2013 annual report · in honor of the marriage of dr. douglas wiliams & melinda butts allison...

Save One Life encourages individuals andorganizations to focus their compassion andresources on improving the quality of life ofpeople with bleeding disorders and their familiesin developing countries. In the past 12 years SaveOne Life has assisted more than 1,300beneficiaries with the generous help of sponsorsin the US, Canada, England, Sweden, Italy,Switzerland, Qatar, the Philippines and Australia.

Save One Life collaborates with 40 programpartners in 12 countries: Belize, the DominicanRepublic, Ghana, Honduras, India, Kenya,Nepal, Nigeria, Pakistan, the Philippines,Romania and Zimbabwe.

By the end of 2013Save One Life haddistributed more than$256,000 to 1,021beneficiaries and theirfamilies; awarded$18,500 to 40scholarship recipients infour countries;contributed $8,500 tothree hemophiliacamps and providedone capacity-building grant to the HemophiliaAssociation of Cagayan de Oro in the Philippines.

2013 Board of Directors

Laureen A. Kelley (President)PresidentLA Kelley Communications

Ujjwal Bhattarai (Chairman) Web Content ManagerBrady Corporation

Eric Hill (Treasurer)PresidentBioRx

Dutta Satadip (Secretary)Head of Product Strategy &OperationsDisplay Advertising ProductsGoogle, Inc.

Christopher BombardierProfessional Research AssistantUniversity of Colorado

Jim EllardCEO New England BioLabs

Paul Giangrande, MDConsultant Haematologist & DirectorOxford Haemophilia &Thrombosis CenterChurchill Hospital

Milton Kerstein (Legal Advisor)Kerstein, Coren & Lichtenstein,LLP

John MenapaceCFOKedrion BioPharma Inc.

Thomas MoranPresidentAccess Therapeutics

Bonnie Jean PerkinsSenior ManagerMultiple Sclerosis PortfolioMarketingGenzyme, A Sanofi Company

Tara ReddiVice PresidentMarlborough Gallery

Dr. Kapil SaxenaAssociate DirectorBoston Hemophilia CenterChildren’s Hospital Boston

Jessica SwannDirector, Marketing &Community RelationsBiogen Idec Hemophilia

Martha HopewellExecutive Director

About Us

New Countries: Nigeria and GhanaSave One Life expanded its outreach to Africa by welcoming two new program partners: theHaemophilia Foundation of Nigeria (HFN), based in Kaduna and the Ghana HaemophiliaSociety (GHS), based in Accra.

HFN was founded in 2005 by Megan Adediron,mother of two boys with hemophilia. Nigeria isAfrica's most populous country, with an estimated14,400 people with hemophilia. GHS wasfounded in 2005 by Martin Boakye, father of aboy with hemophilia. An estimated 2,750 peoplewith hemophilia live in this country.

Executive Director Martha Hopewell traveled toNigeria and Ghana in February to orient boardmembers and volunteers, meet families, visitpediatric wards in regional hospitals and enrollnew beneficiaries.

Wheels for the WorldBarry Haarde made history in2012 as the first person withhemophilia to bike across theUSA. In 2013 Barry took on hissecond cross-country challenge: Wheels for theWorld 2013: FAST & FURIOUS! From southernCalifornia he rode 3,456 miles in just 33 days,averaging an astounding 120 miles a day, to endin Massachusetts. With support from BaxterInternational, Inc., The Alliance Pharmacy, theMatrix Health Group and many individualdonors, Barry raised $37,600 for Save One Life.

Spring CelebrationSave One Life held itsthird annual celebrationwith 105 guests at anelegant historic venue onBoston harbor in May.Neil Herson of ASDHealthcare and former Save One Life executivedirector Sudha Chandrasekharan receivedcertificates acknowledging five years ofbeneficiary sponsorship. Richard J. Gaton,President of BDI Pharma, accepted the 2013Sponsor of the Year award on behalf of hiscompany. Usha Parthasarathy, Save One Life’sIndia program coordinator, accepted the 2013Program Partner of the Year award forKunnamkulam Chapter in Kerala, India. Chris

2013 Annual Report

Luis Miguel Ciriaco of theDominican Republic

Ghana's firstbeneficiaries:four-year-oldBenjaminAdjabah (inblue shorts)and hiscousin,

22-year-oldGilbert Awuitor(with crutches)

Highlights of the Year

Come Join Us!

Bombardier received our 2013 Inspiration Award for his Seven Summits Quest. His goal is to be the first person with hemophilia to climb the highest peak on each continent;he has summited Mt. Kilimanjaro in Africa, Mt. Aconcagua in South America and Mt. Elbrus in Europe to date. CyclistBarry Haarde, who had just completed his cross-country tour only hours before the celebration, received acommemorative gift.

Smile on Summer CampaignSave One Life raised over $7,500 from Biogen IdecHemophilia's Big League Challenge, the Colburn-KeenanFoundation and 30 generous donors to send 75 children tocamp. Grants were made to Camp Ray of Hope in Romania,Camp “Yes I Can!” in the Dominican Republic and to theHaemophilia Foundation of Nigeria to organize the firsthemophilia camp ever in Nigeria: “Kids Kampout!” Sponsorship manager

Tricia Sico had her firstexperience outside theUnited States when shetraveled in July withfounder and presidentLaurie Kelley to Camp"Yes, I Can!" Tricia met50 enthusiastic campersand dedicated programpartner volunteers. Shevisited beneficiaryfamilies and witnessed therealities of living inpoverty with hemophilia.

Presence at NHF Annual MeetingNational Hemophilia Foundation (NHF) generously donated atable to Save One Life for a display at its annual meeting inOctober, which attracted new sponsors to our program. SaveOne Life also hosted an informal gathering that was attendedby founder and president Laurie Kelley, executive directorMartha Hopewell, board member Chris Bombardier, cyclistBarry Haarde and numerous sponsors including Derek Nelson,Jason Blyth, Kelly Hoots, Jeremy Short.

Welcome Nancy MorrisonIn September Nancy Morrison joined Save One Life as ourbookkeeper. A native ofMassachusetts, she comes with a strong background innonprofit management andbookkeeping.

Trip to IndiaFounder and president Laurie Kelley traveled to six cities inIndia in November to meet awardees of Save One Life'srecently established scholarship program, attend a hemophiliacamp in Mumbai and celebrate the 25th anniversary of theHaemophilia Chapter of Madras (Chennai).

2013 Sponsorship CampaignsWe surpassed our goal of 31 new sponsorships for our "Child-A-Day" campaign during Hemophilia AwarenessMonth and World Hemophilia Day by 48%, reaching 43.Major sponsors stepped forward to help us reach our goal of

85 new sponsorships during the “I Saved A Life” campaign inthe fall, including Wolfgang Marguerre, CEO of Octapharma(30 additional sponsorships for a total of 100), PatrickSchmidt, CEO of FFF Enterprises (19 additional sponsorshipsfor a total of 107) and George Scangos, CEO of Biogen Idec(18 new sponsorships). They were joined by six current andeleven new sponsors.

Board Members: AppreciationWe thank these dedicated board members who completedtheir terms of service in 2013:

• James Ellard, CEO, New England BioLabs

• Bonnie Jean Perkins, Senior Manager, MS Portfolio Marketing Genzyme, A Sanofi Company

• Dutta Satadip, Senior Manager, Product Strategy & OperationsGoogle

• Kapil Saxena, MD, former Associate Director, Boston Hemophilia CenterChildren’s Hospital Boston

• Jessica Swann, Director, Marketing and Community RelationsBiogen Idec Hemophilia

Laurie Kelley and Martha Hopewell with sponsors and friends at theNHF annual meeting in Anaheim

Tricia Sico visiting a family in theDominican Republic

Nancy Morrison, ournew bookkeeper

President Laurie Kelley meeting a scholarship student in Mumbai

Patrick Schmidt 107

Wolfgang Marguerre 100

ASD Healthcare 50

Lawrence and Rebecca Stern 40

Horbacz Family 30

BDRN 29

Eric Hill 24

BDI Pharma 20

Tara Reddi 18

George Scangos 18

Richard Moscarello 17

Paola Pardini 16

Kyle & Diane Callahan 15

Alison Arter 10

Laureen Kelley 10

Christopher Lamb 10

Erik Melde 10

Flemming Nielson 10

Joseph Pugliese 10

Anonymous 10

Dedication CircleSponsors with ten or more beneficiaries(Sponsorships as of January 31, 2014)

• Kari Atkinson

• Peter & Laura Baay

• Mike Bradley

• Sudha Chandrasekharan

• Tim & Emily Collins

• Cheryl D’Ambrosio

• Mariam Ejaz

• Julian Desmond

• Larry Guiheen

• Neil Herson

• Richard Ireland

• Nancy Klersy

• Christopher Lamb

• Robert & Barbara Maunus

• Evalyn McDermott

• Pete O’Malley

• Jenneffer Peterkin

• Mark & Susan Phillips

• Sriharsha Pradhan

• Tara Reddi

• Kim Ricchiuto

• Richard & Jean Roberts

• Dawn Rotellini

• Jill Smith

• Ellis & Linda Sulser

Foundation DonorsColburn Keenan Foundation (forhemophilia camp fund) The Hemophilia AllianceFoundation (for scholarship fund)

Individual DonorsStephen and Rosemarie DefalcoKathryn DevannyHelen CampbellDoyle CockramEmployees Fund of BoeingPuget SoundJudith FaitekSusan FinleyFor scholarship fund in honor of Katherine FinleyNancy HeckelLori LesserCraig & Kelly MearsPatrick & Dina MeekMary Sheila MyersAshish SagrolikarErnestine C. SummersMildred ThomsonIn honor of John A. LeithCarol Kasper Winet

Donors to the Save One Life Fund*Debra AronsonOrjan BjermertChristian Brothers AcademyJudith FaitekSarah FeyLaura GravinaHemophilia of IowaJanet HowardEric Hill

Robert Massie & Anne TateJohn & Betty MoracaGeorge & Linda PriceThakkar SantoshanandPatrick ThomeniusEdwin & Catherine Wilson*The Save One Life Fund pays for beneficiaries whohave lost their sponsorships

Wheels for the World 2013Thomas AllieKevin AndersonMarilyn AugustFredrick BachofnerBaxter HealthcareBayer HealthcareAndrew BlackledgeChris Bombardier &Jessica CarterGregory BrowningJohn and Joan BurnsRichard CareyJacinda CollinsKeith CulverCheryl D’AmbrosioStephanie DanskerChristina DeGrecoJorge De La RivaJames EnglertDoug FergusonWesleigh FazekasJuanita FishBarry HaardeEmily HaardeHenrietta HaardeLayton HaleyJanet Howard

Sharon HyltonWesley KimataDana KuhnDwane & Lily JohnsonVernon JohnsonMichael JonesPaul LooneyKimberly MartinGita MasseyMatrix Health GroupHenry & Peggy McGiltonCraig & Kelly MearsRandall MellinMelody MeyerJames MontmayorGlade NelsonPriscilla OrenJohn ParlerMurali PazhayannurGlenn & Beatrice PierceMoira PristerJohn RegesterEric ReiderMelanie RittenhouseDawn RotelliniMark RouxDavid RyanWilliam SchuhScott SchultePhilip SchoenigLisa SchoberMaria SchwarzPaul & Susan SchwarzCarol ScullinKathy SecinaroLinda SelbyAnthony SpahrBernie Steffeck

Shawn StickelPhilippe Zivan SussholzMary Frances SwankThe Alliance PharmacyNeil RezacColleen UnderwoodFlorence van OverveldLaure VassallRalph WagnerRoslynn WitteLinda Wyman-CollinsSusan YazurloMary Echeverria ZanellaMark & Sasha ZatyrkaNongji Zhang

Seven Summits QuestBarbara BloomGerald & Beverly BombardierSharon BombardierLeanne BranhamJessica CarterChantal ChaplainKyle FritzColorado Groupe, Inc.Janet HowardMehdi FiniKyme GrollerKelly JirovecJay & Beverly Ann LabeBrianna ReinkingLiz Sher

Smile on Summer CampCampaignArizona Hemophilia AssociationJames Ballard

Jan BarnettM & T BattleBill BoughtonAngela BrandtBiogen Idec HemophiliaClaudine CarboneValerie CortezDarlene DusevicHugo EstradaCynthia EulittDavid HandyJanet HowardRebecca HuffSharon HyltonLA Kelley Communications, Inc.Erin KiltsDave & Leslie LawlorJohn & Brenda LeithCheryl LevettAjay Mehta & RadhikaBalasubramanyamCarrie MooreOctapharma PlasmaVladimir OstapowiczGlenn & Beatrice PierceIn honor of the marriage of Dr.Douglas Wiliams & Melinda ButtsAllison PlaudBarry & Tracy PomeroyGary RaymondMark SantosSteve & Sue SchmittArora SmithKaren SparksPatricia StrikeleatherTanya Witek

Our DonorsSave One Life forwards 90% of sponsorship funds to its program partners and beneficiaries. As a result, we must raise most of our additionalprogram and core services funds independently. We are grateful to these donors who supported our mission in this way. Thank you!

We apologize for anyerrors or omissionsin this list.

2013 Five-Year Sponsors

Finances 2013Corporate SponsorshipsCore ServicesFFF Enterprises . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 30,000Octapharma . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 20,000ASD Healthcare . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 20,000CSL Behring . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 20,000LA Kelley Communications . . . . . . . . . . . . . . . . . . . . . $ 20,000BioRx . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 10,000New England BioLabs . . . . . . . . . . . . . . . . . . . . . . . . . $ 10,000Novo Nordisk, Inc . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 10,000Bayer Healthcare . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 7,225

Spring CelebrationBayer Healthcare . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 10,000Biogen Idec Hemophilia . . . . . . . . . . . . . . . . . . . . . . . $ 10,000Novo Nordisk . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 10,000Octapharma . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 10,000Baxter Healthcare . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 5,000New England Biolabs . . . . . . . . . . . . . . . . . . . . . . . . . .$ 4,000Alnylam . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 2,500Accredo HHS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $ 1,000

Wheels for the World 2013Baxter Healthcare Corporation . . . . . . . . . . . . . . . . . .$ 20,000The Alliance Pharmacy . . . . . . . . . . . . . . . . . . . . . . . .$ 5,000

Statement of ActivitiesIncomeSponsorships . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .$ 265,800Grants and contributions . . . . . . . . . . . . . . . . . . . . . . .$ 160,500Net Special Events . . . . . . . . . . . . . . . . . . . . . . . . . . . .$ 79,200Net assets released from restrictions . . . . . . . . . . . . . . $ 40,300In-kind Donations . . . . . . . . . . . . . . . . . . . . . . . . . . . . .$ 28,200Other . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .$ 500

Total Income . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .$ 574,500

Expenditures Sponsorships . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .$ 256,500Scholarships . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .$ 18,400Camps . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .$ 8,500Other program expenses . . . . . . . . . . . . . . . . . . . . . . . .$ 104,300Administration and fundraising . . . . . . . . . . . . . . . . . .$ 139,700

Total Expenditures . . . . . . . . . . . . . . . . . . . . . . . . . . .$ 527,400

Net Assets, beginning of year . . . . . . . . . . . . . . . . . . .$ 629,500

Net Assets, end of year . . . . . . . . . . . . . . . . . . . . . . . .$ 664,900

Ujjwal Bhattarai, Webmaster

Tracy Brody, Graphic Design

Milton Kerstein and Timothy Monahan, Kerstein, Coren and Lichtenstein LLP

James J. McNulty, Esq.

Usha Parthasarathy, India Outreach Program Coordinator

Rachel Stern, LeadUP! Summer Intern

Our forty program partners overseas, who make our work possible!

Alicia’s B&B, Wolfeboro, NH

Brian Curry

Boston Red Sox

Davey’s Locker of New Bedford

Firestone

Gillian’s/Lucky Strikes Boston

Hampton Inn New Bedford

Michael Harrison and Great Waters Music Festival

Laurie Kelley

Mary Kelley and Rachel Perry

Mt. Cranmore

Mt. Washington Cruises

NFL Foundation

Ocean Exploratorium, New Bedford

Pats Peak Ski Area

Bonnie Jean Perkins

REI

Jessica Swann

The Inn at Castle Hill, The Trustees of Reservations

Whaling City Harbor Tour, New Bedford

Note: Our former bookkeeper, Michelle Higson, was terminated in July 2013 fordepositing Save One Life checks totaling $10,013 into her personal account at Bankof America. Upgraded accounting procedures were immediately implemented, andSave One Life paid sponsorships for all beneficiaries from operating funds. Bank OfAmerica reimbursed the full amount to Save One Life in March 2014. Ms. Higson’scase was adjudicated at the Haverhill, MA District Court.

Thanks to these individuals andbusinesses that donated to the Spring Celebration auction:

We acknowledge these professionalsfor volunteering

their time and services:

2014: A Great Year!

President Laurie Kelley with friends and colleagues from Biogen Idec Hemophilia at the Spring Celebration

India ProgramCoordinatorUshaParthasarathyholding the the2013 ProgramPartner of theYear award forKunnamkulamChapter

Brad Davis and Rich Gaton of BDI Pharma with Neil Herson of ASD Healthcare and Rich Walters of CSL Behring

President Laurie Kelley with 2013 Inspiration Award recipient

Chris Bombardier

Smile-on-Summer grant recipient Camp "Yes, I Can" in the Dominican Republic Gratitude comes in many languages!

Barry Haarde at the half-way point of his 3,456-mileWheels for the World: Fast & Furious ride

Wheels for the World raised over$37,000 for Save One Life

Subhash Jha and Dhanmani Rajbongshi fromGuwahathi, India, receive their scholarship checks

ChrisBombardier

on Mt. Elbrus,Russia, thethird summit

in his quest tobe the firstperson with

hemophilia toclimb the

highest peakon eachcontinent

Save One Life, Inc.65 Central Street, Suite 204Georgetown, MA 01833

2014: A Great Year!

Executive Director MarthaHopewell with Thomas and MeganAdediron of Nigeria in front of theSave One Life display at the NHFannual meeting in Anaheim, CA

President Laurie Kelley and India ProgramCoordinator Usha Parthasarathy on a home visit in

Kolkata, India

Smile-on-Summer grant recipient "Kids Kampout,"Nigeria's first hemophilia camp

The Rana family has been sponsored by Patrick Schmidt,president of FFF Enterprises, since 2007

President Laurie Kelley with scholarship recipientsfrom Kolkata, India

Thanks to all our sponsors!

Caring forpeople withhemophiliaaround theworld — one

at a time

ThankYou

Belize

Dominican

Republic

Ghana

Honduras

India

Kenya

Nepal

Nigeria

Pakistan

The Philippines

Romania

Zimbabwe

We are grateful for the continued generous support ofour corporate sponsors!

TThhaannkk YYoouufor being a