west virginia clinical translational science institute links scientists and teachers sara hanks, ann...
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West Virginia Clinical Translational Science
Institute Links Scientists and Teachers
Sara Hanks, Ann Chester, Summer Kuhn
Infrastructure
Community Based Organization 159 Volunteer Board Members
800 9th -12th grade students in 48 high schools After school club setting Complete annual research
projects Successful completion of the
program results in tuition waiver to WV state schools
67 teachers
14 Field Site Coordinators
4 Community Research Associates (Knowledge Brokers)
Community Research Associates (CRAs)
Background in high school education
Understanding of experimental design and statistics
Ability to relate scientific information to high school teachers and students
Work and reside in communities across the state
Ability to help scientists relate to HSTA and community
What do CRAs do?
Build partnerships between HSTA and researchers to promote community based research
Work with teachers and students on implementing research protocols
Act as liaison between community and research Open doors for scientists for data collection in hard to reach
populations Give communities a voice in the research process
Disseminate and translate knowledge between researchers and HSTA communities and vice versa
Facilitate IRB process
CRAs and the WV Clinical Translational Science Institute
•CRAs train community members on CBPR practices
•CRAs work with research teams to adopt community engaged strategies
•HSTA students teach and train their family members on CBPR
•CRAs guide research teams on disseminating and explaining research findings to the community
•HSTA students present annual research projects at Symposia yearly
•CRAs work with research teams to develop appropriate community engaged research protocols and IRBs
•HSTA students and CRAs recruit participants for CTSI projects
•Student research projects are designed with community needs in mind
•CRAs work with students and teachers in 26 communities across the state on CBPR projects
•HSTA projects network researchers from national & statewide partner institutions Connect
investigators, clinics and
communities
Study design and
implementation
Technical assistance
and training
Dissemination
CTSI Community
Engagement & Outreach Core
Services Delivered by
HSTA Community Research
Associates (CRAs)
NCATS: Science of Community Engaged Research: Future
Directions – Chris Austin MD, Director of NCATS
Diagnostics and therapeutics
Behavioral interventions
Develop, demonstrate, and disseminate innovative methods and technologies
NCATS and Community Engagement Across the Translational Spectrum
Observation to point of care intervention (T1)
Identify most important research questions
Recruit best researchers
Build partnerships
Complementary funding for research studies
Bridge gap between fundamental science researchers and patients
Clinical and translational research (T2-T3)
Help develop relevant and practicable research protocols
Foster community participation and recruiting research participants for clinical trials
Increase collaboration and communication within the CTSA networks and between key stakeholders (e.g., academia, public/private entities, and communities)
Community health and population research (T4) Adoption of demonstrably useful interventions (i.e. dissemination)
Adherence
Interface with research partners including PCORI, Collaboratory, AHRQ, etc.
A New Work Force for Community Based Participatory ResearchAdolescents can be vectors for change in their
communities
Students are able to conduct CBPR in the most inaccessible communities
The HSTA families offer new insights into public health issues
The infrastructure is in place and unique to West Virginia
True Community Engagement
Communities’ agenda drives the research
Communities and their leaders are in a leadership role
Communities are involved in all parts of research plan
Mentoring
Constant mentoring occurs at 4 levels: Academic ResearcherCommunity membersTeachersStudents
Two-Way Communication
Respect
Student Driven
HSTA students as vectors for changeCommunitiesTeachers
Research ideas
Community voice
Research reported in this presentation was supported by the National Institute Of General Medical Sciences of the National Institutes of Health under Award Number U54GM104942. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.