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2019 Online KT Conference: Innovative KT Strategies That Work Hosted by AIR’s Center on KTDRR October 28, 30, and November 1, 2019

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Innovative Approaches to Knowledge Translation Evidence Platforms and Evidence Portals

Howard White Campbell Collaboration

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Four waves of the evidence architecture 2010s2000s1990s

Results agenda (Outcome monitoring)

Rise of RCTs

Rise of systematic reviews

Knowledge brokering

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The evidence architecture

Source: The author.

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The evidence revolution: data

WHO Model Disability Survey Washington Group on Disability Statistics (including Washington Set of short questions)

Source: The author

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Primary studies Systematic reviews

The evidence revolution: studies

Source: Graphs generated by author in PubMed.

Source: The author

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Evidence maps (skipped databases, try Epistimonikos)

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Source: White, H., Saran, A., & Kupe, A. (2018). Evidence and gap map of studies assessing the effectiveness of interventions for people with disabilities. Retrieved from https://www.gov.uk/dfid- research-outputs/evidence-and-gap-map-of-studies-assessing-the-effectiveness-of- interventions-for-people-with-disabilities

Source: The author

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Finding evidence in the map

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Source: White, H., Saran, A., & Kupe, A. (2018). Evidence and gap map of studies assessing the effectiveness of interventions for people with disabilities. Retrieved from https://www.gov.uk/dfid- research-outputs/evidence-and-gap-map-of-studies-assessing-the-effectiveness-of- interventions-for-people-with-disabilities

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Finding evidence in the map 2

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Source: White, H., Saran, A., & Kupe, A. (2018). Evidence and gap map of studies assessing the effectiveness of interventions for people with disabilities. Retrieved from https://www.gov.uk/dfid- research-outputs/evidence-and-gap-map-of-studies-assessing-the-effectiveness-of- interventions-for-people-with-disabilities

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Finding evidence in the map 3

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Source: White, H., Saran, A., & Kupe, A. (2018). Evidence and gap map of studies assessing the effectiveness of interventions for people with disabilities. Retrieved from https://www.gov.uk/dfid- research-outputs/evidence-and-gap-map-of-studies-assessing-the-effectiveness-of- interventions-for-people-with-disabilities

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Evidence maps 2: Sightsavers

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Source: Virendrakumar, B. (2017). Eye health evidence gap maps. Retrieved from https://www.sightsavers.org/blogs/2017/05/eye-health-evidence-gap-maps/

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Evidence platforms

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Source: The author

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Evidence platforms 2

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Source: International Disability Alliance. (2019). Global Action on Disability (GLAD) Network. Retrieved from http://www.internationaldisabilityalliance.org/content/global-action-disability-glad- network

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Evidence platforms 3

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Source: Disability Knowledge Sharing Platform Login Page. Retrieved from https://papyrus.ilo.org/disability/DISABILITY/acl_users/credentials_cookie_auth/require_login?came_from=https%3A//papyrus.ilo.org/d isability/DISABILITY/welcome-to-ploneability...the-disability-inclusion-knowledge-sharing-platform/document_view

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Disability platform (but not evidence platform)

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Source: Disability Resource Community. (2019). Homepage. Retrieved from http://www.disabilityresource.org/

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The evidence architecture

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Source: The author.

Evidence portalSource: Education Endowment Fund. (2019). Teaching and learning toolkit: An accessible summary of the international evidence on teaching 5–16-year- olds. Retrieved from https://educationendowmentfoundation.org.uk/evidence-summaries/teaching-learning-toolkit/

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Source: Education Endowment Fund. (2019). Teaching and learning toolkit: An accessible summary of the international evidence on teaching 5–16-year-olds. Retrieved from https://educationendowmentfoundation.org.uk/evidence-summaries/teaching-learning-toolkit/

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Source: Education Endowment Fund. (2019). Teaching and learning toolkit: An accessible summary of the international evidence on teaching 5–16-year-olds. Retrieved from https://educationendowmentfoundation.org.uk/evidence-summaries/teaching-learning-toolkit/

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Evidence-based medicine is based on systematic reviews

The World Health Organization (WHO) follows a guideline development process, described in detail in the WHO Handbook for Guideline Development (2nd edition), overseen by the Guidelines Review Committee (GRC) established by the Director-General in 2007. The WHO Guidelines Review Committee ensures that WHO guidelines are of a high methodological quality, developed using a transparent and explicit process, and are informed on high quality systematic reviews of the evidence using state-of–the art systematic search strategies, synthesis, quality assessments and methods.

Guidelines

Source: World Health Organization. (2014). Handbook for guideline development (2nd ed.). Geneva, Switzerland: Author. Retrieved from http://apps.who.int/medicinedocs/documents/s22083en/s22083en.pdf

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UK NICE Guidelines: same approach

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Source: National Institute for Health and Care Excellence. (in press). Social work interventions for adults with complex needs, including, learning disabilities and mental health. Retrieved from https://www.nice.org.uk/guidance/indevelopment/gid-ng10145

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Checklist: example NHS Scotland

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Source: Health Facilities Scotland. (2007). Dementia design checklist. Design checks for people with dementia in healthcare premises. Glasgow, Scotland: Author. Retrieved from https://www.thenbs.com/PublicationIndex/documents/details?Pub=HFS&DocID=304494

Layout of a care home for people with dementia

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Join the evidence revolution

Checklists

Guidelines

Evidence portals

Evidence platforms

Evidence maps

Databases

Systematic reviews

Primary studies

Data

Evidence Ecosystem Assessment

Use of evidence workshops

Evidence needs assessments

Evidence-based budgets

Assessments and awards

Supply

Demand

Evidence-based policy legislation

Where do you fit in?

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Disclaimer The contents of this presentation were developed under grant number 90DPKT0001 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this presentation do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the Federal Government.

Don’t forget to fill out the evaluation form!

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26 The contents of this presentation were developed under grant number 90DPKT0001 from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this presentation do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the Federal Government.

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