winter 2013/2014 - live it! magazine featuring elaine baxter

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volume 4 w issue 3 winter 2013/2014 Live it! is a publication of the Iowa Parkinson Disease Information and Referral Center ! Giving Back From politics to advocacy, helping others is the best treatment. Elaine Baxter A Resource for Iowans with Parkinson’s Disease and those who care for them.

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Giving Back and the power of advocacy

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Page 1: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

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Giving BackFrom politics to advocacy, helping others is the best treatment.

Elaine Baxter

A Resource for Iowans with Parkinson’s Disease

and those who care for them.

Page 2: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

table of

contents 3 l From the Sta�

3 l Contact Us

4 l From Our Medical Director

5 l What’s New for 2014 Chapter Information

6 l Holiday Tips for Long-Distance Caregivers

7 l New Years Resolutions

8 l Cover Story Giving Back (pictured here with her husband Harry)

11-12 l Past Events PD Walkers, Viewing Party, Phinney Conference, Sioux City Symposium

13 l World Parkinson’s Congress, Kudos

14 l Brain Games, Artability

15 l Donors, Donations

16 l Gift Ideas

17 l PAN and A�ordable Care Act, Upcoming Events

18 l Links, Resources and Sign Language

19 l Chapter Information, Subscription Form

6

Table of Contents2

Reader SubmissionsLive it! magazine is intended to be a voice for the Parkinson’s disease community, and we are pleased to consider article, art and photo submissions for future issues from our readers. Please send your submission requests to Iowa Parkinson’s Disease Information and Referral at UnityPoint Health – Des Moines, 1200 Pleasant St. E-524, Des Moines, Iowa 50309, with Live it! on the attention line, or email them to [email protected]. Please note: �e decision to include reader submissions is at the discretion of the editorial sta�. �e editorial sta� reserves the right to edit or otherwise alter any material submitted. If you would like submission material returned to you, please include a stamped, self-addressed envelope.

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Live it!ONLINE

Live it! is also available online! Visit www.apdaiowa.com for an electronic copy.

Also, follow us on Facebook (www.facebook.com/IowaIandR) and Twitter @IowaParkinson (twitter.com/IowaParkinson)

Scan the QR code at left to go directly to apdaiowa.org

Page 3: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

letter from the

Live it! sta�

Live it! Winter 2013/2014 Live it! Winter 2013/2014 3

Live it! Staff Medical Director: Lynn Struck, M.D.Managing Editor: Crissanka Christadoss Editors: Linda Jordening and Vicki Ingham Contributing Writers: Holly Bonasera Art Director: Patrick Vaassen

Live it! Editorial BoardLynn Struck, M.D., Medical DirectorCrissanka Christadoss, Coordinator, Iowa Parkinson Disease Information and Referral Bruce CarrVicki InghamLinda JordeningPatrick Vaassen

contact us:

Iowa Parkinson Disease Information and Referral CenterUnityPoint Health – Des Moines

1200 Pleasant Street E-524 , Des Moines, Iowa 50309(877) 872-6386 | www.apdaiowa.org8

Disclaimer:All material related to Parkinson’s disease contained in this magazine is solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient’s physician. Speci�c articles re�ect the opinion of the writer and are not necessarily the opinion of the editorial sta�, the Information and Referral Center, the medical director of the Center, �e Iowa Chapter of APDA or the APDA.

Dear Live it! Readers,We are so fortunate to have connected again with you this year, bringing you stories of hope and joy and lots of food for thought.

As the year closes, we ask you to think about this holiday season and giving back to your community. Our cover story features Elaine Baxter from Burlington, Iowa. Elaine had a busy career in Iowa politics and continues to be an advocate for the Parkinson’s community, emphasizing that giving back helps her through the challenges Parkinson’s presents.

With your donation and support we’ve been able to bring many wonderful events to the Parkinson community in Iowa, including the annual statewide conference in West Des Moines and the annual symposium in Sioux City. In the coming year, we hope to bring more of these events to di�erent regions in Iowa. Save the date for next year’s statewide conference – Friday, June 20, 2014.

Speaking of important and informative conferences, the Iowa Chapter sent representatives to the World Parkinson’s Congress this year that was held in Montreal, Canada. �is important conference is held every three years and brings together top-notch researchers and Parkinson’s experts from all over the world as well as patients and caregivers. Iowa Chapter Co-President John Krumbholz details his experience at the World Parkinson’s Congress on page 13.

�ere are many gi�s we can give this holiday season, but what would be the most meaningful? �is year we asked several Live it! readers what holiday gi�s they want, have received or given (page 16). Included are a list of gi�s you may think about getting loved ones. �ere is also the gi� of taking care of oneself. Holly Bonasera, a Parkinson’s wellness consultant, o�ers some tips for long-distance caregivers on page 6.

Many of you are a member of the Iowa Chapter of the APDA, which entitles you to a Live it! subscription as well. We enjoy o�ering you this publication and want to continue to do so. To help us o�set costs of printing and mailing, please consider a donation to the Iowa Chapter of the APDA or becoming a member this holiday season for only $20 (subscription/membership form on the back page of this magazine).

�ank you for your continued support of the Iowa Chapter of the APDA and the Parkinson’s community.

Wishing you a Happy Holiday Season and a Happy New Year! See you in the Spring,

The Live it! Staff

Request for Submissions: �e sta� would like to invite words and photographs from you. Share with us photographs of you, your artwork, your words – anything that shows how you Live it! Please see submission guidelines on the bottom of page 2.

Page 4: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

from our medical director

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Lynn K. Struck, M.D.NeurologistPhysician Specialty ClinicUnityPoint Health – Des Moines

This icon indicates more information is available at the featured Web link.

�e Iowa Parkinson’s Disease Information and Referral Center and Live it! magazine are privileged

to have board certi�ed clinical neurologist Lynn Struck, MD, as our advisory Medical Director.

Dr. Struck is on sta� with UnityPoint Health Physicians, Des Moines, and is a leading expert

in movement disorders in Iowa. She has focused her career on advances in treatment of her

many patients with Parkinson’s disease and ongoing research to �nd better treatments and, ultimately, a cure.

Copyright Statement:Statement of Copyright�e entire contents of this magazine are copyrighted under United States copyright laws by the Iowa Parkinson’s Disease Information and Referral Center. All rights reserved. Written permission from the Iowa Parkinson’s Disease Information and Referral Center is required for reposting, republishing or retransmitting any material in this publication.

What You Can Do Without Written Permission Articles may be reproduced only if the text of the article is reproduced in its entirety and attributed to the Iowa Parkinson’s Disease Information and Referral Center.

What You Cannot Do Without Written Permission Reproduce any Iowa Parkinson’s Disease Information and Referral Center materials within any commercial publication or for any commercial purpose. Print more than a single copy for your personal use.

Ca�eine and the Risk of Parkinson’s Disease

Ca�eine consumption has been associated with a reduced risk of Parkinson disease. �is association is strong in men but uncertain in women. �e reason why there is potentially an uncertainty in women is because of a possible interaction with hormone replacement therapy.

Ca�eine’s neuroprotective function is attributed to its negative action on adenosine 2A receptors in the brain. �ese recepters are potentially targeted as an anti-Parkinson therapy in several clinical trials.

In reviewing the existing literature, the majority of the reduction in risk of Parkinson’s occurred at relatively low levels of ca�eine intake. It has been shown that A2A antagonists can improve bradykinesia and other parkinsonian motor symptoms in rodent and nonhuman primate models of Parkinson’s as well as in patients with Parkinson disease.

In summary, it has been found that there is a lower risk of developing Parkinson disease in individuals who regularly consume ca�eine. �ere is some data that ca�eine may have neuroprotective e�ects in humans. �e potential bene�t of ca�eine and Parkinson disease risk and progression deserves further research. Before initiating ca�eine on a regular basis, all individuals should verify that this is acceptable with your physician from a medical standpoint.

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Page 5: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

chapter informationchapter informationchapter information

What’s new for 2014

It was a great year for us at the Iowa Chapter of the American Parkinson Disease Association.

Although it does not appear that any earth-shattering research or �ndings are ready to be announced in 2014, that does not mean we sit idly by as a chapter. We reached more of you and helped more of you than we had ever done before through our website, publications, conferences, exercise programs, outreach and events. Our goal is to build on the successes and help even more people with the �ght against Parkinson’s disease.

Our mission as the APDA is to ease the burden and �nd a cure. In Iowa we are taking that mission a step further by attempting to help all people impacted by Parkinson’s disease in communities across Iowa. �is is a huge task and requires us to de�ne our goals and aspirations and establish a path towards accomplishing them.

Our nine year vision is simple, profound and a challenge to achieve: “We will be the �rst place people of Iowa turn to for help in dealing with the challenges of Parkinson’s disease”.

�is vision implies a number of things will be true:

• We will be well known throughout all of the communities in Iowa.

• We will have the scope of services and relationships necessary to address/refer those impacted by PD in any way. We will be �nancially and organizationally strong so our constituents can count on us at all times.

In the process of accomplishing this vision we have identi�ed seven areas we need to work on.

• Examining and increasing the makeup of the chapter board.

• Increasing our membership numbers.

• Solidifying fundraising necessary for our cause.

• Providing public awareness concerning Parkinson’s disease and our cause

• Expansion of support groups and programs we o�er

• Improved utilization of technology to improve organizational e�ectiveness and new ways to serve our constituents.

• Expanding and deepening our relationships with health care and other professionals.

As a board, we will be providing additional focus and attention to these areas in 2014 and beyond. We would be willing to talk with individuals and support groups on how you could join us in achieving our goals. �e simple fact is we are at war with Parkinson’s disease. It will take an army to win this war, but with your help, we will get the job done.

Won’t you join us in the �ght of our lifetime?

American Parkinson Disease Association, Iowa Chapter Board

5Live it! Winter 2013/2014

Iowa Chapter of the APDA:

Front Row: (l to r) John Krumbholz, LaDona Molander, Jen Voorhees

Back Row: (l to r) Ervin Fopma, Gayle Fopma, Gina Chaves, Dave McNeill, Rich Mills, Rolando Chaves

Not pictured: Denise Harlan

Page 6: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

Holiday Tips for Long-Distance Caregivers

Nearly one-third of all Americans provide assistance with daily activities or medical tasks for their loved ones. Although the majority of caregivers live within 20 minutes of the person they care for, about 15% live more than an hour away. - Family Caregiver Alliance

Long-distance caregiving brings with it a special set of stresses that may be magni�ed during the holidays. Here are some tips that can help you enjoy the holidays with your loved ones.

By Holly Bonasera

Holiday Tips

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Your time spent with your loved ones is precious, even if it is di�cult at times. Finding ways to reduce the stress of getting together will help everyone enjoy the holidays more.

Let go of your agenda

Having set expectations for the holidays

can be a great source of stress, not only for

you, but the rest of your family. Try being

an observer �rst and let go of judgment

about how things are being managed. Other

members of your family may be more

familiar with the daily reality of caregiving.

�ey are doing the best they can and even if

you disagree with their methods, they need

your support more than criticism. Your

support is the biggest gi� you can give

your family.

Take care of yourself Seeing changes in your loved one can be extremely upsetting. Reacting as if this is an emergency is actually harmful to your health. Adapting to change takes time. Exercise. Practice relaxation. Give yourself a break and spend some time every day on something you enjoy.

Celebrate the little things �e way your family celebrates the holidays may have changed. Instead of bemoaning this fact, focus on �nding opportunities for joy in the present moment. �is will take the pressure o� everyone to live up to unrealistic expectations.

Holly Bonasera is a Parkinson’s wellness consultant. Learn more about her at www.facebook.com/ParkinsonsWellnessCenter

Page 7: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

new year’s resolutions

7Live it! Winter 2013/2014

Page 8: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

cover story

Giving BackFrom politics to advocacy, helping others is the best treatment

Elaine Baxter has approached her challenges with Parkinson’s the same way she did her active political career—with energy and determination. �is drive isn’t surprising from the �rst woman elected to the Burlington City Council and the �rst woman to serve as Des Moines County’s state legislator. A�er a career advocating for her constituents, she now advocates for Parkinson’s patients and works to help them enjoy a hap-pier lifestyle.

Elaine’s �rst brush with politics came when she married Harry Baxter, whose parents were both active politicians in the Democratic Party. �roughout her career, whenever she was asked whether her husband minded her heavy involve-ment in politics, she would reply, “He’s very supportive be-cause his own mother was in politics. In his mind, this is just what women do.”

Elaine started helping on the campaigns of local Democratic candidates in Burlington in the 50s and early 60s, doing routine political campaigning like phone calls and mailing. In the late 60s, the Democratic Party began working to appoint an equal number of men and women to party o�ces. �is opened many doors for women like Elaine, who were encouraged to take on more leadership roles. As she chaired campaigns for other candidates, she learned how to hold a press conference, give speeches, and other skills that would shortly become very useful.

In 1973, she was approached to run for the nonpartisan Burlington City Council and won. During her tenure, she worked to get more women appointed to city boards and commissions. She ran for mayor of Burlington in 1975 and was defeated. A�erwards, she decided to return to school—she had previously received a bachelor’s in international a�airs from the University of Illinois—and got her master’s in urban planning from the University of Iowa. She and her husband were early supporters of President Jimmy Carter, and when he was elected Elaine went to work in his adminis-tration in the Congressional Relations O�ce in the Depart-ment of Housing and Urban Development from 1979-1980. She learned about the operations of the federal government, which serves her well today as she advocates for Parkinson’s.

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Elaine and her late husband Harry

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Elaine with her grandson Will

Only 790 Kilometers to go!

Below: Elaine and Harry with sons Harry and John, daughter Kate and niece Karen Varnhagen

Page 9: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

Elaine took her next step on her political journey in 1982, when she was recruited to run for state legislator. “It was a very exciting special election,” Elaine remembers. “Even though it was 26 degrees below zero, I was out knocking on doors. At one home the man opened the door and told me, ‘You’re going to win. It’s too cold out here, go home!’” He was right, and Elaine served until she was approached to run for Iowa’s secretary of state.

At the time this position wasn’t taken seriously, but Elaine was intrigued by the possibility of increasing the level of service the o�ce provided to the people of Iowa. A�er winning, she studied other secretary of state o�ces around the country to see how they succeeded and how Iowa could emulate them. Noting that Iowa lagged behind in the ease of voter registration, she worked with a telephone company to put a voter registration card inside telephone books, for which she received national recognition. She also made it easier for agriculture operations and businesses to �le their government documents by making it legal to fax them—a �rst in state government—winning her their gratitude.

In 1992, conditions looked favorable for a run for Congress. It was a close race that put her in the national spotlight, but Elaine narrowly lost. A�er another losing run in 1994, Elaine returned home to Burlington and was later appointed by Governor Vilsack to the Iowa Lottery Board and Mississippi River Parkway Commission. She also began focusing on her long-time passion of historic preservation. Elaine has lived for 48 years in a historic home built circa 1875 overlooking the Mississippi River, and she has overseen renovations to that house. She has served on various boards, such as the Heritage Trust for Preservation of Historic Burlington and the Terrace Hill Society.

It would be an exaggeration to say everything changed with Elaine’s Parkinson’s diagnosis in 2005. �ough her symptoms were mild, she was told by neurologists that if she wasn’t already exercising she should start, since “exercise is like medicine for people with Parkinson’s.” Elaine’s subsequent research also extolled the bene�ts of exercise for Parkinson’s patients, including improved quality of life and possibly a slower progression of the disease.

At a state meeting for the Iowa chapter of the American Parkinson Disease Association, Elaine met David Zid, whose organization Delay the Disease focused on the types of exercise she’d been reading about. Based in Ohio, David Zid had created an exercise program “speci�cally to counteract the

movement challenges experienced by people with Parkinson’s,” such as stooped posture, slower movements, and tremors. Elaine was inspired by the idea, and talked to Dr. Anil Dhuna, her neurologist at the West Burlington hospital—“I said it wasn’t fair that Ohio had these classes and we didn’t.”

Dr. Dhuna contacted the head of West Burlington’s Great River Health Fitness Center, the �tness and rehab branch of the local hospital, and told him to talk to Elaine. �e center subsequently implemented Delay the Disease classes, and David Zid himself trained healthcare professionals in the region. �e classes began in early fall of 2012, and take place twice a week during the day. �ey started with 10 attendees and are now up to 40. �e sessions deal with common Parkinson’s problems like �exibility, balance, and everyday movements such as getting up from a chair. “It makes me very optimistic and happy,” Elaine said. “People with Parkinson’s can o�en become depressed, but I’m glad people are bene�tting from the classes I helped start. It feels like I accomplished something for other people.

“Most doctors agree that Parkinson’s patients who exercise do better than those who don’t. We know it helps, we just don’t know exactly why or which exercise works best.” Elaine explains that exercise is not a cure, just a way to make life easier. It can delay the symptoms of the disease and even allow some people to cut back on medication. �e Health Fitness Center has agreed to begin other classes for Parkinson’s patients as well, such as yoga, tai chi, neurocycling, and zumba, since it is important for them to exercise every day.

Elaine has also helped organize other local outreach events, such as a premiere party for the Michael J. Fox Show this fall. �e Great River Health Fitness Center generously sponsored and hosted the party, which was open to the public and attended by about 100 people. Many people who participate in the Delay the Disease classes helped publicize the event, inviting family and others who have Parkinson’s. �e event put a spotlight on the disease for the general public, and also reached out to other Parkinson’s patients—more people have begun attending the classes since the event.

9Live it! Winter 2013/2014

Being involved in my community lifts my spirits

allow some people to cut back on medication. �e Health Fitness Center has agreed to begin other classes for Parkinson’s patients as well, such as yoga, tai chi, neurocycling, and zumba, since it is important for them to exercise every

Elaine has also helped organize other local outreach events, such as a premiere party for the Michael J. Fox Show this fall. �e Great

sponsored and hosted the party, which was open to the public and attended by about 100 people. Many people who participate in the Delay the Disease classes helped publicize the event, inviting family and others who have Parkinson’s. �e event put a spotlight

Page 10: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

While exercise is bene�cial, sometimes everyday life takes precedence. A�er her husband’s stroke in 2011, Elaine spent more time with him and less time exercising. She noticed her symptoms increased, and everyday tasks took longer, leaving even less time in her day. Since her husband’s passing in March of this year, she has returned to exercise, attending Delay the Disease classes two days a week and working with a personal trainer two more days. “I participated in an aerobic walking research program at the University of Iowa in 2011, and I was doing very well at that greater intensity of physical activity,” notes Elaine. “You have to push yourself to do more intensive exercise, but it was helping.” She hopes to get back up to �ve days of exercise a week.

Even with Elaine’s local activism and personal exercise program taking up much of her time, she is still able to advocate on a national level. Due to her previous experience in national politics, Elaine was asked to volunteer for the Parkinson’s Action Network (PAN). �is organization is the national voice for the Parkinson’s community, with goals such as increasing funding for research, helping veterans whose war injuries have led to Parkinson’s, and advocating for a national registry for Parkinson’s and movement disorders. �e last point will enable more accurate information about the incidence and prevalence of the disease, which is critical to understanding genetic and environmental risk factors.

As a PAN member, Elaine receives updates on issues which a�ect the Parkinson’s community and is o�en urged to con-tact members of Congress to ask them to support legislation bene�tting people with Parkinson’s. She also works on the planning committee for the Morris K. Udall Awards Dinner, an annual awards ceremony to honor people who have done great work in the Parkinson’s community. Elaine participates in conference calls to organize the fundraiser and travels to Washington, D.C., to attend. At the dinner, Diane Rehm from NPR’s �e Diane Rehm Show, whose husband has Par-kinson’s, interviews a person who has been in�uential in the Parkinson’s community. �is year, she spoke with Dr. Oliver Sacks, noted neurologist and bestselling author of numerous books on people with neurological disorders. �e dinner also raises funds to support the e�orts of PAN.

Elaine understands why some people with Parkinson’s hesitate to be involved in their community but still encourages others to persevere. “�e hardest part is worrying what people will think of you if you are stooped over or shaking.

I know people who are active in communities that go out with their oxygen tanks, wheelchairs, walkers – what does it matter if my hand is trembling? I am inspired by Mohammed Ali and Michael J. Fox. It would be easy for them to hide out as they are not at the top of their game anymore. But they have done the opposite. �ey’ve really set an example of how to live an involved life despite Parkinson’s.”

While the extent of her activities may sound exhausting, Elaine is adamant that it is essential to her well-being. “As my disease has progressed, I’ve been amazed at the kindness of others, which has inspired me to pass it forward. With my husband’s passing, it had not been a happy year, but when I was planning the Michael J. Fox Show party, I woke up happy every morning. �e more I get involved in helping other people, the happier it makes me. Being involved in my community li�s my spirits, and it helps me deal with Parkinson’s.”

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Left: Meeting Bill Clinton at Knox College in Galesburg, Illinois.

Below: Elaine and Tom Vilsack

Left: Barack Obama Presidential Campaign in West Burlington, Iowa, in 2007

Delay the Disease class in Burlington, Iowa led by Matthew Kelley, personal trainer at Great River Health System.

Page 11: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

PD Walkers stu�

past eventspast events

PD Walkers Participate in the Des Moines MarathonThe PD Walkers participated in the Des Moines Marathon on October 20, 2013, and raised over $14,000 this year! Thank you to all PD Walker participants and those who donated!

Donors and PD Walker Participants Jerome & Elaine BarnwellJeannie BlazekJanet BenekeJanice BiceKevin & Diana BrownLawrence & Joan BruningSheila BurtonAlison & Todd CateRolando & Gina ChavesKris CameronCrissanka ChristadossJames & Yolanda ChristensenGayle & Ervin FopmaStan FoxKelsey GanderNancy GroganSue GrosbollRichard & Deb HeardBob & Teresa HertgesLinda Holden Becky HolmesSheri HosekKarla Je�riesAngie KlobnakMarjorie LarsonKaren LarsonMike LarsonElizabeth LemckeLana LuhungLuthens Law O�ces, P.C.Marilyn Magel Bill MatherCaitie MatherLisa MaupinJoe McConkeyLaDona MolanderR’Dell MolanderWilliam & Kristina MatherAlbert MewsCindy MewsClara MewsJayme MewsRuth MewsSue MewsSarah MurphyColleen NorgrenKara NorgrenRoger NorgrenSarah Norgren

Zachary NorgrenCindy OlsonRich PanekLaurie PolitzerJessie PritchardTimothy & Trina Radske-SuchanRob & Kris RobisonKris L. RobsonJosh SchollSarah StewardKim �edeSteve & Kim �ilgesBrian TownKeith VanBeekKelsie VanBeekSteven & Kathleen Van BeekKevin Wagner

Donations in honor of PD Walker Participants In honor of Amy & Ben Ahearn Donor: Katie Van BeekIn honor of Lynette Barrus Donors: Darcie Rossborough Jim & Judy AndersonIn honor of Team K (Kris Cameron) Donors: Dorothy Armens Karen Boatman Kris Cameron Jo Catalano Allan Heggs Sylvia Keeling Jane Kelso Alice Osterhus Dick SimonsIn honor of Alison & Todd Cate Donors: Dixie & Carl LarsonIn honor of Rolando & Gina Chaves Donors: Kirk Graeve Susan Bunz

In honor of David Findley Donor: Colleen NorgrenIn honor of Debbe Gray Patton Donors: Sarah Aikman Mark Allermann Jacqueline Bonneville Karen Bowen Jill Endries Stacy Farr Al & Heidi Fencl Tom & Sue Fojtik Terri Gohmann Ryan & Julianne Guillard-Patton Yolanda Hawthorne Gary & Veronika Keese Grace Lim Diane & Jim Patton Tracy Slagter Nicole WieseIn honor of Terry Hertges Donor: Lana LugringIn honor of Becky Holmes Donor: Dean SweeneyIn honor of Sheri Hosek Donors: Dione Gisch Linda & Duane HosekIn honor of Karla Je�ries Donors: Dana Kramer Cheri CipperleyIn honor of Jill & Maisie Kennicutt Donor: Michael MaupinIn honor of Angie Klobnak Donor: Joe McConkeyIn honor of Elizabeth Lemcke Donors: Leanne Hurel Kristen DevlinIn honor of Bill Mather Donors: Kimberly Ryan Becky Mather Marilyn MatherIn honor of Mark Mather Donor: Becky Mather

In honor of Dean Mather Donor: Bill MatherIn honor of Joe McConkey Donors: Misha McCurnin Angie KlobnakIn honor of Jayme Mews Donors: Patricia Best Sarah Brecht Tory Christensen Kristen Devlin Rose Foubert Laura Garrett Deana Horras-Colbert Erin Koehn Gail O’Rourke Melissa O’Rourke Isabel Schneider Lisa Schnedler Cole StephensonIn honor of Cindy, Clara, Al, Sue and Amy Mews Donors: Nancy Achenbach Lazetta Ahrendt Emily Andrews Shara Axmear Kris Baldwin Patricia Best Sarah Brecht Bree & Tom Case Tory Christensen Jennifer Cox Dana Dawson Kristen Devlin Susan Elwood Michelle Farrell Rose Foubert Laura Garrett Greg & Georgia Gent Linda Holden- Carter Deana Horras-Colbert Elise Knobloch Erin Koehn Christine Lucht Tami Marsh Brenda Moore Kathy Moore Brian O’Neil Joyce & Joe O’Rourke Gail O’Rourke Cynthia O’Rourke

Melissa O’Rourke Jerry O’Rourke Teresa O’Rourke Deanna Plank Tonya Potocki Christine Reznicek Trista Scha�ner Lisa Schnedler Isabel Schneider Cole Stephenson Meghann, Rick & Natalie Sullivan Amy Tapken Nicole �urm Carol Trier Sandi Van Dee Melody Van Dee Ron & Kathy VanBerkum Sara & Kyle Wade Devon Wilkop Kimi Wood-Hernandez Julie ZaveralIn honor of LaDona, Je�, R’Dell and Krislyn Molander Donors: Jim & Judy Anderson Cammy Coronato Alok Epari Janet Hasstedt Ben Jacobson Dale & Davida Kalina Lisa Kirchner Mike and Kelley Kramer Erik Luthens Jodi Melsness Claudia Siegel Diane & Mallory WeiserIn honor of Jon Muller Donor: Gretchen MullerIn honor of Sarah Murphy Donors: Mary Geisler Julie Kaiser Ann Murphy Chris Murphy Jodi Murphy Ann M Murphy Jerelyn O’Connor

In honor of Sarah, Zachary, Colleen, Kara and Roger Norgren Donor: Colleen NorgrenIn honor of Cindy Olson Donor: Chuck & Shirley KlineIn honor of Laurie Politzer Donors: Kristen Devlin Claudia RustadIn honor of Sarah Steward Donors: Je� Bruning Brenda Haines Bruce Johansen Regina Kovach Alan Marshall Dean Rock Janet Mark Rosenbury Ivy Sprague Sarah Steward Joshua Steward Nancy StewardIn honor of Barb Stokes Donors: Mike & Ronda Ammann Debbie DeCarlo Jennifer St John Kendra Logan Jeanie MurphyIn honor of Brian Town Donors: Brad & Jodi Buchan Scott & Marla Byers James & Yolanda Christensen Steve & Tracy Grasso Je� & Melissa Grinstead Don Hunerdosse Angela Hunt Chris & Kristy Huston Austin Janssen Scott & Michelle Jordan Clint Lutterman Kim Poll Kelly Schulte Judy Town Ken Turnis Jesse Veenstra

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Page 12: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

Past Events

12

Sioux City SymposiumOn Friday, November 8, 2013 the Iowa Chapter of the APDA held its 3rd Annual Parkinson’s Disease Symposium in Sioux City, Iowa. Speakers included Danielle Hemming-son, Exercise Instructor at the Norman Waitt Sr. YMCA in Sioux Sioux City, NE; Dr. William Andrews, Neurologist at CNOS in Dakota Dunes, South Dakota; Dr. Diego Torres, Movement Disorders Specialist at the University of Nebraska Medical Center in Omaha; Tami Briggs, �erapeutic Harpist from Eden Prairie, Minnesota and Chris Kuchta, Advocacy and Community Relations Director at Connections Area Agency on Aging in Sioux City. Topics covered an overview of Parkinson’s, upcoming and promising research, exercise, music and relaxation, and Medicare basics. Over 100 attendees enjoyed a great day of learning and connecting with others. A special thank you to Teva Pharmaceuticals and Medtronic for sponsoring the event.

Davis Phinney Conference in Twin CitiesOn Saturday, September 21, 2013 the Iowa Chapter of the APDA sponsored a bus trip to the Davis Phinney Foundation’s Victory Summit in Eden Prairie, Minnesota. �e Davis Phinney Foundation is well known for their Victory Summits, which provide a full day of expert speakers on a variety of Parkinson’s topics. �irty-�ve people came on the bus trip and attended the Victory Summit. �e Iowa Chapter looks forward to sponsoring similar opportunities for the Parkinson’s community in the future.

Michael J. Fox Viewing PartyOver 200 people met in Cedar Rapids, Des Moines, and West Burlington for Michael J. Fox premiere parties on �ursday, September 26! A special thank you to the Great River Health System, �e Cedar Rapids Kernels, and UnityPoint Health (in Des Moines) for hosting the parties.

2013 World Parkinson Congress

in Montreal, Canada, October 1-4

Left: Tami Briggs plays the harp for attendees Below: Attendees taking a movement and stretch break during symposium.

Page 13: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

13Live it! Winter 2013/2014

ConferenceConference

First, let me state up front, that I had no idea what I was getting in for. I had never been to Canada, let alone a French speaking province. I had no idea if communication might be a barrier or how my ability to get around in such a large unfamiliar city would be. I’m an old dog and learning new tricks in French was going to be a challenge. Was I ever wrong!

�e committee organizing the Congress did a fantastic job. Most of the lodging they arranged was literally across the street from the convention center. If we le� our room ten minutes before the �rst break-out session, you had time to get a cup of co�ee and still be seated before the session started. �e people throughout the city had a mastery of the English language, so my fears of a communication barrier were non-existent a�er the �rst half hour.

�e material covered in the breakout sessions ranged from practical, easily understandable information to the most detailed scienti�c studies you could imagine. All were clearly labeled in the program, so as a participant, you were never surprised or overwhelmed by the level of the information unless you chose to be.

Perhaps the biggest surprise of the Congress for me was the sense of teamwork and hope that existed in every person I met. �ere were neurologists, movement disorder specialists, researchers, clinicians, heath care providers, therapists, students and of course, there were Parkinson’s patients and caregivers - nearly 3000 in all with over 900 diagnosed with PD. �ere was no big announcement about a cure having been found, but you could sense from every

one you came in contact with that we are making progress in this battle. I can assure you that no one walked away feeling like people were not doing everything possible to put an end to this insidious disease.

If I had to do it over again, the only thing I’d do di�erently would be to allow a little more time to enjoy the historic and beautiful city of Montreal. I guess I’ll just have to plan di�erently for the 4th World Parkinson Congress, Septem-ber 20 -23, 2016 in Portland Oregon . I’ve never been there either, but I hear they speak English there!

Hope to see you in Portland,

John Krumbholz, Co-President of the Iowa Chapter of APDA

2013 World Parkinson Congress

in Montreal, Canada, October 1-4

�e East Sac County High School Girls’ Volleyball Team from Lake View, Iowa hosts a “Grey Out” Night fundraiser every fall in honor of their volleyball coach, Dave Waggie, who is also science teacher at the High School and has Parkinson’s disease. �is year the team raised over $3,000 for the Iowa Chapter of the APDA. Money was raised by selling T-Shirts and ra�e items. �ank you to this wonderful group of young women at East Sac County High School!

Kudos - East Sac VballLeft: Tami Briggs plays the harp for attendees Below: Attendees taking a movement and stretch break during symposium.

Bonnie Hunter, Parkinson’s support group leader in Storm Lake, Iowa, presents Coach Dave Waggie and team with a recognition plaque for their fundraising e�orts on behalf of the Iowa Chapter of the APDA.

Chapter Co-President John Krumbholz and Board Director LaDona Molander attend the World Parkinson Congress in Montreal Canada in October.

Page 14: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

gamesBrain

art

When Deb Wityk and Carol Wise get together, it is all laughter, smiles and inside jokes. �at’s what happens when friends work together. When Deb tried making beaded jewelry by herself one day, she didn’t get the hang of it. Due to her Parkinson’s, Deb has trouble with tasks like buttoning clothing and other tasks involving �ne motor skills. It wasn’t until Carol showed her how to bend wires and string the beads that Deb found a new found love for making jewelry. “She’s very knowledgeable and she’s my friend – who better to work with?” says Deb.

Deb was diagnosed with Parkinson’s almost 20 years ago. She met Carol at Tai Chi class back in 1996 and they have been friends ever since. Carol doesn’t have Parkinson’s, but through Deb she is active in the Parkinson’s community. Carol began beading in 1994 and enjoys making jewelry and cra�s, which she in turn likes to provide as ra�e and auction items at the annual Parkinson’s conference in Des Moines each year.

One day Deb shared tulip lapel pins with Carol, and Carol immediately said that they should make earrings out of them. �ey work together to create earrings and jewelry sets, all Parkinson’s-inspired.

“We get along well,” says Carol. “It’s fun to work together and we have a lot of senior moments together, too!”

“I do tai chi for balance, mah jong for my mind and jewelry for occupational therapy,” says Deb. “Doing any of these things with a friend is a wonderful bonus.”

If you are interested in purchasing any of Deb and Carol’s creations, you can email Deb Wityk at [email protected] or call (515) 577-2990. All the proceeds bene�t the Iowa Chapter of the American Parkinson Disease Association.

ArtAbility

Deb Wityk (right) and Carol Wise

1. Name your colors: Challenge your ability to stay focused: Quickly read out loud the color that each word is printed in—not the word itself. Try it repeatedly to see if you can improve.

BLACK BLUE GREEN

RED ORANGE RED

BLUE RED YELLOW

GREEN BLUE BLACK

2. In just 7 words: Test your creativity with this verbal challenge. Write a short story—and use only seven words to tell your tale.

__________________________________________

__________________________________________

__________________________________________

3. Opposite day: Build new neuronal connections by putting your nondominant hand into action. Use it to perform daily tasks such as brushing your teeth, combing your hair, and eating. Even try to write with your other hand, too. Does using your nondominant hand become any easier over the course of the day?

4. Count backward: Here’s a brain workout that will help keep your mind on track. Try these three exercises in simple subtraction:

• Beginning at 200, count backward, subtracting 5 each time (200, 195, 190…).

• Beginning at 150, count backward, subtracting 7 each time (150, 143, 136…).

• Beginning at 100, count backward, subtracting 3 each time (100, 97, 94…).

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2015

donors/acknowledgements

donors August – November 2013

• Iowa Chapter of the American Parkinson Disease Association, Inc. PO Box 507, Waukee, IA 50263 www.apdaiowa.org Iowa Chapter of the APDA Co-Presidents: Gina Chaves and John Krumbholz Directors: Rolando Chaves, Ervin Fopma, Denise Harlan, Rich Mills, David McNeill, LaDona Molander and Jen Voorhees Past Co-Presidents: Je� Molander and Sabrina Moe Treasurer: Gayle Fopma • American Parkinson Disease Association, Inc. - National O�ce, 135 Parkinson Avenue, Staten Island, NY 10305, (800) 223-2732, www.apdaparkinson.org

Many companies and corporations will match your tax- deductible gi� and double or triple the amount contributed to continue the APDA mission “To ease the burden and �nd a cure.” Gi�s can be in the memory of a loved one, friend or to celebrate a special occasion. A card is sent to the designated person telling them of your generosity and thoughtfulness.Please send your donations to:

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In Memory of Ron ArvidsonDonor Name: Marty and Joy Cummings

Paul and Doris Jones Christy or Donald KriegelIn Memory of Leora Beyer Donor Name: Alice Beyer

Laverne Christensen John and Kathleen Holt

Mrs. Joyce Lauterbach Christena ShillingIn Memory of Neville ClaytonDonor Name: Marlene Clayton

Patricia ReynoldsonIn Memory of Francis DennerDonor Name:

George and Linda ArvidsonIn Memory of Sara DunsmoreDonor Name:

LeRoy & Connie Blommer Julio & Gloria Chiarella

Betty Golden Joyce Grier

John & Kate Holt Denis & Nancy Johansen

Ken & Amy Kinne Mike & Nancy Kooker

Leon & Carol Lamer Merle & Tami Mann

Gladys Nieuwsma Angie VandenberIn Memory of Paul O. JensenDonor Name: Diane DudleyIn Memory of Harold KockDonor Name: Greene Parish Health Project

Mary KockIn Memory of Villetta LynchDonor Name:

Laverne Carlson Richard and Phyllis Cook

Rudolph and Sandra Eilers Patricia Franscht

Veridian (?)In Memory of Audrey MurphyDonor Name:

Francis Murphy

In Memory of Leroy RotertDonor Name: Michael and Jill Carr

Dennis and Susan Eichner Geraldine Folsom

James and Sheri Jandik Michael and Melissa Love

Craig and Carolyn Miller Stephen and Linda Opheim

Carol J. Palmer Joan Rotert

Kent and Patti RotertIn Memory of Betty Ann StoneDonor Name:

Gordon M. Stone & Stone FamilyIn Memory of Alfred ThomasDonor Name:

George and Mary Lou Olauson Linda Snoddy

Robert DavenportIn Memory of Audrey MurphyDonor Name:

Francis MurphyIn Honor of Terry HertgesDonor Name:

Eastern Iowa Lure Coursing

acknowledgements

�e Iowa Parkinson Disease Information and Referral Center is grant funded by American Parkinson Disease Association.

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Robin BreenVirginia R ChavesLori K GeadelmannGrundy County Support GroupDavid A McNeillJana MentzerJe� MolanderNola SchroederSiouxland PD Support GroupJe� Stark�eresa �orntonDennis and Rose TiernanKimberly Turnbull

Donations:

FISERV Foundation Monsanto Fund Nationwide United Way Campaign

United Way of Central IowaWells Fargo Community Support Campaign

Corporate Donations:

Ray and Brenda Ryan

El Camino Walk for the Cure:

15Live it! Winter 2013/2014

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Holiday Gifts

If there are 1.5 million people with

Parkinson’s in the US, where are all

those diagnosed 20 years or more? Where are

all those Parkies? I can feel pretty lonely as

someone who has been diagnosed for 20 years.

I need some input and advice from a veteran

Parkie. Why don’t you come forward and tell

me and others how you have lived well? We all

need to share stories, ideas and advice. Please

contact me at [email protected].

Deb Wityk, Red�eld, West Des Moines

Support Group Leader

We asked readers to share gifts they’d like, gifts they’ve received and gifts they have given. Below we have also included some gift ideas for loved ones in your life.

need to share stories, ideas and advice. Please

Deb Wityk, Red�eld, West Des Moines

I am going to ask for an automatic remote starter for my car this year!

LaDona Molander, UrbandaleIowa Chapter of American Parkinson Disease Association Board Director

My friend, Rita, gave me a heart-shaped geode. I wear it on a chain. Everyone comments on its uniqueness. �anks, Rita, for your thoughtfulness.

Charlotte Zimmerman-Grant, Urbandale West Des Moines Support Group member

My friend, Rita, gave me a heart-shaped

Iowa Chapter of American Parkinson

“Oh, I can see! I can see! Everyone has faces! �is is so wonderful, I can see!” �ese were the words spoken by a friend who has very limited sight due to advanced macular degeneration.

She spoke these words as she placed special magnifying lens glasses on her face. �ese glasses belonged to my Mother while she was living. She was �tted with these glasses to aide her limited sight due to macular degeneration. A�er Mother’s death I thought about my friend. I was able to give her a gi� that will help her enjoy life more fully. It was an awesome feeling to hear her exclaim “I can see” each time she looked

at something in the room. �e glasses were just the right �t for her. Many friends’ eyes �lled with tears as we realized that God had planned this gi�.

Eloise Prater, NewtonNewton Support Group Leader

A thoughtful gi� I received was a Build-a-Bear with a recording of my granddaughter laughing in it. It plays when I squeeze the paw. My granddaughters live in Des Moines. Mackenzie was born 1 1/2 months before my diagnosis. I don’t think that was a coincidence. She got me through many rough times that �rst year.

I looked at her picture, I saw her in person, and I had the bear. I took the bear with me when I had my knee replaced.

Terry Hertges, Elk Run Heights, Waterloo Support Group Leader

A thoughtful gi� I received was a Build-a-Bear with a recording of my granddaughter laughing in it. It plays

Des Moines. Mackenzie was born 1 1/2 months before

She got me through many rough times that �rst year.

Other Gift Ideas• For card lovers: an electric card shu�er and card holder• Electric shaver• Electric toothbrush• For bakers: electric can opener, stand mixer or lightweight bake ware• Membership to the local YMCA or gym• Tai Chi classes or Tai Chi DVD• Dance lessons• Night lights to help illuminate hallways• Kindle e-reader, a lightweight option for book lovers• An iPad• Chocolate (choose a healthier option like dark chocolate)• FlexStick walking cane, see more at www.�exsticks.com• Spa day that includes massage, pedicure, manicure, or facial• Guide/service dog• Handybar – a tool to help you get in and out the car easier with more support and balance. See more at stander.com/handy-bar

Gift list is from the December 3, 2013 blog posting from www.parkinsonsjourney, written by Sherri Woodbridge.

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Parkinson’s Action Network - PANParkinson’s Action Network - PANParkinson’s Action Network - PAN

�e A�ordable Care Act (ACA) is the health care law meant to increase access to and lower cost of health insurance coverage for Americans.

Various provisions of ACA will have implications for the Parkinson’s community.

Provisions of the A�ordable Care Act (ACA) will likely have broad-sweeping implications for the Parkinson’s community. PAN is taking action with the goal of ensuring the voices and concerns of our community are represented as decisions are made by providing comments when appropriate.

Issues and ResourcesHere is a quick run-down of the main issues PAN is monitoring. We will update as new information becomes available.

Health Insurance Exchanges Beginning January 1, 2014, state-based Health Insurance Exchanges and Small Business Health Option Program (SHOP) exchanges will begin operations nationwide. States that opt not to develop an exchange program will have one administered directly by the federal government. �e exchanges will allow individuals and small businesses with up to 100 employees to purchase quali�ed health insurance coverage. Open enrollment for the exchanges will begin October 1, 2013 and run through March 31, 2014.

Essential Health Bene�ts�e ACA requires health plans for individuals who are uninsured or who will be insured through an individual or small group policy to o�er, beginning in 2014, a comprehensive package of Essential Health Bene�ts (EHB). EHB must include items and services within at least 10 categories, such as prescription drugs and hospitalizations.

Since January 2012, PAN has submitted comments in response to bulletins and proposed rules issued by the Department of Health and Human Services (HHS) for EHB, expressing concerns related to access to prescription drugs and cost-sharing. (PAN responses and comments on EHB can be seen at www.parkinsonsaction.org/federal-initiatives).

HHS released the �nal rule for EHB on February 20, 2013. PAN is pleased that HHS modi�ed the �nal rule to require health plans to have a process to gain access to medically necessary prescription drugs that may not be part of the plan’s formulary. However, we still have two primary concerns with the EHB provision for prescription drugs:

• Because individual states are allowed to design their own prescription coverage plans that meet EHB standards, the number of drugs that can be accessed by patients may vary widely from state to state. One state’s plan may elect to cover as many as 500 di�erent drugs while another’s may cover over 1000.

• HHS has not yet proposed a process to ensure that innovative new drugs, while generally accepted, are formally recognized in plan coverage as quickly as possible. In the interim, this could potentially lead to patients being denied critical health management and life-saving therapies.

Out of Pocket ExpensesPAN joined with over 100 patient advocate and health care organizations on April 16, 2013 in signing a letter urging the Administration to change its policy on out-of-pocket costs that people with chronic conditions will be charged starting in 2014.

For more information concerning the ACA, visit www.parkinsonsaction.org/federal-initiatives, email PAN at [email protected] or call 1-800-850-4726.

A�oradable Care Act

Upcoming EventsJune Conference – Save the Date Friday, June 20, 2014April is Parkinson’s Awareness Month! – April 2014

20151517Live it! Winter 2013/2014

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sign language

Socks�e sign for “socks” is made by pointing both of your index �ngers down. Rub the �ngers together a few times.

© 2006, www.Lifeprint.com. Used with permission.

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linksand other resources

resources

Web LinksHere are a few helpful websites. See a more complete list, including information on clinical trials, prescription assistance, catalogs for adaptive equipment and clothing, and more at www.apdaiowa.org.

Parkinson’s Disease - Iowa Statewide ResourcesCaregiving Information .....................................................................................www.iowafamilycaregiver.orgAssistive Technology and possible funding sources........................................www.iowacompass.orgIowa Prescription Drug Corporation (prescription aid) ................................ www.iowapdc.orgEaster Seals Iowa Assistive Technology Center ............................................... www.eastersealsia.orgParkinson’s Disease - GeneralAmerican Parkinson’s Disease Association .....................................................www.apdaparkinson.orgAmerican Parkinson’s Disease Assn, Iowa Chapter .......................................www.apdaiowa.orgAmerican Parkinson Disease Young Onset Center .......................................www.youngparkinsons.orgParkinson’s Action Network ..............................................................................www.parkinsonsaction.orgAmerican Academy of Neurology ....................................................................www.aan.com�e Movement Disorder Society ......................................................................www.movementdisorders.orgLiving Well with Parkinson’s Disease ...............................................................www.pdplan4life.com National Institutes of Health: Parkinson’s Disease .........................................nihseniorhealth.govCaregiversNational Family Caregivers Association ..........................................................www.nfcacares.orgIowa State University Extension Family Caregiving ......................................www.extension.org/family+caregivingCoping with Caregiving ......................www.extension.purdue.edu/cfs/topics/hd/resources/CopingCaregiving.pdfListserves (online discussion groups)Parkinson’s Disease Blog Network ...................................................................www.parkinsonsblognetwork.comParkinson’s Information Exchange Network Online .......................................... www.parkinsons-information-exchange-network-online.com

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88 links8 links

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subscription information

Want a subscription to Live it! magazine?Complete this form, detach and mail with a check for $20 to:

Iowa Chapter of the APDAPO Box 507Waukee, IA 50263

Name

Address

City State Zipcode

Email

q Yes, I would like a subscription to the Iowa Parkinson Information and Referral Center magazine Live it!

q Included is a check for $20 made to the Iowa Chapter of the American Parkinson’s Disease Association.

Please check one of the following:q Diagnosedq Professionalq Family Member

q Check here if this is a change of address

Algona/Kossuth County Donna Mae Walker (515) 341-3440Ames/Story County Sue Trevillyan, [email protected] (515) 233-2089Atlantic/Cass County Jon Jordan, [email protected] (712) 243-1850Carroll/Carroll County Melissa Schultes [email protected] (712) 794-5815Cedar Rapids/Linn County St. Luke’s Hospital Resource Center Samantha White, LMSW [email protected] (319) 369-8044Cedar Rapids/Linn County John Krumbholz [email protected] (319) 350-7482Centerville/Appanose County Katy Paxton [email protected] (64) 437-3432Charles City/Floyd County Carol Quade, carol@�ai.net (641) 228-5053

Creston/Union County Myra Spindler (641) 344-9065Davenport/Scott County Eileen Benson (563) 332-6497Decorah/Winneshiek County Linda Klimesh [email protected] (563) 387-3146Des Moines/Polk County Valerie Stickel-Diehl [email protected] (515) 358-0002Dubuque/Dubuque County Gerry Osterhaus [email protected] (563) 582-7313Dyersville/Dubuque County Catherine Tegeler [email protected] (563) 875-7029Fair�eld/Je�erson County Melissa Shafer (641) 472-3649Fontanelle/Adair County Lavon Lutz [email protected] (641) 745-4044Independence/Buchanan County Judy Hess (319) 334-2969

Iowa City/Johnson County Judi Gust [email protected] (319) 351-5248Marshalltown/Marshall County Dennis Eige (641) 753-8463Mason City/Cerro Gordo County Janelle Nevermann (641) 424-4277Muscatine/Muscatine County Wayne & Pat Corriell [email protected] (563) 649-2285 John & Karen Schaub [email protected] (563) 263-1866Newton/Jasper County Eloise Prater [email protected] (641) 791-1018Pella/Marion County Natasha Nikkel [email protected] 641-621-0316Sioux Center/Sioux County Glenda Vanlaren [email protected] (712) 722-8256Sioux City/Woodbury County Jack Sherrman, [email protected] (712) 277-9337Spencer/Clay County Carolyn Kruger [email protected] (712) 580-1219

Storm Lake/Buena Vista County Bonnie Hunter [email protected] (712) 732-3383Vinton/Benton County Barb Cassens [email protected] (319) 472-3178Washington/Washington County Amy Kleese [email protected] (319) 653-5473Waterloo/Black Hawk County Terry Hertges [email protected] (319) 235-7118Waverly/Bremer County Jennifer Wol� [email protected] (319) 290-9402 West Burlington/Des Moines County – Ruth Newton, [email protected] (217) 453-2481West Des Moines/Polk County Mary Adkins, [email protected] (515) 480-4090West Des Moines/Polk CountyLaDona Molander [email protected] (515) 953-8474Trenton, MO Gloria Koon, (660) 485-6558

support groups

support groups

Special thank you to Bill and Corinne Hinkle who were support group leaders

in Dike. �ey moved to Colorado recently, but their infectious

positivity will be missed in Iowa! All the best to Bill and Corinne.

A subscription also includes a membership to the Iowa Chapter of the American Parkinson’s Disease Association.

Page 20: Winter 2013/2014 - Live it! Magazine featuring Elaine Baxter

American Parkinson Disease AssociationIowa Parkinson Disease Information and Referral CenterUnityPoint Health – Des Moines1200 Pleasant Street, E524Des Moines, IA 50309

Thank youfor reading Live it! Magazine,

and for your support

of the Parkinson’s disease community.