the roden family - our survival story...alpe d’huez. london marathon april 2013 . pledge a pint...
TRANSCRIPT
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The Roden Family - Our Survival Story
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Why a diary helped - Something positive to do - Helped keep a sense of time - I could tell the truth! - Gave Sam back those “lost” 3 weeks - A record of progress for Sam - Supported the healing process for me
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ECMO
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35 days off ECMO
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100 days off ECMO Alpe d’Huez
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London Marathon April 2013
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Pledge a Pint www.pledgeapint.co.uk
and ECMO family support….
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What we offer
• Website
• Support by e-mail / phone
• Informal meetings if appropriate
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Did it help? “It's been good to share. Now I don't feel like I'm going
crazy!”
“Thank you for emailing it's amazing how much it
helps.”
“Thanks so much for the emails I really appreciate
them and great to know someone understands what I
am going through”
“Thank you so much for the help you gave me & hope
when I needed it, I am very grateful to you both.”
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Future plans
• More patient stories on the
website
• More online content
• Group of volunteers
• Children’s pack
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