building a smarter health and wellness future · 2016-03-29 · vision – high quality,...

END TO END SOLUTIONS FOR PATIENTS

Anders Olauson , EPF President

15, 16 February 2011

BUILDING A SMARTER HEALTH AND WELLNESS FUTURE

Increasing demands - informed, empowered patients, demography

Sustainability and efficiency

eHealth, personalised medicines, integrated health and social care models

BUT

Huge health inequalities, health illiteracy

Political emphasis on prevention, fragmentation, resistance to change

What is patients perspective?

From where comes patients perspective?

Is patients perspective important?

Who owns patients perspective?

Where do we recognize patients perspective?

Where is patients perspective active?

How would it look like without patients perspective?

What can we achieve with patients perspective?

The Future!

Birth-

department

Hospital

GP

Physio-

therapist

Social- insurance

system

School

Pre-

school Junior-

school

Special-

school School-

nurse

Other authorities

Personal-

assistans

Housing

-support

Technical

support

Social network

Neurologist Psychologist

Medicines

Neighbours

Friends

Relatives

Home equipment

and adaptations

May 30, 2007 www.agrenska.se

“In order to understand how it is to have a child with a disability, you have to have a child with a disability yourself!”

Åke Martinsson, Göteborg

European Commission 2003

They wanted One patient organization to work with, an umbrellas umbrella!

The EC invited all pan-european patient organizations

In spring 2003 European Patient Forum (EPF) was founded!

VISION – high quality, patient-centred equitable healthcare throughout the EU

MISSION – to present a strong and united patients’ voice 150 MILLION PATIENTS, almost 50 members

• GOALS

• Equal Access

• Patient Involvement

• Patients’ perspective

• Sustainable patient

organisations

• Patient Unity

Reduced costs for healthcare

Attended family program - consumed healthcare for

13.000 SEK (2.000$)/ year

Non treated group – consumed healthcare for 35.000

SEK (5.000$)/year

www.eu-patient.eu info@eu-patient.eu

Meaningful involvement and engagement of patient and her carer(s)

Targeted, individualised treatments and therapies – comprehensive ‘ team ‘ approach

Rationale use of resources ( efficiency , quality management, integrated approach)

Focus on person – not condition

Enables continued participation in work and social environment

Lack of trust in technology and systems

Lack of confidence in managing this

Reimbursement issues

Privacy and data security compromised

Over-dependence on family environment

‘ Cut-backs’ in disguise

Loss of ‘ human’ contact – professional and peer support, sense of community

Becoming an ‘object’ rather than a ‘patient’

Shift of responsibility

Quality and Safety

Pharmacovigilance

Information to patients

Cross Border Healthcare

Clinical Trials Directive Review

Patient involvement in Health and IT RandD

Digital Agenda

European Innovation Partnership – Active and Health Ageing

IS THIS ENOUGH ....?

Health Innovation can only work if patients are involved meaningfully from inception to delivery

Value + has provided a model on patient involvement in EU related projects

Confidence Trust and Acceptance ◦ eHealth Governance

◦ Renewing Health

◦ Chain of Trust

o Toolkit for patient organisations

o Handbook for project coordinators, leaders and promoters

o Policy recommendations

o + Other resources – online at www.eu-patient-eu

Model of Meaningful Patient Involvement

Health Innovation – can become the bedrock of integrated care – blending self management of chronic disease and social care

‘connectivity’ between healthcare systems and social care systems

A patient-centred care model that will support the individual throughout the life continuum and in particular older age

Health Innovation– pre requisite –Health Literacy-

Ability to gather knowledge, use , skills competencies ,critique and question

Health literacy – dialogue between patients and health professionals

eHealth Literacy – training/ on-going support

Health innovation to develop from needs - not technology driven

Meaningful patient involvement

Buy-in from patients and health professonals

EPF and other stakeholders - a strong and resourced strategic role – patient –centred integratedcare model.

eHealth Literacy, Trust and Confidence

www.eu-patient.eu info@eu-patient.eu

The Agrenska program

The

Board

• feel normal

• get energy, feel stronger

• knowledge gives security

• get understood

• shared experience as important as expert information