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Meeting Date and Time: Fourth Tuesday of the Month

May 26th, 2015 6:00 PM

Home Office: 2406 Seminole Rd. Augusta, GA 30904 Phone: 706-364-1662 Email: info@parkinsoncsra.org

Meeting Location: St. John Towers - Main Dining Room

724 Greene Street Augusta, GA 30901

Huge Thanks to Joe Kelley and Dr. Julie Kurek for the April Meeting: On April 28th, Joe Kelley and Dr. Julie Kurek presented an update on current research happening at GRU to a group of 48 attendees. Dr. Kurek also spoke about research in general and the complex process of an idea or discovery becoming a drug or a treatment on the market. Current local PD research studies include CIVITAS, Move PD, KYOW, and a driving study. We also learned that Dr. Wakade has received a large grant to continue his Niacin research, which was funded initially by one of our Sheffield Memorial Grants! Thanks again to Joe and Dr. Kurek.

The Tremor Newsletter May 2015

Aiken Meeting:

Thursday, June 4th, 1 p.m., at: The Aiken Family Y, 621 Trolley Line Road, Graniteville, SC 29829 Zoom Heaton, Pharmacist at TLC Medical Centre, will discuss medication issues and medical equipment for the person with Parkinson’s disease. For more info about the Aiken Support Group Meeting, contact Kathy Crist at (803) 640-1410

For the May Chapter Meeting, Group Discussions:

The May meeting will be group discussions with a Parkinson’s group and a caregiver group, with facilitators for each. Please join us and bring a covered dish to share if you can. Follow us on Facebook for up-to-date news!

Moving Day Augusta 2015 Update:

Do It Again on October 10, 2015

The 2014 Moving Day Walk Event totaled $41,435 -- the largest amount in recent years. These funds will be used to support the CSRA Parkinson's Respite Program and continuing research locally and nationally. Individuals and teams of walkers raised $23,033 – 55.6% of the total. The rest was donated by businesses and organizations. But fundraising is only half the story. Your presence at the Walk makes our voices heard. At the next chapter meeting, pick up some "save-the-date" cards for family, friends, and co-workers. Start now to build a team of walkers to accompany you to Moving Day – the 16th CSRA Parkinson's Support Group walk – on October 10th. Let people in the CSRA know that our group is here to make life better for all families challenged with Parkinson's disease. www.movingdayaugusta.org

Come Join us for Exercise! Group Exercise Classes: Join us for fellowship, fun, and exercise every Monday and Wednesday at St. Mark United Methodist Church from 10:30 to 11:30 AM. The church is located at the intersection of Washington Rd. and Woodbine Rd. The class is led by Maria Nicholson and Connie Smith, and is free. Aquatic Exercise Classes: Aquatics exercise classes for people with Parkinson's or MS, Mon & Fri, 12 noon, at the Family Y on Wheeler Rd., Augusta. Free for members of the Y; $5 for others for access to the pool. For more info or to register, call or email the director, Claudia Collins: (706) 922-9664 or ccollins@familyy.org

Remember these folks:

Margaret Carden - GWVH Katie Mae Pollard - Golden Living Mary Johnson - Camellia Walk Norma Boatwright - Shadow Oaks

Caregiver Corner:

Caregiver Support Group:

Caregivers will meet on June 10, 1:30 pm for lunch at Yo Pizza in Daniel Villlage, Wrightsboro Rd.. Seven met for the May lunch and learned some of the new exercise techniques shared by a PT student at a recent class. All caregivers are welcome. For more information, call Maria Nicholson at 706-736-2611. Powerful Tools for Caregivers: The 6-week class was a great success! Here are a few comments from the participants:

"I've learned to ask for help, to make a time-for-myself ‘Action Plan,’ and to stop feeling guilty"

"The class provided helpful information about community resources"

"It's a great way to connect with others who have similar challenges."

Contact Debbie Hixon (706-231-5494) if you would like more information. Caregiver Resource Expo 2015 A variety of local community resources to aid the needs of caregivers are being featured at the Caregiver Resource Expo on Thursday, July 23rd, 9- Noon at Warren Baptist Church, on Washington Rd. A series of 30 minutes sessions will cover topics including Medicare and You, 40-70 Rule for Successful Aging, Dementia 101, and The Talk of a Lifetime. No registration is required for the free event, which is sponsored by the Area Agency on Aging and Warren Baptist.

Sending Donations or Memorials:

Donations or memorials for our local Parkinson’s Chapter should be sent to:

CSRA Parkinson Support Group ATTN: M.A. Navarro, Treasurer 116 Lottie Ln., Grovetown, GA, 30813 Donations can also be made online at our chapter website: parkinsoncsra.org ... Click the orange “Donate” button and select “Honor/memorial.”

Our Sympathy:

To Hazel Clark, in the To Sandra Self in the To Bobbie Outley in the passing of her husband Wyman. passing of her husband Lyle. passing of her husband, Harold.

Nominate Now for Georgia Caregiver of the Year Nominations are due by June 30 for the 2015 Georgia Caregiver of the Year. Awards are given in three categories and may be focused on caring for the handicapped, elderly, or in a dire family situation: • Family Caregiver: any family member providing assistance to relative with a disability or chronic illness • Para-Professional Caregiver, e.g.: LPN, therapy aide, CNA, Home Health Aide, or Patient Care Tech • Volunteer Caregiver: one that has worked with an organization or family on a regular basis or event that's

made a difference in the life of a care receiver. The Awards are given by the Rosalynn Carter Institute for Caregiving, a Georgia organization unique in the country that recognizes the dedication of caregivers in a variety of circumstances. Nominees and the winners will be recognized at the annual caregiver's luncheon in November. Nomination forms are available from Mary Ann Navarro, by calling the CSRA Parkinson’s Support Group phone, on our website: www.parkinsoncsra.org, or from Janice Adams at Area Agency on Aging.

Parkinson’s Seminar 2015 - Success for PD 101 An audience of 125 people with Parkinson’s disease, caregivers, families, and health care personnel were introduced to PD 101, a program created by the National Parkinson Foundation and aptly presented by Dr. Kapil Sethi at the 2015 Parkinson’s Seminar. The program covered basic information about the disease, it's progression, varying symptoms, treatment and especially medications and efforts of research. The guest presenter, Dr. David Standaert, neurologist and researcher from the medical center at University of Alabama in Birmingham elaborated on the research theme. Dr. Standaert gave an update on the status of Parkinson’s research, as well as some of the history and medical discoveries related to Parkinson’s for the past 200 years. The latest research focuses on gene therapy and the effects of certain protein molecules in the brain. He referred to recent studies using 10,000 cases in 2011. growing to 100,000 in 2014 to find indicators for both genetic and environmental causes for Parkinson’s disease - often both together. It also confirmed that there will be a dramatic rise in the number of PD cases in the next few years as more "baby boomers" enter the 65-85 year old categories. For the first time, the annual seminar was held at the Kroc center. The service and catered breakfast buffet were exceptional! Thanks to sponsors TEVA, Lundbeck, and ABVIE pharmaceuticals, the GRU Movement Disorder Clinic and the CSRA Chapter, NPF. Read more about the Seminar in the Augusta Chronicle: chronicle.augusta.com/news/health/2015-05-15/parkinsons-disease-increasing-so-are-better-treatments

Memorial Donations:

In memory of Harold M. Outley: Katherine Smith, Grovetown, International Brotherhood of Electrical Workers #1579

Tremor E-Newsletter: Email info@parkinsoncsra.org with “e-newsletter” in the subject.

   

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

To the folks who have birthdays in May, we wish you a Happy Birthday!

Chapter Officers:

President: C. J. Mitchell – (706) 736-2383 Vice-President: Joe Kelley – (706) 855-6575 Secretary: Tambra Craven – (803) 646-1064 Treasurer: Mary Ann Navarro – (706) 863-6355 Walk Fundraising Chair: Kay Hays – (803) 292-1908

Web: www.parkinsoncsra.org

facebook.com/parkinsoncsra

@parkinsoncsra

Message From C.J.: Greetings! Summer is well on the way ... with graduations, vacations, family get-togethers, not too early to start your teams for the WALK, Oct. 10th, at the Wilson Y ... if you'd like to help with the Walk, please let us know ... we’ll be glad to have you ... We keep striving daily to find something that will make life easier for our friends and family with Parkinson’s disease. Don't forget all our programs meet during the summer ... come as you can. May is Memorial Day ... a time for us to remember those who have gone before us, who paid the price for us to have the Freedom that we have ... take time to thank a Veteran for what they have done for us. Have a great day! God Bless, C.J.

Par Fore Parkinson’s The annual golf tournament fundraiser for Parkinson's will take place on Monday, June 1, at 10:00 am at The Reserve Club at Woodside Plantation, in Aiken. The event will be a 4-man scramble benefiting the Movement Disorder Program at GRU. A fee of $100 per person includes golf, range balls, other golf paraphernalia, coffee and breakfast, and lunch by Fatz Café. There will be a Ladies Division and Men's Division with prizes for each, as well as hole-in-one prizes, ranging from cash to a new car. Contact Mike Snug, for further information and registration: 803-643-1788 or visit the website: www.parforeparkinsons.org .