Consultation In-Person Feedback Collection

Date: February 26, 2014 (afternoon)Group: Community consultation in-person sessionLocation: Victoria, BCNumber of Attendees: 57

Note: all the information and feedback gathered at this session will be inputted into the overall collection of data and feedback for consideration of the development of the Disability White Paper.

Feedback:

If you move to BC shouldn’t have to requalify – needs to be an interprovincial agreement RSDP is not exempt if you declare bankruptcy (only applies to those <50) Shouldn’t have age gap – if you have a disability should be able to take advantage of it at any age First Nations – PWD – all covered – need to bring consistency When referring to middle class in document mean disabled middle class - thanks Independent living – too indep. For group home But need supports to live independently Respite – CLBC lost papers to respite was lost and parents didn’t get a break when they needed one (had respite but was taken away) Should make push button (auto door openers) mandatory in all public places Lack of sidewalks in some communities make the community not accessible Sidewalk cuts often have bumps that are very difficult for some w/mobility issues So PWDs have equal rights What would it look like:

No barriers Ease of access across the board Planning for new communities must include accessibility

Role of non-profit partners Aging parents – can’t look after kids the same way they used to – need funding to help care for family members

Feedback:

More bus routes for people who live in outer areas of city Need community agencies in smaller areas to increase access to day programs, etc. Better coordination between communities (eg. Sidney to Victoria or Shawnigan) More consultation/education Would feel more comfortable if people w/out dis. Had higher education Public event should accommodate a range of disabilities, eg. events at causeway need to accommodate larger wheelchairs – ways to

manage in crowds - need space to move around and participate, eg. covers for cords are so high that they make areas inaccessible – need more gradual inclines

It should be a given when planning – all PWDs should be accommodated form the beginning More mainstream Solution – partner w/coffee shops to highlight/show art – opportunities to share talents Need businesses to come forward Don’t take $ off PWD cheques More understanding of disabilities - see me as a person not a disability Don’t use the r word Need local commercials – PWD in their own words to increase education Like depression – address in same manner Ensure all PWDS including invisible disabilities are treated as individuals Need accessibility – bus, sidewalks, etc. Proper ramping systems – making sure not too steep Helps w/chairs, elderly, etc. Technology – communication devices are way too costly for many who need them Would allow for people to communicate directly rather than thru an interpreter Everyone should have the ability to communicate as independently as possible Encouraging progressive creativity Need ways to encourage talents Need people to help/support you participate in the community High turnover in support staff because not livable wage – needs to be recognized as important work Families can’t afford to pay good support people livable wages Why not supporting family units Pd $15/hr yet $17/hr is needed to live in Victoria Need to recognize the value of support staff Decrease in turnover would increase quality and inclusion for PWDs Day programs are losing funding

Feedback:

Very scary to think you could lose your spot Should be able to count on supports Need more funding to attend more programs (eg. only 1 day right now) Workshops for employment skill s- life skills that lend directly to job Supports for employee and employer – need long term supports (pre and post job placement) Employer – fear of hiring a PWD Need less discrimination Look at ability not disability Educate employers Funding to hire PWD Incentive – gov’t grant/wage subsidy Business look at efficiencies – subsidy would help net profit to hire people w/various abilities Local businesses – scared it will be expensive Needs to equal benefit to employee/employer BC gov’t should hire x% PWDs – cross-dis (sic) Gov’t contractors must have X% PWDs Similar to hiring minorities – why not asking if a persona has a disability A job w/routines can be really helpful for certain people Find jobs to fit the individual’s needs Need for supports would go down over time once trained More customized employment Employers need to know where to get supports/services/education Incl. indiv. In determining needs Inclusion in employment – PWDs need to be part of the work team Increase rates so families don’t have to pay out of pocket Often have to live at home Need more assisted independent living Sometimes have to choose housing that does not support PWDs to be included in community Prioritize where funding goes – huge $ going to house people in prison – could do early ppreventon to get savings then increase funding for

PWD Funding needs to go up w/in inflation Get corporations involved Need whole community approach Team approach Is needed to bring up lowest member

Feedback:

Start w/ourselves – kill them w/kindness What does the Marriot do – do they invest in community? Incentives for community to be more inclusive – incl. home share Events – PWDs involved in community runs (organized by community partners) Disability organizations getting involved in general community events increases awareness Find sponsorships to participate Dis. Sector needs to branch outside the sector and have community come to them and go out to community – take it on ourselves Knowledge about home share and other housing opts. Need to be marketed Facebook – important – online social chats – safe chat room Make more of comm. resources – more public terminals at libraries – maybe rec. centres when I’m told I can’t have an interpreter, I print off the Act to show to my employer in US – American Disabilities Act which clearly identifies interpreter Canada should have similar Act Youth graduating have support until transition – need supports after high school into adulthood Use of teleconference – no cc on teleconference which doesn’t allow me to contribute – am left out of conversations- left behind and no

chance to share Lack of TTY which doesn’t allow me to talk to Revenue Canada No cc in phone call Online services or phone (cc) available in US – need in Canada 3rd party cannot speak to a hearing person on my behalf because of confidentiality Bank – bring my daughter to interpret and it is rude I never have the gift of being treated like anyone else Gov’t should pay for interpreters to that I can go to bank do whatever so that I can be treated like anyone else Eye exam – no interpreter to help me - daughter had to interpret and didn’t work out well Campaign to educate community – we com. differently but we are the same Increase understanding Deaf is an “invisible” disability Difficult to determine deaf person and hard of hearing – diff? Assume I can hear and when I need access I have to show them the law Ministry dismiss deaf and HoH – we become invisible Perceived as not ‘smart’ enough Diff. experience for people who have grown up deaf Always educating the ministry We internalize our anger and resentment grows –enough is enough

Feedback:

More support/funding for Habitat for Humanity Offer to individuals not just families Coop housing BC Housing increase funding Need devise to live in my home – form that dr. has to fill in – property tax form – dr. doesn’t know about it Most people don’t know about this At bank they didn’t know about this form Deaf/HoH is invisible and others don’t acknowledge it Out of pocket to purchase accessible devices to live independently at home Needs to be a fund for this Banks aren’t aware that there is a property tax subsidy Constantly educating everyone I am constantly educating - rehashing over and over again Cost of dr.’s form – funding for this Interpreters needed for real estate transaction/situations MSO – retaining medical benefits indefinitely once AEE limit is reached MSO – getting cut off of MSO puts people into a cycle Federal/provincial – social union framework agreement AEE: more information for PWDs – qualifying criteria, pilot project? AEE: retention of MSO – PWD and clients flipping back and forth Eligibility criteria for AEE Diminishing the requirement to reapply Inefficient Less paperwork Reporting schedule MSO – aging out to OAS/GIS Mandatory rental subsidy? Reapplication for GIS has been diminished Limbo list – some people do not have physical barriers so funding levels are lower Therapy and intensive life skills CLBC – needs to accept opinion of caregivers Issue: CLBC is mostly concerned about budget, not quality of service Assessments and evaluations– different level of service to help transition clients with barriers More efficient and increases dignity of residents

Feedback:

Nowhere to turn – need for an interagency for mediation – website for sharing ideas Example: brain injury program in AB that helped hospital patients to transition from hospital to group homes, or independent living – skills

training to allow re-evaluation so people can move to a better program HandiDART – negative service – retraining within the organization – agencies do not understand the different need of PWDS Transportation workshop – HandiDART is a separate entity and will not deal/problems Training with non-violent crisis resolution/prevention Agencies who hire PWDs may better understand the need of PWDs Example – LA – access transit, use of minivans, personalized interaction Challenge: length of trips – pickup times make HandiDART difficult to use Motivating people to get involved – youth – motivate the parents; adults – systems need to line up – can’t use bus pass on HandiDART BC bus pass dos not fund HandiDART, financial barrier since both passes needed Aging out – example: aging out of hospital resources, doctors, are all spread out Health services are a huge issue Having all specialists in one location Changing the health services model More housing Landlord tax incentive to support housing Housing first initiative – (US) – provides fixed address Enforcing accessibility in historical buildings Cities to provide more accessibility paring Ensure parking can be enforced on private land (towing) Ensure contradiction btwn regulations support accessibility Housing provided based on regional per capita – prevent stigmatization or ghettoization Clarity on who enforces parking Create aids that can connect ppl in rural settings – simple, innovative Universal design specific design elements to support multiple disabilities to encourage better use of space Bus transportation – not as accessible for blind community - greyhound Need for universal design (that are good for everyone) eg. buildings, homes, playgrounds, curricula ‘universal design’ should not be limited to physical space – there’s a need for culture and attitude change Accountability is needed $ can be spent on accessibility but the more important issue is inclusion Accessibility is an important building block towards greater inclusion Smart phones can be very useful why can’t they get funding for that? Internet costs should be an eligible expense for PWD

Feedback:

Producers of tech should help with cost containment (when they present their business case) There are successful programs in various facilities eg. Queen Alexandra - but there is a huge gap between the supports specialists provide

and the supports available in the community Supports and services provide by specialists need more integration into communities There is a need for a big coaching infrastructure in BC Services provided by specialist facilities – segregate PWD from others More access needed to community support workers Having ppl who have autistic children influence the policy/services Make paperwork accessible – not enough human contact (who to ask questions) Gov’t culture/language on forms Travel time (lots of back and forth eg. dr./office/dr) to get services – bus pass takes 3 weeks Public transit is the ‘lubricant’ to get access to services Access to training and education Technology is great but don’t want to leave ppl behind Save $ by closing offices 1-800 # often don’t know? (sic) Lack of knowledge of person on 1-800 # DTC – going trough 50 ppl to ge the issue resolvd (even w/all the correct paperwork) You need DTC for RDSP Acknwoeldgement that it’s a barrier to fill out forms Nightmare for ppl w/o a disability can’t imagine w (PWD) No access to computer Ppl need an advocate to help No access to a phone Risk of homelessness while waiting Application process –hard time for ppl b/c of barriers and long wait No designated workers (EAWS) – training to deal w/PWDs to staff While in hospital PWD no longer gets support $ - left w/$325 which adds further pressure to the client Jurisdictional issues of on reserve/off reserve Interdepartmental (ministry) communication – eg. MCFD to MSDSI Dollars are following the person (jurisdiction, school, gov’t) Everyone (gov’t) wants to be payer of last resort – person who fights the last/most Nice to not have policies of discouragement Certain criteria to make sure accessible Policy inclusive from the start – reinstate the disability lens (NS uses) – review and update

Feedback:

Involve advocates/self-advocates in the review of the lens Premier’s advisory council (Vanderzalm) – gov’t wide council for the ear of gov’t all year round ‘green paper’ – good things came out BC was a leader, now follower Ministries won’t talk to individuals – you have to get press coverage to get attention Have to go through litigation Adversarial relationship btwn community/disability/government eg. have a conduit (like disability office) Squeaky wheel may get more results Policies shouldn’t’ apply to just a certain type of person (eg. not dependant on criteria, supplement) Workers had more discretion for emergency $ Lack of resources for ppl who don’t have PWD Had to use Red Cross or other agency BC Disability card could hep ppl access different – could be labeling though Beyond PWD designation Could also be more inclusion Bus pass for all PWD (not just on PWD) Co-payer for devices outside of the welfare system and funding is provided for that item/need No longer rely on charities and fundraiser for life necessity devices – always individual decisions but not to rely on charities) eg. group

homes need to ask charity for a lift BC used to be most accessible – look at how we used to look like and the past work (sic) Make summit accessible (not just one location) Dedicated worker – no relationship – ‘scammer/cheat’ lens Hard to navigate funding – streamlined way to find funding – assistance/ease More resources over 65 – if under 65, fewer resources, less information Unfairness/inequity between over/under Access to recreation (gym classes) Barrier even within school, and then community Important to longer terms health Spiral to more dependence on health services Specialist in schools wont’ adapt to allow participation No linkages Disconnects No one to make reasonable decisions Need to make it easier to connect/not harder

Feedback:

FOIPPA makes it harder How quickly innovative programs have become “bureaucratized”/shelved Rules (privacy) Flow of information/connectiveness Difficult to connect w/others to become advocates Disempowers Lack of adaptation lead to isolation Sometimes blamed on liability No requirement for teachers to take classes/training in adaptive learning/movement/sport More progressive – teachers could be more progressive Focussed on inclusion, not segregation From education/formal training Fiscal restraints always impact the social – the most vulnerable, the least voice – need to stop doing that A ‘mental state’ of the community at large – break down stigmas, lead to inclusion, need to think differently Thinking is geared towards the ‘norm’ or the ‘elite’ Business has to become involved in the discussion Employment – lack of communication results in fed $ going unused Example – disabled person couldn’t’ leave house because no one to help put on coat – remove rule against 2 PWDs living together Couldn’t leave apartment – door only opened 1 way – couldn’t leave – market rental unit Scooter has to be stored in the garage – how do they get to the garage? No one to assist Budgets/ministries/organizations narrow limits of funding in each silo results in no funding of certain supports Example – hospital for stroke – ALC level of care shelter % of PWD went to hospital, so when he was released he had no home to go to

anymore led to homelessness Rules need to be flexible ie. bus passes, clothing for individual with different size for a job Disconnect – no more case managers family advocates/navigator Linkages are lost Nobody connecting and able to make reasonable decisions Also happening in health care Suggestion: more employment for PWD in the prov. Gov’t Stigma – invisible disabilities stay invisible PWD – allowed to make $800 – good thing Employer couldn’t cope w/unpredictability AEE – works for some people Need to open up to all people

Feedback:

More info – what does WorkBC do? TATE – assistive technology EATI – “maybe get funding again” Example – was working , got a cancer, got something else, had to work w/housing authority Sick for indeterminate amount of time- 2 years – could lead to homelessness – health issues can be unpredictable Scooters and wheelchairs – difficult navigating the urban terrain – curbs, sidewalks Public transit – platforms, not accessible, no sidewalks to the next accessible stop – upgrades required ON pilot program – adult protective service worker Result of current strategy /lack of support for mental illness is high rate of suicide b/c mental health is difficult to deal with/treat it is ignored employer $$ incentives required for hiring PWD measures to make PWD competitive with broader labour market first priority quota for PWD jobs – gov’t jobs should set example provincial task force – on mental illness, on PWD employment choices in support for independent living – need to grow this program access to sport - wheelchairs PWD should be paid more than once per month PWD separate from welfare No spousal penalty Very low fraud rates – yet don’t trust whole caseload Invest in people to improve productivity and turn people into net contributors PWD amount is too low – increase amount – separate from welfare – add “dignity” into process PWD $ amount should not decrease if you live with someone Invest in training and support for PWD because the $ will be returned through tax $ when they start working Remove “welfare” mentality of the PWD – make the system work for them instead of against PWD amount is too low – increase amount – separate from welfare – add “dignity” into process PWD $ amount should not decrease if you live with someone Invest in training and support for PWD because the $ will be returned through tax $ when they start working Remove “welfare” mentality of the PWD – make the system work for them instead of against Entire support system for PWDs v. hard to navigate – simplification required Don’t download on non-profits without providing sufficient funding Write universal design into the building code Accessible for all disabilities and look at all the details 3 hotels in Victoria with roll in showers

Feedback:

Apts are very hard to find for families Tax breaks for developers who make accessible housing Fewer opportunities in smaller communities Small details are forgotten in design If people can’t afford the supports what is the point Connect funding and the stuff Look at assit. Hearing standard in Europe – there are technologies available Think tanks on accessibility Federal standards on disability assistance instead of prov. To prov. Universal office or website to find out what is available Getting the word out consistently not just at opening events Being a part of the community is huge, gyms, centres Not just one accessible place but standards in all the community gyms, centres, libraries Train the personnel on accessibility so it doesn’t all fall to families, social workers, etc. particularly for kids Pot of money for each community More personalized options – the wrong equipment doesn’t assist Everything boils down to money Only pay for vocational training – you don’t get a say Care workers more training , vetting – care workers could get in the door, one showed up drunk Client has to train the worker Workers in private co. not allowed to dust, not allowed to vacuum, so why are they there? Huge burnout and turnover rate because the system isn’t fair to them either More regs. Over home support worker training and standards – more accountability to companies DND does more – look at what they are doing Spending cuts are narrowing options – taking away inclusion CISL is/was a good program for supports More inclusive PE class in schools, kids are excluded from some team sports because of disabilities Teachers are uncomfortable changing lessons, but some are great Programs for 35+ adults needed More focus on physical fitness 50% for people with dis. are obese – would prevent huge future health problems if phys. activities were

funded Lack of funds stops you at every turn We don’t have to reinvent the wheel ; consult clients for simple solutions Retailers set prices on equipment and the $ difference varies by a lot

Feedback:

Gov’t could give beaks or set regs. To control the mark up on devices With assets the more you make the more they take Takes away motivation to work unless you can get a really high paying job RDP is a step forward but still needs more flex. For needed purchases The older you get costs go up – more asset and tax breaks as you get older- would also help the general aging population An affirmative action plan for employer s: XX employers – you must have X employees w/disabilities = tax breaks PWD incentive to work and employer incentive to hire Training and an exit plan to employ PWD after training Deal with the simple barriers like doors, washrooms, stairs, transport PWD can’t be isolated Stigma needs to change Waste of gov’t funding to put restrictions on benefits It’s worth helping individual find employment self-esteem – ppl getting value out of work and their contribution cross talk amongst organizations , orgs. are bleeding, need to talk to each other to know how to be effective and efficient experts through experience 75% unemployment for PWD (development disabilities) Stats are not accurate Wage subsidy programs – hoops to jump through Gov’t website that lists the required accessibility for all office, service providers, housing, etc. A bridge for kids transitioning to adulthood, to jobs, to independence What about the Ministry of Disabilities – health, access, employment/training/transition Communication Central places for info Ask the person what they need for access National standard small and large

What can we do? National rep for PWD that is accountable to the court Gov’t staff should go thru disability sensitivity training Break down recipient – ministry staff barrier EA office is not friendly/inviting Unknown – RDSP? Confusion about RDSP Need someone with knowledge to explain

Feedback:

Info on RDSP needs to be accessible ASL is first language for deaf people not English Website needs to be set up in ASL – video embedded in link People who are deaf can’t contribute Policy definition of disability is restrictive therefor a barrier Cap on the RDSP is not a realist amount to support retirement Increased linkages between gov’t and banks – training, increased education to tellers about what gov’t offers Clarity on impact of a student loan on RDSP Transition home in and out of the RDSP Assistance w/down payment to get a home Financial institutions not aware No advocate to help people to get disability tax credit Predatory companies helping people apply for DTC No funding to non-profits that could help apply – workers, advocates program required Advocacy not bureaucracy! RDSP – not enough known about RDSPs When is the best time for a family to start, how can they learn more – how do we get the word out to the community and make it clear and

understood? Can an older person contribute? When can it be used? Contributing from your own pay cheque when on PWD isn’t realistic Progressive would look like a large population taking out RDSP Banks and gov’t need to team up to promote RDSPs CBC radio = public education Use lots of outlets Do they not advertise because it would be a significant expense? Only design for parents and children No really for adults Need to raise rate to move out of poverty System is paternalistic Set up by parents Develop provincial RDSP program to encourage saving (eg. match fed. grant) Address stigma attached to PWD status Incentive programs to build to accommodate HAFI – increase funding – have to meet criteria – again working middle class don’t qualify

Feedback:

65 and over – tax relief – for helping to do home adaption Prov to federal = push tax relief for costs to adapt homes – would help the middle working class Prov provide municipal dept’s training – accessibility eg. curb cuts, tactile, site specifics CSA Enforcement existing building code Initiatives to encourage existing bldgs. to be modified to 2014 BCode rules Existing human rights law trumps BCode Outdoor spaces – need to be explored – build environment – CSA standard – accessible design CSA B651-12 Increasing awareness within the community, businesses Better educating the community re: accessibility issues Training for businesses Transportation – intimidating – HandiDART requirements difficult, too many obstacles In schools, physical activity facilities need to be accessible 99% of housing is inaccessible Is there a gov’t body that holds building contractors, etc. accountable as regards accessibility BC does not have a disability or accessibility act; we need this Accessibility is necessary to support inclusion Reducing isolation increase health, reduces health and service costs Accessibility is the key to employment Why can’t we ask gov’t to build X # of units for PWD Shelter cost New housing models – cohousing – not accepted yet – community develops around the person/people – get around privacy issues PWDs can’t move in together, except for intellectual disabilities When getting into a relationship – can impact the access to supports Assisted living – states 19+ who meets criteria is eligible – under 55 is discouraged – need to stop ghettoization – need more accessible to

other groups Physical accessibility – need to do this – older schools are not acceptable – real problem – needs a proper retrofit for accessibility, like

seismic property value threshold for PWD – improvements far too low lack of $$ for accessibility improvements in public/subsidized housing house support program (provincial) is available for houses under $200k but most is not used b/c most house costs are >$200 public infrastructure (sidewalks, buildings) should have ramps and be easy to access Not enough wheelchair accessible housing No affordable housing at that New construction should have a certain quota that is accessible and relate to the population

Feedback:

Restricted to those who need it All new builds should require a power door (new condos, rec. centres, anything) Issues with strata councils and cost and requirements Making older building accessible too Transit is pretty good- perhaps program to show individuals how to use transit Restaurants – need actual accessible washrooms, not storage room for extra high chairs, etc. Sometimes there is a need to be vocal to be able to participate – need ramp, etc. Subsidy for home renovations, experience was that Victoria has the lowest amount allotted in the province = insufficient Legislation/regulation for new housing build to be accessible Insufficient $ for housing Lack of coordination of gov’t programs/services Too siloed Tie to cost of living British Columbians can learn how to communicate with an individual with serious mental illness in an effective way. This will reduce the

stigma and help with accepting mental illness. The innovations that would make it easier for people with disabilities are the communication model, visual connection mapping (google,

communication model annuska and refer to the approximately 100 pages in the online blog) as well as keeping existing programs such as the Wellness Recovery Action Plan (WRAP) program, the Hope and Recovery Program offered at the British Columbia Schizophrenia Society. As well as psycho-social activities such as the Pandora Arts Collective, Movie Mondays at the Royal Jubilee Hospital and meals at Our Place.

British Columbia would be a very accepting province, where dialogue about serious mental illness, emotions, symptoms and episodes will be talked about in an open transparency model versus a secret fear based model. The open communication model will dismantle the stigma and dismantle power struggles making British Columbia a safe place for individuals with serious mental illness to strive and live a life, not in fear, but in comfort and with equal opportunities. The "Charter of Rights" will be a living document - which shows true for all layers of society.

EATI - awesome – need funding back LMA – funding changed – prove $ not there – mentioned UN report Eval – broad spectrum – physical, intellectual, mental health Not covered by ICBC or WCB Middle class disabled get caught b/w cracks – expected to pay – excessive/expensive, can’t afford Technology designed more institutional spaces but in community wear and tear faster – cost to those to the users (sic) CSIL HLTH – very important to those who need the funding – please don’t touch the $ Clear need inter-ministry integrated services – improve communications –silos Need direct line for agencies to get info = navigate systems not the 1-800# (SDSI needs)

Feedback:

Need integrates service model of gov’t service providers, user groups – collaborate for delivery of services across continuum of need Adaptable housing –optional BC Building Code – should be nonoptional (sic) for municipality Access to technology – no time limits to technology programming Online applications Combined applications Always have online option Which forms to combine? Discussions, forums to find better ways to do forms More flexibility with wording necessary in forms – be more flexible with language required Social media and technology – takes away physical barriers Demographics have different needs CLBC transition to group homes Some clients cannot live in group homes – degrading Difficult to find care givers Transition plan – 6 moth training for group home residents Issue: people in limbo between homes Forums to keep the conversation going Community involvement on gov’t committees Act for Accessibility similar to Ontario (Accessibility for Ontarians w/Disabilities Act) Multiple formats to accommodate all disabilities for gov’t and businesses (ie. face to face, phone, technology) Modify interface btwn gov’t and people in communication Crating better accessibility on the internet Improving processes to enhance accessibility (ie. bus pass requires 65 ‘clicks’ to obtain) Transition improvements btwn different ages and/or stages in life (child-adult/elem-high school – university) Internal to gov’t communication btwn ministries Individual planning opportunities Publishing of books in multiple formats standard practice Allows everyone to realize full citizenship For inclusion, disability is interaction b/w person and condition and their environment There’s continuum of ability and we are all on it The Minister of the PWD designation, but not the Welfare Ministry AB’s autism services are great More funding and longer (age) Funding mechanisms for children in schools (should be attached to child)

Feedback:

Lack of staff training in BC schools BC schools have lack of parent consultation (be enshrined in legislation) Too much of a political process What services do they get in schools for autism Resources and training for staff Patchwork of services People move hard to transfer services Have MSDSI workers go out into community much like these consultations – instead of gathering information go out and give information

face to face to groups My foster daughter in care from 3 years old moved in w/me at 15yrs. I thought she was FASD. Her MCFD worker said she wasn’t yet

assessed because she’d ‘only’ been in system for 11 years. My foster daughter moved homes, is now aging out of MCFD with failing school, no support w/no diagnosis and no support for independent living skills. Now MCFD won’t have her assessed because she is too old.

Reducing barriers is a citizenship issues Same opportunity to be in the discussion and fully participate in society Society’s strengths judged by how we treat the most vulnerable Barriers come in a variety of forms Barriers to understanding g- education needed for everyone destigmatize mental illness Money needed for mental health counsellors Ontario program – build wood ramps for access and gave to businesses – help raise awareness and access Serving it right for PWD – gov’t mandated First aid for mental issues – widely offered training Up to date meaningful consultation – not lip service – past gov’t action has destroyed gov’t consultation credibility Innovation looks like a group of PWDs being supported to have their own business Supports, consultants – accountants, book keepers, marketing Widely accessible, easy to find (Google, etc.) Auditing system of organizations – find out level of effectiveness – make them effective for people – economic development cooperation

does it, why aren’t we? Org set up by well-established business ppl. helps – let’s offer services for other organizations Do we need more heart and soul? But we need more knowledgeable communication What good are programs if we don’t know about them? Ie. free education program at VIU (Vancouver Island University) Vocational rehabilitation services used to be the experts? Where are they now? Was great program (closed 13 years ago) Letting PWD be the idea makers, help create innovation ideas, be part of the process

Feedback:

Coop opportunities Priority placement opportunities – is this still around? Same old programs work – bring back! Resources (ex. Case Manager at VIHA) doesn’t have all the info Information dissemination More forms, like this , share info, experts CanAssist is huge = ++ con’t support UVIC has done a good job in consulting Poor consult in the details – doors, ramps, etc. Individual consultation from CanAssist very important – more support and promo Centralized hub for info Universal design Self direct program and services rather than thru 3rd part provider (employment and other services) Make application more accessible Web accessibility Universal design Require application met accessible standards Sensitivity training in an immersive environment Legislation for accessibility No enforcement on legislation (eg. BC Guide Animal Act) Need more money, lack of funding, long waitlist Gap in prog/services for sensory disability More enabling policy/program to build community (crowd sourcing) (sic) EATI Have to be poor or qualify for welfare to get necessary equipment in BC (AB, SK, MN, have various programs to assist) Prov gov’t employee – celling for employee health extended benefits – use up long before middle class – age to retirement Need prov gov’t to engage fed gov’t to waive capital gain (exemption) for those with disabilities – helps cover costs for themselves Again middle class fall b/w cracks PWD – don’t have funds for physio – especially those with PWD Universal initiative to review and develop a program responds to extraordinary costs of a disability – regardless of type Initiative 12 years ago – BC universal identification program – medical certificate – need ID – ones stop shopping Need universal definition – across all levels of gov’t/ministry/programs Disabled should have to continue to navigate or travel to prove over/over Legalize marijuana – with the change to the medical marijuana rules disabled will once get caught – fall through cracks – cost increase,

Feedback:

accessibility decreases Spinal cord injuries, blindness, MS Tax could go to supporting those with disability Reduce barriers to be a part of community Interpreters, cc, education to employers, teachers, visual cues Funding for above Need additional $ to support inclusion Working for gov’t – can’t afford to hire interpreter – doesn’t allow me to get ahead The right is there but the law isn’t enforced Need a law to support employer eg. gov’t funding and employer or tax subsidy for employer Life skills training- employment training Adaptive technology tax benefits Update funding to match technology advancements Definition of ‘disability’ is restrictive to provide the supports necessary Faster adoption of technology as personal support Strengthen the private sectors ability to modify their workplace and create custom adaptive technology to accommodate employees Increased support for R&D of new technologies Address gap btwn 19 and 65 for receiving technology Training for adaptive technology (funding for training) 90% assistive tech abandoned – could be reduced through training and trialing technology Skills training as well that help w/transition into school and work place If you enable ability, you enable inclusion Technology is a great equalizer – we need to be more creative, eg. iPhones – you can do a lot with them – is cost of technology an issue?

There are cheap tools available Ministry policies need to be in step with new technologies SDSI policies regarding what PWD clients are eligible for need to be reviewed For example cheap cellphones vs. complex landline systems What is SDSI currently funding? Can it fund inexpensive apps? Lack of training in technologies can be a barrier, $ can be invested on this eg. in schools. Some technologies are not easy to use Leaving hospital – mobility issues – access of an outpatient, but your window to improve is very limited – no funding for ongoing support Lack of brain injury funding Sooner the better to get treatment Continue care once you leave a hospital – could make fundamental impact

Feedback:

Continuity care instead of time limited care for ongoing health issues Healthcare vs. illness care Cost benefit analysis To get funding you have to have narrow restrictions Always having to keep repeating ‘your story’ again and again Understanding man Personal supports are not just technical/physical devices but also human support Homeowner grant for seniors but what about families w/children or ppl who acquire disabilities – GAP (non-PWD) Zero support for non-permanent disability What about renters? What about PWDs who make more $ than PWD ‘welfare lens’ Legislation allows but relation restricts ‘in your home’ vs. allowing for people to leave their home – leads to isolation Lens for inclusion access all legislation and regulation Do not close equp. and assistive technology initiative – need pro advice to help use the technology and assess what tech to use $$ to purchase 80% of devices purchases are shelved b/c no training or not good enough No pay phones – PWD can’t always afford a phone – access to telephone Not just the minimum but what is needed for the person, for example a cheap wheelchair that doesn’t meet the client’s needs Huge gap in provision of mental health services – a staff person required Knowing what is out there and making that accessible eg. places to go, exercise Hindered by costs of access 19+ nowhere to go for free physical therapy (limited) Education needed for ‘assumptions’ of what people ‘need’ No central place for someone with a disability to go to find out what they can get – big things and little things Knowledge and cost are the big barriers Restricting of financing on how to cover costs of access A person in a wheelchair is not able to rent a vehicle that accommodates/accessible van (ex. Budget, Avis, Enterprise, etc. do not have

these to rent) Approached Victoria Car-Share said that cost of van and insurance is too high Data they could use – PWD have a lower probability of getting in an accident Companies may need a vehicle to get ppl to work EATI program needs to continue- very important for the blind and others to be able to integrate into society to be provided with support

Feedback:

needed Accommodations in the workplace – technology, working from home Accommodations for PWD shouldn’t’ be seen as “too expensive” Self-employment can be very expensive- need staff too First step – getting the job (may require specialize d assistance) – help finding suitable work, skills utilized – change how we hire ppl (no

typing test, etc.) – change how we screen ppl Mentorship is so important (helps encourage, support) Attitudes of employers and coworkers – treatment equal? – perceptions Need legislation and regulation No $/program for rehabilitation (ie. vision loss) Health issue with vision loss No support for “mental health” issues Equality issue for funding and program/services Where will be deaf and HoH go for support Need a place for support Gov’t s/b giving a fuel tax benefit Fees for forms for property tax forms etc. should be waived ‘taps’ form should be accessible to everyone As a driver fill in and submit and received stipend (gas allowance) What can we do as a community? Access to entertainment and recreation and integration and life passes Barriers – financial – passes, etc. help with financial barriers; social – solutions, need to help people learn socialization Example – lifetime networks – buddy system – escalating foundation – take people from different aspects of life, join together – get people

involved Finding social activities with similar interests Managing transportation and other supports Lack of ability to plan spontaneous trips due to transportation restrictions Keep disability resource centres open later - lack of resources Recognize alternate forms or definitions of ‘family’ Address gaps btwn institutional support (ie. hospital to university both say the other can help) Find ways to connect agencies to start the conversation on what is working w/creating or support networks Build spheres of social connection for people (friendship, work, etc.) Community connections supports students staying in school Needs facilitation to maintain positive focus/safe space

Feedback:

Encourage all university/colleges to develop student/disability advocate body/office – requires funding Change BC bus pass policy for ppl on CPPD Again, technology can help PWD access social networks Social networks also contribute to greater health reduced health and service costs) Mentorship should be tapped, supported Role models are important; create a ripple effect Are linked up w/volunteers and HandiDART, but can’t always get transportation to medical appointments, much worse for social inclusion

issues – too expensive, too much panning, no spontaneity possible Profound depression and anxiety in the community Social networks start in school, as kids, accessing swimming lessons, playdates Lost in middle and high school, segregation starts, physical separation Need more adult day programs for younger PWDs – there are none Having fun, participating costs -$$ If not going to school, or work had to meet people and socialize Program where socializing is the goal – but not disability specific – staff to facilitate Helping people integrate through training for social skills – maybe through education system and transitions Create opportunities in education system to have kids with disabilities participate at all levels so that it is normalize for all kids to

participate, ie. use PE; engage kids with disability so they learn to play with each other Peer support programs – social programs – not disability specific Social isolation – school and work are main areas to meet people but if you aren’t able to do those then you are missing out No programs for people over 25 years and under 65 years Use sport and rec as a hub for programs – we don’t know who the PWDs are and the PWD don’t’ know what the program are – need the

connection (Victoria Wheelchair and Sport Club) Ppl. need the right technology, aids and devices Support for assistive devices More ability for participation Social networks established at work, rec. centres, organizations Knowledge of programs being offered Barrier of logistical challenges to participate, whether it be work, community activities Cost, transportation, piece of mind – financial stress – not having to choose or compromise Need for more peer support groups, lots are strapped because of private funding, not enough Volunteer driver program – Cdn. Institute for the Blind program was great but cancelled because of insurance issues – gov’t should help In order to ask for help someone has to be comfortable to ask Trying to find out which programs help, there are too many loop holes

Feedback:

What can my institution do? PWD need friends, help with participation We need to see PWD working in every area, trade The eternal environment is what creates the restrictions With changes in gov’t programs disappear Miscommunication between feds and prov and spending the $ Sensory disability group cannot get access to CSIL program Develop ‘central’ matching/peer support system Provide incentive link in with restorative justice program Encourage immersive/inclusive sensitivity training for employer/public service/community employee, etc. on disability issues Regression on K-12 education system Cost more to go to work, couldn’t get costs of equipment covered Barrier for those on SA to get to work Use a gradual transition process to move those from being supported to more financial independence – if you want to work support should

be there to make it happen Not a barrier – no choice but to stay home Rules around PWD – to get costs covered for medical services must continue Working shouldn’t cost the middle class economically PWD rates need to be increased – attached to individual – whether or not a partner Belter access for medical approval for PWD Employer awareness program s- incentives for hiring – private/public – ensure public service – mgrs. Hiring are doing Human rights – employer duty to provide Providing knowledge of requirements to employers Provincial/federal resource website – or other access identifies programs, funding grants, resources Less than 8% - small pop of deaf people – not sure how to hire , lack of interpreters Assume that deaf people pay for interpreters More challenging – emp. program can provide interpretation for 5 weeks and then it is up to employer – the employer doesn’t always want

this s/b a subsidy for employers acts and bylaws for employers/pop this is across Canada federally – Human Rights Act constitution already established employers/pop not aware of this Funding to agencies that provide support to enter the workforce

Feedback:

University may provide assistance and support to enter the workforce but gap exists for those who can’t/aren’t accessing the education route

Employers recognizing the skills that exist and how to maximize those skills Closing the gap btwn visible and invisible disabilities Recognize the needs of various disabilities not assume homogeneity Removing the stigma Universal approach within the workplace such as a needs assessment Start at a younger age – accessibility to employment supports Allows for a true transition rather than a start at 19 Consistent transition programs from youth working to training programs/education to employment Training/support for university profs. Marry PWD are very smart, can’t get a job (sic) Current PWD income exemption can be a disincentive – PWD try for lower paying jobs so as not to lose their benefit Lack of general public awareness of the contributions PWD can make PWD need continuous support to keep their jobs (does not stop at placement and pre-employment training ) Continuous support should be available as needed (individualized) Support should be client centred (not employer focused) Funding needed for programs that support employment for PWD Funding needed for youth with disabilities especially those who don’t’ access PWD benefits More gradual sliding scale needed for PWD benefits relative to earnings You need education before you get a job for example high school (more career planning) Just b/c you choose a private school you lose half of $ Son was at job – matching skills to job Culture of jobs General experience for work experience and coops for all students (disabilities, etc.) eg. students with disabilities/range of disability Scrap BC Bid – to let individual contractors (who have a disability) who are self-employers or unemployed Education for employers (disability competency) Lots of different pots of funding Employers w/tax credits – get employers and unions on board 40 – 65 year or all – lack of formal education, technology, concentration – their contribution not valued by society Although this Is changing, self-employment Funding for advocacy and volunteering is low, under compensated Flexibility of rules Incentive for employers – tax breaks?

Feedback:

Problem is they only last 6 months takes longer than that to learn, legislative change, more integration with union/employers – need to allow through their rules

Get youth working – only 3 months, must work 30 hr/week, but some can’t do that- excludes them More assistance/mentors to assist people to train and retain employment Missing a huge pool of talent Keeping PWD in the workforce Flexibility and accommodation s- working from home, hours Financial support – transportation to and from work Making $ doesn’t help with other benefits (PWD + supplements) = huge barrier – only able to make so much financially Employment changes one’s life PWD insufficient, fiscally limiting – rent is expensive Community – companies help create community –what is our community? How can we take part? Awareness! Social attitude – PWD seen as incompetent = stigma PWD need jobs, not to be secluded – increased health costs need to be able to live their life Mental health is just as important as physical health Continuity of services Enforce and fine employers for violation Reinstate Camosun College’s ESA program Develop internship program People fear loss of PWD status with SDSI Lack of/no information on education Hardship transitioning in/out of PWD Programs are short term and lack continuity and progression Inequity in eligibility for education upgrading Self-directed education Reduce bureaucracy EATI – reward those who are employed Penalize those who have employment/$ Hard to meet elig. Discontinue of program to elig. Inequity of elig. K-12 to post-secondary Require program for assistive technology Grants/initiative come and go

Solution Wall Posts:

Reframe dialogue with PWD are not the problem, but that public spaces designed to include all peoples are at issue. We need a BC version of the Accessibility for Ontarians with Disabilities Act, 2005 to make all public spaces accessible to all persons with physical and cognitive disabilities. We need a PWD designation that is independent of financial assistance to be used by all government bodies to provide for the needs of PWDs.Need to open AEE up to all peopleFlexibility in the workplace ie. change minimum hours for part time workIf we enable ability we enable inclusionEven school individualized education plans include specific, accountable goals for physical educationProvincial program to supplement RDSP for adults with dis. On PWD/in povertySelf directed programs in employment and other systemsMore $ for servicesAccessibility enforcement – physical, sensory, intellectual, etc.Ethical approachesAddress fear people have of losing PWDVisitability legislation for housing developmentIncrease rehabilitation and mental health Assistive technology access and fundingNeed flexibility in employment programs and funding also assistance and mentorshipReassess two year time frame for PWD application health is unpredictableTax breaks for accessible housing, workplaceImmersive inclusive training for public servants and facilitiesFOIPPA makes it difficult to connect need mechanisms that allow connectionSilo in funding results in lack of funding for specific supports (owing to strictness and focus)Increase PWD ratesGovernment led committees so that all PWD have regular and continual access and opportunity to be heard and participateFollow European standardsReducing isolation increase heath and reduces health and service costsParadigm shift towards ensuring PWDs are not considered to be second class citizensFunding for youth to begin employment training BEFORE transitioning out of high schoolAccess supports for people with sensory disabilityNeed proper retrofits for older schools to allow accessibilityThere should be more community resources available especially for children with disabilities

Government takes an inclusion lens to all regs and legs – requested by MSDSINeed more/any adult day programs for young adultsChange rules to allow people to move in together without losing supportsLook at inequity across disabilities and programsSocial networks start in school, need to be supported through middle and high schoolRequire gov’t to follow accessibility standards for all web content and applicationsIncrease education around disability so that general awareness understanding improvesPWD need continuous and individualized supports to keep their jobsPost secondary ed and training supportNeed for power of attorney for PWDs who don’t meet current criteria for public guardian and trustee and who cannot afford a private POAAccess to PWD without financial penalty or garnishing our other access to fundingAllow comparing w/solutions access to decision makersPeople receiving CPPD who have a low income but too high for PWD should get access to bus pass, MSO (non life threatening needs), nutrition supplement etc. as they are quite unable to pay for theseMinistry policies need to be instep with new technologies eg. funding for smartphones and appsFederal disability assistanceRemove barriers to physical education in schools – particularly attitudinal barriers by increasing Pro-D workshopsSupports for PWD (employment) should be client centered and not simply employer centeredProvide the resources and financial support to agencies dealing with customized employment More formal classes/training for teachers in inclusionBetter access to transportation, HandiDART, scoots for mobility so that people can get out and socializeNo adaptation = no inclusionUse sport and recreation as opportunities to improve health, well being, social networks, et.Need a broad range of innovative solutions to ensure that everyone can participate and contributeInequity b/n resources/supports over/under 65Raising the PWD rate and don’t cut it when move in with someone else‘innovative’ ways to connect isolated individuals living independently (eg. rural communities)Universal standard for buildings and structureEnsure coach education courses include PWD in all levels eg. active start, fundamentals More opportunities to have these discussions (first time in 13 years)Centralized info – universal standard The CEISL program works – add more $Increasing housing portion PWD and TIETO COLA (sic)Define levels of disability and accessibilityTechnologies are available and not necessarily expensive

Accessibility is an important building block toward greater inclusionCurrent PWD income exemptions can be a disincentive – PWD try for lower paying jobs so as not to lose their benefitsUniversal design should not be limited to physical space – there’s a need for attitude and cultural changeInnovation allows everyone to realize full citizenshipNo dedicated worker results in a lack of linkages, disconnect with supports, and no one to make reasonable decisionsMany PWD are very smart and cannot get a jobIncrease training of pre-service educators in learning assistive technologiesAssistive listening devices installed in all public places to help the hard of hearing communityPublic awareness campaign to decrease stigmaContinue to fund EATIIncrease support for families who have new children with disabilitiesProgramming should be based on long –term planning rather than short term budgetMSO – no cut off after earnings exemption reached – after 1 yearAEE – more flexibility for registrationFocus on people’s abilities not disabilitiesIf you qualify PWD (sic) in one province you qualify in BC – no need to reapplyReframe problems as design problems that do not allow full inclusion rather than providing special help for personsTransition programs for post-secondary education for students with a disabilityDesignation of a minister responsible for disability issues and not the welfare ministerMore planned activities for elderly with a disabilityEqual opportunity, equal access – need funding from ground up – need dis. Community to step outConstitution Act – should emphasize to employer to provide interpreterPWD designation independent of social assistance so can help all government sectors meet the needs of PWDsRegular and continual access to participate in creating and expanding upon policies sand procedures PWD designation independent of financial assistanceAccessibility Act! BC Version!Always including the disabilities community when making policy that impacts PWDsCLBC innovative programming to include assessment treatment and re-evaluate – not all services are long termProactive investment vs. reactive program service deliveryWebsite needs to be set up in ASL – video embedded in link – first language for deaf peoplePublic entrancesMandated building code amendmentsPremier advisory committee“an inclusive BC action plan” with a vision, goals, targets, timelines, and accountabilityJob training

Start transformation with yourself and your communityAffordable accessible housingRevamp human rights code make it accessibleLet a person’s government funding follow the person even when adultsMake it easier for people who lack funding to participate in the communityAccessibility for Ontarians with Disabilities Act for BCCase specific focus on financials case management systemNot having to rely on charity for equipmentGeneral work experience for work experience and coops for allSafe and secure home environmentsMore fundingEasier access to MSDSI – agencies that are helping PWDs should be able to contact MSDSI directly (another # than 1-866)We want to get to a point where PWDs are no longer recognized as a disabilityIncentives for community to be more inclusive in housing accessibility (home share)Disabled people having a voiceMore awarenessThe disability community becoming more visibleStigma stamping, attitudes, workplace and everywhereNormalize PWDs (diversabilities)Advisory council PWD on BOD to helpEqual access, equal opportunityVoc rehab programs and priority placementsMacro evaluationsRevamp human rights code and process as it is inaccessible to British Columbians with disabilitiesRecognizing all disabilities, even the “invisible” onesMinistry whose prime responsibility is disability – staffed by people with disabilitiesAddress financial inequality by tax relief fed/prov tax policies Complete integration into communitiesReinstitute ‘disability lens’ across gov’t to ensure leg & policies and procedures are inclusive find coordinated from outsetIncreased supportDisabled people have asset protection during a divorceWiden the scope of the homeowner’s grants/programsTax breaks for the middle classLegalize marijuana and use profits for PWDs

Cutting Red Tape:

Separate welfare from PWDIt takes 64 pushes of a computer button ti issue 1 bus ticket – need to curtail the red tape!Continuity re: programs, initiatives, grantsBe kindCreate a BC Disabilities ActMinistry of DisabilitiesPost PWD manual on lineIndependent appeals committee for students to get accommodations in a timely mannerProvide assistance for RDSP applicationsPeople with solutions should not have to jump through hoops to get to the correct person in governmentLetters going out to clients are automatically filled with the worker’s email name ie. Nicollette Romano is given as Nicoroma – then an advocate tires to contact this person the request goes nowhere as there is no one named Nicoroma to send it to – so the client gets no response – nor does the advocateTax breaks over penaltiesFunding underlies most needs (sic)Eradicating conflicts of interest in universities, where student’s societies and human rights departments are controlled by post-secondary institutesConsultation without follow-through means littleMinistry can work more closely with community advocacy groups to collaborate for the good of PWDs rather than feeling adversarialCross talk between organizationsClear info disseminationParallel ethnic minority and identify recognition with disabilitiesLife choices for PWDs should not be impacted by earnings exemptions and loss of benefitsStop the policy on losing PWD benefits when in prolonged hospital stays – results in loss of housing, stress, amplification of health problems and stops lower income/disabled persons for accessing health service due to fear of homelessness