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Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator: Jill Houghton July 6, 2011

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Page 1: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

Autism & Employment Webinar

Series & Group DiscussionPart 1

Autism 101 – What is Autism?

Nila BenitoFlorida Center for Inclusive Communities

Moderator: Jill Houghton

July 6, 2011

Page 2: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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The Autism & Employment Learning Community

• Will provide vocational rehabilitation counselors and area directors with information, tools, and tips to communicate, interact, and support individuals with autism to reach integrated, competitive employment goals.

• Will be a forum for collaborative inquiry and learning related to enhancing participant’s effectiveness in meeting the needs of jobseekers with autism.

• Through all activities, participants will be supported while they learn to apply new ideas and information that will expand their capacity to create new conditions that will result in positive outcomes for individuals with autism.

Page 3: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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My Family

Page 4: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Mark Twain Quote

“The difference between using the right word and almost the right word are the difference between lightning and the lightning bug.”

–Mark Twain

Page 5: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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• Person first language recognizes a person’s right to self-esteem and to be addressed as a person first and not as a disability.

• People with disabilities are people first.

Times and our language have changed

Page 6: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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People First Language Examples

Avoid: Handicapped and Disabled.Say: person with a disability

Avoid: NormalSay: typical

Avoid: crippled or confined to a wheelchairSay: person who uses a wheelchair

Avoid: Autistic personSay: person with Autism

Page 7: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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WHY? Autism & Employment Learning Community

• Often high school transition services fall short in providing the appropriate services to prepare for employment.

• Individuals with ASD have limited opportunities for career development and work experience matched to their interests during their high school years.

(Filler & Rosenshein, OCALI, 2009)

Page 8: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

8

James Thurber Quote

“It is better to ask some of the questions than to know all the answers.”

- James Thurber

Page 9: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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What is Autism Spectrum Disorder (ASD)?

• A Developmental disorder that is characterized by varying degrees of impairment in: communication skills social interactions behavior (restricted repetitive and stereotyped

patterns)

• Symptoms range from mild to severe.

Page 10: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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What do we know about ASD?

• Autism Spectrum Disorder (ASD) in the Unites States exceeds Juvenile Diabetes, Pediatric Cancer and Aids combined.

• ASD affects 1 in 110 children in the United States and the prevalence appears to be growing.

• In contrast, during the peak of the epidemic, Polio

affected 1.4 in10,000 children.

Page 11: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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What do we know about ASD? (2)

• It is a lifelong disability.

• All racial, ethnic, and social classes affected

• Males to females ratio is 4:1.

• No medical test for diagnosis.

• No objective measure for determining degree of autism. (ASD diagnoses are based purely on observations or reports of behaviors.)

Page 12: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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What do we know about ASD? (3)

• Unlike many medical conditions, ASD is not a disease.

• ASD cannot be cured.

• According to the National Institutes of Health: Scientists aren’t certain about what causes ASD, but it’s

likely that both genetics and environment play a role. Researchers have identified a number of genes associated

with the disorder.  Studies of people with ASD have found irregularities in

several regions of the brain.

Page 13: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Developmental Disorders that fall under the ASD in the DSM IV

Most Common

• Asperger Syndrome

• PDD-NOS (Pervasive Developmental Disorder - Not Otherwise Specified)

• Autism

Less Common

• Rett Syndrome (no longer considered part of the spectrum)

• Childhood Disintegrative Disorder

Page 14: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Asperger Syndrome - Common Characteristics

Usually thought to be the mildest of ASD. Often not diagnosed until a child is school age or later.

• Obsessive interest in a single object or topic—so much so that the person ignores other topics, or thoughts.

• Language problems, such as being very literal and having trouble understanding non-verbal communication, such as body language.

• Obsessive or repetitive routines and rituals. • Social-skill problems, especially related to communicating with

others.• Sensitivity to sensory information, such as light, sound, texture,

and taste.• Clumsiness.

Page 15: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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PDD-NOS

Pervasive Developmental Disorders - Not Otherwise Specified

• Sometimes called "atypical autism”

• It can also be used for children who do not have clearly defined difficulties under age 3 or later.

• This term is often used by professionals when they are not quite sure of a diagnosis or when the symptoms are mild.

Page 16: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Autism: Common Characteristics

Frequently called “classical autism”• Impaired social interaction, verbal and nonverbal

communication, with unusual, repetitive, or severely limited activities and interests.

• Repetitive movements such as rocking and twirling, or self-abusive behavior such as biting or head-banging. 

• Start speaking later than other children, if at all (50%).

• Reduced sensitivity to pain yet extremely sensitive to sound, touch, or other sensory stimulation.

Page 17: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Autism: Co-occurring Conditions

Higher than normal risk for certain co-occurring conditions including:

• Intellectual developmental disability (40-55%),

• Tuberous sclerosis (in which tumors grow on the brain),

• Tourette’s syndrome,

• Mental health conditions: anxiety disorder, obsessive- compulsive disorder, depression,

• Attention deficit disorder. 

Page 18: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Vaccines & Autism

• There is considerable public concern that vaccines for infectious diseases in early childhood are associated with autism (MMR). Much of this concern focused on a mercury-based additive, thimerosal, which is no longer used in most vaccines.

• There is no credible epidemiologic evidence to support this hypothesis, but there are many unscientific reports masquerading as scientific evidence used by advocates of this view.

Page 19: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Common Autism Myths

Myth: Autism is an emotional or mental health disorder.While physical or social behaviors of individuals with autism may suggest that they have a psychological disorder, autism is actually a neurobiological illness that affects the brain's growth and development.

Page 20: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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More Common Autism MythsMyth: Most individuals with autism have hidden or exceptional

talents.Savant may have been popularized by Dustin Hoffman's character in the movie "Rain Man." But the estimated prevalence of savant t savant abilities in autism is 10% whereas the prevalence in people without autism is less than 1%.

Myth: Individuals with autism do not develop friendships with peers or relationships to people, including family membersPeople with autism have a difficult time expressing their feelings and emotions in ways other may understand, but they do develop meaningful relationships and deep connections with others.

Page 21: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Comments & Questions

Page 22: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Autism 101 Part 2

Autism 101 – Part 2“Tips on Interacting, Communicating &

Support Needs”

Date: TBA

Page 23: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Upcoming Webinars

Autism & Employment Learning Community Series – Dates TBA

Real Lives, Real Stories

From the Field

Community Partnerships, Organization, & Employers

Page 24: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Education CreditsCRCC Credit - (1.0)Approved by Commission on Rehabilitation Counselor

Certification (CRCC) • By Friday, July 15, 2011, participants must score 80% or

better on a online Post Test and  submit an online CRCC Request Form via the MyTACE Portal. 

CEU Credit - (0.1)Approved by the University College at Syracuse University

• By Friday, July 15, 2011, participants must submit an online CEU Request Form via the MyTACE Portal.

My TACE Portal: TACEsoutheast.org/myportal

**For CRCC credit, you must reside in the 8 U.S. Southeast states served by the TACE Region IV [AL, FL, GA, KY, MS, NC, SC, TN]. If beyond TACE Region IV, you may apply for CEU credit.

Page 25: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Contact Information

Nila Benito

The Florida Center for Inclusive Communities University Center for Excellence in Developmental Disabilities

http://flfcic.fmhi.usf.edu/projects/autism.htm

Email: [email protected]

Page 26: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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THANK YOU!

Page 27: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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TACE Center: Region IV

Toll-free: (866) 518-7750 [voice/tty]

Fax: (404) 541-9002

Web: TACEsoutheast.org

My TACE Portal: TACEsoutheast.org/myportal

Email: [email protected]

Page 28: Autism & Employment Webinar Series & Group Discussion Part 1 Autism 101 – What is Autism? Nila Benito Florida Center for Inclusive Communities Moderator:

TACE Center: Region IV, a project of the Burton Blatt Institute.Funded by RSA Grant # H264A080021. © 2011 All Rights Reserved

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Disclaimer

This presentation was developed by the TACE Center: Region IV ©2011 with funds from the U.S. Department of Education, Rehabilitation Services Administration (RSA) under the priority of Technical Assistance and Continuing Education Projects (TACE) – Grant #H264A080021. However, the contents of this presentation do not necessarily represent the policy of the RSA and you should not assume endorsement by the Federal Government [34 CFR 75.620 (b)].