building a smarter health and wellness future · 2016-03-29 · vision – high quality,...
TRANSCRIPT
END TO END SOLUTIONS FOR PATIENTS
Anders Olauson , EPF President
15, 16 February 2011
BUILDING A SMARTER HEALTH AND WELLNESS FUTURE
Increasing demands - informed, empowered patients, demography
Sustainability and efficiency
eHealth, personalised medicines, integrated health and social care models
BUT
Huge health inequalities, health illiteracy
Political emphasis on prevention, fragmentation, resistance to change
What is patients perspective?
From where comes patients perspective?
Is patients perspective important?
Who owns patients perspective?
Where do we recognize patients perspective?
Where is patients perspective active?
How would it look like without patients perspective?
What can we achieve with patients perspective?
The Future!
Birth-
department
Hospital
GP
Physio-
therapist
Social- insurance
system
School
Pre-
school Junior-
school
Special-
school School-
nurse
Other authorities
Personal-
assistans
Housing
-support
Technical
support
Social network
Neurologist Psychologist
Medicines
Neighbours
Friends
Relatives
Home equipment
and adaptations
May 30, 2007 www.agrenska.se
“In order to understand how it is to have a child with a disability, you have to have a child with a disability yourself!”
Åke Martinsson, Göteborg
European Commission 2003
They wanted One patient organization to work with, an umbrellas umbrella!
The EC invited all pan-european patient organizations
In spring 2003 European Patient Forum (EPF) was founded!
VISION – high quality, patient-centred equitable healthcare throughout the EU
MISSION – to present a strong and united patients’ voice 150 MILLION PATIENTS, almost 50 members
• GOALS
• Equal Access
• Patient Involvement
• Patients’ perspective
• Sustainable patient
organisations
• Patient Unity
Reduced costs for healthcare
Attended family program - consumed healthcare for
13.000 SEK (2.000$)/ year
Non treated group – consumed healthcare for 35.000
SEK (5.000$)/year
www.eu-patient.eu [email protected]
Meaningful involvement and engagement of patient and her carer(s)
Targeted, individualised treatments and therapies – comprehensive ‘ team ‘ approach
Rationale use of resources ( efficiency , quality management, integrated approach)
Focus on person – not condition
Enables continued participation in work and social environment
Lack of trust in technology and systems
Lack of confidence in managing this
Reimbursement issues
Privacy and data security compromised
Over-dependence on family environment
‘ Cut-backs’ in disguise
Loss of ‘ human’ contact – professional and peer support, sense of community
Becoming an ‘object’ rather than a ‘patient’
Shift of responsibility
Quality and Safety
Pharmacovigilance
Information to patients
Cross Border Healthcare
Clinical Trials Directive Review
Patient involvement in Health and IT RandD
Digital Agenda
European Innovation Partnership – Active and Health Ageing
IS THIS ENOUGH ....?
Health Innovation can only work if patients are involved meaningfully from inception to delivery
Value + has provided a model on patient involvement in EU related projects
Confidence Trust and Acceptance ◦ eHealth Governance
◦ Renewing Health
◦ Chain of Trust
o Toolkit for patient organisations
o Handbook for project coordinators, leaders and promoters
o Policy recommendations
o + Other resources – online at www.eu-patient-eu
Model of Meaningful Patient Involvement
Health Innovation – can become the bedrock of integrated care – blending self management of chronic disease and social care
‘connectivity’ between healthcare systems and social care systems
A patient-centred care model that will support the individual throughout the life continuum and in particular older age
Health Innovation– pre requisite –Health Literacy-
Ability to gather knowledge, use , skills competencies ,critique and question
Health literacy – dialogue between patients and health professionals
eHealth Literacy – training/ on-going support
Health innovation to develop from needs - not technology driven
Meaningful patient involvement
Buy-in from patients and health professonals
EPF and other stakeholders - a strong and resourced strategic role – patient –centred integratedcare model.
eHealth Literacy, Trust and Confidence
www.eu-patient.eu [email protected]
The Agrenska program
The
Board
• feel normal
• get energy, feel stronger
• knowledge gives security
• get understood
• shared experience as important as expert information