Supporting autonomy and aspirational thinking in young people with life shortening conditions – the need for choice

Claire TurnbullOctober 2016

Introduction to CHAS and Transitions

Hospice provider for babies, children and young people in Scotland

Family Support and CHAS at Home service Upper age limit 21yrs Transition Team Project Initial findings

Autonomy

Independence or freedom of one’s thoughts and actions

Free will Self governing The state of existing or acting without others Capacity to make informed choices, free of

coercion

Aspirational Thinking

“Dream as if you'll live forever. Live as if you'll die today”.

James Dean

What are the unique needs of young people with life shortening conditions

Bringing about change

Case examples/studies Consider the impact Increased confidence in young people

Future recommendations

Evaluation Nurture creativity Support aspirational thinking - dream and

plan Improved choice in care settings & delivery Need for specialist resources Community Inclusion - growth Joint working critical