data in the service of the patient is imporving patient outcomes and patient safety with better data
DESCRIPTION
Explains about unanswered clinical questions, use of uptodate associate with improved quality.For more information visit: http://www.transformhealth-it.org/TRANSCRIPT
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OncoCollect ™Collection of Real World Data in Oncology
Dr Ramesh B V Nimmagadda
Director, Medical OncologyApollo Speciality Cancer hospital, Chennai
&Managing Trustee
Ramesh Nimmagadda Cancer Foundation
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1) E M R
2) Clinical Data Collection for Analysis
Are two different things
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THE HARD TRUTH IN 2015
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Medical Oncologists- USA vs. India
New Cases 1.6 Million / Yr 1 Million / Yr
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Workload standard recommendations Canada
Workload for MO in teaching RCCs be set at 158 new patients per year.
Workload for MO in nonteaching RCCs be set at 173 new patients per year.
Annual workload increase would require an additional medical oncologist .
New workload standards be implemented over a three year period starting
in fiscal 1999/2000.
Additional data be gathered periodically to determine the workload standard
and manpower requirements due to changing treatments.
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MO needed estimations for India
• 170 new patients per MO we need 5882 • 340 new patients per MO we need 2941 • 510 new patients per MO we need 1960 • 680 new patients per MO we need 1470 • 850 new patients per MO we need 1176
1 Million new and 1.8 million prevalent cases
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1) E M R
2) Clinical Data Collection for Analysis
Are two different things and both are needed but should be kept separate, in India for sure.
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Breast Cancer 1999-2008
Early Breast Cancer 99-08 Lymph Node
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OncoCollect ™
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Localized Database, Enabled for pooling in the Cloud without Patient Identity Information.
- Encrypted patient identity data- Flexible Dynamic Data Elements, screens on the fly- Responsive Design- Medical Coding- Microsoft .NET Platform- SQL Server 2012- Export to excel and Cloud without Patient Identity Parameters- Built-in Formulas to facilitate Analysis, Statistics and follow ups- Graphical representation of Events
What does it Do...?
www.rncf.in
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OncoCollect ™
Institution - AInstitution - B ---- BLADDER CA STUDY ---- COLON CA STUDYInstitution - C --- BREAST CA STUDY ---- COLON CA STUDYInstitution - D --- BREAST CA STUDY ---- BLADDER CA STUDY
Master (Live Update) Studies
A B C D
- Principal Investigator will have access to download Pooled data of his group’s study
- Data pooled without patient / Consultant Identities
www.rncf.in
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Main ObjectiveEstablish a common platform for data collection in oncology for Treatment and outcomes across the country. Enable individuals and institutions to form groups and pool data for analysis .Enable easy analysis of this data by both individuals and the institutions, to constantly refine their treatments to suit their local conditions.
Ramesh Nimmagadda Cancer Foundation
www.rncf.in
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Ramesh Nimmagadda Cancer Foundation
Vision•To Create a repository of Indian data on Treatment and Outcomes to formulate India-Specific treatment guidelines
for cancer Based on Indian Data www.rncf.in
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OncoCollect ™ Installed so far ..1) Apollo Specialty Cancer Hospital, Chennai
2) Mahavir Cancer Sansthan, Patna
3) Tata Medical Centre, Kolkata
4) Basavtharakam Indo American Cancer Hospital & Research Institute, Hyderabad
5) Rajiv Gandhi Cancer Institute & Research Centre, New Delhi
6) Chennai Breast Centre, Chennai
7) G K N M Hospital, Coimbatore
National Cancer
Grid Accepted
Ramesh Nimmagadda Cancer Foundation
www.rncf.in
Approximately 100000 New patients / Year are seen in these centerswww.rncf.in
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1) 1200 Breast Cancer patient data from Chennai Breast Centre, Chennai2) 750 Lymphoma patient data from Tata Medical Centre, Kolkata3) 165 Triple –Ve Breast Cancer patient data from Chennai Breast Centre, Chennai
To be presented at ISMPO ISO Biennial Conference 6-8 Nov 2015 in Mumbai
Ramesh Nimmagadda Cancer Foundation
www.rncf.in
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Ramesh Nimmagadda Cancer Foundation
OncoCollect ™ is owned by RNCF
OncoCollect ™ is provided free of cost to all involved with treatment of Cancer in India and willing to collect Clinical Data.
www.rncf.in
www.rncf.in
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Thank You
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Establishing Common Minimum Data Collection in the Country
• UHID • Sex• District • State• Postal Code
• Age at Diagnosis• Second Oncology Consultation• Site Of Primary• Date Of Diagnosis• Histology• M Metastases• pT TumourSize• pN LymphNodes• Pathalogical Stage• cT Tumor Size• cN Lymph Nodes• Clinical Stage
Consumed from the EMR
Diagnosis & Staging
• Surgery• Surgical Procedure• Date Of Surgery• Radio Therapy• R/T Site• R/T Start Date• R/T End Date• 1st line Systemic Therapy• 1st Line Drug Group• 1st Line Hormone Therapy• 1st Line Systemic Therapy Type• 1st Recurrence Pattern
• Status• Recurrence
Treatment
Outcome
www.rncf.in
Breast Cancer 1999-2008