www.hqip.org.uk hqip update and patient and public involvement kim rezel ppi lead
TRANSCRIPT
www.hqip.org.uk
HQIP update and patient and public involvementKim RezelPPI lead
Who are HQIP?
Our work
National Clinical Audit Programme30+ national audits covering:
• Acute• Cancer• Children and
Women's Health• Heart• Long-term Conditions• Mental Health• Older People
Clinical Outcome Review Programmes 4 ongoing national programmes: • Maternal, Newborn
and Infant • Medical & Surgical • Mental Health • Child Health Programme
National Joint RegistryCollects joint replacement information, monitoring implant, hospital and surgeon performance:
• Holds 1.75m+ records• Includes hips, knees, ankles, elbows and shoulders • Covers England, Wales and Northern Ireland• Mandatory for NHS since 2011
Quality Improvement and Development Supports QI at local level via: • Evidence based guidance • Practical tools and case studies• Patient and public involvement • Regional training events• eLearning and webinars• Network Support
Quality assessment report 2014
• Centre for Healthcare Improvement• Over 50 responses• Quality improvement seminar• Feedback will determine how to approach the next
phase
Consultant outcomes publication
• COP update– Wash up meeting last month– NHS Choices/SUN meeting – see blog
• NJR update
Improving access to data• Annual Report via a new, dedicated
website. Launched September ‘14 with interactive reports launching in March ‘15
www.njrreports.org.uk
• Consultant surgeon information published for the second time in Nov ‘14 with corresponding hospital information to be enhanced March ‘15
www.njrsurgeonhospitalprofile.org.uk
QID team
• Resource update– Information governance– QI methodologies– Root cause analysis– Junior doctors– Boards guide and Good Governance Handbookhttp://www.hqip.org.uk/boards-and-clinical-audit/
QID plan 15-16
• New resources– Social care manuals– Good governance between organisations– Ensuring data quality– Introduction to statistics– Templates
Information GovernanceClinical audit patient leaflet
Purpose of leaflet
This leaflet describes how your data is used in clinical audit. In the NHS we aim to provide you with the highest quality of healthcare. To do this we must keep records about you, your health and the care we have provided or plan to provide you. Your data may be collected to check the quality of care using clinical audit.
What do patients need to know
• Who may access my data?
• Where is my data collected from?
• Why is my data collected?
• How is it kept safe and confidential?
• Opting out option
• Implied consent
• Explicit consent
• Section 251
• Getting involved
• Useful links
The template
• What is clinical audit?– Local– Regional– National
Some definitions
Anonymised
• Anonymised
Data prepared from personal information, but not anything that can identify a person.
Pseudonimised
• Pseudonimsed
Data is anonymous to the people who hold or receive it (eg. the audit team), but contains information or codes that would allow others (eg. those responsible for your care) to identify someone from it.
Identifiable data
• Identifiable data
Personal Identifiable Data (PID) is any information that can identify one person. This could be one piece of data (eg. a person’s name). Or a collection of information (eg. name, address and date of birth).
Patient identifiers
• Patient identifiers
Any code used to uniquely identify a patient within a health regiser or a health records system (eg. your NHS number).
OPT OUT
If you do not wish your data to be shared for the purpose of a clinical audit you should let your care provider know and complete an OPT OUT form and this will be recorded in your medical records. If you are happy for your data to be used you don’t have to do anything – this is called IMPLIED CONSENT
Explicit consent
Some national clinical audits will require your explicit consent, and this is when you will be asked to sign a form that states that you allow your data to be used for the national clinical audit project
NJR example
Patient consent form
• www.njrcentre.org.uk• Two sides• How does the NJR help
patients?• Is my information
safe?• Find out more• Do I give my consent?
How the leaflet was developed
• Central Southern – Commissioning Support Unit• HQIP staff• Service User Network
Where to find more information
• NHS Choices• NHS England• Care.data• Health and Social Care Information Centre• Example of consent forms – NJR website
Patient and public involvement
What do we mean by
• INVOLVEMENTHow patients and the public will be involved in the structures and process of the work i.e. through mechanisms such as governance, priority setting, teaching and education, identification of the need for innovation, assessment of technologies.
Oxford Academic Health Science Network
• ENGAGEMENTHow patients and their carers will be supported to be active participants in their own care through approaches such as personalised care planning and shared decision-making.
• EXPERIENCEHow the subjective experience of patients is captured and utilised for quality improvement
Why involve service users and carers?
• Ask different questions – change the agenda
• Ground experience• Different priorities• Use different methods e.g.
face to face interviews• Develop different
instruments – user-valued outcome measures
• Shed new light on old questions – challenge our assumptions
• Hidden talents amongst ‘service users’
• Aid recruitment, dissemination & implementation
• Required by funders• Morally right – public-
funded research of public services
• Capacity building• Empowering service
users
Fun!
HQIP Service User Network
• The Service User Network, established soon after HQIP in 2009.
QID team involvement
• Resource review• PPI workshops – 15-16• National voices• 4PI - http://www.nsun.org.uk/
NCAPOP
• Producing easily accessible reports
• The suppliers• Steering groups• Sub-committees
PPI in your clinical audit programme
Flipchart exercise• What PPI is there in your organisation’s clinical
audit programme?• What PPI would you like to see?
Some examples
• Where to start? – Attending service user forums• Other options - Student placements• Getting there - Patient representatives on CAG• Gold standard - Patient Panels
Patient panels
• A guide to developing a patient panel for clinical audit
Shrewsbury and Telford Hospital NHS Trust
Three main objectives• Gain board sign-off• Develop policies, roles and responsibilities,
contracts• Train interested volunteers
Data collecting
Responsive to local needsProject
continuation
Organisational buy-in
Patient perspectiveImproved
outcomes
Benefits of PPI in clinical audit
PPI strategy
http://www.nsun.org.uk/about-us/our-work/national-involvement-partnership/
Principles – Shared valuesPurpose – Clear and can be measured against
Presence – Who and whereProcess – Accessibility and alternative methods
Impact – Ask questions about the difference PPI has made to the project
