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The Patient’s Voice… The Patient’s Voice… Katarina R Stanisic, RN, BN, MN (Student) Champion, Canadian Patients for Patient Safety Patient Safety Officer, Toronto Rehabilitation Institute Katarina R Stanisic, RN, BN, MN (Student) Champion, Canadian Patients for Patient Safety Patient Safety Officer, Toronto Rehabilitation Institute

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Page 1: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

The Patient’s Voice…The Patient’s Voice…Katarina R Stanisic, RN, BN, MN (Student)Champion, Canadian Patients for Patient SafetyPatient Safety Officer, Toronto Rehabilitation Institute

Katarina R Stanisic, RN, BN, MN (Student)Champion, Canadian Patients for Patient SafetyPatient Safety Officer, Toronto Rehabilitation Institute

Page 2: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

• Dedicated practitioners;

• Highly developed science;

• Remarkable technical capability;

• Extensive resources.

Page 3: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Yet, despite these strengths…

Page 4: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Growing Challenges:

• Cost (unsustainable rates of increase);

• Access (to services, practitioners etc);

• Safety/Quality (errors, deaths, variation);

• Unhappiness/Dissatisfaction.

Page 5: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

The health care paradox:

Practitioners are working as hard as they can

and...

Important needs of patients and society are not being met.

Page 6: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Safety: Trying harder isn't the answer!

Safety: Trying harder isn't the answer!

Page 7: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Safety Requires: The transformation of culture!

Safety Requires: The transformation of culture!

Page 8: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

The Transformation of Culture Requires: The voice of

patients!

The Transformation of Culture Requires: The voice of

patients!

Page 9: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

• Fear is the overriding emotion that staff have; Clinical staff won't buy into patient safety until they feel safe and supported by management.

• Past history of poor treatment will be foremost in their minds and they will not trust the no blame story until they see it actually in action.

• This fear transcends the clinical realm of health care and leadership needs to be cognizant of this, recognize their own fears and misconceptions and, themselves, be courageous in supporting staff and involving patients and families.

• There is no ‘recipe’ for success or ‘quick-fix,’ however, the process starts with LISTENING TO THE PATIENT.

• Fear is the overriding emotion that staff have; Clinical staff won't buy into patient safety until they feel safe and supported by management.

• Past history of poor treatment will be foremost in their minds and they will not trust the no blame story until they see it actually in action.

• This fear transcends the clinical realm of health care and leadership needs to be cognizant of this, recognize their own fears and misconceptions and, themselves, be courageous in supporting staff and involving patients and families.

• There is no ‘recipe’ for success or ‘quick-fix,’ however, the process starts with LISTENING TO THE PATIENT.

Fear is the Barrier to Partnership

Fear is the Barrier to Partnership

Page 10: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Edgar Schein

“What a leader can do is set expectations and insist on certain actions.

If, on balance, these new ways actually make life better for people, the culture will absorb the new practices and

change.”

Organizational CultureOrganizational Culture

Page 11: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Learning OrganizationsLearning Organizations

“Organizations work the way they do because of how we work, how we think and interact: the changes required ahead are not only in our organizations but in ourselves as well.”

Because, as Senge put it, ‘this learning organization work is about each one of us…if you get the personal mastery element of these

changes, the rest falls into place.”

“Organizations work the way they do because of how we work, how we think and interact: the changes required ahead are not only in our organizations but in ourselves as well.”

Because, as Senge put it, ‘this learning organization work is about each one of us…if you get the personal mastery element of these

changes, the rest falls into place.”

Page 12: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

The WHO-Including Patients’Voices

The WHO-Including Patients’Voices

Safety will be improved if patients are included as full partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements.

By contributing the patient voice, experience and perspective, patients will ensure that the work of the World Alliance for Patient Safety is authentically patient-centred throughout all areas of Alliance work

Safety will be improved if patients are included as full partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements.

By contributing the patient voice, experience and perspective, patients will ensure that the work of the World Alliance for Patient Safety is authentically patient-centred throughout all areas of Alliance work

Page 13: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Eleanor Roosevelt

“Never doubt that a group of thoughtful committed citizens can change the world; indeed, it’s the only

thing that ever has.”

“Never doubt that a group of thoughtful committed citizens can change the world; indeed, it’s the only

thing that ever has.”

Page 14: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Patients for Patient Safety Canada works to alter the embedded patterns in healthcare that underlie the current global crisis in patient safety. Specifically, we seek to:

Transform relationships that impede patient safetyFoster fully informed and collaborative decision-making that supports patient safetyEqualize differences in power that impedes people from speaking openly and honestly while acting courageously to prevent harmResolve conflicts that undermine safe, patient-centered careContribute to continuous learning about risk and safety in healthcare

Patients for Patient Safety Canada works to alter the embedded patterns in healthcare that underlie the current global crisis in patient safety. Specifically, we seek to:

Transform relationships that impede patient safetyFoster fully informed and collaborative decision-making that supports patient safetyEqualize differences in power that impedes people from speaking openly and honestly while acting courageously to prevent harmResolve conflicts that undermine safe, patient-centered careContribute to continuous learning about risk and safety in healthcare

Canadian Patients for Patient Safety-MISSION

Canadian Patients for Patient Safety-MISSION

Page 15: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

1. Articulate the expectations that Canadian healthcare users have for the respectful disclosure of medical errors.

2. Develop a strategy for incorporating the patient experience intoresearch initiatives and other bodies of knowledge used to develop patient safety interventions.

3. Develop strategies, leadership and financial support for implementation of patient/provider partnership councils that foster open, honest collaboration.

1. Articulate the expectations that Canadian healthcare users have for the respectful disclosure of medical errors.

2. Develop a strategy for incorporating the patient experience intoresearch initiatives and other bodies of knowledge used to develop patient safety interventions.

3. Develop strategies, leadership and financial support for implementation of patient/provider partnership councils that foster open, honest collaboration.

Canadian Patients for Patient Safety-GOALS

Canadian Patients for Patient Safety-GOALS

Page 16: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

4. Develop a toolkit/educational program for consumers to contribute to health system efforts to improve patient safety and achieve culture change.

5. Incorporate the patient voice in all organizational decisions that affect them.

4. Develop a toolkit/educational program for consumers to contribute to health system efforts to improve patient safety and achieve culture change.

5. Incorporate the patient voice in all organizational decisions that affect them.

Canadian Patients for Patient Safety-GOALS

Canadian Patients for Patient Safety-GOALS

Page 17: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

IAPO, 2007

The International Alliance of Patients’ Organizations believe that the 5 Principles needed to achieve patient-centered healthcare are:

RespectChoice and EmpowermentPatient Involvement in Health PolicyAccess and SupportPatient Information

The International Alliance of Patients’ Organizations believe that the 5 Principles needed to achieve patient-centered healthcare are:

RespectChoice and EmpowermentPatient Involvement in Health PolicyAccess and SupportPatient Information

Patient and Family-Centered Care

Patient and Family-Centered Care

Page 18: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Mahatma Gandhi

“You must be the change you wish to see in the world.”

“You must be the change you wish to see in the world.”

Page 19: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Patients and Families as Mentors…Patients and Families as Mentors…

Board QCC, PSC patients aren't surprised at the cases they hear about, but rather, they are surprised by our commitment to it and in awe that we want to partner for a solution;

Task forces; Round; Employee Orientation; Operating Committees (strategic planning); leadership interviews; newsletter (Side by Side); Publications (When Things Go Wrong-Harvard); Rescue events (worst case/best case)…ENDLESS GIFTS!!!

Board QCC, PSC patients aren't surprised at the cases they hear about, but rather, they are surprised by our commitment to it and in awe that we want to partner for a solution;

Task forces; Round; Employee Orientation; Operating Committees (strategic planning); leadership interviews; newsletter (Side by Side); Publications (When Things Go Wrong-Harvard); Rescue events (worst case/best case)…ENDLESS GIFTS!!!

Page 20: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Patients and Families as Mentors…Endless Gifts!

Patients and Families as Mentors…Endless Gifts!

This is what DFCI learned following the death of Betsy Lehman:

Patient satisfaction in the 99th percentile for an academic hospital;Less than 1% nursing turnover per year;Staff satisfaction in top 10th percentile in an academic institute;Lowest rate of error seen in an ambulatory care centreStaff’s sense that a patient safety concern will be acted upon, 99%; Litigation paid out, $20k over 10 years (in a US hospital!!!).

This is what DFCI learned following the death of Betsy Lehman:

Patient satisfaction in the 99th percentile for an academic hospital;Less than 1% nursing turnover per year;Staff satisfaction in top 10th percentile in an academic institute;Lowest rate of error seen in an ambulatory care centreStaff’s sense that a patient safety concern will be acted upon, 99%; Litigation paid out, $20k over 10 years (in a US hospital!!!).

Page 21: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Alexander Pope

……

“To err is human, to forgive is divine.”“To err is human, to forgive is divine.”

Page 22: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Steve Stanisic Sr.; Died on December 9, 2004

My Mentor: A husband, father, brother and friend.My Mentor: A husband, father, brother and friend.

Page 23: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Health care will be transformed not by laws or

regulations, but as it always has been…

…by people working together

in new ways to give better care

to patients.

Page 24: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Kirklin

“The mountain is there. You might as well try to climb it.”

Page 25: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Florence Nightingale, 1859

“It may seem a strange principle to enunciate as the very first requirement in a Hospital that it should

do the sick no harm.”

“It may seem a strange principle to enunciate as the very first requirement in a Hospital that it should

do the sick no harm.”

Page 26: The Patient’s Voice… · partners in reform initiatives, and learning can be used to inform systemic quality and safety improvements. By contributing the patient voice, experience

Contact MeContact Me

Katarina StanisicUC, 11th Floor, Suite 11036Extension 3815Blackberry 416-457-7587Pager [email protected]@TorontoRehab.on.ca

Katarina StanisicUC, 11th Floor, Suite 11036Extension 3815Blackberry 416-457-7587Pager [email protected]@TorontoRehab.on.ca