1.Social Media inClinical Trial RecruitmentJohn Sharp10/28/2011

2. The Big 3 Twitter, Facebook,YouTube Pervasive Patients follow organizations, academic medical centers interested in discoveries FDA watching Pharmas use of social media Always link back to more information and a contact person 3. Engagement with online patientcommunities Patients discussing the latest treatments, trials Rare diseases particularly effective NORD More common diseases DiabetesMine.com thousands of visitors daily Breast cancer communities active ALS, MS PatientsLikeme.com Peer-to-peer healthcare Mayo Clinic rare cardiac disease community eager to engage 4. More recruits that you canaccommodate News travels quickly via Twitter, Facebook Army of Women with Susan Love 12 studies and 12,000 signed up in 2009 alone Breast cancer, lung cancer, obesity studies 5. What does the Institutional ReviewBoard think? Yet to be approved How is this different from traditional advertising for clinical trials? Need social media experts on the IRB Need to begin to define best practices What are adverse events in online research, what should be reported? 6. References (1) National Organization for Rare Diseases (NORD)Facebook page:https://www.facebook.com/NationalOrganizationforRareDisorders Online Patient communities:http://www.rarediseases.org/patients-and-families/online-communities PatientsLikeMe.com Clinical Trials Tool:http://www.patientslikeme.com/clinical_trials Engaging E-Patients in Clinical Trials through SocialMedia Blue Chip Marketing report:http://bluechipmarketingworldwide.com/BCPR_form/BlueChip_SocialMedia_5-2011.pdf Can Breaking Oncology News Spread Socially? Fromthe blog, 33Charts: http://33charts.com/2010/10/can-breaking-oncology-news-spread-socially.html 7. References (2) E-Patient White PaperChapter 6 e-Patients as Medical Researchershttp://e-patients.net/e-Patients_White_Paper.pdf Mind the Gap: Peer-to-peer HealthcareFrom Pew Internet & American Life Projecthttp://www.pewinternet.org/Reports/2011/20-Mind-the-Gap.aspx Social Media Valuable Tool for Recruiting StudyParticipantsMayo Clinic Proceedings, 8/29/11http://www.mayoclinic.org/news2011-rst/6420.html