the ageless disease of eating disorders: truths ......barry, v.w et al. fitness vs. fatness on all...

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1/17/2017 1 The Ageless Disease of Eating Disorders: Truths, Similarities and Differences in Older Adults Jenn Burnell MS, RDN/LDN CEDRD Carolina House Eating Disorder Treatment Program Why Awareness Matters 30 Million People struggle with a clinically significant eating disorder at some point in their lifetime Only 1 in 10 individuals with eating disorders receive treatment. Only 35% of people that receive treatment for eating disorders get treatment at a specialized facility for eating disorders. Eating disorders have the highest mortality rate of any mental illness Key Facts to Remember Not a Choice Biogenetic Illness- eating disorders are highly heritable, but genetics =/= fate Nobody’s Fault: No blaming, no shaming, no judgment Eating Disorders Do Not Discriminate You Cannot Assess Health Based on Appearance Serves a Life Purpose

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Page 1: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

1

The Ageless Disease of Eating

Disorders: Truths, Similarities

and Differences in Older Adults

Jenn Burnell MS, RDN/LDN CEDRD

Carolina House Eating Disorder Treatment Program

Why Awareness Matters

30 Million People struggle with a clinically significant eating disorder at some point in their lifetime

Only 1 in 10 individuals with eating disorders receive treatment.

◦ Only 35% of people that receive treatment for eating disorders get treatment at a specialized facility for eating disorders.

Eating disorders have the highest mortality rate of any mental illness

Key Facts to Remember

Not a Choice

Biogenetic Illness- eating disorders are highly

heritable, but genetics =/= fate

Nobody’s Fault: No blaming, no shaming, no

judgment

Eating Disorders Do Not Discriminate

You Cannot Assess Health Based on Appearance

Serves a Life Purpose

Page 2: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

2

Objectives

Overview of eating disorders and risk factors

◦ Special considerations for older adults

How Eating Disorders present in older adults

◦ Persistent eating disorders

◦ Relapse from eating disorder treated earlier in life

◦ Long history of disordered behaviors/ traits that

develop into an ED later in life

◦ New onset of ED

How physical and nutritional risk may differ in

older adults

◦ Nutrition Assessment

Eating Disorders 101: Know

Your Basics

DSM-V

Anorexia Nervosa (AN)

Bulimia Nervosa (BN)

Binge Eating Disorder (BED)

Avoidant/Restrictive Food Intake Disorder

(ARFID)

Other Specified Feeding or Eating Disorder

(OSFED)

Unspecified Eating Disorder

Why Does an Eating Disorder

Occur?

Physiological Adaptation to Starvation

Genetic Predisposition

Temperament

Environmentally triggered

Media/ Society

Family Dynamics (history of dieting, inappropriate boundaries)

Co-morbidity of Depression / Anxiety or other Mood/Personality Disorder

Page 3: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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What is the Function of an Eating

Disorder?

A Coping Mechanism

Escape

Protection

Communication

Emotional Regulation

Feeling in control of their life

The precipitating event may not be what

maintains the disorder

Eating Disorders: The Numbers

In Women:

◦ 0.9% Diagnosed with AN in lifetime

◦ 1.5% Bulimia

◦ 2.8% Binge Eating Disorder

◦ 1.5% Other Specified Feeding and Eating Disorders

(OSFED)

Majority of the onset is adolescence through

early adulthood

Eating Disorders do not

Discriminate

10-20% are males

All races, Socio-

economic statuses

Not a “young rich

white girl disease”

Page 4: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Risk Factors

Being Female

Genetic Predisposition

◦ Character Traits

◦ Low self esteem

Intrusive Body Dissatisfaction

Social Pressures/”standards”

Co-morbid conditions

Environmental Triggers

◦ Precipitating events

Precipitating Events

Life Event

◦ Divorce

◦ Death of loved one

Trauma

Other life transition

Weight Loss

Common way of thinking regarding

eating disorder symptomology

Chronic Overeating

Binge Eating

Bulimia Chronic Dieting Disordered

Eating Anorexia Nervosa

Healthy

eating

Page 5: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Eating Behaviors Spectrum

Life Enhancing

Life Distracting

Life Threatening

Life Disrupting

Life Interfering

Medical Complications

Body Weight

Structure Needed for eating / wt gain

Ability to control exercise

Outpatient

Medically Stable

> 85% IBW

Self- Sufficient

Able to exercise

for fitness - can

Control compulsive overexercising

Intensive

Outpatient > 80% IBW

Partial

Hospitalization

> 75% IBW

Needs some structure to gain weight

Structure required to prevent compulsive

overexercising

Residential No IV/NG feedings needed, multiple daily labs not needed

< 85% IBW

Needs supervision at all meals or will engage in symptoms

Inpatient HR <40 bpm

BG<60 mg/dL

K+<3 meq/L

Temp<97.0

Dehydration, orthostatic BP changes

<75% IBW, acute weight decline with food refusal

Needs supervision at and after all meals, or needs tube feeding

Adapted from: Am J Psychiatry 157:1 January 2000 supplement

Eating Disorders in Older Adults

Much is unknown

◦ Older diagnostic criteria

(DSM-IV) excluded

post-menopausal women

◦ Highest mortality of all mental illnesses

4% Prevalence in midlife (45 and older)

1 in 10 diagnosed with an ED is over 40

Higher percentage of patient admissions to

inpatient treatment centers are over 40 y.o.

Midlarsky and Nitzburg 2008; Keel et al., 2010; Mangweth-Matzek et al.,2014; Hoek 2006

Page 6: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Body Image, Dieting Issues

69 million women dieting at any given

time

◦ Lose or maintain weight

Body dissatisfaction stable across

lifespan

◦ Increases with increased BMI until age 60

Weight and Shape concerns over

50

Online survey (n=1849)

71.2% trying to lose weight

◦ ~50% of those over age 75

35.6% spent at least 50% of the past 5 years dieting

3.5% binge eating

7.8% purging in the past 5 years

13.3% report at least one core eating disorder behavior

Gagne et al., 2012

Challenges for Older Adults when

Seeking Help Shame and embarrassment ◦ Needing help

◦ Not getting over “teenage disease”

◦ Stigma of therapy

Less known as a diagnosis decades ago ◦ Did not seek help,

◦ Long term struggles

Perceived or real barriers to entering treatment ◦ Family

◦ Financial responsibility

◦ Not making self a priority

www.nationaleatingdisorders.org

Page 7: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Differing Factors in Older Adults

Normal physical changes due to aging

◦ Metabolic rate decline

◦ Weight gain

Perimenopausal hormone changes

◦ Estrogen from adipose tissue to protect

bones, manage menopausal symptoms

Medical weight loss recommendations

Considerations in Older adults

Seeking Treatment

More or less motivation for treatment

due to sense/ awareness of loss due to

ED

Significant Stressors and losses of

adulthood

Body image issues still present

◦ Enduring and ingrained

PROFILES OF EATING

DISORDERS IN OLDER

ADULTS

Page 8: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Persistent / Chronic Eating

Disorders

Long-term struggles with clinical eating disorder

Severe and Enduring Anorexia Nervosa (SE-AN)

May or may not have sought treatment

Ingrained behaviors

Physiologic adaptations

◦ Normal lab values

Higher Mortality Rate

◦ 20% after 20 years

Relapsing Eating Disorders

Diagnosed at early age

Treatment/ recovery earlier in life

◦ Precipitating event as older

◦ Sub threshold behaviors may or may not

have existed

Example: Phyllis (Relapsing

ED/Chronic(?))

54 y.o. WF

History of eating disorders

◦ Treatment in 1987 for AN

◦ Binge/purge behaviors for 10 years after

treatment (age 28-38)

Onset of restriction after recollection of

past trauma at age 40

Page 9: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Food Preoccupation developing

into Eating Disorder

Extended or recent history of chronic

dieting, body dissatisfaction

Likely temperament traits and/or

co-morbid mental illness present

Precipitating factor triggers full-blown

eating disorder

Example: Betty (subclinical

behaviors emerging into ED)

61 y.o. WF

Presenting with new onset of Clinical

BED

◦ History of dieting, body dissatisfaction

◦ Recent life triggers had food sought for

comfort and control

Late Onset Eating Disorder

Other mental or physical issues may initiate

weight changes which trigger disorder

Perpetuated by eating disorder

Perimenopausal trigger?

Subgroup of women sensitive to estrogen

fluctuations

Binge eating behaviors

Sleep disruptions

Baker and Runfola 2016

Page 10: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Example: Alexandra (new onset)

64 y.o. WF

◦ Ten year breast cancer survivor

◦ Mother died at client’s current age

◦ History of anxiety, depression

Recent depressive episode led to weight loss

Also reporting numerous undocumented food

allergies (beef, gluten, dairy, nuts).

◦ 5’6” reported UBW of 135#

Current weight 99# (BMI of 16)

Food Recall: “Susan”

4:40 am = 1.5 oz. Haddock, 2/3 C Sweet potato

7:45 am = 2 oz. Haddock with 1 1/3 cups veggie/rice mixture

10:30 am = 2 oz. Haddock, 2/3 c sweet potato

1:00 pm = 5 oz. Haddock, ½ avocado, 8 rice crackers (60 cal; 13 carbs, 1 pro), 1 ½ cups veggie/rice, I cup “rice water”

3:30 pm = “snack” few bites sweet potato with fish (not specified amounts)

6:30 pm dinner = 6 oz. Haddock, ½ avocado, 1 ½ corn tortillas (per 2- 110 cal; 22 carbs; 2 pro), 1 ½ cup veggie/rice, 1 cup “rice water”

9:30 PM snack = 1 oz. Haddock, 1/3 cup sweet potato

Onset of Eating Disorders in Older

Men

Similar profiles as noted above

Higher prevalence of BED than in

women

Increased risks of falls

◦ Overexercising behaviors

Reas and Stedal, 2015

Page 11: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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NUTRITION

CONSIDERATIONS

How may You see a patient with

an Eating Disorder?

Fainting episodes, dizziness

Low potassium

Anemia

Low Blood Sugar

Constipation/ GI Issues

Suicidal Ideation

Red Flags of potential eating disorders

Rapid weight loss

Hair loss

Lanugo

Poor capillary refill

Muscle wasting

Swollen glands

Calluses on knuckles

Tooth enamel erosion

Page 12: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Nutrition Risk Factors in Eating

Disorders

Acute:

Malnutrition

Orthostasis

Electrolyte

Imbalances

Dehydration

Long term:

Osteoporosis

Muscular (including

cardiac) atrophy

Dental problems

Depressed immunity

Kidney failure

Body less resilient

Screening Questions

Are you satisfied with your eating patterns?

Do you eat differently when alone than when with other people?

Does your weight affect the way you feel about yourself?

Do you believe yourself to be fat when others say you are thin?

Do you worry you have lost control over how much you eat?

Proper assessment of eating

Disorders

Increased medical rule-outs

◦ Thyroid issues

◦ Diabetes

◦ Infection

◦ Cancer

◦ Pulmonary Disease

◦ GI Issues

◦ Depression

◦ NOTE ANY OF THESE MAY BE PRECIPITATING FACTOR

Page 13: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Nutrition Interventions versus

Weight Loss

Mortality not directly related to weight loss

◦ Mortality increased due to weight fluctuations

◦ Decreased lean body mass in weight regain

◦ Most Co-morbidity risk not affected by weight loss

◦ Greater satisfaction with one’s weight shows better health in all weight ranges

◦ Behaviors not BMI predict health

Lee et al. 2010; Blake et al. 2013; Barry et al., 2014

Indications supporting Hospitalization

(one or more of the following)

< 75% median body mass index for age and sex

Dehydration

Electrolyte disturbance (hypokalemia, hyponatremia, and hypophosphatemia)

EKG abnormalities (e.g., prolonged QTc or severe bradycardia)

Physiological instability

◦ Severe bradycardia (heart rate <50 beats/minute at daytime;

◦ <45 beats/minute at night)

◦ Hypotension (<90/45 mm Hg)

◦ Hypothermia (body temperature <96F, 35.6C)

◦ Orthostatic increase in pulse (>20 beats per minute) or decrease in blood pressure (>20 mm Hg systolic or >10 mm Hg diastolic)

NH Golden et al., J Adol Health 56 (2015) 370-375.

Goals of Different Levels of Care

Inpatient Hospitalization (IP): Medical stabilization

Residential Treatment Center (RTC): Weight

restoration, symptom management, skill building

◦ More intensive therapeutic opportunities

◦ Help prepare self and environment for step-down

Partial Hospitalization Program (PHP): Work on

independence with strong therapeutic support

◦ Sleep on own, meal(s) on own

Intensive Outpatient Program (IOP): Begin real life

with consistent support throughout the week

Page 14: The Ageless Disease of Eating Disorders: Truths ......Barry, V.W et al. Fitness vs. Fatness on All -Cause Mortality: A Meta Analysis. Progress in Cardiovascular Disease. 2014; 56(4),

1/17/2017

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Take Home Messages

Eating Disorders are prevalent in all ages

and demographics

Precipitating versus Perpetuating Factors

Ask questions – don’t assume

Behaviors versus weight when making

health improvement recommendations

Seek help from other providers

◦ Eating Disorders are a collaborative treatment

effort

Thank You! Jenn Burnell MS RD/LDN CEDRD

Carolina House

[email protected]

919-619-8073

www.CarolinaEatingDisorders.com

References Baker JH and Runfola CD. Eating Disorders in Midlife Women: A Perimenopausal

Eating Disorder? Maturitas 2016; 85:112-116.

Barry, V.W et al. Fitness vs. Fatness on All-Cause Mortality: A Meta-Analysis.

Progress in Cardiovascular Disease. 2014; 56(4), 382-390.

Beavers KM et al. Is lost lean mass from intentional weight loss recovered during

weight regain in post menopausal women? Am J Clin Nutr. 2011; 94:767-74.

Beck D, Casper R and Andersen A. Truly Late Onset of Eating Disorders: A Study

of 11 Cases of Averaging 60 Years of Age at Presentation. Int J Eat Dis. 1996;

20(4): 389-395.

Blake CE et al. Adults with Greater Body Satisfaction Report more Positive Health

Behaviors and Have Better Health Status Regardless of BMI. J Obesity. 2013;

(Article ID 291371)

Elran-Barak E et al. Anorexia Nervosa, Bulimia Nervosa, and Binge Eating

Disorder in Midlife and Beyond. J Nerv Ment. 2015: 203; 583-590.

Gagne DA et al. Eating Disorder Symptoms and Weight and Shape Concerns in a

Large Web-Based Convenience Sample of Women Aged 50 and Above: Results of

the Gender and Body Image (GABI) Study. Int J Eat Dis. 2012; 45:832-844.

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1/17/2017

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References Lee, JS et al. Weight Loss and Regain and Effects on Body Composition: The

Health, Aging, and Body Composition Study. J Gerontol A Biol Med Sci. 2010;

65A(1): 78-83.

Midlarksy E and Nitzburg G. Eating Disorders in Middle-Aged Women. J Gen

Psychol. 2008; 135(4): 393-407.

Podfigurna-Stopa A el al. Eating Disorders in Older Women. Maturitas. 2015;

82:146-152.

Reas DL and Stedal K. Eating disorders in men midlife and beyond. Maturitas.

2015; 81: 248-255

Pursuing Perfection Eating Disorders, Body Myths, and Women at Midlife and

Beyond. Margo Maine and Joe Kelly, Published 2016