debbie konkle-parker, phd, fnp june 2012. objectives desired content methods to teach on the...
TRANSCRIPT
Objectives
Desired content Methods to teach on the subject: case-
based; worksheet, best practices discussion, panels, brainstormingOthers?
Important Content for training General background: why should I care?
Describe the extent of the problem of retention in HIV care and its effect on health outcomes
Specific background: what has research told us about the problem? Describe the factors that have been found to be
associated with retention in HIV care What can we do about it anyway?
Describe evidence-based strategies to impact retention in HIV care
How can we make this real? Discuss potential strategies in clinical settings
Why is Retention Important? Patient Care and Public Health
Retention has now been proven to correlate with
improved biological outcomes that improve quality
of life for patients [and reduce the likelihood of
further transmission of HIV to others]
National Quality Center
Why is Retention Important? Healthcare Cost
If patients are retained in care, they are more
likely to receive preventive care, use emergency
services less and keep overall healthcare
utilization and costs lower, placing less demand
on human and material resources.
National Quality Center
Why is Retention Important for People Living with HIV?
Hypothesis: Retention in care promotes improved adherence
to treatment which results in lower viral loads, prevention of drug-resistance and improved health outcomes, as well as decreased HIV transmission.
Is there evidence to support the hypothesis?
Why is Retention Important for People Living with HIV?
The Evidence Base:Rastegar, AIDS Care 2003: Missed appointments associated
with detectable viral load. Chart review 1997-99. Lucas, Ann Intern Med 1999: Missed appointments
associated with failure of suppression. JHU. 1996-8.Valdez, Arch Intern Med 1999: Missing <2 appts per year
associated with virologic success defined as <400 copies. Sethi, Clin Infect Dis 2003: Missed appointments associated
with viral rebound and clinically significant resistance at JHU 2000-1.
Nemes, AIDS 2004: Missing 2 appointments associated with decreased adherence among >1900 patients in Brazil.
National Quality Center
Why is Retention Important for People Living with HIV?
The Evidence Base:Giordano, CID, 2007: Less frequent visits associated with
mortality in US veterans starting HIV medicines, even in a system
financial barriers are low.
Mugavero, CID, 2009: In a community setting in Birmingham, AL,
missed visits within the first year of entering treatment was associated
with mortality
Park, Journal of Internal Medicine, 2007: In South Korea, even
one missed visit in the first year after starting HAART was associated
with increased mortality, and this doubled with each missed visit
Mugavero, JAIDS, 2009: The racial disparity in virologic
failure lost significance when adjusted for missed visits.
Why is Retention Important for People Living with HIV?
1 in 5 do not know their HIV status 2 in 5 have not seen an HIV primary
care doctor 3 in 5 don’t regularly see their doctor,
and 5 in 5 are not viral load suppressed
Gardner et al, CID 2011
Why is Retention Important for People Living with HIV?
In a meta-analysis of more than 53,000 people diagnosed with HIV between 1995 – 2009:69% entered care within 4 – 6 months and
had subsequent > 2 visitsOf those, on average, 59% had multiple HIV
medical care visits across different periods of time
Marks, Gardner, Craw, & Crepaz, 2010
Structural and Personal Issues
“Multiple studies have shown that patients who access case management, transportation, mental health support, drug treatment, and other supportive services are more likely to be retained in care than are those who do not.
“Interventions that assist patients to develop and maintain a positive relationship with health care providers and to improve their knowledge of HIV infection and dispel negative health beliefs also improve outcomes.”
Cheever, L.W. (2007). Engaging HIV-infected patients in care: their lives depend on it. Clinical Infectious Diseases, 44.
Factors Associated with RetentionDemographics: Mugavero, JAIDS 2009, CID, 2007, CID 2009 :
higher median Missed Visit Proportion (MVP) seen in younger patients, females, blacks, those with no or public health insurance, those with substance abuse histories;
Giordano, CID 2007: those with better retention in care had more advanced disease, were older, less substance abuse, were more adherent to prescriptions.
Gardner, AIDS 2005: more health care utilization associated with no crack use, older age, use of assistance programs, recent diagnosis, case management
Factors Associated with Retention Rajabiun, AIDS Pt Care and STDs,
2007: engagement in care was associated with level of acceptance of disease; ability to cope with mental illness, substance
abuse, and stigma; health care provider relationships; presence of support system; and ability to overcome practical obstacles to
care.
Factors Associated with Retention Tobias, AIDS Pt Care and STDs 2007:
predictive factors for less retention included substance abuse, number of unmet needs,negative health belief, no insurance.
Predictive factors of more care included having a case manager, having less mental health problems, and use of mental health services.
Provider-Patient Relationship Barrier:
Patronizing communication by provider Facilitators:
Connecting, by giving time and attentionValidating, by treating the patient as an
individual personPartnering, by listening to and
acknowledging patient needs
Mallinson, Rajubian, & Coleman (2007). The provider role in client engagement in HIV care. AIDS Pt Care & STDs
Guidelines for Improving Entry Into and Retention in Care and ART Adherence: Evidence-Based Recommendations from an International Association of Physicians in AIDS Care PanelThompson MA, Mugavero MJ, Amico KR, Cargill VA, Chang LW, Gross R et al, epub ahead of print 3/5/2012 in Annals.org
Grading Scales for Quality of the Body of Evidence and Strength of Recommendations.
Thompson M A et al. Ann Intern Med doi:10.1059/0003-4819-156-11-201206050-00419
©2012 by American College of Physicians
1. Systematic monitoring of successful entry into HIV care (IIA) Collaboration with HIV testing sites Creation of process map regarding entry
into care, to identify where loss is happening and to focus intervention
2. Systematic monitoring of retention in HIV care (IIA) In+Care campaign Clinic-based monitoring of performance
measures Creation of electronic signal when
individual out of care for six months, for initiation of outreach
3. Brief, strengths-based case management for individuals with a new HIV diagnosis (IIB) Based on data from AntiRetroviral
Treatment and Access Study (ARTAS) trial
Antiretroviral Treatment Access Study (ARTAS) Brief case management protocol
allowed up to 5 contacts: 3 for development of relationship, identifying client needs and barriers to health care, and encouraging contact with the clinic.
2 other contacts allowed if needed, including accompaniment to clinic.
Garner, Metsch, Anderson-Mahoney et al (2005) Efficacy of a brief case management intervention to link recently diagnosed HIV-infected persons to care. AIDS, 19(4):423-431.
Trained social workers helped clients to identify their internal strengths and assets to facilitate successful linkage to HIV medical care
ARTAS Results
Results showed significantly greater proportion of case managed individuals saw an HIV care provider at least once by 6 and 12 months (RR=1.41, p=.006)Those with 2 or more contacts showed a
significant difference from SOC Average of 2.6 face-to-face contacts
with clients. Estimated cost $600-1200 per client.
4. Intensive outreach for individuals not engaged in medical care within 6 months of a new HIV diagnosis (IIC)
Outreach Initiative
HRSA Special project of National Significance (SPNS) in 10 US sites 2004-2006 to demonstrate and evaluate the effectiveness of outreach initiatives in engaging and retaining underserved disadvantaged individuals in HIV care
Bradford, J. B. (2007). The promise of outreach for engaging and retaining out-of-care persons in HIV medical care. AIDS Patient Care and STDs, 21(Suppl1):S85-81.Cabral, H.J., Tobias, C., Rajabiun, S., Sohler, N., Cunningham, C., Wong, M., et al. (2007). Outreach program contacts: do they increase the likelihood of engagement and retention in HIV primary care for hard-to-reach patients? AIDS Patient Care and STDs, 21(Suppl1):59-67.
Findings from Outreach Initiative Individuals with 9 or more contacts within the
first 3 months of entering care were significantly less likely to experience a gap in care, especially when the program included accompaniment to visits.
Findings from Outreach Initiative Navigation programs that include skills-
building with clients to build skills/ confidence to develop a partnership with providers significantly improved engagement scores and retention in care
Multidimensional HIV Treatment Adherence Intervention in MS Two face-to-face sessions for
I: HIV education
M (personal): motivational interviewing
M (social): video of peers to improve social motivation
BS: adherence reminder devices
BS: training on how to improve communication with the provider during a medical visit
Konkle-Parker, D., Amico, K. R., & McKinney, V. (2012). Effects of a Multidimensional Intervention on Retention in HIV Care in the Deep South. Manuscript in preparation.
Major Lessons
Barriers to care can be reduced or removed with sufficient resources
Coaching, skills-building, knowledge gains, and respectful, trusting relationships with outreach workers can facilitate better utilization of HIV care
Major Lessons
For the most disadvantaged individuals, more resources and systemic changes are needed to provide equitable access to HIV care
Bradford, J. B. (2007). The promise of outreach for engaging and retaining out-of-care persons in HIV medical care. AIDS Patient Care and STDs, 21(Suppl-1):S85-81.Bradford, J. B., Coleman S., Cunningham, W. (2007). HIV System Navigation: An emerging system to improve HIV care access. AIDS Patient Care and STDs, 21(Suppl-1):S49-58.
Practical Strategies Partnerships with community-based agencies
offer great potential
Supportive services, including navigation and
case management, help increase retention by
removing barriers and meeting needs
Provider engagement and behavior affects levels
of engagement and retention and decrease
sporadic use: fortify relationships
HIV Quality Center
Practical Strategies (2)
Use peers
Target new patients
Help patients access needed services to
remove barriers to care: transportation,
mental health support, drug treatment
Reduce drug use
Dispel negative health beliefs
HIV Quality Center
Other ideas from the literature Co-locating of HIV services
MedicalCase managementPsychiatric servicesSubstance use servicesHomelessness servicesHuman services addressed at poverty
If impossible, patient navigators can help
Addressing Patient Characteristics younger age, substance abusers, women, those with mental health problems, women, those with no insurance, older diagnoses, earlier disease
What else?
Building on Infrastructure Making it a clinic-wide program Roles and responsibilities for all clinic
staffReinforcement of attendanceReminder callsUpdating of contact informationQuestionnaires to identify important issuesData review to identify the target audience
Other roles?
Brainstorm; panels of representatives from different clinics who have worked on this issue; strategizing
PLAN Measure retention prior to intervention
number of missed visits, missed visit proportion (MVP), number of intervals with at least one visit
(persistence), or interval with no arrived visits (gap in care)
Identify problem/target group for an intervention
DO Develop targeted intervention to address the
problem identified and try it for a small group or short period of time