ann t. cutler, md [email protected] department of disability and human development college of applied...
TRANSCRIPT
Ann T. Cutler, [email protected]
Department of Disability and Human Development
College of Applied Health SciencesUniversity of Illinois at Chicago
Supports and Gaps for
Children with Autism
Disability Rights Consortium 7-22-09
Disclosure Information I have no relevant financial relationships
with the manufacturer(s) of any commercial product(s) and/or provider of commercial services discussed in this presentation.
I do not intend to discuss commercial products or services and unapproved/investigative uses of a commercial product/device in my presentation
The Combating Autism Act Authorizes approximately $920 million for
expanded activities related to autism spectrum disorders over a five-year period (FY2007-FY 2011).
Activities covered under the act include screening, surveillance, education, early intervention, prompt referrals for treatment and services, and research.
For more information: http://mchb.hrsa.gov/autism/default.htm
Combating Autism Act Initiative Programs Leadership Education in Neuro-
developmental & Related Disorders (LEND) Training programs
Developmental-Behavioral Pediatrics Training Grants
Resource Centers State Demonstration Grants Research Networks and Nodes
What is LEND?
Leadership Education in Neurodevelopmental Disabilities
Overarching Goal: Provide continuing education, consultation and technical assistance geared to the needs of MCH Health professionals, policymakers and families
Funded by Maternal and Child Health Bureau (MCH)
Based on the Combating Autism Act
A national network of LENDs (www.aucd.org)
Illinois LEND: A Partnership
University of Illinois at Chicago:
IDHD Family Clinics and Units
UIC Autism Center of Excellence
The Autism Program (TAP) of Illinois
Children’s Mental Health and Developmental Neuroscience Center
University of Chicago: Developmental and Behavioral Pediatrics
Rush University: Speech and Hearing
Collaboration with community agencies and Illinois Title Five Maternal and Child Health (MCH) Programs
LEND Disciplines
Child Psychiatry Disability Studies Family Nursing Nutrition Occupational Therapy Pediatrics Physical Therapy Psychology Public Health Social Work Speech and Hearing
American Academy of Pediatrics Policy
It is important that pediatricians be able to recognize the signs and symptoms of autism spectrum disorders and have a strategy for assessing them systematically. Pediatricians also must be aware of local resources that can assist in the diagnosis of and the management of ASD.
Pediatrics Vol. 120 No. 5 Nov. 2007
Language Delay:Absolute indications for immediate evaluationAmerican Academy of Child Neurology 2006
Age
12 months No babbling
16 months No single words
24 months No functional 2-word phrases (not echolalic)
Any age Any loss of language or social skills
EDOPC at a GlanceGoals
Improve delivery and financing of preventive health and developmental services for children birth to three
Build on existing programs to develop a range of strategies for primary care settings
EDOPC at a Glance
Collaborative project Advocate Health Care Healthy Steps Program Illinois Chapter, American Academy of
Pediatrics (ICAAP) Illinois Academy of Family Physicians (IAFP)
2005 through 2010 Multiple funders
EDOPC at a Glance:Who Has Been Trained
Professionals Trained by EDOPC by Type
Residents192
Other Pediatric Care Staff
1955
Physician Assistants
24
Nurse Practitioner,
69
Physicans633
EDOPC Tools Training
Academic detailing in the practice for all staff Peer-to-peer faculty
Resource Toolkits
Technical Assistance Monthly conference calls Face to face consulting Phone consultation
EDOPC Web site
ICAAP/TAP Collaboration Primary care physician training on early
identification; especially in rural areas Establishing a network of interdisciplinary
diagnostic teams Establishing autism medical homes for
family partnerships regarding coordination of supports
Transition Funding!!
Autism Advocacy Initiative A network of IL physicians
to represent physicians at the local and state level on issues related to autism
The primary mission is to advocate for evidence based treatments
To reach out and provide support to adult medical providers
Access to Treatment for All Current evidence-based practices for autism: Applied Behavior Analysis (ABA)1, [i], [ii] Discrete Trial Teaching1 Pivotal Response Training1 Learning Experiences: An Alternative Program for Preschoolers
and Parents (LEAP)1 Treatments Considered “Promising Practices”: Picture Exchange Communication System (PECS)Incidental
TeachingStructured Teaching (TEACHH)Augmentative/Alternative CommunicationAssistive TechnologyJoint Action RoutinesCognitive Behavioral ModificationCognitive Learning Strategies Social StoriesSocial Decision-Making StrategiesSensory Integration [i] Rogers, S. J. & Vismara, L. A. (2008). Journal of Clinical Child & Adolescent Behaviors, 37 (1), 8-38.
[ii] New York State Department of Public Health Early Intervention Program (2005). Report of the Recommendations: Autism/Pervasive Developmental Disorders. New York: Department of Public Health.