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Project coordinator Health and Arts Research Centre (HARC) Inc used environmental behaviour research (Zeisel 2006), community cultural development (Cameron and Gibson 2001) and sustainable heritage methodologies (Galia 2006) to develop the arts and culture program. The project was primarily a consumer and community engagement project rather than a research study but parHcipants self-reported significant benefits, including improved quality of life, which have been documented by HARC. CriHcal success factors were the high level of engagement from consumers and staff and the use of a non-tradiHonal arts-based engagement methodology to improve clinical outcomes. The project was mapped against the engagement spectrum developed by the InternaHonal Centre for Public ParHcipaHon (IAP2) and models current best pracHce in a consumer-led model of community parHcipaHon which is tradiHonally very difficult to achieve in a public health seOng. The program had four individual projects: Imagine! A mixed media project using photography, video and dialysis consumables Bubbles Gallery An internal feature using dialysis water Cultures of Blacktown Aboriginal welcome painHng Living Library photo and video project where older paHents shared their experience with young adult paHents Being and Belonging is an exciHng, engaging, collaboraHve consumer-led arts project at the Regional Dialysis Centre at Blacktown Hospital. It directly encourages paHents to get more involved in their healthcare and improve their quality of life by expressing their experience through art, and directly influencing their care environment. QR code Facebook/BMDH Project Twi[er @BMDHProject Being and Belonging How art and storytelling transformed the experience of dialysis for patients at Blacktown Hospital’s renal centre The Program Being and Belonging was created by paHents, families, arHsts and staff as part of the NSW Government’s Blacktown and Mount Drui[ Hospitals (BMDH) Expansion Project. AddiHonal support was provided by Blacktown Arts Centre through the Pat Parker Residency Program. An iniHal workshop involving about 100 people (including paHents, carers, friends, staff, community and arHsts) generated the concepts for the artworks and endorsed the objecHve of using art to enhance the physical environment, raise awareness of chronic renal disease and improve quality of life, especially for young adults living with dialysis. Snapshot ! The program increased the parHcipaHon of young adults on dialysis treatment in the support group which has been beneficial for maintaining social connecHon and miHgaHng isolaHon due to chronic disease which is oben seen as an “old person’s problem”. ! Staff and paHents reported that the atmosphere of the centre has been extremely posiHve and collegiate, with the artworks providing a “talking point” on which to connect. ! Using a creaHve, arts-based methodology helped break down disHncHons between staff and paHents, young people and older people, Aboriginal and non-Aboriginal people. ! Staff feel more confident about embracing new approaches to care, to think more creaHvely and to engage more closely with paHents and carers in the delivery and design of services. ! The project has been so successful that it’s provided a model for consultaHon in Stage 2 to incorporate art and cultural elements into a major new community dialysis centre at Mount Drui[. More than 300 engagement interacHons during the project People currently dependent on a[ending our dialysis centres Small percentage under 25 but greater lifeHme lifestyle impact 88 regular dialysis paHents at Blacktown IsolaHon and loneliness affect well-being and treatment compliance 20% Aboriginal and Torres Strait Islander 650 Benefits "“It was quite therapeu5c for staff to do something enjoyable with pa5ents and to create something beau5ful…it’s improved our communica5on skills and given us something in common. The gallery is like our water-cooler…it’s a place to get together and talk.” TaHana, pre-dialysis clinical nurse consultant describing how paHents and staff creaHvely re-imagined common clinical consumables into mini works of art which were then displayed in niches in the Bubbles Gallery. Instagram @BMDHProject bmdhproject.health.nsw.gov.a u Imagine what you could do A new direction: Silia’s story The water cooler effect The fine print Tag us in your posts #BMDHProject Scan to see the interviews at bmdhproject.health.nsw.gov.au Being and Belonging provided dialysis paHent Silia, 23, with the chance to take control when she took on the role of director for the storytelling project Living Library. With fellow Young Adults on Dialysis Support member Frances, she interviewed other paHents to create photo and video stories to help demysHfy dialysis. The project revealed seldom- heard stories of loss, hope and experience and provided a pint of connecHon between different generaHons. The video interviews and sHll photographs form part of the physical and online gallery for the project. “My condiHon doesn’t define me. Nor is it the most interesHng part of me,” Silia said. PaHents Frances (above) and Harry (right) interviewed for the project. “If you worry, you go down. You have to be strong. This is life… this is not our choice but it happened. You can’t do anything. I’m alright. I come here, I joke, I laugh. Most people love me… the nurses…!” Harry, haemodialysis paHent # Scan to see more about Indigenous arHst Peter Williams’ welcome painHng Cultures of Blacktown which welcomes everyone to the centre, promoHng inclusion and understanding. #RouHne and boredom amongst regular paHents was addressed by creaHng temporary exhibiHon spaces in the Bubbles Gallery. Its changeable display space most recently showcased clinical consumables (e.g. gauze swabs, forceps) re-engineered into playful and engaging sculptures by the Young Adults Support Group. # Images from the Living Library complement the online interviews. "Scan with your QR code reader to go to the website for more informaHon about the Blacktown and Mount Drui[ Hospitals Expansion Project and the Being and Belonging program.

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Page 1: Being and Belonging How art and storytelling …...paent Silia, 23, with the chance to take control when she took on the role of director for the storytelling project The video interviews

ProjectcoordinatorHealthandArtsResearchCentre(HARC)Incusedenvironmentalbehaviourresearch(Zeisel2006),communityculturaldevelopment(CameronandGibson2001)andsustainableheritagemethodologies(Galia2006)todeveloptheartsandcultureprogram.

TheprojectwasprimarilyaconsumerandcommunityengagementprojectratherthanaresearchstudybutparHcipantsself-reportedsignificantbenefits,includingimprovedqualityoflife,whichhavebeendocumentedbyHARC.

CriHcalsuccessfactorswerethehighlevelofengagementfromconsumersandstaffandtheuseofanon-tradiHonalarts-basedengagementmethodologytoimproveclinicaloutcomes.TheprojectwasmappedagainsttheengagementspectrumdevelopedbytheInternaHonalCentreforPublicParHcipaHon(IAP2)andmodelscurrentbestpracHceinaconsumer-ledmodelofcommunityparHcipaHonwhichistradiHonallyverydifficulttoachieveinapublichealthseOng.

Theprogramhadfourindividualprojects:

Imagine!Amixedmediaprojectusingphotography,videoand

dialysisconsumables

BubblesGalleryAninternalfeatureusingdialysiswater

CulturesofBlacktownAboriginalwelcomepainHng

LivingLibraryphotoandvideoprojectwhereolderpaHentssharedtheirexperiencewithyoungadultpaHents

BeingandBelongingisanexciHng,engaging,collaboraHveconsumer-ledartsprojectattheRegionalDialysisCentreatBlacktownHospital.

ItdirectlyencouragespaHentstogetmoreinvolvedintheirhealthcareandimprovetheirqualityoflifebyexpressingtheirexperiencethroughart,anddirectlyinfluencingtheircareenvironment.

QRcode Facebook/BMDHProject Twi[er@BMDHProject

Being and Belonging How art and storytelling transformed the experience of dialysis for patients at Blacktown Hospital’s renal centre

The Program

BeingandBelongingwascreatedbypaHents,families,arHstsandstaffaspartof

theNSWGovernment’sBlacktownandMountDrui[Hospitals(BMDH)

ExpansionProject.

AddiHonalsupportwasprovidedbyBlacktownArtsCentrethroughthePat

ParkerResidencyProgram.

AniniHalworkshopinvolvingabout100people(includingpaHents,carers,

friends,staff,communityandarHsts)generatedtheconceptsfortheartworks

andendorsedtheobjecHveofusingarttoenhancethephysicalenvironment,

raiseawarenessofchronicrenaldiseaseandimprovequalityoflife,especiallyfor

youngadultslivingwithdialysis.

Snapshot

! TheprogramincreasedtheparHcipaHonofyoungadultsondialysistreatmentinthesupportgroupwhichhasbeenbeneficialformaintainingsocialconnecHonandmiHgaHngisolaHonduetochronicdiseasewhichisobenseenasan“oldperson’sproblem”.

! StaffandpaHentsreportedthattheatmosphereofthecentrehasbeenextremelyposiHveandcollegiate,withtheartworksprovidinga“talkingpoint”onwhichtoconnect.

! UsingacreaHve,arts-basedmethodologyhelpedbreakdowndisHncHonsbetweenstaffandpaHents,youngpeopleandolderpeople,Aboriginalandnon-Aboriginalpeople.

! Stafffeelmoreconfidentaboutembracingnewapproachestocare,tothinkmorecreaHvelyandtoengagemorecloselywithpaHentsandcarersinthedeliveryanddesignofservices.

! Theprojecthasbeensosuccessfulthatit’sprovidedamodelforconsultaHoninStage2toincorporateartandculturalelementsintoamajornewcommunitydialysiscentreatMountDrui[.

Morethan300engagementinteracHonsduringtheproject

Peoplecurrentlydependentona[endingourdialysiscentres

Smallpercentageunder25butgreaterlifeHmelifestyleimpact

88regulardialysispaHentsatBlacktown

IsolaHonandlonelinessaffectwell-beingandtreatmentcompliance

20%AboriginalandTorresStraitIslander

650

Benefits

"“Itwasquitetherapeu5cforstafftodosomethingenjoyablewithpa5entsandtocreatesomethingbeau5ful…it’simprovedourcommunica5onskillsandgivenussomethingincommon.Thegalleryislikeourwater-cooler…it’saplacetogettogetherandtalk.”

TaHana,pre-dialysisclinicalnurseconsultantdescribinghowpaHentsandstaffcreaHvelyre-imaginedcommonclinicalconsumablesintominiworksofartwhichwerethendisplayedinnichesintheBubblesGallery.

Instagram@BMDHProject bmdhproject.health.nsw.gov.au

Imagine what you could do A new direction: Silia’s story

The water cooler effect

The fine print

Tagusinyourposts#BMDHProject

Scantoseetheinterviewsatbmdhproject.health.nsw.gov.au

BeingandBelongingprovideddialysispaHentSilia,23,withthechancetotakecontrolwhenshetookontheroleofdirectorforthestorytelling

projectLivingLibrary.WithfellowYoungAdultsonDialysisSupportmemberFrances,sheinterviewedotherpaHentstocreatephotoandvideostoriestohelpdemysHfydialysis.Theprojectrevealedseldom-

heardstoriesofloss,hopeandexperienceandprovidedapintofconnecHonbetweendifferentgeneraHons.ThevideointerviewsandsHllphotographsformpartofthephysicalandonlinegalleryfortheproject.“MycondiHondoesn’tdefineme.NorisitthemostinteresHngpartofme,”Siliasaid.

PaHentsFrances(above)andHarry(right)interviewedfortheproject.

“Ifyouworry,yougodown.Youhavetobestrong.Thisislife…thisisnotourchoicebutithappened.Youcan’tdoanything.I’malright.Icomehere,Ijoke,Ilaugh.Mostpeopleloveme…thenurses…!”Harry,haemodialysispaHent

#ScantoseemoreaboutIndigenousarHstPeterWilliams’welcomepainHngCulturesofBlacktownwhichwelcomeseveryonetothecentre,promoHnginclusionandunderstanding.

#RouHneandboredomamongstregularpaHentswasaddressedbycreaHngtemporaryexhibiHonspacesintheBubblesGallery.Itschangeabledisplayspacemostrecentlyshowcasedclinicalconsumables(e.g.gauzeswabs,forceps)re-engineeredintoplayfulandengagingsculpturesbytheYoungAdultsSupportGroup.

#ImagesfromtheLivingLibrarycomplementtheonlineinterviews.

"ScanwithyourQRcodereadertogotothewebsiteformoreinformaHonabouttheBlacktownandMountDrui[HospitalsExpansionProjectandtheBeingandBelongingprogram.

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