Upload File

data sharing with gift-cloud - university college london · protecting patient confidentiality...

  • Home
  • Documents
  • Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised
10
DATA SHARING WITH GIFT-CLOUD Tom Doel

Upload: others

Post on 14-Aug-2020

3 views

Category:

Documents


0 download

Report

TRANSCRIPT

Page 1: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

DATA SHARING WITH GIFT-CLOUD Tom Doel

Page 2: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

BACKGROUND: FETAL THERAPY• 1 in 100 babies are born with a severe medical condition

• Huge improvement in outcome if the condition is treated before birth

• New surgical techniques offer safer and more effective treatments

Page 3: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

Researchers Patients

Expressed or latent need – feedback – co-development

Reduced risk

Improved outcome

Accurate information

Bespoke instruments

Integrated platform

Imaging devicesActuation devicesImage computing

Software

Clinicians

International project to improve the safety and efficacy of fetal surgery by developing novel hardware and software for pre-operative surgical planning and image-guided surgery

GIFT-SURG

Page 4: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

CLINICAL DATA• Imaging data will guide the development, testing and evaluation of our software

• We will collect data from three hospitals in UK and Belgium

• ~1000 patients, ~1million images

• Sensitive data – must protectpatient confidentiality

• Data sharing must not be a burdento the clinician

Page 5: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

GIFT-CLOUD• Data sharing and collaboration platform

• Extensible system linking three hospitals and two universities

• Simplifies data anonymisation and upload

• Direct upload from hospital systems

• Comply with legal and institutional requirements for data collection and sharing

• Groups data by subject while preserving anonymity

• API for integration with analysis software

Page 6: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

Secure storage of anonymised

data

One-click anonymise &

upload

Access anonymised data via web and GIFT-Surg software

KULUCL

UCLH UZL

Page 7: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

Protecting patient confidentiality

Patient confidentiality

q We do not store identifiable patient data

Data is anonymised before uploading.

Patient name, date of birth etc. are removed from the images. This information does not leave the hospital.

q We store our images on a secure server at UCL

Access is controlled by username and password

Access is IP-restricted to approved locations and computers.

All data transfer is encrypted

q We follow NHS and government regulations and guidelines for patient confidentiality and data protection

Encrypted data transfer Authentication

De-identification

Page 8: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

ANONYMISATION• Metadata anonymisation

• Hash patient ID, study UID, series UID

• Replace patient name with arbitrary identifier

• Remove DOB, accession number, …

• Remove private DICOM fields

• Some metadata not removed – risk assessment• e.g. series and study descritions

• Ultrasound pixel data may contain burnt-in annotations• Remove through template matching mechanism – specific to scanner model and image format

Page 9: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

Technical issues• Anonymisation

• Encryption• Security of data server

Legal issues• Data protection act• Common law duty of confidentiality• Data sharing agreements

Institutional regulation•Information governance

•Caldicott guardians•Data protection coordinators

•Ethical review boards

Perception and risk limitation•Patient and public advisory group•Best practices•Audit trail

Sensitive data

Page 10: Data sharing with GIFT-Cloud - University College London · Protecting patient confidentiality Patient confidentiality q We do not store identifiable patient data Data is anonymised

THANKS

www.gift-surg.ac.uk


Confidentiality · Data protection law 25 19 Flowchart 20–21. General Medical Council | 03 Confidentiality: good practice in handling patient information Using and disclosing patient

Value-Based Payment Patient Confidentiality: Issues and ... › health_care › medicaid › ...•The Patient Confidentiality workgroup is comprised of stakeholders who have direct

Value-Based Payment Patient Confidentiality: Issues and ......What amendments or reinterpretations, with respect to patient confidentiality considerations, can be implemented to allow

Mha 690 patient privacy & confidentiality

Working together to achieve the healthiest  · Web viewAnswers enquiries or seeks clarification of data on request forms and patient identification whilst maintaining patient confidentiality

DATA PROTECTION AND PATIENT CONFIDENTIALITY IN RESEARCH Nic Drew Data Protection Manager University Hospital of Wales 2074 6677 2074 5626 [email protected]

Challenges to Patient Confidentiality infographicChallenges to Patient Confidentiality infographic Author FPNTC Subject confidentiality Keywords confidentiality, health center, clinic,

Confidentiality breaches in clinical practice: what ...patient confidentiality. Breaches of confidentiality in clinical practice due to carelessness, indiscretion, or sometimes even

NDRS Molecular and Genomic Dataset · 7 NDRS Webinar Series - Molecular & Genomic Dataset. NDRS data is highly sensitive and patient level Security and patient confidentiality are

Guidance on maintaining patient confidentiality …...Guidance on maintaining patient confidentiality when using radiology 3 department information systems Second edition Introduction

Medical Data Confidentiality 101

UNIVERSITY OF GHANA PATIENT CONFIDENTIALITY: AT WHAT …

Protection of privacy and confidentiality as a patient right: physicians' and nurses ... · 2016-10-22 · Keywords: Physicians, Nurses, Confidentiality, Patient rights. Accepted

Patient Safety Act Confidentiality Training · Patient Safety Act Confidentiality ... Training Overview ... –Provider documents the act and date of removal of such information

Maintaining Patient Confidentiality When Sharing Medical ... · Maintaining Patient Confidentiality When Sharing Medical ... up a patient’s record, ... as a billing system only,

Patient Data: Provider Perspective Protecting the Confidentiality of · Were you warned? “…DoubleClick combines the non-personally-identifiable data collected by DoubleClick from

Patient confidentiality k. creel

Criterion 4.2.1 – Confidentiality and Privacy of Health ...€¦ · Our security policies and procedures regarding the confidentiality of patient health records and ... Patient

Confidentiality of Patient Records for Alcohol and Other …adaiclearinghouse.org/downloads/TAP-13-Confidentiality-of-Patient... · Confidentiality of Patient Records for Alcohol

Reproducibility Confidentiality Data Access

How to avoid patient confidentiality breaches

Lambeth Patient Participation Group Network Information ... · •IG builds patient and staff confidence in how ... important as the duty to protect patient confidentiality. Data

Value-Based Payment Patient Confidentiality: Issues and … · 2017-04-03 · Patient Confidentiality Issues and Considerations 9:45 Create Draft Recommendations 11:00 Conclusions

Patient Confidentiality, Privacy, and Security Awareness

LEGAL IMPLICATIONS IN BREACHING PATIENT CONFIDENTIALITY THROUGH SOCIAL NETWORKS

The Confidentiality of Alcohol and Drug Abuse Patient - Substance

Confidentiality, Patient Safety Work Product, and PSOs

Patient Confidentiality and the Social Network

Confidentiality in the Psychiatrist-Patient Relationship

MHA690: Week 1 Discussion Post 2 - Patient Confidentiality

Patient confidentiality training

Protection of privacy and confidentiality as a patient right ......Protection of privacy and confidentiality as a patient right: physicians' and nurses' viewpoints. Nilüfer Demirsoy*,

Patient confidentiality

Unit 7. Confidentiality and Data Security · Unit 7: Confidentiality and Data Security Page 7.9 Confidentiality and Security Considerations Why is confidentiality important Confidentiality

Confidentiality of Patient Records for Alcohol and Other ...preventiontrainingservices.com/resources/TAP-13-Confidentiality-of... · [confidentiality] is absolutely essential to the