an update from the uk renal registry dr fergus caskey medical director, uk renal registry annual...
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![Page 1: An update from The UK Renal Registry Dr Fergus Caskey Medical Director, UK Renal Registry Annual Informatics Meeting, September 2014](https://reader035.vdocuments.mx/reader035/viewer/2022062421/56649d095503460f949dbecf/html5/thumbnails/1.jpg)
An update fromThe UK Renal Registry
Dr Fergus CaskeyMedical Director, UK Renal Registry
Annual Informatics Meeting, September 2014
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UKRR data set, v4.0
1. New data items– PD– Dashboard– CQUINs
2. Data extraction– eGFR<30– Dialysis for AKI– Plasma exchange
Data format – requirements may change
Jan 2016
Jan 2015
Commissioners
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UKRR data set, v4.0
• Dialysis for AKI• Plasma exchange
– Timeline– Sessions/ activity– Outcomes/ mortality
Jan 2015
Jan 2016
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UKRR accountability
National Clinical Director
Commissioners
NHS England
Patients
UKRR
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Early mortality data
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Early mortality data
Resolved by capturing patientsfrom first dialysis, acute or chronic
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Routine linkage with HES / ONS
“The addition of a combination of 16 comorbid conditions present at the start of RRT reduced the number of centres with worse than expected survival to one.”
Fotheringham NDT 2014
6 outliers
4 outliers
1 outliers
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Routine linkage with HES and ONS
• Routine adjustment for co-morbidity in centre survival comparisons
• Research grants– PD catheter insertion– Alt day dialysis
Published 22nd September 2014
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Update
core work – major projects – research
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Other core work• Annual Report
– On schedule for Dec 2014 publication (2013 data)– UKRR has taken over dialysis access and infection audit in England
• Patient Council– First meeting July 2014– Chair: Fiona Loud
• Beyond ESRD– Obtained Section 251 exemption for CKD2+ and dialysis dependent AKI, 2013– Obtained Section 251 exemption for all AKI (1y and 2y care), 2014
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Other major projects
• UK Renal Data Collaboration– Proof of concept completed, contract signed with InterSystems, training begun
• NHS England – UKRR AKI programme– UKRR establishing a master patient index of all AKI in primary and
secondary care
• NHS England – UKRR Patient Participation programme– PROMs PREMs PAMs: in development
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Research
• Research methods Study Group– First meeting March 2014
• Solve analytical problems from dialysis and transplant study groups• Plan high impact analyses
• Appointment of Tony Wing Fellow– BKPA funded fellow appointed March 2014 started August 2014– Examining the psychosocial impact of developing ESRD adolescence and
young adulthood
• Data linkage opportunities– Revised work proposal forms on UKRR website – “working with us”– Now three levels (including no analysis input from UKRR)
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ResearchRecent PhD fellows
– Dr Claire Castledine• Explaining regional variation in renal service provision in the UK• PhD awarded
– Retha Steenkamp• Multiple imputation and prognostic survival modelling• Award recommended
Current PhD fellows– Dr Catriona Shaw
• CKD outcomes with MINAP / NICOR linkage (London)
– Dr Rishi Pruthi• Qualitative research in the ATTOM Study (Southampton)
– Dr Ani Rao• Mixed methods alongside EQUAL (pre dialysis CKD in the elderly) (Bristol)
– Dr Alex Hamilton• Psycho-social impact of ESRD in young adulthood (BKPA funded Tony Wing award)
• A different model in the future?
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UKRRpast present and future work
HaemodialysisPeritoneal dialysis
Kidney transplantation
AKI dialysis dependent
AKI in 1y & 2y care
CKD 2-4 in 2y care
CKD 2-4 in 1y & 2 care
DemographicsCase-mixLaboratory data
PROMs & PREMsActivation & QSDM
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The United Kingdom Renal Registry