping up, aimed at giving people more of a say in their
medical decision-making. So “In 1981 pharm. Pharmaceutical
companies proposed to the FDA to open up their marketing
strategies from physicians to the consumers” (Palumbo, B.
F., Mullins, D. C. 2002). The premise was that this would
allow patients access to knowledge about disease and
treatment that they did not have access to prior. It was
thought that increased knowledge increased awareness of
health concerns and would promote a society that was much
more knowledgeable about their medical health (Palumbo, B.
F., Mullins, D. C. 2002).
There was much debate surrounding this request, and the FDA
saw very early on the potential problems that would arise,
however, it was finally agree upon and “In 1985 it was
decided that pharmaceutical companies could advertise as
long as they met with the existing standards/regulations
that were designed to protect the consumer from false or
misleading information” (Palumbo, B. F., Mullins, D. C.,
2002). Despite mixed opinion over this change, it would be
some time before any effects from this legislation would be
seen, so it became a waiting game for both parties.
The ‘golden age of doctoring’ (Conrad, 2005) began coming to
a close. Conrad suggests that the driving force of this
revolution can be traced back to pharmaceutical companies
and managed care companies who slowly established a
competitive consumer market within healthcare. As a result,
“Large numbers of patients began to act more like consumers,
both in choosing health insurance policies and in seeking
out medical services. In addition, managed care
organizations, the pharmaceutical industry, and some kinds
of physicians (e.g., cosmetic surgeons) increasingly saw
patients as consumers or potential markets” (Conrad, 2005).
In many ways it seems patients have been more than happy to
take on the role of a consumer, giving them the power to
make decisions concerning their health and wellbeing instead
of leaving your fate in the hands of a doctor.
Increased knowledge of societal health awareness appears to
be a wonderful step, however, many did not consider that the
entity now providing society health information, was the
same entity that would thrive off of their decreased
perception of health. Therefore is makes sense that for
companies, a huge conflict of interest came into question.
Unfortunately, since companies are ultimately responsible to
their shareholders, the desire for increases in sales
revenue is often taken care of long before patients needs,
leaving the companies in a moral conflict (Palumbo, B. F.,
Mullins, D. C., 2002). Pressures to survive in a competitive
market often overcome pressures to manufacture pristine
medication, especially because financial costs to bring new
medications to manufacture are very high. However, “In 2007
global pharmaceutical sales reached $712 billion with North
America accounting for nearly half of the total sales”
(Petryna, A. 2009). It appears that profit may no longer be
an issue for many of these companies, and yet we are still
not seeing changes in the moral economy of these firms.
Social scientists make note of societal changes regarding
health that have been occurring in the past twenty years.
“The world of medicine has to some significant degree been
refashioned in ways that impinge (variably) upon the
everyday experiences and practices of people around the
globe” (Epstein, 503). Today, patients are still going to
doctors when they get sick, however, they now go to their
doctor for routine checkups regardless of whether they are
feeling sick or not. The most obvious difference is that in
some cases, patients are coming to their doctors with a
preconceived notion of not only the diagnosis they expect to
receive but also their person recommendation or demands for
a particular medication they would like to be prescribed
based on this self diagnosis.
Conrad and Dumit have both suggested that the engines of
medicalization are shifting from the medical profession and
social movements to biotechnology (drug industry),
consumers, and corporate industry – with medical
professionals increasingly taking more of a secondary role
as gatekeepers to health”(Conrad, 2014). This decreased
respect for medical professional knowledge could cause some
problems in the future considering that often the
medications with the highest consumer demand are not well
understood from a long-term health perspective. Though the
medications have made it through regulation, nothing is
known about the health implications of their long-term use.
Yet, medicalization continues to diffuse into the American
way of life, but I pose the question whether society is
aware of the risks they are taking by leaving the fate of
their well being in the hands of industry, especially once
one comes to the realization that providing for societies
well being comes second to the growth of their firm. What is
more alarming is that often, patients never think to
question the credibility of the information they receive
from pharmaceutical firms. The increasing adoption of
pharmaceutical and drug interventions for various human
issues is what many are referring to as the
“pharmaceuticalization” of medicine (Dumit, 2012) and
(Conrad, 2014). The widespread adoption of this process can
be indicated by the rate at which acceptance of this medical
revolution is being taken up by society.
Literature suggests that diffusion and adaption to these
revolutions have an underlying confounding driving force,
pointing toward the entities that perhaps have the most at
stake in pharmaceuticalization, pharmaceutical companies.
Therefore I shift the discussion for a moment to consider
the other side of this debate from a new perspective. As
mentioned, pharmaceutical companies make money by selling
medications affecting the lives of its customers and
therefore are pressured to provide the most effective
treatments for numerous conditions at the same time.
The process they must go through in order to bring these
treatments to market includes getting FDA approval based on
the results of clinical trials conducted on the medication.
If the FDA approves, they grant the company a patent. “The
patent time is limited and pharmaceutical companies are
therefore constitutionally insecure, continually losing
their products and needing to come up with a constant stream
of new drugs to be thoroughly tested through clinical
trials” (Dumit, 2012). These trials are expensive, so like
anyone else conducting clinical research, companies are
financially restricted to running trials on medications that
contribute to revenue. They measure the value of a
medication or condition based on the total number of
potential sales that medication is likely to generate, and
cannot afford to manufacture medications for a condition
unless there is a large demand for its treatment.
Another thing that social scientists make note of is that
more research is being done to identify human conditions
than it is to heal them. “Often no studies are conducted to
determine when it would be better or safer to stop giving a
medication to a patient, even while there are very few
studies of the long-term effectiveness or safety of those
medications. These studies [don’t] interest drug companies
because they would shrink the market” (Dumit, 2012). This
decision may not be all that humane, however it is a crucial
fact of business planning. Without more pressure to provide
for the wellbeing, it is hard for any business to neglect
their profits and no one wants to risk giving away their
clientele, especially when they have an easier more viable
option.
Unfortunately, “The issue at stake for marketers is how to
continue to grow the market big enough and fast enough to
keep up with investors’ expectations, which they often do by
stretching evidence from clinical trials (Dumit, 2012).
“This provides new opportunities for manufacturers to create
the data they want and to arbitrage it in the context of
regulatory drug approval” (Petryna, 2009). Sadly, this is
only a small fraction of the work being done to increase
profit and drive demands.
What is worse is that facts are the most prevalent and
sometimes the only facts about our health that are
available. If clinical trials are too expensive for
industry, it is reasonable to assume that they are too
expensive for other entities as well. “Today, the majority
of clinical research endeavors are industry sponsored. In
1980, industry funded 32 percent of clinical research. By
2000, the figure had soared to 62 percent” (Petryna, A.
2009). Even if more consumers sought out to perform research
that would question the credibility of industry-funded
information, it is unlikely they could generate enough
funding to conduct a study of equal magnitude.
However, that is not yet the issue at stake. With the
exception of some academics, most of society is quite
unaware of what is really going on here. They assume that
once a drug has been approved by the FDA that it is
completely safe, however, such notoriety is nearly
impossible to achieve until more information can be gathered
about the long-term effects of these medications. “As a
general public we know little about the design of research
protocols, the conditions under which trials are carried
out, or the dependability of the evidence about a drug’s
benefits and risks” (Petryna, A. 2009). Ulitimately, we are
left with
Liturature
Current literature provides potential suggestions to solve
this problem, such as requesting government assistance in
conducting research for low demand medications, policy
changes limiting pharmaceutical companies, and restricting
the distribution of cognitive enhancing drugs. I consider
these suggestions from social scientists and discuss issues
with these ideas. I conclude with a suggestion to social
scientists to consider looking at the relationships within
the process of medicalization from a new perspective.
Many people feel that science is something like a “free
market of knowledge” (Sismondo 2010). That is, “they assume
that ideally all production, distribution, and consumption
of knowledge is voluntary, and that it is free from
regulation, interference, or fraud. Moreover, a number of
people take science to largely meet that ideal. We should
not lose sight of ways in which it does not meet that ideal.
In fact, our most successful knowledge regimes are nothing
like free markets, and depend on that fact” (Sismondo,
2010).“There is a persistent and uncritical belief in the
power of neuroscience and its technologies that is feeding a
growing neuro-inspired marketing industry focused on
analyzing consumers' perceptions and tastes, and predicting
their behavior” (Abi-Rached, 2008).
There is literature that considers the implications of rapid
diffusion of pharmaceutical cognitive enhancing drugs,
“Companies based in neuroscience, while in the pursuit of
profit, fail to acknowledge the “ethical, medical, and legal
dilemmas” that can rise from the use of neuro-technology,
and the “rapidly growing neuro-economies.” Therefore, now is
a good time to bring people together to discuss how
neuroscience will be incorporated into our lives as it grows
influence” (Abi-Rached, 2008). Farah takes these suggestions
one step further indicating that a solution might be reached
by concerned the government “Neuroscientists have paid
little attention to the social implications of their field,
and now is critical time to create communication between
scientist and policy makers” (Farah, 2002).
One logical explanation for all of this madness would be to
discontinue the distribution of these medications, however
we can’t because there is such a demand for these cognitive
enhancing drugs. This demand includes people with ADHD and
Narcolepsy, but also all of the people using these
medications for off label use, such as college kids and
athletes. “In sum, enhancement is not just a theoretical
possibility. Enhancement of mood, cognition and vegetative
functions in healthy people is now a fact of life, and the
only uncertainties concern the speed which new and more
appealing enhancement methods will become available and
attract more users” (Farah, 2002).
This relates to the concept of path dependency, which says
that once decisions are made, they will continue to affect
future decisions on that original idea (Mahoney, 2000). If
these medications suddenly become unavailable a black market
for cognitive enhancement would erupt, causing numerous
health and safety risks. Not to mention an increased rate of
criminal activity. Thus it is safe to say that once these
medications were distributed the future of cognitive
enhancing drugs was forever changed. Therefore any arguments
suggesting discontinued manufacturing of these drugs might
want to consider implications that could arise.
There is literature suggesting that pharmaceutical companies
have staggered away from their focus on the health of
society, but other sociologists argue that this was never
their focus. Pharmaceutical companies need to profit in
order to survive. This is why they only focus on mediations
that have a large market or why they create markets if they
need to in order to get profits. In fact, some
pharmaceutical companies say it is not their fault they
aren’t making medications for certain types of diseases
because they can’t until a larger demand exists for these
neglected health issues (Dumit, 2012).
Yet, the majority of research argues that public policies
should be made to regulate these drugs or even
pharmaceutical companies more. Bartfai and Lees suggest that
“If it does not fulfill society's needs, it will not be
successful. Because of its critical role in society, it is
very much the government's business to step in when it is
unable or fails to fulfill society's needs” (Bartfai & Lees,
2010). However this may not solve problems with societies
needs. Not to mention that without knowledge of the long-
term effects of these drugs, it is nearly impossible to
implement lasting and effective policies. It is important to
realize that since pharmaceutical companies cannot survive
without profit and that they will always follow the market.
Something that many people forget is that big pharma is not
set out to ruin the world. Their goal is not to medicate
society, it is to create profit, and they make more money
the more prescriptions they sell. The implications of these
medications almost always come second to the profit they
will make off of them.
If the goal of pharmaceutical companies was to improve
health, they would be looking for treatments that take
people out of a risk category, and off medications which are
directly profiting pharmaceutical companies; a bad business
model from any logical sense. “Often no studies are
conducted to determine when it would be better or safer to
stop giving a medication to a patient, even while there are
very few studies of the long-term effectiveness or safety of
those medications. These studies don’t interest drug
companies because they would shrink the market” (Dumit,
2012). It is reasonable to make the assumption that if
policies were made to limit pharmaceutical industry that
firms would simply find another large potential market to
sell to and who knows what new issues that would bring for
society.
Even some pharmaceutical companies argue that it’s not their
fault they can’t provide medications for more diseases, “Of
400 disease entities identified, only 50 are commercially
attractive by todays requirements of return on investment.
Society needs to find a way to make diseases more
commercially attractive if it wants pharma to invest in
treating any of the other diseases. Pharma can only afford
to do research on treatments that have a chance of becoming
massively huge markets because they have a need to grow in
order to survive (Dumit, 22). Unfortunately, potential risk
of side effects are not enough to get these firms to
reconsider manufacturing these medications and even if they
are reconsidering it, no one wants to be the first one to
make the move.
In addition, Sismondo suggests that certain institutions and
technologies can become issues that should be considered by
non-experts as well as experts in the field. “If it is to be
made to work at its best, scientific and technical knowledge
needs to be seen as situated in social and material spaces.
It is, in short, constructed” (Sismondo, 2010). “Until all
of these influences are appropriately recognized and
incorporated in social analyses, most policies designed to
restore the professional ideal have little chance of
success” (McKinlay and Marceau, 2002). Before any real
changes can be expected, we need to first be sure we
understand the problem as a whole.
Conrad suggests that, “In a culture of increasingly market-
driven medicine, consumers, biotechnological corporations,
and medical services interact in a complex way that affect
social norms in changing definitions of behaviors and
interventions. The relationship between normative changes
and medicalization runs in both directions” (Conrad, 11).
However, if there is reason to believe relationships run in
both directions today, there is reason to argue that perhaps
these relationships have always existed.
After a review of current literature on medicalization and
the pharmaceuticalization of cognitive enhancing drugs,
discussed suggestions from social scientists, and argued the
inefficiency of these suggestions, I identify a crucial gap
in this literature. A lot of the literature looks at the
role the pharmaceutical industry and biotechnology in
general have played in the medicalization of cognitive
enhancing drugs, but there is not a lot of literature
considering the role that consumers have in the creation of
demand for these drugs. This could imply that the process of
medicalization may not be constructed by pharmaceutical
companies, but could at the same time be constructed by
other forces as well, to say that medicalization is actually
a process that is co-constructed by multiple forces (Taylor,
P. 1995).
Current research does not acknowledge the effect of consumer
involvement on the medicalization process; thus, I suggest
that in the future social scientists should consider the
relationship that might exist within the process of
medicalization. The literature I have looked at describes
the relationship between pharmaceutical companies and
medicalization, however, it is interesting that it has yet
to consider the possibility that the process of
medicalization is actually co-constructed and that consumers
may have a strong relationship with the process of
medicalization.
My suggestion to social scientists is to focus on research
on “responsible citizens” or ideal advocacy groups. I focus
on individual human actors – how consumers’ decisions shape
the overall system. Some focus may also look at the
organizational structures of corporations and measure how
they are changing under medicalization in order to recognize
that both of these things are going on simultaneously.
Academic literature from marketing journals not only
considers consumers role,
“Arguing that increasing use of information and
communication technologies (ICT) is shifting market power
from suppliers to consumers, the ensuing consumer
empowerment is presented as an unintended consequence of
marketing. Marketing implications arising from this consumer
empowerment are examined in terms of a process where control
and management by suppliers over consumer access and
enablement are increasingly difficult” (Pires, G.
D., Stanton, J., Rita, P. 2006). Judging by this information
we can see that consumers do it fact play a role in these
exchanges and that they may have a lot more power than they
realize.
However, this potential power should not be overlooked.
Industry is very aware of the role consumers play, and they
are already learning how to use the power laypeople have in
society for their personal benefit. “Cases show the
influence of corporations and markets in the constitution of
group-ness. For example, Carlos Novas has described how
pharmaceutical company websites may deliberately emulate the
‘look and feel’ of sites produced by patient organizations,
in an attempt to create a sense of ‘community’ between
affected persons and the company” (Epstein, 512). It is a
well known fact that relationship between industry and
social groups has been very intertwined.
Patient groups are a driving force in medicalization and
therefore a blinking target that pharmaceutical companies
seek to gain control of. In some cases they have succeeded
and appear to be manipulated by big pharma. “Spokespeople
from such groups often take strong stances supporting
pharmaceutical research and treatment, raising the question
of where consumer advocates begin and pharmaceutical
promotion ends. This reflects the power of corporations in
shaping and sometimes co-opting advocacy groups” (Conrad,
2005). In cases such as this, social groups are only
contributing to the problem of increasing demand for
pharmaceutical drugs, however, I argue that these forces can
be denied.
I believe the right group could be successful in gaining
support and funding to conduct research that can compete
with pharmaceutical companies, or at the least gain further
information about this topic in general. Future research
from social scientists might look into groups that Ralph
Nator has helped to establish since the seventies, some of
which are still in action today. Another avenue social
scientists might consider is the work being done by Hess.
This work is not considered academic, however, they are
conducting really nice research and are starting to gain
more acceptance from the field of academia (Hess, J. D.,
2009).
This literature review has worked to expose the issue of
mass distribution of cognitive enhancing drugs despite a
lack in knowledge about these medications and to expose the
negligence of the co-construction that exists between
society and industry. Current research does not acknowledge
the effect of consumer involvement on the medicalization
process; thus, I suggest that in the future social
scientists should consider the relationship that might exist
within the process of medicalization. I have looked at the
history of medicalization and of the doctor-patient
relationship as well as the revolution leading to societies
redefinition of health in order to explain the evolution of
medicalization. I have followed with a discussion of the
implications of the interactions and exchanges associated
with these processes and consider suggestions from secondary
literature for future action in the biomedical field. I
argue that current literature primarily focuses on
industries role in all of these exchanges, and that equal
consideration should be given to the role that consumers
hold. I contest suggestions from sociologists calling on
government action and instead suggest that in order control
the direction of pharmaceuticalization and the future of
medicalization, focus needs to be directed on harnessing the
power that consumers possess in medicalization and
pharmaceuticalization. I also suggest potential avenues to
consider, such as groups associated with Nator and the work
of Hess. I conclude that proactive consumers have the
ability to construct markets that benefit society, as well
as maximizing profits of industry.
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