third sector providers and hospice care – how can we support each other? – libby milton (prince...

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Third sector providers and Hospice care – how can we support each other? Linda Campbell, PAMIS Future Choice Project Assistant Libby Milton, PPWH, Clinical Advisor and service lead for young people

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Libby started the presentation with the phrase “it was a shock, but not a surprise” and went on to discuss some of the challenges that the hospice felt they were facing to provide adequate support to young people with life shortening conditions as they moved into young adult hood. She also discussed some of the things they had learnt as they explored these areas more fully. Linda then discussed how they had worked with the Hospice to look at referral pathways and ways of working together to provide better support. Libby left us at the end of the presentation with lots of questions that needed answered as they looked to ensuring the future of this kind of work. This included the idea of collaborative working, what relationships need to be in place and how we could lead forward with this.

TRANSCRIPT

Page 1: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

Third sector providers and Hospice care – how can we

support each other?

Linda Campbell, PAMIS Future Choice Project Assistant

Libby Milton, PPWH, Clinical Advisor and service lead for young

people

Page 2: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

“It was a shock, but not a surprise”

Page 3: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

Our Hospice experience

• Current perception of Hospice care• New challenges for the future

– Widening access• Learning for us

– Knowledge – Attitude– Models of care

• Our commitment

Page 4: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

What have we learnt?

• Identification of young person with “palliative care needs” : – Profound LD and health needs; progressive

neuromuscular conditions, others– Vulnerability and surprise question…….– How to recognise change– Once it is recognised, what to do, where to

signpost

Page 5: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

Working with PAMIS

• How we support families

• Finding out what the hospice can offer

• Getting information to families

• Making referrals

Page 6: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

“It was a shock, but not a surprise”

Page 7: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

• What the ideal service would look like– Person and family centred– Connected up health – social – education– Proactive – Built on relationships of trust– Perfect blend of social and therapeutic

support• Location? Not so important, but needs to be

accessible!

What have we learnt?

Page 8: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

Questions that remain…

• What is the impact if the young person is acknowledged to have palliative care needs?

(don’t use label “palliative”)

• It must NEVER make it worse, only enhance things

Page 9: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

• What relationships need to be in place to support transition to adult palliative care services– For pre school leavers?– For young adults?

• Who should lead on this?– LD nurses?– Palliative care providers?– Partnership approach?– CHAS?

Questions that remain…

Page 10: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

• How do we take this forward with– School nurses– Third sector providers– GPs– Families– Hospice staff– Acute care staff (children and adult services)– Social services– All the other people!!!!

Questions that remain…

Page 11: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

Envision the future

• Identification of those with palliative care needs• A partnership approach

– Age appropriate care– Family centred care, close to home– Staff trained and supported to recognise

palliative care needs, and offer appropriate intervention and support

– Integration of health and social care• Living and Dying Well

Page 12: Third sector providers and Hospice care – how can we support each other? – Libby Milton (Prince and Princess of Wales Hospice and Linda Campbell PAMIS)

Libby [email protected]

0141 429 9834

Linda [email protected]

0141 572 0782

Want to get involved?