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The Plymouth Laryngectomy Club ( PLC ) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC )In Association with Macmillan Cancer SupportRegistered Charity Number: 273635Our Funder: Macmillan Cancer Support

A Member of The Plymouth Third Sector Consortium (PTSC )

Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS -Consultant ENT Surgeon, Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.

The Plymouth Laryngectomy Club ( PLC ) A Charitable Support Group for Plymouth Cancer Laryngectomees

The Voice of PLCMay - June 2011Address : c/o 80 Warleigh Avenue, PLYMOUTH, PL2 1DH, Devon, UKMobile: 07745819828 ( text only ) Email: [email protected] Website: http://plymouthlc.webs.com

FOREWORD BY THE CHAIRWritten by Ted BURNETT

Hi! To All Friends & Supporters !

Another month has passed! Our Club Meeting in May

2011 was, I thought, quite good. It was very pleasing to seesome new faces and friends who came to our Club to swellour numbers .

I hope that as many of you as possible will turn up for ourClub Meeting on Monday, 6 th June 2011 as we have BertCULLING, a Member and Officer of the National Associationof Laryngectomy Clubs ( NALC ) travelling down fromSunderland... especially to give our Club a Talk. He wouldlike to meet and talk to as many PLC Members and Friendsas possible after his Talk and our Monthly Meeting. Ourclub, the PLC, is affiliated to NALC.

I do hope you enjoyed the Bank Holiday and that theweather is fine and dandy for you all!

See you all next at the next Club Meeting!

Best WishesTed

EDITORIAL COMMENT

NTERNET Links. If youre reading this on -line and comeacross words with blue lettering that are underlined, then

you can click on these links and be taken directly to anothersite for more information on that particular topic. Put your cursor over the link, hold down the Control (Ctrl) Key and click! Ed.

LC NEWSLETTER Articles. A healthy, lively discussiontook place at our recent Club Meeting as to whether

PLC should be including articles about Derriford Hospital inits Newsletter. The consensus was that we should. AsEditor, my personal view is that Derriford Hospital is veryclose to the hearts of all members of PLC. And as such, we

should all wish to know all that we can about the building,the staff, its management, and of course the grassrootsmedical and nursing aspects. Not only that... but we would wish to know the bad news as well as the good! But thats just my personal view. What are YOURS? Please do tell!

LC NEWSLETTER Editor. Its an accepted rule that the editorship of any Newsltter should be rotated and

handed over now and again so as to create a fresh imageand prevent it from becoming stale. Its alway good toofor an Editor to be reminded that the PLC is not all abouthim... as Geoff was so aptly and quite rightly reminded at the Club Meeting in May 2011! If anyone would like totake over the post of Editor do please submit your namesto Ted BURNETT or Geoff READ ( Secretary ).

GREETINGS!

EST Wishes to the Chair of PLC, Ted BURNETT, for hisbirthday on Friday, 10 th June 2011. Have a goodun Ted

and thanks for all the hard work that youve put into our Club!

ANY Happy Returns to Mr. Peter STOCK for hisBirthday on Friday, 24 th June 2011. Peter is a new

Member of PLC. Welcome Peter and Happy Birthday!

APPY Birthday to Martin FISHER for his birthday onSaturday, 25 th June 1011. All the best Martin!

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Contact The Voice of PLC Newsletter Editor Geoff Read on ( 01752 ) 563800 or 0774581928 ( text only )

or email: [email protected] , or go to PLC website at http://plymouthlc.webs.com 2

LETTERS TO THE EDITOR

From: Isa [email protected] To: Geoffrey READ [email protected] Sent: Tuesday, 19 th April 2011, 0:08Subject: THE PLYMOUTH LARYNGECTOMY CLUBNEWSLETTER FOR APRIL - MAY 2011

Dear Geoff,

I would like to say that your candidness and opennessabout your terrible ordeal has reached across the Atlantic.I am a smoker myself and never really thought aboutquitting. But I have finally come to the conclusion... it takesme a long time and damn it is hard... to decide to quit!No amount of warnings nor thousands of dollars each yeargoing up in smoke, pun and no pun intended, convinced mebefore. Real life accounts did!I am awaiting with eagerness my kit of e-cigarettes orderedfrom the US ( not available in Canada ) and withdetermination... hopefully... Thank you and all my best!

IsaxxxxxxxxxxxxCanada

P.S. I allow this email to be published in the PLC Newsletter if it can help or encourage others.

Dear Isabelle,

Thank you for your email!It does make one think doesn't it! I wish I could turn theclocks back, knowing then what I know now!However, although a lifetime of excessive smoking anddrinking almost certainly caused my cancer, it should not be

assumed that this is always the case. Some sufferers havenever taken drink nor smoked.Nonetheless, thanks for your email and I'll most certainlyinclude in the next edition of our PLC Newsletter.Well done for quitting thats the biggest step done!

Best wishes,Geoff Secretary The Plymouth Laryngectomy Club

From: Christine

To: Geoffrey READ Sent: Monday, 18 April 2011, 18:46Subject: Re: THE PLYMOUTH LARYNGECTOMY CLUBNEWSLETTER FOR APRIL - MAY 2011

Geoff,

A very newsworthy publication!

Christine

From: A PLC MemberTo: Geoffrey READ [email protected] Sent: Monday, 2 nd May 2011Subject: PLC WEBSITE

Hello Geoffrey,

Ive just listened with interest to the video of Dr. ItzhakBROOK. This gent who holds a prominent position wherehe has to constantly speak must be an inspiration to many

people whore rather afraid, or embarrassed to use theirnew sounding voice in public. Im a bit of a chatterbox andtalk to anyone wholl listen! However, Ive had a hands -freeunit in my drawer upstairs for some weeks now andalthough I promise myself to start practising, I keep puttingit off because I know itll take many hours before I learnhow to use properly. Starting from to-day I ll commence mypractise and hopefully, before my next holiday in July, willbe confident in public to use it.Thank-you for sending video to me.

Best wishes,

A PLC Member

THE PLC MAY 2011 MEETING

UR May 2011 Meeting took place at the MusatardTree Cancer Support Cente at Derriford Hospital on

Monday, 9 th May 2011. 14 were in attendance!We were delighted to welcome a new member Peter STOCKand his partner Jean.Miles WILLIAMS from Platon Medical was also in a casualattendance as he was on business at the hospital. We lookforward to receivng his Talk in August.

We also welcomed Steve from Liskeard and his cousinJacqueline from Birmingham who were casual visitorsintroduced by Julia.Eileen FURNEAUX won the Raffle... a box of Roseschocolates, whilst Jean READ won a box of scents. After the formal meeting Carol CHESHIRE gave an amusingTalk on The Funny Side of Nursing. It was a shame that notmore stayed to listen to this!Members then adjourned to the Jack Rabbit Inn for a drinkand a bite to eat.

THE PLC TREASURERS REPORT

ONTHLY Report. The Treasurer, Jean, reports thatPLC has paid its 2011 Annual Subscription to the

National Association of Laryngectomee Clubs ( NALC ) whichis the only known expense at present. The accounts can beviewed by anyone at any time by applying to Jean.

ACMILLAN Cancer Support. Jean announced thatPLC had received a monetary grant from the Helping

You To Help Others grant programme. The grant had beenapproved to carry out the following activities:

Payments to Guest Speakers.Postage, stationery, and sundries.

Transportation costs to away functions.

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THE PLCSECRETARYSREPORT

ALENDAR of Events. A copy of the Clubs Calendar of Events , including Future Entertainments for the next

12months or so, is available on our Clubs website. Pleasekeep yourselves up-to-date by taking the occasional peek!

EMBERS & Friends. Our current Membership Statusis shown in the table below:

POSTAL EMAIL TOTALConfirmed Members: 6 9 15Prospective Members: 2 1 3Confirmed Friends: 7 15 22TOTALS: 15 25 40

ONTACT Details. Of the 15 Members and Friends noton email Geoff ( the Secretary ) only has telephone

numbers for four! This makes it difficult if we need to getin touch with them urgently for say, the cancellation of ameeting at short notice. Would those of you not on lineplease complete the enclosed form and return it to Geoff attheir earliest convenience? Thanks!

THE PLC FORECAST OF EVENTS

UNE 2011. Monday 6 h June 2011: PLC Club Meeting atthe Mustard Tree followed by Lunch at the Jack Rabbit.

Prior to the meeting therell be a Talk on the NationalAssociation of Laryngectomee Clubs ( NALC ) given by one of the NALC Vice Presidents, Bert CULLING. Bert has kindlyagreed to stand in for the President who has had to cancelall further engagements during 2011. This will be an idealtime to ask any questions you have concerning NALC andhow it operates. So do please think about it!Bert is very keen to meet face-to-face with as many PLCMembers as possible. Bert will be travelling all the wayfrom Sunderland to be with us so it is hoped that as manymembers as possible will be in attendance and also, join infor lunch after the meeting.Eileen FURNEAUX will organise the Raffle.

ULY 2011. Monday, 4 th July 2011: PLC Club Meeting atthe Mustard Tree followed by Lunch at the Jack Rabbit.

After the meeting therell be a Talk on Heimomed U K byCompany Representative Ulla ROHRBECK.

EPTEMBER 2011. Wednesday, 14 th September2011: The Speak Easy Club in Cornwall has made a provisionalbooking at Devoran for a soup and sandwich lunch, if

the PLC are able to accept their invitation for a jointmeeting. The Speak Easy Club could arrange to meetanyone coming by train or bus at Truro. Note by the Ed:This information is fresh in and will be discussed at the June2011 Meeting.

ORECAST. A full calendar of events for the rest of theyear can be viewed on our website. Various new events

were proposed at the May 2011 Meeting such as a Coach Trip,a trip to the Eden Project and a Liaison Visit to the SpeakEasyClub in Cornwall.

THE PLC QUESTIONNAIRE

UESTIONNAIRE. Maggie and Julia recently conducted asurvery of all Derriford Laryngectomees to ascertain what

they would like to see the PLC provide for them, why somewont joint the club and what other matters.In March 2011 Maggie reported that she was pleasantlysurprised with the returns that had been received. From thereplies received it seems that there is no one definite reason

for not becoming a member of the PLC.At our May 2011 Meeting Julia added the following infor-mation:

Reasons for Laryngectomees not Attending the PLC: Bit too far to travel. No longer drive. Working.

Reasons for Laryngectomees Attending the PLC: Mutual support. Counselling support. Receive advice from professionals, including

physicians, manufacturers, consultants and medicalstaff.

All Members of PLC would like to thank Maggie and Julia fortheir efforts in improving the benefits of the PLC so as tomake it more widely acceptable to all Derriford-basedlaryngectomees. Thanks Ladies!

MACMILLAN CANCER SUPPORT

HE PLC has been most fortunate inbeing awarded a sum of money by

the Macmillan Cancer Support s Helping

You Help Others grant programme. This will be anenormous boost to our Club and help towards ourpayments to Guest Speakers, postage, stationery and othersundries, as well as transportations costs. We are so verygrateful to Macmillan Cancer Support. As a way of thanks,our Club will be now be looking into the ways in which wecan help and support Macmillan! Suggestions would bewelcomed... hows about a singing contest!

UNDRAISING. Over the next month the PLC willdiscussing the best way for us to help Macmillan Cancer

Support, perhaps by doing some fundraising ourselves. To

this end we are making contact with the North Devon,Plymouth & Tamar Valley Fundraising Office of MacmillanCancer Support at Launceston to ascertain how we shouldbest proceed.

ACMILLAN Learn Zone . Did you know that Macmillanoffers courses of instruction on all sorts of topics?

Some of them include:

Helping Yourself (Self Management ) Supporting Others Getting Involved (User Involvement )

If you youre interested and dont have access to the internetthen please contact Geoff for assistance.

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EGISTERING as a Cancer Voice. Macmillan Cancer Voicesis a UK-wide network of people who use their cancer

experience to help Macmillan and other cancer-relatedorganisations change the future of cancer care. Becoming aCancer Voice is a unique way to make life better for everyoneaffected by cancer.To make the most of the Cancer Voices Network and resourcesimmediately, visit www.macmillan.org.uk/cancervoices whereyou can register and receive ongoing information, news and

events.If you dont have access to the internet Macmillan can keepyou informed by post... just call them on 020 7840 4936 andthey will provide you with a hard copy registration form.Alternatively, speak to Geoff and he will help you out!

HEAD & NECK CANCER PRIORITY SETTINGPARTNERSHIP

HE National Association of Laryngectomee Clubs (NALC )has been involved in Head & Neck Cancer research

Projects for many years, through

having Members serve on the NationalCancer Research Institutes Head & NeckCancer Clinical Studies Group. The textbelow was forwarded to us by NALCfrom what is on The Chesterfield Clubs website.

HEAD AND NECK CANCER PRIORITY SETTINGPARTNERSHIP (ENTUK and Head & Neck 5000 in association with the James Lind Alliance )

To Laryngectomee Clubs:

HEAD AND NECK CANCER RESEARCH PRIORITY SETTINGPARTNERSHIP - INTRODUCTION

I am contacting you to ask for the help of your club and itsmembers in a project that has just been launched. The aim of the project is to produce a list of uncertainties or unansweredquestions about the treatment of head and neck cancer thatcan be resolved by research. The aim is then to produce apriority list and the results will be passed to researchcommissioning bodies to be considered for funding.What is unique about the project is that it is a collaborationbetween clinicians and patients on equal terms and the views

of both groups will have equal weight in arriving at decisionsabout the priority list. People may suffer unnecessarily becauseuncertainties about the effects of treatments have not beenaddressed in research. Patients and doctors may have verydifferent ideas about what important questions need to beaddressed compared to those raised by the drugmanufacturers or medical technology companies. The aim is tobring our ideas to the fore.

How you can help

Your club or individual members of the club can contribute tothe project by completing the form and submitting one ormore examples of a treatment uncertainty or unansweredquestion. Could you please arrange a discussion of the projectat one of your meetings or pass the information to individualmembers who you think may be interested? The address towhich forms can be returned is included on the form and thedeadline for completion is Friday, 10 th June 2011.

The form is available for download, so that it can be completedand sent in by email rather than by post. The Chesterfield Clubwebsite www.hnchelp.org.uk has a link which can be found byclicking on the Priority Setting Partnership item on the homepage menu.It does not matter if the ideas that patients andcarers submit are real uncertainties or not, once they arecollected they will be checked to find out if they have beenthoroughly researched or not.

Please consider treatment in its widest sense to includeanything that contributes to a successful outcome in treatinghead and neck cancer and improves the quality of life of

patients.

Further Guidance

Please use the Contacts page in "About Us" on this website if you need further information or help.

Thank you for your time and any assistance you can give to thisproject.

Editorial Note: This subject will be discussed at the June2011 Meeting. In the meantime, should anyone have anydifficulty in obtaining a copy of the form mentioned in thearticle then do please contact Geoff who will provide youwith one. Ed.

NATIONAL ASSOCIATION OFLARYNGECTOMEE CLUBS (NALC )

NNUAL General Meeting: Monday, 16 th May 2011. Geoff Jean READ represented the PLC at the meeting

held at The Hallam Conference Centre. It was good tomeet the people that we have been dealing with and toactually put faces to the names!

NNUAL Lunch 2011: Sunday, 4th

September 2011. Thiswill be held at the North Lakes Hotel, Penrith in Cumbria

and will cost 15 per head. A response is needed by Friday, 5 th August 2011 so if you wish to attend this function do please letGeoff know at your earliest convenience.

Note by the Ed: This information is fresh in and will bediscussed at the June 2011 Meeting. Ed.

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NEWS & CURRENT EVENTS

DISCLAIMERPlease note that the views and opinions expressed in this section are

not necessarily those held by the PLC Committee nor its Members.

RITISH Stiff Upper Lip for Her Break Down 'She JustBottled It All Up': Michael DOUGLAS Blames Catherine

ZETA-JONES. This article was published in The Mail By

Daniel Bates on Wednesday, 27 th

April 2011.CancerIt was announced on 16 th August, 2010, that DOUGLASwas suffering from throat cancer and will undergochemotherapy and radiation treatment. On 31 st August,2010 DOUGLAS appeared on Late Show with David LETTERMAN. and confirmed that the cancer was at anadvanced stage IV . DOUGLAS attributed the cancer to acombination of stress, his previous alcohol abuse, andyears of heavy smoking.In November 2010, DOUGLAS was put on a specialweight gain diet by his doctors due to the excessive

weight loss leaving him weak. On 11 th January, 2011, hesaid in an interview that the tumour was gone. Headmitted that the illness and aggressive treatment hadcaused him to lose 32 lb in weight. He will have to havemonthly screenings because there is a very high chancethat the cancer could return over the course of the nexttwo to three years. Although DOUGLAS has described thecancer as throat cancer , many doctors believe he wasactually diagnosed with oropharyngeal cancer .

Michael DOUGLAS has claimed that Catherine ZETA-JONES broke down under the stress of his cancer battle because of

her British stiff upper lip.Talking to Oprah WINFREY, the actor said his wifes Welshbackground meant that she bottled everything up and wasovercome with emotion when he was given the all-clear.Whilst he just got on with it ZETA-JONES remained stoicthroughout and just stored up problems for herself later on.

Left: Opening up: Michael Douglas spoke to Oprah in acandid interview about his cancer battleand how his wife Catherine Zeta-Jonesstruggled to cope with it.'I just got on with it': But Michael saidCatherine bottled it all up before beingovercome with emotion when he wasgiven the all clear.

The Swansea-born actress was admittedto a US rehabilitation clinic for five daysearlier this month where she was

diagnosed with bipolar II disorder brought on by the strain of DOUGLASbattle with throat cancer.DOUGLAS, 66, was given the all-clear in January.But Zeta-Jones, who has two children, son Dylan, 10, anddaughter Carys, eight, with Michael was still experiencing

the effects of depression.DOUGLASagreed that his health problems had exacerbatedZETA-JONES plight.

When youve got cancer youve got to take care of business.They tell you have seven weeks of chemo, radiation, you kindof dive in and do it, he said. Im the kind of person when theyre sick, I just curl up, Idont like a lot of fuss and no attention. I just like to get on with it. So I got on with it.I think that part of Catherines whole background, shes Welshand the Welsh its all stiff upper lip, not let your feelings show.

Right: Stressed out: Catherine, pictured last week onlocation for her new moviePlaying The Field in Louisiana, wastreated for bipolar II at a clinicearlier this month.

DOUGLAS said that the last 18months had been harrowing andhe had suffered a string of personal disasters that putpressure on his wife.In my last year a nd a half myoldest son is in federal prison, myex-wife is suing me, and I gotcancer. It's kind of hard for thewife to say, "I'm depressed".'He joked: 'You're depressed, huh?How about some cancer, youwant to get depressed?'That played a big part of it, shesgot to be stoic and deal with allthe stuff Im going through. Probably the time Im off the hook you finally relax. Douglas added that he was so proud of his wife for seekingtreatment for her condition.Shes great now, shes shooting a movie and shes relived shehas a much better understanding because this was notsomething where she was clearly aware of what was going on. Speaking in a slightly raspy voice, DOUGLAS became emotionalwhen talking about how cancer had changed his attitude tolife.He said that his priorities were completely different from yearsgone by when he was driven to succeed in his career at theexpense of spending time with his family.Asked he was asked if he was a different man having beatencancer DOUGLAS choked up... and tears were clearly visible inhis eyes.Wow. I think, I know.. . um ... I know that Im much , muchcloser to my friends and family, I have a much deeperappreciation of family and friends, he said. I was truly overwhelmed by the support. 'For somebody who has no formal religious education theamount of prayers and support I received worldwide trulydid have an influence and a help. DOUGLAS next project is to play flamboyant entertainerLIBERACE in a biopic alongside Matt DAMON , who will playhis younger lover.ZETA-JONES is currently filming comedy Playing the Field inLouisiana.

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Head-and-neck cancer

Around 9,000 people in theUK are diagnosed with head-

and-neck cancer each year.Cancers include those of theeye, mouth, voice box andfood i e.

ANCER breath tests a step closer. This article wasbroadcast by the BBC on Thursday, 21 st April 2011.

Could a breath test detect cancer? A breath test that cansniff-out cancer is a stepcloser to reality, according toa preliminary study.Researchers found anelectronic nose was able to

identify chemical signals of cancer in the breath of patients with lung or head and neckcancer.A cancer charity said it would take years of research to seeif the breath test could be used in the clinic.About 80 volunteers took part in the Israeli research,published in the British Journal of Cancer . Of these 22 had various head-and-neck cancers, 24 had lungcancer and 36 were healthy.The prototype breath testuses a chemical method tospot markers of cancerpresent in the breath.The hope is that one daysuch a test could be used ina GP's surgery to give aninstant diagnosis.'Urgent need' Researchers at the Technion (Israel Institute of Technology ) are working on a device called the nano artificial nose.They looked at head-and-neck cancer, which is oftendiagnosed late, making it more difficult to treatsuccessfully.Lead researcher, Professor Hossam HAICK , said: "There's anurgent need to develop new ways to detect head-and-neckcancer because diagnosis of the disease is complicated,requiring specialist examinations."We've shown that a simple 'breath test' can spot thepatterns of molecules which are found in head-and-neckpatients in a small, early study."We now need to test these results in larger studies to findif this could lead to a potential screening method for thedisease."Dr. Lesley WALKER, of Cancer Research UK , said it wasincredibly important to spot the disease as soon as possiblewhen it was easier to treat successfully.She added: "These interesting initial results show promise for

the development of a breath test to detect head-and-neckcancers which are often diagnosed at an advanced stage.

"But it's important to be clear that this is a small study, at avery early stage, so many more years of research with patientswill be needed to see if a breath test could be used in theclinic."

Click here to Continue reading the main story .

ANCER RESEARCH UK income tops 500m for First Time .By John PLUMMER, Third Sector Online , Friday, 15 th April

2011.

Cancer Research UK fundraisingtops 500m. Income of UK'sbiggest fundraising charityincreased by 3.4% in the year toMarch 2010.

The annual income of Cancer Research UK , Britain's biggestfundraising charity, passed 500m for the first time last year.It increased by 3.4% from 498m to 515m in the financialyear ending March 2010.In its annual report and accounts , the charity says growthoccurred "principally because our fundraising held up strongly"during the recession."It was an excellent year for recruiting new donors, increasingthe level of donations, encouraging people to give in differentways and winning back supporters who had stopped giving,"the report says.Income was boosted by a single legacy worth 10m, the largest

ever received by the charity, and a 9m VAT rebate. Reservesincreased by 34m.The charity issued a press release when the report was filed inSeptember last year saying it had spent 334m on researchduring the year, but it did not mention the sum it hadgenerated.Lynne ROBB, Chief Financial Officer at CRUK, said the impact of the economic downturn had so far "not been as bad as feared"but that this could change if the economy worsened. She saidshe expected income to be "fairly flat" in the 2010/11accounts.Formed by a merger in 2002, Cancer Research UKs income has

grown by 134m over the past four years."It shows we made the right decision because people gotbehind us," said Robb.

OLEBROOK Housing Carers . PLC has been sent a copyof their general leaflet and you can preview the 2-page

leaflet at the end of this newsletter. Colebrook will behappy to send further information about their service if required. They would also be delighted to speak with anyPLC Friends or Members and tell them more about theirservice.

Please contact:

Sarah TUHILL Carers Advice & Outreach Worker Carers Champions Plymouth 3 Woodland Terrace, Greenbank, Plymouth, PL4 8NL

Tel : (01752 ) 211348 Fax: (01752 ) 211365e-mail: [email protected] www.colebrookhousing.co.uk/carers

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7/12



ANNY BAKER Winning Cancer Fight. This article was published in the Daily Express on Wednesday 12 th May

2011.

AFTER eight months of gruelling treatment Danny BAKER hasopened up about his horrible, horrible battle to beat a verypersonal cancer affecting his mouth and throat. The DJ and comedy writer spoke to the Express after winningthe Speech Radio Personality of the Year prize at the Sony

Radio Academy Awards at the Grosvenor House Hote l inLondons Park Lane .

Danny Baker under-went sixmonths of radiotherapy.

The 53-year-old had thediagnosis in November andtook a break from his showson Radio 5 Live and BBCLondon 94.9 as he underwentsix months of radiotherapy. He chose not to reveal the typeof cancer until last night.Im not sure when the treatment will be finished. Ive got atube I put formula through, I cant eat at all. Ive no taste buds,no saliva and chronic pins and needles in my hands as I speak.But Im feeling all right. Ive lost two stone ... I wont be bringing out a book or a DVDthough! Its been a horrible, horrible time. Danny, who has three children, Bonnie, 27, Sonny, 24 andMancie, 12 with wife Wendy, says the weight loss is no silverlining: In a couple of years I hope to be bulging at the seamsagain, fat as a house. You see me here tonight sipping a glass of water as I have to do 24 hours a day. Its not fun.Why would I keep the weight off? Fat people are jolly! I dontsee losing weight as an advantage at all. I love to eat, I love totalk and the particular cancer I had attacked my mouth andthroat so it was quite personal.To get back to what I used to be, to eat and talk, Im fine withthat. Ive got a big famil y and we like to sit around and eat andtheres me with my glass of water. Next time you see me I hopeIll have my own gravitational field. We wish you a speedy return to health, Danny!

You can read more by clicking on this link.

AJORITY OF PATIENTS rate Derriford Hospital careas 'excellent' or 'good'. This article was published in

the Plymouth Herald on Friday, 22nd

April, 2011.

MORE than 90% of Derriford Hospital patients rated thecare as 'excellent' or 'good' in an independent survey.Healthcare watchdog the Care Quality Commission (CQC )published its Annual Inpatient Survey covering 161 hospitaltrusts nationwide.The hospital ranked in the best 20% of trusts in five areasincluding confidence in nursing staff, availability of handwash gel for patients and visitors, admission dates not beingchanged, and privacy in the emergency department.It came in the worst 20% in eight areas including sharingsleeping areas, bathroom and showers with patients of theopposite sex.

82% of patients reported they did not have to share a sleepingarea with a member of the opposite sex when first admitted.Chief Nurse Professor Sarah Watson-Fisher said: "Everythingwe do is for the benefit of our patients. Their feedback iscrucial... it tells us what we are doing well and what we need tochange."It's great that so many of them rate their overall care veryhighly but there is always room for improvement. We arenow able to access more real-time feedback from patients

so each ward knows what their patients are happy with andwhat areas they need to improve on and the ward leaderscan take immediate action. This being done every day."Overall, 79% of Derriford patients rated the quality of care aseither 'excellent' or 'very good', 12% as 'good', 7% as 'fair' and1% as 'poor'.97% of respondents reported the hospital and wards to beeither 'very clean' or 'fairly clean', compared to 95% theprevious year.52% of patients found the food to be either 'very good' or'good', while 31% rated it as 'fair'.The survey was sent to a sample of 850 in-patients who hadbeen discharged by the Trust in June, July or August 2010.There was a 54% response rate.

ERRIFORD Hospital Back in Black After 21million of Savings. This article was published in t he Plymouth

Herald on Monday, 9th May 2011:

DERRIFORD Hospital has clawed back more than 20million tostay in the black.Hospital bosses have announcedthey ended the financial year witha 17,000 surplus, after makingaround 21million of savings.The past year has seen a range of cost-cutting measures across theorganisation, and tough negotiations over its NHS income.Managers finalising the hospital's annual plan for the currentyear warned there are further difficult decisions ahead, due tohuge financial pressure across the NHS.Read more on this.

ERRIFORD HOSPITAL to Axe Hundreds of Jobs and 130Beds to Cut 31m. This article was published in The

Herald on Wednesday, 11 th May 2010:

HUNDREDS of posts will be shed and 130 beds closed asDerriford Hospital tackles its biggest ever savings target.Hospital managers must cut costs by 31million... eight per cent of its budget... in order to break even during this financialyear.It comes as the organisation's income has been reduced for thefirst time in a decade, amid rocketing costs and NHSrestructuring.The national drive is for hospitals to become smaller as morecare is provided in communities and people's own homes... a process already under way in Plymouth.Union chiefs were meeting to discuss the annual plan on

Wednesday, 11th

May and it is now available online .

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8/12



UBE-FEEDING service nets Vicky top prize. This articleappeared in the Plymouth Herald on Saturday, 7 th May

2011:

A DIETITIAN from Derriford Hospital has been recognised at anational awards ceremony for her pioneering work.Vicky CHUDLEIGH-EMSON, who set up a tube-feeding servicefor patients at home, scooped the Chief Health ProfessionsOfficer's Award for Leadership (England) at the Advancing

Health Care Awards 2011 . The Enteral Feeding Project, which she developed fromscratch, involves delivering liquid food through a tube into thestomach and is used by critically ill and postoperative patients.The dietician said: "I am absolutely delighted and ratheroverwhelmed to have won, I went into shock when they readmy name out."I am so proud of the service andthe difference it has made to thecare our patients receive. Thisaward is fantastic recognition of the focus, commitment and hardwork of the team in the past five years."Vicky, who was asked to develop the service five years ago,added: "We prevent malnutrition and associated complicationsand have helped to reduce the need for routine andemergency hospital admissions."In addition we have reduced the incident of infections andcomplications through improved stoma site and tube care."Paul ROBERTS, Chief Executive of Plymouth Hospitals NHSTrust , added: "This project is a fantastic example of the sort of transformational change that the NHS needs. It is better forpatients as it means fewer infections, complications andavoidable hospital admissions and, as a result, it also savesmoney."Vicky is a real self-starter who has worked on this strategy forthe last five years."The awards are supported by NHS Employers, the Allied HealthProfessionals ( AHP) Federation , the Federation for HealthcareScience and the union Unite .

Note by the Editor: I left the following comment on the Plymouth Herald website : As a tube feeder since my laryngectomee operation two years ago Iam most grateful for this fast, efficient and reliable service. Thisseemingly simple service saves me and others from having to take upa hospital bed and allows us to live in the comparative luxury of ourown homes. Thank you to you Vicky and to your team! I am sopleased you have been recognised for your efforts!

Geoffrey READ, Plymouth Commented on Tuesday, 10 th May, 2011 7:28 a.m.

Geoff also sent a congratulatory letter on behalf of the Chair and all Members of PLC

ERRIFORD Hospital Interim Chief Executive IsAnnounced. This article appeared in the Plymouth

Herald on Saturday, 7 th May 2011:

DERRIFORD Hospital has announced who will temporarily leadthe organisation when its top manager leaves this summer.

Chief Operating Officer Helen O'SHEA will become interimChief Executive when Paul ROBERTS steps down at the end of July.

Mr. ROBERTS announced his resignation this week. He hasbeen chief executive of Plymouth Hospitals NHS Trust for 11years.Read more on this.

ORMER Plymouth Health Chief Will Head StreamlinedNHS Trusts. This article was published in the Plymouth

Herald on Saturday, 14 th May 2011:

NEW ROLE: Ann JAMESA FORMER city health chief will lead a'cluster' of NHS bodies overseeing majorreforms across Devon.ANN JAMES has been appointed Chief Executive of Primary Care Trusts NHSPlymouth, NHS Devon & Torbay Care Trust in a merging of top-tier management.The 'streamlining' is moving towards slashing managementcosts by 43%, as set out by Government.England's 151 primary care trusts (PCT ), which control localhealth budgets, are set to be abolished and replaced by GP-ledbodies by 2013.Read more on this.

OSPITAL Leads Way for a New Cancer System. Thisarticle appeared in the Plymouth Herald on

Wednesday, 25 th May 2011:

DERRIFORD Hospital is leading a national project whichaims to improve information for cancer patients.The hospital has been named a "beacon site" for launchingthe National Cancer Information Prescriptions System (IPS),a web-based tool hosted by NHS Choices aimed atimproving the way in which patients receive informationabout their condition and treatment.Consultant Haematologist Wayne THOMAS, who is leadingthe work at Derriford, said: "This is about personalising careso that patients are given the right information at the righttime that is relevant to them."Cancer is not a uniform condition; it affects differentpeople in different ways and there are different treatmentsand outcomes. This system allows us to give peopleinformation that is personal to them.Click on this link to read the full story .

ALID Concerns. The following is the Editorial Comment

published in the Plymouth Herald in May 2011:

YESTERDAY we reported on the cutbacks being implementedat Derriford Hospital , as managers tackle its biggest eversavings target.Today, the national Patients Association raised "deep concerns"that frontline services will be hit, while Plymouth patientrepresentative Barry LUCAS questioned whether DerrifordHospital will be able to maintain its quality of care. These arevalid worries which all involved in achieving these savings mustkeep at the forefront of their thinking, whatever they bring in.

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http://www.thisisplymouth.co.uk/news/Hospital-leads-way-new-cancer/article-3591589-detail/article.htmlhttp://www.nhs.uk/ipg/Pages/IPStart.aspxhttp://www.plymouthhospitals.nhs.uk/Pages/Home.aspxhttp://www.thisisplymouth.co.uk/news/Health-chief-head-streamlined-NHS-trusts/article-3554065-detail/article.htmlhttp://www.nhs.uk/NHSEngland/thenhs/about/Pages/authoritiesandtrusts.aspxhttp://www.sdhct.nhs.uk/#=whats-newhttp://www.thisisplymouth.co.uk/topics/person/annjameshttp://www.thisisplymouth.co.uk/health/Health-chief-head-streamlined-NHS-trusts/article-3554065-detail/article.htmlhttp://www.thisisplymouth.co.uk/health/Health-chief-head-streamlined-NHS-trusts/article-3554065-detail/article.htmlhttp://www.thisisplymouth.co.uk/news/Derriford-interim-chief-executive-announced/article-3531476-detail/article.htmlhttp://www.plymouthhospitals.nhs.uk/Pages/Home.aspxhttp://www.plymouthhospitals.nhs.uk/ourorganisation/TrustBoard/Pages/PaulRoberts.aspxhttp://www.plymouthhospitals.nhs.uk/ourorganisation/TrustBoard/Pages/HelenO%27Shea.aspxhttp://www.plymouthhospitals.nhs.uk/Pages/Home.aspxhttp://www.thisisplymouth.co.uk/news/Derriford-interim-chief-executive-announced/article-3531476-detail/article.htmlhttp://www.thisisplymouth.co.uk/news/Derriford-interim-chief-executive-announced/article-3531476-detail/article.htmlhttp://www.thisisplymouth.co.uk/news/Tube-feeding-service-nets-Vicky-prize/article-3531194-detail/article.htmlhttp://www.unitetheunion.org/http://www.fedhcs.net/http://www.fedhcs.net/http://www.ahpf.org.uk/http://www.ahpf.org.uk/http://www.plymouthhospitals.nhs.uk/Pages/Home.aspxhttp://www.plymouthhospitals.nhs.uk/Pages/Home.aspxhttp://www.plymouthhospitals.nhs.uk/ourorganisation/TrustBoard/Pages/PaulRoberts.aspxhttp://en.wikipedia.org/wiki/Feeding_tubehttp://www.chamberlaindunn.com/AHA/Sponsors.htmhttp://www.chamberlaindunn.com/AHA/Sponsors.htmhttp://www.chamberlaindunn.com/AHA/Categories.htmhttp://www.chamberlaindunn.com/AHA/Categories.htmhttp://www.thisisplymouth.co.uk/news/Tube-feeding-service-nets-Vicky-prize/article-3531194-detail/article.html


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ave You Used Derriford Hospital in the Past SixMonths? Then Tell Plymouth LINk About it !

As part of Plymouth LINks ongoing work to improve patientexperience at Derriford Hospital and in response to yourfeedback, we are researching the difficulties encountered bythose with disability when using the hospital. Maybe you orsomeone you know has a visual impairment, limited mobility,learning difficulty, hearing impairment or language barrier

and has encountered problems at the hospital as a result.Tell us what you think of the signage, wheelchair availability,disabled toilets, pavement camber and even the parking!Please obtain a questionnaire from the address below orcontact Geoff in PLC. When youve completed it you canpost to the following freepost address: Freepost RRZE-AGZT-EXRS LINk Support Team Unit 15, HQ Building 237 Union Street,Plymouth PL1 3HQ

All completed questionnaires will be entered into a prize

draw, with the chance to win 50 of Love to Shop vouchers.Dont forget to include your name and address if you wish tobe entered into the draw! Please return questionnaires byFriday, 20 th May 2011.

Karen MORSELINk Support Team Tel: ( 01752 ) 202407 Fax: (01752 ) 202406Email: [email protected] Website: www.plymouth-link.co.uk

EALTH Forum Meeting. Following the Engaging WithHealth Structures event in March 2011, we are holding

an initial meeting as part of the development of a forum topromote and engage working with health colleagues.The meeting will work on practical areas of development toimprove the health of Plymouth Communities. The twomain areas for discussion for the first meeting are:

Enriching the JSNA( Joint Strategic Needs Assessment ).

What can I / we do to play our part in the futurehealth delivery and planning?

The meeting will take place on Tuesday, 7 th June from 2p.m. 4 p.m. at:

Engage Plymouth , Carmel Church,St. Levan Road,Milehouse, Plymouth PL2 3BG.

Parking is available at the venue. For those using publictransport, there is a bus stop directly outside the venue.If you wish to attend the meeting please send confirmationto [email protected] .

Many thanks,

Ruth WALLSConsortium Manager,Plymouth Third Sector Consortium,Plymouth Guild,Ernest English House,Buckwell Street, Plymouth, PL1 2DATelephone: ( 01752 ) 201766Website: www.plymouthtsc.org.uk

VYBRIDGE Comings and Goings.

Donkey Summer Fair at EST Ivybridge, Saturday, 18 th Junefrom 10 a.m. 4p.m. Demonstrations,Games & Stalls,Inflatables, BBQ,Donkey Carriage ridesand much, muchmore! Fun Family DogShow from 2 p.m. Freeentry and parking. Formore information,please call the centre on(01752 ) 690 200.

Car Boot Sales at EST Ivybridge on:

Sunday, 26 th June, Sunday, 24 th July, Sunday, 21 st August, and Sunday, 25 th September.

The timings have yet to be confirmed!

H H

I
mailto:[email protected]:[email protected]://www.plymouth-link.co.uk/http://www.plymouth-link.co.uk/http://www.plymouthpct.nhs.uk/AboutUs/whatwedo/Pages/plans.aspxhttp://www.plymouthpct.nhs.uk/AboutUs/whatwedo/Pages/plans.aspxhttp://www.plymouthpct.nhs.uk/AboutUs/whatwedo/Pages/plans.aspxhttp://www.findachurch.co.uk/search/church_view.php?church_id=45648http://www.findachurch.co.uk/search/church_view.php?church_id=45648mailto:[email protected]:[email protected]:[email protected]://www.plymouthtsc.org.uk/http://www.plymouthtsc.org.uk/http://www.elisabethsvendsentrust.org.uk/view/ivybridgehttp://www.elisabethsvendsentrust.org.uk/view/ivybridgehttp://www.elisabethsvendsentrust.org.uk/view/ivybridgehttp://www.elisabethsvendsentrust.org.uk/view/ivybridgehttp://www.plymouthtsc.org.uk/mailto:[email protected]://www.findachurch.co.uk/search/church_view.php?church_id=45648http://www.plymouthpct.nhs.uk/AboutUs/whatwedo/Pages/plans.aspxhttp://www.plymouth-link.co.uk/mailto:[email protected]


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VERCOMING Depression After Laryngectomy: Anaccount by a physician as a cancer-of-the-neck patient.

Depression is one of the most difficult issues a patient that hadbeen diagnosed with cancer has to face. I am a physician whohad been diagnosed with throat cancer several years ago andam writing this manuscript to share mypersonal experiences as a cancersurvivor and a clinician. I am doing sohoping that my perspectives will assistother individuals who had undergonesimilar experiences cope better withtheir situation and hopefully gain insightinto their lives. It is also presented tohealth care professionals who care forpatients with this condition in the hopethat by gain insight into the patients world they would be ableto better assist them in their plight.Coping with and overcoming depression is very importantnot only for the well being of the patient but may actuallyfacilitate their recovery and may even increase their chancefor longer survival and perhaps even ultimate cure. There is

growing evidence in many scientific studies that there isconnection between mind and body. Even though much of these connections are not yet understood it is well knownby experienced practitioners that individuals who aremotivated to get better and exhibit a positive attituderecover faster from serious illnesses, live longer andsometimes survive immense odds.There are so many reasons to become depressed afterlearning about cancer and living with it. It is a devastatingillness to the patients and their families and medicine hasnot yet found a cure for most types of cancer. By the timecancer had been discovered it is too late for prevention and

if the cancer had been discovered at an advanced stage therisk of dissemination and ultimate cure is significantlydecreased.Many emotions go through the patients mind after learningabout the bad news. Why me? and Can it be true? Afterfirst becoming stunned by the news, feelings of denials, whichare followed by anger, with ultimate acceptance of the newreality. It is believed that depression is a form of anger. Perhapsanger at the new devastating reality.The patient has to face their ultimate mortality, sometimes forthe first time of their life and have to deal with all theimmediate and long term consequence consequences on them

and their loved ones. Paradoxically feeling depressed afterlearning about the diagnosis allows the patient to accept thenew reality. By not caring any more it is easier to live with theuncertain future. I don t care anymore what happens feelingmakes it easier for a while. However, this coping mechanismcarries a heavy prize because it can actually interfere withgetting appropriate medical and surgical care and can actuallylead to rapid decline in the quality of life.Becoming a laryngectomee after losing the vocal cords addsadditional stress and difficulties. The inability or difficulty tospeak creates a sense of isolation. Difficulties in verbalisingbuilt-in emotions can create anger and frustration that maylead to depression. Recognising these challenges by the spouseand care givers can alleviate much of the stress.

This is why individual and group counselling and therapy forboth patient and spouse are very important. The patientsspouse and caregivers often experience emotional strain thatalso need to be addressed.Hopefully, a patient can find strength within themselves tofight the depression. In my case after I returned home from theextensive surgery I had to remove my cancer which includedalso the excision away of my vocal cords, I was overwhelmedby the daily tasks I had to perform and the new realities I had

to accept. I was mourning the many losses I had experienced,which included my voice, my wellbeing, and the need toaccept many permanent deficits such as not having a normalvoice anymore and having to speak using a weak and rustyvoice generated by a prosthesis that connects my trachea andoesophagus. I felt that I had to make an early choice betweensuccumbing to the creeping depression and let it consume meor become proactive and fight back and return to life. I chosethe latter because deep inside I had a very strong desire to getbetter and overcome my handicaps. I also realised that mystruggle is not over and will be with me for a long time andthat I will need to conquer the downhill slope again and again.The driving force on many occasions to become proactive andresist depression is my wish to set an example for my childrenthat one should not give in the face of adversity. I knew thatthey may and unfortunately would also have to face difficult inthe future and did not want to leave them the legacy that theirfather gave up and did not do his best to get back to his feet.This was and still is a driving force that I resort to whenever Ifeel down.

Dr. Itzhak BROOK is the author of the book:"My Voice... A Physician's Personal Experience With Throat Cancer"

https://www.createspace.com/900004368.

The book can be read on the authors Blog:

http://dribrook.blogspot.com/

Itzhak Brook, MD, MScProfessor of Paediatrics & MedicineGeorgetown University School of MedicineWashington DC, USAE mail: [email protected]

Support by family members and friends is very important.Feeling that ones continuous presence in the world and actualinvolvement in their lives is very helpful in re-igniting the will togo on. The involvement and contribution to others lives can beinvigorating. As a parent or grandparent one can draw strengthand will to go on by seeing and enjoying the interaction and

the impact one has on them.What I found out to be helpful was to become re-involved inactivities I liked before and find a continuous purpose for mylife. I started to return to the hospital to participate and teachin medical rounds and listen to medical lectures. What wasmost encouraging and rewarding was that my contributionsimpacted and improved individual patient care. I felt that I wasmaking a difference again. This made me want to return to thehospital and teach even more. In the process of helping others,I was also helping myself.I was also able to gradually return to many of my otherroutines. I started with simple challenges such as reading

medical literature again, accepting invitation to review articlessubmitted to medical journals, learn how to take a showerwithout aspirating water, and even simply walking more.

O
https://www.createspace.com/900004368http://dribrook.blogspot.com/mailto:[email protected]:[email protected]://dribrook.blogspot.com/https://www.createspace.com/900004368


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I gradually became able to ride a bicycle and even climb to thetop of a mountain with my family. Even though I realised thatthe quality of my voice is not the same as before, one of mygreatest comebacks was to be able to teach and lecture againwith the help of a microphone. Each of these small steps mademe feel better and stronger. I was discovering the world again,quite like an infant learning to walk.Soon after my return home, I started to attend the monthlymeetings of the local Laryngectomee Club, as well as their

monthly speech therapy sessions. I cherished the support andadvice I received from the other club members and especiallyfrom the club president, who was extremely dedicated anddeeply caring and helpful toward the members. I kept comingto the club even when my needs were no longer intense andbecame its Secretary the following year.Seeking the help of a mental health professional can be veryhelpful. I was fortunate to be assisted throughout my illnessand recovery process by an excellent, compassionate andskillful social worker. We discussed various issues relating tomy recovery process, as well as my anxieties and frustrations.Having a caring and competent physician and speech andlanguage pathologist that can provide continuous follow-up.Their involvement can help deal with any emerging medicaland speech problems are veryimportant for the sense of well being.I found ways by which I can use the setback in my life in a positive way. Irealised that I have much to contributeto others. By lecturing and writingabout my experiences and sharingthem with other laryngectomee andhealth care providers, others can learnand benefit from my experience.

Submitted by Dr. Itzak BROOK, of Washington D.C. and aFriend of PLC.

HE OLDER Persons Voluntary & Community Network(OPVCN ) has been refreshed and is open for membership.

The network covers a range of issues affecting older personsand the organisations and groups working with older people. The network meets approximately six times a year with invitedspeakers and guests from public and private sectororganisations. The network is used for information sharing,promoting best practice and updates on the latest changesaffecting the sector and services.

The next meeting is taking place on Thursday, 30th

June at: Plymouth Guild,Ernest English House,Buckwell Street Plymouth from 2 p.m. 4 p.m. The main topic for discussion is Mental Health Services forOlder People . It will include changes in service provision forolder people and the increasing demand for support in thecommunity. The meeting will also explore concerns over thepresent services on offer and how those in need can accessthem. Representatives from Mental Health Services for olderpeople have been invited to this meeting to discuss the needs,gaps and present situation of service provision.

There will also be a general update from the members of thenetwork and the work of groups across the city.

If you would like to find out more about the network, attendthe meeting or discuss joining please contact Carole HICKLINGat [email protected] or telephone ( 01752 )221933. For general information about the network and details of theother sector networks please click on this link .

Many thanks PTSC Team

The Plymouth Laryngectomy Club(PLC )

T

The Plymouth Laryngectomy Club ( PLC ) is a Charitable Support Group. We aims tooffer support and care to the laryngectomeesand their families in Plymouth. We alsoencourage understanding and support by thepublic.

Laryngectomy is the removal of the larynx and separation of the airway from the mouth, noseand oesophagus. The Laryngectomee breathsthrough the neck, a stoma. It is done in thecases of laryngeal cancer. However, many laryngeal cancer cases are now treated only withradiation and chemotherapy or other laser

procedures, and Laryngectomy is performed

when those treatments fail to conserve thelarynx.

If you are a Laryngectomy you would be mostwelcome to come along on your own or withyour partner.

Come join us! Our Members and Friends meet

on the first Monday of every month.
http://www.cqc.org.uk/reviewsandstudies/2008/09programme/mentalhealthservicesforolderpeople.cfmhttp://www.cqc.org.uk/reviewsandstudies/2008/09programme/mentalhealthservicesforolderpeople.cfmhttp://www.cqc.org.uk/reviewsandstudies/2008/09programme/mentalhealthservicesforolderpeople.cfmmailto:[email protected]:[email protected]://www.plymouthtsc.org.uk/information/networkshttp://www.plymouthtsc.org.uk/information/networkshttp://www.plymouthtsc.org.uk/information/networkshttp://www.plymouthtsc.org.uk/information/networksmailto:[email protected]://www.cqc.org.uk/reviewsandstudies/2008/09programme/mentalhealthservicesforolderpeople.cfmhttp://www.cqc.org.uk/reviewsandstudies/2008/09programme/mentalhealthservicesforolderpeople.cfm


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the voice of plc 1105-06 final

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